Discovering the artist within

ParaQuadNewsPARAPLEGIC & QUADRIPLEGIC ASSOCIATION OF NSWISSUE 3 / SEPTEMBER 2014

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For the latest news visit Facebook: ParaQuadNSW or www.paraquad.org.au

Discovering the artist within

Ferguson Lodge Choir performs at the Opera House

Meet our Clinical

Programs team

with Rhys James

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ParaQuad News • jaNuary 2010 1ParaQuad News • jaNuary 2010

ParaQuad Sydney Office6 Holker st, Newington Nsw 2127PO Box 6347 silverwater dC 1811Ph: 02 8741 5600 Fax: 02 8741 5650e-mail: [email protected] Services Hotline: 1300 662 822

ParaQuad Northern Region Office65 The avenuewickham Nsw 2293Ph: 02 4969 6388Fax: 02 4961 6101e-mail: [email protected]

Advertising and Editorial EnquiriesPh: 02 8741 5669 Fax: 02 8741 5650e-mail: [email protected]

Board of DirectorsOffice bearersMr anders Halvorsen* – ChairmanMr john renshaw – deputy ChairmanDirectorsMr Peter debnamMs joy CusackMr Brian Cohen*Mr Philip McCreaMr steve Osborne

Mr Mark Tonga** Denotes person with a disability

We welcome your contributionParaQuad News welcomes contributions. we cannot guarantee to publish every article we receive, but we will give all contributions careful consideration. Please discuss your proposed contribution with the editor on 02 8741 5627. digital photographs need to be a high-resolution .jpg or .tiff (at 300dpi).

Disclaimer:The views expressed in ParaQuad News do not necessarily reflect those of ParaQuad Nsw (the Paraplegic and Quadriplegic association of Nsw). The publisher cannot ensure that each advertisement complies with the Trade Practices act. responsibility rests with the advertiser.

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Chairman’s Column

ContentsWelcome to the September issue of ParaQuad News. This issue reminds us all that we are surrounded by many talented people, and that for many people (when initially faced with life after a spinal cord injury) realising these talents or identifying new talents can be a challenge. We have a number of members featured in this issue that are sharing their talents and passions. The artistic flare of Rhys that has

been recognised by organisations locally and internationally, can provide inspiration to our many art-related scholarship holders as a testament that art can provide a lifetime of enjoyment and potentially a source of employment.

Art can come in many forms and there is something to be said about how music can light up a room and can transcend generations. What a blessing it is to see that making music is now possible for all levels of musical and physical ability and in this issue you can read how it has been able to bring a family a little closer together.

The NDIS has now been in the Hunter region for 12 months and it is encouraging to see continued positive outcomes for those in the region that have now transitioned into the scheme and how our northern region branch has been able to assist when requested. As the next Local Government Area comes into the scheme, ParaQuad is pleased to be able to expand its OT offering to support this. A new Occupational Therapist (OT), Erin Doyle is based in the Hunter region which will allow for a timely OT service for our local northern region branch constituency.

Our northern region branch continues to show us what a close knit community can do together with the ever growing social calendar of exciting events. Many sporting pursuits both casual and competitive are now made possible. Thank you to Grant Nickel for sharing his story on his recent handcycling success and for joining our northern region handcycling enthusiasts to share some tips to stay safe while pursuing this sport.

I am pleased to say that the financial year 2013/14 ended well and this provides ParaQuad with a good platform to begin the next financial year. Maintaining the viability of the organisation is paramount to ensure that we can continue to deliver services to our members, clients and customers of ParaQuad and BrightSky. I would also encourage all our members to join us in Newington for the upcoming AGM on 19th November as we report on the year’s outcomes and look to the future.

RegardsAnders HalvorsenChairman

12

A translation and interpreting service is available to assist with ParaQuad services. Assistance is available in 160 languages.

22 Northern Region Update

AGM Notice19 November 2014, 3pm at 6 Holker Street, Newington

Japanese experts hear about EB Dressing Scheme

Grant Nickel wins gold!

Lifestart launches Oi

22

28

6 Let there be music - Jamboxx9 Autonomic Dysreflexia14 The wide brown land for me

ParaQuad News • sePTeMBer 20144

FEATURE

Unlocking the inner passionan talent

In 1998, this very experience happened to Rhys. Without warning he went to sleep able to walk and then woke up unable to move. The diagnosis was Transverse Myelitis resulting in paraplegia.

Rhys lived in the Port Stephens area however due to the rarity of this disorder, Rhys did not experience the rigorous rehabilitation process that people would generally go through post spinal cord injury. He spent 4 months in hospital while he waited for his home to be modifi ed. With very little support after his time in hospital, Rhys adjusted to his new life circumstances as best he could and returned to his school (which was accessible).

From Rhys’ early years before he became paraplegic he enjoyed taekwondo, golf and science fi ction

movies. He had originally wanted to be an architect until the length of time to become an architect put him off. His love of drawing however did not wane and while still in school (about Year 10) he discovered he could draw. In Rhys’ words “… a bit better than some of the others…”

After Year 12, Rhys completed a TAFE IT course however his passion was not in IT, so he then completed a Fine Arts course at TAFE - the campus was more accessible than the university campus and the TAFE course was a more practical hands on course. Digital Art was an emerging medium at the time and Rhys enjoyed exploring what he could do in this new digital world.

Imagine going to bed at age 13 thinking about what you just did at school and what challenges the rest of the week will bring, only to wake up in the morning and not be able to walk.

p

Watching him work in his studio demonstrates how with passion, skill and vision anyone can be successful and enjoy what they do for a living.

FEATURE

ParaQuad News • sePTeMBer 2014 5

Science fiction is still a genre that Rhys enjoys and it is often the subject of his art. Rhys is an accomplished artist with traditional mediums (oils, watercolours, charcoal etc) and also in the digital art medium. He has exhibited five times at the Supanova pop culture exhibition (in Sydney) and his artwork has also been exhibited as part of The Walking Dead show in Los Angeles. In addition to his Sci Fi inspired work, Rhys also has a number of elegant romantic pieces representing some of the most beautiful women to have ever graced the silver screen

(Marilyn Monroe, Audrey Hepburn – to name a few). Rhys will attest that the challenge for any artist that encapsulates different eras and genres is to be able to keep the feel of the era authentic. Rhys works throughout the year for each exhibition and during that time can create 40-50 new pieces.

Rhys creates his digital artworks by using a pressure sensitive touch screen which Rhys describes as “like drawing on glass”. The ability to replicate the paper drawing techniques onto this technology has been self taught (mostly) by reading articles and experimentation.

In 2007 Rhys began to turn his hobby and passion into a career. He now has a commercial aspect to his art. The challenge for Rhys in that many clients don’t

always know what they want (or can put their thoughts into words) however his ability to take a brief and turn it into a commercially viable piece of work is one of the reasons he has seen success here and abroad. He has clients in Australia and overseas including comic book covers, magazines covers (Mens fitness and Penthouse, Limelight, etc), musical artists album covers, documentary posters and movie promotion artwork.

