DHF - Progress report 2009
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Transcript of DHF - Progress report 2009
March 20, 2008 to April 30, 2009
Progress Report March 20, 2008 to April 30, 2009
2 P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | [email protected] | www.diabeteshandsfoundation.org
Progress Report | March 20, 2008 to April 30, 2009
Letter from the President
March 20, 2008 marked our incorporation as a nonprofit in the State of
California, bringing our communities, TuDiabetes.org and EsTuDiabetes.org,
and Word In Your Hand (our first diabetes awareness initiative) under the
umbrella of the newly formed Diabetes Hands Foundation.
We licensed Word In Your Hand to LifeScan in 2008. Thanks to this
partnership, all our programs obtained significant media and public
exposure. TuDiabetes jumped from 2,000 members in March 2008 to nearly
7,000 in April 2009. EsTuDiabetes grew six-fold, going from less than 500
members in March 2008 to 3,000 members in April 2009. Our 2008 fundraising
campaigns resulted in more than US$7,500 collected through online
donations.
In 2008, our Drawing Diabetes video received more than 40,000 views.
We also gathered submissions from our members for the Diabetes Supplies
Art initiative, resulting in another successful diabetes awareness video with
thousands of views in early 2009.
In 2008, as a result of our commitment to World Diabetes Day, the
International Diabetes Federation recognized TuDiabetes and EsTuDiabetes
as Friends of World Diabetes Day. We then organized and promoted an
online petition to Google asking them to acknowledge World Diabetes Day
through a Diabetes Doodle on their home page, Nov. 14, 2008. Although this
effort did not produce the intended result, we collected nearly 15,000
signatures, confirming the potential support we can expect from social
media-based awareness campaigns.
During December 2008 and January 2009, we partnered with numerous
3 P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | [email protected] | www.diabeteshandsfoundation.org
Progress Report | March 20, 2008 to April 30, 2009
Manny Hernandez
President
patient advocacy groups and medical professionals to appeal to the
incoming FDA leadership on behalf of patients with diabetes. In early 2009, we
ran the No-Sugar Added Poetry contest, which will lead to our first book in
early 2010. In April 2009, we also partnered with DiabetesDaily to develop the
Simple Steps for Health awareness program.
Finally, in early 2009, we started collaborating with the Health Informatics
team from Children’s Hospital Boston at Harvard Medical School. The goal of
this collaboration is to create an application through which our members will
be able to conveniently track and optionally share their diabetes data
starting in early 2010. Members who use this application will also be able to
participate in nonprofit research studies conducted by Harvard Medical
School to better understand how social networks can be used to improve the
health of those who participate in them.
In 2008 and 2009, the foundation received extensive media coverage in
the US and internationally. EsTuDiabetes was featured in Don Francisco’s
shows in Univision and TuDiabetes was featured in Hallmark Heroes, a
Christmas show hosted by Regis Philbin. Our work was also highlighted on
NPR’s Diane Rehm Show, in national publications such as Time, People and
Diabetic Living and internationally in El Pais (Spain), Diabetes Hoy (Mexico)
and El Universal (Venezuela).
Starting May 2009, we began diversifying sources of funding by
conducting online and offline fundraising, securing grants to help develop
new diabetes awareness initiatives, identifying sponsors for our programs and
including limited ads on our communities and newsletters.
Although this belongs in next year’s Annual Report, we feel it’s important
to the reader to know that effective September 21, 2009 the Diabetes Hands
Foundation became exempt from US Federal income tax under section
501(c)(3) of the Internal Revenue Code. As a result, donations to Diabetes
Hands Foundation are eligible to be tax-deductable.
4 P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | [email protected] | www.diabeteshandsfoundation.org
Progress Report | March 20, 2008 to April 30, 2009
About the Diabetes Hands Foundation
The Diabetes Hands Foundation (DHF) is a 501(c)3 nonprofit that connects
people touched by diabetes and raises diabetes awareness.
The roots of DHF go back to 2006, when the idea of creating a social network for a higher purpose for those affected by diabetes, started brewing. This idea turned into TuDiabetes.org, our first online community, in March 2007. EstuDiabetes.org, a sister community in Spanish, followed in August 2007, becoming a top global destination for people searching for support and information about diabetes in Spanish.
Between March 20, 2008 and April 30, 2009, the two communities received more than 700,000 unique visitors (including registered members) who viewed more than 6.5 million pages.
We develop programs that involve the participation of our community members on the generation of diabetes awareness materials. Each program revolves around a specific theme and works as an interactive conduit that connects individuals through self-expression and creativity.
As a result, the community participates in the generation of useful and authentic content, which in turn, strengthens the community through the participation and empowerment of its members. Some of our community-generated content initiatives are: Word in Your Hand®, Drawing Diabetes, Diabetes Supplies Art and No-Sugar Added Poetry.
Our Miss ion
To provide an open space for
people touched by diabetes to
connect with others in pursuit of a
healthy life through support,
information and creative
expression.
Our V i s ion
We work towards a world where
people with diabetes do not feel
alone and people without
diabetes are well aware of
diabetes and its implications at
large.
