Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le...

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Data Ethics: DIY Kar¨ en Fort [email protected] / http://karenfort.org January 10th, 2020 1 / 39

Transcript of Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le...

Page 1: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

Data Ethics: DIY

Karen Fort

[email protected] / http://karenfort.org

January 10th, 2020

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Page 2: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

Sources of inspiration

I Coursera MOOC from the University of Geneva (2018): LeBien, le Juste, l’Utile. Introduction aux ethiquesphilosophiques

I edX MOOC from the University of Michigan (2018): DataScience Ethics

I Ethical IT Innovation (2016). S. Spiekermann. CRC Press.

I L’ethique aux interfaces entre biologie/sante et sciences del’information (2016). H. Chneiweiss. (with his approval)

I L’ethique appliquee (2010). M. Marzano. PUF

I Wikipedia

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Page 3: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

”All your data are belong to us”DefinitionsMotivation and Goal

A Bit of Practice

A Question of Time

To finish

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Page 4: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

”All your data are belong to us”DefinitionsMotivation and Goal

A Bit of Practice

A Question of Time

To finish

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Page 5: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

Ethics?soft law

https://www.merriam-webster.com/dictionary/ethics

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Page 6: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

What do you know about ethics?

I well-known ethical issues?

I ethical institutions?

I famous thinkers?

I well-known texts/documents about ethics? turning points?

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Personal Data

https://gdpr-info.eu/art-4-gdpr/

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Sensitive Dataspecifically protected ?

https://gdpr-info.eu/art-9-gdpr/

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Sensitive Data: exceptions

https://gdpr-info.eu/art-9-gdpr/

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Sensitive Data: exceptions again

https://gdpr-info.eu/art-9-gdpr/

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Page 12: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

Sensitive Data: exceptions again again

https://gdpr-info.eu/art-9-gdpr/

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Page 13: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

Sensitive Data: exceptions again again again

https://gdpr-info.eu/art-9-gdpr/

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Page 14: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

”All your data are belong to us”DefinitionsMotivation and Goal

A Bit of Practice

A Question of Time

To finish

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Page 15: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

Why should you care?

I because you are a citizen

I because ethical products sell better [Spiekermann, 2015]

I because if you don’t as data scientists, others with lessknowledge will

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What this course will (hopefully) bring you

No ready-made solution

but

tools to think by yourself

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”All your data are belong to us”

A Bit of PracticeWhat Happens to Data?

A Question of Time

To finish

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Data Lifecycle

Haztowichp - CC BY-SA

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Ethical Hot Spots?

Haztowichp - CC BY-SA

Exercise your ”ethical” brain

Identify the potential ethical ”hot spots” in the data lifecycle (takea concrete example to illustrate)

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”All your data are belong to us”

A Bit of Practice

A Question of TimeWho’s dealing with it?Is Science Necessarily Good?(some) Turning Points in the XXth century

To finish

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Page 22: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

”All your data are belong to us”

A Bit of Practice

A Question of TimeWho’s dealing with it?Is Science Necessarily Good?(some) Turning Points in the XXth century

To finish

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Page 23: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

A very old question (the oldest?) in a brave new world

From Lysippe — Eric Gaba (User:Sting),

July 2005., CC BY-SA 2.5

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Ethics is a domain from. . .

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What discipline/domain thinks a lot about ethics?

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(some) French institutions dealing with ethics

I CNIL: Commission Nationale de l’Informatique et des Libertes

I CCNE: Comite consultatif national d’ethique

I CERNA: Commission de reflexion sur l’ethique de la rechercheen sciences et technologies du numerique d’Allistene

I COMETS: Comite d’ethique du CNRS

I CEI: Comite d’ethique de l’Inserm

I COERLE: Comite operationnel d’evaluation des risques legauxet ethiques

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Page 27: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

”All your data are belong to us”

A Bit of Practice

A Question of TimeWho’s dealing with it?Is Science Necessarily Good?(some) Turning Points in the XXth century

To finish

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Is (the outcome of) science necessarily good?

Are there things that are possible to do that we agree we shouldnot?

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(c) https://www.starwars.com/databank/clone-troopers

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Is (the way we do) science necessarily good?

Are there things that are possible to do that we agree we shouldnot?

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Page 31: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

”All your data are belong to us”

A Bit of Practice

A Question of TimeWho’s dealing with it?Is Science Necessarily Good?(some) Turning Points in the XXth century

To finish

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Page 32: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

The Nuremberg Codeoriginated before, but finalized during ”the Doctors’ Trial” (1947)

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The Nuremberg Codeoriginated before, but finalized during ”the Doctors’ Trial” (1947)

10 main principles, including:I Respect of the subject:

I informed consentI freedom to quit the experiment

I Beneficience:I favorable risks/benefits balance

I Justice:I positive results for society

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The Belmont Report [Bel, 1979]originated from ”Tuskegee Syphilis Experiment” (1932-1972)

By National Archives Atlanta, GA

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The Belmont Report [Bel, 1979]originated from ”Tuskegee Syphilis Experiment” (1932-1972)

The report includes 3 main principles:

I Respect of the subject:I informed consent

I Beneficience:I favorable risks/benefits balance

I Justice:I fair selection of the subjects

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[Chenaud et al., 2008] 36 / 39

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”All your data are belong to us”

A Bit of Practice

A Question of Time

To finishWYHTR: What You Have To Remember

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I it’s a question of time (spentquestioning/thinking)

I others have thought about itbefore (get inspired)

I no ready-made solution

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Page 39: Data Ethics: DIY - schplaf.org · I Coursera MOOC from the University of Geneva (2018): Le Bien, le Juste, l’Utile. Introduction aux ethiques philosophiques I edX MOOC from the

(1979).The belmont report : Ethical principles and guidelines for theprotection of human subjects of research.

Chenaud, C., Gigon, F., Ricou, B., and Merlani, P. (2008).Le consentement eclaire pour la recherche aux soins intensifsen suisse : quelle solution ?Rev Med Suisse, 4:2691–2695.

Dittrich, D. and Kenneally, E. (2012).The Menlo Report: Ethical Principles Guiding Information andCommunication Technology Research.Technical report, U.S. Department of Homeland Security.

Spiekermann, S. (2015).Ethical IT Innovation: A Value-Based System DesignApproach.CRC Press.

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