ESCAP 2015 - Jolanda van der Meer: workshop stigma

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Jolanda van der Meer, PhD ESCAP, Saturday June 20th 2015 Destigmatisation No disclosures or conflict of interest

Transcript of ESCAP 2015 - Jolanda van der Meer: workshop stigma

Jolanda van der Meer, PhD

ESCAP, Saturday June 20th 2015

Destigmatisation

No disclosures or conflict of interest

Jolanda van der Meer, PhD

ESCAP, Saturday June 20th 2015

Destigmatisation

ENCONTRAR-SE

DestigmatisationOutline

• Which stigma sticks to you?• What is stigma?• ‘Helpful advices’• Global initiatives• Conceal or reveal• Paradigms lost

Which stigma sticks to you?

Destigmatisation

What is stigma?

a) Negative societal perspectiveb) Negative self-perspectivec) Negative culture, laws and regulations

Destigmatisation

What is stigma?

a) Negative societal perspectiveb) Negative self-perspectivec) Negative culture, laws and regulations

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Stigma attached to mental illness

75%Due to a lack of empathy and knowledge about the illness?

Source: www.cdc.gov

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An effort to reframe the conversation

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What if people treated physical illness like mental illness?

Source: Hugs, Robot. Helpful Advice. Cartoon. Robot Hugs. November 21, 2013. www.robot-hugs.com.

‘Helpful Advice’ no. 1

Source: www.robot-hugs.com

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‘Helpful Advice’ no. 2

Source: www.robot-hugs.com

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‘Helpful Advice’ no. 3

Source: www.robot-hugs.com

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‘Helpful Advice’ no. 4

Source: www.robot-hugs.com

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‘Helpful Advice’ no. 5

Source: www.robot-hugs.com

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‘Helpful Advice’ no. 6

Source: www.robot-hugs.com

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An effort to reframe the conversation

What if people treated physical illness like mental illness?

Source: www.robot-hugs.com

Source: www.robot-hugs.com

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Global initiatives in the fight against stigma

United Kingdom: Time to Change Scotland: See me Scotland New-Zealand: Like Minds Like Mine Canada: Opening Minds & Beyond the LabelUnited States: Stamp Out Stigma & Erasing The Distance Australia: Say no to stigma! 

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Australia: Say no to stigma! Say no to stigma!

SANE guide to reducing stigma• What harm does stigma do?

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Australia: Say no to stigma! Say no to stigma!

SANE guide to reducing stigma• What harm does stigma do?1.Stigma discourages help-seeking.2.Stigma makes recovery harder.3.Stigma promotes discrimination.4.Stigma causes isolation.5.Stigma affects family and friends.6.Stigma affects society.7.Stigma leads to self-stigma.

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Australia: Say no to stigma! Say no to stigma!

SANE guide to reducing stigma• What harm does stigma do?• The power of the media

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Australia: Say no to stigma! Say no to stigma!

SANE guide to reducing stigma• What harm does stigma do?• The power of the media 1. Linking mental illness to crime and violence. 2. Mockery.3. Labeling people by their illness. 4. Misuse of medical terms.

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UK: Time to ChangeWhat does stigma feel like?

Outcomes set by the Time To Change programme•Significantly increased public awareness.•Increased empowerment for 100.000 people.•Break down discrimination and improve well-being for 274.500 people.

Source: British Journal of Psychiatry, 2013 (Vol.202, Issue 55).

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UK: Time to Change

SAPPHIRE research programmeCORAL: conceal or reveal.

Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl

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CORAL: Conceal or reveal.King’s College London

Guide to telling about a mental health condition

Thirty minutes workshopSuppose you and the person nextto you are co-workers, and one of yousuffers from mental health problems.

Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl

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Conceal or reveal.

Which are your main pro’s and con’s of disclosure?

Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl

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Conceal or reveal.

Which are your disclosure needs?

Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl

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Conceal or reveal.

Which are your disclosure values?

Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl

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Conceal or reveal.

When would you disclose?

Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl

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Conceal or reveal.

Who would you disclose to?

Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl

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Conceal or reveal.

What did you decide?

Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl

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Research insights

• Intergenerational.• Knowledge, attitude and behavior?

• Or… new perspectives.Challenge key paradigms currently held about the prevention or reduction of stigma attached to mental illness.

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Source: http://www.cipd.co.uk

Research insights

1. If not knowledge, attitude and behavior, what is the origin of stigma?

Stigma’s are sensitive to cultural differences, differ for distinct disorders and exist on an individual, interpersonal and structural level.

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Sources: http://www.cipd.co.uk ; http://www.kenniscentrumphrenos.nl

Research insights

2. What are ultimate goals in the fight against stigma?

Increased quality of life and breaking down barriers that create and maintain social inequities.

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Sources: http://www.cipd.co.uk ; http://www.kenniscentrumphrenos.nl

Research insights

3. Who plays what role in the fight against stigma?

Partnership in local communities. Based on experiences from the patients themselves

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Sources: http://www.cipd.co.uk ; http://www.kenniscentrumphrenos.nl

Destigmatisation

Mental illness is nothing to be ashamed of,but stigma shames us all.