European Innovation Partnership on Active and Healthy ......EIP AHA A3_Luxembourg Meeting_29JUN2016...

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EIP AHA A3_Luxembourg Meeting_29JUN2016 PROEIPAHA_A3 1 European Innovation Partnership on Active and Healthy Ageing A3 Action Group meeting minutes Date: 29 th June 2016 Time: 09:00 – 16:30 CEST Location: DG SANTE, HITEC building, 11, Rue Eugène Ruppert L-2557 Luxembourg/Gasperich Meeting Type: A3 plenary meeting Chair: A3 Promoter Maddalena Illario (MI) (PROEIPAHA) Note Taker: Valentina Tageo (VT) (PROEIPAHA) Contents Attendees .......................................................................................................................................................................... 2 Online participants ....................................................................................................................................................... 3 Apologies ........................................................................................................................................................................... 3 Agenda ................................................................................................................................................................................ 3 Minutes ............................................................................................................................................................................... 5 Welcome and introduction .................................................................................................................................. 5 The organizational and sustainability framework of the EIP on AHA towards 2020: welcome by DG CNECT & SANTE...................................................................................................................... 5 PROEIPAHA support and tools available for the EIP on AHA partners ......................................... 7 Renovated Action Plan highlights and new coordination structure for A3 AG .......................... 7 Conclusions ................................................................................... Errore. Il segnalibro non è definito. Annexes ........................................................................................................................................................................... 12 Next action points ...................................................................................................................................................... 17 Forward plans .............................................................................................................................................................. 18

Transcript of European Innovation Partnership on Active and Healthy ......EIP AHA A3_Luxembourg Meeting_29JUN2016...

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European Innovation Partnership on Active and Healthy Ageing

A3 Action Group meeting minutes

Date: 29th June 2016 Time: 09:00 – 16:30 CEST Location: DG SANTE, HITEC building, 11, Rue Eugène Ruppert L-2557 Luxembourg/Gasperich Meeting Type: A3 plenary meeting Chair: A3 Promoter Maddalena Illario (MI) (PROEIPAHA) Note Taker: Valentina Tageo (VT) (PROEIPAHA) Contents

Attendees .......................................................................................................................................................................... 2

Online participants ....................................................................................................................................................... 3

Apologies ........................................................................................................................................................................... 3

Agenda ................................................................................................................................................................................ 3

Minutes ............................................................................................................................................................................... 5

Welcome and introduction .................................................................................................................................. 5

The organizational and sustainability framework of the EIP on AHA towards 2020: welcome by DG CNECT & SANTE...................................................................................................................... 5

PROEIPAHA support and tools available for the EIP on AHA partners ......................................... 7

Renovated Action Plan highlights and new coordination structure for A3 AG .......................... 7

Conclusions ................................................................................... Errore. Il segnalibro non è definito.

Annexes ........................................................................................................................................................................... 12

Next action points ...................................................................................................................................................... 17

Forward plans .............................................................................................................................................................. 18

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Attendees

Institution Participants name

European Commission Stefan Schreck SS

European Commission Ingrid Keller IK

Federico II University Hospital (PROEIPAHA) Maddalena Ilario MI

Outsight (PROEIPAHA) Valentina Tageo VT

University of Twente Miriam Vollenbroek-Hutten MV

Medical University of Graz Regina Roller-Wirnsberger RR

CSIC Isabel Varela Nieto IV

Centro de Investigacion Principe Felipe Vicente Felipo VF

Instituto de Investigacion Sanitaria INCLIVA Carmina Montoliu CM

Gesellschaft für Gesundes Altern und Prävention Alexander Tietz AT

University of Turin Martina Amanzio MA

Future-Shape GmbH Axel Steinhage AS

Emilia Romagna Region Marcello Giuseppe Maggio MM

IBM France Véronique Doux Marot VD

IBM France Marc Yvon MY

TU Munich Thomas Bock TB

NOVA Medical School Rute de Sousa RS

University of Porto Elísio Costa EC

Center for Gastrology Edwig Goossens EG

University Institute of Maia (CIDESD-ISMAI) Alberto Alves AA

University of Coimbra Ana Teixeira AT

Universidad de Málaga Yamina Seamari YS National Centre of Scientific Research -'Demokritos'

Maria Dagioglou MD

Aristotle University of Thessaloniki Leontios Hadjileontiadis LH

Si4Life Serena Alvino SA

Si4Life Daniele Musian DM

University of Valencia Jane Moreno JM

University of Porto Teresa Limpo TL

Autonoma University of Madrid Rocío Fernández-Ballesteros RF

Kronikgune Sara Ponce Márquez SP

Barcelonabeta Brain Research Center Carolina Minguillon Gil CM

University of Basel Oliver Mauthner OM

Universidade de Lisboa Sofia Balula Dias SB

Asociacion Parkinson Madrid Marta Burgos Gonzalez MB

UNIFAI/ICBAS-UP Laetitia da Costa Teixeira LT Laboratory of Biomechanics of the Oporto University (LABIOMEP)

