1

Demonstrating the Policy and News Media Impact of the Research of Dr. Thaddeus M. Pope. Prepared by the Health Sciences Libraries Policy & News Media Impact Service January 2018 The research of Dr. Thaddeus M. Pope has been referenced in resources issued by 31 different policy and news media organizations. Dr. Pope's work has been referenced in government documents by groups such as the European Commission and the Office of the Assistant Secretary for Planning and Evaluation (U.S. Department of Health and Human Services), and in work by non-governmental agencies including the Royal College of Physicians and the National Institute for Health and Care Excellence. Dr. Pope's research has been referenced in popular media channels, including newspapers and websites. Their work has received attention through web sites, including Wikipedia, and news resources such as WHYY-FM. It is likely that this does not represent the full impact of this work as this report is limited to resources which are currently available. The following report includes lists of citations for policy and news media resources that have cited Dr. Pope's work. An index is included beginning on page 10. Where possible, the cited work is identified in parentheses following the citation. An index of these works is available beginning on page 11.

Outline Policies, Guidelines, and Government Documents – p. 2 United States (Federal) – p. 2 United States (State and Local) – p. 2 International (Federal) – p. 2 International (State and Local) – p. 3 Organizations, Associations and Societies – p. 3 Media Coverage – p. 5

News and Magazines – p. 5 Websites and Blogs – p. 6 Press Releases and Syndicated News Sources – p. 8 Television, Film and Radio – p. 9

Index – p. 10

2

Policies, Guidelines, and Government Documents

United States (Federal)

Office of the Assistant Secretary for Planning and Evaluation

Wilkinson, A., Wenger, N., & Shugarman, L.R. (2007, June). Literature review on advance directives. Report #HHS-100-03-0023, prepared for the Office of Disability, Aging and Long-Term Care Policy, Office of the Assistant Secretary for Planning and Evaluation, U.S. Department of Health and Human Services. Retrieved from https://aspe.hhs.gov/system/files/pdf/75141/advdirlr.pdf [L]

United States (State and Local)

Nevada

State of Nevada 79. (2017, 10 May). Final written testimony on SB 261 (testimony of A. Cardens). Nevada: Senate Health & Human Services Committee. Retrieved from: www.leg.state.nv.us/Session/79th2017/Exhibits/Senate/HHS/SHHS1060T.pdf [F]

New York

New York State Task Force on Life and the Law. (2015, Nov). Ventilator allocation guidelines. New York: New York State Department of Health. Retrieved from: https://www.health.ny.gov/diseases/communicable/influenza/pandemic/ventilators/docs/ventilator_guidelines.pdf [T]

International (Federal)

European Commission

Bouwman, R., Wiegers, T., van Schoten, S., Coppen, R., & Friele, R. (2017, November). Study on the uptake and impact of the EU Action Plan on Organ Donation and Transplantation (2009-2015) in the EU Member States. Prepared for the Consumers, Health, Agriculture and Food Executive Agency of the European Commission. Luxembourg: Publications Office of the European Union. Retrieved from https://ec.europa.eu/health/sites/health/files/blood_tissues_organs/docs/20171207_midday_en.pdf [O]

3

International (State and Local)

Australia

Clinical Excellence Division, Department of Health. (2018, January). End-of-life care: Guidelines for decision-making about withholding and withdrawing life-sustaining measures from adult patients. Brisbane: Queensland Health. Retrieved from https://www.health.qld.gov.au/__data/assets/pdf_file/0033/688263/acp-guidance.pdf [I] Voluntary Assisted Dying Ministerial Advisory Panel. State of Victoria. (2017, July). Ministerial Advisory Panel on Voluntary Assisted Dying: Final Report. Melbourne: Department of Health & Human Services. Retrieved from: https://www2.health.vic.gov.au/Api/downloadmedia/%7BA27EEE2F-02DE-44BF-8347-C901CF20B7E5%7D [F]

