David PraillChief Executive, Help the Hospices

Hospice and Palliative Care

An Introduction and Overview

Hospice Care

• Freedom from pain and to give peace, dignity and calm

• Tailored care for each individual to meet physical, emotional, social and spiritual needs

• Not just a building, care can be provided at home, in day centres and also on specialist hospital wards

• Specialist skills of staff and the need for access to ongoing support

A Dying Patient is a Living Person

The UK Hospice Movement

• Pioneered in the voluntary sector with around 80% of hospice care now provided by local charities rooted in their communities

• Patients referred to hospice via primary health care sector – GP, hospital consultant, and maybe district nurse

• Nearly half of those admitted to a hospice return home – the average length of stay is just 13 days

• 250,000 patients given care free of charge

• total voluntary contribution is £522m – average 34% contribution from Government to running costs of adult services and 5% to children’s

In-patient Units Units Beds

Independent charitable hospices* 173 2,397

Marie Curie hospices 10 236

Sue Ryder Care homes 6 111

Total voluntary sector services 189 2,744

NHS Managed Units 64 667

Total 253 3,411

*includes 33 units for children with 255 beds and 3 exclusively for patients with HIV/AIDS with 50 beds. One charity may have a number of units

Hospice and Palliative Care Services UK – 2005

Services for adults Total

Community Palliative Care services 358

Hospice at home 104

Day Hospices / Centres 263

Hospital Support Nursing Services 68

Hospital Support Teams 293

In-patient Units Other Services

NHS AdultVoluntary

AdultTotal Adult Children’s Home

CareDayCare

HospitalBased

Hospiceat

Home

Units Beds

Units Beds Units Beds Units

Beds

1977

11 218 27 784 381,00

2- - - - - -

1987

33 458 84 1,743 1172,20

11 8 166 60 18 -

1997

56 595 147 2,458 2033,05

312 100 375 227 304 55

2005

64 667 156 2,489 2203,15

633 255 358 263 361 104

Hospice and Palliative care Provision

1977 - 2005

The UK Hospice Movement

• Around 90,000 volunteers

• By 2020 21% of UK population will be over the age of 65 many more people will live and die from long-term chronic conditions rather than sudden acute disease

• Death is still taboo

Help the Hospices

A world in which the best possible care is available to all people at the

end of life what ever their circumstances

Help the Hospices

• The national charity for the hospice movement in the UK

• Support 200+ local hospices through:– Education and Training– Grant-Aid– Information– Advice– Advocating the cause of hospice care and the

issues being faced to the government and general public

– National Fundraising initiatives– Raise awareness and understanding of hospice

care internationally

International Hospice Care

• 56million people die every year around the world – 40m in the developing world

• 60% of those dying in the developing world would benefit from hospice care to alleviate pain and suffering in their final days

• Yet only 1% in countries such as India are able to access such care

• Barriers to providing hospice and palliative care – non-availability of morphine and fear of drug prescription and lack of resources for professional education and to sustain any services developed

Help the Hospices Help the Hospices support for support for

international international hospice carehospice care

Twinning

Education & Training Grants

($250 000 since 2002) Policy

informationFunding

Advocacy Skills Share

World Hospice and Palliative Care Day

October 8th 2005

The first World Hospice and Palliative Care Day - October 8th 2005

• Open to any organisation or individual who cares about and is involved in hospice and palliative care anywhere in the world

• Voices for Hospices – events in 58 countries

• Help the Hospices’ launch of “Suffering at the end of life: the state of the world”

• Increase understanding of the nature and value of hospice care and destroy some of the myths