Leandro J. Rodrigues Machado LR

Care and Services for 50+ (CASO50+) / UNIFAI, CINTESIS – ICBAS

Mafalda Duarte MD

University of Rome "Tor Vergata Giuseppe Liotta GL

AGE Platform Europe Ilenia Gheno IG

ANT Foundation Veronica Zavagli VZ

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University of Antwerp Bart Geurden BG Centre of Chemistry and BIochemistry, Faculty of Sciences, University of Lisbon

Ana Mourato AM

IDIAP Jordi Gol Francisco Orfila Pernas FO

Hospital Universitario de Getafe Marta Castro MCA

ISBEM ScpA Maurizio Chiesa MCH

ISBEM ScpA Alessandro Distante AD

Tecnological Educational Istitute of Crete Christos Kleisiaris CK

Online participants

Institution Participants name

European Commission Bruno Alves BA

Lombardia Informatica Livio De Nardi LdN

Lombardia Informatica Natalia Allegretti NA

University of Deusto Amaia Mendez Zorrilla AMZ

University of Deusto Osane Uriarte OU

Apologies

Institution Participants name

Sermas-Hospital Universitario de Getafe Leocadio Rodrigues Mañas

University of Valencia Antonio Cano

European Nutrition for Health Alliance Frank De Man

University Institute of Maia (CIDESD-ISMAI) João Viana

University of Coimbra Joao Apostolo

RESAH Louis Potel

Aarhus University Suresh Rattan

TREBAG Property- and Projectmanagement Ltd. Enikő Nagy University of Applied Sciences and Arts of Southern Switzerland

Alessandro Puiatti

U-Sentric Hanne Sidarow

University of Lisbon Amelia Rauter

Agenda

09:00 – 09:15 Registration & coffee*

09:15 – 09:30 Welcome and introduction Ingrid Keller European Commission (DG Sante)

09:30 - 09:45 The organizational and sustainability framework of the EIP on AHA towards 2020: the role of the coordination team

Bruno Alves European Commission (DG Connect)

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09:45 – 10:00 PROEIPAHA support and tools available for the EIP on AHA partners

Valentina Tageo (A3 Support Manager)

10:00 – 10:30 Renovated Action Plan highlights and new coordination structure for A3 AG

Maddalena Illario (A3 Promoter)

10:30 – 11:30

Presentation of the six Action Areas, the activities (collaborative works + sprints) related to each of them and the A3-led Synergy:

- Regina Roller

- Miriam Vollenbroek

- Marcello Maggio

- Giuseppe Liotta

- Jane Moreno

- Francisco Orfila

- Marta Castro

Coordination Team + Synergy Leader (7-8 minutes each)

11:30 – 12:45

Overview of the new commitments: main areas covered and proposed topics.

Call for new Sprints.

Open discussion on how to group commitments and arrange the practical workflow on common activities:

- Collaborative works

- Sprints

- Synergies

Chaired by Maddalena Illario (A3 Promoter)

12:45 – 14:15 Lunch*

14:15 – 14:45 Round of presentations: each participant is invited to briefly introduce him/herself (1 min each)

14: 45 – 16:15

Working groups sessions: all commitments interested in contributing to a collaborative work or sprint meet the respective leader to:

- Identify common grounds for collaboration

- Set priorities and calendar of activities

- Appoint coordinators for collaborative work

and sprints

16:15 – 16:30 Wrap up Maddalena Illario (A3 Promoter)

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Minutes

Welcome and introduction

Ingrid Keller (IK) briefly introduces herself. She is the appointed Policy Officer for A3 Action Group. She is involved in the initiatives promoted by DG SANTE to prevent chronic diseases which represent leading causes of mortality in Europe and tackle major risk behaviours. She leaves the floor to Bruno Alves (BA) who is connected on the phone from Brussels.

The organizational and sustainability framework of the EIP on AHA towards 2020: welcome by DG CNECT & SANTE

Bruno Alves (BA), DG CNECT Policy Officer responsible for the EIP on AHA and the Coordination and Support Action (CSA) PROEIPAHA aimed to support it, briefly illustrates the state of the art of the Partnership and mentions the reshuffle that DG CNECT is going to undertake.

Last April, the 2016 Calls for Commitments and Reference Sites (RSs) closed with an impressive result demonstrating that there is still a huge interest across Europe around AHA (round 850 applications for commitments submitted and 80 RS applications).

The EIP welcomed many new organisations and also many re-submissions from partners who already knew and recognised the value of the Partnership. He welcomes especially the newcomers and expresses the commitment of the EC to do the best to maximize the impact of the Partnership itself.

