Employee Awareness and Empowerment Research report · capacity. Personal attributes can include...
Transcript of Employee Awareness and Empowerment Research report · capacity. Personal attributes can include...
Employee Awareness and Empowerment Research Report
The Collaborative Partnership to improve work participation
December 2019
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Table of ContentsExecutive summary .................................................................................................................................. 3
1.0 The project approach ....................................................................................................................... 5
1.1 Projectobjective ................................................................................................................................... 5
1.2 Project approach ................................................................................................................................... 5
1.3 Howtointerprettheresearchfindings ................................................................................................ 7
2.0 Findings ............................................................................................................................................ 8
2.1 Rapidreviewresults .............................................................................................................................. 8
2.2 Interventionranking ........................................................................................................................... 10
2.3 Responsestotheinterventiontypes .................................................................................................. 11
3.0 Other Empowerment Interventions ............................................................................................... 22
4.0 Conclusion ...................................................................................................................................... 32
Additional information ........................................................................................................................... 34
References ............................................................................................................................................. 35
Appendices ............................................................................................................................................ 38
Appendix1:Examplesofinterventiontypes .............................................................................................. 38
Appendix2:Detailedbreakdownofcitizenpanelattendees ..................................................................... 40
Appendix3:Projectmethods ...................................................................................................................... 42
Appendix4:Qualityappraisal ..................................................................................................................... 44
Appendix5:Detailedthematicanalysis ...................................................................................................... 51
Appendix6:Reviewquality ......................................................................................................................... 55
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Executive summaryEachyear,toomanyAustraliansareunabletoworkduetoatemporaryorpermanentinjury,illnessordisability.AmongstOECDcountries,Australiaranks21outof29foremploymentratesamongpeoplewithdisabilitiesrelativetothepopulationandevidenceshowsthatforpeoplewithaworkers’compensationclaim,returntoworkrateshavestagnatedsince2006.
TheobjectivesoftheEmployeeAwarenessandEmpowermentresearchistobetterunderstandtheexperiences,beliefs,andneedsofpeoplewithahealthordisabilityrelatedreasonforworkincapacityandidentifyevidence‑basedinterventionstoempower ‘employees’withahealthconditionordisabilitytouseworkaspartoftheirrecovery.
TheWorldHealthOrganizationdefinesempowermentas:
the process by which people gain control over the factors and decision that shape their lives
Thisdefinitionincludestheprocessbywhichpeoplebuildtheirpersonalattributesinordertoachievetheircapacity.Personalattributescanincludeconfidenceorself‑worth,buildingknowledge,developingcopingmechanisms,orenhancingpersonalskillstomakehealthandwellbeingrelatedchoices.Manyexamplesofsuccessfulempowermentinterventionsandprogramsalreadyexistinthepublichealthfield.
Thestudyaddressesanimportantgapinevidenceonempowermentstrategiesforpeoplewithahealthconditionordisabilitytouseworkaspartoftheirrecovery.Thefindingspresentedinthisreportarebasedonarapidreviewofevidenceonempowermentinterventions;qualitativeresearchtogainafirst‑handaccountoflivedexperiencethatsetsthecontextforwhatneedstobeconsideredwhenaddressingempowerment;andinsightsfromstakeholderfromtherelevantsystemsandsectors.Thisreportprovidesimportantinsightsforpolicymakers,serviceprovidersandsystemownersresponsibleforsupportingpeoplewithillhealthordisabilityandworkparticipation.
Thekeyfindingsfromthisstudyshowsthat:
• employeesaremotivatedtoworkandtheirmotivationisnotabarriertoparticipation–itisnotforlackoftryingthatpeoplehavenotsecuredsuitablework.Peopleareawarethatworkprovidespurpose,self‑sufficiency,stabilityandsocialization.Beingoffworkmakesithardertogetwork,leadstoloneliness,lossofself‑confidence,lossofperceivedcontrolandlossofsocialnetworks.
• employeesfindthebenefitandincomesupportsystemscomplexandoverwhelming,personifiedbya‘onesizefitsall’approachthatleaveslittleroomforflexibilityorempathy.Theyreportalackoftransparencyregardingtheirrights,benefitsandprocesses,significantuncertainty,ineffectivecommunicationbetweenstakeholdersthatisparticularlyproblematicaspeopletransitionbetweensystems,andacontinuousrequirementtoretelltheirstory.Theseexperiencescancontributetoworseninghealthanddelayedrecoveryfortheindividual.
• thereisastrongbeliefamongstemployeesthatemployerslackunderstandingoftheworkabilityofpeoplewithahealthconditionordisabilityandhowtoeffectivelyaccommodatethem.
“Anestimated786,000Australians
areunabletoworkduetoaninjury,illhealthordisabilityandaccessincomesupportfromacommonwealth,state,territoryorprivatesource.”
(Cross-Sector Systems Report, 2017)
“Afurther6.5millionpeople
accessemployerprovidedleaveentitlementsforperiodsofworkincapacitydueto
theirhealth).(Cross-Sector Systems
Report, 2017)
In this report the term
‘employees’referstoindividualsstaying
at,orreturningtowork,orcommencingnewwork(includingtheirfirstjob);withinjuries(psychologicalorphysical),disabilities(cognitiveorphysical),
ordisease
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Anumberofinterventionscanbeusedtoempoweremployeestouseworkaspartoftheirrecoveryincludingmentorship,educationandgoal‑settingapproaches;however,theseinterventionsrequireenablingmechanismstobeinplacebyrelevantsystemsandproviders.
Thisstudyhighlightsthatforempowermentinterventionstobeeffective,willrequireamulti‑dimensionalapproachthataddressesbroaderculturalattitudes,systemimprovementsandworkaccommodationprinciples.
• Cultural change–shiftingbeliefsandattitudestowardsthevalueofgoodworkandinclusion.Cultureandsocialnormsprovidetheover‑archingcontextandmotivationthatmakesindividualinterventionseffective.Itisahighorder‘empowerment’toolthatgoesin‑handwiththeneedforbetteracross‑communityhealth literacy.
• System change–theperceptionsandexperiencesofemployeesofthebenefitandincomesupportsystemsmaybeconsideredharsh,butpresentsaveryrealimpedimenttopersonalempowerment.Reportsshowthatpartsofthesystembycausingsecondaryconditionssuchasdepression.Reportsshowthatpartsofthesystemareoutofstepwithbestpracticeapproachestocustomer‑centricservicingandstreamlinedoperatingprocesses.
• Work accommodation–thereisaneedforemployerstohaveabetterunderstandingandimprovemanagementofthecapabilitiesofemployee’swithaphysicalorpsychologicalcondition.Thisissupportedbytheliteratureandthefindingsfromemployeesandstakeholders.Thisisthepracticalaspectoftheworkexperienceandenablingindividualstoobtain,stayatorreturntoworkisreliantonemployerengagement.
Empoweringpeopletouseworkaspartoftheirrecoveryandwellbeingcanleadtobetterhealthandeconomicaloutcomesforindividuals,theirfamilies,thecommunity,andAustralianworkplaces.Thekeymessagefromthisresearchisthatempowermentisacomplexstrategythatsitswithincomplexenvironmentsandsettings.Effectiveempowermentstrategiesdependsnotonlyontheindividualandtheirabilitytocontrolthefactorsthatshapetheirlives,butalsotheoverallcontextinwhichtheytakeplace.
Health literacyrefers
tothecognitiveandsocialskillswhichdeterminethemotivationandabilityofindividualstogainaccessto,
understandanduseinformationinwayswhichpromoteand
maintaingoodhealth.Healthliteracyiscritical
to empowerment.
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1.0 The project approach 1.1ProjectobjectiveThisprojectaimstouseanevidenceinformedapproachtoidentifyingeffectiveorsuccessfulinterventionstoempoweremployeestostayat,obtainorreturntowork.
1.2 Project approachThisstudyisaninitiativeoftheCollaborative Partnership to improve work participation(theCollaborativePartnership)andhasbeenledbyEML.TheCollaborativePartnershipisanationalalliancebetweenthepublic,privateandnot‑for‑profitsectorsandisfocusedonimprovingworkparticipationofAustralianswithatemporaryorpermanent,psychologicalorphysicalhealthconditionordisability.
Thereislimitedcurrentunderstandingofthebeliefs,perceptionsandattitudesofpeolewithatemporaryorpermanentinjury,illnessordisabilityandtheirexperienceofpeoplewithatemporaryorpermanentinjury,illnessordisabilityandtheirexperienceofnavigatingthevariousbenefitandincomesupportsystemsinAustralia,andinteractionswithemployers,andrelevantserviceproviders.Thisprojectusedqualitativeresearchmethodologytoinquiredeeplyintospecificexperiences,withtheintentionofdescribingandexploringmeaningthroughnarrativedata,bydevelopingthemesexclusivetothestudyparticipants.Whilethequalitativeapproachprovidesuswitharichunderstandingofpeople’sexperience,itdoesnotallowustoinferorgeneraliseabouttheexperienceofthosewhodidnotparticipateintheresearch.
Theprojectisinformedbyarapidliteraturereview,citizenpaneldiscussionandindividualinterviews,andexpertstakeholderinterviews.
RapidLiteratureReview
TheRapidLiteratureReviewwasfocusedoninterventionsthathavebeenproventoencourageemployeestostayat,obtain,orreturntowork.
ItwasbasedonthePICOframework:
• Population:Individualsstayingat,orreturningtowork,orcommencingwork(includingfirstjob);withinjuries(psychologicalorphysical),disabilities(cognitiveorphysical),ordisease(e.g.cancer).
• Interventions:Empowerment(unlikelytoexist),activeparticipation,navigation,self‑management(insurance),healthliteracy,schemenavigation,workplanning,problemsolving,supportmechanisms,self‑managementsupport,self‑sufficiency,socialsupport(e.g.communityinvolvement,familystability),andactiveinterventions.
• Comparison:Nospecificcomparisongroupwasset
• Outcomes:Workstatus(returntowork,stayatwork,commencenewwork),feelingofempowerment,attitudes,needs,andmotivations.
Thereviewincludedinternationaldatacoveringthelastfiveyearsandyielded71relevantarticles.
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CitizenPanelandInterviews
ThepurposeoftheCitizenPanelandinterviewswastounderstandtheattitudes,motivations,beliefs,experiences,drivers,barriersandneedsofemployeesnavigatingtheworkdisabilitysystem.
Atotalof23citizensparticipated–10fortheCitizenPaneland13inindividualinterviews.
Recruitmentensuredparticipantrepresentationacross:
• workstatus:obtaining,stayingatorreturningtowork.
• claimtype:physicalandpsychological.
• healthconditions:Injuries(psychologicalorphysical),disabilities(cognitiveorphysical),ordisease.
• crosssectorexperience:workers’compensationandmotoraccident,disabilitysupportandsocialwelfare;superannuationorlifeinsurance.
ThelineofenquirywasinformedbytheresultsoftheRapidLiteratureReview.
Participant Profile
10respondentswereinvolvedintheCitizenPaneland13participatedinone‑on‑oneinterviews.ThedistributionofparticipantsacrosstheabovecategoriesissummarisedbelowinTable1
Table1:ParticipantsinCitizenPanelandInterviews
Job status Injury type Workers’ Compensation
Motor Accident
CompulsoryThirdParty
Disability Support Pensions
Superannuation DE Services
Time in the ‘system’
Amajorityrepresentationacrossthree,fourandsixthmonthswithafewlongtail(e.g.+52weeks).
Obtaining work
Physical 1 1 2 1
Psychological 1 2 2 3
Returning to work
Physical 3 1 1
Psychological 1
Staying at work
Physical 1 1 1
Psychological 1
2 5 7 5 4
AmoredetailedbreakdownofparticipantscanbeseeninAppendix2.
Thesamplewasrecruitedincollaborationwithapanelrecruiterthatspecialisesinsocialissuesresearch.Wealsodistributedmaterialadvertisingviapartnerstakeholdersfromspecificsystemswherepossible.
Thisstudyrecruitedacrossthedifferentsectorsof:Motoraccident:(22%);DisabilitySupportPensions(DSP)(30%);Superannuation:(22%);DisabilityEmploymentServices(DES):(17%).Therecruitmentofindividualsfromtheworkers’compensation(9%)sectorwasmorechallenging.Nearlyhalfofourparticipants(43%)werethosewithpsychologicalclaimsorconditions.Oneareaofrecruitmentdifficultywasforindividualstryingtostayatwork,whichonlycomprised17%ofthefinalsample,comparedto‘Obtainingwork’(57%)and‘Returningtowork’(26%).Additionally,wefoundthatindividualsfromthepsychologicalprofileweremuchmorelikelytobelookingfornewwork(80%)thanreturningtowork(10%)orstayingatwork(10%).
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Workers’compensationwastheleastwellrepresentedinthestudysample(9%),whereasitisoneofthelargersystemsaccordingtothetheCross‑SectorProjectReport(n=156,000;2%).Theunderrepresentationofparticipantsfromtheworkers’compensationcategorymaybepartiallyexplainedbyemployeesinthiscategorypreferringnottodiscusstheirclaimexperiencespublicly.
TherewasanalmostevensplitbetweeninterviewsconductedbyphonecomparedtoattendeesattheCitizenDialoguePanel:eightscheduledinterviewsandfiverescheduledfromindividualswhodidnotparticipateinthecitizenpanel.Six(46%)oftheseinterviewswerewithindividualsfromthe‘psychological’profile,six(46%)werefromthe‘physicalinjuriesorconditions’profile,andone(8%)wasfromthe‘diseaseorillness’profile.
