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Transcript of FS24 Self-Directed Support Direct Payments and Personal Budgets August 2010 Fcs
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Factsheet 24 August 2010 – AM066 1 of 43
Factsheet 24 August 2010
Self-directed support: Direct Payments andPersonal Budgets
About this factsheet
This factsheet outlines the development of self-directed support within the
Government‟s personalisation agenda. Direct Payments presently sit within
personalisation as a funding option and also exists independently as the
means by which cash payments can be made to eligible individuals to meet
their needs. Section 2 of the factsheet consists of an in-depth summary of
Direct Payments. The following sections focus on aspects of personalisation,
including information on the intended increase of service user choice and
control over the funding and provision of services, funding choices within
Personal Budgets, risk management and safeguarding, the preventative
agenda, carers rights to services, support brokerage and the central role of
advice and information for all those with needs in the community.
The information in this factsheet is correct for the period August 2010 – July
2011. However, legislation and guidance may change throughout the year.
The information given in this factsheet is applicable in England and Wales.
Different rules may apply in Northern Ireland and Scotland. Readers in thesenations should contact their respective national offices for information specific
to where they live – see section 10 for details.
For details of how to order other factsheets and information materials
mentioned inside go to section 10.
Note: Many local Age Concerns are changing their name to Age UK.
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Inside this factsheet
1 Recent developments 3 2 Direct Payments 3
2.1 What are Direct Payments? 3 2.2 Who can have a Direct Payment? 6 2.3 The extension of Direct Payments 6 2.4 How to get a Direct Payment 8 2.5 The level of your Direct Payment 10 2.6 Direct Payments for carers 11 2.7 Using your Direct Payments 12 2.8 Arranging your own services 13 2.9 Support services for people receiving Direct Payments 17 2.10 Monitoring and reviewing your Direct Payment 17
3 The development of personalised services 19 3.1 Self-directed support 21 3.2 Personal Budgets 22 3.3 The Personal Budget process 24 3.4 The Resource Allocation System (RAS) 29 3.5 Support planning, brokerage and information 31 3.6 Ongoing support services 33 3.7 Personalisation and carers 33 3.8 New approaches to service provision 34
4 Early intervention and prevention 35 5 Risk management and safeguarding 36 6 Complaining about a decision 37 7 Useful organisations 37 8
Appendix 39
9 Further reading 40 10 Further information from Age UK 41
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1 Recent developments
From October 2010, adults who fund their own residential or non-residential
social care will have access to an independent complaints review service
provided by the Local Government Ombudsman. This right is included in
the Health Act 2009 .
The re-registration of all regulated adult health and social care service
providers with the Care Quality Commission commenced in April 2010. In a
staged process adult social care services will be required to register on 1
October 2010. This means that the present registration under the Care
Standards Act 2000 continues until 30 September 2010.
Following the publication of the White Paper entitled Equity and excellence:
Liberating the NHS , the new Coalition Government set up a Commission on
the Funding of Care and Support in July 2010. This is looking into fundingsocial care services and it will report in the summer of 2011.
2 Direct Payments
2.1 What are Direct Payments?
Direct Payments are cash payments to an individual from a local authoritythat are an alternative to directly arranged community care services. Rather
than the local authority social services department providing or arranging the
community care services it has assessed you as needing, you receive money
to enable you to arrange your own services, allowing you more choice and
control over the way your care and support needs are met. They are also
available to carers, see section 2.6.
Direct Payments are also now one option that can be chosen by you to fundpart, or all, of your Personal Budget. These are a new way of arranging and
funding social care services and are discussed in detail in section 3.
Direct Payments presently stand alone in areas where the new
personalisation system has not yet been fully integrated. It is important to
understand the requirements and responsibilities that come with using a
Direct Payment and its eligibility criteria. This will be discussed in depth in this
section.
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Direct Payments were first introduced under the Community Care (Direct
Payments) Act 1996. The Department of Health (DoH) set out how local
authorities should develop and administer their Direct Payment schemes in
Community Care, Services for Carers and Children‟s Services ( Direct
Payments Guidance) 2003 . Since April 2003, local authorities have had alegal duty to offer Direct Payments if the person is willing and able to
manage them, with or without assistance, and if they are eligible given all of
their circumstances. See section 2.3 about the new eligibility extension to
those who lack capacity to make this decision.
If you are eligible you must be offered the choice of having your
assessed needs met through Direct Payments rather than through
services provided or arranged by your local authority, as part of your
support planning process.
This process may also overlap with Personal Budget service options, which
should also be clearly explained to you. If individuals wish, they can arrange
mixed packages with some directly provided services and Direct Payments
for other needs. This can, for example, give somebody the opportunity to
familiarise themselves with having Direct Payments before taking on
responsibility for arranging support to meet all their needs.
Direct Payments can be used to arrange a wide range of services based onthe eligible needs identified in your needs assessment. However, it cannot be
used to arrange long-term residential care. You can choose to have some of
your services provided or arranged by social services, and use Direct
Payments to arrange the rest for yourself. Services can also include
equipment such as aids and equipment to help you get around or to assist
you with daily activities in the home. Within certain constraints laid down by
law, you can use the Direct Payment in the way you want to meet your needs.
Direct Payments can only be paid towards the cost of services that the social
services have assessed you as needing. These are called „eligible‟ needs
because they are based on the local authority eligibility criteria. They cannot
be offered for needs that do not meet the eligibility criteria. See Appendix 6.
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Each local authority decides who can get services based on its interpretation
of its eligibility criteria, which they must publish. If you are refused a Direct
Payment on the grounds that you would not be offered services, you can use
the complaints procedure in the same way as anyone else refused services.
For further information about your rights to community care services see Age
UK‟s Factsheet 41, Local authority assessment for community care services .You may be asked to contribute towards the cost of your care services. Your
contribution is calculated using the same means-test rules as if the local
authority were directly providing or arranging services.
Case study
When Helen’s arthritis and angina got worse, her daughter requested
a social care needs assessment. She was found to need regular care
at home to help with housework and personal care.
„I‟ve always prided myself on being independent and managing on my
own, but when my health problems got worse I realised I needed help to
stay living at home. After my assessment, the council arranged for a care
worker to come round every morning to help me get up, washed, and
dressed, and do a bit of cleaning.
This helped me a great deal, but I wished my care worker didn‟t come so
early every day – I could never have a lie-in. And having a different carer every day wasn‟t ideal either.
I talked to my social worker and she explained about Personal Budgets.
My daughter and I read up on it and I decided to go for a Personal Budget
in the form of Direct Payments . I use them to employ a personal
assistant, who really understands my needs and fits in well with me. I
interviewed a few people before I chose her. She comes a bit later on
Fridays so I can sleep in, and takes me to my local café for breakfast once
a week.
The paperwork for Direct Payments sounded daunting, especially as my
rheumatoid arthritis makes it difficult to write, but my daughter helps me fill
in forms and I can file them myself. It isn‟t hard to manage, and I know that
my council has a Direct Payment support service to help me should I need
it.
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2.2 Who can have a Direct Payment?
To be eligible for a Direct Payment you must be:
aged 16 or over
a disabled person as defined by section 29 of the National Assistance Act
1948
assessed as needing services, within the meaning of section 46 of the
National Health Service and Community Care Act 1990
The definition in the 1948 Act may now seem outdated but should be taken to
include people who have any kind of impairment caused by physical
disabilities, sensory impairments, learning disability, or are affected by an
illness or condition (such as mental illness, arthritis, multiple sclerosis,
HIV/AIDS, a heart condition, etc).
Local authorities have a legal duty to offer Direct Payments to all service
users who meet the eligibility rules.
Note: some other groups, such as those with parental responsibilities for a
disabled child, may be eligible for Direct Payments but they are not the focus
of this Factsheet.