Response indeed is encouraging. EIP on AHA changed a lot during last 4 years and now its main purpose is more about scaling up of the innovative solutions gathered so far across Europe to benefit all EU citizens. We step up into a “second phase”: during the first one the Partnership contributed to collect and share practices, now its ambition is to support and promote the scaling up of those practices.

All six AGs have renovated their Action Plan for the new phase (2016-2018) and they will carry them out having in mind this focus on implementation and through the delivery of collaborative works and “sprints”.

In addition, the EIP work has become more professionalised thanks to the support provided by the CSA PROEIPAHA that is contributing to make work and processes more uniform and smoother and facilitate their implementation with the provision of tools and services.

Not-AG specific horizontal initiatives that is worth to mention are for instance the Repository of Innovative Practices 1 , the Monitoring and Assessment Framework for the European Innovation Partnership on Active and Healthy Ageing (MAFEIP) tool2, etc.

Regarding RSs, they are regional organisations committed in investing in AHA. During last years they have matured and become more robust in terms of organized network. Where Reference Sites have been most successful is when they have brought together all the key stakeholders – Regional Government Bodies and Health and Care providers, industry, academia and civil society – into a coherent partnership or ecosystem engaging the so-called “Quadruple Helix”. The RSs actually are thought to build a strong network made up of the above mentioned stakeholders interested in AHA innovation collaborating together to drive changes far beyond the scope of any individual organisation could achieve on its own, namely the upscaling of innovative practices at local, regional and national levels.

1 https://ec.europa.eu/eip/ageing/repository_en 2 http://ec.europa.eu/research/innovation-union/index_en.cfm?section=active-healthy-ageing&pg=mafeip

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To this extent, he reminds the three goals of the EIP on AHA (“triple win”):

1. Enabling EU citizens to lead healthy, active and independent lives until old age;

2. Improving the sustainability and efficiency of health and social care systems;

3. Fostering competitiveness and market growth by developing and deploying innovative

solutions.

From now on till the end of year a number of activities is upcoming where the participation of AG members will be very important:

- How innovation can make the difference for AHA? During last Conference of Partners, Commissioner Oettinger launched the idea to involve all relevant stakeholders to develop a shared vision, i.e. the Blueprint on Digital Innovation for Health and Care Transformation in Europe's Ageing Society. This is not a new initiative rather an attempt to connect and leverage all existing initiatives at loco-regional, national and international to accelerate the upscaling of innovations in next 3-5 years and align instruments to support this vision focused on how digital innovation can transform Europe's Ageing Society in the 21st Century. First draft is available, it will be disclosed after summer. Due to the strategic importance of this initiative each AG is requested to appoint one representative (Action A1) to provide input on the Blueprint current text (between now and end of July 2016) and propose actions that will be carried out (within the scope of the EIP on AHA AG plans 2016-2018) and contribute to the objectives of the Blueprint. Thus, this person is expected to vehicle the AG inputs to the EC.

- The Repository of Innovative Practices is online and it has to be promoted in all relevant networks, within the EIP and beyond, to maximize impact.

- A stronger interaction between AGs and RSs will be enhanced. In July regions that have been awarded with the RS status will be informed (round 70 expected). In September the EC will launch a new twinning instrument intended to accelerate scaling up thanks to learning exchange between regions which have been pioneering in the implementation of a specific practice and other regions willing to deploy that particular innovative practice: 20 twinnings will be funded by the EC3.

- The European Summit on Innovation for Health and Active Ageing 4 (5th – 8th December 2016 in Brussels) will be thought as a large exhibit area to showcase the work, to discuss the shared vision and validate what we want to do in next 3-5 years at all levels.

- Finally, he anticipates that 2017 will be also a year full of initiatives at global level with focus on innovation for ageing, that European organisations need to feed with their work and their shared vision conveyed in the Blueprint.

As host of this meeting, Stefan Schreck (SS), DG SANTE C1 Head of Unit “Health programme & chronic diseases”, welcomes the participants too: the unit he leads deals with chronic diseases representing the largest burden of the diseases in Europe for public health systems. Member States of course are in charge of public health, nevertheless DG SANTE is trying to address this big challenge with its limited resources stepping in only when there is an added value to be promoted and stimulated (e.g. successful models and practices to be replicated and scaled). In this sense, the EIP on AHA is very important to provide key inputs and lessons learnt. What the Partnership is doing is promoting innovation to make the difference in real citizens’ life: this

3 http://www.scale-aha.eu/home.html 4 https://ec.europa.eu/eip/ageing/events/european-summit-innovation-active-and-healthy-ageing-transforming-future-health-and-care_en

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kind of initiatives has a very critical aspect i.e. to measure the real impact that the activities produce without underestimating it. The bottom up approach which informs the EIP on AHA way of working is extremely useful to get insights and inspiring solutions.

