Doing Dementia CA is the primary method of analysis Family conversations Data collection Ethics ...
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Conversation Analysis The ethics and data collection of naturally occurring conversations in dementia
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Transcript of Doing Dementia CA is the primary method of analysis Family conversations Data collection Ethics ...
Conversation Analysis
The ethics and data collection of naturally occurring conversations in dementia
Doing Dementia CA is the primary method of analysis
Family conversations
Data collection
Ethics
Safeguarding the participants
Why study conversation?
CA is a research tool which can be applied to all talk-in-interaction Courtroom Business meetings Interviews Emergency calls
Investigation of the interactional strategies employed by people with dementia and their co-participants
The lived experience of dementia happens at home, everyday, in the small mundane decisions we make
Data collection Informed consent
Privacy
Practical challenges – who will operate the recording device?
Recruiting participants
Ethics: informed consentcapacity to decideconfidentiality freedom from coercion
Participants: early stage dementiaacknowledging their diagnosismembers of the Alzheimer’s Society
Support by the Alzheimer’s Society
Project Design
Ethics Proposal Supporting letter from the Alzheimer’s Society
Information for Alzheimer’s Society staff
Information for potential participants Accessible format ‘Easy Read’ (DH, 2010) Given time to read, understand and ask questions Contact information provided
Demographic questionnaire
Consent form
Informed Consent Capacity to decide
Can the participant understand the research, and their part in it, well enough and for long enough, to make an informed decision?
Mental Capacity Act (2008)
Nuffield Council on Bioethics (2009)
Project design A multiple case study.
A snap-shot of the conversational abilities of people with dementia and their caregivers.
Video data of around three hours from up to 12 dyads
To explore the communication strategies of PWD and their everyday conversational partners.
Recruiting participants
Members of the Alzheimer’s Society valued this kind of research. Both people with dementia and caregivers felt it was an important area for research. Communication was one of the major issues that affected daily living in the early to mid stages of dementia.
FeedbackMembers told me…
They had too much on
Medical complications
Already involved in other research
Operating a video recorder would be problematic
They were ‘private’ people
Project design (2)A detailed single case study
Mixed methods approach
Primarily CA
Semi-structured interviews
Observations from wider involvement with PWD
Audio recorded conversation
Participant consent
Contact with Alz
staff
Discussion with
researcher at Alz group
Meeting at participant
s’ home
Caregiver offers
additional support
A complex case study
Person with
dementia
Primary caregiver
Other family
members
community
Thank you
I am grateful for the support of the local branch of the Alzheimer’s Society and of course to the generous families who have taken part in this project.