2.3 The extension of Direct Payments
The Health and Social Care Act 2008 amended existing legislation to extend
the scope of Direct Payments. In November 2009, under the new Community
Care, Services for Carers and Children‟s Services (Direct Payments)
(England) Regulations 2009, Direct Payments became available to people
who lack the capacity to consent, and to people with mental health problems
who are subject to mental health and certain criminal justice legislation.
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Direct Payments for adults lacking capacity to consent
All local authorities must now offer Direct Payments to certain eligible adults
who lack the mental capacity to consent to receive them. They can now be
made to a willing and appropriate ‘suitable person’, who receives and
manages the payments on behalf of the person who lacks capacity.
Guidance1 to local authorities outlines the process to be followed forappointing a suitable person, the conditions to be met by them, how to
resolve disputes, when advocacy may be appropriate and approaches to risk
and safeguarding.
The suitable person will often, but not always, have been given a Lasting
Power of Attorney or have been appointed by the Court of Protection as a
Deputy under the Mental Capacity Act 2005 . Usually the suitable person will
be a family member or friend who may previously have been involved in the
care of the person eligible for services.
The new Regulations reflect the standards and protections set down in the
Mental Capacity Act 2005 .
The Mental Capacity Act 2005 states that:
A person lacks capacity if he is unable to make a decision for himself in
relation to a particular matter [at the time] because of an impairment of, or
a disturbance in the functioning of, the mind or brain.This must be judged on an individual basis relating to a specific decision and
may need to be reviewed in future. All practical steps should be made to
support or facilitate the decision making process and no assumptions should
be made. Anyone who is working with or caring for an individual who lacks
mental capacity must adhere to the „best interest‟ standards described within
the 2005 Act and should familiarise themselves with its requirements. For
further information about this see Age UK‟s Factsheet 22, Arranging for
others to make decisions about your finances and welfare. See also Age UK‟sFactsheet 78, Safeguarding older people from abuse .
1 Guidance on Direct Payments – For co mmunity care, services for carers and children‟s
services: September 2009, Department of Health.
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Direct Payments for people subject to mental health legislation
Local authorities now have the same duty to offer Direct Payments to eligible
people who are subject to mental health legislation as they do to anyone else
in all but the following cases:
People who are on conditional discharge from hospital under the Mental Health Act 1983 , where councils will now have a power (but not a duty) to
offer Direct Payments.
In respect of a service which a person is obliged to accept as a condition
of relevant legislation, local authorities are not required to offer Direct
Payments for that particular service – but have a power to do so. This
includes conditions attached to guardianship, leave of absence from
hospital or a community treatment order under the Mental Health Act 1983
and certain provisions in criminal justice legislation. This means thatcouncils now have a duty to offer Direct Payments to such a person in
respect of a service which is not the subject of a condition if the person is
eligible. All the relevant legislation is listed in Annex B of the Guidance2.
Note: a „power‟ means the local authority can use their discretion but must
give reasons if challenged on the resulting decision.
People who are still excluded
People who are subject to drugs and alcohol-related provisions of somecriminal justice legislation remain excluded from receiving Direct Payments.
The legislation in question is listed in Schedule 1 of the new Regulations and
in Annex C of the Guidance3.
2.4 How to get a Direct Payment
If you do not currently receive a Direct Payment or have services arranged or
provided for you, you can ask the local authority to carry out an assessmentof your needs.
2 Guidance on Direct Payments – For community care, services for carers and children‟s
services, Annex B: 2009, Department of Health.
3 Guidance on Direct Payments – For community care, services for carers and children‟s
services, Annex C: 2009, Department of Health.
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Direct Payments are now one funding arrangement choice within the new
personalised system of social care and should be offered alongside other
options (see section 2.3).
If you meet the eligibility criteria Direct Payments must be discussed and
offered by the local authority following an assessment of your care needs and
as part of your support plan. You can also request to switch to DirectPayments rather than continue to have services arranged or provided by the
local authority. This can be done at any time, for example at a review of your
care and support package.
Action: Contact your social services department for more details of Direct
Payments. The local authority‟s local long-term care charter, called Better
Care, Higher Standards , should explain the possibilities of benefiting from
Direct Payments, as well as their information on personalisation.
If you are considering whether to have a Direct Payment, or have decided
that you want to use Direct Payments but have not yet had time to arrange
your own services, you should not be left without the services you need in the
mean time. You may need to have services arranged by the social services
department until you are able to put your own services into place. The local
authority is only relieved of duty to provide services if it is satisfied that your
needs are being met. If they are not, the local authority has a duty to providethe services directly.
Obtain as much information as possible so that you can make an informed
choice about whether Direct Payments are the best option for you. Your local
authority may have its own guide, or be able to put you in touch with a
support group or with other people who already have Direct Payments.
Deciding if you can have a Direct Payment
The judgement about your eligibility should be made on an individual basis,
taking into account your views. This also applies to the decision as to whether
there is a „suitable person‟ available to manage the Direct Payments on
behalf of someone who lacks capacity to choose to have them. You can
receive assistance in managing a Direct Payment, but you should have as
much control as possible over how your support services are delivered to
meet your needs.
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You should not be refused a Direct Payment just because you will need help
with managing it, initially or in the long term. Social services should consider
what assistance might enable you to manage, rather than assuming that you
will be unable to. If you are refused a Direct Payment on the grounds that it is
considered that you could not manage, the reasons should be explained to
you. You could use the local authority complaints procedure to challenge thedecision.
If you meet the eligibility criteria and start to receive Direct Payments but later
lose mental capacity, someone who holds Lasting Power of Attorney over
your care needs and financial affairs can continue to receive payments on
your behalf. They can also request Direct Payments on your behalf once you
have lost capacity if this is in your „best interests‟ as defined by the Mental
Capacity Act 2005 . If you need further information on this issue you can call
the Office of the Public Guardian. Their helpline phone number is 0300 4560300.
2.5 The level of your Direct Payment
Your Direct Payment must be enough to enable you to meet all the related
legal obligations and to secure a service of a standard that meets your
assessed needs.
The authority will not usually make a Direct Payment for more than it
calculates that it would cost to provide (or arrange) the service. The estimated
cost should include any associated costs (such as employer‟s National
Insurance contributions, sick pay, holiday pay, employer‟s liability insurance,
VAT, etc).
The authority can pay more than its estimated cost of providing the service if
it is satisfied that the increased cost is justified because it is more effective inenabling the person to manage his or her own services and live
independently.
If your preferred method of securing services will be more expensive than the
council‟s estimate of the reasonable cost of doing so, you may have to meet
any shortfall yourself. However, you can complain if you think that the local
authority has been unduly restrictive about the amount it will pay.
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Your contribution towards the cost of your care
You may be asked to contribute towards the cost of care arranged using
Direct Payments, in the same way as if the local authority has arranged or
provided services. Local authorities have a discretionary power to charge for
non-residential services and most do so. See Age UK‟s Factsheet 46, Paying
for care and support at home , for more details of charging for domiciliaryservices.
Your Direct Payment can either be made net of your assessed contribution
(i.e. the estimated cost less your contribution) or including your contribution
and you repay your contribution to the authority. In practice it is likely that the
Direct Payment will be made net, but if you are in dispute with the local
authority about the amount you are expected to pay, you should ask to be
paid the full amount until the dispute is settled. In this way you are in the
same position as someone who receives services while the level of their
charge is being resolved.
Local authorities should give you as much notice as possible before the
Direct Payment starts or the level is changed in order to resolve any disputes.
If you disagree with the amount you are being charged you can complain.
2.6 Direct Payments for carers
The Carers and Disabled Children Act 2000 gives local authorities powers to
offer assistance to anyone who provides regular and substantial care to
someone who might need community care services. Carers also have rights
to an assessment of needs in their own right as well as being included in the
service user‟s local authority needs assessment.