Among the initiatives promoted by DG SANTE to facilitate exchange, cross-fertilization and co-creation, IK announces the launch of the Health Policy Platform where the interested stakeholders will be able to exchange opinions and documents. In the platform it will be also possible to have a page dedicated to A3 and sort of “virtual box” for documents with restricted access to the AG members only, thus allowing to classify and organise in folders the bibliography of the AG. The use of this tool, which would be providing an alternative to many of the functions performed by Yammer, has to be discussed and agreed with DG CNECT and PROEIPAHA (Action A2).

PROEIPAHA support and tools available for the EIP on AHA partners

Valentina Tageo (VT) (A3 AG Support Manager) illustrates the role, partners and key services and tools provided by the CSA PROEIPAHA, with a specific focus on the Commitment Tracker Tool and the Repository of Innovative Practices (see Annex 1).

She reminds that every new partner will receive an invitation to join the online platform Yammer (Action A3). PROEIPAHA team will also take care to keep the contact list and sublists of the AG continuously updated, so she asks to send any modification in contact persons or email addresses to her email account: [email protected]. Of course, Action Area coordinators will be co-responsible too for the maintenance of the sub-lists since they are in direct touch with the contributors to each Area. In this regard, Yammer A3 page will be arranged in as many subgroup as the CWs (or the Action Areas) are, in order to allow the partners to go straight to the subgroup they are more interested in. The subgroup for the Synergie no. 07 led by Giuseppe Liotta (see presentation below) is already available and users caN

Renovated Action Plan highlights, overview of the commitments and new coordination structure for A3 AG

Maddalena Illario (MI) presents the Renovated Action Plan (RAP)) for 2016-2018, the new composition of the AG following last call for commitments and highlights a number of priorities for the upcoming weeks (see Annex 2):

- During the evaluation of the Commitments, a general issue has emerged: each partner should rephrase the description of the commitment that proposed and provide it in a more structured way. A template for this purpose will be agreed by the Coordination Team and distributed to everybody in order to standardise the content of the description field (Action A4).

- Each partner is also invited to enter again the commitment form and choose a General Objective and at least one Collaborative Work (for those who did not yet) (Action A5). Also those who were not present in this meeting are kindly requested to send to [email protected] their expression of interest to be included in one or more Action Areas.

- After the evaluation an issue has been raised by some applicants about the existing misalignment between the General Objectives (GOs) and the Collaborative Works (CWs) indicated in the Commitment Tracker Tool (CTT, i.e. the online tool made available on the EIP portal for the submission) and the GOs and CWs indicate in the last version of the A3 AG RAP. Thus, MI illustrates a table with the proposed alignment of GOs and CWs

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in the CTT and in the RAP and asks to approve during the afternoon discussion in the working groups.

Another crucial issue of her presentation is the need for renovation and strengthening of the Coordination Team due to the increasing burden of activities and required engagement. Coordinators have the key duty to ensure the link between the RAP statements and the ongoing work, provide expert guidance and support to the AG members and, for this reason, they have to be available to participate in regular reporting activities and online meetings as well as to ensure a constant information flow towards the members in order to motivate and engage them in the collaborative tasks.

A number of existing coordinators has expressed the willing to keep the role but others are not available anymore. Also new coordinators are needed since in the new EIP configuration a leader is expected to be assigned to each CW so in the afternoon session the partners will be invited to go through the proposed procedure for the renovation (distributed by MI, Annex 3), validate it and also potential names for candidates will be welcome even though of course partners who could not join the meeting may submit their candidatures as well. A detailed timeline will be circulated ASAP.

Regarding the support services provided by PROEIPAHA, she stresses the need of continuity and invites the EC to find a solution to guarantee that the support is not interrupted at the end of the year when the 2-years CSA will expire. MI also invites participants to make proposals on how to structure the bibliography of the AG in a virtual place (to be defined which tool is to be used) to make it accessible to everybody in an organised and user-friendly way (currently documents are uploaded on Yammer but there is no possibility to organise them in folders and subfolders).

Finally, as A3 Promoter she also reminds and call the attention of partners on some key issues for the upcoming months:

• The need for a more structured calendarisation of the participation of A3 partners into

calls for funding and, on the other hand, the need for a better alignment to the EIP on

AHA objectives of H2020 topics and evaluation criteria adopted by the experts in the

selections of proposals to be funded.

• The importance, as stressed by the DG CNECT representative, of the EIP on AHA

Conference of Partners and the Summit on Innovation for Health and Active Ageing as a

big opportunity for visibility for the AG A3.

• The importance to establish a structured connection with RSs

• The strategic importance of the A3 contribution to the Blueprint.

• The need of aligning and create a mutual fertilization relation between the Join Action

on Frailty and A3 AG.

Presentation of the six Action Areas, the activities (collaborative works + sprints) related to each of them and the A3-led Synergy

Nutrition

Regina Roller-Wirnsberger (RRW), co-coordinator along with MI, presents the main objectives, expectations and proposed new collaborative works / sprints of the Nutrition Action Area.