Therearetwospeculationsthatarisefromthedata:peoplewithpsychologicalconditionsorlearningdisabilitiesseemmorelikelytobeoutofworkandlooking,ratherthaninworkandtryingtogetbackorstaying;andinterviewsmayhavebeenfavouredforaccessibilityorprivacyreasons.Weareunabletodetermineifthesespeculationsaretrue,orwhetherthereareotherparticipantmotivationsthataredrivingthesenumbersandparticipationrates.
ExpertStakeholderInterviews
Tenone‑on‑oneinterviewswereconductedwithstakeholdersfromacrossthesectorsandsystemstounderstandtheirperspectiveofthebiggestchallengesinempoweringemployeestoobtain,stayatorreturntoworkandcapturetheirinsightsintowhatinterventionswouldbeeffectiveandwhen.
Interviewparticipantsrepresentedorganisationsresponsiblefordisabilityservices,workers’compensation,motoraccidentcompensation,employeerights,insuranceschemesandgovernmentwelfareandemploymentservices.
1.3HowtointerprettheresearchfindingsWhilsttheintendedoutcomeofthisstudyistoidentifywhatinformationandsupportemployeesneedtousegoodworktofacilitatetheirrecoverythrough‘empowerment’and‘self‑management’,thesymbioticnatureofemployees,employers,healthcareprovidersand‘system’managersinevitablyleadstocommentaryonhowthesecomponentpartsneedtochangetofacilitaterecovery.Importantpointstobeawareofinreadingthisreportinclude:
• thereareclearsynergiesbetweentheoutcomesoftheRapidLiteratureReview,CitizenPanel,CitizenandExpertStakeholderInterviewsbutthe‘solutions’maybedifferentlyexpressed
• withtheRapidLiteratureReviewfocusingoninterventionsthathaveproventobeeffective,thekeyrecommendationsinthisreportareledbyitsevidenceandconfirmedbythequalitativefindingsfromtheemployeeandstakeholderresearch
• purposeofthisstudyistoexplorehowitmightbepossibletobestsupporttheendeavoursofpeoplewithahealthconditionordisabilitytofacilitatetheirownrecoveryanddoesnotinanywayimplythatthestudyparticipantswerenotalreadytryingtheirbest
• thestructureoftheresearchactivitieswasto:conductarapidreviewoftheliteraturethatshowsdemonstrablesuccessfulorunsuccessfulinterventions;andusetheoutputsfromthereviewtostructurethesubsequentqualitativecomponents.Thisreportwillfollowthisstructure,usingtherapidreviewresultsasaframeworkfordiscussingwaystosupportindividuals’recoveries.
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2.0 Findings2.1RapidreviewresultsArapidliteraturereviewwasundertakentoidentify,evaluateandsynthesisepublishedliteratureinvestigatingempowermentinterventionstohelppeoplereturntowork,stayatworkorcommencenewworkafterinjury,diseaseanddisability.
Rapidreviewsareanemergingmethodofefficientlysynthesisingresearchevidenceinhealthpolicyandothersettingswhereabroadoverviewofresearchevidenceisrequiredinashorttimeframe.Unliketraditionalsystematicliteraturereviews,rapidreviewsfocusonsynthesisedresearchevidence.Cautionneedstobeappliedwheninterpretingrapidreviewfindings,asmorecomprehensivereviewapproachesmayelucidatefurtherinformationandinsights,whichwouldinfluencereviewinterpretationandconclusions(Khangura,Polisena,Clifford,Farrah,&Kamel,2014).Therefore,systematicreviewsremainthedefinitivemethodofliteraturereview,andwerecommendthatsystematicreviewsareundertakenwheneverpossible.
Theliteraturereviewyieldedatotalof3549citations,aftertheremovalofduplicates.Followingscreening,23systematicreviewswereidentified.AreascoveredbythereviewsarepresentedinAppendix3anddetailedinformationregardingthequalityappraisalarepresentedinAppendix4.
TheRapidReviewidentifiedeightinterventionstypes Education
Goalsetting
Mentorship
Person‑centredplanning
Problemsolving
Strength‑basedinterventions
Support
Wordaccommodation
Interventionsarechartedaccordingtowhethertheyimproveoutcomesandthequalityofthatevidence.Outcomevariablesarepresentedinparentheses.Itispossiblethataninterventiontypeisevaluatedagainstseveraloutcomessuchas‘Support(empowerment)’vs.‘Support(RTW)’.Thedatapointscanonlyvaryalongthreepossibleevidencequalityvalues(‘weak’,‘mixed’,or‘strong’)andthreepossibleevidenceofeffectvalues(‘noevidenceofeffect’,‘inconsistentevidenceofeffect’,or‘evidenceofeffect’),foratotalofninepossiblepositionsonthegraph.Becausedatapointswiththesameevidencequalityandevidenceofeffectvalueswouldsitatoponeanother,wehavefloatedthedatapointsaroundeachpossibleposition.
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Evidenceofeffect
Evid
ence
of e
ffect
Evidence of effect
Evidence quality
Inconsistent evidenceofeffect
Weak Mixed Strong
Noevidenceofeffect
Support(RTW) •
Goalsetting(workparticipation) •
Mentorship(employmentoutcomes) • Goalsetting(empowerment) •
Mentorship(empowerment) •
• Support(employmentoutcomes)• Problemsolving(RTW)
Wordaccommodation(RTW) • Wordaccommodation(empowerment) •
• Wordaccommodation(workparticipation)
• Support(Empowerment)• Person‑centredplanning(empowerment)
• Strength‑basedinterventions(empowerment)
• Education(RTW)
• Person‑centredplanning(employmentoutcomes)
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2.2InterventionrankingThequalitativeinterviewscapturedtheperspectiveofemployeesandexpertstakeholdersrelativetotheeightinterventionsidentifiedintheRapidLiteratureReview,aswellasleadingtoanadditionaltwointerventionterritoriestobringthetotalpotentialsuiteto10.
Thischartsummariseswhatwasfoundthroughevidenceandcomparesittoemployeeandstakeholderinput.
Table2:summaryofevidenceoninterventions
Intervention Evidence Employees Stakeholders
1. Work accommodation
2. Support
3. Mentorship
4. Goal setting
5. Person-centred planning
6. Problem-solving
7. Strength-based interventions
8. Education
9. Cultural change
10. System change
Key:
EvidenceColumn:
• highqualityandclearlypointstoaneffectiveintervention
• evidenceiseitherofmixedqualityorcouldn’tagreeonwhethertheinterventionworkedornot
• evidenceisofahighqualitybutnotclearlyabletodemonstrateaneffectoftheintervention
EmployeeandStakeholdercolumns:
• clearlyindicatesupportfortheintervention
• indicatesmostfavouredapproach
• didnotindicatesupportforanintervention
• hadnoopinionofaninterventionbecausetheyhadno/limitedexperiencewithitorfocusedonotherinterventions
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2.3ResponsestotheinterventiontypesEmployeeresponsestothefollowinginterventioncanbecategorisedintokeythemesof:
• informationandprocess–whatisavailabletomeandwhodoIspeakwithtogetit?”
• empathyandunderstanding–fromemployers,supportproviders,andthegeneralpublic
• degradationofmentalhealthandwellbeing–thisisanunderpinningthemetothosenotedabove,employeessaythisisunderprioritisedbysupportproviders.
Werefertothesewhendiscussingtheemployeefeedbackonthedifferentinterventions.MoredetailsareprovidedinAppendix5.
1. Work accommodation
Evidence Employees Stakeholders
What is the problem being addressed?
Workplaceaccommodationisaboutmakingchangestotheworkplaceorthewaythatworkisdonetoallowallpeopletheopportunitytoworkaccordingtotheircapacity.
What is the approach?
Workplaceaccommodationincludeschangesinworkschedulesandworkorganization,developmentoftheworkenvironment,useofassistivetechnologies,assistanceofotherpersons,andchangesincommutingtoandfromwork.Workplaceaccommodationscanfocusonasinglepersonorawholeorganisation.
What does the evidence say?
Fivereviewsonworkaccommodationwereidentifiedinthesearchstrategy.Onereviewrevealedthatworkplaceaccommodationsarerare.Whenworkplaceaccommodationsareused,themostcommontypeisflexiblescheduling/reducedhours.Thedirectcostsassociatedwithworkplaceaccommodationsareoftenlow.
Onereviewfoundmoderateevidencethatworkplaceaccommodationspromoteemploymentparticipation,butlowevidencethatworkplaceaccommodationsadministeredbycasemanagersincreasesreturntowork.Thisisnottosaythatworkplaceaccommodationadministeredbycasemanagersislesseffective,butthatthestudiesevaluatingworkplaceaccommodationsadministeredbycasemanagersareoflowquality.Weshouldbecautiousininterpretinglowqualityevidence.
Therewasstrongevidenceformulti‑domaininterventions(acombinationofhealth‑focusedinterventions,servicecoordinationinterventions,andworkmodificationinterventions)thatincludeworkplacemodificationsinreducingtimeawayfromwork.Therewasalsostrongevidencethatmulti‑facetedinterventionsareineffectivewithoutworkplaceaccommodations.
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What do stakeholders say?
Thisdirectquoteprovidesagoodsummaryofstakeholderperspectivesonworkaccommodationanddemonstrateshowstronglytheysupporttheroleoftheemployerinfacilitatingworkcapacity:
‘Employers play such a pivotal role in people trying to stay at work. Government needs to educate them more in keeping their employees healthy.’
Specificfeedbackfromstakeholderscoversanumberofthemes:
• Theneedformanagementtobesupportive–thiswasconsistentlyraisedinrelationtoreturntowork.Thedefinitionof‘management’goesbeyondtheseniormanagerandtakesinthenotionthattheemployees’supervisorandcolleagues–thepeopletheyusedtoworkwitheveryday–havethebiggestroletoplay.‘Support’includespro‑active‘reachingout’bytheworkplacetotheemployeeandthatiftheemployeeistheonetaskedwithreachingouteverytime(oftenforlittleresult),thereisaconsequentialnegativeimpactontheirconfidence.Theemployerneedstobethe‘firstmover’.
• Stigmaanddiscrimination–seenbystakeholdersasamajorbarriertoworkaccommodation.Thiscanbeeitherconsciousorunconscious(commentssuchas‘theyshouldhavereturnedtoworkbynow’)andrelatebothtoobtainingwork(‘whyhasn’tthispersonworkedfortwoyears’;oracquireddisabilityandtheassociatedsocietalperceptualbarriers),aswellasforthosestayingatorreturningtoworkespeciallyforthosewithamentalhealthcondition.Stakeholdersregardashighlyimportanttheneedtocreateawarenessandunderstandingthatpeoplecanhaveadisability,gothroughaninjuryorillnessandstillhavecapacitytowork.
• Jobmatch–stakeholderssuggestthattherearetoolsalreadyavailablethatshouldbeusedto‘jobmatch’forexample,personalitytestscanbeusedmuchbetterforjobmatching.
• Recruitmentmethods–thosebornwithorhavingacquiredadisabilitydonothavethesameopportunitiestoworkouttheircareerdevelopmentorworkexperienceastheirnon‑disabledpeers.Eventhewayemployerstalkaboutandrecruitmakesithardforpeoplewithadisabilityforexample,:itmaynotbeclearfromthejobdescriptionwhethertheycandothejob;onlineapplicationsmaybeanimpedimentiftheycan’tuseamouseorhavevisualimpairments.Thosewithadisabilityarenottheonlyonesimpactedbyrecruitmenttactics–recruitmenttoolssuchas‘massinterviews’canbedauntingforsomeonewhoislackingconfidence,hasasociallyimpactinghealthcondition(e.g.someonewithAsperger’smaybeageniusITtechnicianbutisunabletocommunicate/sellthemselves)orhasbeenoutoftheworkplaceforsometime;theycanbedeterredfromevenapplyingforthejobinthefirstplace.
• Lackofemployeeunderstandingofwhattoexpectfromtheiremployer.
• Drivenbyrisk–Employersareriskadverseinacceptingemployeeswhoarenot100%well.
• Thereisalsoaneedtoempoweremployers–evenanemployerwillingtoemployeesomeonewhorequiresamodifiedworkenvironmentcanbedisempoweredthroughtheirsimplelackofknowledgeofhowtogoaboutitorwhatwillberequiredofthem.
What do employees say?
Thisinterventionaddressesthethemeofempathy and understanding.
Theworkplaceaccommodationsthatemployeeshadmostexperiencewithwereflexibleschedulingofworkhoursandswitchingtolightduties.Employeesnotedthattheseweretemporarysolutionsandtheirsuitabilityvarieswithindividuals’conditions.Othersnotedthatachangeindutiescanbetraumaticbecauseitmeansswitchingfromworkthatyouhavebuiltacareerontosomethingdifferent.Therearecleardifferencesinthereactionsofpeoplewhohavenotbeenoutoftheworkforceforverylongversussomewhohadbeenoutofworkforasignificanttime–thelongersomeoneisoutofwork,themorewillingtheyaretodoanything.Forinstance,somesaidtheywouldn’tbehappywithlightdutiesforthelongterm,whereasotherswhohadbeeninjuredforlongersaidthattheywouldhappilydoanythingwithintheirskillset.
