General PH Power PointFOR GENERAL PUBLIC WHO KNOWS LITTLE ABOUT PH

What do you think of when your hear hypertension?

How serious does this sound?

But pulmonary hypertension is different…

Imagine being a child who couldn’t run with their friends, ride a bike, or swim because it could put

you in the hospital

Imagine being advised by your physician never to get pregnant because child birth could be

fatal

What is PH?

High blood pressure in the lungs. PAH is a chronic and life-changing disease that can lead to right heart failure if left untreated.• Breathlessness• Chest pain• Dizziness• Fainting • Loss of energy

• Swelling of the arms, legs, ankles or abdomen

• Dry cough• Raynaud’s phenomenon (chalky

white or dusky blue fingers that may be painful and can sometimes be provoked by the cold)

What its Like to be a PH Patient Today

Research

We have come a long way with research, developing 12 new treatments in the last 20 years. Ultimately, the PH community hopes for a cure, and that is what research continues to strive for.

Diagnosis

PH shares many symptoms with less serious diseases, leading to misdiagnosis. On average it takes 2.8 years for a patient to be diagnosed.

Treatment

Treatments are expensive and often have significant side affects. There are currently no FDA approved treatments for children.

Some of the Problems PH Patients Face

Access to Treatment Lack of Awareness

PHA: A Community Full of Hope

How to Get Involved!

Raise Awareness

Special Events

Community Education

Media Action Network

Fundraise

Special Event

Online

With a Group

At Celebrations

How to Get Involved (cont.)

Advocate

Become a 435 Campaign Member

Sign Up your Group for our Advocacy Group list

Send an Email to your Member of Congress

Volunteer

Local volunteers

Remote Volunteers

Specialty Skills

A Community That Never Stops PHighting

To learn more about Pulmonary Hypertension or how you can get involved go to www.PHAssociation.org