A local authority may decide that a person requires services because they
provide, or intend to provide, a substantial amount of care on a regular basis
for someone aged 18 or over. Carers (but not employees, persons workingunder contract or volunteers for a voluntary organisation) may obtain Direct
Payments in respect of their own assessed needs for services as carers.
The types of help that can be given are wide-ranging and not limited to
community care services. For example, if the person cared for refuses to
accept help from anyone but a relative, the local authority might provide the
relative with help with housework so that they had free time to assist the
person who needed help.
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The carer does not need to live in the same household as the person cared
for, and they do not need to be actually receiving, or to have been assessed
as needing a community care service.
See the Information Guide entitled Advice for carers for further information on
carers‟ rights. Carers UK provide information on all aspects of carers‟ rights.
See section 7, Useful organisations, for their contact details.
2.7 Using your Direct Payments
You can use your Direct Payments however you wish as long as it is to meet
your assessed eligible needs. Although social services departments need to
set conditions to ensure this, the aim of Direct Payments is to give people
more choice and control over the care and support services they are
assessed as needing. Social services departments should not be constrainedby existing patterns of service provision. You might want to use your Direct
Payment to help you go shopping instead of having it done for you or to get to
a computer course to learn computer skills to enable you to keep in touch
with family.
Examples of Direct Payments
The National Centre for Independent Living (see section 7) gives an example
of someone who lived near the sea using his Direct Payment to be takenregularly to the seafront as this was very important to him. Someone else was
taken to a café where she could meet her friends. Another person used the
payment to get to her place of worship.
However, you cannot use Direct Payments to pay:
your spouse, partner or a „close relative‟ living in the same household (in
exceptional circumstance the local authority has discretion to allow this)
anyone who provides you with care – including someone who lives with you – if they are assessed as needing help (in exceptional circumstance the
local authority has discretion to allow this)
for social services‟ own provision. In this case you can either receive
services from the social services department in the normal way, or have
some social services provision and arrange some of your care yourself with
a Direct Payment
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for services that the NHS has a duty to provide or for services provided by
housing authorities
for permanent residential care.
Note: Direct Payments cannot be used to pay for a period of residential care
lasting more than four weeks. If you have a number of short periods ofresidential care these will be added together unless each period of care is
separated by at least four weeks. You can only receive Direct Payments for a
total of four weeks of residential care added together in this way in any 12-
month period. If each period of residential care is less than four weeks long,
and there is at least four weeks between each stay, then you should be able
to claim a Direct Payment to pay for each period of care. All decisions about
this type of care and support should be agreed with you and be a part of your
needs assessment.
Close relatives definition
A close relative is a parent, parent-in-law, aunt, uncle, grandparent, son,
daughter, son-in-law, daughter-in-law, step-son or daughter, brother, sister or
the spouse of any of these. This restriction is intended to prevent Direct
Payments being used where the relationship is primarily personal.
Social services departments can make exceptions to this general rule if
securing the service from such a person is necessary to satisfactorily meet
the service user‟s assessed needs.
2.8 Arranging your own services
This section covers the issues around arranging your own services:
employing your own care workers or personal assistants
contracting with an agency or someone who is self-employed
buying your own equipment
dealing with emergencies.
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A factsheet such as this can only give pointers you may want to consider.
Section 2.9 describes the support services that may be available and section
7 gives details of where you can get further information that covers these
issues in more depth.
2.8.1 Employing your own care workers or personal assistantsThis option gives you the greatest choice and control over your care services.
Some people worry about the responsibilities of being an employer but many
others have found it to be a successful way of arranging their services, and
that once systems have been set up, they run smoothly.
You may find that a local support scheme offers training and/or a payroll
service that helps with the tax and National Insurance aspects of being an
employer. There is also a national employer‟s helpline (see section 7).
Contact the National Centre for Independent Living for information about
employing a personal care worker, see section 7 for contact details. Issues
you will need to consider before recruiting a care worker include drawing up
job adverts and job descriptions, making sure you have covered all the tasks
you will want done, where to advertise, what to ask at interviews, how much
to pay, drawing up a contract so that both you and the person you are
employing are clear about the terms and conditions of the employment, what
insurance you will need and your legal responsibilities as an employer.The employment contract should also include: start date, hours of work,
remuneration (must meet national minimum wage), place of work, job title,
whether fixed-term or permanent, statutory entitlement to sick pay and annual
leave, pension scheme provision (where appropriate), and notice
requirements. 4 This ensures understanding of the employment terms at the
outset.
2.8.2 Contracting with an agency or someone who is self-employed
If you would prefer not to have the responsibility of being an employer you
can use your Direct Payment to contract with an independent agency or a
person who is self-employed.
4 Guidance on Direct Payment s, For community care, services for carers and children‟s
services, England 2009, Department for Children, Schools and Families, page 51.
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It is important to check very carefully that the contract you make with
someone who is self-employed means that they are genuinely self-employed.
There can be financial consequences for you if you incorrectly engage
someone under self-employment, where the reality of the terms of the
engagement between you and the person reflects employment. You should
obtain appropriate advice about what is required from you and those youemploy if you are unclear about this. This should be available from the local
authority or a local voluntary or user-led organisation. The HMRC website has
an online tool to determine a worker‟s employment status called the
„Employment Status Indicator‟, which can be accessed at
www.hmrc.gov.uk/calcs/esi.htm.
Several different factors affect whether a person is considered to be self-
employed for the purposes of tax, National Insurance and employmentlegislation, including the terms on which they have been engaged and the
amount of control you have over the work done. The Inland Revenue
produces a leaflet which explains the difference between being employed or
self-employed (see section 9 „Further reading‟).
If you decide to use an independent care agency you should be able to find
local agencies in the telephone directory, through your local authority or by
personal recommendation. They must be registered with the Care Quality
Commission, the national agency responsible for regulating care services, toenable them to trade legally.
You may want to approach several agencies or self-employed people before
making a decision.
Before entering into an agreement, confirm the following with the agency or
individual involved: the tasks you expect the staff to do and the way in which
you would like them done; what the quoted price covers (some agencies add
VAT or charge extra for travelling); what insurance cover they have; whattraining the staff have had; cover arrangements for example for sickness; and
what happens if you have to cancel the service suddenly.
To avoid any future misunderstandings, your contract should be as clear as
possible. Agencies often use standard contracts that can be individualised. If
you are making your own contract with someone who is self employed,
examples of contracts may be useful (see section 9 „Further reading).
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2.8.3 Buying equipment
If you are given a Direct Payment to buy equipment, take advice to ensure
that the equipment you are buying is safe, appropriate and cost effective. You
can liaise with the occupational therapy department at the social services who
may have been involved with initially assessing your needs. This applies to
smaller items that social services pay for rather than larger items andadaptations, which are funded by Disabled Facilities Grants from the housing
department. There are about 40 Disability Living Centres across the UK,
which display a wide range of equipment and have staff to give advice. If you
plan to use your Direct Payment for equipment, establish whether you or the
social services department will own the equipment and who will be
responsible for ongoing care and maintenance.
If your local authority is using elements of the individual budget system,
disability equipment funding may be included within a single budget with
other funding, allowing you more choice and control over how your assessed
needs are met.
See Age UK‟s Factsheet 32, Disability equipment and how to get it , for
information about community equipment.
Dealing with emergencies
The social services department‟s responsibility for agreeing and arrangingservices is the same as for any other service user. If the local authority
becomes aware that your assessed needs are not being met or you are at
excessive risk, it has a duty to act to resolve the issue. You should therefore
not be left without the support that you need, and should have a named
person to contact in an emergency to ask for help as part of your care plan.
Whatever arrangements you make, there may be times when equipment
breaks down. Discuss your contingency plans with social services so that
they are included as part of the care plan, and so that your Direct Paymentscan be adjusted accordingly to meet any related costs.