Rhys relocated to Sydney in 2012 and has since set up his own studio at home. Watching him work in his studio demonstrates how with passion, skill and vision anyone can be successful and enjoy what they do for a living. To see some more of Rhys’ artwork go to: http://rhysjamesillustration.com/

Transverse Myelitis is a neurological disorder caused by inflammation across both sides of one level or segment of the spinal cord. It can occur in adults and children, both genders, in all races and with no apparent links to family medical history. It is estimated that 1-5 people per million are diagnosed. In the USA there are approximately 1,400 new cases each year, in Australia the number is much smaller.


FEATURE

Let there be music...

He got in contact with Mike and Dave, the brains behind the device and after a few conversations he was lucky enough to become a Beta Tester and a couple of weeks later Richard received a prototype to begin testing.

The best way to describe the Jamboxx device is that it looks like an electronic harmonica. When accompanied with the Pro Suite software you can select any of the 24 default instruments that are available, for example harmonica, fl ute, bass guitar, violin, saxophone just to mention a few. People using this device do not have to have any formal music training or need to be able to read music. The software provides the opportunity to “play by the numbers” that come up on the screen with the tunes. In Richard’s words “I don’t have a musical bone in my body but after a few hours I was very impressed at what I was able to do”.

It has been designed so that it can be used by someone with very limited breath. People all over the world that are on a respirator had no problem using it and the

only limitation is a persons imagination not their ability. Richard recalls he was busy playing one evening long after receiving the Jamboxx, when his nephew and partner turned up with their three children (all under four years of age). When the children heard the music they came running into his room where they stood beside him smiling and watching attentively to him playing. When he fi nished playing “You Are My Sunshine” all three at once said “more please” so he continued playing different tunes. Richard was delighted as he was able to connect with them in a way he had not been able to previously. In his words “it was totally awesome being able to do something with them like that”.

The Jamboxx is not just a musical device; it can also be used as a mouse/game controller. Dave Whalen, one of the creators, is a person with high-level quadriplegia like Richard and uses Jamboxx to paint the most amazing paintings using a program called “ArtRage”.

As more people start creating different software to use with it, the uses for the device will be endless. Richard has also used the Jamboxx to play computer games that previously he could only watch others play. He recalls that the first time he went to a website where he could play downhill skiing just by moving left then right & sipping & puffing, he did it for hours “it was so much fun finally being able to play games rather than watching somebody else”.

Richard loved it so much that now that testing is over he has bought his own brand-new model!

Richard broke his neck in 1983 after diving off a bridge south of Wollongong, which resulted in C4/5 spinal cord injury. Midway through 2013 he discovered a device that would allow him to play music. It is called “The Jamboxx”.

partner turned up with their three

To see more about Jamboxx go to http://www.jamboxx.com/


FEATURE

In 2004 Anders took the step to join the ParaQuad Board of directors. The reason – in his words “he wanted to give something to the ParaQuad community”, his desire was to be of some help. In November 2012 he was elected to the position of Chairman.

Being a member of the ParaQuad Board is not just about attending a couple of meetings a year. All the Board members sit on a variety of sub-committees. The role of sub-committees is to explore areas at a higher degree of focus than can be done during a full Board meeting if the subject matter requires it. Anders has always been an active Board member and currently sits on three sub-committees: the Finance and Risk Committee, Governance Committee and the Remuneration Committee.

The purpose of the Finance and Risk Committee is of high importance as it explores in detail any potential issues that may

affect the organisation fi nancially and also from a risk perspective. These concerns are then analysed and taken to the Board to ensure risks are mitigated where possible and the fi nancial sustainability of ParaQuad is monitored and addressed.

The Governance Committee is responsible for developing the Governance statement for the organisation which is vital for maintaining the various quality accreditations, and outlines the roles and responsibilities for Board members. Some of these responsibilities include the long-term fi nancial viability of the organisation, compliance with statutory and legal requirements and representing ParaQuad on external committees in advocacy and other consultative forums.

Anders is also an active member of his local community. He sits on three other Not-For-Profi t boards, the North Coast Community Housing (900 tenancies for low

income earners on the North Coast of NSW), the Irene Gleeson Foundation (providing education, food and medical help to children in northern Uganda) and the C3 Church Ballina (a contemporary church with two campuses – Ballina and Byron Bay).

Anders has been married to Julie for 40 years and has three “miracle” children and two grandchildren. He has completed a Masters of Business Administration, is a Member of the Australian Institute of Company Directors and is a Justice of the Peace. He also runs his own consulting business where he provides consultation services to businesses on the North Coast.

Meet our Chairman of the BoardMeet our Chairman of the BoardMeet our Chairman of the BoardMeet our Chairman of the Board

In memoryMr George Sidiropoulos15.5.45-8.8.1469 years old

George Sidiropoulos was born in Greece and immigrated to Australia in 1963. George had a car accident in 1971 resulting in a T5 spinal cord injury. Originally he came to Ferguson Lodge for respite then as a permanent resident in July 2012. He loved living there and quickly became friends with other residents and employees. George loved to garden and nurtured the lemon tree back to health. He loved growing fl owers and was looking forward to coming home and preparing the new gardens beds for Spring. George was known for his kind generous nature and a man who enjoyed life. George is survived by a caring and loving sister, Margaret. George will be sadly missed by all who work and live at Ferguson Lodge.

Mr P.N (Nigel) GlassSpine and Limb Foundation (Inc.), WA

Mr Nigel Glass passed away on 22nd May 2014 after a long battle with brain tumours. Nigel was a man of great conviction, intellect and commitment. His drive to ensure the sustainability of the Foundation (and the Foundation’s predecessors the Paraplegic-Quadriplegic Association and Civilian Maimed and Limbless Association of WA) was rarely faulted in his 29 years of service. Nigel sat on many Boards and committees across WA and at both State and National levels. ParaQuad’s CEO Max Bosotti worked alongside Nigel (and other executives of spinal injury organisations) during the formation of the Australia Spinal Injury Alliance during 2013.

Mr Anders Halvorsen had a motor cycle accident on his way to the Bathurst Bike races on 21st April 1973 (Good Friday). This resulted in paraplegia due to a complete T4 spinal cord injury. Anders joined ParaQuad NSW as a member in July 1973.


FEATURE

BrightSky Australia and ParaQuad NSW expand and consolidate clinical servicesThe Clinical Programs team provide free clinics and fee-for-service offerings for continence, wound care, spinal care, occupational therapy, peer support and social work services.

The free clinic at our Newington offi ce provides an advisory service for clients who need help with product usage issues related to pre-identifi ed medical conditions in relation to continence, wound care, spinal and aged care. Individual consultations with the Clinical Nurse Consultants are available free of charge at the BrightSky offi ce in Newington.

Our Occupational Therapists free clinic at Newington includes a seating clinic and splinting service. Additional services that our OTs can assist with include general home modifi cations assessments, NDIS and LTCS assessments.

Meet the nursing team! Kylie Wicks CNC (Level 3) Spinal/ ContinenceDip Applied Science (Nursing), Bachelor of Health (Nursing), Certifi cate of Spinal Cord Injury Nursing (College of Nursing), Certifi cate Continence Management (College of Nursing), Certifi cate IV Work Place Training. Currently enrolled ACU Master of Nursing Research.

Extensive experience in spinal care nursing. Currently in clinical consultancy in continence and wound care management for people with a disability and people of all ages who experience continence issues.

Providing education at a local and national level in the management of neurogenic incontinence and associated equipment prescription.

