End of life care Palliative care conference 14 th May 2014
description
Transcript of End of life care Palliative care conference 14 th May 2014
![Page 1: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/1.jpg)
END OF LIFE CAREPALLIATIVE CARE CONFERENCE14TH MAY 2014Rachel BondMacmillan Palliative Care Clinical Nurse SpecialistSheffield Teaching Hospitals
![Page 2: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/2.jpg)
THINK FOR A MINUTE ABOUT END OF LIFE CARE.
What comes to mind ? ……….
![Page 3: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/3.jpg)
POSSIBLE SUGGESTIONS
Specialist palliative care.
Hospice or palliative care unit.
End of life care pathway (EoLCP).
![Page 4: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/4.jpg)
WHAT SHOULD COME TO MIND ? ……
EVERYONE’S BUSINESS.
One certainty for all.
One chance to get it right.
Everyone here today cares for dying patients.
![Page 5: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/5.jpg)
HISTORY OF LIVERPOOL CARE PATHWAY (LCP)
Developed in 1997 by Marie Curie Palliative Care Institute, Liverpool (MCPCIL)
Based on a hospice model of care of the dying.
Idea was to enable replication of hospice care in any care setting.
![Page 6: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/6.jpg)
END OF LIFE CARE PATHWAYS Based on guiding principles of LCP.
Enabled organisations to develop a pathway that met their patients needs.
Enabled organisations to take ownership of the pathway.
STH End of Life Care Pathway for the last hours/days of life.
![Page 7: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/7.jpg)
WHERE DID IT ALL GO WRONG ? ……
Lack of engagement in end of life care.
Inappropriate use of the pathway.
Extensive negative media coverage
POOR COMMUNICATION.
![Page 8: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/8.jpg)
MEDIA QUOTES
“Mother put on pathway to death”
“LCP denies patients fluids”
“LCP helps us to free up beds says Dr”
“A pathway to legal execution”
![Page 9: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/9.jpg)
MORE CARE, LESS PATHWAY 2013 Baroness Neuberger was commissioned by
government to undertake an independent review of end of life care pathways following significant negative media coverage about poor end of life care and pathways.
Evidence was sought from the public, HCP’s, professional bodies.
A review of academic literature. A review of hospital complaints. A survey of HCP’s.
![Page 10: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/10.jpg)
MORE CARE, LESS PATHWAY 2013
“ When applied correctly the LCP does help patients to have a dignified and pain free death and the panel supports the principles of it”
![Page 11: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/11.jpg)
KEY FINDINGS
Tick box exercise.
Lack of clear definition of terminology.
Difficulty in diagnosing death.
Misunderstanding of use of EoLCP.
![Page 12: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/12.jpg)
EVIDENCE OF:
Falsifying records.
Good and bad decision making.
Too many serious cases of unacceptable care.
eg. Too many examples of patients being denied food or fluids.
![Page 13: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/13.jpg)
“It is the way the LCP has been misused and misunderstood that has led to such great problems, along with it being too generic in it’s approach
![Page 14: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/14.jpg)
NHS ENGLAND JULY 2013
Guidance for Nurses and Doctors on care of the dying patient and their family.
Produced in direct response to Neuberger report (2013)
Guidance advised that dying people should continue to receive good end of life care.
![Page 15: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/15.jpg)
LEADERSHIP ALLIANCE FOR THE CARE OF DYING PEOPLE (LACDP)
Formed in October 2013.
Formed and led be Dr Bee Wee.
A coalition of national organisations, charities and others with a strong interest in end of life care.
![Page 16: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/16.jpg)
LACDP COMMITMENT
“To ensure that everyone who is in the last hours or days of life, and those important to them, receive high quality care, tailored to their needs and wishes and delivered with compassion and competence”.
![Page 17: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/17.jpg)
LACDP KEY POINTS
There will not be a national tool to replace LCP.
Focus will be on what care should be like, not protocols and tick boxes.
Professionals are expected to demonstrate attention to FIVE priority areas.
Service providers & commissioners are expected to create & support systems, & learning & development opportunities to make this happen.
![Page 18: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/18.jpg)
LACDP FIVE PRIORITY AREAS
No hierarchy. All to be seen as equally important. Implementation guidance to be made
available. End of life care will be one of eight core
service areas to be inspected by CQC.
![Page 19: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/19.jpg)
PRIORITY AREA ONE The possibility that a person may die within
next few hours/days is recognised and clearly communicated.
Decisions made and actions taken are in accordance with a person’s needs and wishes.
These are regularly reviewed.
![Page 20: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/20.jpg)
PRIORITY AREA TWO
Sensitive communication takes place between staff and the person who is dying and those identified as important to them.
![Page 21: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/21.jpg)
PRIORITY AREA THREE
The dying person and those identified as important to them are involved in decisions about treatment and care to the extent that the person wants.
![Page 22: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/22.jpg)
PRIORITY AREA FOUR
The needs of families and others identified as important to the dying person are actively explored, respected and met as far as possible.
![Page 23: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/23.jpg)
PRIORITY AREA FIVE
An individual plan of care, which includes food and drink, symptom control, psychological, social and spiritual support is agreed, coordinated and delivered with compassion.
![Page 24: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/24.jpg)
AWAITED FROM LACDP SUMMER 2014…..
A document which will: Set out what dying people & those important
to them should expect. Include a statement of responsibilities of
health & care staff to meet five priority areas.
Provide implementation guidance for service providers & commissioners.
![Page 25: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/25.jpg)
A FINAL THOUGHT…… When you are next on duty what are you
most likely to deal with: A fire ? A dying patient & their family ?
Which of these do you receive regular updates & training for ?....................
![Page 26: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/26.jpg)
REFERENCES
LACDP (2013) Engagement with patients’ families & carers. NHS England.
NHS England(2013) Guidance for nurses & doctors in caring for people in the last days of life.
Neuberger (2013) More care, less pathway. A review of the Liverpool Care Pathway.
Sheffield Teaching Hospitals (2011) End of life care pathway, last hours to days of life. Version 4.
![Page 27: End of life care Palliative care conference 14 th May 2014](https://reader036.fdocuments.us/reader036/viewer/2022062811/56815f0c550346895dcdccc8/html5/thumbnails/27.jpg)
LACDP Membership The alliance is chaired by NHS England.
Other members include: CQC, College of Health Care Chaplains, GMC,
General Pharmaceutical Council, Health Education England, Macmillan Cancer Support, Marie Curie Cancer Care, NICE, NHS Improving Quality, NMC, Public Health England, Royal College of GP’s, RCN, Royal College of Physicians, Sue Ryder Care.