If you employ your own care worker, your contingency plans might include
making arrangements with an independent agency for emergency cover if
your care worker is sick or planned cover when your care worker goes on
holiday. Some support schemes offer back-up in the form of emergency staff.
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2.9 Support services for people receiving Direct Payments
Support services for recipients of Direct Payments have been identified as a
key element in the successful implementation and operation of Direct
Payment schemes. The services may be run directly by the local authority or
in partnership with a local voluntary agency. In some areas there may be
separate support schemes for older people receiving Direct Paymentsreflecting the fact that this currently affects more older people than younger.
The type of support services offered should reflect the needs of local people
requiring services and their carers.
Services may include support, information and advice from those who
currently receive Direct Payments who can pass on what they have learnt;
training and practical assistance, particularly help with employing care
workers; lists of agencies, help with drafting adverts and contracts, providing
rooms for interviewing, or acting as an addressee for responses to adverts.
Some support groups may produce newsletters or hold regular meetings for
people to share their experiences.
The National Centre for Independent Living provides a national focus for
advice and information and useful reading materials (see section 7). Your
local social services departments should be able to tell you what local support
schemes there are and have materials with local information.
2.10 Monitoring and reviewing your Direct Payment
Although the social services department is not providing or arranging your
services, it is still responsible for making sure your needs are met and it also
has a safeguarding duty.
Monitoring arrangements to check that your needs have not changed and to
discuss any concerns you have should be agreed before you start to receive
your Direct Payment. Do not feel inhibited about expressing reservationsabout the services you are purchasing or any other problems. Your payments
should not be stopped automatically or arbitrarily as a result of your concerns.
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There will also be financial monitoring to ensure that public funds are being
properly spent. Before your Direct Payments begin, discuss the information
you will be expected to provide and the way monitoring will be carried out.
You will normally be expected to keep separate accounts, including operating
a separate bank account for your Direct Payments. Audit arrangements
should be as simple and easy to understand as possible.The “Kent Card”
Kent County Council has introduced a scheme called the Pre-loaded
Card programme for Direct Payments recipients or the “Kent Card”, with
a major banking organisation. This is an automated system for handling
regular payments allowing service user choice and control, and
reducing administrative costs. The card is pre-loaded with an agreed
amount of money. This means that an individual does not have to
manage a bank account, a cheque book and debit card, or carry cash.It removes the need for the recipient to keep a separate bank account
or keep complex records of their care payments. A monthly statement,
in various formats, is sent to card holders. It can also be viewed on a
website, which acts as an audit tool. Another person can be nominated
to use the card on the service user ‟ s behalf. The recipient can also top-
up the card to purchase services costing more than the Council would
allow. Other local authorities such as Coventry are presently piloting
this approach. The Community Care (Direct Payments) Act 1996 enables local authorities to
require some or all of the money to be paid back if it has not been used for its
intended purpose. Before you receive Direct Payments the circumstances
when recovery may be considered should be explained to you. You should
not be penalised if you have made an honest mistake.
Monitoring of both services and financial arrangements is likely to be more
frequent in the early stages of your Direct Payment. Once the local authority
is satisfied that your arrangements are working and your financial accounting
is satisfactory, the monitoring is likely to be less frequent. You can ask for a
review at any time if you think there is a need.
You will need to sign a contract with the local authority that clearly states what
is expected of both you and the local authority.
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2.10.1 Discontinuing Direct Payments
You can decide at any time to stop having Direct Payments. The local
authority should then arrange services for you instead so that your needs
continue to be met.
The local authority can decide to discontinue Direct Payments if it believesthat your needs are no longer being met, or you, or the person/people
supporting you, are unable to manage your payment, or there has been
misspending of the payments. You should be given the opportunity to
demonstrate that you can still manage your payment.
Any decision to discontinue your payment should only follow full discussion
with you and, if appropriate, your carer. You should be told the minimum
period of notice you will be given in these circumstances at the time you start
receiving Direct Payments.
3 The development of personalised services
In December 2007 a Government policy document entitled Putting People
First – a shared vision and commitment to the transformation of adult social
care declared that public service provision was to be personalised. This
included a „concordat‟ (agreement) between a number of Government
departments and other bodies intended to demonstrate the broad scope ofthe new policy development. In January 2008, the Department of Health
(DoH) published a Local Authority Circular entitled Transforming Social Care .
This was followed by a further Local Authority Circular in March 2009 (see
Appendix: 1 and 2).
These documents set out a shared ambition for a radical transformation of
services, promoting personalised support characterised by service users‟
ability to exercise choice and control over service provision. They also
emphasise the aim of working with all sectors and communities to deliver
whole system change to service provision. The Social Care Institute for Excellence (SCIE) described personalisation in
their 2008 publication Personalisation: a rough guide :
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Personalisation reinforces the idea the individual is best placed to know
what they need and how those needs can be best met. It means that
people can be responsible for themselves and can make their own
decisions about what they require, but that they should also have
information and support to enable them to do so. In this way services
should respond to the individual instead of the person having to fit with the service.
Personalisation is an attempt to provide services in a more person-centred
way, to more closely reflect individual needs. In this way it is hoped to achieve
better outcomes for the individual and to reduce to the feeling that they are
being fitted into pre-defined services. Policy documents have used the term
‘co-production’ to describe this more collaborative approach that
encourages people to actively engage in the design and delivery of services -
the opposite of being a passive recipient of services.
Central to providing more choice and control is ensuring that everyone with
needs has appropriate access to information, advocacy and advice to
make informed decisions about their care and support regardless of their
financial situation. This is discussed further in section 2.7.
Recognising and supporting carers in their role, while enabling them to
maintain a life beyond their caring responsibilities is also a major aspect of
the policy.This approach links to broader policy aims intended to improve social
inclusion and the use of existing social capital and resources within the
community. It also includes commissioning for early intervention and
prevention (discussed in section 3) and more effective joined-up service
provision.
The personalisation policy agenda aims to ensure that information and
advice, improved access to universal services, community engagement
and social capital, as well as prevention and early intervention, are for
all people with care and support needs, not just those who are eligible
for Personal Budgets and Direct Payments.
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The new Coalition Government appears to be supportive of the
personalisation agenda. Good progress has been made towards
implementation in many areas; this is required because Government targets
of 30% take up by March 2011 have been set for local authorities, which may
be challenging particularly in the context of the Government‟s planned budge
cuts. Personal Budgets and self-directed support are intended to become themain mechanism for delivering social care support in the future.
Action: If you would like to explore the option of a Personal Budget you
should contact your local authority to discuss what is available. You may not
presently be receiving a service or could be receiving a service that is directly
controlled by the local authority; you may also already have a Direct
Payments arrangement.
It could be useful for you to discuss this option with support agencies such as
Age UK, who have local knowledge of services and who may also provide a
support brokerage service.
3.1 Self-directed support
It is helpful to think of ‘self -directed support’ as an overarching term
describing a variety of tools and ways of working to give people greaterlevels of control over how their support needs are met – the mechanism
by which Personal Budgets are delivered.
It is about you having as much control as possible over how the money
available for your care and support is spent. The idea is that you can tailor
support to your requirements, preferences and required outcomes with
appropriate support within a framework agreed with the local authority.
Funding for support should be agreed in a fair, transparent and flexible way,
controlled by you in away that you choose.
Over the past few years many people have found that Direct Payments have
allowed them to gain greater control over the services provided to meet their
needs. The new drive towards personalisation and self-directed support is
intended as a more systemic approach, to give similar opportunities to as
many people as possible. Direct payments, now one funding arrangement
option for a Personal Budget, is discussed in detail in section 2.