Winner of the 2013 NSW Disability Industry Innovation Awards, Emerging Leader category, for development of 3 product selection tools to assist health professionals prescribe the most suitable continence products. The tools are available in print or via Apple app store, Catheter Compass™, PadNavigator™ and DomeDirector™

Rita Cusmiani CNC SpinalCertifi cate IV Training and Assessment, Certifi cate of Rehabilitation Nursing, Certifi cate of Spinal Cord Injuries, Bachelor of Applied Science (Advanced Nursing).

27 years experience in the fi eld of Spinal Injuries Nursing, including Clinical Nurse Consultant at the Royal North Shore Spinal Unit and Clinical Nurse Consultant Royal Rehab Spinal Unit, Sydney. Currently practicing as the part time Clinical Nurse Consultant Spinal/Continence at BrightSky Australia.

6 years experience in facilitating the Attendant and Personal Care training for ParaQuad NSW.

Extensive experience in the area of assessment and health management of people with a SCI, and in completing Care and Continence prescriptions for various community service providers.

Jennifer Greenaway CNC Spinal/ Aged CareBachelor of Nursing (UWS), Graduate Certifi cate of Spinal Cord Injury Nursing (UTS), Graduate Certifi cate Aged Care Nursing (College of Nursing).

Extensive experience in the fi eld of Spinal Cord Injuries Nursing in senior nursing roles with the NSW Spinal Outreach Service, Prince of Wales Spinal Injuries Unit , the NSW Paediatric Spinal Outreach Service, Spinal Unit Royal Rehab Centre Sydney and at ParaQuad NSW. Recent experience as a Clinical Nurse Educator Aged Care at War Memorial Hospital.

Clinical expertise in assessment and health management of persons who have sustained a Spinal Cord Injury with special interest in continence, skin management and sexuality. Expertise in continence equipment prescription. Experience in facilitating and delivering education and training.

Louise Stevens CNC Epidermolysis Bullosa (EB)BSc (Hons) in Professional Nursing Studies, Certifi cate IV Work Place Training, Certifi cate in Paediatric and Neonatal intensive care nursing. Advanced Neonatal Resuscitation course and Workplace Clinical coaching certifi cate.

Louise has presented about EB and wound care at many national conferences. Her articles have been published in UK, Australian and International wound care journals. Two published posters shown nationally and internationally.

Currently practicing as an expert in EB wound care and clinical consultancy in wound care management for people with a disability and people of all ages.

Winner of the 2013 NSW Disability Extensive experience in the fi eld

Clinical Programs Team


Brought to you by the Spinal Wellbeing Service.

Autonomic Dysrefl exia

What is it?Autonomic Dysrefl exia (AD) can be caused by stimulation below the level of the spinal cord injury. This stimulation is generally in the form of pain. The pain can start an autonomic dysrefl exic episode, causing constriction of blood vessels and a rapid rise in blood pressure.

If the cause of AD is not found and managed, blood pressure can rise to dangerously high levels which, if untreated, can lead to stroke and death.

Autonomic Dysrefl exia is a medical emergency that requires immediate attention.

Who gets it?It can occur in people with spinal cord injury at or above the sixth thoracic level (T6). AD does not usually affect people with a spinal cord injury below T6.

What are the signs and symptoms?A sudden rise in blood pressure is always present. Other than this, each person will show different signs and symptoms. Some of the things you may notice are:

• A pounding headache

• Flushing/blotching of skin above the level of injury

• Sweating above the level of injury

• Goosebumps above the level of injury

• Shortness of breath or a feeling of anxiety

• Nasal stuffi ness

• A slow pulse

• Blurred vision or seeing spots

What are some of the common causes?Bladder: The pain of having a full bladder can commonly cause AD. Examples of causes of a full bladder include: a full leg bag, delaying intermittent catheterisation, a blocked or kinked catheter, or a urinary tract infection. Kidney stones can also be a cause.

Bowel: Constipation, a full bowel, haemorrhoids or other rectal irritations.

Skin: Pressure ulcers, burns, in-grown toenails, or tight clothing.

Other: Some other causes may be fractures, sexual activity,

pregnancy, period pain, distended stomach, or a peptic ulcer.

What is the treatment?It is recommended to always seek the latest information on treatment. Go to NSW Health’s website and see: Autonomic Dysrefl exia Algorithm, which is a fl ow chart of steps to take to resolve an episode of AD.

• Don’t panic

• Sit up

• Find and remove the cause

Autonomic Dysrefl exia (AD) is a condition that commonly affects people with a spinal cord injury at or above T6. This condition can be distressing and dangerous. It is important to be aware of the signs and symptoms of AD so that management of this condition can be started immediately. Quick management will commonly lead to a quick resolution of AD.

HEALTHSPOT

continued next page

pregnancy, period pain, distended stomach, or a peptic ulcer.

What is the treatment?It is recommended to always seek the latest information on treatment. Go to NSW Health’s

and see: Autonomic Dysrefl exia Algorithm, which is a fl ow chart

to take to resolve an episode of

• Sit up

• Find and remove the

continued next page


HEALTHSPOT

For Bladder related causes:• If you self-catheterise, pass a

catheter and empty the bladder using generous amounts of lubricant

• Check that your catheter is not blocked or kinked, or that your leg bag is not over-full

• Empty your leg bag

• If necessary change the catheter, using an anaesthetic gel at the catheter site to numb the area

For Bowel related causes:• Gentle manual evacuation or

the use of an enema/suppository may be needed if you suspect you may be constipated

• Use an anaesthetic gel to lubricate the glove

Should you be unable to fi nd and remove the cause you may need to take your prescribed antihypertensive medication such as GTN as directed by you treating physician.

If symptoms persist call an ambulance (paramedic) and seek medical assistance as soon as possible

What is GTN?Glyceryl trinitrate (GTN) is a medication that works by widening major arteries thereby reducing blood pressure. This drug is sprayed under the tongue and can be repeated after fi ve minutes if the symptoms have not been resolved. Up to three doses can be

Nursing Practice Related to Spinal Cord Injury and Disorders: A core Curriculum Nelson, Zedjdlik & Love EPVA 2011

11ParaQuad News • sePTeMBer 2014

HEALTHSPOT

given within 30 minutes. GTN is available in the following forms:

1. Nitrolingual Pumpspray (GTN spray)

2. Anginine tablets: ½ tablet is given under the tongue (the tablet should be spat out when blood pressure settles)

3. Transdermal nitro patches: These are applied to skin of the chest or abdomen and should be removed as soon as the blood pressure settles

The main side effect of GTN is a dramatic lowering of the blood pressure, which can cause a headache, fl ushing and/or fainting.

WARNINGBefore administering GTN, always check for recent use of medication for erectile dysfunction. Do not use GTN spray, tablets or patch

if viagra (sildenafi l) or levitra (vardenafi l) has been used in the past 24 hours or cialis (tadalafi l) has been taken within the past four days.

Important TipsAttempting to solve the problem has the potential to worsen the situation as it may irritate the cause, at least temporarily (e.g. unblocking a catheter or emptying the bowel) so remember to take great care when doing this.