Food and nutrition, she says, is a major focus in A3 and the Nutrition partners have realized that we need an earlier involvement of all relevant stakeholders to determine the effectiveness

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of nutrition based intervention: thanks to the last Call for Commitments of course a broader range of partners is expected to get engaged and new partners are welcome.

She has been using the matrix showed in the RAP to screen the commitments submitted by new and old partners and try to allocate them according to the their potential contribution and declared interest. As a result of this preliminary work, she concludes that it is definitely needed a standard template for commitment description as proposed by MI.

The proposed sprints for this initial phase are listed in her presentation (see Annex 4).

Considering the heterogeneity of the partnership, it is important to position each commitment into the “innovation cycle”. Everybody should focus on this process and understand where it can be positioned. The ambitious goal pursued by the Nutrition Area is to measure collectively the gains in terms of incremental effectiveness of interventions.

Physical activity

Miriam Vollenbroek (MV), coordinator of this Action Area, introduces the existing commitments who decided to renovate their engagement and welcomes the new ones.

She arranged her preparatory work making an inventory of potential collaborative work strands along all the GOs in the RAP (see Annex 5).

After having illustrated the proposed CWs she mentions next steps:

- To approve the list of CWs

- To position commitments in the CWs they best fit and can contribute to

- To find volunteers for the coordination of CWs

Functional decline

Marcello Maggio (MM) illustrates the Functional decline Action Area content, aims and plans for the future (see Annex 6) on behalf of the appointed Coordinator Roberto Bernabei.

He introduces some basic concepts as the trajectories of functions in older adults and the key difference between the concepts of frailty and disability: on these concepts the need for adequate frailty screening tools is grounded.

To this extent he mentions the numerous studies which have demonstrated the effectiveness of certain factors in measuring frailty risk: for instance, as an example of frailty as response to stressors, he mentions that one demonstrator of frailty conditions is the resilience and capacity of response in recovery phase after surgeries.

In general he states that disability has been already addressed by the scientific community with classification, literature and diagnosis protocols. Today there is a need for similar tools for frailty assessment.

Thus, the proposed first sprint is the development of a simple tool to detect frailty based on the SUNFRAIL5 tool that takes into account three variables to be considered as determinants for frailty: biological, psychological and social factors. The 8 questions selected for the SUNFRAIL tool have been selected from a list of more than 25 questions present in existing literature. A critical reading is welcome from partners.

MI asks whether they think it could be feasible, after having completed the stratification of the population with the new tool, generate light intervention programmes to test new innovative insturments for prevention and cure. In this respect, MM observes that the interventions have

5 http://www.sunfrail.eu/

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to be also integrated between territory and clinical settings: the Join Action on Frailty6 that is about to start could represent the strategic link between scientific level and the public health intervention that have to be necessarily integrated.

Frailty in general

Marta Castro (MC) presents the core achievements of the Frailty in general Action Area on behalf of the appointed Coordinator Leocadio Rodrigues Mañas (see Annex 7). She stresses that the two subgroups Frailty in general and Functional decline are very close and they have been collaborating successfully in last three years. For this reason MI proposes to merge them during the afternoon working session and in next months too.

A3-led Synergy (SYN 07) “Impact of Community-based Programs on Prevention and Mitigation of Frailty (ICP-PMF)”

Giuseppe Liotta (GL) presents the Synergy no. 07 that he leads (see Annex 8). This Synergy has been proposed and promoted by the AG A3 and also A1 and B3 are involved.

In order to facilitate the comprehension of the aims and expected outcomes of the work he is carrying on, MI reminds what a Synergy is in the official definition provided by the EC and which are the 8 approved Synergies so far.

Figure 1. Summary of the 8 synergies identified and validated

GL underlines that the instruments to be used in the Synergy have been already validated in terms of their predictive capacity of death, hospitalization, etc. The challenge is to reach a huge critical mass of stratified population (10000 people seems to be realistic as an objective, but they need at least 2000 for each outcome that they wish to address). Most of the people already enrolled are from Italy and Spain but other cities are joining.

As an example, he shows the results achieved by the community based program implemented in Barcelona as the rationale of the synergy approach and invites people to figure out how much impactful can be this kind of intervention translated and replicated at EU level.

6 https://ec.europa.eu/eip/ageing/news/spain-will-be-leading-european-joint-action-prevention-frailty-elderly_en

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Cognitive decline

Jane Moreno (JM) presents the core achievements obtained so far and the future expectations and plans (see Annex 9) for the Action Area on Cognitive Decline, on behalf of its appointed Coordinator Antonio Cano.

After briefly summarising the results achieved during past years she illustrates the seven new CWs that they are proposing even though of course new proposals will be welcome and contributions for new and old partners who wish to join will be extremely valuable to enrich the team and multiply the potential impact of the proposed activities.

