DEMENTIA CARE AT UNIVERSITY OF SALFORD - Health & Social …€¦ · of music concerts in promoting...

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DEMENTIA CARE AT UNIVERSITY OF SALFORD

Transcript of DEMENTIA CARE AT UNIVERSITY OF SALFORD - Health & Social …€¦ · of music concerts in promoting...

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DEMENTIA CAREAT UNIVERSITYOF SALFORD

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SALFORD INSTITUTEFOR DEMENTIA

The Salford Institute for Dementia, based at the University of Salford,aims to improve the lived experience of people affected by dementia.Our research is focused on the challenges faced by people living with

dementia and their care partners and seeks to improve the lives ofthese individuals in a variety of innovative ways.

https://www.salford.ac.uk/salford-institute-for-dementia

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Dementia AssociatesAt the Institute we have a panel of DementiaAssociates who act as our experts byexperience. This panel is made up of peopleliving with dementia and their care partners.They meet with academics from the Instituteonce a month to talk about projects and tosteer our research. They are also involved ineducation provision and communityengagement at the Institute.

People living with dementia have reportedan appetite for influencing dementiaspecific attitudes, policy and services.Despite this, initiatives aimed at enablingsuch influence are currently under-researched1. Interventions aimed atmaintaining identity and sense of self forpeople living with dementia are alsosimilarly underdeveloped2. This group aimsto address some of these issues byoffering people living with dementia anopportunity to be involved in a variety ofprojects at the Institute.

Community Engagement Groups at the HubAs part of our commitment to improving thelives of people with dementia, the Institutehosts a number of community engagementgroups from our specially designedDementia Hub on the University campus.People living with dementia in the UK oftenreport low levels of wellbeing and quality oflife. Indeed, only 22% of individuals say thatthey live well with the condition3. This hasbeen attributed to a loss of identity,depression and a lack of social interaction4.We know that there is often limited supportfor people living with dementia in thecommunity and those who care for them.We also know that regular social interactioncan have a positive effect on the wellbeingand quality of life of these individuals.

Sid’s CaféMemory Cafés have been found to promotesocial inclusion, prevent isolation, andimprove the social and emotional well-beingof attendees5. They are also a key source ofsupport and respite for family carer6. Cafésoffer a ‘safe space’ for people living withdementia7 where they can meet and interactwith others who are experiencing similarsituations. It is a space where bonds offriendships are formed and valuable peersupport is offered. The Institute runs amonthly memory café to provide mentalstimulation, social interaction and to improvewellbeing in a communal environment.

Music GroupMusic can often have a positive effect onpeople living with dementia. As well aspromoting wellbeing, engaging in musiccan increase cognitive functioning andreduce depression8, 9. Concertperformances appear to have a positiveimpact on the well-being of people livingwith dementia in care settings10. TheInstitute runs a monthly music café inpartnership with the national charity Musicin Care and Hospitals. At this group peoplewith dementia and their care partners havethe opportunity to watch live performancesfrom some of Salford’s most talentedmusicians and to interact with the music.People who attend these groups havereported how much they enjoy theexperience and we are using observationaltools (Dementia Care Mapping andconcurrent unstructured observations) toassess the impact that these groups haveupon attendees.

The Good Life ClubThe Good Life Club is a gardening groupfor people living with dementia and theircare partners. People living with dementia

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often express a wish to participate ingardening and other outdoor basedactivities. These can have positive impacton health and quality of life outcomes forthese individuals11. The Dementia Hubgarden is maintained by individuals affectedby dementia. They are involved in everypart of the gardening process from buyingseeds and plants at the local garden centreto watering and tending these plants. In thegarden we grow flowers as well as fruit,vegetables and herbs, which we harvesttogether to cook and eat.

The influence of garden therapy on healthoutcomes, quality of life and well-being iswell documented for a wide range ofmedical conditions12. The impact of acommunity based gardening group on thewell-being of community dwelling peopleliving with dementia remains unexplored.The group is currently being evaluated byacademics at the Institute to address thisgap in knowledge.

PUBLIC ENGAGEMENT

Dementia Action Week 2018 at University of Salford The week featured a roundtable discussionwith Nordoff Robbins regarding ‘Music inDementia’ followed by an interactiveafternoon celebrating the ‘Power of Music’.The ‘Role of Arts and Media in PublicPerception of Dementia’ evening paneldiscussion featured actor ChristopherEccleston and led to Christopher acceptingthe role of SID patron. Later in the week,Greater Manchester Mayor Andy Burnhamas well as Kathryn Smith, CEO at theAlzheimer’s Society, Helen Davies, Head ofPublic Affairs at Alzheimer’s Research UK,and David Croisdale-Appleby, Chairman of Dementia UK visited the Dementia Hubto see how the Hub has transformed thelives of families impacted by dementia. The University also hosted the Alzheimer’sResearch UK North West PublicEngagement Event for a successfulafternoon of lab tours, interactive sessions,exhibitions, discussion and performances.