When it is not possible to immediately resolve the cause of AD (ingrown toenail, a broken bone, a burn, etc.), pain-killing medications can help relieve pain and therefore the AD. Keep your GTN close to you at all times and be aware of its expiry date. GTN spray should be replaced three months after fi rst opening. It

should be stored away from heat and sun. Remember: If symptoms persist, call an ambulance (paramedic) and seek medical assistance as soon as possible.

It is important you know what to do, as others (including some healthcare professionals) may not. Always carry an Autonomic Dysrefl exia Medical Emergency Card with you as it can be a helpful reference for other people during an emergency. Contact State Spinal Services, ParaQuad NSW or SCIA for your free card.

References and Further Resources• Ambulance: 000

• Your local doctor or spinal specialist

• Autonomic Dysrefl exia Treatment Algorithm: www.aci.health.nsw.gov.au/__data/assets/pdf_fi le/0019/155143/algorithm.pdf

• Treatment of Autonomic Dysrefl exia for adults and adolescents with spinal cord injuries, (2002), Middleton,J, Revised 2010 http://www.aci.health.nsw.gov.au/__data/assets/pdf_fi le/0007/155149/Autonomic-Dysrefl exia-Treatment.pdf

• Autonomic Dysrefl exia Emergency Cardwww.aci.health.nsw.gov.au/__data/assets/pdf_fi le/0020/163442/Medical-Emergency-Card.pdf

• Video presentation on Autonomic Dysrefl exiahttp://www.aci.health.nsw.gov.au/resources/clinician-resources/spinal/video-presentation-on-autonomic-dysrefl exia

Email you request to: [email protected]

General advice will be published without taking into account your particular situation and needs. Before making any decisions based on information or advice contained in ParaQuad News, explicitly or implicitly, you should seek advice.

Do you want more information on a particular health

management strategy?


FEATURE

Japanese experts hear about

ParaQuad and BrightSky’s Epidermolysis Bullosa (EB) expert, Louise Stevens presents the Australian experience and the anecdotal improvements to patient outcomes since the introduction of the National EB Dressing Scheme (managed by BrightSky Australia) during the recent Japanese Society of Wound, Ostomy and Continence (JWOC) Management conference.

Louise Stevens, Clinical Nurse Consultant Epidermolysis Bullosa/Wound Care for BrightSky Australia, was recently invited to speak at the JWOC conference in Japan. This was no mean feat given the language barrier and translation requirements to make this happen. However Louise and a team of translators successfully managed to translate the 60 slide presentation on Nursing Management of EB and the National EB Dressing Scheme (an Australia-wide scheme making very expensive dressings accessible to people with EB). In addition to the slide translation, participants had access to headsets for a real time translation via interpreters during the presentation.

After the presentations, long and fruitful discussions took place with EB experts and DEBRA Japan (Dystrophic Epidermolysis Bullosa Research Association in Japan) looking at how they could incorporate the Australian experience of nursing care, education and access to dressings into their own strategies for future care for people with EB in Japan. The Japanese participants were grateful for the presentation and time given by Louise and Professor Katsuto Tamai (Dermatologist at the Department of Stem Cell Therapy Science, Osaka University) and keen to continue to foster an ongoing international relationship to ensure that people with EB across both nations can benefi t from each others learnings.

During the conference Louise was also asked to provide feedback on four seminar presentations by medical students who were presenting in English for the fi rst time. This was a great honour for both the medical students and for Louise.

Epidermolysis Bullosa experts in Japan hear how Australia is bringing better access to appropriate dressing to patients in Australia from our very own expert.

For detailed information about EB, including research papers, wound dressing education and links to national and international organisations, please visit the National EB Dressing Scheme website www.ebdressings.com.au

For further information about EB and its support and research group in Australia DEBRA (Dystrophic Epidermolysis Bullosa Research Association), visit www.debra.org.au

Australian Epidermolysis Bullosa Dressing Scheme


Dubbo, still the friendly locals and cold beer however the centre of the Central West region has morphed into an inland oasis, with broad shady streets, a wheelchair friendly mall that would make a capital city proud and a sense of history still lingering around the banks of the Macquarie River and the many historical sites around this bustling city.

For those interested in the legal history of Dubbo there is the Classical Victorian Dubbo Court House, complete with the original wood panelling and fi ttings (and the addition of wheelchair access). In many cases criminals would have ended up in another Dubbo landmark, the Old Dubbo Gaol, around the corner from the Courthouse. This chilling reminder of our more brutal past, was thought to be built in 1871 and continued as a gaol till 1966. Walking, or wheeling – the whole site is wheelchair friendly - into the

huge wooden doors is like entering another world. To discover the real experience of prison life, take one of the guided tours available at the gaol. A staff member can be provided if assistance is needed. The Twilight Tour is especially good, with visitors able to watch out for the resident ghosts!

No visit to the Central West would be complete without visiting the Western Plains Zoo, which is located south of Dubbo, around fi fteen minutes from the CBD.

The Zoo is big, so allow enough time to visit all the animals, or you can book an early morning walking tour. This is a fabulous way to see the collection of rare and endangered wildlife. A later start is available for keeper talks, so you can see a koala up close, feed a giraffe, enjoy a meerkat encounter and learn more about this dynamic tourist attraction. Both these tours can be booked, let the staff know

that you use a wheelchair and they will ensure you get around safely.

The Zoo is reportedly the next best thing to viewing animals in the wild, as you drive, walk or wheel around the one way sealed 6 km circuit. Bicycle and electric safari cart hire is available or you can use your own mode of transport to get up close to the animals.

You will fi nd excellent disabled access to all the exhibits, the café and resource area as well as

TRAVEL

By ParaQuad Member and Freelance Journalist Allan Sams

Allan Sams is a ParaQuad member and freelance journalist who recently returned to the Orana region of western NSW. He had not been back to the region for many years, but things have changed and all for the better.

that you use a wheelchair and they


accessible toilet facilities scattered throughout the zoo.

Another must see, if you are interested in culture and the arts, is the Western Plains Culture Centre, located just minutes from the CBD. Entry to the Centre is free. This award winning facility weaves together Dubbo’s past and present. The art gallery is said to be the largest west of the ranges, with more than 700 square metres of display space. The centre has good

wheelchair access and facilities, so be sure to plan a visit.

Take a thirty minute drive east of Dubbo to the bustling town of Wellington, with its wide streets and extensive parklands, which sits at the foot of Mount Arthur.

The Wellington Caves complex, ten minutes east from town, are a great tourist attraction. The Caves cannot host wheelchair visitors, but there is an adjacent phosphate mine with good access.

There are three disabled accommodation properties within the Dubbo area and two in Wellington. Check with the friendly team at the Dubbo Information Centre, or at the Wellington Tourist Information Centre for more detailed information.

I booked online and stayed at the Walls Court bed and breakfast, which is close to the Western Plains Zoo. This four star B&B is arguably the best disabled accommodation I have experienced. Fresh strawberries and yoghurt in the fridge, fresh homemade bread, an enormous bathroom and shower set up and comfortable beds at the right height. Visit their website for a closer look and you can book on-line. (www.wallscourt.com.au)

TRAVEL

Accommodation at Western Plains Zoo The recently upgraded Zoofari Lodge has 10 new African inspired lodges including an accessible lodge, featuring a ramp for access, king bed and sofa bed, wide doorways and fully compliant wheelchair accessible bathroom. The lodge can sleep up to four guests.