Organizations, Associations, and Societies

American Nurses Association

American Nurses Association. (2017). Nutrition and hydration at the end of life: position statement. Silver Spring, MD: American Nurses Association. Retrieved from: http://www.nursingworld.org/MainMenuCategories/EthicsStandards/Resources/Ethics-Position-Statements/Nutrition-and-Hydration-at-End-of-Life.pdf. [E]

American Psychological Association

American Psychological Association. (2017, August). Resolution on assisted dying and justification. Washington, DC: American Psychological Association. Retrieved from: http://www.apa.org/about/policy/assisted-dying-resolution.aspx [F]

Canadian Association of Critical Care Nurses Canadian Association of Critical Care Nurses. (2017). Standards for Critical Care Nursing Practice. 5th ed. London, ON: Canadian Association of Critical Care Nurses. Retrieved from https://www.caccn.ca/en/files/STCACCN%202017%20Standards%20(5th%20Ed).pdf [C]

Fondation Médéric Alzheimer Coquelet, A. (2015, April). Le droit et la maladie d'Alzheimer [Rights and Alzheimer's Disease]. Paris: Fondation Médéric Alzheimer. Retrieved from https://www.isere.fr/mda38/Lists/DocumentaryResources/Attachments/6783/Droit%20et%20maladie%20Alzheimer.pdf [P]

4

Fundación de Ciencias de la Salud

Berlanga, A.C., Fernández-Alvés, M.C., Melguizo, M., Marín, J.L.M., Díaz, B.O., Roa, F.R., Seoane, J.A., Parejo, P.T. (2011). Planificación anticipada de la asistencia médica: Historia de valores; Instrucciones previas; Decisiones de representación [Advance planning for medical assistance: History of values; Previous instructions; Decisions of representation]. Madrid: Fundación de Ciencias de la Salud. Retrieved from https://www.cgcom.es/sites/default/files/planificacion_anticipada_asistencia_medica.pdf [M,N]

Hastings Center

Quill, T. & Sussman, B. (n.d.). Physician assisted death: Hastings Center Bioethics Briefs. Garrison, NY: Hastings Center. Retrieved from: https://www.thehastingscenter.org/briefingbook/physician-assisted-death/ [F]

Law Commission of Ontario

Downar, J., Hawryluck, L., Wood, A., Brown, S., Richards, J. … Kaloscai, C. (2017). Balancing the interests of patients, substitute decision-makers, family and health care providers in decision-making over the withdrawal and withholding of life-sustaining treatment. Toronto, ON: Law Commission of Ontario. Retrieved from: https://www.lco-cdo.org/wp-content/uploads/2015/05/Downar-et-al.-Final.pdf [B, C,Q,R]

Manitoba Provincial Health Ethics Network

Manitoba Provincial Health Ethics Network. (2016). Health Ethics Committee Toolkit. Winnipeg, MB: Manitoba Provincial Health Ethics Network. Retrieved from http://www.mb-phen.ca/files/HECToolkitP12016.pdf [K]

National Academies of Sciences, Engineering & Medicine (Includes Institutes of Medicine)

National Academies of Sciences, Engineering, and Medicine. (2016). Families Caring for an Aging America. Washington, DC: The National Academies Press. Retrieved from: https://doi.org/10.17226/23606. [A] Alston, C., Berger, Z., Brownlee, S., Elwyn, G., Fowler Jr, F., Hall, L., ... & Singerman, R. (2014). Shared Decision-Making Strategies for Best Care: Patient Decision Aids. Washington, DC: Institute of Medicine. Retrieved from: https://nam.edu/wp-content/uploads/2015/06/SDMforBestCare2.pdf [W]

5

National Consensus Project for Quality Palliative Care.

