Publications

For people with MS from the MS Trust

2016

The MS TrustThe MS Trust is a small UK charity dedicated to making life better for people living with multiple sclerosis.

We provide information to everyone affected by MS and support the health professionals who work with them.

All our information is free so we rely on donations, fundraising and gifts in wills to fund our services. We are extremely grateful for every donation.

If you have a question about MS, we’re here to listen and help find the right answer for you.

Our information team produces practical, evidence-based information so you can:

• make choices that are right for you

• decide how best to deal with your health

• have better informed discussions with your health professionals.

How can we help you?We focus on health information but you, your friends or family can ask us about anything to do with MS. If we can’t find the answer ourselves we’ll suggest the best organisation to help.

You can:

• call us free on 0800 032 3839 (Monday to Friday, 9am–5pm)

• email us at infoteam@mstrust.org.uk

• write to us at MS Trust, Spirella Building, Letchworth Garden City, SG6 4ET

• visit our Facebook group at www.facebook.com/groups/multiplesclerosistrust

www.mstrust.org.uk2

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In this leaflet you can find out more about our free resources for everyone affected by MS.

We produce books, factsheets, information sheets and online resources on topics including living with MS, managing your symptoms and explaining things to work, friends and family.

Our online resources can be found on our website at www.mstrust.org.uk, including a comprehensive A to Z of MS, online versions of all our publications, videos, blogs and news on all the latest MS developments.

You can keep on top of all the latest MS news by subscribing to our free, quarterly newsletter Open Door. In each issue of Open Door we:

• explain the latest MS news and research in a clear, accessible way

• look behind the headlines to see how new developments might affect you

• suggest innovative, practical ways of managing MS

• share real-life experiences of people living with MS

• introduce some of the ways you can get involved in making a difference for everyone affected by MS.

Open Door is available in print or electronically. Signing up is free and easy: call 01462 476700 or visit www.mstrust.org.uk/keepintouch

Newly diagnosedMaking Sense of MS is a new resource for people who have been recently diagnosed with MS. The information is flexible so you can choose the right amount of information, on the subjects relevant to you, at the right time for you.

Making Sense of MS: booklet If you’ve just been diagnosed, this small postcard-sized booklet is a good place to start learning about MS. It provides a brief introduction to MS and answers the questions most commonly asked after diagnosis.Order code: 444

Making Sense of MS: core packThis folder contains further information about MS, the lifestyle changes and treatments which can help and the health professionals who can support you.Order code: 448

The core pack contains the following five information sheets. However, if you prefer, you can order just the ones you’d like using the codes below:

About MSOrder code: 440

What happens after diagnosis?Order code: 456

Making the most of appointmentsOrder code: 445

Living well with MSOrder code: 443

Sources of information and supportOrder code: 453

www.mstrust.org.uk/newly-dx4

www.mstrust.org.uk/newly-dx5

Additional information sheets availableA short guide to understanding my MSIntroduces MS for family, friends and colleagues.Order code: 441

Disease modifying treatments: an introductionIntroduces the drugs that can decrease relapses.Order code: 442

MS and life choicesExplores how you can make the best choices for you.Order code: 446

MS and your feelingsExplores what you may be feeling and how you can adjust.Order code: 447

Primary progressive MS: an introductionIntroduces symptoms, treatment and support available.Order code: 449

Relapsing remitting MS: an introductionIntroduces symptoms, relapses, support and treatments.Order code: 450

Research and MSExplores the areas being studied and how you can keep up to date.Order code: 451

Secondary progressive MS: an introductionIntroduces symptoms, treatments and support available, for those diagnosed with SPMS from the beginning.Order code: 452

Telling peopleSuggests helpful ways to tell people about your MS.Order code: 454

Treating symptomsOutlines the range of treatments for MS symptoms.Order code: 455

Working and studying with MSSupports you in employment, higher education or school.Order code: 457

www.mstrust.org.uk/about-ms6

Clinically isolated syndrome

About MS

MS explainedLooks in more depth at what MS is, the possible causes of the condition and why such a variety of symptoms can occur. It also has sections on current research in MS and advances that may be made in the future.

Order code: 84

Primary progressive MSCovers the physical and emotional aspects of living with primary progressive MS (PPMS). It looks at the differences between PPMS and the other forms of MS, how it is managed, the impact it can have on day to day life and the support available. It also includes a section on research.

