FROM BEARING TO SHARING - Baylor University · FROM BEARING TO SHARING ... •Understand the...
Transcript of FROM BEARING TO SHARING - Baylor University · FROM BEARING TO SHARING ... •Understand the...
FROM BEARING TO SHARING
E X P L O R I N G D I S C R I M I N AT I O N , I D E N T I T Y D E V E L O P M E N T A N D A D V O C A C Y F O R P E R S O N S
W I T H D I S A B I L I T I E S
Dr. Emma J. Wood
Licensed Clinical Psychologist
Baylor University Counseling Center
DISABILITY ON CAMPUS
• National Center for Education Statistics, Students With Disabilities at Degree-Granting
Postsecondary Institutions. US Department of Education, 2011.
– 11.1% of college students have some form of disability
– Over 64% are “invisible disabilities”
• Learning Disabilities (31%)
• ADHD (18%)
• Mental Health (15%)
Mobility
7%
Health
Condition/Chronic
Condition
11%
Hearing
3%
Vision
3%
Mental Health
Condition
15%
Learning Disability
32%
ADHD
18%
Autism Spectrum
2%
Cognitive/Intellectual
3% Brain
Injury
2%
Speech/Language
1%
Other
3%
Disability in Higher Education
DISCRIMINATION
– Societal discrimination is rampant against people with disabilities
– Discrimination is both institutionalized and environmental and personal and subtle.
– The effects of subtle discrimination (microagression) have significant impact
• Low quality of life
• Depression
• Anxiety
• Self-esteem issues
• Poorer physical health
PREJUDICE AND DISCRIMINATION
• Ableism favors those without a disability and implies that those possessing a disability
are inferior
• Individuals may be evaluated on a deficit perspective, or understood as wanting to be
“normal”
• Many health care professionals and educators hold negative views toward the disabled
• Language such as “retarded,” “dumb,” “lame,” “crazy,” “psycho,” and “stupid” creates
stigma and a negative social climate
• The general public has low expectations for people with disabilities
AN DISABILITY NARRATIVE
• Pitiable and pathetic; sweet and innocent; a miracle cure
• Victim or an object of violence
• ‘Super-crip’/ triumph over tragedy/noble warrior
• Laughable or the butt of jokes
• Having a chip on their shoulder
• A burden/ outcast
• Non-sexual or incapable of a worthwhile relationship
• Incapable of fully participating in everyday life
COUNTERING NARRATIVE SUSPENSE AND STRENGTHS
• Narrative Suspense- diagnosis is not defining
– Locate other sources of identity
• Sister
• Artist
• friend
• Humor, coping strategies, hope, and optimism are associated with a higher quality of life.
• Qualities such as creativity, resilience, self-control, and the ability to make positive connections
can be tapped into during therapy.
ADVOCACY FOR INDIVIDUALS AND ALLIES
• Identify your beliefs, assumptions, and attitudes about individuals with disabilities.
• Understand the prejudice, discrimination, inconveniences, and barriers faced by individuals with
disabilities.
• Redirect internalized self-blame for the disability to societal attitudes.
• Help family members reframe the problem so that positives can be identified. Strengthen
positive attributes.
• Develop self-advocacy skills for both the individual with the disability and the family members.
IDENTITY DEVELOPMENT
• Diagnosis
• Desire to be “normal”
• Denial
• Fear and shame
Rejection
• Anger
• Helplessness
• Unfairness
• Deficit perspective
Acknowledgement
• Research disability
• Seek understanding
• Find community
• Seek out role models
Ownership
• Dealing with chronicity
• Renewed anger
• Renewed denial and Depression
Fatigue
True Acceptance
• Has good personalized
coping strategies
• Looks for opportunities
to advocate and
educate
• Wants to help others
Denial and
rejection of
impact of
disability
Disability takes
over life and
causes anger
DISABILITY IDENTITY PENDULUM AKA “COMING TO TERMS”
DIFFERENCE IS ESSENTIAL
• "In order to harness the power and diversity and innovation of our society, we
have to realize that our minds and bodies experience the world in very
different ways. If we are able to create access and be more intentional about
how we create access, then we are doing everyone good.“
-Allie Cannington
“If Emma would choose to pay
more attention to her learning in
class rather than her neighbors I
bet she would get much more
out of class and earn the scores
she is capable of.”
“Emma continues to be forgetful-
often times not bringing needed
materials to class and on occasion
forgetting to do homework
assignments. Emma needs to
make a real effort to listen
carefully in class. She socializes a
bit too much causing her to not
complete classwork. Emma does
work slowly on assignments so she
can’t afford socializing/fun time
which slows her work even more.”
“She has the self-confidence or
natural curiosity (or both) to ask
good questions, and her essays show a
strong mind accompanied by spelling
so unorthodox that it gives me some
concern. We are all to some extent
‘learning disabled’ but we all have it
within us to discipline ourselves to
challenge ourselves in those areas
needing work, and I hope Emma will
work much harder to improve her
written work.”
THE GOOD
• “Its been a difficult year for her in many ways, I know, but she has carried herself with dignity
and courage through it all, and that, to me, is a true measure of character.”
• “Emma has the ability to simplify a complex idea and state it clearly. As well, she can consider a
fairly wide range of information and extract salient facts, which support an idea. Plenty of ability
there. Her spelling, of course, is a problem. Our arrangement: on in class writings I’ll forgive
misspelled words as long as she strives to spell better. Out of class spelling must be good.”
IMPACT OF BEING DIFFERENT
• Bullying
• Name calling
• Significant weight gain
• Family stress
• “problem child”
• Missing recess, computer, and other “fun” classes for tutoring
LABELS THAT HURT AND LABELS THAT WORK
• Stupid
• Lazy
• Forgetful
• Unorganized
• Undisciplined
• Slow
• Neuro-Diverse
• Person with Dyslexia
• Person with ADHD inattentive type
• Person with Bi Polar II
For those who are abled I have noticed that
they advocate for “no labels” thinking that
people may be offended or hurt. I think its
internalized stigma, and worse I believe it
teaches shame.
ADVOCACY
• Teach Self Advocacy!
• Teachers, therapists, friends, loved ones
• Organizations/Systematic
POSITIVE IDENTITY
• Role models
– Memoirs
– Documentaries
– Blogs
• Messages
• Diversity competence
• Community
– Online
– Support groups
– Universality
WHO AM I?
• My disabilities are part of me. They make me unique, empathic, therapeutic, they are a
wonderful part of Gods work in my life.
• I’m a mom, a therapist, a person with ADHD and Dyslexia, a person with a Bi Polar II Disorder,
a friend, a speaker, a writer…