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![Page 1: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/1.jpg)
Designing Decision Aids to Help Patients Choose Treatment Options
Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman
HCIL
![Page 2: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/2.jpg)
A Story
![Page 3: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/3.jpg)
A Story
![Page 4: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/4.jpg)
A Story
![Page 5: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/5.jpg)
A Story
NCI Protective Treatments
Susan G. Komen fact sheets
![Page 6: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/6.jpg)
A Decision Aid Framework
• Decision Type• Timescale• Measurement Types• Data Source• Personalization Level• Information Format
![Page 7: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/7.jpg)
Decision Type
• Binary• Multi-Option• Combination• Continuous
Management
Price, Cameron, Butow 2007
Baseline (No Treatment)
Drug A Effect
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Decision Type
• Binary• Multi-Option• Combination• Continuous
Management
Drug MainEffects
Hawley et al. 2008
Drug SideEffects
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Decision Type
• Binary• Multi-Option• Combination• Continuous
Management
Jones et al. 2011
Treatment Choices
Total EffectOfTreatmentChoices
![Page 10: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/10.jpg)
Decision Type
• Binary• Multi-Option• Combination• Continuous
Management
Jones et al. 2011
![Page 11: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/11.jpg)
Timescale
• Single Projected Point• Multiple Projected
Points
Zikmund-Fisher et al. 2008
5 year risk
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Timescale
• Single Projected Point• Multiple Projected
Points
National Cancer Institute Risk Assessment
Main TimeReference
AdditionalTime Reference
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Measurement Types
• Number of Side Effects• Side Effect Rates• Treatment Durations• Lifestyle Impact• Success Rates• Survival Rates• Mortality Rates• …
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Data Source
• Summary of Literature• Model Based• Electronic Health
Records
Susan G. Komen Fact Sheets…With References
![Page 15: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/15.jpg)
Data Source
• Summary of Literature• Model Based• Electronic Health
Records
Hughes Risk App
Exposed ModelParameters
![Page 16: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/16.jpg)
Data Source
• Summary of Literature• Model Based• Electronic Health
Records
Patients Like Me
Patient Self-Reported Records
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Personalization Level
• Generalized• Personalized
National Cancer Institute
Same TextFor AllReaders
![Page 18: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/18.jpg)
Personalization Level
• Generalized• Personalized
National Cancer Institute Risk Assessment
Patients MustUnderstandPersonalizationOptions
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Information Formats
• Text• Graphics• Animation• Interactive
National Cancer Institute
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Information Formats
• Text• Graphics• Animation• Interactive
Brown et al. 2011Same Metric4 Ways
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Information Formats
• Text• Graphics• Animation• Interactive
Han et al. 2012
Animated recolor offigures every 2 seconds
![Page 22: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/22.jpg)
Information Formats
• Text• Graphics• Animation• Interactive
Ancker et al. 2010
Clicking DrivesInformation Shown
![Page 23: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/23.jpg)
DESIGNING A DECISION AID
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Designing a Decision Aid
• Multi-Option (Decision Type)• Multi-Projected Points (Timescale)• Side effects, durations, patient preferences,
success rates (Measurement Types)• Age and BRCA1 positive accounted for
(Personalization Level)• Graphics with Interaction (Information
Formats)
![Page 25: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/25.jpg)
Decision Aid Prototype
![Page 26: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/26.jpg)
Decision Aid Prototype
![Page 27: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/27.jpg)
Decision Aid Prototype
![Page 28: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/28.jpg)
Decision Aid Prototype
![Page 29: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/29.jpg)
Decision Aid Prototype
![Page 30: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/30.jpg)
Decision Aid Prototype
![Page 31: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/31.jpg)
Decision Aid Prototype
![Page 32: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/32.jpg)
Decision Aid Prototype
![Page 33: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/33.jpg)
Decision Aid Prototype
![Page 34: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/34.jpg)
Decision Aid Prototype
![Page 35: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/35.jpg)
Decision Aid Prototype
![Page 36: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/36.jpg)
Decision Aid Prototype
![Page 37: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/37.jpg)
Decision Aid Prototype
1
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Decision Aid Prototype
2
![Page 39: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/39.jpg)
Decision Aid Prototype
3
![Page 40: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/40.jpg)
Conclusion
• Decision aids support patient understanding and choice between treatment options
• Categorizing decision aids with our framework exposes design opportunities
• Static, single measurement graphs do not support treatment comparisons
• Interaction and animation highlight and reinforce treatment differences
![Page 41: Designing Decision Aids to Help Patients Choose Treatment Options Lyndsey Franklin, Catherine Plaisant, Ben Shneiderman HCIL.](https://reader036.fdocuments.us/reader036/viewer/2022062802/56649ed95503460f94be7225/html5/thumbnails/41.jpg)
Thank You!
Special Thanks to Dr. Seth Powsner.
More Information [email protected]
www.cs.umd.edu/hcil/treatmentview
This work is supported in part by Grant No. 10510592 for Patient-Centered Cognitive Support under the Strategic Health IT Advanced Research Projects Program (SHARP) from the Office of the
National Coordinator for Health Information Technology.