Order code: 352

Secondary progressive MSLooks at how secondary progressive MS (SPMS) is identified and diagnosed, how a range of health professionals can help manage the condition and how you can live well with SPMS, including tips from other people living with SPMS.

Order code: 458

Clinically isolated syndromeA clinically isolated syndrome (CIS) is an individual’s first episode of neurological symptoms. It can be an indicator of what may turn out to be MS. Discusses diagnosis, symptoms, treatment and the risk of developing MS following a CIS.

Order code: 321

www.mstrust.org.uk/living-with-ms7

Living with MSMS and me: a self management guide to living with MSAims to help you understand more about your own MS and find the most effective way to manage it. Includes practical strategies to support you to make decisions about the lifestyle and treatment choices that are right for you.

Order code: 318

At work with MSExplores how to achieve a successful work-life balance. Includes information on how MS might affect your work, your employment rights, what adjustments can be made and answers many other work-related questions you may have. www.mstrust.org.uk/work

Online only

Exercise and MSThis online resource allows you to put together and download a personalised set of exercises that can help with balance, posture and strength. The exercises start from a variety of positions - sitting, standing, kneeling or lying - making them suitable for all abilities. www.mstrust.org.uk/exercise

Online only

Move it for MSExercise DVD for people with MS led by Mr Motivator. Whether you are looking for some gentle stretching exercises or a more energetic aerobic workout, this DVD has something for everyone - includes sections on posture, balance and fatigue, and finishes with a relaxation session.

Order code: 245

www.mstrust.org.uk/living-with-ms8

DietSummarises and reviews the evidence about diet and MS. As well as exploring what constitutes a healthy diet, it covers how diet can help with managing symptoms and examines some of the diets that have been promoted for MS over the years.

Order code: 92

Vitamin DLooks at research into how low levels of vitamin D may affect the risk of developing MS and whether low vitamin D levels can influence the course of MS. Information on sources of vitamin D and the current recommendations about vitamin D supplementation are also included.

Order code: 314

Diet

Vitamin D

www.mstrust.org.uk/manage-symptoms9

Symptom managementLiving with fatigueFatigue is one of the commonest symptoms of MS and can have a major impact on daily life. This book provides practical ideas to help manage fatigue, maximise your energy levels and use energy more effectively.

Order code: 204

Managing your bladderGives an insight into why bladder problems can be part of MS, and provides a practical approach to managing them. It includes tips from people with MS who know what it is like to live with bladder problems.

Order code: 429

Managing your bowelsLooks at why bowel problems can be part of MS, and provides a practical approach to managing them. It includes tips from people with MS who know what it is like to live with bowel problems.

Order code: 430

CognitionDiscusses the range of cognitive problems that can occur as a result of MS, including memory, concentration, finding words and problem solving. It looks at strategies to cope with and manage these difficulties, as well as suggesting the health professionals who can help.

Order code: 144

Cognition

www.mstrust.org.uk/manage-symptoms10

StayingSmartThis website is aimed at people with MS who are struggling with cognition problems. It provides a wide variety of tips to help build confidence in managing difficulties and a forum to share personal experiences. www.stayingsmart.org.uk

Online only

DepressionExplores the main causes and symptoms of depression in MS and sources of support. It also looks at the different approaches that can be used to treat depression including talking therapies, cognitive behavioural therapy and drug treatment.

Order code: 315

PainDescribes the different types of pain - nerve and musculoskeletal - that can be experienced in MS and the treatment strategies that can be used to minimise the level of pain as much as possible.

Order code: 96

Spasticity and spasmsExplains exactly what spasticity and spasms are in terms that are easy to understand. It covers the management of spasticity and spasms in MS through movement, stretching and drug treatments.

Order code: 282

Depression

Pain

Spasticity and spasms

www.mstrust.org.uk/manage-symptoms11

Spasticity triggersLooks at the underlying problems and symptoms that can make muscle stiffness and spasms worsen. It includes a stiffness and spasm diary to help you identify your trigger factors.

Order code: 400

Sexuality and MS: a guide for womenA book for women that explores how MS can impact on both sexuality and intimacy. It offers some practical suggestions to help cope with symptoms that can interfere with sexual activity and help to talk about concerns.