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STUDY

MSc/PgDip/PgCert DEMENTIA: CAREAND THE ENABLING ENVIRONMENT atUniversity of SalfordThis course will equip you with theknowledge to develop enabling and lifeengagement focussed services andinterventions for people living withdementia, and their carers.

The course is inter-disciplinary, exploringdifferent approaches to enhancing lifeengagement for people who have dementiaand their carers. The course is not limitedto a health and social care perspective.The design focus looks at ways in whichthe environment (buildings, urban spaces,transport) can be designed or modified toprovide meaningful activity and support forpeople with dementia and their carers.

This pioneering course has strong linkswith the Salford Institute for Dementia. Youwill enjoy opportunities for involvementwith the Institute, supporting your learningand future career progression.

/ Enhanced flexibility of study throughonline tuition

/ Learn to make a positive difference to theexperience of living with people touchedby dementia

/ Benefit from a multi-disciplinary courseincluding care and design including beingtaught by credible dementia care anddesign educators, researchers, registeredprofessionals, people with dementia andactivists

/ Part-time study option

Find out more: http://www.salford.ac.uk/pgt-courses/dementia-care-and-the-enabling-environment

The course is jointly delivered by the School ofHealth and Society and School of the BuiltEnvironment.

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RESEARCH

The Smart Urban Futures ResearchGroup draws together academic expertiseat the University of Salford which is at theinterface between the physical design,construction, functioning and developmentof urban spaces; and the lives, health,behaviour and movement of humans whoexist within cities. The group complementscutting edge built environment research atSalford by seeking to understand thedevelopment of cities as equitable,prosperous and liveable spaces for all, andhow citizens, individually and collectivelywill shape this development. A researchdegree with the School of the BuiltEnvironment offers you the flexibility toconduct your own research project underdirect academic supervision. You can studytowards a Master of Philosophy (MPhil),Doctor of Philosophy (PhD), ProfessionalDoctorate (DProf) or MSc by Research.

For more information, please contact: Dr Chaminda Pathirage Director of Postgraduate Research Studies

[email protected] 295 4016

References

1 Litherland, R. and Williamson, T. (2013) 'DEEP: theengagement, involvement and empowerment of peoplewith dementia in collective influencing', Working withOlder People: Community Care Policy & Practice, 17(2),pp. 66-73.

2 Caddell, L. S. and Clare, L. (2011) 'Interventionssupporting self and identity in people with dementia: Asystematic review', Aging & Mental Health, 15(7), pp.797-810.

3 Lakey, L., Chandaria, K., Quince, C., Kane, M., &Saunders, T. (2012). Dementia 2012: A national challenge.

4 Low, L.-F., Swaffer, K., McGrath, M. and Brodaty, H.(2017) 'Do people with early stage dementia experiencePrescribed Disengagement®? A systematic review ofqualitative studies', International Psychogeriatrics, pp. 1-25.

5 Dow B., Haralambous B., Hempton C., Hunt S. &Calleja D. (2011) Evaluation of Alzheimer’s Austrailia VicMemory Lane Cafés. International Psychogeriatrics, 23(2): 246–55.

6 Greenwood, N., Smith,R., Farrukh A., and Richardson,A. (2017) A qualitative study of carers’ experiences ofdementia cafés: a place to feel supported and be yourself.BMC Geriatrics, 17 (1).

7 Capus J. (2005) The Kingston Dementia Café: thebenefits of establishing an Alzheimer café for carers andpeople with dementia. Dementia, 4 (4): 588–91.

8 van der Steen, J. T., van Soest-Poortvliet, M. C., vander Wouden, J. C., Bruinsma, M. S., Scholten, R. J. andVink, A. C. (2017) 'Music-based therapeutic interventionsfor people with dementia', The Cochrane Database OfSystematic Reviews, 5, pp. CD003477.

9 Zhang, Y., Cai, J., An, L., Hui, F., Ren, T., Ma, H. andZhao, Q. (2017) 'Does music therapy enhance behavioraland cognitive function in elderly dementia patients? Asystematic review and meta-analysis', Ageing ResearchReviews, 35, pp. 1-11.

10 K Shibazaki, NA Marshall, (2017) Exploring the impactof music concerts in promoting well-being in dementiacare, Aging and Mental Health,

11 Noone, S., Innes, A., Kelly, F. and Mayers, A. (2017)‘‘The nourishing soil of the soul’: The role of horticulturaltherapy in promoting well-being in community-dwellingpeople with dementia, Dementia, 16(7), pp. 897-910.

12 Spring, J. A., Viera, M., Bowen, C., Marsh, N. (2014) Isgardening a stimulating activity for people with advancedHuntington’s disease? Dementia 13(6): 819–833.

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PROUD TO BELIEVEIN A LIFE BEYONDDEMENTIA

General enquiriest: 0161 295 2363

e: [email protected]

www.salford.ac.uk/salford-institute-for-dementia@InstforDementia