Dahlin, C. (ed). (2013). Clinical practice guidelines for quality palliative care. 3rd ed. Pittsburgh, PA: National Coalition for Hospice and Palliative Care. Retrieved from: https://www.nationalcoalitionhpc.org/ncp-guidelines-2013/ [V]

National Institute for Health and Care Excellence (NICE) NICE. (2017, July). Advance care planning. In: Emergency and acute medical care in over 16s: service delivery and organisation : NICE guideline <in development>. London: NICE. Retrieved from: https://www.nice.org.uk/guidance/gid-cgwave0734/documents/draft-guideline-15 [M]

Patients Rights Council

Patient Rights Council. (2011), Voluntarily stopping eating & drinking: important questions & answers. Steubenville, OH: The Patient Rights Council. Retrieved from: http://www.patientsrightscouncil.org/site/wp-content/uploads/2013/03/VSED_Questions.pdf. [E]

Royal College of Physicians

Royal College of Physicians. (2005). Going smoke-free: The medical case for clean air in the home, at work and in public places. London, England: Royal College of Physicians. Retrieved from http://webarchive.nationalarchives.gov.uk/20070703230000/http://www.smokefreeengland.co.uk/files/going-smokefree.pdf [J]

Media Coverage

News and Magazines

The ASCO Post

Cavallo, J. (2017, 25 Jul). Advance Care Planning: Ensuring Patients’ End-of-Life Wishes Are Honored. The ASCO Post. Retrieved from: http://www.ascopost.com/issues/july-25-2017/advance-care-planning-ensuring-patients-end-of-life-wishes-are-honored/ [G]

Kansas City Star

Marso, A. (2017, 20 Apr). Last Wishes: Use video to tell doctors and family what you want at death's door. Kansas City Star. Retrieved from: http://www.kansascity.com/news/business/health-care/article145625699.html [D]

6

Also published in:

Insurance News Net. Retrieved from: https://insurancenewsnet.com/oarticle/last-wishes-use-video-to-tell-doctors-and-family-what-you-want-at-deaths-door#.WkVDRminFaQ

Kaiser Health News (KHN.org)

Graham, J. (2017, 30 Nov). Straight from the Patient's Mouth: Videos Can Clearly State Your End-of Life Wishes. Kaiser Health News. Retrieved from: https://khn.org/news/straight-from-the-patients-mouth-videos-can-clearly-state-your-end-of-life-wishes/ [D]

o Also published in:

NewsMedical. Retrieved from: https://www.news-medical.net/news/20171130/Straight-from-the-patiente28099s-mouth-Videos-can-clearly-state-your-end-of-life-wishes.aspx

Rocket News. Retrieved from: http://www.rocketnews.com/2017/11/straight-from-the-patients-mouth-videos-can-clearly-state-your-end-of-life-wishes/

Medscape

Frellick, M. (2017, 22 Feb). Patient videos clarify end-of-life documents. Medscape. Retrieved from: https://www.medscape.com/viewarticle/876063 [D]

Philly.com

Burling, S. (2017, 16 Feb). Doctors are confused by living wills, study finds. Philly. Retrieved from: http://www.philly.com/philly/health/Doctors-are-confused-by-living-wills-study-finds-POLST-UPMC-Temple.html [D]

Websites and Blogs

ALiEM

Gisondi, M. (2017, 15 Mar). Beyond the Abstract: Patient video testimonials improve physician interpretation of advance directives and POLST. ALiEM. Retrieved from: https://www.aliem.com/2017/03/beyond-abstract-patient-video-advance-directives-polst/ [D]

AMBOSS MIAMED

Riessen, R., Möckel, M. (n.d.). Klug entscheiden in der internistischen Intensivmedizin [Wise

7

decision in internal intensive care medicine]. AMBOSS MIAMED. Retrieved from https://amboss.miamed.de/wissen/DGIM_-_Klug_entscheiden_in_der_internistischen_Intensivmedizin

First Things

Smith, W.J. (2012, 14 Jan). Futile care disputes belong in court. First Things. Retrieved from: https://www.firstthings.com/blogs/firstthoughts/2012/01/futile-care-disputes-belong-in-court [B]