Alternatively there is the Savannah Cabins - self contained accommodation, . One cabin is equipped with disabled access including an accessible bathroom and access ramp.

Accommodation at

Getting there:Regional Express and Qantas operate from Sydney to Dubbo using SAAB and Dash 8 aircraft. Check with the airlines on their policy for travellers requiring assistance when you book.

CountryLink also operates a daily train service from Sydney to Dubbo and when booking, let them know that you use a wheelchair as there is an accessible carriage with easy access to toilet facilities on board.

Driving from Sydney to Dubbo will probably take around fi ve to six hours.

Private cottages, country hospitality

Your hosts are Neil and Nancy Lander11L Belgravia Heights Road, Dubbo, NSW 2830Tel: 02 68873823 Email: [email protected]: www.wallscourt.com.au

Relish the tranquility and comfort of your Walls Court suite as you laze on the veranda observing the birds in the garden.

Your hosts are Neil and Nancy Lander

Watch the joy your children have feeding chooks, patting dogs and

gathering eggs. Gain more from your visit to Western Plains Zoo; we are

volunteer guides.

Revel in crowd free shopping precincts or savour the wine tastings and regional cuisine at nearby wineries. Explore attractions yourself or take advantage of our familiarity with the area. Learn a new craft by making a pair of silver earrings for a small additionalcost.

Eftpos available. All credit cards accepted


FEATURE

In February 2014 the Sydney Markets Lions Club, a long time supporter of ParaQuad NSW, made a generous donation to ParaQuad to assist residents at ParaQuad’s accommodation facility in Lidcombe – Ferguson Lodge. In collaboration with Cherry Cameron, the Accommodation Manager, it was decided to purchase wheelchair accessible garden beds with the funds donated by the Lions Club. Many of the residents have had gardens in their own homes prior to their injury and/or coming to live in Ferguson Lodge.

The six garden beds are in the back garden area near a fountain and BBQ area with plenty of room to navigate around and between the garden beds. The Ferguson Lodge gardener, Bill, purchased and set up the garden beds ready for the residents to plant, weed, harvest

and till the soil and ultimately enjoy the “fruits” of their labour. Apart from the enjoyable activity of gardening, the garden is producing spinach, leeks and lettuce with the intent of planting more vegetables and herbs to supplement the kitchen pantry.

Ferguson Lodge resident – Tony is a keen gardener and is overjoyed at the prospect of being able to get his hands dirty in the “new” garden beds and grow vegetables. Tony grew up on his family owned market garden in Quakers Hill so gardening is in his blood. Gardening is something he has not been able to easily enjoy since he acquired his spinal cord injury 10 years ago.

ParaQuad would like to thank the Sydney Markets Lions Club for providing fi nancial assistance and making gardening a possibility for the residents at Ferguson Lodge.

Lions Club assists Ferguson Lodge residents

Tony is keen to enjoy the gardening experience thanks to The Sydney Market’s Lions Club

Tony showing Robyn, a ParaQuad staff member, the garden produce

Cherry Cameron, Ferguson Lodge Accommodation Manager and Charlie Tutty BrightSky’s National Sales Manager accepting a donation cheque from Ray Lawler, Treasurer Sydney Markets Lions Club.

Cherry Cameron, Ferguson Lodge Accommodation


FEATURE

With fi nancial assistance of up to $5000, the scholarship program supports educational pursuits at an accredited institution as well as assistance to pursue a sporting career.

To be eligible for a scholarship, applicants must:

• be an Australian Citizen or Permanent Resident (residing in NSW/ACT)

• have a spinal cord injury

• have a high level of academic record

• demonstrate motivation and perseverance towards goals

• be or become a member of ParaQuad NSW

The scholarship program can assist with funds to cover the following costs:

• Education/course fees for one year

• Course excursion funds or residential expenses

• Carer’s allowance contribution

• Hardware and tools assistance

(such as scribes and typing

services)

• Computer system (hardware and

software required for the course)

• Introductory computer use

training (tailored to the specifi c

needs of the individual)

• Textbooks and supplies

• Additional supporting tuition

2015 Scholarship ProgramProviding education assistance to people with a spinal cord injury

The ParaQuad NSW Scholarship Program provides people who have a spinal cord injury the opportunity to study, retrain and obtain skills for future employment. The 2015 scholarship applications will be available from November 2014.

Emily, a 2014 scholarship recipient says...Receiving a Paraquad Scholarship has assisted me in my return to university following my accident in 2012. My aim is to complete the Graduate Diploma of Psychology at The University of Sydney with the intention of completing higher degree studies to become a clinical psychologist.

Peter, a scholarship recipient for the past 2 years is undertaking a Masters of Fine Arts at Sydney University. His thesis is on the effects of art therapy for people with a spinal cord injury and one day may allow him to continue a career in teaching art.

Samia, a scholarship recipient for the last 2 years is able to use her scholarship funds to assist her to continue with her Bachelor of Science - Psychology.

For more informationVisit ParaQuad website: www.paraquad.org.au • email: [email protected] • Phone: 02 8741 5669


NDIS one year on...

Year two has now commenced with Lake Macquarie the next Local Government Area (LGA) trial site. This area will present a new set of challenges for the National Disability Insurance Agency (NDIA) as it is a signifi cantly larger LGA however now that the NDIA have established their employee base it is anticipated that the transition of individuals into the NDIS will be done in a timely manner.

To date the Hunter Branch of ParaQuad NSW has assisted over 20 individuals in numerous aspects of the NDIS including:

• General information

• Guidance and support in accessing the ”My Access Checker” on the NDIA’s website

• Pre-planning support and guidance

• Attending and providing support during planning appointments with the NDIA

• Advice and guidance on the supports received with their Plans

• Provision of direct supports as chosen by the Participant.

The feedback we have received and are continuing to receive from Participants is overwhelmingly positive with most reporting at least a moderate enhancement of supports.

Historically an individual’s level of support prior to the NDIS has varied as people were required to know what Government assistance was available and which Government agencies to liaise with. Different funding arrangements had a variety of access criteria and some had co-payment or annual

participant charges as part of the funding. Working with one agency has streamlined the process for individuals and has aligned the majority of funding into one place.

In addition to the benefi ts of liaising with a single government agency, additional supports are available for people with paraplegia that historically have not been available, for example people with paraplegia prior to the NDIS were generally only eligible for:

• CAPS (Continence Aids Payment Scheme) funding, total value capped at $533 indexed annually

• Enable funding for equipment and possibly continence, attracting an annual $100 Co-Payment fee

• Possibly may be able to receive domestic assistance through Home Care, average hourly co-payment charge $10.00

Additional funded supports that are potentially available to a Participant of the NDIS for a person with paraplegia all with a nil co-payment include:

• Total funding support for continence items relating to their evidence-based need

• Clinical Continence Assessment, if this has been identifi ed as needed,

• Equipment/maintenance (and OT Assessment if identifi ed as required) within their NDIS plan

• Household supports/domestic assistance

• Support with shopping if needed

• Yard Maintenance including gardening/mowing depending on Participants type of residence

• Vehicle Modifi cations, primarily hand controls for a Participant with paraplegia

• Home Modifi cations if needed

• Social Support, if identifi ed as needed and or requested within the Planning process

It is important to consider this opportunity at any level of SCI and we encourage anyone that is either about to transition in Lake Macquarie or still possibly unsure whether they may be eligible to receive support under the NDIS to either contact ParaQuad or their current provider. The evidence we have received to date is this will help provide the best possible outcome within your Plan of supports!

