Tetralogy of Fallot Jimmy Wang Children’s Memorial Hospital November 2, 2007.
Ground Floor, Children’s Memorial InstituteAnnual Report (Period April 1st 2013 – March 31st...
Transcript of Ground Floor, Children’s Memorial InstituteAnnual Report (Period April 1st 2013 – March 31st...
Annual Report
(Period April 1st 2013 – March 31st 2014)
Ground Floor, Children’s Memorial Institute
13 Joubert St Ext, Cnr Empire Road. Braamfontein. 2001
Tel: 011 484 9909 Fax: 011 484 3171
www.autismsouthafrica.org
P.O Box 84209. Greenside. 2034
Section 18A Tax Exemption No: 18/11/13/2213
NPO No: 000 – 454 NPO
PBO No: 2997/093/84/5
Auditors
Oct∆gon Chartered Accountants
Private Bag X02 Highlands North 2037
Tel: 011 531 7300
Chairman’s Report March 2013
The past year has been one of change and growth for Autism South Africa (A;SA). In her first year
as National Director, Sandy Klopper has settled in and is doing great work, despite the many
challenges. She has done her utmost to galvanise and motivate the staff to achieve as much as
possible.
In December 2013, for the first time since 2011, all the full-time staff was
brought together for a week of training in Johannesburg. It was a much
needed team building exercise that gave everyone the opportunity to
properly meet each other, as well as Sandy, culminating in a Christmas
Lunch. This will be followed up in 2014 with a day of Team building which
I believe will go a long way in developing Team A;SA. I am confident that
with Sandy at the helm A;SA will prosper and I wish her and “The Team”
well.
Our 2012 funding proposal to NLDTF was successful, with the much needed funding coming
through at the end of 2013. One of the immediate benefits was the appointment of Thando
Makapela as our Regional Development Officer for the North West Province. This is a neglected
region with virtually no services or facilities for adults and children with ASD. Thando has her work
cut out for her, but I am sure she will tackle the challenge with great determination. We are
excited about the growth and impact of services, not only in the North West but right across South
Africa.
A;SA is delighted with the kick-off of “Hands On Autism” which provides
affordable, practical and hands on ASD specific training to teachers,
therapists and classroom assistants. Developed by Claire Allen, Reinette
Lombard and Tam Bennet in collaboration with JHS4Autism School,
“Hands On Autism” is a much needed in-depth addition to the
workshops currently offered by A;SA and the response has been
phenomenal.
All of the training provided by A;SA’s is accredited, for continuing education points, by the Health
Professions Council of South Africa (HPCSA) and the South African
Council of Social Service Practitioners (SACSSP). The aim is to have
our training accredited by the South African Council of Educators
(SACE) for 2014. MGSL has also approved A;SA as a preferred
service provider for the Department of Education’s Autism training.
Training over the past year has targeted Departments of Education,
Public Health and Social Development as well as early childhood development centres and more.
The monthly Autism Screening Clinic continued under the guidance of Professor Lorna Jacklin and
Doctors Thomson, Bezuidenhout, Kelly and Belsham. Together with an amazing and skilled team of
therapists they are providing an invaluable service. I sincerely thank everyone involved with the
Clinic for their dedication and passion which has resulted in 33 individuals being diagnosed
and/or referred for appropriate intervention.
We were saddened when our one year agreement with Wetpaint came to an end
and sincerely thank them for all their support and input into our Social Media
Campaign. Thanks to their efforts, A;SA started using platforms like Facebook to
spread awareness of autism. However, as the old adage of one door closing…
another opened with Ogilvy taking on A;SA as a pro-bono clients for 2014/2015. In the
short time since Ogilvy has partnered with A;SA, the media coverage and campaign
has already proved priceless. Within the first week, Sandy was asked to join CARE Therapy
Manager, Krishen Samuels, on Great Expectations on ETV! Thank you to the Ogilvy team and in
particular Jacqui O’Sullivan for pointing them our way.
I would like to extend my thanks to House of Brave and Mediacom for their continued support.
As with most NGO’s in the disability sector, A;SA is dependent on benefactors, for survival. There
are times when the financial future of A;SA looks rather precarious but we are extremely fortunate
to have generous benefactors willing to assist where possible. I would like to extend heartfelt
appreciation and thanks to all of our benefactors, on behalf of A;SA and our all-important
beneficiaries.
