developing a person-centred social and health care support ... · Mark Levine and Blaine Price –...
Transcript of developing a person-centred social and health care support ... · Mark Levine and Blaine Price –...
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STRETCH:Socio-Technical Resilience for Enhancing Targeted
Community Healthcare
Prof. Mark Levine & Prof. Blaine PriceLancaster Uni/Exeter Uni Open University
“developing a person-centred social and health care support network”
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Technology Enhanced ‘Circles of Support’• As we get older we are often faced with challenging health conditions –
often in combination• (Memory, mobility, visual impairment, heart, mental illness, diabetes etc.)
• We prefer to remain independent and live in our own home/communities
• Requires a functioning ‘Circle of Support’• Often ‘Circle of Support’ not available/ poorly functioning
• Can mean (amongst other things) that people can’t be discharged from hospital (‘bed blocking’; black alerts’)
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Technology Principles• To enhance rather than replace human contact in care• To prioritise the requirements of the ‘Person at the Centre’ of the circle
(Person centred social and health care support network)
1) Lots of existing tech is about surveillance for the benefit of others2) Whose values should drive the system?
• e.g Need for Independence VS Need for safety/security
3) How does the system share information with others? • Dynamic Privacy
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Co-Design with Person at the Centre
Fieldwork in partnership with AGE/UK Exeter
Age/UK Exeter worker embedded in research team
Mapping of individual circles of support
Exploring technology concerns
Developing a manual for how to explore circles of support
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Some anonymised examples from our existing participants• We will now give two real (but anonymised) examples from people
who are participants on our project.
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Jay
Health professionals:
-Nurse-Psychologist
-GP
Practical support: -Financial planner
Community: - Volunteering- Community
evenings
Friends:- Julie- Sam
- Debra
Family: -Daughter + husband, 3
children, husbands parents
Depression after death of husbandNo physical care needsInsomnia – lacks energyReliant on daughterHas good close friends
Want technology to monitor her activity levels/emotional state and warn her.Wants help to engage more outwardly
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Peter
Health professionals:
- GP
Practical support:
-”Enabler” who takes him out the house
Community: - Support groups
for memory impairment
- Interest groups
Friends:Community
based
Family: sister, brother, and their children
Memory impairment Physical mobility issuesParents help – but they are elderlyCan currently do most things for himselfWorried about the future
Would like technology to help him explore the world moreBut also make sure he is safe in his own homeWants a ‘smart system; that can watch over him and alert family if he needs help
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The current STRETCH system:• Small box in each room recording movement, temperature,
humidity, light levels1.• An energy monitor installed inside the electric meter box2.• Box connected to the internet transmitting data.• Mood devices: A mood clock or a mood board can be used input
their mood, as frequently as they desire. Mood information can be used for self-reflection or communication with Supporters.
• A smartphone app uses the collected data to report on living room and bedroom temperature, whether the resident has bathed, how often they have cooked, their at home activity level, and how often they have had company.
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Mark Levine and Blaine Price – Lancaster Town-Gown 2019
Spying on Granny or Supporting Ageing in Place?
Blaine PriceProfessor of Computing
The Open University
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Mark LevineProfessor of Social Psychology
Lancaster University
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Mark Levine and Blaine Price – Lancaster Town-Gown 2019
Socio Technical Solutions
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Mark Levine and Blaine Price – Lancaster Town-Gown 2019 12
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Mark Levine and Blaine Price – Lancaster Town-Gown 2019
• Built of simple cheap electronics, battery powered
• Internet Enabled• measures:
• Temperature & Humidity• Movement• Light Levels• Barometric Pressure
• A separate device measures:• Household Electrcity
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Mark Levine and Blaine Price – Lancaster Town-Gown 2019
What can you do with this?• Passive, privacy sensitive monitoring
in the home• Can infer events from sensors: • cooking, bathing, alone/with
company/out of house• Detect patterns and when patterns
are broken• Notify members in circle of support• Detect when circle unresponsive
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Mark Levine and Blaine Price – Lancaster Town-Gown 2019
Active logging• Passive logging can’t see
everything; • Recording & Reflecting on mood
can have positive impact• Can be correlated with passive
sensors• Design principles & Privacy are
important
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Mark Levine and Blaine Price – Lancaster Town-Gown 2019
Keeping Circle Informed• Monitor and detect social isolation or mood changes (mental wellbeing)
• Notify if OA is becoming more isolated, eating less, sleeping more, not attending to hygiene or other anomaly
• Provide reassurance to relatives that OA is healthy• Regularly check that the CoS is intact and working
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Mark Levine and Blaine Price – Lancaster Town-Gown 2019
Blaine PriceProfessor of ComputingThe Open University, UK
[email protected] [email protected]
Mark LevineProfessor of Social Psychology
Lancaster University