Caregivers

The Action Area on Caregivers (see Annex 10) is presented by Francisco Orfila (FO) on behalf of the currently appointed Coordinator William Molloy.

He illustrates what has been done so far mainly in the European funded CARTS project. The work carried out emphasises the importance of the ability of caregivers network in prediction of frailty.

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Working groups by Action Area

After lunch break the partners gather in 5 working groups each one led by the corresponding Action Area Coordinator (or delegate). Frailty in general and Functional decline join together as a unique working group led by MM.

The Working Groups were provided of an informative pack including: terminology, table with the proposed alignement of GOs and CWs and Sprint template to be approved along with the proposed procedure for the renovation of the Coordination Team.

Here below the notes of the discussion held within eah working group as they have been reported by the appointed rapporteur.

Of course, each Action Area will have also to identify internally their leaders for the respective CWs.

In order to ensure the maintenance of the contact lists of the Action Areas each Coordinator is kindly requested to integrate the lists below with the previous list they possess and send them to [email protected] (Action A6).

Each group has been required by the A3 Promoter to provide a preliminary couple of candidates for the Coordination since the experience of previous years has demonstrated that it is more efficient to have two coordinators per Area instead of one in order to guarantee continuity to the work and communication flows. These candidatures will follow the procedure for renovation of the Coordination Team to be launched by the end of July (Action A7). Other candidatures are welcome as well.

Nutrition

Coordinator: Regina Roller-Wirnsberger (RRW)

Rapporteur: Edwig Goosens (EG)

Participants:

Name Institution Email

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Regina Roller-Wirnsberger

Medical University of Graz

[email protected]

Marta Burgos González

Asociación Parkinson Madrid

[email protected]

Sofia Balula Dias University of Lisbon [email protected] Maddalena Illario Federico II University

Hospital [email protected]

Edwig Goossens Center for Gastrology [email protected] Ilenia Gheno AGE Platform Europe [email protected] Bart Geurden University of Antwerp [email protected] Ana Mourato University of Lisbon [email protected]

Notes: missing

Proposed Coordinators:

- Regina Roller-Wirnsberger (Coordinator)

- Edwig Goossens (Co-coordinator)

Physical activity

Coordinator: Miriam Vollenbroek (MV)

Rapporteur: Miriam Vollenbroek (MV)

Participants:

Name Institution Email Miriam Vollenbroek University of Twente [email protected] Axel Steinhage Future-shape GMBH axel.steinhage@future-

shape.com Alessandro Distante ISBEM [email protected] Ana Maria Texeira University of Coimbra [email protected] Alberto Alves University of Maia [email protected] Leandro Machado Universit of Porto [email protected]

Notes:

They made an inventory of the main topics they are interested in.

Three needs have been raised as possible topics to be prioritised:

- Delivery of new coaching models for physical activity (after a preliminary analysis of

what is into the existing repository)

- Identification of ICT tools: lots of projects existing, first step make an overview on them

- Translation of knowledge: need to create awareness across generations, how should we

do by videos, educational tools, webinars, etc. it has overlap with the synergy “Master of

AHA” led by A2 AG-

Proposed Coordinators:

MV re-candidates herself. No more candidatures raised today. Co-coordinator will be identified.

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Frailty and functional decline (merged)

Chair: Marcello Maggio (MM)

Rapporteur: Marcello Maggio (MM)

Participants:

Name Institution Email Maria Dagioglou National Centre of Scientific

Research 'Demokritos' [email protected]

Rute de Sousa Universidade Nova de Lisboa - EpiDoC, NOVA Medical School

[email protected]

Helena Canhao Universidade Nova de Lisboa - EpiDoC, NOVA Medical School

[email protected]

Leontios Hadjileontiadis Aristotle University of Thessaloniki

[email protected]

Thomas Bock Technische Universität München (TUM)

[email protected]

Marta Castro Sermas-Hospital Universitario de Getafe

[email protected]

Laetitia Teixeira Care and Services for 50+ (CASO50+) / UNIFAI, CINTESIS – ICBAS

[email protected]

Giuseppe Liotta University of Roma 3 Tor Vergata

Yamina Seamari University of Malaga [email protected] Elisio Manuel Sousa Costa University of Porto [email protected] Marc Yvon (expressed interest afterwards by email)

IBM France [email protected]

Veronique Doux Marot (expressed interest afterwards by email)

IBM France [email protected]

Roberto Bernabei (former Coordinator not present in the meeting, represented by Marcello Maggio)

Università Cattolica del Sacro Cuore

[email protected]

Leocadio Rodriguez Mañas (former Coordinator, not present in the meeting, represented by Marta Castro)

Sermas-Hospital Universitario de Getafe

[email protected]

Notes:

