CysticLife.orgCysticLife.orgSocial Media and the Cystic Fibrosis CommunitySocial Media and the Cystic Fibrosis Community

Today’s ObjectivesToday’s Objectives

Understand the state of social mediaUnderstand the state of social media

Discuss social networking for the Discuss social networking for the healthcare industryhealthcare industry

Learn how the Cystic Fibrosis Learn how the Cystic Fibrosis community is using social mediacommunity is using social media

Explore CysticLife.orgExplore CysticLife.org

Social Media

Popular Social SitesPopular Social Sites

The State of Social The State of Social MediaMedia

Explosive year-to-year growthExplosive year-to-year growth

Usage increases year-to-yearUsage increases year-to-year

Social networker make-up leans Social networker make-up leans towards young femalestowards young females

Demographics of UsersDemographics of Users

Explosive GrowthExplosive Growth

FrequencyFrequency

Key ImplicationKey Implication

With both usage of social networks With both usage of social networks and the frequency of that usage and the frequency of that usage increasing dramatically – We are increasing dramatically – We are witnessing a change in how witnessing a change in how mainstream consumers communicate.mainstream consumers communicate.

Healthcare and Social Media

Popular Types of Healthcare Social Popular Types of Healthcare Social MediaMedia

Blogs – WebMD, NYTHealth BlogBlogs – WebMD, NYTHealth Blog

Microblogs – LivestrongMicroblogs – Livestrong

Social Networking – OrganizedWisdom, Social Networking – OrganizedWisdom, PatientsLikeMePatientsLikeMe

Podcasts – Johns Hopkins Medical Podcasts – Johns Hopkins Medical Podcasts, Mayo ClinicPodcasts, Mayo Clinic

Forums – Google Health Groups, Yahoo! Forums – Google Health Groups, Yahoo! Health GroupsHealth Groups

Healthcare Social Healthcare Social MediaMedia

E-patients represent the new breed of E-patients represent the new breed of informed health consumers - using the informed health consumers - using the internet to gather medical information about internet to gather medical information about a condition of particular interest to them.a condition of particular interest to them.

60 million consumers are using new media to 60 million consumers are using new media to interact and share their health experiences interact and share their health experiences online.online.

72 % of e-patients searched for medical 72 % of e-patients searched for medical information just before or after a doctor’s information just before or after a doctor’s visitvisit

Why Social Media?Why Social Media?

People trust “a person like me” more People trust “a person like me” more than authority figuresthan authority figures

People are seeking ongoing dialogue, People are seeking ongoing dialogue, not one-way communicationnot one-way communication

Many patients are not getting the Many patients are not getting the empathy they need from doctors.empathy they need from doctors.

What are e-patients searching for What are e-patients searching for and how?and how?

36% want to see what other 36% want to see what other consumers say about medication or consumers say about medication or treatment.treatment.

34% using social media sites34% using social media sites

46% using health sites46% using health sites

67% using search engines67% using search engines

Social Media and CF

CF Community OnlineCF Community Online

Trends are the same for the CF Trends are the same for the CF communitycommunity

Added benefits for CF community:Added benefits for CF community:Limited face-to-face interaction for Limited face-to-face interaction for

patientspatientsSmall population, web increases Small population, web increases

circle of supportcircle of supportCF is a lifestyle diseaseCF is a lifestyle disease

Popular CF Social Popular CF Social MediaMedia

Blogs – Confessions of a CF Husband, Blogs – Confessions of a CF Husband, CFFatboy, RunSickboyRun, A Matter of CFFatboy, RunSickboyRun, A Matter of Life and Breath, Welcome to JoshlandLife and Breath, Welcome to Joshland

Social Networks – CysticLife.org, Social Networks – CysticLife.org, FacebookFacebook

Podcasts – Jerry Cahill’s CF PodcastPodcasts – Jerry Cahill’s CF Podcast

Forums – Yahoo! and Google Health Forums – Yahoo! and Google Health Groups. Groups.

CysticLife

What is CysticLife?What is CysticLife?

An organization that works to positively An organization that works to positively impact the lives of the Cystic Fibrosis impact the lives of the Cystic Fibrosis community.community.

Online: CysticLife.orgOnline: CysticLife.org

Offline:Offline: Raise awareness about CFRaise awareness about CF Educate/support the communityEducate/support the community Soon will provide activity, medical, and Soon will provide activity, medical, and

educational grants for CF-related expenseseducational grants for CF-related expenses

CysticLife.orgCysticLife.org

Open to anyone in the CF community: patients, Open to anyone in the CF community: patients, family members, friends and healthcare providersfamily members, friends and healthcare providers

Members can maintain a profile, blog, ask Members can maintain a profile, blog, ask questions, communicate with others and search for questions, communicate with others and search for members by age, gender, location and relation to members by age, gender, location and relation to CF.CF.

Since January 2010:Since January 2010: Over 900,000 hitsOver 900,000 hits 2100 registered members2100 registered members Average 8.5 minutes and 8.5 pageviews per visitAverage 8.5 minutes and 8.5 pageviews per visit Visitors from all 50 states and 79 different countriesVisitors from all 50 states and 79 different countries 64% of visitors returning more than once a day64% of visitors returning more than once a day Top Content:Top Content:

Questions, Blogs, MembersQuestions, Blogs, Members

Live Demo

Questions?Questions?

SourcesSources

Webster, Tom. Webster, Tom. The Social Habit - Frequent Social Networkers The Edison/Arbitron Internet and Multimedia Study 2010. Rep. The Social Habit - Frequent Social Networkers The Edison/Arbitron Internet and Multimedia Study 2010. Rep. Edison Research/Arbitron Inc, Feb. 2010. Web. Aug. 2010. Edison Research/Arbitron Inc, Feb. 2010. Web. Aug. 2010. <http://www.edisonresearch.com/home/archives/2010/06/the_social_habit_frequent_social_networkers_in_america.php>.<http://www.edisonresearch.com/home/archives/2010/06/the_social_habit_frequent_social_networkers_in_america.php>.

Chen, Pauline W. "Taking Time for Empathy." Chen, Pauline W. "Taking Time for Empathy." New York Times. 25 Sept. 2008. Web. 30 Aug. 2010. New York Times. 25 Sept. 2008. Web. 30 Aug. 2010. <http://www.nytimes.com/2008/09/26/health/chen25.html?em>.<http://www.nytimes.com/2008/09/26/health/chen25.html?em>.

Meis, Scott. "Healthcare & Social Media: 2009 Trends & Strategy." Carolyn Grisko & Associates Inc., 11 Meis, Scott. "Healthcare & Social Media: 2009 Trends & Strategy." Carolyn Grisko & Associates Inc., 11 Mar. 2009. Web. 30 Aug. 2010. <http://www.slideshare.net/ScottMeis/healthcare-social-media-2009-Mar. 2009. Web. 30 Aug. 2010. <http://www.slideshare.net/ScottMeis/healthcare-social-media-2009-trends-strategy-1131605>.trends-strategy-1131605>.

Q1 Productions. "Social Media in Healthcare." Apr. 2009. Web. 30 Aug. 2010Q1 Productions. "Social Media in Healthcare." Apr. 2009. Web. 30 Aug. 2010. < . < http://www.youtube.com/watch?v=qLeNGykRAvU>.http://www.youtube.com/watch?v=qLeNGykRAvU>.