The National Disability Insurance Scheme (NDIS) has recently reached the fi rst anniversary since the NSW trial in the Hunter began. This means that most if not all individuals that have been deemed eligible to receive supports and that reside in the Newcastle LGA have now entered as Participants of the Scheme.

If you live in the

LGA sites and would

like to become a

participant in the

NDIS, contact our NDIS Program

Manager, Grant Roulstone on:

Tel: 02 4969 6388 or Email:

[email protected]

Website: www.paraquad.org.au

The feedback we have received ... from Participants is overwhelmingly positive ... reporting at least a moderate enhancement of supports.

FEATURE


Grant sustained his C6 spinal injury approximately 30 years ago whilst riding his bicycle. Two years ago, a couple of wheelchair rugby friends encouraged him to try handcycling as they were also handcyclists themselves. In Grant’s words “they knew I liked a challenge and to exercise regularly and they were guessing that handcycling would be a perfect fi t. They guessed right!”

Each year Cycling Australia holds the National Para-cycling Series. The series is comprised of four rounds, each is held in a different State around Australia. The fi nal round is the National Championships and is the pinnacle of road racing for para-cycling in Australia. For the National Championships, well over a hundred people with vastly different disabilities converge on Echuca, a beautiful country town in Victoria to participate.

Depending on the level of someone’s injury or physical ability to participate, each rider is assessed and given a classifi cation. Grant is in the H1 classifi cation, which is for riders that are C6 or have less function. This year he received a silver medal for the time trial, a silver medal for the road race and gold medal for the 2014 series as he fi nished top of his classifi cation in the series. H1 is a newly introduced class in 2014, which has given riders with limited triceps the opportunity to

be competitive at an international level for the fi rst time.

Those classifi ed H1 through to H4 ride in a recumbent or lying down position and H5 are required to ride in the kneeling position.

The range of disabilities that are able to participate include riders with vision impairment through to double above knee amputations. As each disability manifests itself differently and gives people a different range of abilities there are a large range of cycles used – in Grant’s words “every incarnation of cycle imaginable”, from tandems with sighted pilots, trikes for those with muscular tremors and for people with spinal cord injury (or similar disability) we make up the handcycling category.

While Grant acknowledges he does not train as often as he would like, he generally trains at least every second day. A typical training session would equal between 30 to

40km. Grant trains at a cycle track not too far from where he lives and most of his riding is done there (as Grant feels it is much safer than taking on traffi c), however he will go on longer rides where this involves cycling on the roads. While Grant will tell you “It’s not for the faint hearted” he makes every effort to minimise risk by mapping out a sensible route and having his lights front and back blazing with his fl uoro fl ag waving away!

What Grant loves about handcycling above anything else that he has done before is that it can be whatever you want it to be. Whether you want to ride for recreation or get a bit more serious and compete, handcycling accommodates this perfectly. It’s not too hard to keep up with other family and friends when you go out for a leisurely cycle and if you’re up for a challenge, competitive handcycling is not to be feared as it is equal parts socialising and participation. However Grant gives this warning to all that are considering “giving it a go”, once bitten by the cycling bug it has a way of taking over, from getting the right handcycle, to setting yourself new goals each week it fast becomes a passion to ride off towards the horizon!” Like any “exercise junkie” will admit, when you fi nd a sport or activity you enjoy - its very addictive.

NORTHERN REGION UPDATE

Introducing one of ParaQuad’s members, Grant Nickel, who has also helped out with our recent Northern Region Hand Cycling Come and Try day and also competes in the National Para-Cycling championships.

Classifi cations for handcycling are:

H1 C6 quadriplegia with limited triceps

H2 C7/C8 quadriplegia with triceps

H3 T1–T10 paraplegia

H4 T11 or below paraplegia

H5 T11 with trunk stability (or similar disability) must ride in an upright/kneeling position.

Grant wins Gold!


Social nightIt was a night of laughs, dancing and singing when members of the ParaQuad social group in Newcastle visited the Kavon Theatre Theme Restaurant. After our delicious meals we were entertained with amusing song and dance numbers with the performers of the show and entertaining wait staff encouraging guests to sing along and join in on the fun.


Christmas in JulyMembers of the ParaQuad Northern Region branch attended ‘Christmas in July’ at Belmont 16 Footers Sailing Club. We enjoyed upbeat music from our talented music tutors Ron and Lucy who entertained us with tracks from the 60’s and 70’s. For all who attended we hope you enjoyed yourself, we found it a lovely opportunity to have a chat and a festive catch up with you.


Cooking up a stormRecently a number of ParaQuad members visited the Essential Ingredient in Newcastle to learn how to make and happily sample a series of delicious healthy dishes. On the menu was fresh hommus and vegies, Mexican beef with avocado salsa and a mouth watering fresh apple crumble. The talented chef shared interesting cooking tips and we learned that one teaspoon of spice is never enough! Sampling the dishes was a highlight for many with the main of Mexican beef being a sure fi re favourite amongst the group. Due to popularity, these cooking classes will be held monthly with the next class being held on the 11th of September at Cameron Park Community Centre. Please ensure to RSVP to Community Development Offi cer Melanie Lloyd for more information or to register your interest as numbers are limited.

Guitar, drum and harmonica lessons Each Monday at 11.30am members of the ParaQuad Northern Region branch meet for some musical fun with free guitar and drum lessons for people who have a physical disability, carers and friends. This session takes place every Monday at 11.30am. Our fabulous tutors encourage all skill levels to attend and enjoy the experience of learning a new instrument whilst taking part in some social musical fun. If you are interested in joining please contact Melanie Lloyd, Community Development Offi cer, Ph: (02) 49696388 Email: [email protected]


Social Group Calendar

4Go-KartsWhen: Thurs 4 SeptWhere: Go-Karts-Go Cnr Griffi ths Rd and Turton Rd

New LambtonTime: 10.30am to 12pmCost: $20

11Hands On Cooking Classes – Practical When: Thurs 11 SeptWhere: Cameron Park Community

Centre107 Northlakes Drive, Cameron Park

Time: 10.00am to 12.30pmCost: $15

18Lawn BowlsWhen: Thurs 18 SeptWhere: Charlestown Bowling Club,

5 Lincoln St, CharlestownTime: 10:30 am to 11:30 amCost: FREE

26ArcheryWhen: Friday 26 SeptWhere: Newcastle City Archers,

54 Eldon St, Waratah West Time: 2.00 pm to 4.00 pmCost: $20

SEPTEMBER2

Lawn BowlsWhen: Thurs 2nd OctWhere: Charlestown Bowling Club,


11ShootingWhen: Sat 11 Oct Where: Newcastle Air Rifl e Club 54 Eldon St, Waratah WestTime: 11amCost: TBA

17ArcheryWhen: Friday 17 OctWhere: Newcastle City Archers,

54 Eldon St, Waratah West Time: 2.00 pm to 4.00 pmCost: $20

23Hands On Cooking Classes - PracticalWhen: Thurs 23 Oct Where: Cameron Park Community

Centre 107 Northlakes Drive,

Cameron ParkTime: 10.00am to 12.30pmCost: $15

OCTOBER7

ArcheryWhen: Friday 7 NovWhere: Newcastle City Archers,

54 Eldon St, Waratah West Time: 2.00pm to 4.00pmCost: $20

13Lawn BowlsWhen: Thurs 13 NovWhere: Charlestown Bowling Club,


20Hands On Cooking Classes - PracticalWhen: Thurs 20 NovWhere: Cameron Park Community

Centre107 Northlakes Drive, Cameron Park

Time: 10.00am to 12.30pmCost: $15

27Lets set SailWhen: Thurs 27 Nov Where: Grahamstown Dam, MedowieTime: 10.30amCost: $6 per person

NOVEMBER


SAVE THE DATENewcastle Christmas PartyWhen: 12 December 2014Where: Speers Point Park, Speers PointTime: 12.30pm to 2.30pm

Come help us celebrate the Christmas spirit in true Aussie style with a Christmas BBQ Sausage Sizzle on us.