I sincerely thank Insure Group Managers for their incredible donation of R500 000. This is the single
largest corporate donation that we have received in our 24 year history.
I would like to especially thank two of our loyal funders, the Federated Employers Mutual
Assurance Company and ADD Electrical Contractors, whose generous and continued support
ensures that support to individuals with Autism continues throughout the country.
I would also like to thank Casual Day for selecting A;SA as a national beneficiary for the first time
in 2013. In this regard I must thank the companies, schools, hospitals and individuals for their
support in purchasing Casual Day stickers from us. Words are not enough to express our gratitude
to the RAM Hand-to-Hand Courier Team without whom this would not have been possible. RAM’s
contribution is however not restricted to Casual Day, anything A;SA needs sent somewhere in the
country is delivered by RAM, free of charge; hands down the best courier company in the land.
Fundraising events that took place during the past
year included Christmas in July, the annual A;SA
Golf Day at Parkview, and Carols by Candlelight. In
addition to which the 7de Laan cast rode in the 94.7
cycle race with A;SA and UNICA school being the
beneficiaries.
A special thank you goes to Hector Kingwill. He started working flexi-time, helping with the
financial records and is now working full-time, in retirement. His meticulous eye for detail and work
ethic is of great value and greatly appreciated.
On 8th May 2013, Hon. Bathabile Dlamini, Minister of Social Development announced during the
tabling of the Budget that significant focus will be placed on Autism and that much needed
funding will be allocated to this neglected disability. Never before have we drawn the attention
of Government and we look forward to the fruits being borne by the lobbying by A;SA over the
past 24 years!
This is my final year as Chairman of A;SA as I believe it is time for new and younger blood on the
NEC. I would like to thank the numerous Members of the NEC and members of staff that I have
worked with over the years. All their contributions have been responsible for the significant growth
and development of A;SA, since my initial involvement. I am sure that A;SA will continue to grow
from strength to strength and I wish the new Chairman and NEC as well as Sandy and her A;SA
Team all of the best for a fantastic future.
PAUL PRATT.
A;SA Chairman
National Executive Committee 2012 – 2014
Chairman: Paul
Pratt
Father of an adult with autism. Chairman of ASA
since 2002.
Vice-Chairman:
David Griessel
Principal Specialist – Dept of Paediatrics and Child
health University of the Free State.
Treasurer: Hector
Kingwill
Bookkeeper – friend of Autism South Africa
Petrus De Vries
Professor of Child and Adolescent Psychiatry.
University of Cape Town
Thando Makapela
Mother of young adult with autism
Petra Dillmann
Mother of a young adult with autism. Founding
member and Director of Autism Asperger Namibia.
Aretha Kausele
Mother of a son with autism
My first four months of Autism South Africa have been a whirlwind trip of learning and experiences!
I could never have anticipated the amount of work, energy and emotion goes into leading the
team of Autism SA. My impression thus far… I have found where I belong!
Thank you to the team and community for welcoming me so graciously. All the support and
assistance given to me while I found my feet has been priceless!
I am really looking forward to making a tangible difference to the organisation as well as the
community which we serve! Autism South Africa’s face is changing and I do hope that everyone is
holding on tightly for the ride!
All the Best,
Sandy
Head Office Staff
National Director Sandra
Klopper
Tel: 011 484 9909
Resource
Development
Officer
Claudia
Ceresa
Tel: 011 484 9909
National Education
Facilitator
Claire Allen
011 484 9909
Office Administrator Binwell Keshi
011 484 9909
Internal
Bookkeeper
Hector
Kingwill
011 484 9909
Regional Development Officers
Autism South
Africa Eastern
Cape Branch
Antoinette
Bruce-Alexander
Tel: 071 360 3992
Autism North
West
(March 2014)
Thando
Makapela
Tel: 079 392 2786
Autism South
Africa KwaZulu-
Natal Branch
Rosemary Shezi
Tel: 071 360 4034
Autism South
Northern
Cape/Free
State
Ruth Blood
Tel: 071 473 4293
Autism South
Africa Limpopo
and
Mpumalanga
Mary Moeketsi
Tel: 071 360 6535
Head Office
Media Campaign 2013
On the advice of media experts and the approval of our membership and NEC Autism SA
embarked on a ‘shock tactic’ media campaign. To our dismay this campaign was met with high
criticism and had to be immediately withdrawn. The intention was to get South Africa talking
about Autism, not to offend anyone. We again extend our apologies to any individual or family
that were upset by the campaign.
