eHealth Conference 2012 Dr Annie Lau
-
Upload
cebit-australia -
Category
Health & Medicine
-
view
646 -
download
0
description
Transcript of eHealth Conference 2012 Dr Annie Lau
![Page 1: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/1.jpg)
Centre for Health Informatics
Annie Lau, PhDCentre for Health Informatics
Australian Institute of Health Innovation
University of New South Wales
eHealth Conference at CeBIT, May 2012
How E-Health Affects the Way Consumers
Make Decisions and Manage Their Health
- Results from multiple empirical studies
![Page 2: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/2.jpg)
About Centre for Health Informatics
University of New South Wales (UNSW)
• Australia’s largest academic health informatics
research group, led by Prof. Enrico Coiera
• To deliver high quality, safe, efficient and
affordable health care through the intelligent use
of information and communication technologies
• Four research areas: Patient Safety Informatics,
Modelling and Simulation, Translational
Bioinformatics, Consumer Informatics
![Page 3: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/3.jpg)
![Page 4: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/4.jpg)
Objectives
1. Impact of Consumer E-Health
– How E-Health Affects the Way Consumers Make Decisions and
Manage Their Health
– Topics: IVF, influenza vaccination, physical and emotional
wellbeing, breast cancer survivorship, asthma, STI screening,
cardiovascular risks
2. Designs of Consumer E-Health
– Ways to design E-Health to improve consumers’ engagement with
health services
– Platforms: web-based, mobile phone, social media
3. Science of Consumer E-Health: cognitive biases, online
social influence, E-Health engagement, safety of E-Health
![Page 5: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/5.jpg)
Outline
• About Healthy me and its impact
• Case study: YouTube and safety concerns for consumers
• Implications on Consumer E-Health Designs
![Page 6: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/6.jpg)
![Page 7: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/7.jpg)
What is Healthy.me?
• Personally controlled health management system
• Our focus is to support patients on totality of services
needed to manage their health, not just provide a record
• Portal of online services offered by health service
providers to engage with patients
![Page 8: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/8.jpg)
Studies on Healthy.me (2010-2012)
1. In-vitro fertilisation (IVF) treatment
2. Uptake of influenza vaccination
3. Physical and emotional wellbeing
4. Breast cancer survivorship after treatment
![Page 9: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/9.jpg)
Study 1 > In-vitro fertilization (IVF)
Supporting women undergoing IVF
• Design: Feasibility study
• Participants: Women undergoing IVF treatment
(Agonist Long Down Regulation)
• Duration: 8 weeks; interviewed weekly
• Location: Urban Australia
• Participants: 17 recruited, 14 completed
9
Lau AYS, Parker A, Early J, Sacks G, Anvari F, Coiera E. Comparative usage of a web-based
personally controlled health management system and normal support: A case study in IVF.
electronic Journal of Health Informatics (eJHI). 2012; (in press).
![Page 10: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/10.jpg)
Uptake of influenza vaccine
• Design: Randomised controlled trial (Healthy.me vs.
waitlist)
• Participants: UNSW staff and students
• Duration: Winter season 2010
• Location: UNSW Health Service
• Participants: 855 recruited, 604 followed-up (71%
retention)
Study 2 > Influenza vaccine
Lau AYS, Sintchenko V, Crimmins J, Magrabi F, Gallego B, Coiera E. Protocol for a randomised
controlled trial examining the impact of a web-based personal health management system on the uptake
of influenza vaccination rates. BMC Health Services Research. 2012; (in press).
![Page 11: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/11.jpg)
• Design: Online prospective cohort study
• Participants: >1500 UNSW staff and students
• Duration: 2010-2011
• Location: UNSW
• Physical and emotional wellbeing
– Men health screening
– Women health screening
– Emotional wellbeing programs
Study 3 > Wellbeing
UNSW online health community
![Page 12: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/12.jpg)
• Design: Feasibility study
• Participants: around 50 patients with early stage
breast cancer
• Duration: 2011-2012
• Location: Liverpool and Macarthur Cancer Therapy
Centres
Study 4 > Breast cancer
Breast cancer survivorship
![Page 13: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/13.jpg)
Outline
• About Healthy me and its impact
• Case study: YouTube and safety concerns for
consumers
• Implications on Consumer E-Health Designs
![Page 14: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/14.jpg)
Social media
• Design: 456 abstracts on “quality criteria” related to YouTube
• Sources: PubMed, ISI Web of Knowledge, PsychINFO and
Scopus
• Period: November 2011
• Findings: 5 areas of safety concerns related to YouTube
Study 5 > YouTube and safety concerns
Lau AYS, Gabarron E, Fernandez-Luque L, Armayones M. Social Media in Health – What
are the Safety Concerns for Health Consumers? Health Information Management Journal
2012. (in press)
![Page 15: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/15.jpg)
Examples of Safety Concerns on
1. Harmful health material targeted at consumers
• e.g. inappropriate marketing of tobacco, or direct-to-consumer
drug advertising
2. Public display of unhealthy behaviour
• e.g. people displaying self-injury behaviours or hurting others
3. Tainted public health messages
• e.g. rise of negative voices against immunisation campaigns
Study 5> YouTube and safety concerns
Lau AYS, Gabarron E, Fernandez-Luque L, Armayones M. Social Media in Health – What
are the Safety Concerns for Health Consumers? Health Information Management Journal
2012. (in press)
![Page 16: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/16.jpg)
Examples of Safety Concerns on
4. Psychological impact from accessing inappropriate, offensive or
biased social media content
- e.g. children accessing videos on surgical procedures
5. Using social media to distort policy and research funding
agendas
- e.g. misdirected research funding in Canada on Chronic
Cerebrospinal Venous Insufficiency (CCSVI)
Study 5 > YouTube and safety concerns
Lau AYS, Gabarron E, Fernandez-Luque L, Armayones M. Social Media in Health – What
are the Safety Concerns for Health Consumers? Health Information Management Journal
2012. (in press)
![Page 17: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/17.jpg)
Implications on Consumer E-Health Designs
• To our knowledge, first study that shows PCHMS can
significantly increase uptake of preventative health
measures
• “Science” of Consumer E-Health Systems – uptake,
benefits, and cost effectiveness of these investments
• “Crowd influence” and social media in health – undue
social influences and safety concerns for consumers
and clinicians
![Page 18: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/18.jpg)
Summary
• Goal: how we can use E-Health and online social
technologies safely and effectively to support patients in
their health journeys with clinicians and health services
• Healthy.me undergoing continuous development
• Collaborations are warmly welcome
![Page 19: eHealth Conference 2012 Dr Annie Lau](https://reader033.fdocuments.us/reader033/viewer/2022051514/54c3482d4a795969698b45da/html5/thumbnails/19.jpg)
Thank you
Annie Lau, PhD
Centre for Health Informatics
University of New South Wales
Email: [email protected]
www.chi.unsw.edu.au