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Gradedreturntoworkwasseenasanimportantformofworkaccommodation.Oneemployeecommentedthatsomeworkplaceaccommodationsarestraightforwardandeasytosecure,whereasothersaremorechallengingwhentheindividual’shealthconditionordisabilityislessvisible.
Finally,employeesmentionedthatjobsexistbuttherearefewemployerswhoarewillingtoaccommodatethosewithhealthconditionsordisabilities.
Employeesreflectedthestakeholderideathattheiremployerreachingouttothem,evenifthatisjusttheoccasionalcheckintoseehowtheyare,hasademonstrableimpactontheiremotionalwellbeingandconfidenceintheirfuture.ThiswasdemonstratedquiteclearlyintheCitizenPanelbyoneemployeewhoseemployerhadmaintainedregularcontactwiththem,andtheiremotionalwellbeingcomparedtootherpanelparticipants.
What has helped/could help?
• Flexibilityandunderstandingonthepartoftheemployer.Aforumforemployerswhoareopentoaccommodatingthosewithdisabilitytoadvertisejobpositions.
• StandardsestablishedforEmployers.
• DisabilityConfidentRecruiter.Anorganisationshouldhavetogothroughaprocessthatmakesalltheirsystemsaccessibleandinclusive.
• Theneedtoremoveemployerandculturalstigmaandbarriers–whetherconsciousorunconscious–andcreateawarenessofthebenefitsof‘goodwork’.
• Educatingemployersongoodjobdesign–howtodesignthejobtohavetheappropriatebreadthanddepth.Thatmeansclarity,authority,delegationofdutyanddecision‑makingautonomy,variationoftask–goodwork.
• ‘Onthejob’trainingforintellectuallyorphysicallydisabled–ratherthantertiaryeducation.
• Policiesthatexplainwhathappensandcommittodoingwhateverisreasonableifanemployeecannotwork/hastochangetheirworkingcircumstancesandguidancethathelpsemployeesunderstandhowtorespondiftheyareexperiencingdifficulties.
• Job coaches.
2. Support
Evidence Employees Stakeholders
What is the problem being addressed?
Itcanbedifficulttomanageyourhealthconditionordisabilityifitimpairsyouphysicallyand/ormentally.Thatmeansitcanbeespeciallydifficulttofindorgetbacktowork.Supportisaboutmakingjob‑seekingandreturntoworkeasierforthosewithahealthconditionordisability.
What is the approach?
Supporttakesmanydifferentforms,sometimesit’saboutspeedinguptheprocessofgettingsomeoneintonewwork,othertimesit’sabouthelpingpeoplestayinexistingwork.Thelatterformissometimesreferredtoasa‘place‑train’modelandIndividualPlacementandSupport(IPS)isthemoststructuredandwell‑definedformofthisapproach.Itisbasedonthephilosophythatanyoneiscapableofgainingandmaintainingcompetitiveemployment,providedtherightjobwithappropriatesupportcanbeidentified.Otherformsofsupportedemploymentcanincludecoachingandeducation.Supportedemploymentmayalsobeaugmentedforexamplewithadditionalrehabilitationorskillstraining.
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What does the evidence say?
Evidencefromninereviewswaslargelyinfavourofsupportapproachesforimprovingempowerment,workparticipation,andreturntowork.Individualplacementandsupportprogramsareaneffectiveinterventionacrossavarietyofcontextsandeconomicconditionsandareperhapstwiceaseffectiveastraditionalrehabilitationprogramssuchas‘train‑place’modelsforgettingpeopleintowork.Theevidencerangedfromtentativetostrongforaugmentedsupportedemployment.Therewasmoderatetostrongevidencethatcoachingandeducationsupportimprovesreturntoworkandsicknessabsenceoutcomes.Notallreviewsarrivedatthesameconclusion–somefoundinsufficientevidenceforeffectivesupportstrategiesinobtainingandmaintainingemployment.
What do stakeholders say?
Stakeholdersinrolesofhelpingpeoplefindsuitableemploymentbelieve‘motivation’and‘confidence’isacriticalfactorofbeingabletofindwork.Theideasthatstakeholdersputforwardconsistentlywenttothesetwothemes:
• Training,retraining,reskillingtogain,retainorre‑enterwork.
• Motivationalinteractiontrainingtoimproveconfidence.
• Toolsonhowtogetajob–resumewritingetc.
What do employees say?
Thisinterventionaddressesthethemeofdegradationofmentalhealthandwellbeing.Employeesbelievetoomanysupportprogramsfocusonphysicalsupportandskillstraining–therearefewprogramsaimedatsupportingmentalhealthduringrehabilitationand/orthejobsearch.Accesstorelevantsupportprogramsisalsosometimesdifficult,withoneemployeesaying
“You need to make yourself look twice as bad in order to get half the help you need”
Thissentimentwasalsoechoedbystakeholders.
What has helped/could help?
• Training,retraining,reskillingtogain,retainorre‑enterwork.
• Motivationalinteractiontraining.
• Toolsonhowtogetajob–resumewriting,interviewpractice.
3. Mentorship
Evidence Employees Stakeholders
What is the problem being addressed?
Navigatingdisabilitysupportsystemscanbeafrustratingandlonelyexperience.Mentorshipaddressesbothproblemsofhandlingcomplexityandofdoingitalone.
What is the approach?
Mentorshiprelationshipsinvolvetheprovisionofongoingguidance,instruction,andencouragementfromamentorwithexperiencetopromotecompetenceandemploymentparticipationonthepartoftheindividual.
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What does the evidence say?
Tworeviewssuggestthattheevidenceregardingmentorshipismixeddependingontheoutcomemeasure.Mentorshipmaybeeffectiveforimprovingemploymentorwork‑relatedoutcomes,thoughthequalityoftheevidenceislow.However,evidenceregardingtheeffectivenessofmentorshipinimprovingempowermentisinconsistentandalsooflowquality.
Someevidencesuggestedthatmentorshipcouldincreasedepressioninindividuals.Consideringthatamentormaybeapersonwithasimilardisabilityastheindividual,developingarelationshipwiththismentormayhighlighttheindividual’sownhealth‑relatedproblems.Anotherconcernisthatmentorsmayofferadviceoutsidetheirdomainofexpertise.Mentors,therefore,maybeworkplacementorswhocanhelptheindividualintheiremploymenttransitions,lifementorswhocansupporttheindividualsocially,orhealthmentorswhomaysharesimilarhealthexperiencesastheindividual.
What do stakeholders say?
Stakeholdershighlightthata‘lossofconfidence’startsimmediatelyandgrowsthelongersomeoneisawayfromwork.
Whilstinnowaysuggestingtheyshouldbecomeanominatedmentor,stakeholdersseetheclaimsmanagerasbeingabletotakeastrongerroleinencouragingtheircustomerstowellbeingandwork.Stakeholdersareconcernedthisiscurrentlylimitedbytheprocessdrivennatureofschemesthattypicallydisempowerclaimsmanagersfrombeingabletomakejudgementsandabilitytoformvaluablerelationshipswithclientstohelpmotivatethem.
What do employees say?
Mentorshipapproachesspeaktothethemesofinformationandprocess,anddegradationofmentalhealthandwellbeing.Mentorsorsupportgroupswereoftentheonlywaythatemployeesfelttheycoulddiscoverwhatservicestheywereeligiblefor.Mentorshipswereofteninformalrelationshipsorvoluntaryinnature–employeesvoicedconcernabouttheover‑relianceonvolunteernetworks.Mentorsalsoprovidedsocialandemotionalsupportasmentorsoftensharedsimilarexperiencesorsituationstotheemployee.
What has helped/could help?
• MakeClaimsManagersinto‘relationshipmanagers’andcreateabespoketrainingprogram.
• Useadvocacyorganisationsthatareintouchwiththeneedsoftheirspecificgroupe.g.spinalcord associationasacentralforum.
• UseBehaviouralEconomicstheorytorestructurelanguagethatispositive,constructiveandfuture focused.Introducethenotionofre‑engagingwithlife(notjustwork).
• Developawebplatformthatcontainsrelevantservicesandmotivationaltools.
4. Goal setting
Evidence Employees Stakeholders
What is the problem being addressed?
Goalsettingapproachesareaboutstagingrehabilitationorjob‑seekinginordertopreserveandenhancemotivation.
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What is the approach?
Thepracticeofsettinggoalsisthoughttoinfluenceindividuals’feelingsofempowerment.Bythoughtfullysettingmeasurablegoals,individualscantrackprogressintheirrehabilitationorreturntowork.Successfullymeetingthesegoalsisthoughttoincreaseaperson’sbeliefintheirabilitytoachievefurtheremployment‑relatedgoals(self‑efficacy).
What does the evidence say?
Tworeviewslookedattheeffectofgoal‑setting.Goal‑settingapproachesmaynurtureempowerment,althoughthequalityofevidencewasmixedbutevidenceforimprovingworkparticipationandoccupationalperformancewasmixed.Itmightbethatgoal‑settingmaybeusefulforrehabilitationbutnotnecessarilyhelpfulwithemployment.
What do stakeholders say?
Stakeholdersbelieveoutcomesarebetterwhendealingwithsomeonewhounderstandsthechoicestheyhaveandwhatsupportcanbeputinplacetoachievethose.
Theyalsosupporttheideaofgettingtheemployeetocommittothingstheywilldo‘onestepatatime’–dependingonthecircumstancesoftheperson,agoalandachievementmaybeassimpleasawalktotheendoftheroad,makingamealortalkingtosomeoneinashop.
What do employees say?
Goal‑settingapproachesaddressthethemeofdegradationofmentalhealthandwellbeing.Employeesseegoal‑settingasanimportanttoolinachievingtheiremploymentgoals.Goal‑settinghelpswiththementalhealthaspectofrecoveryaccordingtoemployees.Achievinggoalshelpsalleviatefeelingsofhelplessnessbydemonstratingwhattheindividualisstillcapableofdoing.
What has helped/could help?
• Whileemployeesvaluegoal‑setting,theybelievethatotherthingsneedtobedonefirstbeforegoal‑settingstrategiescanbeeffective.Forexample,somethinkthatanoverhaulofcasemanagementactivitieswouldbenecessarybeforegoal‑settingstrategiescouldbeeffective.Employeeswantsupportprovidersandcasemanagerstobemoreinvolvedintheircaseandseesharedgoal‑settingasapotentiallyeffectivemeansofdoingso.
• Improvinghealthliteracyindirectlyimpactsgoal‑setting.Healthliteracyincludestailoredinformationthathelpspeopleunderstandwhatwillhappenthroughouttheirrecoveryjourney,howtogetthesupporttheyneedandhelpsthemidentifywhatispossible.
• Theuseoffuture‑focusedlanguageisanaidtogoal‑setting.
5. Person-centred planning
Evidence Employees Stakeholders
What is the problem being addressed?
Employeesoftenfindthattheservicesandsupportprovidedtothemarenotsuitedtotheirneeds.Person‑centeredplanningaddressestheproblemofindividualsuniqueneedsfallingthroughthecracksforexample,aspeopletheymovebetweendifferentbenefitandincomesupportsystems.
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What is the approach?
Thereisanongoingtransformationofdisabilityservicedelivery,progressingfromasystem‑centeredapproachtoaperson‑centeredapproach.Underaperson‑centeredapproach,supportandservicesaretailoredaroundtheindividualandtheiruniqueneedsratherthanenforcingaone‑sizefitsallapproach.Person‑centredplanningisanapproachaimedatachievingindividualisedsupportforpeoplewithdisabilityandtreatingthemwithdignity,compassion,andrespect.
What does the evidence say?
Onereviewfocusesonperson‑centredplanning.Therearesmall‑scalesuccessesofperson‑centredplanningapproachesimprovingempowerment(i.e.communityandlifeparticipation).Theevidenceofthesesuccesses,however,isoflowqualitysocautiousinterpretationisadvised.Theevidenceforperson‑centredplanningimprovingemploymentoutcomesisinconclusive.
What do stakeholders say?
‘Schemes work in streams. But that doesn’t work for the client.’
Stakeholdersverymuchsupporttheideaofaperson‑centeredapproachwithsomealreadyachievingresultsintheirownsystemwiththisapproach.Stakeholderfeedbackwasthat‘thesystem’makesthepersontheproblemandthewayitisrunassumesthesystemknowsmoreabouttheemployeethattheindividualknowsaboutthemselves–‘wedothingsTOpeople’.
Stakeholdersareconsciousofhowmuchbeingpartof‘thesystem’detrimentallyexacerbatestheperson’ssituationandhowdealingwiththesystemcanactuallyleadtosecondarypsychologicalconditions.Thetypesofbarrierspeoplefaceincludesituationssuchas:
• wantingtoreturntoworkbutnotbeingallowedto–‘theywon’tletme’
• notknowingwhoisresponsibleforwhat,whatresourcesareavailable,orwheretogoatwhatpointintimeintheprocess
• long,drawnout,confusingsystems– ‘even if you know what you’re doing its hard and demotivating’
• theneedtorepeattheirstorymultipletimesandre‑provetheircasewhenmovingbetweenjurisdictionsoriftheygetsomeworkbutendupneedingtogoonapensionagain.
Theuniversalopinionofstakeholdersisthattheemployeeneedstobeputatthecentreoftheclaimandthatitisimportanttheyareheardandunderstood.
‘Get them to identify what they need and co-design their journey. If they co-own the way forward, they will be better engaged, more likely to make a success of the plan and less likely to fall back into the compensation system once they’re working’.
