February 13, 2002CDC/MCHB1 NATIONAL EHDI MEETING February 13, 2002 MICHIGAN DEPARTMENT OF COMMUNITY...

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February 13, 200 2 CDC/MCHB 1 NATIONAL EHDI MEETING February 13, 2002 MICHIGAN DEPARTMENT OF COMMUNITY HEALTH TRACKING FROM BIRTH

Transcript of February 13, 2002CDC/MCHB1 NATIONAL EHDI MEETING February 13, 2002 MICHIGAN DEPARTMENT OF COMMUNITY...

Page 1: February 13, 2002CDC/MCHB1 NATIONAL EHDI MEETING February 13, 2002 MICHIGAN DEPARTMENT OF COMMUNITY HEALTH TRACKING FROM BIRTH.

February 13, 2002 CDC/MCHB 1

NATIONAL EHDI MEETINGFebruary 13, 2002

MICHIGAN

DEPARTMENT OF

COMMUNITY HEALTH

TRACKING FROM BIRTH

Page 2: February 13, 2002CDC/MCHB1 NATIONAL EHDI MEETING February 13, 2002 MICHIGAN DEPARTMENT OF COMMUNITY HEALTH TRACKING FROM BIRTH.

February 13, 2002 CDC/MCHB 2

LEGISLATION

• No enacted legislation

• Two pending State Bills

• Medicaid (June, 2000) policy requiring all newborns have a hearing screen in-hospital or within first month of life

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February 13, 2002 CDC/MCHB 3

POPULATING THE DATABASE/DATA ITEMS

• Reporting through metabolic screening with a separate pull out hearing card

• Hospitals have responded well to this system as it is familiar

• Hearing does not interfere with other reporting to MDCH

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February 13, 2002 CDC/MCHB 4

DataBase Tracking

• MDCH currently uses FOXPRO software for blood spot screening

• Because newborn hearing is linked to that database, we also use FOXPRO

• Both databases have converted to an Access program for report generation

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HEARING SCREEN PAGE BAR CODE FOR MATCHINGRED NUMBER IS INVENTORY NUMBER

BLUE AREA FOR HEARING RESULTSFOURTH SHEET ON CARD BENEATH NBS SHEETS

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EFFECTIVENESS OF SYSTEM

• Process has been well accepted as hospitals are accustomed to system

• Has made NBS look at data integration as important relative to the finding of newborns with missed screens

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February 13, 2002 CDC/MCHB 7

BIRTH CERTIFICATES/DATA INTEGRATION

• Three projects are occurring– Data integration with Michigan

Birth Defects Registry

– Pilot project for hospitals to use electronic birth certificate system for reporting hearing

– Medicaid integrated data system

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• Case finding project with Vital Records, Birth Defects Registry (BDR) to capture reported hearing loss. – EHDI to BDR (confirms DX codes

and adds new cases to database)

– BDR to EHDI (adds new cases to ensure follow-up for infants)

• BDR is reported monthly by law

Birth Defects Registry

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February 13, 2002 CDC/MCHB 9

• Approximately 80% of Michigan birth certificates are reported electronically bi-weekly

• 100% reported within four weeks

• Exploring Web based reporting of birth certificates

Electronic Birth Certificates

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February 13, 2002 CDC/MCHB 10

• Michigan’s Medicaid system is also developing a statewide system to store and integrate data – Executive Information System/ Decision Support System–Enhance Medicaid information by

identifying patterns of behavior across recipients and providers

–Build supporting infrastructure to expand integration, access and analysis of data

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HEALTH CARE PROVIDER REPORTING/COLLABORATION

• Michigan’s EHDI Program receives information in a variety of ways– Primary care physicians/clinics

– Part C of IDEA (Early On)

– State audiologists

– Maternal Support System/Infant Support System (Medicaid program)

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• Counties with All Students Achieve Program-Parent Information and Education grant participants

• Children’s Special Health Care Services

• Local Public Health Nursing contacts

• Have shared information with WIC and information will be added to their intake histories on newborn hearing and possible acquired hearing loss concerns for the older age group

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• We have developed a system of facsimile forms to notify and receive information back from collaborating providers

• Many audiologists use a reporting form, but we accept their audiological reports in FAX or written form

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February 13, 2002 CDC/MCHB 14

PARENTS AND FAMILY

• Hospitals have been asked to notify parents of the hospital newborn hearing screen

• We also request that they share our brochure or one they have developed with families

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• In March of 2001, we developed a parent signature form allowing the EHDI program to refer, follow-up and collect pertinent information

• We have supplemented hospital efforts with information to prenatal classes

• We also have a new parent consultant who has developed information systems for parents

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CONTACT INFORMATION• Anne Jarrett, Follow-Up Consultant

– 517/ 335-8878– [email protected]

• Debby Behringer, Com. Dev Consultant– 517/ 335-8875 – [email protected]

• Amy Lester, Parent Consultant– 517/335-8273– [email protected]

FAX 517/335-8036