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Take-up issues
There are outstanding issues about the level of take-up among certain
groups. Older people, for example, appear less inclined to take on the
responsibility of directly managing their own funding through Direct
Payments. However, the Government is taking steps to resolve this issue5.
3.2 Personal Budgets
Personal Budgets, which include using Direct Payments, are within the
existing social care legal framework and do not change your existing rights to
have your eligible needs met by the local authority following an assessment
of your needs.
A Personal Budget is a sum of money allocated to an individual who is
assessed as needing personal assistance and support services in a non-
urgent situation; it is generally restricted to social care funding. Personal
Budgets were introduced in local authorities from April 2008 (see Appendix:
4). Policy guidance states that they should be an up-front allocation of
resources allowing you to plan how to meet your needs and required
outcomes with appropriate support.
Terminology
Outcomes are what you see yourself as being able to manage to do
regarding your daily tasks and needs, and also what you wish to do or
achieve in a broader sense. These aims and wishes may be achievable with
appropriate advice and support, or by other means such as adapting your
living environment.
Personal Budgets are part of a local authority‟s system of means-tested, non-
residential social services provision, which means that you may be asked tocontribute to the cost of services. For more information on the means test
process see Age UK‟s Factsheet 46, Paying for care and support at home.
Trials are also taking place for the introduction of personal health budgets in
the NHS. This should allow more joined-up service provision between health
and social care, for example with regard to NHS Continuing Care.
5 Personal Budgets for older people: making it happen, January 2010 .
http://www.puttingpeoplefirst.org.uk/Topics/Browse/Olderpeople/?parent=2736&child=7085
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Individual budgets are no longer being promoted
Originally Personal Budgets were planned to be introduced alongside
individual budgets. These were similar to Personal Budgets in their aim of
increasing service user choice and control over service provision and funding
but they were intended to allow access to a wide range of local authority and
other benefit funding streams to create a single individual budget.
However, in a Pilot Programme run in England over two years and ending in
2007, major difficulties were found regarding the integration of the various
funding streams. These difficulties could not be surmounted without changes
to legislation and administration rules. As a result individual budget are not
currently being promoted by the Government. However, some local
authorities may be using elements of the individual budget approach
alongside the purely social care funds included in Personal Budgets.
The 2010 edition of Personalisation: a rough guide carries the following
guidance about terminology, at page 9:
The government is focusing on using only social care money in the
immediate future – this is known as a Personal Budget. The Department of
Health has said that the term individual budget is no longer in use and that
the correct term for the allocation of social care funding to an eligible adult
through self-directed support is a Personal Budget.
Note: As a result of this we are only using the term „Personal Budgets‟ in this
factsheet.
The ‘Right to Control’
The Office for Disability Issues is piloting the „Right to Control‟, based on
requirements laid down in the Welfare Reform Act 2009 . The aim is to create
a streamlined approach to assessing and responding to the needs of a
disabled person so that they can have choice and control over a single
budget allocated to meet agreed outcomes. This reflects the developments of
personalisation in social care and has similarities to individual budgets, which
are not presently being promoted by the Government. The pilot sights
(„Trailblazers‟) will explore funding streams including:
Work Choice
Access to Work
Independent Living Fund
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Disabled Facilities Grant
3.3 The Personal Budget process
At present Personal Budgets are not intended for long-term residential care
but this may be introduced in the future. However, the new personalisedapproach is already having an effect on the services provided in residential
care and more widely within services such as housing associations.
Choice and control over funding arrangements
If you choose to have your services provided via a Personal Budget, you can
have the local authority contribution paid in a number of ways:
direct (cash) payments, held directly by the person or, where they lack
capacity by a „suitable‟ person
an account managed by the local authority in line with your wishes - also
known as a „virtual budget‟
an account held with a third party and managed by you. This could be with
a service provider in the form of an Individual Service Fund (ISF), which
can be a way for you to manage your needs without being responsible for
a budget
It could also include an account managed by a carer, friend or relative inthe form of a User Controlled Trust. Trustees have certain legal
responsibilities and should be aware of these. These are based on the
trust deed and related trust law. Arrangements like this can allow you to
benefit from Direct Payments without the burden of managing the budget
yourself.
as a mixture of the above to best suit you needs and aims.
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Innovative ideas
Some councils operate small payments schemes where Direct Payments
within a pre-agreed limit can be given direct to individuals for support
needs. A Direct Payment agreement is still required, but the person does
not need a separate bank account and monitoring is done principally
through the review process. This can provide a straightforward way for people to purchase equipment or one-off services. In other instances
councils use vouchers to make these payments, although these can be
more restrictive (e.g. are limited to specific purchases/brands/outlets).
Warwickshire County Council operates a scheme for small payments up to
£500 whereby one-off payments can be made to individuals without the
need for a separate bank account.6
Personal Budgets build on the approach of Direct Payments. The monetary
value of a Personal Budget is related directly to the eligible needs of a
person, with guidance stating it does not always have to be strictly based on
hours of service. Direct Payments are the method by which local authorities
are legally allowed to make cash payments to an individual (or another
„suitable person‟) so they can arrange services to meet their needs.
You have a right to have your Personal Budget managed in the way that
best suits you and should not be under any pressure to accept a direct
cash payment to arrange services yourself. You should always receive
the necessary advice and support (free of charge) to make an informed
decision about how your services are funded and arranged.
6 Personal Budgets for older people: making it happen, January 2010 .
http://www.puttingpeoplefirst.org.uk/Topics/Browse/Olderpeople/?parent=2736&child=7085
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Policy guidance on Personal Budgets requires that you should know upfront
how much money there is to spend over a year so that you can decide with a
support worker or Support Planner how to design your care package to meet
your identified needs. Whereas Direct Payments were often used to employ
personal assistants, Personal Budgets are being promoted as being more
flexible with regard to meeting individual needs and preferences, includingthe purchase of ordinary community or commercial services (for example,
gym membership rather than day-centre attendance) or to pay relatives and
friends for the help they provide. However, see the present restrictions on the
use of Direct Payments regarding close family members in section 2.7.
Case study
When Mary had a stroke that left her with reduced mobility, she
qualified for help from social services. She wanted more flexible care
to feel more independence and control.
„When I had a stroke two years ago, it left me with various problems. It
was hard for me to get out of bed on my own and I had some difficulties
with washing and dressing. I needed someone with me whenever I left the
house in case I fell, but my husband has his own health problems so he
couldn‟t help me. I used to do all the housework so seeing the house
getting increasingly messy and untidy made me feel very depressed.
I had a community care assessment from my local council, and they put together a care plan for me. Carers from a care agency came round each
day to help with my personal care, to do some cleaning, and get my
shopping for me. It helped a lot but I wanted something more flexible so I
could have more independence and control.
I explained this to my care manager and we talked to my husband and my
care agency about what would be best for me. As a result of these
discussions I agreed to have a Personal Budget in the form of an
Individual Service Fund . This means my care agency holds the money
I‟ve been allocated by the council, and I control how it‟s spent. I liked my
regular carers so I‟m really happy I‟ve been able to keep them.