What do employees say?
Person‑centeredplanningaddressesthethemesofinformation and processandempathyandunderstanding. Employeeswouldwelcomeanincreaseinperson‑centeredplanningapproaches.Theysaywhilethecurrentapproachofone‑size‑fits‑allmayprovideabareminimumlevelofsupport,employeesoftenneedmorenuancedunderstandingfromsupportproviders.Theeffectofaone‑sized‑fits‑allapproachleavesemployeesfeelingignored,withoneemployeesaying:“… but it’s not person-focused, they’re indifferent and that is what breaks people”.Employeesalsoexplainthattherelianceonaone‑size‑fits‑allsystemhasledtoafeelingamongemployeesthatsupportprovidersassumeallclientsarecheatingthesystem.
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What has helped/could help?
• Employeessaidthataperson‑centeredapproachprobablyrequiresakeycontactorcasemanager,andthesuccessoftheapproachreliesheavilyonthequalityofthiskeycontact.Anotherpossiblebarriertoeffectiveperson‑centeredapproachesreliesontheindividual’spersonalmotivation.Someoftheemployeeswespoketosaidtheywouldratherbetoldwhattodobyexperts.Otherssaidthattheydidnotwanttositinthedriver’sseatbecausetheybeeninthedriver’sseatforyearsandgotnowhere.
• Betterpathwaysbetweensystem–thatincludescommonforms,commonprocesses,commonlanguage,commonstandards(e.g.forclaimsmanagers).
• Simpleaccessibletoolspeoplecanuseandunderstand.
• Stakeholderssuggestarecognisedleadertoachievecommonagreementacrossthevariousjurisdictions.
• Atriagesystemeitherinthesamemannerasa‘triagenurse’thathelpsguidepeopletotherightservices,oranevenbiggersuggestionofauniversaltriagesystembringingalltheexpertstogether–onestopshopsourceofmedicalandjobexpertsincludingwellbeing,doctors,psychologists,commonlawandarelationshipmanagerlinksdirectlytothese.
• Providerpartnerships.Createpartnershipwithhealthprovidersallcontributingtotheindividualemployeeplan.
6. Problem-solving
Evidence Employees Stakeholders
What is the problem being addressed?
Disability,injury,andillnesscancausechronicstress,whichcanbemanagedbyhelpingindividualstochangehowtheyapproachtheirdifficulties,andgainskillstocopeeffectivelywithstress.Problem‑solvingapproachesareaboutgivingindividualsatoolkitformanagingcondition‑relatedstress.
What is the approach?
Duringthelastdecade,therehasbeenanincreaseinthenumberofstudiesthathaveexaminedtheeffectivenessofinterventionsthatincorporateteachingproblem‑solvingskillstoworkerswhoarereceivingdisabilitybenefits.Theseskillsareaimedatenablingthemtosolvework‑relatedproblems.Evidencesuggeststhattheseskillshelptodevelopasenseofcontrolregardingstressors.Inturn,thiscanmoderatetheeffectsofworkstressorsthatcouldcontributetodisabilityandillhealth.
What does the evidence say?
Threereviewswereidentifiedonproblem‑solving.Thereviewssuggestedthattheseinterventionsshowmostpromiseforpartialreturntowork,butnotsoforreturntofullduties.Problem‑solvinginterventionsalonemaynotbeenoughtoreducesickleavebutacombinedproblem‑solvingandatherapyinterventionsuchas,cognitivebehaviourtherapydidhavesignificanteffectontotalsickleavedays.Otherevidencewasmixed.
What do stakeholders say?
Therewasnodirectreferencefromstakeholdersbutimprovinghealthliteracywasamajorouttakefromthestakeholderinterviewsandthisgoessomewaytothenotionofproblemsolving.
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What do employees say?
Problem‑solvingapproachesaddressthethemeofdegradation of mental health and wellbeing.Employeeshadlittletosayregardingproblem‑solvingapproaches.
7. Strength-based interventions
Evidence Employees Stakeholders
What is the problem being addressed?
Asuddenchangeinhealthcanincreasefeelingsofhelplessnessandvulnerability.Strength‑basedinterventionsareaboutincreasingempowermentbyfocusingontheindividual’sstrengths.
What is the approach?
Qualitiessuchasself‑efficacy,socialproblem‑solving,senseofpurpose,empathy,humour,resilience,andhopearealltargetedbystrength‑basedapproaches.Strengthscanbeconsideredatthepersonallevel(self‑efficacy)orattheinterpersonallevel(positivecaringrelationships),andtheapproachemphasizesthateverypersoncanbuildameaningfulandsatisfyinglifewithafocusontheirstrengths.
What does the evidence say?
Wefoundonereviewthatconsideredstrength‑basedinterventions.Theresultssuggestthatastrength‑basedapproachmayimproveempowerment(e.g.self‑esteem,self‑efficacy,senseofhope)buttheevidencequalityisquestionable.Therearenotenoughstudieswithstrongmethodologytoconcludethatstrength‑basedapproacheswork.
Additionally,thereisdifficultyisolatingtheeffectofstrength‑basedapproachesastheywereoftenasingleelementwithincomplex,multifacetedinterventions.Inthecaseofseverepsychologicalsymptomologyforexample,suicidalideation,cliniciansarecautionedagainstusingonlyastrength‑basedapproachcompletelyisolatedfrommedicaltreatmentapproaches.
What do stakeholders say?
Thelongerapersonisin‘thesystem’,thegreaterthelossofconfidenceandtheharderitistorebuild.Oneofthestakeholdersprovidesmotivationaltrainingfortheirclientsandothers,whilstnotusingaformal‘motivational’system,traintheircustomerinterfaceteamsinpositivereinforcementskills.
What do employees say?
Strength‑basedapproachesaddressthedegradation of mental health and wellbeing.Employeeshadlittletosayregardingstrength‑basedapproaches.
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8. Education
Evidence Employees Stakeholders
What is the problem being addressed?
Understandingaconditionisanessentialfirststepinrecovery.Educationisabouthelpingindividualstounderstandtheirconditionandnavigateissuesthatrestricttheirabilitytowork.
What is the approach?
Educationinterventionsseektoinformindividualsaboutthesideeffectsoftheirconditions,aswellastechniquesforcopingandmanagingstress.Mostinterventionsusesomeformofcounsellingtoaddressparticipants’disease‑relatedanxietiesandprovideinformationonthecausesandcourseoftheirconditiontodispelmisconceptions.Thesearesometimesreferredtoas‘psycho‑education’approaches.
What does the evidence say?
Tworeviewsevaluatededucationapproaches.Educationmightbeusefulforrelievingcondition‑relatedanxietythoughthequalityofevidenceislow.Evidenceisunabletoshowthateducationhasabeneficialeffectonreturntoworkratesandoutcomes.
What do stakeholders say?
Outcomesarebetterifyouaredealingwithsomeonewhounderstandstheirchoices,whatsupportcanbeputinplace,andbeengagedinthatsupport.
Thisalsomeansimprovinghealthliteracy–understandingthattheyshouldbeabletogetbacktowork,workisgoodforhealthandisaformoftherapeuticintervention,thatwaitingforrecoverycandelayrecovery,andknowingtheyneedtogethelp.
Educationisalsohelpingpeopleunderstandwhattypeofworkmightbeanentryforthem–notnecessarilyalong‑termsolutionbuttore‑enter(lowerstatus,lowerpayisapsychologicalblowthatneedsframing)andtailoredinformationtodemonstratewhathappens/howtohelpindifferentcircumstances.
What do employees say?
Educationapproachesaddressthethemeofempathy and understanding.Employeesfeltthateducationwouldbeabroadlyusefultool–notforthemselvesbut,rather,forthepeoplearoundthem.Employeesarealreadyeducatingthemselvesasmuchaspossible,mostlyoutofnecessity,sofurthereducationmaynotbethemosteffectivetoolforthem.Whereeducationmightbemoreeffectiveisineducatingothersthattheseemployeeshavetointeractwith.Employeesdescribedaneedforeducationaimedathigh‑levelculturalchange,aswellaseducationaimedatlow‑levelindividualchange.
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Educationforsupportproviders,casemanagers,employers,GPs,families,andthegeneralpublicwouldhelpempoweremployeestoachievetheiremploymentgoals.Accordingtotheemployees:
• supportprovidersandcasemanagersneedexpertisewhenworkingwithpopulationswithhealthconditions,insteadofapplyingaone‑sizefitsallapproachthatworksforthegeneralpopulation
• educatingemployersaboutthementalhealthandwellbeingcomponentofrehabilitationandreturntoworkwouldhelpcreateflexibleandunderstandingworkplaces
• thereiswidevariabilityinGPs’understandingoftheworkdisabilitysupportsystem–GPeducationwouldhelpkeepthestandardmoreconsistent
• familiesneedtobeincludedintheeducationprocessastheyoftenfeelhelpless.Changesinmentalhealthmaynotalwaysbeobvious,soteachingfamiliesaboutmentalhealthcouldhelpthemfeelequippedforsupportingtheirfamilymember.
• finally,employeesfeltthattheirrecoveryandreturntoworkwouldbegreatlyhelpedbyeducatingthegeneralpublictobemoreawareandconsciousofthosewithdisabilityorconditionsthatmakeitdifficultforthemtowork.Someemployeeshighlightedhowtheirconditionshadnovisiblesymptoms,sowouldhavedifficultyreceivingsupportfrommembersofthepublic.Othersreportedhostilityandmicro‑aggressionsdirectedtowardsthembecauseoftheirinjury/condition.
What has helped/could help?
• Culturalchangearoundstigma,discriminationandthebenefitsofgoodwork.
• Healthliteracyprograms.
• Educationaroundthevalueofjobdesignandhowtoapply.
9 &10 Culture and System change
Employees Stakeholders
UndertheRapidLiteratureReviewsearchterms,noevidencewasidentifiedunderthecategoryof‘culturechange’,butrecognitionoftheneedforculturechangecameoutstronglyintheexpertstakeholderandemployeeinterviews.
Furthermore,withitsacademicprincipleofassessingspecificinterventions,theabilityorpurposeoftheRapidLiteratureReviewisnottounderstandtheinterplayacrossdifferentcomponentsofthebenefitandincomesupportsystem.Whereasforemployeesandexpertstakeholdershowthesystemworksiskeytoempowerment.
Muchoftheemployeeandstakeholdercommentarythathasbeenrelayedinthepreviouspagesallpointtotheimportanceofcultureandsystemchange–suchaspoorunderstandingbyemployersofthevalueofemployeeswithaphysicalorpsychologicalconditionandtheimportanceofchangingnormsaroundnotonlytheirperceptions,butalsotheperceptionsofthemanyplayersinvolvedintheprocessesofthebenefitandincomesupportsystemincludingdoctorsandclaimsmanagers);orthecallfromemployeesforinterventionsthatfacilitateeasieruseofandgreaterempathyfrom‘thesystem’.
Furtherexamplesoftheneedforcultureandsystemchangecanbeseeninthefollowingpageswheremoredetailedinterventionsuggestionsbyemployeesarecaptured.
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3.0 Other Empowerment Interventions TheempowermentinterventionsdescribedinthissectionwereidentifiedthroughtheCitizenPanelandindividualinterviewswithemployeesandexpertstakeholders.
Compassionandunderstandingtrainingforcasemanagers
Whatistheproblembeingaddressed?
Casemanagersmaynothavetheunderstandingorflexibilityinordertomostadequatelysupportindividualswithhealthconditionsinreturningtowork.
What do employees say?
Compassionandunderstandingtrainingforcasemanagersrelatestothethemeofempathy and understanding.Anissuethatarosefromseveralconversationswithemployeeswasthatcasemanagersoftenlackcompassionorevenabasicunderstandingoftheemployee’scondition.Littleunderstandingfromthecasemanagerhasaflow‑oneffecttothesortsofservicesthattheemployeeisgivenaccessto.
What has helped/could help?
• Greaterprovisionsforsupportproviderstogo“off‑script”–anideathatwasactivelypromotedbystakeholders.
• Stakeholdersalsoraisedtheideaofmotivationalinteractivetrainingforclaimsandcasemanagers
AdvocacygroupsWhat is the problem being addressed?
Individualscanfeelminisculeagainstthesystemwhentheyaretryingtosecurethebestsupportforthemselves.
What do employees say?
Advocacygroupsaddressthethemeofinformationandprocess.Employeesoftensaidthelargestdrainontheirmotivationwasconstantself‑advocacy.Needingtobe“ontopofeverysinglecoginthesystem”wasdescribedasdraininganddemotivating.Someemployeessaidtheywerefortunatetohaveanadvocatehelpingthemtonavigatethecomplexityand“couldn’timaginesurvivingtheordealwithoutone”.Employeesthensuggestedthatmoreformalizedadvocacygroupswouldbeofbenefittotheirreturntowork,thoughotherscautionedontheoverrelianceofvolunteers.
Advocacygroupsdifferfrommentorshipprogramsinthattheyaremorefocusedonnavigatingthesystemswithspecificguidanceandunderstanding,whereasmentorsappearmosthelpfulinmoregeneralcontextsforexampleinnavigatingtheworldwithanew‑foundhealthcondition).
Whilethereisconsiderableoverlapbetweenadvocacygroupsandmentorshipprograms,wehavekeptthemseparatetoreflectthesource–hereasanitemthatemployeesproducedasaresourcetheyhavereliedon,andmentorshipprogramsasaninterventiondiscoveredintherapidreview.