The group shared personal experiences and briefly discussed about the Document provided by the Promoter on New Terminology or the glossary of key terms used to in the Action Plan (Commitments, Collaborative Work, Sprints, Synergies), the need of appointing Coordinators in the Renovated Action Plan, and the potential figures to be appointed as Coordinators of the Collaborative Works and in particular “1.1 Progressing in the knowledge of the available databases within EIPAHA” (Proposed Coordinator: Giuseppe Liotta) and “2.1 Good Practices for

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scaling up strategies: screening, monitoring and early diagnosis” (Proposed Coordinator: Marcello Maggio). The group underlined the importance of “6.1 Research” in frail individuals to be started at 50-60 years of age (frailty is different than disability, and should be pre-disability-state ) to better address and influence the trajectory of functional decline. Education (as for example HALE to the patients/subjects) by taking advantage of specific moments “watching TV” was another interesting point raised.

It has been also agreed , as an additional CW, to try to document as much as possible what is done at national level for assessment/screening of frailty and whether frailty is a crucial point in the national policies at public health level. They are setting up a questionnaire to be spread as much as possible in order to get information on this issue, to document the inequalities at European level and set up proposal to overcome them. Elisio Manuel Sousa Costa from the University of Porto is taking care of setting up a draft of the questionnaire to be circulated to the member of the group in order to receive inputs.

The following priorities of the Renovated Action Plan (RAP) have been stressed as deserving particular attention:

1. Harmonization of the RAP with the contribution from new partners: need to set

timetable.

2. Roadmap for implementation of the RAP: need to set timetable.

3. Funding opportunities.

Cognitive decline

Chair: Jane Moreno (JM)

Rapporteur: Jane Moreno (JM)

Participants:

Name Institution Email Carolina Minguillón Barcelona Beta Foundation [email protected]

rg; [email protected]

Martina Amanzio University of Turin [email protected] Oliver Mauthner University of Basel [email protected]

h Teresa Limpo University of Porto [email protected] Isabel Varela Nieto CSIC (Institute for Biomedical

Research - IdiPAZ) – UAM (Spain) [email protected]

Christos Kleisiaris In home care nursing ONG Crete Island (Greece)

Véronique Doux-Marot IBM Human Centric Solutions [email protected]; [email protected]

Serena Alvino SI4Life [email protected] Daniele Musian SI4Life [email protected] Yamina Seamari Universidad de Málaga [email protected] Carmina Montoliu Félix Research Foundation of Hospital

Clínico-INCLIVA [email protected]

Vicente Felipo CIPF-Valencia [email protected] Jane Moreno University of Valencia [email protected]

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Antonio Cano (Coordinator, not present in the meeting, represented by Jane Moreno)

University of Valencia [email protected]

Notes:

Following the morning presentation of the Cognitive Decline Action Area, and its related activities proposed (6 collaborative works + 1 sprint), the afternoon working group session was attended by 13 participants, 7 of them new members of EIP on AHA (see table below).

The session started with a round of presentations where participants introduced themselves and the institution they represented, and commented briefly their activities and interests related with cognitive decline.

After, there was a brief review and comments over the Collaborative Works (CWs) and Sprint presented and an open discussion on how to arrange a practical workflow on common activities. All new commitments interested in contributing to any of the collaborative works or sprint proposed were invited to identify common grounds for collaboration and to join in.

Also, all the members were invited to suggest new CWs or Sprints of their interest. In this sense, Isabel Varela (CSIC-UAM) and Vicente Felipo (CIPF) expressed their intention of preparing a collaborative work on risk factors and biomarkers of mild cognitive impairment related to inflammatory processes in chronic diseases.

All the attendees agreed to the suggestion made by Jane Moreno about that Antonio Cano, as Coordinator of the Cognitive Decline Working Group, would circulate in the next days a welcome email to all members of this group, the new members assisting to this session and expressing their interest in participating in this WG and the former, with further information and instructions on how to proceed to organize the common work together with the contact list of all members of the Cognitive Decline WG.

Participants agreed to communicate directly to the coordinator their intention of contributing to one or more CWs and/or to suggest new possible CW or Sprints following the procedure that will be indicated by the coordinator for this matter.

The Working Groups were requested to approve the Sprint template. The Cognitive Decline WG approved this template with no suggestion of change.

The Working Groups were also requested to propose co-coordinators for WG and collaborative work and sprints. Jane Moreno on behalf of Antonio Cano communicated to the WG the stated desire of Antonio Cano to continue as Coordinator of the Cognitive Decline Working Group. Among the partners attending the meeting, Isabel Varela also presented her candidature as co-coordinator of this WG. More candidatures will be welcome.

