Dementia RoadmapHelping primary care to support people with dementia

http://dementiaroadmap.info

Dementia RoadmapHelping primary care to support people with dementia

Declarations of Interest•NHS:– East Surrey CCG

– SCN SE Coast Clinical Lead Dementia

– Honorary research Fellow Wolfson Institute King’s College London

– Co-developer of MoodHive (Depression Anxiety Pathway)

•Royal College of General Practitioners– Clinical Champion Dementia

– Chair Learning Disability Special Interest Group

– Member Dementia Roadmap Steering group •Consultancy / Advisory Boards / Speakers Bureau:

– AstraZeneca, Alzheimer’s Society, Cerestim Ltd, Chase Pharmaceuticals, Edmund de Rothschild, Eli Lilly, Otsuka, Pfizer, Roche, Servier, Wellcome Trust

– psi-napse

Dementia RoadmapHelping primary care to support people with dementia

Rationale

There is a wealth of information, guidance, tools and resources that can optimise assessment treatment and care …

BUT … this is difficult to access to support effective diagnosis and treatment from the desktop computer.

Dementia RoadmapHelping primary care to support people with dementia

Key features• Provides high quality NATIONAL information about the

dementia journey alongside LOCAL information about services, support groups and care pathways.

• National - common to all Dementia Roadmaps

• Local - customised to individual roadmaps

• Designed by & for primary care to assist primary care, people with dementia, family & carers with more effective support

• A coherent structure reflecting the dementia journey

• Accessible and easy to use

• Available on mobile, tablet and desktop devices

Dementia RoadmapHelping primary care to support people with dementia

Usage

15,826 sessions

12,166 users

59,709 pageviews

4.5 pages / session

3.5 mins avg session duration

23% returning visitors

77% new visitors

Popular topics

•Understanding-dementia

•Diagnostic process

•Post diagnosis support

Popular content

•Helping you to assess cognition: A practical toolkit for clinicians

•Dementia diagnosis in primary care

•North Somerset dementia pathway

•Dementia information prescription

Dementia RoadmapHelping primary care to support people with dementia

Usage

Feedback

We use the information within the Roadmap to reassure

patients and their carers by signposting them to local support

Our Roadmap helps us to refer

patients onto specialist services

The Roadmap is an incredibly useful

resource for anyone wanting to know more about dementia, and

the local services available

It’s helping us to provide better support after

diagnosis

Dementia RoadmapHelping primary care to support people with dementia

A Rolling Success• As of February 2015 there are 15 local Dementia Roadmaps

with an estimated 20 local Roadmaps in place by April.

• 15 installations to date with 2 more expected this week

• 6 of the local Dementia Roadmaps are visible to the public; 9 are currently being developed;

• Birmingham, Cambridgeshire, Doncaster, Devon, Durham and Darlington, Gateshead, Isle of Wight, North Somerset, North Tyneside, Salford, Shropshire, South Gloucestershire, South of Tyne, Surrey, Waltham Forest

Dementia RoadmapHelping primary care to support people with dementia

A Success - Testimony from Users• “We use the information within the Roadmap to reassure

patients and their carers by signposting them to local support.”

• “The Roadmap is an incredibly useful resource for anyone wanting to know more about dementia, and the local services available.”

• “It’s helping us to provide better support after diagnosis.”

• “I like the term map as it seems to be like a journey, it includes how to navigate many issues. It incorporates practical tips, education, information & an easy to follow layout. As a carer it feels supportive & provides tools to look for certain changes.”

Dementia RoadmapHelping primary care to support people with dementia

dementiaroadmap.info/northtyneside

Dementia RoadmapHelping primary care to support people with dementia

Developing a local Roadmap

What we offer

•Installation

•Initial training and online

learning environment

•Management of platform

and knowledgebase

•Marketing materials

What you need to

contribute

•Stakeholder engagement

•Project management

•Content development

•Promotion

Dementia RoadmapHelping primary care to support people with dementia

Preparing for your Roadmap

• Share information with your local stakeholders

• Establish a local project team to oversee your work  

• Develop a business case to help secure resources

• Gather information about local groups and resources

• Discuss with neighbouring localities

Dementia RoadmapHelping primary care to support people with dementia

Key features• Provides high quality NATIONAL information about the

dementia journey alongside LOCAL information about services, support groups and care pathways.

• National - common to all Dementia Roadmaps

• Local - customised to individual roadmaps

• Designed by & for primary care to assist primary care, people with dementia, family & carers with more effective support

• A coherent structure reflecting the dementia journey

• Accessible and easy to use

• Available on mobile, tablet and desktop devices

Dementia RoadmapHelping primary care to support people with dementia

• http://dementiaroadmap.info

• enquiries@dementiaroadmap.info

• @dementiaroadmap

• facebook.com/dementiaroadmap

• youtube.com/dementiaroadmap

Keep in touch