What has helped/could help?
Awebsitetoconnectindividualstowillingvolunteers.
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EmployerforumsWhat is the problem being addressed?
Job‑seekerswithhealthconditionsexpressfrustrationinsearchingforemployerswhoarewillingtoaccommodatetheircondition.Employeesarealsofrustratedthatjobserviceproviderslacktheabilitytomatchthemupwithwillingemployers.
What do employees say?
Employerforumsaddressthethemesofinformation and process and empathy and understanding. Employeeslookingfornewworkfinditdifficulttoconnectwithemployersthatareflexibleandwillingtoaccommodateworkerswithdisabilityorimpairment.Anemployerforumthat:educatesemployersaboutworkplaceaccommodation;connectsemployerswiththosewillingtowork;andmakesiteasierforjobserviceproviderstobuildanetworkofpotentialemployerswouldhelpaddressanumberofissuesemployeesfacewithworkplaceparticipation.
What has helped/could help?
Buildawarenessandunderstandingofgoodwork.
Stakeholders say
There’saneedtocreateauniversalawareness,understandingandabeliefamongstemployers,employees,healthprofessionals–allAustralians–that‘goodwork’isgoodforyouandthatgettingbacktoworkbeforeyou’re100%wellisaprovenaidtorecovery(withappropriatemedicalclearance).
‘We (the industry) all talk about the benefits of good work, but we’re in a bubble – we need to get the message beyond the people in the industry. As a nation we need to accept the importance of work.’
TransitionseminarsandmanagersWhat is the problem being addressed?
Employeesdescribethesupporttheyreceiveasfracturedandtheywantitsimplifiedtosomethinglikeaflow chart.Transitionmanagementrepresentsaunificationofsupportserviceswithafocusonnavigatingthetransitionintowork.
What do employees say?
Transitionseminarsandmanagersaddressthethemeof information and process.Akeyoutcomefromdiscussionswithemployeesisthedesireformorecentralisedprocessregardingsupportprovisionandreturntowork.Onespecificexamplefromdiscussionsincludedthenotionsoftransitionseminarsandmanagers.Thisideaborrowsfromthedefenseforce,wheredefensepersonnelaredebriefedfromtheirdutiesandpreparedforlifeasacivilian.Asimilarexercisecouldexistforapersontransitioningfromonestageofemploymentparticipation(e.g.unemployed)toanother(e.g.part‑timeemployment).A‘transitionmanager’representsanevolutionofthecurrent‘casemanager’rolebutwithafocusonthewellbeingoftheemployeeastheynavigatetheirrehabilitationandreturntowork.
What has helped/could help?
Willingnessfromsupportproviderstoinvestigatealternativesupportmethods.
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GroupactivityaccessWhat is the problem being addressed?
Employeeswithhealthconditionssometimesfeellikethere’snothingtheycandoandhavelowself‑efficacy.Theyalsofeelisolatedwhentheyareunabletowork.Groupactivityprovisionaddressestheseproblemsoflowself‑efficacyandisolation.
What do employees say?
Activityprovisionwasakeyfocusforanumberofemployeeswhosewellbeingsufferedbycomingoffworkandsuddenlyhavingnothingtodo.Fromawellbeingperspective,employeesdiscussedthenotionofsupportprovidersofferingwellbeingactivitiessuchasgymmemberships,artclasses.Importantly,thesewouldeitherbeactivitiestobecompletedasagroup(grouprehabilitationatagym)orwereinherentlygroup‑oriented(artclasses).
What has helped/could help?
Confidenceandknowledgewouldhelpindividualsapproachnewgroupsandactivities.Sometimestheydon’tknowwheretofindsuchthingsanditwouldbehelpfulifacasemanagerorweb‑basedplatformcouldpointthemintherightdirection.
Group‑basedcasemanagementWhat is the problem being addressed?
Navigatingthedisabilitysupportsystemcanbedifficultandlonelyasanindividual.Group‑basedcasemanagementallowsindividualstoshareknowledge(makingnavigationeasier)andexperienceswithothers.
What do employees say?
Accordingtotheemployeeswespokewith,oneofthemostdifficultaspectsofbeingunabletoworkissocialisolation.Thenegativeeffectofisolationontheirmentalhealthandwellbeingwasclearlyveryimportanttoemployees.Anothersideeffectofsocialisolationwasthatemployeeswereunabletofindrelevantinformationwithoutthehelpofanotherpersonwhohadthesameexperience.Employeessuggestedthatgroup‑basedcasemanagement,wheresupportproviderscouldmanagethecasesofseveralemployeeswithsimilarconditionssimultaneously,couldsolveboththeseproblems.Bymeetingtogetherinthesamespace(physicalordigital),employeescouldshareexperiences,sharelearnings,andinteractwithothersforsocialsupport.
What has helped/could help?
Awillingnessonthepartofthesupportprovidertoconsideralternativesupportstrategies.
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CustomerfeedbackasaKPIWhat is the problem being addressed?
Supportprovidersareperceivedaslackingtransparency.Empoweringindividualsbymakingcustomerfeedbackpartofthesupportprovider’sKeyPerformanceIndicator(KPI)couldaddressthisissueoftransparency.
What do employees say?
Alargeissueforemployeeswasaperceivedlackofaccountabilityandtransparencyonthepartofthesupportproviders.Employeeswespoketofeltthatasolutioncouldbetoincludecustomerfeedbackintheperformanceevaluationofsupportproviders.
What has helped/would help?
Aplatformforcollatingcustomerfeedback.
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Table3:Summaryofpossibleinterventions
Category Problem Desired outcome Possible intervention How does the intervention empower individuals?
Culture change
Culturechange Societalattitudesandbeliefspreventindividualswithhealthconditionsfromfullparticipation(life,work).
Changeinsocietalattitudesandbeliefsregarding'goodwork';permissiontoGPsforsuggestinggradualreturntowork;permissionforfamiliestobecomfortablewithemployeereturningtowork.
Anawarenesscampaigntochangebeliefsandattitudes.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
System change (support providers)
Person‑centredplanning
Supportproviderslacktransparency(e.g.employeesareonlymadeawareofaportionofservicesavailabletothem)
Supportprovidersprovidelistoffullsuiteofsupportoptions.
Educatedecision‑makersfromsupportprovidersonimportanceoftransparencyandtoolstoenablethis.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Employeesoftenfindthattheservicesandsupportprovidedtothemarenotsuitedtotheirneeds‑feelliketheyfallthroughthecracks.
Supportprovidersrestructuretheirsupportdeliveryaroundperson‑centredplanning
Engagesupportprovidersinthedevelopmentandapplicationofacommonsetofprinciples(eg:co‑designingrecoveryprogramwiththeemployee,enablingandtrainingclaimsmanagersonhowtogo'off‑script')thatincludeshortterm'simpletouptake'and'longterm'programchangesindelivery.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
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Category Problem Desired outcome Possible intervention How does the intervention empower individuals?
Systemstreamlining
Supportisfractured,complexandconfusing.
Improveeaseofuse,betterconsistencyandbetterconnectionbetweensystems.
1.Engagewithprovidersindevelopingcommonlanguageandcommonformstomaintainconsistencyofexperiencebetweensystemsandmedicalservices.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
2.Provideacrosssectoronlinetriageservicepersonedbyrealpeoplewhocanhelpnavigatethroughdifferentsystemsandtodifferentservices.
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
Employeeshavetorepeattheirstoriesandmedicalrequirementsmultipletimesthroughouttheirjourney,especiallywhentransitioningthroughdifferentpointsofthesystem.
Improveeaseofuse,betterconsistencyandbetterconnectionbetweensystems.
1.Investigatetoolsandoperatingstructuresthatcande‑duplicateprocessesandenablesharingofinformationacrosssystemsandproviders.
2.Identifyatransitionmanagementprocessthatfacilitatestheeaseofmovementfromonesystemtothenext.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Education Changesinhealthconditionscausestressandanxiety
Improvedhealthliteracyforemployeesandtheiremployersandfamilies
Psycho‑educationapproachtoincreasehealthliteracy
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
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Category Problem Desired outcome Possible intervention How does the intervention empower individuals?
Goal‑setting Disability,injury,andillnesscantaketheirtollonmotivation.
Goal‑settinginterventionsofferedbysupportproviders.
1.Goal‑directedoccupationaltherapyprogram.
2.Usebehaviouraleconomicsstrategiestotrainclaimsmanagerstointroducegoal‑settingobjectivesintotheirinteractionswiththeirclient.
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
3.Reframelanguagetopositivemotivation.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Problem‑solving Disability,injury,andillnesscancausechronicstress
Problem‑solvingincludedinsupportofferedbysupportproviders.
Problem‑solvingskillstrainingdeliveredbyoccupationaltherapist
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
Mentorship Navigatingthebenefitandincomesupportsystemcanbeafrustratingandlonelyaffair.
Maintaintheconfidenceandmomentumoftheemployeetostaypositive.
Providemotivationaltrainingforclaimsmanagers.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Strength‑basedinterventions
Asuddenchangeinhealthcanincreasefeelingsofhelplessnessandvulnerability.
Strength‑basedinterventionsincludedinsupportofferedbysupportproviders.
Incorporatingarehabilitationandreturntoworkstrategythatplaystotheindividual’sstrengths.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
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Category Problem Desired outcome Possible intervention How does the intervention empower individuals?
Work accommodation (employers)
Education Jobdescriptionsdonotconveywhetherthejobcanbedonebysomeonewithahealthcondition.
Advertisementsforjobpositionsincludeastatementofminimumrequiredability.
Educatedecision‑makersfromemployersontheimportanceofinclusivelanguage,andhowemployeesdonotneedtobe100%healthytobeproductive
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Support Employeesconstantlyreachout,oftenforlittleresult
Employersreachouttoemployeesaspartofclaim/casemanagement.
Designinterventiontotrainemployerstoreachoutfirstandoftentoemployeesduringtheirrehabilitation.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Workaccommodation
Groupinterviewscanbedaunting. Hiringpracticeschangedtobemoreinclusive.
Developguidelinesandeducationprogramsforemployersandrecruitmentagencies.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Education Difficulttofindemployerswhoarewillingtorecruitpeoplewithhealthconditions.
Increasewillingnessofemployerstohirethosewithhealthconditions.
Createaforumfor:(1)providingemployerswitheducationmaterialsregardinggoodwork;(2)developingjobserviceprovidersemployernetworks;and(3)puttingpotentialemployeesintouchwithwillingemployers.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Identifyasystemthatprovidestrainingandstandardsforemployers/recruitmentagenciestobecomeaDisabilityConfidentRecruiter/Employer.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Interventiontoencourageemployerstoprovide'onthejob'trainingforintellectuallyordisabledjobseekersratherthanrequiringatertiaryqualification.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
30
Category Problem Desired outcome Possible intervention How does the intervention empower individuals?
Employee empowerment
Mentorship Individualscanfeelminisculeagainstthesystemwhentheyaretryingtosecurethebestsupportforthemselves.
Employeesfeelsociallysupported Onlineresourcecollatingonline‑orcommunity‑basedmentorshipprogramsandsupportgroups.Designaninterventiontomaximisethenumberofemployeeswhoaccessthematerials.
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
Unsuitablementorscanhaveanadverseeffect.Thisexacerbatesincidencesofdepressionandhopelessness.
Linkemployeestopositiveinfluencers.
Useadvocacyorganisationsthatareintouchwiththeneedsoftheemployeesspecificgroupasacentralforum(eg:spinalcordassociation).
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
System Navigatingthedisabilitysupportsystemcanbedifficultandlonelyasanindividual.
Employeesfeelsociallysupported. Group‑basedcase/claimmanagement.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Onestopshopportal'thatconnectstoservices,mentorgroups,'goodwork'credentialedemployers,jobsearchservices,jobapplicationguidance,motivationaltrainingetc.
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
Education Employeesunawareofwhattoexpectofemployer
Employeesmoreclearlyunderstandwhattoexpectoftheiremployer.
Collateonlineinformationregardingemployerobligations.Designaninterventiontomaximisethenumberofemployeeswhoaccessthematerials.Employerguidelines.
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
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Category Problem Desired outcome Possible intervention How does the intervention empower individuals?
Jobseeking Itcanbedifficulttomanageyourconditionwhenitimpairsyouphysicallyand/ormentally.Thatmeansitcanbeespeciallydifficulttofindorgetbacktowork.
Employeesfeelsupported Individualplacementandsupport(IPS)approachfromjobsearchprovider.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Difficulttofindemployerswhoarewillingtorecruitpeoplewithhealthconditions.Groupinterviewscanbedaunting.
Employeesaregiventheconfidencetokeeplookingforwork.
Accesstoajobcoachingsystemmannedwithcoachestrainedforthespecialneedsofpeoplewithaphysicalorpsychologicalhealthcondition.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Lossofskills,eitherduetoonsethealthconditionorlong‑termunemployment.
Havetheskillstofindsuitableemployment.
Interventionsthatgiveaccesstotraining/retraining.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
32
4.0 ConclusionThepurposeofthisstudyistoidentifywhatcanhelpemployeestohelpthemselves–touseworkaspartoftheirrecovery.However,adistinctionmustbedrawnbetweenthedifferenttypesofempowermentinterventions:
1. Independentself‑empowerment–empoweringthingsthatindividualscanactionthemselvesrightnowwithouthelpfromanyoneelse.
Neithertheacademicevidence,expertstakeholderinterviewsnoremployeeinterviewsidentifiedindependentself‑empowermentinterventions.
