Gordon Grant: Participatory research some thoughts on working together
description
Transcript of Gordon Grant: Participatory research some thoughts on working together
![Page 1: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/1.jpg)
Participatory research: some thoughts on working together
Gordon GrantSheffield Hallam University, UK
University of PlymouthESRC SeminarJanuary 2013
![Page 2: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/2.jpg)
A bit about me
Participants
Partnerships
Putting it into action
Questions (????)
What I will talk about
![Page 3: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/3.jpg)
About me and my interests
• A programme that embraced inclusive research – the Learning Disability Research Initiative
• Inclusive research with family carers
• Stories about mental health; stories about growing older
• Setting up advocacy and self advocacy projects (a long time ago)
• Working with service user research groups in Sheffield and Doncaster
![Page 4: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/4.jpg)
Difference and diversity (1)
We can all have personal conditions that vary in their:
Onset – sudden/out of the blue or gradualCourse – gradual, constant or from time to timeOutcome – low to high risk of deathIncapacity – cognitive, sensory, mobility, energy,
stigma or combinations of these
Rolland, J.S. (1994) Families, Illness and Disability: an integrative treatment model. New York, Basic Books
![Page 5: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/5.jpg)
Difference and diversity (2)
Ideas about time:
physical or body clockfeeling ready to act (psychological readiness)historical time (different cohorts)personal narrative (history is personal)service timetableswhen others think it is ‘time’ (social/cultural)
Based on Mills, M. (2000) Providing space for time: the impact of temporality on life course research, Time and Society, 9, 1, 91-127.
![Page 6: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/6.jpg)
Some thoughts
Linking personal conditions with time:
• Explaining the selection of people with different personal conditions as (i) co-researchers, (ii) research participants
• Spotting ‘overlooked’ groups• Making use of people with different kinds of personal experience• Avoiding knowledge built on old ideas about incapacity
PLUS
![Page 7: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/7.jpg)
Outcomes
Individual
ProjectSocial
![Page 8: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/8.jpg)
Individual outcomes
Technical – understanding of research, learning new research skills
How well I feel – self confidence, assertiveness, self esteem
Project management – capacity for decision-making,giving direction, sharing expertise
![Page 9: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/9.jpg)
Social outcomes (partnerships)
Safety
Belonging
Continuity
Purpose
Achievement
Recognition
![Page 10: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/10.jpg)
Safety
Is this an ‘approved’ project? (ethics)Have I received relevant training? Do I have the right gear? (preparation)Am I receiving good support? (personal assistance where necessary)Am I being paid? (financial security)
£
![Page 11: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/11.jpg)
Belonging
Do I feel part of things? (group identity)Can I express myself? (contribution to discussion)Am I helping to make things work? (feeling part of a team)
Team
My pal
Me
![Page 12: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/12.jpg)
Continuity
Was it my decision to take part? (personal control)Am I building on my strengths and interests? (skill consolidation)Is it helping me to develop new career opportunities? (career progression)
Taking part New skills Next project
![Page 13: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/13.jpg)
Purpose
Do I actually value taking part? (importance)Has it been worthwhile for me? (meaningfulness)Does it make me feel better? (integrity)
✔
![Page 14: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/14.jpg)
Achievement
Am I making progress?Am I developing useful skills?Am I helping to change things for the better?
![Page 15: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/15.jpg)
Recognition
Am I receiving (internal) recognition for what I am doing? (positive feedback, pay)Am I receiving external recognition for what I am doing? (publications, certification, validation)Am I being treated right? (self-image, dignity)
![Page 16: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/16.jpg)
Social outcomes (partnerships)
Adapted from:
Nolan, M., Lundh, U., Grant, G. and Keady, J. eds. (2003) Partnerships in Family Care: understanding the caregiving career. Maidenhead, Open University Press
![Page 17: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/17.jpg)
Outcomes - project
What is good participatory research?
using and explaining knowledge contributions - from service users and academic researchers
testing each-others’ knowledge contributions changing things (i) testing big ideas, (2) changing services, (3) policy
change, (4) building research capacity, (5) personal change data analysis – rigour and clarity is the main research question answered?
![Page 18: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/18.jpg)
Outcomes
(participatory action research)
• relational praxis – does the study fully involve others?• capable of application – resulting in better experience or better services• plurality of knowing – bringing together knowledge from different
stakeholder groups• ‘significant work’ – making a real difference to people’s lives• transformative – towards enduring consequences
(from Bradbury and Reason)
![Page 19: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/19.jpg)
More questions • How can science as evidence and evidence as conviction be made to
work together?
• How judge ‘good’ inclusive research – in relation to outcomes as well as processes?
• Is there a case for ‘core’ (fixed) and also ‘periphery’ (conditional) criteria in judging the quality of inclusive research? What might these be?
• What might knowledge transfer and exchange theorising tell us about good inclusive or participatory action research?
![Page 20: Gordon Grant: Participatory research some thoughts on working together](https://reader036.fdocuments.us/reader036/viewer/2022062704/556215e0d8b42af2128b523d/html5/thumbnails/20.jpg)
Further information
Gordon GrantCentre for Health and Social Care Research
Sheffield Hallam UniversityMontgomery House
32 Collegiate CrescentCollegiate Campus
SheffieldS10 2BP
email: [email protected]