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3.3.1 A typical Personal Budget process
The process generally involves:
a range of possible needs assessment approaches, for example a self-
assessment questionnaire, with appropriate support and assistance; it
must include an assessment by the local authority - a legal duty a decision by the local authority as to whether the identified needs (in the
care assessment) meet their eligibility criteria for service provision
discussion with the service user about whether they would like to use the
option of a Personal Budget to meet their care and support needs and
which funding arrangement option may be suitable
the eligible needs identified in the assessments feed into the Resource
Allocation System (RAS) where an indicative (estimated) budget is agreedand communicated to the service user
a means test (financial assessment) is carried out to determine whether a
contribution to service provision is required from the service user. Other
necessary means tests and assessments may be included if elements of
the individual budget approach are being used
a „self -directed‟ support planning process commences to work out how to
meet the individual‟s priorities, goals and planned outcomes. Support,advice and information may come from a local authority care manager, an
in-house or external specialist Support Planner or Broker, the individual‟s
family and friends, a service provider or a local user-led or voluntary
organisation. This informs and supplements the statutory local authority
assessment
a senior person or possibly a panel at the local authority agrees („signs
off‟) the support plan taking into account the agreed eligible needs and
planned outcomes, including an assessment of risk and any safeguardingconcerns. Changes to the level of the Personal Budget may need to be
agreed at this time in order to meet assessed needs, bearing in mind that
the initial RAS is only an estimate for planning purposes
the service is provided based on the chosen funding arrangement
option/method, for example through a User Controlled Trust, with
appropriate support
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soon after the service commences the case is reviewed to check that the
support plan is meeting all eligible needs, there are no safeguarding/risk
issues, and that the indicative amount (RAS) is adequate; any necessary
adjustments are made
regular reviews follow, taking into account changing needs and the
possible consequences for the RAS funding amount.
3.3.2 Self-directed assessment
As part of personalisation the use of self-assessment questionnaires has
become more commonplace as this is seen as central to the supported self-
directed assessment process. A wide range of tools have been introduced
to assess people‟s needs in a more person-centred way. This achieves the
aim of being led as far as possible by the service user, focusing more closely
on required outcomes and allowing more individualised and creative care and
support plans.
However, the shift towards self-assessment is one of balance rather than a
fundamental shift of responsibility from the state to the individual within the
assessment process. ADASS7 stated in a recent document that: „Contracting
out‟ of eligibility, resource allocation and support planning decisions is not
lawful, but the contracting in of help, in terms of fact-gathering and support for
clients, in relation to the decisions that the authority ultimately needs to make,is already legitimate.‟
The duty of the local authority to carry out an assessment of needs is a legal
requirement, which it cannot delegate to any other person or body. Needs
identified in the assessment that meet the local authority eligibility criteria
must be met.
In a recent charging case, R (B) v Cornwall County Council (2009) 12 CCLR 381, the judge ruled as unlawful the practice of self-assessment standing
alone as the only assessment. Here it was stated that:
7 Personalisation and the law: Implementing Putting People First in the current legal framework,
October 2009. ADASS is the Association of Directors of Adult Social Services.
http://www.dhcarenetworks.org.uk/_library/Resources/Personalisation/Personalisation_advice/A
DASS_Personalisation_and_the_law_12.10.09.pdf
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The [local] authority cannot avoid its obligation to assess needs etc by
failing to make an appropriate assessment themselves, in favour of simply
requiring the service user himself to produce evidence of his needs.
In the new local authority eligibility guidance8 the local authority assessment
duty is confirmed and self-assessment is described as a „useful tool‟ to be
used proportionately. The new policy guidance incorporates many of theprinciples of personalisation but is similar to the previous Fair Access to Care
Services (FACS) guidance in its eligibility banding system: Low, Moderate,
Substantial and Critical risks related to „independence and wellbeing‟.
For more information about assessments see Age UK‟s Factsheet 41, Local
authority assessment for community care services.
3.4 The Resource Allocation System (RAS)At the heart of the Personal Budget process is the Resource Allocation
System (RAS), which gives you an indication of how much money you can
expect so that you can decide how best to meet your care and support needs
with appropriate support.
The RAS process usually takes the following form in local authorities. The
level and type of assistance you need across the areas (domains) within the
eligibility criteria are itemised to achieve particular outcomes, and each itemis scored to reflect the level of support and assistance required. Your total
score is then translated into a single sum of money - an up-front allocation
of funds to enable you to plan to achieve your required outcomes.
Concerns about the RAS
Age UK has concerns that „one size fits all‟ points allocation systems may not
adequately reflect the complexities of individual cases and could also have
inherent inequalities. This relates to the use of a range of supported
assessment questionnaires for different client groups and various levels of
points allocation and budgets being awarded to different client groups.
8 Prioritising need in the context of Putting People First: a whole system approach to eligibility for social care
- guidance on eligibility criteria for adult social care, February 2010, Department of Health.
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There are also concerns about the flexibility of indicative (estimated) budgets
once they have been allocated. Recent research by Age UK found a variety
of views among local authorities about modifying the allocated amounts if
issues arise about their adequacy.
Case law on the RAS
Recent case law has shown the courts‟ continuing rejection of any blanket
approach to resource allocation. An example of this is the approach taken
in R (JL) v Islington (2009) 12 CCLR 322 . This case concerned the practice of
allocating points to identify a band (high, medium or low) for provision of a
Personal Budget, in this case to support a disabled child and her mother. The
judge, Black J, found it:
hard to see how a system such as this one, where points are attributed to
a standard list of factors, leading to banded relief with a fixed upper limit,can be sufficiently sophisticated to amount to a genuine assessment of
an individual child‟s needs. There will be times when, fortuitously, the
needs assessed by such a system will coincide with the real needs of the
family, but it is difficult to have any confidence in that occurring sufficiently
frequently to justify the use of eligibility criteria on their own.
This underlines the importance of the initial RAS calculation being treated as
an estimate, subject to revision in light of the individual‟s emerging or
changing needs. Many people come into contact with the social services in acomplex crisis situation. This requires staff involved to fully engage in the
assessment process to make sure the local authority fulfils its legal duty to
meet the eligible identified needs identified, including providing the necessary
funding.
The courts have also stated that local authorities must give reasons as to how
they reach a decision about the level of a personal budget allocation in
(R(Savva) v Royal Borough of Kensington and Chelsea [2010] EWHC 414
(Admin). This relates to another recent case, (R(B) v Cornwall County Council
[2009] EWHC 491, where a local authority blamed the service user (and his
family and carers) for missing information that should have been included in
their assessment. The High Court judge in this case stated that
The authority cannot avoid its obligation to assess needs etc by failing to
make an appropriate assessment themselves, in favour of simply requiring
the service user himself to provide evidence of his needs.
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Action : Ask for your indicative budget or resource allocation (RAS) to be
reviewed if you feel it doesn‟t meet your needs or if your needs change at a
later date. It must be adequate to meet your assessed eligible needs and
should comply with Government guidance on non-residential charging.
See Age UK‟s Factsheet 46, Paying for care and support at home for further information.
3.5 Support planning, brokerage and information
The Government has advised local authorities to invest in and develop
support planning and brokerage services, making use of local voluntary-
sector and user-led organisations as part of the personalisation a agenda.
The Putting People First personalisation toolkit, published in May 2008,
advises that:
effective support planning and brokerage are crucial in enabling disabled
people to exercise more choice and control in their lives. Support planning
and brokerage, including easy access to information, advice and
advocacy, should offer disabled and older people the opportunity to make
decisions for themselves that might otherwise be made for them by other
people.
The Putting People First local government consortium advise that a support
plan should be „proportionate and non-prescriptive‟. It need not be expressed
in units of provision (like hours of care) and can include broader needs and
desired outcomes beyond then needs that made the person eligible for
support9.
9 Putting People First consortium Advice note on Personal Budgets: Council commissioned services,
January 2010, Department of Health.
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Brokerage support could start at the assessment stage and run right through
to monitoring and reviewing the support. Services may vary in each area but
the aim is to allow you to get the most out of your Personal Budget.
Assistance with support planning may come from care managers,
independent support planning agencies such as voluntary organisations, or
family and friends. You should be able to choose how you wish to proceed.The Support Plan is a legal document, produced with appropriate assistance,
and owned by you.
The National Brokerage Network10 states that the scope of the broker‟s role
includes helping people to identify the changes they want to make to their
lives; find support services and community opportunities that the person
requires; negotiate with providers and prepare community resources as
necessary; cost and write a support plan; identify and obtain funding
(including securing agreement on social services funding); and initiateimplementation of the plan.