2. Dependentself‑empowerment–empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse,forexample,‘mentorship’isthemostfavouredinterventionbyemployeesbutfacilitiestoaccessmentorshipwouldhavetobeestablishedtoenableaccess.
3. Dependedempowerment–empoweringthingsindividualscannotactionthemselves.
Dependentself‑empowermentThefollowinginterventionsandexampleswereidentifiedthatindividualscanactionthemselvesonceamechanismisestablished.
• Mentorship:community‑basedprogramsandsupportgroupsoradvocacygroupforumsthatindividualscanaccessviaonlineresourcesoruseofadvocacyorganisationsthatareintouchwiththeneedsofspecificemployeegroupsasacentralforum.
• Education:acollationofonlineinformationregardingemployerobligationsandguidelinestohelpemployeesunderstandtheirentitlementswashighlysupportedbyemployees,orapsycho‑educationapproachtoincreasehealthliteracy–thoughreviewevidenceforthiswasinconclusive.
• Goalsetting:agoaldirectedoccupationaltherapyprogram.
• Systemfacilitation:aportalthatconnectstoservices,mentorgroups,‘goodwork’credentialledemployers,jobsearchservices,jobapplicationguidance;oranonlinetriageserviceprovidedbyrealpeoplewhocanhelpnavigatethroughdifferentsystemsandtodifferentservices.
DependentempowermentWhatthisinvestigationlearntfromemployeesandfromstakeholdersisthatthebesteffortsatself‑helparedefiedbysystemsthatarecomplexandunsupportive.Inthewordsofakeystakeholder‘theycannotfightabadsystem’.Whatisclearisthatthereisnosilverbullet.Employeeempowermentisreliantonbroaderchangesandamulti‑dimensionalapproach.
• Cultural change–shiftingbeliefsandattitudestowardsthevalueofgoodworkandinclusionisimportant.Culturalprovidestheover‑archingcontextandmotivationthatmakesindividualinterventionseffective.Itisahighorder‘empowerment’toolforallparticipantcohorts.Italsogoeshandinhandwiththeneedforbettercross‑communityhealthliteracy.
Thereisgrowingevidencethatdemonstratesthatwithoutshiftingculturalbeliefsandsocialnorms,inthiscasearoundthebenefitsofgoodworkandemployingpeoplewithhealthconditionsordisability,theeffectivenessofempowermentinterventionscanbecompromised.ThisisevidencedinsomeofAustralia’slargestbehaviourchangeprogramssuchasroadsafety,workplacesafetyandsmoking,whereeducationandlegislationdonotworkinisolationofcreatinganemotionalconnectiontothebenefitofaparticularbehaviour.
Stakeholdersrepeatedlyraisetheimportanceofcreatinguniversalawareness,understandingandabeliefamongstemployers,employees,healthprofessionals–allAustralians–that‘goodwork’isgoodforyouandthatworkingisaprovenaidtorecoveryandemotionalwellbeing.
33
• System change –theevidencefromemployees’experiencesofthebenefitandincomesupportsystemsmaybeconsideredharshbysome,butpresentsaveryrealimpedimenttoindividualempowerment,evenleadingtoworseninghealthandgreaterrelianceonthesystembycontributingtosecondaryconditionssuchasdepression.Partsofthesystemareoutofstepwithcurrentbestpracticeapproachestocustomer‑centricservicingandstreamlinedoperatingprocesses,andthisisachallengethatneedstobeaddressed.
• Work accommodation–theneedforemployer’stobetterunderstandandsupporttheindividualcapabilitiesofemployeeswithaphysicalorpsychologicalconditionordisabilityissupportedbyevidence,employeesandstakeholders.Effectiveworkaccommodationisthecoalfaceoftheworkexperienceandenablingindividualstoobtain,stayatorreturntoworkisreliantonemployerengagement.
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Additional informationStakeholderresearch–thebesttimetointerveneStakeholderswereaskedaboutthemostadvantageoustimeintheprocesstointervene.
Earlyinterventionwasuniversallyconsideredaprioritytoprovidehopeandinspirationearlyon.Thisincludedtheveryfirstconversationonthisbasisthisisthetimewhenyougettoknowthecustomer,theirstoryandwhatthey’relike,aswellasbeingabletosetexpectationsfromthestart(i.e.tellthemwhatisgoingtohappen,theirrole,theemployersrole,wintrust,helpthemmakedecisions).
Inthecaseofinjuryorillnessthatimpactsanexistingworksituation,therewasalsothenotionthatthefirstcontactshouldbebeforethepersonbecomesinvolvedintheworkdisabilitysystem.
‘the system is focused on your health, you get a doctor, a physiotherapist, a specialist, but nobody focuses on your ability to work, and this leads to an immediate loss of confidence to work. The work conversation needs to start immediately – even if it is not a full chat because of the circumstances, it is someone saying ‘I will come and talk to you about how to help you get back to work’.
Anotherideawastheneedforearlyunderstandingandnotificationassoonassomethinghappenstoensuretheemployeranddocumentsarehandledintherightway.
Overallconsensusisthatthestrategyneedstobeaboutprevention.Understandingbypeoplebeforetheyevenfindthemselvesinthesituationsotheyknowwhattodotherebylesseningthe‘adversarial’feelingofthesituationandtriggeringthenotionthat‘ifyoufindyourselfinthissituationspeakupquickly’.
35
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AppendicesAppendix1:Examplesofinterventiontypes1. Workaccommodation
Examplesfromliteratureofwhatworkaccommodationinterventionsincorporate:
• Individualcasemanagementandjobsearchassistance
• Changestotheworkplaceorequipment
• Changesinworkdesignandorganisation
• Changesinworkingconditionsorworkenvironment
• Casemanagementwithworkerandemployer
• Earlycontactwithworkerbyworkplace
• RTWcoordination
• Worksiteergonomicvisit
• Healthcareprovidercontactwithworkplace
2. Support
Examplesfromliteratureofwhatsupport/individualplacementandsupport(IPS)interventionsincorporate:
• Individualplacementandsupportprinciples:competitiveemploymentasprimarygoal;eligibilitybasedonpatientchoice;integrationofvocationalandclinicalservices;jobsearchguidedbyindividualpreferences;personalisedbenefitscounselling;rapidjobsearch;systematicjobdevelopment;time‑unlimitedsupport
• AugmentedIPS:IPSwithaddedspecialisedtrainingcomponents(e.g.augmentedwithcognitivetraining,work‑relatedsocialskills,workplaceskills)
• Traditionalvocationalrehabilitationmodels:focusontheinterventionsinthesettingpriortoinitiatingworkactivity
• Supportedemploymentmodels:focusontheimmediatecompetitivejobsearch
• Work‑focusedtreatmentofhealthconditions(e.g.commonmentaldisorders)
3. Mentorship
Examplesfromtheliteratureofwhatmentorshipinterventionsincorporate:
• School‑basedinterventionswithpeermentors(e.g.class‑basedcompetency‑buildingprogramaimedatfosteringself‑determinationinstudents)
• Community‑basedinterventionswithpeermentors(e.g.programsbasedoutsideschoolsorotherinstitutions
• Work‑basedinterventions(e.g.coworkertrainingviastandardizedone‑on‑oneapproach)
• Familyemploymentawarenesstraining(e.g.standardisedknowledge‑basedtrainingprogramforfamilies)
• Onlinementorshipprogram(e.g.emailmethodsformentorstoprovidesupportandinformationsharing)
39
4. Goalsetting
Examplesfromtheliteratureofwhatgoal‑settinginterventionsincorporate:
• Goal‑directedoccupationaltherapyprogram
• Group‑basedgoalsettingapproach
• Specificoccupation‑basedgoalsetting
5. Person‑centeredplanning
Person‑centeredplanning(PCP)isnotastandardizedinterventionbutanumbrellatermthatisoftenusedtodescribeapproachesandtechniquesthatsharecommoncharacteristics.Fivekeyfeaturesinclude:
• The person at the center
• Familymembersandfriendsarepartnersinplanning
• Theplanreflectswhatisimportanttotheperson,theircapacities,andwhatsupporttheyrequire
• Theplanresultsinactionsthatareaboutlife,notjustservicesandreflectwhatispossibleandnotsimplywhatisavailable
• Theplanresultsinongoinglistening,learning,andfurtheraction
6. Problem‑solving
Problem‑solvinginterventionsareusuallydeliveredasatrainingprogram.Someexamplesfromtheliteratureinclude:
• Problem‑solvingtrainingcombinedwithgradedactivity
• Problem‑solvingskillstrainingdeliveredbyoccupationaltherapist
• Problem‑solvingcomponentinguideline‑basedcareprovidedbyoccupationalphysicians
• Problem‑solvingtrainertrainingforoccupationalphysicians
• Problem‑solvingcomponentincollaborativecareinterventioninvolvingworker,manager,andoccupationaltherapist
• Individual‑andgroup‑basedproblem‑solvingtrainingdeliveredbypsychologists.
7. Strength‑basedinterventions
Examplesfromtheliteratureofwhatstrength‑basedinterventionsincorporate:
• Strength‑basedcasemanagement
• Strengths‑basedbriefsolutionfocusedcounselling
8. Education
Examplesfromtheliteratureofwhateducationinterventionsincorporate:
• Psycho‑educationalinterventions(e.g.participantslearnaboutphysicalsideeffects,stressandcopingtechniques)
• Patientcounsellingandhealtheducation
• Stressmanagementandrelaxationtrainin
40
Appendix2:Detailedbreakdownofcitizenpanelattendees
20–244% 25–29
4% 30–344%
35–399%
40–444%
45–4931%
50–5422%
55–6022%
Year 1210%
AdvancedDiplomaandDiploma
30%
BachelorDegree20%
Acquiredandcongenital
components4%
Acquired87%
Congenital9%
Congenitalvsacquired
41
Acute18%
Chronic82%
Chronicvs.acute
Moderateproblem20%
Noproblem0% Mildproblem
0%
Severe problem0%
Minimalproblem0%
Moderatelysevere problem
50%
Verysevereproblem30%
Severity
42
Appendix3:Projectmethods
Rapidreviewmethods–Searchstrategy
Acomprehensivesearchofthefollowingdatabasewasundertaken:PsycINFOviaOvid,MedlineviaOvid,CochraneLibraryandCINAHL.TheMedlinesearchstrategyisreproducedbelow:
Table 4. Medline search strategy
Search string
1 returntowork[tw]ORreturn‑to‑work[tw]ORRTW[tw]ORre‑employ*[tw]ORemployment[tw]ORunemployment[tw]ORunemployed[tw]ORretirement[tw]ORemployab*[tw]ORabsenteeism[tw]ORvocational[tw]OR(commenc*adj3work)[tw]OR(commenc*adj3job)[tw]OR(stay*adj3work)[tw]OR(stay*adj3job)[tw]OR(workadj2participat*)[tw]OR(modif*adj2work)[tw]OR(workadj2adjust*)[tw]OR(retainadj2work)[tw]OR(retainadj2job)[tw]OR(jobadj2retention)[tw]OR(workadj2retention)[tw]OR(jobadj3re‑ent*)[tw]OR(workadj3re‑ent*)[tw]OR(workadj3reintegrat*)[tw]OR(jobadj3re‑integrat*)[tw]OR(modif*adj2dut*)[tw]OR(lightadj2dut*)[tw]OR(workadj2ability)[tw]OR(workadj2status)[tw]OR(recover*adj2work)[tw]OR(obtain*adj3work)[tw]OR(obtain*adj3job)[tw]OR(workadj3capacity)[tw]OR(occupationaladj2outcomes)[tw]OR(sick*adj1leave)[tw]OR(sick*adj3absence)[tw]OR(workadj3accommodat*)[tw]OR(jobadj3accommodat*)[tw]OR“workplace”[SubjectHeading]OR“returntowork”[SubjectHeading]OR“work”[SubjectHeading]OR“employment”[SubjectHeading]OR“sickleave”[SubjectHeading]OR“jobsatisfaction”[SubjectHeading]OR“occupationalmedicine”[SubjectHeading]OR“rehabilitation,vocational”[SubjectHeading]OR“occupationalhealth”[SubjectHeading]OR“unemployment”[SubjectHeading]OR“absenteeism”[SubjectHeading]OR“occupations”[SubjectHeading]OR“occupationalhealthservices”[SubjectHeading]OR“workcapacityevaluation”[SubjectHeading]OR“vocationalguidance”[SubjectHeading]
2 disability[tw]ORdisease[tw]ORinjury[tw]ORillness[tw]ORdisorder[tw]ORcognitiveimpairment[tw]ORcognitivedysfunction[tw]ORmusculoskeletaldisease*[tw]ORcancer[tw]ORosteoporosis[tw]ORarthritis[tw]ORasthma[tw]ORchronicobstructivepulmonarydisease[tw]ORCOPD[tw]ORchronicpain[tw]ORcardiovasculardisease[tw]ORdiabetes[tw]ORchroniccondition[tw]ORmentalhealth[tw]ORchronicdisorder[tw]ORpsychologicaldisorder[tw]OR“Disabledpersons”[SubjectHeading]OR“IntellectualDisability”[SubjectHeading]OR“MentalDisorders”[SubjectHeading]OR“WoundsandInjuries”[SubjectHeading]OR“ChronicDisease”[SubjectHeading]OR“CognitiveDysfunction”[SubjectHeading]OR“MusculoskeletalDiseases”[SubjectHeading]OR“Neoplasms”[SubjectHeading]OR“Osteoporosis”[SubjectHeading]OR“Arthritis”[SubjectHeading]OR“RespiratoryTractDiseases”[SubjectHeading]OR“PulmonaryDisease,ChronicObstructive”[SubjectHeading]OR“Asthma”[SubjectHeading]OR“BackPain”[SubjectHeading]OR“ChronicPain”[SubjectHeading]OR“CardiovascularDiseases”[SubjectHeading]OR“DiabetesMellitus”[SubjectHeading]OR“Depression”[SubjectHeading]OR“AnxietyDisorders”[SubjectHeading]OR“StressDisorders,Post‑Traumatic”[SubjectHeading]
3 review*ORmeta‑synthesis*ORmeta‑analysis*
5 #1AND#2AND#3
43
Screeningandselection
OnereviewerscreenedthecitationsagainsttheinclusionandexclusioncriterialistedinTable2.Dataextractedfromtheincludedarticleswasusedtoinformacommentaryontheoutcomesofempowerment‑focusedinterventions.