Order code: 213

Sex and MS: a guide for menFor men who are worried about how MS might affect their sex lives. It looks at both the physical and emotional aspects that can impact on sexual activity and suggests some approaches that may help.

Order code: 356

Falls: managing the ups and downs of MSExplores factors that can increase the risk of falling in MS. It contains tips on how to reduce the risk of falling and advice on how to remain safe in the event of a fall.

Order code: 249

www.mstrust.org.uk/manage-symptoms12

Are you sitting comfortably..?A guide that highlights some simple changes that can have a benefit on posture for people with MS who spend most of their day in a sitting position.

Order code: 290

Understanding and improving your postureAn online resource that explores what good posture is, why it is important and includes some practical steps to help improve your posture in standing, sitting and lying positions. www.mstrust.org.uk/my-posture

Online only

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TreatmentsMS DecisionsAn online guide to the disease modifying drugs. It includes a guide to decision making, straightforward answers to frequently asked questions and an interactive tool to help explore and compare the options. www.mstrust.org.uk/msdecisions

Online only

Disease modifying drugs: a guide to treatments for relapsing MSFor people with relapsing MS who are considering whether to begin treatment with one of the disease modifying drug therapies. It explores the treatment options available and aims to support informed discussions with a neurologist or MS nurse.

Order code: 90

Sativex (nabiximols)Information on Sativex, the first cannabis-based medicine to be licensed in the UK, which may be used as an add-on therapy to treat spasticity. It looks at who can be prescribed Sativex and the current funding situation.

Order code: 133

Functional electrical stimulation (FES)Looks at the use of FES in MS to aid mobility. It discusses how FES can be used to correct dropped foot, who might find it beneficial and how to find local services that offer this treatment.

Order code: 211

Sativex (nabiximols)

Functional electrical stimulation

www.mstrust.org.uk/families14

For familiesKids’ guide to MSAimed at 6-10 year olds who have a parent with MS. It is fully illustrated using cartoon characters to encourage your child to ask questions about MS and gain a basic introduction to the condition.

Order code: 286

Young person’s guide to MSAimed at 10-16 year olds who have a parent with MS. It was written with the help of young people who share their experiences, worries and emotions about living with MS in their family.

Order code: 137

Talking with your kids about MSFor parents who want to talk to their children about MS, but perhaps don’t know where to start. It looks at the concerns you may have, the things children may want to know and shares the experiences of other parents.

Order code: 316

Pregnancy and parenthoodAims to dispel some of the myths about MS and starting a family. It includes information on conception, how pregnancy can affect symptoms and relapses, labour and delivery, and planning for life with the new arrival.

Order code: 134

Pregnancy and parenthood

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You can make a differenceIt’s only thanks to the support of people like you that we can continue to offer support to everyone affected by MS.

It costs £6 to research, produce and send one of our publications to someone affected by MS. Each year we send out over 50,000 items. By donating or fundraising, you can help us provide information free to everyone who needs it.

‘The free information the MS Trust sent was of real value to me. I feel it’s important they can continue to produce this information for everyone affected by MS, so I wanted to give a little back.’ Karen, MS Trust supporter

If you are ordering information and are able to make a donation, we would be very grateful. Every penny helps us make a difference. And if you are a UK taxpayer, you can ‘Gift Aid’ your donation to add 25% more!

• You can donate by post – please make cheques payable to ‘MS Trust’

• You can make a credit or debit card donation when you order online or over the phone.

To find out more or to set up a regular donation, visit www.mstrust.org.uk/donate or call 01462 476707.

There are many other ways you could get involved to support the MS Trust. We have a wide and varied range of fundraising events and activities to suit everyone. If you have your own ideas, we can support you every step of the way.

To find out more about our events and fundraising for the MS Trust call 01462 476707 or visit www.mstrust.org.uk/getinvolved

Thank you for helping us to make a difference.

Multiple Sclerosis Trust Spirella Building, Bridge Road Letchworth Garden City Hertfordshire SG6 4ET

T. 01462 476700E. info@mstrust.org.uk www.mstrust.org.uk

Registered charity no. 1088353

www.facebook.com/mstrustuk

@mstrust

Get social with us

How to orderAll of our publications are free. You can view or download them from our website or to order you can:

Phone in your order on:0800 032 3839 or 01462 476700

Order online at: www.mstrust.org.uk/pubs

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