For more information or to RSVP please contact Melanie Lloyd, ParaQuad Community Development Offi cer on Ph: (02) 49696388 Email: [email protected]


On Saturday the 22nd of November 2014 there will be a ride to support the Northern Region Branch to raise funds for ParaQuad to continue to support people who have a spinal cord injury or physical disability.

Sadly motor vehicle and traffi c related accidents account for more than half of all reported spinal cord injuries in Australia and motorcyclists represent up to 79% of these.

Most spinal cord injuries are permanent and life changing. It can take over a year before a

person can leave hospital and the journey is not easy. Finding a new and accessible place to live, seeking assistance with everyday living activities they used to take for granted, such as getting out of bed, showering, and shopping, not to mention the ongoing health impacts and social adjustment which impacts the person as well as their friends and family.

If you are interested in participating in this ride we will assemble at Homesville Hotel at 11:00am for a 11:30am start. The ride will take us through the scenic Hunter Valley

and after a few stops along the way we will return to Homesville Hotel at 2pm for a well deserved sausage sizzle and afternoon of entertainment and raffl es.

High aimers at archery

Rev up your engine this November as part of Spinal Cord Injury Awareness Week


During this month members tested their talents at the skilful sport of wheelchair archery at Newcastle City Archers in Waratah. We were kindly assisted by Archery Coach Steve Jordan and four of the club’s friendly members who were quite impressed by how fast the group picked up this activity. Due to the popularity of this activity we repeated this again late August. Club Coach Steve Jordan states ‘It was very surprising to see that after only a small number of arrows shot, everyone had picked up the idea of how to shoot consistently and accurately. The results over the next 2 hours were very impressive and matched, or in some cases exceeded, the performance of the participants of the Club Come & Try Day the week before. The four club members who assisted on the day had a great time passing on the skills of the sport.’

For people wishing to pursue this sport, Steve Jordan shares with us a few useful information.

Are there specifi c requirements for participants in wheelchairs for this sport?

No, none at all. All that is required is the ability to shoot the bow in

a safe manner – same as for anybody else.

Are there opportunities for people who use a wheelchair to progress in the sport?

Yes, whilst this particular club does not hold specifi c competitions or championships, nearly every weekend there is a State competition on somewhere – usually the Sydney area – so if people are interested, they can travel to other clubs to compete. There are Divisions and Age brackets so that everyone can compete on an equal basis.

Are there any particular aids that people can use to who have limited joint mobility?

Yes however this depends on what is needed for the individual person.

For more information please contact Melanie Lloyd, ParaQuad Community Development Offi cer on Ph: (02) 49696388 Email: [email protected] or visit The Hunter Bikers Events Listing Facebook page www.facebook.com/groups/hunterbikerseventslisting/

High aimers at archery

Archery Adaptions: Some common adaptions include mouth tabs, slings and shoulder straps. Mouth tabs are particularly useful for an archer who can only use one arm. They enable a shooter to steady the bow and pull the string back with their mouth. A crossbow mount can also be used for people who have very little or no arm function as can a crossbow cocking device. For archers with signifi cant upper extremity disability a device to secure the bow such as a universal cuff or tie can be used.


Spina Bifi da Awareness Week

Spina Bifi da describes a group of spinal abnormalities that occurs within the fi rst four weeks of a pregnancy when the baby’s developing spine (neural tube) fails to close properly. The name comes from the Latin term meaning “split spine”. Spina Bifi da is the incomplete development of:

• The spinal cord

• The bones forming the spinal column (vertebrae)

• The overlying skin.

The Agency of Clinical Innovation funded a project these past 12

months to develop resources for people living with Spina Bifi da and their families. The Children’s Hospital at Westmead, Sydney Children’s Hospital, Randwick, the Spina Bifi da Adult Resource Team (SBART) at Northcott and Kaleidoscope Children, young people and families have worked together to create 26 factsheets addressing important health and social issues people living with Spina Bifi da face.

These resources are available for free to download in PDF and HTML at http://www.schn.health.nsw.gov.au/parents-and-carers/fact-sheets

EVENTS

1st – 7th September

Every year Spina Bifi da Awareness week aims to promote the ability, achievement and inclusion of children, young people and adults living with Spina Bifi da.

For further information about Spina Bifi da or to make a clinic appointment contact.

The Children’s Hospital at Westmead - (02) 9845 2769

Sydney Children’s Hospital at Randwick - (02) 9382 1595

Kaleidoscope Children, Young People and Families - (02) 4925 7868

Spina Bifi da Adult Resource Team (SBART) - (O2) 9472 5215

Spina Bifi da Awareness Week

months to develop resources for


ParaQuad NSW as a member of the Australian Spinal Injury Alliance will be supporting Spinal Cord Injury Awareness Week with a national campaign to raise awareness of the four major causes of Spinal Cord Injury.

During this week we will be conducting a number of online initiatives which we would like you to participate in to help raise awareness.

Any members that would like to share their story to please send these through as we will be compiling a number of media releases and we want NSW and Australia to hear from real people living with a Spinal Cord Injury.

ParaQuad NSW will be holding Wheels for a Day for the entire Spinal Cord Injury Awareness week. This year ParaQuad NSW will be approaching businesses within NSW to participate in Wheels for a Day.

Wheels for a Day provides leaders and employees an opportunity to experience what it would be like to

work in their offi ce or place of doing business if they were in a wheelchair. Create some buzz and see which department can raise the most funds for ParaQuad and join in the spirit of giving while you are there!

If you or a friend wants to fi nd out if ParaQuad can come to your business contact Elke Schreiner 8741 5627.

Walk, Run, Ride or Roll starts at 8am from meeting points in Newington, Wentworth Point and Sydney Olympic Park.

The Festival of All Abilities starts at 9am at Newington Armory Wharf.

• Guest speaker, one of Australia’s most successful athletes, Louise Sauvage OAM

• Performances by The Arcade Circus and the Special Olympics dance troupe

• Interactive wheelchair sports demonstrations from

Wheelchair Sports NSW — give it a go!

• Breakfast BBQ

• Children’s craft

• Free Bike Health Check from Park Bikes

For more information contact: Auburn City Council Community Development offi cer, Anita Ceravolo on 9735 1378.

A community celebration for National Inclusion Week and International Day of People with Disability.