GeriPal – Geriatrics and Palliative Care Blog

Petrillo, L. (2015, 26 May). New guidelines address conflicts over "potentially inappropriate" treatment in the ICU. GeriPal. Retrieved from: http://www.geripal.org/2015/05/new-guidelines-address-conflicts-over.html?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+Geripal+%28GeriPal%29 [C]

Mirarchi, F.L. & Aberger, K. (2017, 23 Mar). Quality & Safety Consideration for Patients with a POLST or Living Will. GeriPal. Retrieved from: http://www.geripal.org/2017/03/quality-safety-consideration-for_23.html?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+Geripal+%28GeriPal%29 [D]

Markkula Center for Applied Ethics

McLean, M.R. (2011, 3 Nov). Conscientious Refusal: Rights and Responsibilities: A Pharmacist Refuses to Fill a Prescription for Birth Control: An Ethics Case Study. Santa Clara, CA: Santa Clara University Markkula Center for Applied Ethics. Retrieved from: https://www.scu.edu/ethics/focus-areas/bioethics/resources/conscientious-refusal/ [S]

NancyValko

Valko, N. (2016, 17 Oct). Is Compassion and Choices Aiming to Become the “Planned Parenthood” of Euthanasia? nancyvalko.com. Retrieved from: https://nancyvalko.com/2016/10/17/is-compassion-and-choices-aiming-to-become-the-planned-parenthood-of-euthanasia/ [F]

Primary Care Network

Digby, K. (2013, 26 Nov). Preparing for death with dignity via advance directives. Primary Care Network. Retrieved from: https://www.primarycarenetwork.org/advance-directives/ [H]

8

StayingAlive

Cervantes. (2012, 12 Jan). Where was I yesterday? StayingAlive. Retrieved from: http://healthvsmedicine.blogspot.com/2012/01/where-was-i-yesterday.html [B]

Wikipedia

Conscience clause (medical) [n.d.]. Wikipedia. Retrieved from: https://en.wikipedia.org/wiki/Conscience_clause_(medical) [U] Baxter v. Montana. [n.d.] Wikipedia. Retrieved from: https://en.wikipedia.org/?curid=24200034 [F] Physician Orders for Life-Sustaining Treatment. [n.d.] Wikipedia. Retrieved from: https://en.wikipedia.org/?curid=34571360 [H] Terminal hydration. [n.d.]]. Wikipedia. Retrieved from: https://en.wikipedia.org/wiki/Terminal_dehydration [E]

Press Release and Syndicated News Sources

Physicians Briefing (HealthDay News)

Legal aspects to consider in voluntary refusal to eat, drink. (2017, 7 Nov). Physicians Briefing. Retrieved from: http://www.physiciansbriefing.com/Article.asp?AID=728223 [E]

Also published in:

PatientPoint. (2017, 7 Nov). Retrieved from: http://access.patientpoint.com/article.php?cid=23&id=82519

Medical Xpress. (2017, 7 Nov). Retrieved from: https://medicalxpress.com/news/2017-11-legal-aspects-voluntary.html

Mental Health Services of South Oklahoma. (2017, 7 Nov). Retrieved from:

http://www.mhsso.org/poc/view_doc.php?type=news&id=193893&cn=174

South Central Alabama Mental Health.org. (2017, 7 Nov). Retrieved from: https://www.scamhc.org/poc/view_doc.php?type=news&id=193893&cn=174

Physicians Weekly. (2017, 7 Nov). Retrieved from: https://www.physiciansweekly.com/legal-aspects-to-consider-in-voluntary-

9

refusal-to-eat-drink/

Wolters Kluwer Health

Hughes, C. (2017, 16 Feb). Video messages clarify patients' wishes for critical versus end-of-life care. Wolters Kluwer Health. Retrieved from: http://wolterskluwer.com/company/newsroom/news/2017/02/video-messages-clarify-patients-wishes-for-critical-versus-end-of-life-care.html [D]

o Also published in:

Medical Xpress. (2017, 16 Feb). Retrieved from: https://medicalxpress.com/news/2017-02-video-messages-patients-critical-end-of-life.html

Health Medicine Network. (2017, 16 Feb). Retrieved from: http://healthmedicinet.com/video-messages-clarify-patients-wishes-for-critical-versus-end-of-life-care/

EurekAlert! (2017, 16 Feb). Retrieved from: https://www.eurekalert.org/pub_releases/2017-02/wkh-vmc021617.php

Television, Film and Radio

WHYY-FM

Moss-Coane, M. (2013, 20 Aug). Assisted suicide--the ethical and legal issues. Radio Times with Marty Moss-Coane. WHYY-FM. Retrieved from https://whyy.org/episodes/assisted-suicide-the-ethical-and-legal-issues-2/

10

Index Outline .......................................................................................................................................................... 1

Policies, Guidelines, and Government Documents ....................................................................................... 2

United States (Federal) ............................................................................................................................. 2

Office of the Assistant Secretary for Planning and Evaluation ............................................................. 2

United States (State and Local) ................................................................................................................. 2

Nevada .................................................................................................................................................. 2

New York ............................................................................................................................................... 2

International (Federal) .............................................................................................................................. 2

European Commission .......................................................................................................................... 2

International (State and Local) ................................................................................................................. 3

Australia ................................................................................................................................................ 3

Organizations, Associations, and Societies ............................................................................................... 3

American Nurses Association ................................................................................................................ 3

American Psychological Association ..................................................................................................... 3

Canadian Association of Critical Care Nurses ....................................................................................... 3

Fondation Médéric Alzheimer .............................................................................................................. 3

Fundación de Ciencias de la Salud ........................................................................................................ 4

National Academies of Sciences, Engineering & Medicine (Includes Institutes of Medicine) .............. 4

National Consensus Project for Quality Palliative Care. ....................................................................... 5

National Institute for Health and Care Excellence (NICE) ..................................................................... 5

Patients Rights Council .......................................................................................................................... 5

Royal College of Physicians ................................................................................................................... 5

Media Coverage ............................................................................................................................................ 5

News and Magazines ................................................................................................................................ 5

The ASCO Post ....................................................................................................................................... 5

Kansas City Star ..................................................................................................................................... 5

Kaiser Health News (KHN.org) .............................................................................................................. 6

Medscape .............................................................................................................................................. 6

11

Philly.com .............................................................................................................................................. 6

Websites and Blogs ................................................................................................................................... 6

ALiEM .................................................................................................................................................... 6

AMBOSS MIAMED ................................................................................................................................. 6

First Things ............................................................................................................................................ 7

GeriPal – Geriatrics and Palliative Care Blog ......................................................................................... 7

Markkula Center for Applied Ethics ...................................................................................................... 7

NancyValko ........................................................................................................................................... 7

Primary Care Network ........................................................................................................................... 7

StayingAlive ........................................................................................................................................... 8

Wikipedia .............................................................................................................................................. 8

Press Release and Syndicated News Sources ........................................................................................... 8

Physicians Briefing (HealthDay News) .................................................................................................. 8

Wolters Kluwer Health .......................................................................................................................... 9

Television, Film and Radio ........................................................................................................................ 9

WHYY-FM .............................................................................................................................................. 9

Index............................................................................................................................................................ 10

Publications Cited

(A) Pope, T. M. 2012. Legal fundamentals of surrogate decision making. CHEST Journal 141(4): 1074-1081.

(B) White, D. B., & Pope, T. M. (2012). The courts, futility, and the ends of medicine. Jama, 307(2), 151-152.

(C) Bosslet, G. T., Pope, T. M., Rubenfeld, G. D., Lo, B., Truog, R. D., Rushton, C. H., ... & Au, D. H. (2015). An official ATS/AACN/ACCP/ESICM/SCCM policy statement: responding to requests for potentially inappropriate treatments in intensive care units. American journal of respiratory and critical care medicine, 191(11), 1318-1330.