Proposed Coordinators:

- Antonio Cano (Coordinator)

- Isabel Varela (Co-coordinator)

Caregivers

Chair: Francisco Orfila (FO)

Rapporteur: Francisco Orfila (FO)

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Participants:

Name Institution Email Francisco Orfila IDIAP Jordi Gol [email protected] Veronica Zavagli ANT Foundation [email protected] Maurizio Chiesa ISBEM [email protected]

m Rocío Fernandez Ballesteros Unviersidad Autónoma de

Madrid [email protected]

Mafalda Duarte Care and Services for 50+ (CASO50+) / UNIFAI, CINTESIS – ICBAS

[email protected]

Ilenia Gheno AGE Platform Europe [email protected]

Marta Burgos Gonzalez Asociación Parkinson Madrid

[email protected]

Carolina Minguillón Barcelona Beta Foundation [email protected]; [email protected]

Teresa Limpo University of Porto [email protected] Serena Alvino SI4Life [email protected] Daniele Musian SI4Life [email protected] Constança Paul (partner not present who confirmed her commitment)

USF Pedras Rubras [email protected]

William Molloy (former coordinator not present in the meeting)

University College Cork [email protected]

Rónán O’Caoimh (former coordinator not present in the meeting)

University College Cork [email protected]

Notes:

As some of the commitments included in the group are about educational activities to support the management of active and healthy ageing and the exploitation of ICT tools, being wider than just caregivers, it is suggested the need to include in the name of the subgroup “end-users”.

Proposed new sprints:

1. SPRINT: Transversal competences of caregivers (formal and informal) (Serena Alvino)

2. SPRINT: Procedure for the translation and adaptation to other languages and cultures of the swallowing programme for Parkinson disease patients (Marta Burgos)

Proposed Coordinators:

- Antonio Cano (Coordinator)

- Isabel Varela (Co-coordinator)

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Conclusions

This meeting has been the first one held after the 2016 Call for Commitments so it represent an important opportunity for newcomers but also for old partners to familiarise with novelties in EIP on AHA terminology, structure and functioning and start working on a series of key strategic issues to be prioritised in the second half of the year:

- The activation of the eight Collaborative Works already indicated in the RAP and the CTT

- The activation of internal consultation within the 5 Action Areas (the participants

agreed Frailty in general and Functional decline can reasonably join efforts to make their

action more impactful) to propose new CWs and new sprints (template has been

approved, see Annex 11)

- The renovation and strengthening of the Coordination Team (procedure has been

approved)

- The reinforcement of A3 role and presence in the European policy scenario through the

provision of A3 inputs into the Blueprint

- The preparation of A3 inputs for next Summit and Conference of Partners

- The definition of a more structured strategy to build consortia and participate in calls

for proposals

- The need for seeking a more structured and continuous collaboration with RSs

- The need to reinforce communication internally through a better use of Yammer and/or

alternative modes.

Annexes - Annex 1 – PROEIPAHA services and tools_VT

- Annex 2 – RAP, calls for commitments, governance and priorities_MI

- Annex 3 – Approved procedure for the renovation of the Coord. Team

- Annex 4 – Nutrition_RRW

- Annex 5 – Physical activity_MV

- Annex 6 – Functional decline_MM

- Annex 7 – Frailty in general_MC

- Annex 8 – SYN 07_GL

- Annex 9 – Cognitive decline_JM

- Annex 10 – Caregivers_FO

- Annex 11 – Approved template for A3 sprint proposals

Next action points

Action Deadline Responsible

A1. The AG is requested to appoint one representative to provide input on the Blueprint current text (between now and end of July 2016).

31st July Coordination Team

A2. Considering the opportunity offered by DG SANTE to A3 of having an ad hoc space in the Health Policy Platform, this option

Early September

EC Officers & PROEIPAHA

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has to be discussed with DG CNECT and PROEIPAHA Coordination Team in order to understand how and if it can overlap with the Yammer functionalities.

A3. Until the use of the Health Policy Platform will not be officially decided, Yammer will remain the collaborative platform for information exchange. Every new partner will receive an invitation to join the online platform Yammer.

20th July PROEIPAHA Support Service

A4. Responding to the need of enriching and standardising the description of the commitments provided by the applicants, a template for this purpose is going to be prepared by MI, agreed by the Coordination Team and distributed to everybody in order to homogenise the content of the description field.

31st July Promoter & Coordination Team

A5. Each partner is invited to enter again the commitment form and choose a General Objective and at least one Collaborative Work (for those who did not yet). Also those who were not present in this meeting are kindly requested to send to [email protected] their expression of interest to be included in one or more Action Areas.

31st July All A3 Partners

A6. Each Coordinator is kindly requested to integrate the lists of contacts provided in these minutes with the previous lists they possess and send them to [email protected].

31st July Coordination Team

A7. The procedure for the renovation of the Coordination Team is going to be activated by the end of July. 31st July

Promoter & Coordination Team

Forward plans

NEXT MEETINGS LOCATION DATE/Time Coordination Team teleconference

- TO BE SCHEDULED