They then go on to list some other roles of a broker:
Review, prepare and/or identify indicative costs of creating and
implementing a person-centred support plan.
Assist to develop a vision of a preferred lifestyle using relevant person-
centred planning tools.
Clarify the person‟s needs and expectations as part of the care manager‟s
assessment eligibility criteria under „Fair Access to Care‟ [the means test].
Identify and apply for funding from all government and non-government
sources.
Support „Fair Access to Care‟ appeals process if required.
Identify and access community resources.
Assist with funding negotiation with commissioners.
Direct liaison and negotiation with service providers.
Monitor and evaluate provider services in conjunction with existing
monitoring and regulatory frameworks.
Modify existing provider services or develop new ones.
Mediate and resolve problems (as directed by the person).
10 http://www.nationalbrokeragenetwork.org.uk/become_a_broker.html
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3.6 Ongoing support services
Providing high quality, ongoing support to people, with a range of options for
how this support is accessed and delivered, is fundamental to supporting
people to benefit from the choice and control that Personal Budgets can
bring. It is crucial that individualised support is in place from the point of self
or supported assessment onwards. Lessons learned from the provision ofDirect Payments over the past few years (in place through statute since 1996)
emphasise the importance of an effective and independent support services,
for example with payroll and other employment matters. Support services are
often provided by user-led organisations or in partnership with voluntary
organisations.
An example of this is Barnsley Metropolitan Council and a coalition of
voluntary and community sector organisations led by Age Concern
Barnsley, which are working together to develop a local support system
that enables older people to choose, manage and use a Personal Budget.
See section 2.9 regarding support services for Direct Payment users.
3.7 Personalisation and carers
The „New Deal‟ outlined in the 2008 Carers‟ Strategy has integrated andpersonalised services at its heart. The shared vision is that by 2018 carers
will:
be universally recognised and valued as being fundamental to strong
families and stable communities. Support will be tailored to meet
individuals‟ needs, enabling carers to maintain a balance between thei r
caring responsibilities and a life outside caring, whilst enabling the person
they support to be a full and equal citizen‟.
See the Information Guide entitled Advice for carers for further information on
carers‟ rights, and also see section 2.6 on Direct Payments for carers.
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3.8 New approaches to service provision
Personalisation is having an effect on the commissioning of services by local
authorities. The following example illustrates this:
Redesign day opportunities
The current model of focusing day-time support in day centres and traditional home care services needs to shift to a much wider range
of options and opportunities.
Leicestershire County Council wanted to move from their current provision
of day time support for older people based around day centres, to much
broader community based support for older people assessed as eligible
for social care services. Their aim was to engage with older people using
their services, carers and the wider community to deliver their personal
goals and desired outcomes. They realised that this would mean working
in very different ways, including developing much stronger partnerships
with local communities and older people currently using day services.
They also acknowledged that this would challenge service providers to
change their current offer, to deliver a much wider range of different kinds
of support.
They identified two key steps for taking this work forward:
1) Working with current day service users to identify their goals, needs and dreams – and supporting them to become more actively involved in
their own assessments and in planning their support.
2) Using Direct Payments as the means to make the shift from older
people attending day centres to having a much broader range of options
and opportunities for support.
Discussions also took place with elected members, lead officers and staff
teams – resulting in an agreement that future day service developments must be taken forward within a wider social inclusion agenda, in order to:
Promote independence to enable older people to remain at home
after a trauma or other event in their lives
Provide support for carers with whom an older person lives to
enable them to maintain relationships and continue in their caring
role
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Provide social stimulation, reduce isolation and improve general
health and wellbeing.
It was recognised that Direct Payments could offer older people greater
control and choice over the services they receive and the way these are
organised and help to stimulate the market for day time support, achieving
a greater diversity of local provision. The Local Area Agreement therefore also includes a target to increase the use of Direct Payments for older
people for recreational, leisure and educational purposes.11
4 Early intervention and prevention
Putting People First emphasises the benefits of creating a shift in resources
and culture away from intervention at the point of crisis and instead towards
prevention and early intervention, focused on promoting independence and
improved well-being and on avoiding escalation of need at a later stage. As a
result many new initiatives are being introduced locally, for example
Partnerships for Older People (POPPS) projects such as the one in Dorset12
that has been running since 2006.
An ADASS report13 in 2009 advises that a Personal Budget should only be
considered after appropriate preventative and re-ablement options have been
considered. Social care re-ablement is a short-term package of rehabilitation,usually up to six weeks, provided by local authorities, that has some
similarities with the existing system of intermediate care but appears to be
generally related to lower level or less complex needs. It may be part of the
joint commissioning arrangements of local health and social care services.
Some local authorities, such as the London Borough of Sutton, charge for re-
ablement services and others, such as Manchester and City of Westminster,
allow the first six weeks free of charge, then, after this, the service user is
charged in the same way as any other person receiving social care services.
11 Personal Budgets for older people: making it happen,January 2010 .
http://www.puttingpeoplefirst.org.uk/Topics/Browse/Olderpeople/?parent=2736&child=7085
12 Dorset POPPS: http://www.dorsetforyou.com/popp
13 Making progress with Putting people first: Self-directed support, October 2009 , Association
of Directors of Social Services.
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This is only one part of the wide range of new commissioning
developments within the personalisation agenda aimed at meeting care
and support and wider needs of all those living in the community. This
Factsheet is not intended to cover all of the initiatives that are taking
place.
Note: Re-ablement may be charged for but NHS intermediate care shouldalways be free of charge.
5 Risk management and safeguarding
The Government is working to re-design the health and social care regulatory
systems in light of the shift towards more personalised services and self-
directed support. The Better Regulation programme is looking at risk and
responsibility in public services. Personalisation requires new, more flexible
approaches to regulation and risk management, which are able to adapt to
innovative support solutions from new types of providers.
There is an ongoing debate between Government, service providers and
service users about the appropriateness of certain types of regulation, for
example for personal assistants, and regarding safeguarding vulnerable
adults. Those employed directly by Personal Budget holders as personal
assistants do not currently require a Criminal Records Bureau check.However, those receiving Direct Payments on behalf of someone else, for
example if they lack capacity, and who are not a family member or friend,
must carry out a Criminal Records Bureau check on anyone they employ.
In its 2008 report Raising voices: views on safeguarding adults, the
Commission for Social Care Inspection (now the Care Quality Commission)
recognised that:
it is important not to be over-protective or prevent adults from leading
ordinary lives – but this must be weighed against individuals‟ fundamental
right to expect to be safe and to be protected and safeguarded from harm.
The report emphasised the need for clarity of roles and responsibilities of the
agencies involved in safeguarding adults (within social care and wider public
services) with clearer definitions of what constitutes abuse and harm.
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The Department of Health‟s 2007 report Independence, choice and risk: a
guide to best practice in supported decision-making recognises the
complexities involved in managing risk in relation to choice but is clear that:
ultimately, the local authority has a statutory duty of care and a
responsibility not to agree to support a care plan if there are serious
concerns that it will not meet an individual‟s needs or if it places anindividual in a dangerous situation.
For further information about safeguarding and abuse see Age UK‟s
Factsheet 78, Safeguarding older people from abuse .
6 Complaining about a decision
You have the right to use the local authority complaints procedure if youdisagree with any decision about Direct Payments or Personal Budgets. Each
local authority must publish details of its complaints procedure and you
should be told about it. A new joint health and social care complaints
procedure was introduced in April 2009, replacing the existing three-stage
local authority system.
See Age UK‟s Factsheet 59, How to resolve problems and make a complaint
to the local authority , for further information on complaints and your rights to
social services.
7 Useful organisations
Assist UK
A national organisation of Disabled Living Centres throughout the UK.