Training and Exhibitions
ACSA Disability Expo
Department of Human Settlement
Department of Science and Technology
Department of Health: Health Promoters
Hands On Autism: Moving Forward – Module 1 & Module 2
Cresset House
Thandulwazi Maths and Science Academy (St Stithians Foundation) – over 500 teachers!
Proposals for training and funding
Department of Social Development
Department of Education (Gauteng)
US Ambassadors Self-Help Fund
Independent Development Trust (8x provinces)
LGBTI
HCI Foundation
Reports and reapplications sent to Anglo American Chairman’s Fund and Nedbank
foundation
Accreditation
Health Professions Council – 6 points for 1 day workshop; 20 points for 3 day Hands On
workshop
South African Council of Social Services – 3 Points for 1 day workshop; 15 points for Hands
On workshop
In the process of registering as service provider for Dept of Education (MGSL)
Assessment Clinic
The Assessment Clinic is hosted monthly at Autism South Africa.
Multi-disciplinary Team assessment assisting between 1 – 4 families per clinic
Support groups
Charlotte Maxeke Hospital Neuro-Developmental Clinic and Autism Clinic
Parent Support Group at Charlotte Maxeke Speech Therapy Dept 07/02/2014 (BK)
Networking, Advocacy and Awareness
Association for Autism
Autism Western Cape
NACOSS
Vera School
South African Disability Alliance
Department of Education
Inclusive Education
Carols by Candlelight
Coaches who care – Investec and the Fresh Group
PRASA
House of Brave
Star Academy
Association for Autism
U.N.I. 4 learning (SK, CA)
Johannesburg Hospital School Training Team
Insure Group: Inspiration
MANCO
Family Support
Assessment Clinic Matters – approximately 147 families
School Requests – approximately 240 families
Referrals to Drs. Etc – approximately 27 families
Other e.g. ICE bracelet enquiries – approximately 48 familes
Over 50 000 informational brochures were sent out across South Africa
5000 Aut;Talk publications were distributed to members of Autism South Africa
Educational First Aid Kit Donations:
Eastern Cape
Dept of Health Learn and play Pre School Theodor Herzl School
Autism Sinethemba Bilitech Primary School Vukuhambe Special School
Aurora Special Care Centre Liz Watsson-Parent Vulekani Special School
Arcadia School Ikamva School Vukuzenzele
Cape Recife High School Leolan Academy Westview School
College Street Primary Quest School Kuswag Primary
Education Support Centre St Barts Academy Kuyasa SS
Efata School St Patrick's SS McClelland Adult Centre
Elsen Academy Tembisa Special School New Rest - USENAP
Fundisa Special School Tsolo Special School Nolitha Special School
Fundukwenza Care Centre Luthando Luvuyo School Nontuthuzelo Primary
Ikhwezi Lokusa School Sedibeng School - deaf Parkland Special School
Kanyisa Special School Sigcau Special School Spesiale Skool Bergsig
Khayalethu Special School Sive School Kings Kids Edu-care
Free State
Boitumelo Special School Temoso Special School Pelonomi Hospital
Leboneng Special School Lilian Lehehla Special School Support group
Learamele Special School Kagisho Day care School Joahnn Slabbert Skool
Pholoho Special School Itsoseng Day Care School truly Blessed School
Gauteng
Isozolwetu School Bodisa day Care Rethabile day Care
Sunshine School Sisonke Day Care Tsalanang
Maleeha Layla Centre Phutanang School Talifthan School
Phelang School Pull together Zimeleni special School
Kethiwee Stimulation
Centre Albertina Sisulu School
Westrand School
Madressa Islamic School Khutso day Care Jongspan Primary
New Horizon school Zenzele School Monyakeng School
Grace day Care centre Inkwekwezi day care Thabo Mbeki day Care
Kwa-Zulu Natal
Bumbisizwe School Inkanyezi Training Centre S Dass School
Ekukhanyeni Special School Inkanyiso Special School Sisizakele School