5 P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | [email protected] | www.diabeteshandsfoundation.org
Progress Report | March 20, 2008 to April 30, 2009
Our Diabetes Awareness Programs
Word In Your Hand: this project started with a post by a
TuDiabetes member who posted a photo showing his hand
with a word written on it, describing how he felt about
diabetes. We invited members of the community to
contribute their photos. As a result, we produced a
compilation video in time for World Diabetes Day 2007
showcasing the best submissions.
Drawing Diabetes: for this initiative we invited the children
in TuDiabetes and EsTuDiabetes to draw how diabetes
affects their daily lives or how do they thought it made the
life of diabetic children different from the life of other
kids. Once again, we produced a very touching video
highlighting some of the best entries with music by one of
the members of the community.
Diabetes Supplies Art: this project is closely related to
Drawing Diabetes. We asked our members to use
diabetes supplies to create art as a form of creative
expression and emotional healing. The submissions we
received allowed us to create a video to highlight
some of the challenges faced by patients with
diabetes worldwide.
No-Sugar Added Poetry: the idea for this project was born
when one of our members had a dream of a poetry book
written by our members, which she shared with the Diabetes
Hands Foundation. This is an innovative, educational and
moving program through which we encourage our
members to share through poetry how diabetes has affected their lives.
Our Va lues • Community Support: We foster
a positive environment where
our members support and help
each other
• Health and Well-Being: We
actively promote positive and
proactive actions to stay
healthy while having diabetes.
• Communication and
Information: We encourage the
exchange of information and
storytelling about diabetes.
• Diversity and Respect: We
value diverse points of view. All
people touched by diabetes
are welcome.
• Creative Expression: We see
creativity as a catalyst for
emotional healing and raising
diabetes awareness.
• Transparency: We embrace
openness and authenticity, as
long as it doesn’t conflict with
the other values.
6 P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | [email protected] | www.diabeteshandsfoundation.org
Progress Report | March 20, 2008 to April 30, 2009
77%
5%
18%
Program service revenue (inc. government fees and contracts)
Contributions, gifts and grants received
Other revenue
49%
7%
3% 3%
2% 2%
2%
2%
1%
16%
12%
Online community operations
Word In Your Hand initiative
Diabetes Supplies Art initiative
HelpTheFDA campaign
Drawing Diabetes initiative
No-Sugar Added Poetry initiative
Collaboration with Harvard
Google Doodle campaign
Simple Steps for Health initiative
Management & Admin. expenses
Fundraising operations
Expenses In Percent
Revenue In Percent
DHF financials
7 P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | [email protected] | www.diabeteshandsfoundation.org
Progress Report | March 20, 2008 to April 30, 2009
$51,895
$2,098
$100,000
Current Assets
Fixed Assets
Long Term Assets
Total Assets: $153,993
Assets
$0 $2,000 $4,000 $6,000 $8,000 $10,000 $12,000 $14,000 $16,000 $18,000
Current Liabilities
Long Term Liabilities
Liabilities
Total Liabilities: $15,339
8 P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | [email protected] | www.diabeteshandsfoundation.org
Progress Report | March 20, 2008 to April 30, 2009
Officers,
Directors & Advisors
Officers
• Manuel Hernandez – Chairman of the Board
• Henkel Garcia – Treasurer
• Andreina Davila – Secretary
Directors
• Manuel Hernandez – Chairman of the Board
• Andreina Davila – Secretary – Director
• Henkel Garcia – Treasurer – Director
• Luis Emiro Garcia – Director
• Cesar Castro - Director
Advisors
• Kelly Close
• Kerri Morrone Sparling
• Maria Luisa O’Connel
• Sean Ross
9 P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | [email protected] | www.diabeteshandsfoundation.org
Progress Report | March 20, 2008 to April 30, 2009
Major Contributors to the Diabetes Hands Foundation
Organizations
• Hallmark Channel
• Islets of Hope
• HealthWarehouse.com
Individuals
• Saundra Barragan
• Marie Bernegger
• Denise Bevard
• Judith Caterall
• Luis Carlos Diaz
• Jaimie Hernandez
• Ramsey Makar
• Landileigh Nelson
• Kristin Nickel
• Jonathan Olick
• Esther Paredes-Hernandez
• Olaf Saugen
• Sohair Abdel-Rahman
For a complete list of all of our 2008 contributors at all levels please visit our website at http://www.tudiabetes.org/notes/Community_Supporters
10 P.O. Box 9421, Berkeley, CA 94709 | 650.283.4862 | [email protected] | www.diabeteshandsfoundation.org
Progress Report | March 20, 2008 to April 30, 2009
Learn more about the Diabetes Hands Foundation at:
• www.diabeteshandsfoundation.org
Join our online communities:
• www.TuDiabetes.org (in English)
• www.EsTuDiabetes.org (en Español)
Follow us on Twitter:
• @DiabetesHF
• @TuDiabetes
• @EsTuDiabetes
Become a fan of our Facebook page:
• www.Facebook.com/DiabetesHF
Subscribe to our YouTube Channel:
• www.YouTube.com/DiabetesHands
More information…