Table 5. Inclusion and exclusion criteria
Include Exclude
StudyType • Systematicornarrativereviews.Reviewsofquantitativeorqualitativestudieswillbeincluded
• Allprimarystudydesigns
Population • Individualsnavigatingdisabilitysystems;atvariousstagesofworkstatus(i.e.returningtowork;remainingatwork;commencingnewwork);withinjuries(mentalorphysical),disabilities(cognitiveorphysical),ordisease(e.g.cancer);invarioussystems(e.g.workers’compensationanddisabilitysupportsystems,superannuationandlifeinsurance,employer‑fundedincomesupport).
• Reviewsdescribingimpactonnon‑immediate/proximaloutcomes
• Familiesofindividuals
StudyDesign • Interventional(RCTpreferredbutalldesignsaccepted)
StudySetting • International(withfocusonAustralia,Canada,NewZealandandtheUS)
Intervention • Useofempowermenti.e.activeparticipation,navigation,self‑management(insurance),healthliteracy,schemenavigation,workplanning,problemsolving,supportmechanisms,self‑managementsupport,self‑sufficiency,qualityoflife(e.g.communityinvolvement,familystability),andactiveinterventions.
• Interventionsthatdon’thaveanevaluationcomponent
Outcome • Sustainedworkstatuschange
• Feelingsofempowerment
• Individuals’attitudes,needs,andmotivations
• Reductioninillnessorpoisoning(unlessinterventionsevaluatingotheroutcomesarealsoincludedwithinthereview)
Publicationstatus • English‑language
• Peer‑reviewedjournalpublicationsorreports
• Published1998‑2018
44
Appendix4:Qualityappraisal
Criterion (AMSTAR 2) Bisung (2018)
Cheng (2018)
Cullen (2018)
D’Amico (2018)
De Boer (2015)
Dewa (2015)
Dewa (2018)
Doki (2015)
Donker-Cools (2016)
1. Did the research questions and inclusion criteria for the review include the components of PICO?
No Yes Yes Yes Yes Yes Yes Yes Yes
2. Did the report of the review contain an explicit statement that the review methods were established prior to the conduct of the review and did the report justify any significant deviations from the protocol?
No No No No Yes No No No No
3. Did the review authors explain their selection of study designs for inclusion in the review?
No No Yes No No No No No No
4. Did the review authors use a comprehensive literature search strategy?
No Partialyes Partialyes Partialyes Yes Partialyes Partialyes Partialyes Partialyes
5. Did the review authors perform the study selection in duplicate?
No Yes Yes Yes Yes Yes Yes Yes Yes
6. Did the review authors perform data extraction in duplicate? No Yes Yes Yes Yes No No No Yes
7. Did the review authors provide a list of excluded studies and justify the exclusion?
No No Partialyes No Yes No No No No
8. Did the review authors describe the included studies in adequate detail?
No Partialyes Partialyes Partialyes Partialyes Yes Partialyes Partialyes Partialyes
9. Did the review authors use a satisfactory technique for assessing the risk of bias in individual studies that were included in the review?
No No Yes Yes Yes Yes Yes Yes No
10. Did the review authors report on the sources of funding for the studies included in the review?
No No No No Yes No No No No
11. If meta-analysis was performed, did the review authors use appropriate methods for statistical combination of results?
N/A N/A N/A N/A Yes N/A N/A Yes N/A
12. If meta-analysis was performed, did the review authors assess the potential impact of risk of bias in individual studies on the results of the meta-analyses or other evidence synthesis?
N/A N/A N/A N/A Yes N/A N/A Yes N/A
45
Criterion (AMSTAR 2) Bisung (2018)
Cheng (2018)
Cullen (2018)
D’Amico (2018)
De Boer (2015)
Dewa (2015)
Dewa (2018)
Doki (2015)
Donker-Cools (2016)
13. Did the authors account for risk of bias in individual studies when interpreting/discussing the results of the review?
No No Yes No Yes No Yes Yes Yes
14. Did the review authors provide a satisfactory explanation for and discussion of heterogeneity observed in the results of the review?
No Yes Yes No Yes Yes No No Yes
15. If they performed quantitative synthesis, did the review authors carry out an adequate investigation of publication bias (small study bias and discuss its likely impact on the results of the review)?
N/A N/A N/A N/A Yes N/A N/A Yes N/A
16. Did the review authors report any potential sources of conflict of interest, including any funding they received for conducting the review?
Yes Yes Yes Yes Yes Yes Yes Yes Yes
TOTAL yes / applicable items 1/13 7/13 11/13 7/13 15/16 7/13 7/13 10/16 8/13
46
Criterion (AMSTAR 2) Fong (2018)
Gaudreault (2014)
Hegewald (2019)
Laires (2017)
Levack (2015)
Lindsay (2016)
McDowell (2014)
Modini (2018)
1. Did the research questions and inclusion criteria for the review include the components of PICO?
Yes Yes Yes Yes Yes Yes Yes Yes
2. Did the report of the review contain an explicit statement that the review methods were established prior to the conduct of the review and did the report justify any significant deviations from the protocol?
Yes Yes Yes No Yes No No Yes
3. Did the review authors explain their selection of study designs for inclusion in the review?
No No Yes No Yes No No No
4. Did the review authors use a comprehensive literature search strategy? Partialyes Partialyes Yes Partialyes Yes Partialyes Partialyes Partialyes
5. Did the review authors perform the study selection in duplicate? Yes Yes Yes No Yes Yes Yes Yes
6. Did the review authors perform data extraction in duplicate? No Yes Yes No Yes Yes No No
7. Did the review authors provide a list of excluded studies and justify the exclusion?
Yes No Yes No Yes No No No
8. Did the review authors describe the included studies in adequate detail? Partialyes No Yes Partialyes Yes Yes Partialyes No
9. Did the review authors use a satisfactory technique for assessing the risk of bias in individual studies that were included in the review?
Yes Yes Yes No Yes Partialyes No Partialyes
10. Did the review authors report on the sources of funding for the studies included in the review?
No No Yes No Yes No No No
11. If meta-analysis was performed, did the review authors use appropriate methods for statistical combination of results?
Yes N/A Yes N/A Yes N/A N/A Yes
12. If meta-analysis was performed, did the review authors assess the potential impact of risk of bias in individual studies on the results of the meta-analyses or other evidence synthesis?
No N/A Yes N/A Yes N/A N/A No
13. Did the authors account for risk of bias in individual studies when interpreting/discussing the results of the review?
Yes Yes Yes No Yes No No No
14. Did the review authors provide a satisfactory explanation for and discussion of heterogeneity observed in the results of the review?
Yes No Yes No Yes No No Yes
47
Criterion (AMSTAR 2) Fong (2018)
Gaudreault (2014)
Hegewald (2019)
Laires (2017)
Levack (2015)
Lindsay (2016)
McDowell (2014)
Modini (2018)
15. If they performed quantitative synthesis, did the review authors carry out an adequate investigation of publication bias (small study bias and discuss its likely impact on the results of the review)?
No N/A Yes N/A Yes N/A N/A Yes
16. Did the review authors report any potential sources of conflict of interest, including any funding they received for conducting the review?
Yes Yes Yes No Yes Yes No Yes
TOTAL yes / applicable items 11/16 8/13 16/16 3/13 16/16 7/13 4/13 9/16
48
Criterion (AMSTAR 2) Munoz-Murillo (2018)
Nevala (2015)
Nieuwenhuijsen (2014)
Nigatu (2016)
Ratt (2016)
Sabariego (2018)
Suijkerbuijk (2017)
Trenaman (2014)
1. Did the research questions and inclusion criteria for the review include the components of PICO?
Yes Yes Yes Yes Yes Yes Yes Yes
2. Did the report of the review contain an explicit statement that the review methods were established prior to the conduct of the review and did the report justify any significant deviations from the protocol?
Yes Yes Yes No Yes No No Yes
3. Did the review authors explain their selection of study designs for inclusion in the review?
No No Yes No Yes No No No
4. Did the review authors use a comprehensive literature search strategy?
Partialyes Partialyes Yes Partialyes Yes Partialyes Partialyes Partialyes
5. Did the review authors perform the study selection in duplicate? Yes Yes Yes No Yes Yes Yes Yes
6. Did the review authors perform data extraction in duplicate? No Yes Yes No Yes Yes No No
7. Did the review authors provide a list of excluded studies and justify the exclusion?
Yes No Yes No Yes No No No
8. Did the review authors describe the included studies in adequate detail?
Partialyes No Yes Partialyes Yes Yes Partialyes No
9. Did the review authors use a satisfactory technique for assessing the risk of bias in individual studies that were included in the review?
Yes Yes Yes No Yes Partialyes No Partialyes
10. Did the review authors report on the sources of funding for the studies included in the review?
No No Yes No Yes No No No
11. If meta-analysis was performed, did the review authors use appropriate methods for statistical combination of results?
Yes N/A Yes N/A Yes N/A N/A Yes
12. If meta-analysis was performed, did the review authors assess the potential impact of risk of bias in individual studies on the results of the meta-analyses or other evidence synthesis?
No N/A Yes N/A Yes N/A N/A No
13. Did the authors account for risk of bias in individual studies when interpreting/discussing the results of the review?
Yes Yes Yes No Yes No No No
14. Did the review authors provide a satisfactory explanation for and discussion of heterogeneity observed in the results of the review?
Yes No Yes No Yes No No Yes
49
Criterion (AMSTAR 2) Munoz-Murillo (2018)
Nevala (2015)
Nieuwenhuijsen (2014)
Nigatu (2016)
Ratt (2016)
Sabariego (2018)
Suijkerbuijk (2017)
Trenaman (2014)
15. If they performed quantitative synthesis, did the review authors carry out an adequate investigation of publication bias (small study bias and discuss its likely impact on the results of the review)?
No N/A Yes N/A Yes N/A N/A Yes
16. Did the review authors report any potential sources of conflict of interest, including any funding they received for conducting the review?
Yes Yes Yes No Yes Yes No Yes
TOTAL yes / applicable items 11/16 8/13 16/16 3/13 16/16 7/13 4/13 9/16
50
Criterion (AMSTAR 2) Tse (2016)
Wheeler (2016)
Vooijs (2015)
1. Did the research questions and inclusion criteria for the review include the components of PICO? Yes Yes Yes
2. Did the report of the review contain an explicit statement that the review methods were established prior to the conduct of the review and did the report justify any significant deviations from the protocol?
Yes Yes Yes
3. Did the review authors explain their selection of study designs for inclusion in the review? No No Yes
4. Did the review authors use a comprehensive literature search strategy? Partialyes Partialyes Yes
5. Did the review authors perform the study selection in duplicate? Yes Yes Yes
6. Did the review authors perform data extraction in duplicate? No Yes Yes
7. Did the review authors provide a list of excluded studies and justify the exclusion? Yes No Yes
8. Did the review authors describe the included studies in adequate detail? Partialyes No Yes
9. Did the review authors use a satisfactory technique for assessing the risk of bias in individual studies that were included in the review? Yes Yes Yes
10. Did the review authors report on the sources of funding for the studies included in the review? No No Yes
11. If meta-analysis was performed, did the review authors use appropriate methods for statistical combination of results? Yes N/A Yes
12. If meta-analysis was performed, did the review authors assess the potential impact of risk of bias in individual studies on the results of the meta-analyses or other evidence synthesis?
No N/A Yes
13. Did the authors account for risk of bias in individual studies when interpreting/discussing the results of the review? Yes Yes Yes
14. Did the review authors provide a satisfactory explanation for and discussion of heterogeneity observed in the results of the review? Yes No Yes
15. If they performed quantitative synthesis, did the review authors carry out an adequate investigation of publication bias (small study bias and discuss its likely impact on the results of the review)?
No N/A Yes
16. Did the review authors report any potential sources of conflict of interest, including any funding they received for conducting the review? Yes Yes Yes
TOTAL yes / applicable items 11/16 8/13 16/16
51
Appendix5:Detailedthematicanalysis
Informationandprocess
What do employees say?
• Thecomplexityofthe‘system’isoverwhelming–(ie:Workers’Compensation,MotorAccident,DisabilitySupportPension,superannuation,lifeinsurance,DisabilityEmploymentServices).