Entokozweni Special School Ningizimu Special School St. Christophers School
Ethembeni School Ocean View Primary School St. Raphael's School
Ekuthuthukeni School Open Air School Stanger Training Centre
Golden Steps School Open Gate School Sunfield Home School
Harding Special School Peter Pan School Ukukhanya Komsinga School
H.S. Ebrahim School for LSEN pholela Vuleka School for the Deaf
Horizon Farm RP Moodley School Vumanisabelo Special School
Inanda special Schola Amoris school YWCA Special School
Zamimpilo Special School Zululand Remedial Centre Vumanisabelo Special School
Limpopo
New Horizon school Grace and Hope School Grace day Care centre
Solomon Snyman
Mpumalanga
Mable hall Masinakane Pelonolo School
Talifthan School Mantjendi School Wolwenkop
Ms Fenki Kekana
Outside South Africa
Autism Namibia Kabwe Autism School Camphill Centre
Northern Cape
Tlhlabologo Day Care Magda King Kantinka Van Oosen school
Frances Baard Therapists Oasis Skills Development Kagisho Day care School
Leonie meyer
North West
MM Sebitloane School
Regional Offices
Autism South Africa’s mission is to provide access to services within a 30km radius of families
affected by and individuals with Autism Spectrum Disorder! Autism South Africa’s community
based Regional Development Officers strive daily to empower, educate and facilitate
upskilling at any and all levels of engagement. The addition of 1 extra office early in 2014 saw 7
of the 9 provinces having at least 1 ‘go to’ person! Each RDO works tirelessly and often
thanklessly to ensure that more and more families each year have someone to call when
needed.
Free State/Northern Cape – Ruth Blood
Information/Training Sessions Presented
Parent I/ Session (NC) Emang Mmogo High School
(NC)
Galeshewe Aged (NC)
Dr. Harry Surtie Hospital Upington Therapists (NC) Kimberley Hospital (NC)
Oasis Skills Development
Centre
Maphiko Group (Gauteng) Kimberley City Clinic (NC)
Department of Education Kimberley Rotary Club (NC) Tlhokomelo One Stop (NC)
Department of Social
Development in Upington
Amelia Centre (FS) Kakamas Hospital (NC)
Sol Plaatje School (NC) Francis Baard District (NC) De Aar Hospital (NC)
Association for Persons with
Disability (FS)
Central Karoo Hospital (NC) Thabane High School (NC)
Sebitloane Special School
(NW)
NG Kerk Welsyn (NC)
Support to families
Family support – 8 families
Pelonomi Parent Support Group (FS)
Classroom and School Support
Oasis Skills Development Centre
Sol Plaatje School
Sebitloane Special School
Emang Mmogo High School
Thabane High School
Areas Visited
Kimberley
Taung
Upington
Postmansburg
Phutanang
Eastern Cape – Antoinette Bruce-Alexander
Information Sessions / Workshops presented.
Buffalo City Metro Daycare Forum
Lillyfontein School, Gonubie, East London
Berea Baptist Church
Support to families
Parent Support: over 50 families
Donated Starter Kit to Watson family.
Support Group Meetings
19 November 2013, 20 Sept 2013, 20 August 2013, 16 July 2013, 11 June 2013, 09 April 2013
Classroom and School Support
St Andrews College, Grahamstown
Baysville Special School support
Tsolo Special School support, training & Donation of a Starter Kit
Kwakhanya Centre support, training and donation of Educational First Aid Kit
Department of Health:
Grey Hospital in King Williams Town
Areas Visited
Buffalo City
Mdantsane
Grahamstown
King Williams Town
Bhisho
Sweetwaters, Zwelitsha
Tsolo
General
Autism South Africa – Eastern Cape is a registered service provider for the Department of
Education
Big Walk for Autism in East London for Autism Awareness Month.
Process of registration A;SA, EC as a service provider to EC Government with Dept of
Treasury, Bhisho. We are now officially registered.
Advocacy, advocacy, advocacy!