Spinal Cord Injury Awareness Week 9-15 November 2014

2014

Saturday 29 November 2014

EVENTS

Paraquad News • sePTeMBer 201428

An initiative of Lifestart

Oi is an initiative of Lifestart, a disability organisation which provides early intervention services to families and children living with disability. Oi provides one of the most up to date collective approaches to providing information and resources on disability in Australia.

On the 28th July 2014 Oi was officially launched by The Hon. Malcolm Turnbull MP, Minister for Communications at the Sydney Opera House. As part of the launch the Nordoff-Robbins Music Therapy Fergie and Friends Choir performed a medley of iconic Australian songs. The Fergie and Friends choir is made up of residents and friends of ParaQuad’s Ferguson Lodge. Sue Holohan, a long term Ferguson Lodge resident and choir member entertained the audience with a solo rendition of “I Dreamed a Dream” from Les Miserable.

Oi aims to support people living with disability, their families and carers, clinicians and educators, people from diverse backgrounds and those in rural and remote locations by offering a structured and informal online support platform for people with a disability who are isolated and concerned about where to go for information. There are over 65 organisations from across Australia (including ParaQuad

NSW) partnering with the project to ensure accurate information and resources can be accessed. ParaQuad staff members, Robyn Ryan, Wendy Harris and ParaQuad Board member, Mark Tonga are Oi Ambassadors. As Ambassadors they will support and promote Oi and help get the word out to people living with a disability and the wider community of its value as an information and support resource.

Oi provides information and fact sheets as well as the ability to host online group sessions, online therapy, workshops and e-learning in a safe and accessible environment for all Australians.

As an online hub, Oi offers a secure platform for people in regional and remote areas to access information, online therapy and support.

Suzanne Becker, the CEO of Lifestart, says, “Whether you are a person living with a disability, family member, carer or a person working in the field, Oi can provide support, access online group sessions and much more. Our aim is to ensure that people living with a disability can be included in all types of activities, work and community events.”

Other services that will be provided by Oi include social networking, chat opportunities, a creative resource centre, online therapy and record management.

“This is an exciting initiative which will ultimately empower people to make better informed decisions about their support options,” said Suzanne Becker.

Oi is supported by The Trust Company, part of Perpetual as Trustee.

EVENTS

Lifestart launches Online Inclusion at the Opera House

The Online Inclusion platform, “Oi” is a collaborative not-for-profit approach to providing information on disability via a unique online support platform.

photo supplied courtesy of Lifestart

photo supplied courtesy of Lifestart


The excellent surplus generated has provided the essential funding to continue to deliver critical services not adequately funded by Government such as the Spinal Wellbeing Service. We continue to seek additional funding from the State Government (Health Department) although with no success to date. Despite claims that the NDIS will assist in meeting these funding gaps we have yet to evidence this, while demand for support services continues to exceed resources available resulting in a long waitlist and delays before services can be provided.

A signifi cant structural change this year has seen the establishment of a combined Marketing Department, which incorporates the functions of public relations, marketing and fundraising. This new department combines some of the activities from the former BrightSky Australia Marketing Department and the Community Relations Department and has a focus of marketing the organisation in line with the signifi cant changes arising in our sector from the introduction of the NDIS. The higher degree of choice by participants in the scheme means that ParaQuad needs to ensure that its capabilities for service delivery, products and equipment provision are broadcast to the wider community. In line with the importance of this function the department reports directly to the CEO.

In addition two other important structural changes occurred this year. The Mobility and Functional Support Department (managing the DVA contract) was incorporated into BrightSky Australia as was the Learning and Development group thereby bringing all the revenue operations under the BrightSky banner. All clinical support previously undertaken in BrightSky was transferred to the Community Services division to maximise the use of these scarce resources and to eliminate ineffi ciencies of maintaining clinical governance requirements across the organisation.

Ferguson Lodge is fully operational in both the new full care facility and in the ten two bedroom villas with the occupancy rate high from both long term and transitional residents availing themselves of this unique accommodation facility.

Much of our focus in the Attendant Care program has been in transitioning clients in the Hunter region trial site into the NDIS as well as for the rest of the State transitioning clients from the ADHC Attendant Care program into the new Community Support Packages (CSP). The CSP’s are intended to be very NDIS-like, making for what is hoped a smoother transition once the NDIS is rolled out throughout the rest of NSW. We continue to be

concerned with the lower rates of payment for personal care services under the NDIS compared with the previous ADHC rates and have made representations to NDIS as have many other providers. We are of the view that the current rate is inadequate to maintain a well trained and qualifi ed workforce and does not adequately compensate for the person centred demands required of this support.

Of some signifi cance has been the collaborative involvement of the other Australian spinal related organisations in the newly formed Australian Spinal Injury Alliance (ASIA). The Alliance, which was formed last year, has been collaborating to ensure that Spinal Injuries Awareness Week assumes even greater national prominence. It has identifi ed specifi c areas of collaboration for representation to both State and Federal Governments. A formal national launch is planned in the near future.

The Board is grateful for the continuing support we receive from sponsors, donors and funding bodies and in particular recognises and thanks management and staff for their hard work in delivering such a strong fi nancial result this year and for the high quality services delivered to the spinal cord injured community and beyond.

Review of ParaQuad NSW Operations

ANNUAL REPORT

The Board is pleased to report to members that the surplus for 2013/14 is $1,296,012. The major contributing factors for this signifi cant result have been the strong performance of our social enterprise, BrightSky Australia, both in product sales and in servicing the DVA equipment contract; signifi cant donor support; and strong accommodation income from the villas at Ferguson Lodge.

CONSOLIDATED

2014 2013 $ $

Revenue 53,950,323 52,082,782

Cost of Sales (34,838,980) (33,534,975)

Employee Related expenses (14,512,275) (14,620,771)

Operating and Administration expenses (2,947,679) (2,886,032)

Other Expenses from Ordinary Activities (355,377) (429,836)

Profi t/(Loss) before income tax 1,296,012 611,168

Income Tax Expense 0 0

Net profi t/(loss) after income tax expense 1,296,012 611,168

2014 2013 $ $

Current assets

Cash assets 7,190,334 5,624,879

Receivables 3,166,679 3,421,068

Inventories 2,457,163 2,200,269

Financial Assets 3,363,643 2,979,748

Other current assets 208,956 213,713

Total current assets 16,386,775 14,439,677

Non-current assets

Property, plant and equipment 5,302,101 5,245,189

Total non-current assets 5,302,101 5,245,189

Total assets 21,688,876 19,684,866

Current liabilities

Trade and Other Payables 8,323,674 7,974,576

Short Term Provisions 798,805 742,193

Short Term Borrowings 0 0

Total current liabilities 9,122,479 8,716,769

Non-current liabilities

Long Term Provisions 137,833 136,853

Long Term Borrowings 0 0

Total non-current liabilities 137,833 136,853

Total liabilities 9,260,312 8,853,622

Net assets/Total equity 12,428,564 10,831,244

BALANCE SHEETAS AT 30 JUNE 2014

INCOME STATEMENTFOR THE YEAR ENDED 30 JUNE 2014

PARAPLEGIC AND QUADRIPLEGIC ASSOCIATION OF NSW

ANNUAL REPORT

Discovering the artist within

Documents

Transcript of Discovering the artist within