Data Advisory Committee Update

Charlie Alexander RN, MSN, MBA

Seek broad input in developing a long term, innovative vision for the OPTN/SRTR data set

• Systematic and smoothly functioning process for the identification of OPTN data to be collected• Methods of collection• Types of products to be supported by the system

Analyze and consider advances in both organ transplantation and technology in order to inform this vision

DAC Charge and Functions

Name Committee Position Institution Name

Charles Alexander RN, MSN, MBA Chair The Living Legacy Foundation of MDS. Joseph Kim M.D., FRCPC Vice-Chair Toronto General HospitalYael Coppleson At Large New York-Presbyterian HospitalSandy Feng MD, PhD At Large UCSF Medical Center

Alexandra Glazier JD, MPH At Large New England Organ BankRichard Hasz Jr , MFS At Large Gift of Life Donor ProgramIan Jamieson MBA, MHA At Large Duke University Medical CenterMaryl Johnson MD At Large University of WisconsinAlan Leichtman MD At Large University of Michigan Medical CenterRobert Merion MD At Large University of Michigan Medical CenterMike Peterson At Large NeuStar, Inc.Jesse Schold PhD, M.Stat, M.Ed At Large Cleveland Clinic FoundationStuart Sweet M.D., Ph.D. At Large St. Louis Children's HospitalJames Wynn M.D. At Large University of Mississippi Medical Center

Committee Composition

Vision

Collaborate with organ-specific committee experts • Review existing OPO data and metric projects• Assess work that has already been completed

Remain mindful of data burden and community

support

Keep in mind impact on research

Considerations

Challenges

Data burden on members

Consensus among

interested parties

OPTN IT development

Work within existing framework• Final Rule• OPTN Principles

of Data Collection

Potential Futures

Thank you!Charlie Alexander RN, MSN, MBA, Committee Chair

calexander@thellf.org

Kristina Tyler JD, Committee Liaison

Kristina.Tyler@unos.org

Questions?