EHDI Systems and the Medical Home Carlos Quezada-Gomez, PsyD National Center of Medical Home...
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Transcript of EHDI Systems and the Medical Home Carlos Quezada-Gomez, PsyD National Center of Medical Home...
EHDI Systems and the Medical Home
Carlos Quezada-Gomez, PsyDNational Center of Medical Home Initiatives for
Children with Special Needs
American Academy of Pediatrics
What Is a Medical Home?
A Medical Home ensures that:Care is accessible family-centeredcomprehensive continuous
coordinatedcompassionate
culturally effective
Primary care physicians serve as the medical home.
A pediatric sub-specialist may be appropriate in complex cases.
AccessiblePhilosophically• Efforts made to meet needs of all patients and families
Geographically• Care is provided in the child’s community
Financially• All insurance, including Medicaid, is accepted and
changes are accommodated
Family-centered
Family is the principal caregiver and the center of strength and support for children
Parents are experts on their own children and are a source of essential information
Unbiased and complete information is shared on an ongoing basis
Recognition that:
Continuous
Same primary health care professionals are available from infancy through adolescence
Primary care physician assists with transitions
- Hospital to home
- Home to school
- School to job or independent living
- Primary to secondary to tertiary medical care
Comprehensive Preventive and primary care is provided
As part of coordinating the child’s care makes contacts with all other providers, including audiologist,
otolaryngologist, therapists, EI, & school
discusses needs for respite care, equipment, transportation, etc.
provides information on Title V, SSI, SCHIP
assesses emotional, educational & health status at each visit
provides written information on relevant issues and support groups
Coordinated Makes referrals (and assists with setting up
appointments) to sub-specialists as needed, including mental health
Families are linked to appropriate support, educational, and community-based services
Information from other service providers is centralized
Primary Care Physician communicates effectively and collaborates with all service providers on plan for child’s care
Participates in the IFSP or IEP by phone, letter, or in person
Compassionate
“Gets to know” the family & has a comfortable relationship
Makes an effort to understand the family’s needs
Concern for well-being of child and family is expressed and demonstrated
Families’ values, beliefs, and behaviors are respected
Culturally Effective
Uses interpreters where appropriate (including sign language)
Has materials translated into the families’ primary language
Attempts to understand families’ beliefs and customs
Shared Responsibility
Accepts responsibility for services rendered
Maximizes quality while minimizing cost
Ensures that all needed services are delivered and avoids duplication
EHDI and the Medical Home
Parent Groups Mental Health
Birthing Hospital
Audiology
Primary Provider
Child/Family
ENT
GeneticsEarly Intervention Programs
3rd Party Payers
Deaf Community
Services for Hearing Loss
Addressing Medical Home Issues in Your Grant Application
• Identify references in Application Guidance
– MCHB Core Outcomes (p. 2)
– Requirements for Narrative (p. 13)
– Purpose of funding program (p. 20)
– Review criteria (pp. 21-22)
• Demonstrate your familiarity with the issues involved in linking EHDI with Medical Homes
• Describe your plan for addressing the above issues
• Link your plan to the evaluation procedures
Strategies to Link Screening to Medical Home
• Identification of Medical Home provider prior to screening
• Seamless transfer of results to the medical home
• Involvement of primary care physicians in EHDI advisory groups
The National Center of Medical Home Initiatives for Children with Special Needs
Phone: 800/433-9016, ext 7081Fax: 847/228-6432
Email: [email protected]
For More Information:
Technical AssistanceSunnah Kim
Manager, Screening Initiatives
e-mail: [email protected]
phone: 847/434-4924
Amy Gibson
Manager, Technical Assistance
e-mail: [email protected]
phone: 847/434-4989
National Center of Medical Home Initiatives for Children with Special Needs
(1999 - 2004)
American Academy of Pediatrics
Funded by the Maternal and Child Health Bureau,
Division of Children with Special Health Care Needs
National Center Projects
• General Newborn Screening Recommendations
• Project Universal Preschool Vision Screening
• Medical Home Training Program
• Universal Newborn Hearing Screening
• Technical Assistance
Universal Newborn Hearing Screening
• An AAP Task Force on Newborn and Infant Hearing was convened in Spring 1998• Developed a policy statement endorsing
universal newborn hearing screening in 1999• AAP has 2 delegates to the Joint Committee
on Infant Hearing• AAP endorsed the Year 2000 JCIH Position
Statement
Technical Assistance
• Specialized TA provided to help link screening to medical home
• Provided by National Center staff to all who are involved in community-based initiatives to ensure children with special needs have access to a medical home
• Mentoring program