Autism South Africa Activities
Kwa-Zulu Natal – Rosemary Shezi
Information/Training sessions presented
KPACC ( Kwazulu-Natal Provincial Advisory Council for Children
Khanana Old Age Home
UMlazi AA clinic
Nedbank Call Centre Mount Edgecombe
Izwi Lomzansi Radio Talk Show
EThekwini Mothers Forum
Greys Hospital
Vulekani Special School
Dept. of Health provincial rehab Teams
Midlands Complex: Grey’s Hospital
North Coastal Region: Empangeni Department of Health District
Ethekwini Metro Region: Clairwood Hospital
Hope World Wide SA: ECD Practitioners, Cator Manor
Durban and Coastal Mental Health Social Workers
Mzamo Child Guidance Social Workers: Umlazi
KwaNdengexi Cluster: Main Stream educators and assistants
Support to families
Family Support – 24 families
Host Pietermaritzburg Parent Support group 1x month
Classroom and School Support
YWCA Special School iNdaleni Special School
Stanger Training Centre 100 Acres Home School
Sizabantwana Open Air School
Georgedale Community Hall Empilweni Centre
Vulekani Botate Primary
Sunfields Home School Khulangolwazi Special School
KwaManzini
Areas Visited
uMzimkhulu (Clysdale) Melmoth
ENdaleni Canelands
Stanger Pietermaritzburg
Verulam Pinetown
EMbo Cator Manor
Madadeni Durban
Ngwavuma
Limpopo/Mpumalanga – Mary Moeketsi
Information/Training Sessions Presented:
Waterberg district Porters’s house ministry
Vhembe district Autism Asiphumelele Lsen
Capricorn district municipality Kwagga district (Mpum)
Mahlodumele Full Service school Moretele district (Mpum)
Sekhukhune District Based support Team Siyabuswa district (Mpum)
Pontsho disability centre Nelspruit
Matobule Lsen School Witbank
Polokwane WAAD Centenary House – Polokwane
Health Promoters – Dept of Health Gauteng
Family Support
Support for almost 60 Families
Parents Support Group Meeting 1x per month
School and Classroom Support
Rant en Dal School Nokuthula Special School in Alexandria.
Capricorn district based support team meeting Bosele Lsen school
Progressive ECD in Lebowakgomo Tembinkosi Lsen
Reinotswe Special School
Awareness and Exhibitions
Media
Etv sunrise
Lesedi fm
Radio pulpit
Radio Islam
SABC (siswati fm)
Radio pulpit(western cape)
SAMA conference
Areas Visited
Witbank Capricorn Waterberg Nelspruit Sekhukhune
Polokwane Randburg Lebowakgomo Alexanda Kwagga
Vhembe Moretele Siyabuswa
North West Province – Thando Makapela
I started building ground and foundation in the North West in March of this year. At first it was felt
that I was spying and so my visits were met with some resistance, but this quickly improved as I
spent time with the community and educators. Within a week or two my presence and return
visits were being requested. The community really appreciate the support and assistance.
One thing that I noticed the North West is the most under-resourced Province. In the rural areas it
is very clear that there are no social services, health services or educational support services. The
clinics seem to be managed by security personnel! The most horrendous thing I witnessed was in
Moruleng. A child was being tied to a tree as educators do not have an idea what to do with him
while they manage the other 30 learners. I quickly intervened on this case and met with the
parents. It turned out that the parents are unemployed and they have no resources to take the
child for diagnosis. I requested the Principal to call the Department of Social Development and
request that a social worker intervene immediately.
Matters have already improved and I being requested to visit many areas within the province to
talk and drive awareness campaigns.
