IPPOSI presents the European Patients’ Academy (EUPATI) Toolbox on Medicines Research & Development

Webinar on the EUPATI Toolbox www.eupati.eu

Presentation: Introduction to the vision for the EUPATI Toolbox Derick Mitchell, IPPOSI, Chief Executive

Presentation: Discover! Adapt! and Share! the EUPATI Toolbox John Lenehan, Hibernia College, EUPATI IT Manager

Panel discussion: The EUPATI Toolbox & patient involvement in Irish medicines R&D • Katie Murphy, EUPATI, Patient Expert Training Course student • Anne Cody, HRB, Head of Research Capabilities • Sinead Tuite, MSD, Patient Programmes Manager

The EUPATI Toolbox www.eupati.eu

IPPOSI & EUPATI• Founding consortium member• Leader of the Task Force to

create 12 EUPATI National Platforms

The Toolbox is our flagship “product”

• Based on the EUPATI Patient Expert Training Course

• 3000 pieces of content• DISCOVER! ADAPT! SHARE!

self-learning, community learning, public information

The Toolbox in action – join the learning!

Discover tools, adapt & share with your patient communities

• DISCOVER! Log on & find information about how clinical trials work, about pharmacovigilance, or personalised medicines?

• ADAPT! Identify topics which are important for your community & adapt the information [delete information which is not relevant, add information relevant to Ireland or to the specific patient community]

• SHARE! Link to EUPATI on your website, include us in your next members’ newsletter.

• Use an image or a diagram for your public information material

• Use a slide in your next training or presentation

• Use a factsheet & add information specific to your community

• Use the information & create a quiz or poll for your members

Let’s discover www.eupati.eu

The EUPATI Toolbox – 6 languages

The EUPATI Toolbox – accessibility

Medicines development

Personalised medicine

Drug safety, risk/benefit

Clinical trials

Patient roles & responsibilities

The EUPATI Toolbox – word search

EUPATI Toolbox – Content available

Infographics

Articles

Fact sheets

PowerPoints

Videos

EUPATI Toolbox – Glossary

What are National Platforms? ‘IPPOSI-like structures’ created by EUPATI in over 12 countries across Europe: UK, France, Spain, Italy, Germany, Austria etc

EUPATI Toolbox – Country pages

What we produce is free for unlimited use by the public

You may:• Share tools: copy & redistribute in any medium/format• Adapt tools: remix, transform, & build upon the material

You must:• Give appropriate credit • Provide a link to the license• Indicate modifications• Distribute adapted content under creative commons license

You may not: • Use the licensed material for commercial purposes

The EUPATI Toolbox - Creative Commons

Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International (CC BY-NC-SA 4.0) license

Analytics (1)

Overview since launch• 6081 unique users• 30,254 page views• 120 countries

Country1. United Kingdom 1,113 13.28%2. Switzerland 912 10.88%3. Italy 884 10.55%4. Spain 830 9.91%5. United States 804 9.60%6. Germany 567 6.77%7. Ireland 446 5.32%8. Belgium 304 3.63%9. France 260 3.10%10. Denmark 228 2.72%

Analytics (2)

Top 5 categories1. https://www.eupati.eu/category/basics-of-medicine/ 2. https://www.eupati.eu/category/clinical-development-and-trials/ 3. https://www.eupati.eu/category/drug-discovery/ 4. https://www.eupati.eu/category/pharmaceutical-development/ 5. https://www.eupati.eu/category/types-of-medicine/

Top 5 articles1. https://www.eupati.eu/an-introduction-to-clinical-research/ 2. https://www.eupati.eu/best-practices-for-patient-involvement-in-hta-processes/ 3. https://www.eupati.eu/marketing-authorisation/ 4. https://www.eupati.eu/clinical-trial-designs/ 5. https://www.eupati.eu/evidence-based-medicine/

Top 5 downloads1. Presentation-Making-a-medicine-Basics2. Presentation-Clinical-Trial-Designs3. Presentation-Non-Clinical-Development4. Presentation-Marketing-authorisation5. Fact-sheet-Medicine-Discovery

#EUPATItoolbox #patientsinvolved

Thank you! Come visit us today & if you want to link, contact eupati@ipposi.ie