Tel: 0870 770 2866Textphone: 0870 770 5813
Website: www.assist-uk.org
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Care Quality Commission (The)
The independent regulator of adult health and social care services in
England, whether provided by the NHS, local authorities, private companies
or voluntary organisations. Also protects the rights of people detained under
the Mental Health Act.
Tel: 0300 0616 161 (free call)
Website: www.cqc.org.uk/
Carers UK
General help and advice for all carers.
Tel: 0808 808 7777 (free call)
Website: www.carersuk.org.
National Centre for Independent Living
An organisation run by and for disabled people working on campaigns and
policy. It provides a wide range of publications relating to Personal Budgets,
Direct Payments and personal assistance. It also offers training and
consultancy on Direct Payments and personal assistance.
Tel: 020 7587 1663
Website: www.ncil.org.uk.
New Employers’ Helpline
Helpline from the HMRC providing information to those considering becoming
employers.
Tel: 0845 607 0143
Website: www.hmrc.gov.uk.
Royal Association for Disability and Rehabilitation (RADAR)
A campaigning organisation that also provides various guides.
Tel: 020 7566 0116
Textphone: 020 7250 4119
Website: www.radar.org.uk
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Further information about Personal Budgets can be obtained from the
following websites:
In-Control www.in-control.org.uk/
A leading organisation in the development of self-directed support; provides a
wide range of services assisting in the continued development of the newpolicy. (See Appendix, no. 6)
CSIP
Care Services Improvement Partnership‟s individual budget pilot programme:
http://individualbudgets.csip.org.uk/index
Department of Health
Information on individual budgets can be found in the social care section of
the Department of Health website at:
www.dh.gov.uk/en/SocialCare/index.htm.jsp
8 Appendix
1/ Putting People First is a shared commitment between five government
departments, local government, the professional leadership of adult social
care and the NHS, and the regulatory bodies. It is designed to transform
social care services by making significant changes to the existing system. 2/ A further Local Authority Circular entitled Transforming adult social care
was published on 5 March 2009.
3/ Personal or individual budgets have been mentioned in several recent
Government policy publications including Independence, well-being and
choice (DoH 2005) and Our health, our care, our say (DoH 2006). The
culmination of this was the Government „concordat‟ Putting people first – a
shared vision and commitment to the transformation of adult social care
(DoH 2007).
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4/ Personal Budgets are derived from the positive outcomes that adult
service users have achieved as a result of Direct Payments; also from the
work carried out in the In Control pilot scheme for adults with learning
disabilities, which began in 2003. The In Control pilot provided evidence of
the increased satisfaction levels of service users as a result of the
introduction of self-directed support. One of its aims was to eradicate someof the problems encountered by users of Direct Payments. The outcome
was the design of a new process, which has been used as a model for the
introduction of their Personal Budget programmes by many local
authorities.
5/ The Social Care Reform Grant, announced in Putting People First , is
available to local authorities to support universal information, advice,
advocacy, support planning and brokerage services to be developed locally.
6/ The rule making Direct Payments the only legal way that local authorities
can make cash payments to an individual is complicated by the fact that
local authority‟s can make payments to individuals under section 2(1) of the
Local Government Act 2000, which gives them a general power (discretion)
to promote the wellbeing of the area. Section 2(2)(b) of the 2000 Act states
that this power may be exercised in relation to “all or any person resident or
present in a local authority‟s area”, and section 2(4) gives a list of the types
of actions the local authority can take, including 2(4)(b), where it can “give
financial assistance to any person”. Whilst such payments would nottechnically be Direct Payments, Essex County Council and possibly others
have been making their Direct Payments under section 2(1) of the 2000
Act . The present Law Commission review of adult social care is looking at
this issue and proposes clarifying that if a payment is made in order to meet
assessed needs it should be made under directs payments legislation.
However, section 2 of the 2000 Act could still be used to provide
preventative services.
9 Further reading
A Guide to receiving direct payments from local council, a route to
independent living. September 2009. Available free from Department of
Health. Tel: 0870 1555455, fax: 01623 724524.
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Community Care (Direct Payments) Act 1996 . Price £6.00. Available from The
Stationery Office. Tel: 0870 600 5522. Free from the website:
www.opsi.gov.uk.
Direct routes to independence: a guide to local authority implementation and
management of direct payments . Policy Studies Institute. Price £10 (p&p 20%
of order value to a maximum of £10) (ISBN: 0853 74 75 71). Available fromCentral Books. Tel: 020 8525 8840.
Employed or self-employed? A guide to employment status for tax and
national insurance . (Ref: IR56). Available free from HM Revenue & Customs
Office (formerly „Inland Revenue Enquiry Centres‟). Orderline 0845 9000 404
Website: www.inland revenue.gov.uk.
Helpful employment guidance can be found on www.direct.gov.uk and
www.businessink.gov.uk.
10 Further information from Age UK
Visit the Age UK website, www.ageuk.org.uk, or call Age UK Advice free on
0800 169 65 65 if you would like:
to order copies of any of our information materials mentioned in this factsheet
to request information in large print and audio
further information about our full range of information products
contact details for your nearest local Age UK/Age Concern.
Books from Age UK
We publish a wide range of books for older people and those who care for
and work with them. The following title may be of particular interest:
Your rights to money benefits 2010 –2011
All you need to know about the full range of benefits available in retirement.
£5.99
To order this book visit www.ageuk.org.uk/bookshop or to request a free
books catalogue please call our book order line 0870 44 22 120 (lo-call rate).
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Age UK
Age UK is the new force combining Age Concern and Help the Aged. We
provide advice and information for people in later life through our,
publications, online or by calling Age UK Advice.
Age UK Advice: 0800 169 65 65Website: www.ageuk.org.uk
In Wales, contact:
Age Cymru: 0800 169 65 65
Website: www.agecymru.org.uk
In Scotland, contact:
Age Scotland: 0845 125 9732
Website: www.agescotland.org.uk
In Northern Ireland, contact:
Age NI: 0808 808 7575
Website: www.ageni.org.uk
Support our work
Age UK is the largest provider of services to older people in the UK after the
NHS. We make a difference to the lives of thousands of older people through
local resources such as our befriending schemes, day centres and lunchclubs; by distributing free information materials; and through calls to Age UK
Advice on 0800 169 65 65.
If you would like to support our work by making a donation please call
Supporter Services on 0800 169 80 80 (8.30 am –5.30 pm) or visit
www.ageuk.org.uk/donate
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Legal statement
Age UK is a registered charity (number 1128267) and company limited by
guarantee (number 6825798). The registered address is 207 –221 Pentonville
Road, London, N1 9UZ. VAT number: 564559800. Age Concern England
(charity number 261794) and Help the Aged (charity number 272786) and
their trading and other associated companies merged on 1 April 2009.Together they have formed Age UK, a single charity dedicated to improving
the lives of people in later life. Age Concern and Help the Aged are brands of
Age UK. The three national Age Concerns in Scotland, Northern Ireland and
Wales have also merged with Help the Aged in these nations to form three
registered charities: Age Scotland, Age Northern Ireland, Age Cymru.
Disclaimer and copyright information
This factsheet has been prepared by Age UK and contains general advice
only which we hope will be of use to you. Nothing in this factsheet should be
construed as the giving of specific advice and it should not be relied on as a
basis for any decision or action. Age UK does not accept any liability arising
from its use. We aim to ensure the information is as up to date and accurate
as possible, but please be warned that certain areas are subject to change
from time to time.
Please note that the inclusion of named agencies, companies, products,services or publications in this factsheet does not constitute a
recommendation or endorsement by Age UK.
© Age UK. All rights reserved.
This factsheet may be reproduced in whole or in part in unaltered form by
local Age UK/Age Concerns with due acknowledgement to Age UK. No other
reproduction in any form is permitted without written permission from Age UK.