National Lotteries Board
R1 553 200
Insure Group Managers
R510 000
Fed. Employers Mutual Ass
R300 000
Casual Day
R263 534
Concord Trust
R150 000
RB Hagart
R100 000
Anglo American Chairman’s Fund
R75 000
ADD Electrical Contractors
R70 000
Toys R Us
R62 500
Fraser Alexander
R50 000
Nedbank Foundation
R50 000
Robert Niven Trust
R50 000
Dischem
R45 000
House of Brave
R890 000
My ADSL Broadband News cc R424 837
Wetpaint
R321 750
Mediamark
R280 200
Primelites R103 725
Continental R83 832
Sowetan R79 440
RAM Hand-to-Hand Couriers
R112 356
Capro Ltd R58 501
Mail & Guardian R30 278
R20 000 - R30 000
Nashua Mobile
Lowenstein Trust
Deloittes
Ads 24 (Services)
Mediacom
R Whitehorn
R10 000 – R19 999
Antalis SA (Pty) Ltd (Services)
RM Pearse
Christmas in July
Unichem
Beacon Lighting
Dr PR Johnson
Arcfyre International
PEP Stores
Danie Odendaal productions
Tom & Evelyn Yates
Pallet Supply Company
Lewis Stores
CPS
University of Witwatersrand
Corporate Printing Solutions (services)
Techniad AD
R5 000-R9 999
Multiprint Litho
SA Fed for Mental Health
Colour Corp (Services)
Blond Productions
Signman 94cc (Services)
Bryanston High School
Arthur Bales
Amanda Bradford
Willowton Foundation
DWR Distribution
Fuchs Foundation
Pentagon Pistols
< R5 000
Arabella Hotel and Spa (Services)
Vera Oosthuizen
Dr HR Voigt
Spoor & Fisher
Lighting Innovations
Parkview golf Club
Chris Gealy
Strategic Personnel
Dream Sets
La Farge
Charity Race
Let’s Talk
Wellington Autism Centre
The Ridge School
C Moreton
Credit Guarantee
Michiel van Niekerk
Orion Pack
FFS Refinery
Premier Verification (Services)
P Dlamini
Benneton Insurance Brokers
Coronation Training School
My World
Wiggles & Squiggles
Vulekani Special School
Reichmans
Neo Medical Sustainable Solutions
N McDowell
Mazars
St Andrews College
Gill Kretzschmar
SSE Linkworld
Osrin Trust
Olympic Flair
Freemasons (District Lodge)
WBHO
Prof RWE Joubert
<R1000
Randburg Clinic School
S Kahn
NAPTOSA
M Schutte
MTSO
TVL Electric Motors
Orkilla
New Beginnings
Greenfield Family
LM Pitt
De Aar Hospital
The I,T&R Cohen Trust
Western Area Library
Andrew & Fiona Browne
Tabtoob SA
Ellies
R Faulconbridge
C Greyling
G Hahn
C Mare
L Kulube
Tanaka Dhliwayo
M Barton
RJ Stacey 50
2013 has seen autism awareness increase and the call for information sessions and training spread
across the many provinces.
We have welcomed many exciting opportunities for Autism South Africa. The highlights for me
have to be being able to attend the World Autism Organisation conference in Dublin and the
development of our “Hands On Autism” Course towards the end of 2013.
Below is a list of the many school visits and training sessions I have carried out between April 2013
and March 2014
Site Visits and Classroom Support:
Chrysallis Academy Randburg Clinic School Gauteng
Unity College – Gauteng New Covenant Development Centre
Khulani Special School KZN Lesedi pre-school Gauteng
Intuthuko Special School KZN The Talk Shop Gauteng
Creative world Academy C.A.R.E Gauteng
Forest Farm Centre – Gauteng Anne Harding Cheshire Home Gauteng
Amazing K – Gauteng Nokuthula Special School Gauteng
Coronation Training Centre Gtng UNICA School Gauteng
St Raphael’s Special School KZN
Workshops/training:
Westonaria Library - Gauteng SAALED conference - Gauteng
The Teddy Bear Clinic- Gauteng Selwyn Segal - Gauteng
Randburg Clinic School - Gauteng Let’s Talk, Witbank - Mpumalanga
Support Group, Orange Farm, Gauteng Asperger’s Support - Gauteng
Wiggles and Squiggles – Gauteng Arcadia Jewish children’s home - Gauteng
Alberton Remedial School – Gauteng NAPTOSA - Gauteng
Forest Farm – Gauteng Department of Social Development – Free State
My World nursery school Clamber Club - Gauteng
Amazing K- Gauteng Thandulwazi Trust, St Stithians Foundation Gtng
Dept of Health - Gauteng Dept of Education Pinetown, KZN
Cresset House - Gauteng Thandulwazi Trust, St Stithians Foundation
Conferences and exhibitions:
2 day World Autism Organisation conference in Ireland, UK April 2013
3 day Future-Ed Ed Expo July 2013- 3 seminar talks (9 IN Total):
3 day Disability Expo November 2013 - Nasrec