• Lackofaccountability–beingoncallsforhoursthengettingshiftedalongtheline;delaysinpaymentsbecausethenecessaryinformationisn’tcomplete,buttheemployeeisn’tadvisedthereisaproblemthereforecan’tredressit.
• Supportprovidersaren’ttransparentinwhattheycanoffer.
• Websitesaretoooverwhelming,therearetoomanyoptions.
• Whenabletofindrelevantinformation,itisoftendifficulttounderstand.
• Onceyou’reinaprocess,youneedtospendalotoftimeandeffortfollowingituptomakesureyoudon’tfallthroughthecracks.
• Uncertainty–paymentsgetadjustedwithoutanyapparentreasonornotice.
• Thesiloednatureofthesystem–each‘supplier’onlyconsideringtheirrole.
• Repetitiveness–thenumberoftimesinformationhastobesupplied/resupplied;thenumberofdifferentmedicalexaminationsrequired(“IappliedtogoonaDisabilitypensionbutdidn’thaveenoughpoints.SoIhadtogobacktothepsychologistagainandthatcostme$300”).
• Lackofcommunicationbetweenparties(e.g.GPsaidtogetamassage,butsupportproviderwouldn’tcoverit).
What has helped/would help?
• Networksofotherswithsimilarsituations:cansuggestoptionsthataren’talwaysmadevisiblebyproviders
• Centralcontactpoints:eitheranindividualoranorganisation
• Somekindofpersontoadministertriageandhelptheindividualfigureoutwhatisavailabletothem
• Someonetomakesureyouarecoping
• Havingaphysicalofficewhereyoucanspeaktosomeone
Empathyandunderstanding
What do employees say?
• Lackofunderstandingfromsupportproviders(onesizefitsallapproach,littleroomforflexibilityinthesystem),employers(likelytoassumeyoucan’tdoanything),andgeneralpublic(“I’myoungsoIdon’tlooksick,butIam.”)
• Feelingthatyouneedthesupportprovidersmorethantheyneedyou—leadstofeelingsofbeingmanipulatedbysupportproviders
• Nobodyasksyouwhatyoucando
What has helped/would help?
• Flexibleemployers
• Advocates
52
Mentalhealthandwellbeing
What do employees say?
• Beingoffworkmakesithardertogetwork,whichleadstoloneliness,lossofself‑confidence,lossofperceivedcontrol
• Workprovidesanetworkofsocialinteraction
• Lossofsocialnetworksleadstodegradationofmentalhealth
– Noprovisionfromsupportproviderstogiveyousomethingelsetodo(e.g.agymmembershipmighthaveobviousphysicalbenefitsbutcouldalsobuffermentalhealthbygivingroutineandanopportunitytodevelopnewsocialnetworks)
• Theveryreal‘effort’ofdealingwiththesystemismentallydraininganddemoralising.
What has helped/would help?
• Wellbeingactivities(e.g.artclasses,yoga)tohelpbuildroutineandoffersocialcontact
• Counsellingaspartofrehabilitation
‘Good’work
What do employees say?
• Achievingworkgoalscanhaveapositiveeffectonstabilising
• Doingsomeworkcanhelpinotherwellbeingaspectse.g.mentalhealthandmotivation
• Returningtoworkmeansbeingproductive,andhavingfocusanddirection
• Workingalleviatesfinancialstress
What has helped/would help?
• Volunteeringwasusefulbecausetherewaslesspressuretoperform
Expertise
What do employees say?
• Anumberofsupportprovidershavenospecialisedexperienceworkingwithdisabledpopulation
• Conventionaljobserviceproviderspickupcaseswithdisabilitytoearnmoremoneybutdonothavetherequisiteexpertise
• Somesupportprovidersworkinspecialtyareasbutdon’temploypeoplewithabackgroundinarea
• Casemanagersneedtoknowtheinsandoutsofthedisabilitygroup
• Ifthereisn’texpertisethenthereistensionbecausethereisn’tasharedunderstandingofwhat’sexpected
What has helped/would help?
• Casemanagerswithdeepexperienceorbackgroundinareaofdisability
• Specialitysupportproviders(e.g.OSTARA)
53
Transparency
• Transparencyaroundcharterofserviceprovider
• Transparencyaroundrightsofcustomers
• Transparencyaroundservicescustomersareentitledto
• Somesupportprovidershaveavarietyofdifferentactsandcharterstonavigate
What has helped/would help?
• Supportgroupsandsharingexperiencesallowsindividualstogetabettergrasponwhat’savailableto them
Attitudestowork
Everyoneoftheemployeeswhoparticipatedinthisresearchwantedtoworkandhadbeenlookingforwork.Theirdesiretoworkwasnotabarriertoworkparticipation.Thisisnotanaspectoftherecruitmentcriteriabutanaturalphenomenon.
“Self-confidence dwindles the longer you aren’t in work” and…
“Stability and routine are important for mental health”.
Beingemployedisimportantfortheminanumberofways:
• providingpurpose
• beingaproductivememberofsociety
• selfsufficiency
• notbeingaburdenonfamilyandfriends
• learning,opportunity,growth
• aswellasmorefunctionalaspectssuchasmoneyandtravel.
Perceptionsofgettingemployment
• Ifyou’reolderyougetnowhere.Themarketissaturatedwithyoungpeoplewhowilldoitonthecheap.
• Youputinfor600jobsandoncetheyknowwhyyouleftyourlastjobtheydon’twanttoknow.Theydon’twantyoutohavetimeofftogethelp.
• Peoplewhoworkfromhomebecome‘invisible’.
• Youhavetolietogetwork–theydon’temployyouifyoutellthetruth.
• Supportfromcolleaguesintheworkplace/workplaceculture.Ifyou’rereturningtoworkpeopleneedtobewelcoming,haveacuppawithyou,provideaninductioncourse,bepatient.Giveyoutrainingsoyoufeelgoodandconfident.Itstartsatthetop–andwithpoliciesandpracticesinplacefornobullying/discrimination.
• Riskoffinancialpenaltiesofgoingbacktowork.
Personal challenges
• Thefearofnotfindingajob–anyjob–andbeingabletostayinit.
• Notbeingabletocopewiththejob.
• Lossofconfidence.Thebattlewiththeinjury,thelegals,doctors’appointments,paperwork.
54
Other
• Disabilitysupportsystemisverypunitive—addsextrastressandpressure
• Jobserviceprovidersarecompetingforgovernmentmoney—contrastagainstCentrelinkwhohadnoproblemwithdocumentation
• Wouldenrolinprogramsthatgetthemmoregovernmentmoneyinsteadoftheprogramthatwasbestsuited
• Jobserviceproviders(JSPs)arecompetingfortheirexistence,sowilloftenexpandtheirscopetoincludethosewithhealthconditions.ThisoccursdespitetheJSPhavingnoexpertiseworkingwithpeoplelikethat
• Over‑relianceonvolunteers
• “Youneedtomakeyourselflooktwiceasbadinordertogethalfthehelpyouneed”
• Assessmentsbyindependentmedicalexaminers(IMEs)areoftenanegativeexperience
• Independentappealsbodydoesn’tevenhavedisabilityaccess—wasfiveminuteslatebecauseelevatorwasbroken,wastoldtheymissedanappointment
• Lostallpaymentsbecauseoferroronpartofdoctor
• Everysingleappointmentis3pminthecityandyoucan’tbringchildrenwithyoutotheappointment
• “Leftinjured,suffering,anduntreated,withnobeliefinyourself”.
55
Appendix6:Reviewquality
Intervention Review Outcome Quality Result
Goalsetting Levacketal.,2015 Empowerment 16/16 Lowqualityofevidencethatgoalsettingincreaseswellbeingandperceivedself‑efficacy
Goalsetting Wheeleretal.,2016 Empowerment 7/13 Moderateevidencethatgoal‑directedrehabimprovesgoalattainment
Strength‑basedinterventions
Tseetal.,2016 Empowerment 6/13 Weakevidencethatstrength‑basedinterventionsimproveself‑esteem,self‑efficacy,socialsupport,spiritualwell‑beingandpsychiatricsymptoms
Goalsetting Levacketal.,2015 Workoutcomes 16/16 Unclearwhattheeffectofgoal‑settinghasonworkparticipation–notenoughdata/reporting
Goalsetting Wheeleretal.,2016 Workoutcomes 7/13 Moderateevidencethatgoal‑directedrehabimprovesoccupationalperformance
Education DeBoeretal.,2015 Workoutcomes 15/16 Lowqualityevidenceofnoeffectofpsycho‑educationalinterventionsonRTWratesorqualityoflife(comparedtocareasusual)
Education Hegewaldetal.,2019 Workoutcomes 16/16 Low‑toverylow‑certaintyevidence.UnclearwhethercounsellingplushealtheducationprogramsimproveRTW
Mentorship Lindsayetal.,2016 Workoutcomes 7/13 Partialevidencethatmentorshipinterventionsimproveschool‑orwork‑relatedoutcomes
Mentorship Wheeleretal.,2016 Workoutcomes 7/13 Insufficientevidencethatpeer‑mentoringimprovesqualityoflife
Person‑centredplanning
Rattietal.,2016 Workoutcomes 9/13 Lowqualityevidencethatperson‑centredplanningmayhaveapositive,yetmoderate,impactoncommunity‑andlife‑participation.Impactonemploymentoutcomesisinconclusive.
Problem‑solving Dewaetal.,2015 Workoutcomes 7/13 Inconsistentfindingsregardingeffectofwork‑focusedproblem‑solvingonRTW
Problem‑solving Nigatuetal.,2016 Workoutcomes 9/16 Problem‑solvingstrategies(amongstotherinterventions)didnotleadtoimprovedRTWrates
56
Intervention Review Outcome Quality Result
Problem‑solving Dokietal.,2015 Workoutcomes 10/16 Noeffectofproblem‑solvingtreatmentaloneonsickleavereductionbutacombinedproblem‑solvingandCBTinterventiondidhavesignificanteffectontotalsickleavedays
Support Chengetal.,2018 Workoutcomes 7/13 Insufficientevidenceforeffectivesupportstrategiesinobtainingandmaintainingemployment.Noassessmentofevidencequality
Support Dewaetal.,2018 Workoutcomes 7/13 Lowquality(highrisk)evidencethatindividualplacementandsupport(IPS)programswithaugmentations(comparedtoIPSalone)maybemoreeffectiveinemploymentoutcomes
Support Modinietal.,2016 Workoutcomes 9/16 Fair‑togood‑qualityevidencethatindividualplacementandsupportprogramsareaneffectiveinterventionforcompetitiveemployment.Twiceaseffectiveastraditionalrehabilitationprograms.
Support Muńoz‑Murilloetal.,2018 Workoutcomes 7/13 Goodqualityevidencethatjobaccessstrategiesseemtoimproveemploymentoutcomes.Theeffectivenessofreturntoworkstrategiesremainsunclear
Support Trenamanetal.,2014 Workoutcomes 6/13 Someevidencethatsupportedemploymentcanimproveemploymentoutcomesbutunabletoassessqualityduetoheterogeneityofmethodsandfactors.
Support D’Amicoetal.,2018 Workoutcomes 7/13 Strongevidenceforroleofoccupationaltherapy‑basedsocialparticipationinterventionsforimprovingsocialparticipationandoccupationalengagement.Interventionsmoreeffectivewhenpairwithclient‑centeredgoalfocus
Support Donker‑Coolsetal.,2015 Workoutcomes 8/13 Strongevidencethatworked‑directedinterventionsincombinationwitheducation/coachingimprovesRTW
Support Nieuwehuijsenetal.,2014 Workoutcomes 12/16 Moderateevidencethatcoachingsupportplusregularcarereducedsicknessabsencetomoderateextent.
57
Intervention Review Outcome Quality Result
Support Suijkerbuijketal.,2017 Workoutcomes 15/16 Moderatetolowqualityevidencethatsupportedemploymentandaugmentedsupportedemploymentaremoreeffectivethantheotherinterventionsinobtainingandmaintainingcompetitiveemployment
Workaccommodation
Vooijsetal.,2017 Workoutcomes 10/13 Mediumqualityevidencethatthreeoffourreviewsonworkaccommodationreportedbeneficialeffectsonworkparticipation
Workaccommodation
McDowelleta.,2014 Workoutcomes 4/13 Mixedqualityevidence.Workplaceaccommodationsarerare,butmostcommontypeisflexiblescheduling/reducedhours.Directcostsassociatedwithworkplaceaccommodationsareoftenlow.
Workaccommodation
Nevalaetal.,2014 Workoutcomes 7/13 Moderateevidencethattypesofworkplaceaccommodationpromoteemployment.LowevidencethatworkplaceaccommodationadministeredbycasesmanagersincreasesRTW.Listsanumberofdriversandbarriers
Workaccommodation
Cullenetal.,2018 Workoutcomes 11/13 Strongevidencethatcombinationsofatleasttwoofhealth‑focusedinterventions,servicecoordinationinterventions,andworkmodificationinterventionsreducestimeawayfromwork.StrongevidencethatCBTineffectivewithoutworkplacemodificationorservicecoordination.
Workaccommodation
Sabariegoetal.,2018 Workoutcomes 8/13 Reliablequalityevidencesuggestingthatpositivechangesemploymentstatus,returntoworkandsickleaveoutcomeswereachievedwithworkplaceaccommodationinterventionsthatinvolvegradedsickness‑absencecertificatesandpart‑timesickleave