(D) Mirarchi, F. L., Cooney, T. E., Venkat, A., Wang, D., Pope, T. M., Fant, A. L., ... & Clemency, B. (2017). TRIAD VIII: Nationwide Multicenter Evaluation to Determine Whether Patient Video Testimonials Can Safely Help Ensure Appropriate Critical Versus End-of-Life Care. Journal of patient safety, 13(2), 51-61.

(E) Quill, T. E., Ganzini, L., Truog, R. D., Pope, T. M. (2017). Voluntarily Stopping Eating and Drinking Among Patients With Serious Advanced Illness—Clinical, Ethical, and Legal Aspects. JAMA Intern Med. Published online November 06, 2017. doi:10.1001/jamainternmed.2017.6307.

12

(F) Orentlicher, D., Pope T. M., Rich, B. A., and Physician Aid-in-Dying Clinical Criteria Committee. (2016). Clinical Criteria for Physician Aid in Dying. Journal of Palliative Medicine, 19(3), 259-262. https://doi.org/10.1089/jpm.2015.0092

(G) Pope, T. M. (2017). Legal Briefing: New Penalties for Ignoring Advance Directives and Do-Not-Resuscitate Orders. J Clin Ethics, 28(1), 74-81.

(H) Pope, T. M., Hexum, M. (2012). Legal briefing: POLST: physician orders for life-sustaining treatment. J Clin Ethics, 23(4), 353-76.

(I) Orentlicher, D., Pope, T.M., Rich, B.A. (2014). The changing legal climate in physician aided dying. Journal of the American Medical Association, 311(19):1961-1962.

(J) Pope, T.M. (2000). Balancing public health against individual liberty: The ethics of smoking regulations. University of Pittsburgh Law Review, 61: 419–498.

(K) Pope, T.M. (2008). Multi-institutional ethics committees: For rural hospitals, and urban ones too. American Journal of Bioethics, 8(4): 69-71.

(L) Pope, T.M. (1999) The maladaptation of Miranda to advance directives: a critique of the implementation of the Patient Self-Determination Act. Health Matrix, 9(1):139-202.

(M) Pope, T.M. (2009). Legal briefing: Advance care planning. Journal of Clinical Ethics, 20(4): 362-370.

(N) Pope, T.M. (2011). The law's impact on the resolution of end-of-life conflicts in the intensive care unit. Critical Care Medicine, 39(1): 223.

(O) Pope, T. M. (2010). Legal briefing: organ donation and allocation. Journal of Clinical Ethics, 21(3): 243-263.

(P) Pope, T.M., & Sellers, T. (2012). Legal briefing: The unfriended: Making healthcare decisions for patients without surrogates (Part 1). Journal of Clinical Ethics, 23(1): 84-96.

(Q) Bosslet, G. T., Baker, M., & Pope, T. M. (2016). Reason-giving and medical futility: contrasting legal and social discourse in the United States with the United Kingdom and Ontario, Canada. CHEST Journal, 150(3), 714-721.

(R) Pope, T. M. (2007). Medical futility statutes: no safe harbor to unilaterally refuse life-sustaining treatment. Tenn. L. Rev., 75, 1.

(S) Pope, T. M. (2011). Conscientious objection by health care providers. Lahey Clinic Journal of Medical Ethics. Winter, 4,7.

(T) Pope, T. M., & Palazzo, M. F. (2010). Legal briefing: Crisis standards of care and legal protections during disasters and emergencies. The Journal of clinical ethics, 21(4), 358-367.

(U) Pope, T. M. (2010). Legal briefing: Conscience clauses and conscientious refusal. Journal of Clinical Ethics, 21(2), 163-76.

(V) Pope, T. M. (2010). Legal briefing: Informed consent. The Journal of clinical ethics, 21(1), 72-82. (W) Pope, T. M., & Hexum, M. (2013). Legal briefing: shared decision making and patient decision

aids. The Journal of clinical ethics, 24(1), 70-80.