CURRICULUM VITAE NAME: Conrad Vincent Fernandez, MD, FRCP ... · 2005 Nominated: PARI-MP Excellence...

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CURRICULUM VITAE NAME: Conrad Vincent Fernandez, MD, FRCP(C), Hon BSc (Genetics) Head, Division of Pediatric Hematology/Oncology Professor, Department of Pediatrics Cross-appointee: Departments of Bioethics, Postgraduate Studies, and Medicine Senior Scientist, Beatrice Hunter Cancer Research Institute Pediatric Hematologist/Oncologist IWK Health Centre, Dalhousie University ADDRESS: Work IWK Health Centre 5850 University Avenue P. O. Box 9700 Halifax, Nova Scotia B3K 6R8 Canada Phone: 902-470-6839/or 6988 Fax: 902-470-7216 (administrative) Fax: 902-470-7208 (clinical - secure) E-mail: [email protected] PERSONAL: Canadian Citizen Married, 2 children Fluent: English, German (non-medical knowledge) Conrad V. Fernandez, Hon BSc, MD, FRCP(C) Last Updated: 20 April 2020

Transcript of CURRICULUM VITAE NAME: Conrad Vincent Fernandez, MD, FRCP ... · 2005 Nominated: PARI-MP Excellence...

Page 1: CURRICULUM VITAE NAME: Conrad Vincent Fernandez, MD, FRCP ... · 2005 Nominated: PARI-MP Excellence in Teaching Award, Canada. 2004 Pediatric Resident 2004-2005 "Silver Spoon" Teaching

CURRICULUM VITAE

NAME: Conrad Vincent Fernandez, MD, FRCP(C), Hon BSc (Genetics)

Head, Division of Pediatric Hematology/Oncology

Professor, Department of Pediatrics

Cross-appointee: Departments of Bioethics, Postgraduate Studies, and Medicine

Senior Scientist, Beatrice Hunter Cancer Research Institute

Pediatric Hematologist/Oncologist

IWK Health Centre, Dalhousie University

ADDRESS: Work

IWK Health Centre

5850 University Avenue

P. O. Box 9700

Halifax, Nova Scotia B3K 6R8 Canada

Phone: 902-470-6839/or 6988

Fax: 902-470-7216 (administrative)

Fax: 902-470-7208 (clinical - secure)

E-mail: [email protected]

PERSONAL: Canadian Citizen

Married, 2 children

Fluent: English, German (non-medical knowledge)

Conrad V. Fernandez, Hon BSc, MD, FRCP(C)

Last Updated: 20 April 2020

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EDUCATION:

1997 Bone Marrow Transplantation, Clinical Fellowship, BC Cancer Agency, Vancouver,

British Columbia. Canada.

1994 - 1996 Pediatric Hematology/Oncology Fellowship, BC Children's Hospital, Vancouver,

British Columbia. Canada.

1989 - 1993 Pediatric Residency, Izaak Walton Killam Children's Hospital, Dalhousie University,

Halifax, Nova Scotia. Canada.

1985 - 1986 Rotating Internship, McMaster University, Hamilton, Ontario, Canada.

1982 - 1985 McMaster University Medical School, MD 1985, McMaster University, Hamilton,

Ontario, Canada.

1978 - 1982 University of Western Ontario, Hon BSc (Genetics), Dean's List. London, Ontario,

Canada.

1975 - 1978 Lisgar Collegiate Institute, Ontario Scholar 1978, Ottawa, Ontario, Canada.

HOSPITAL APPOINTMENTS:

2014 - Capital District Health Authority (now Nova Scotia Health Authority). Consultant

staff. Halifax, Nova Scotia.

1998 - IWK Grace Health Centre (now IWK Health Centre), Active Staff, Halifax, NS.

1996 - 1998 British Columbia's Children's Hospital, Courtesy Staff, Vancouver, British Columbia.

1993 Izaak Walton Killam Children's Hospital, Courtesy Staff, Halifax, Nova Scotia.

1993; 2007 Moncton City Hospital & George L. Dumont Hospital, Courtesy Staff. Moncton, New

Brunswick.

1988 - 1989 Sioux Lookout General Hospital, Associate Staff, Sioux Lookout, Ontario, Canada.

1988 - 1989 Sioux Lookout Zone Hospital, Courtesy Staff, Sioux Lookout, Ontario, Canada.

LICENCES and SPECIALITY RECOGNITION:

2002 - New Brunswick Provincial Medical Board, Courtesy Licence: 90415.

1998 - Nova Scotia Provincial Medical Board, Specialty Licence: 10866.

1996 - 1998 British Columbia Provincial Medical Board, Specialty Licence: 14776.

1995 - 1996 British Columbia Provincial Medical Board, Educational Licence: 27233.

1994 - 1995 British Columbia Provincial Medical Board, Educational Licence: 26339.

1993 Nova Scotia Provincial Medical Board, Specialty Licence: 10866.

1993 New Brunswick Provincial Medical Board, Locum Specialty Licence.

1993; 06 Fellow of Royal College of Physicians, Pediatrics, Canada. Number: 0442011.

1989 - 1993 Nova Scotia Provincial Medical Board, Educational Licence.

1986 - 1989 College of Physicians and Surgeons of Ontario, General Licence, Registration: 55331.

1986; 06 Licentiate of the Medical Council of Canada, Registration Number: 61813.

1985; 07 Medical Council of Canada Qualifying Examination.

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ACADEMIC and WORK EXPERIENCE:

2012 (01-06) Sabbatical, Dalhousie University, Halifax, NS. (Visits to Perth, Australia and HSC,

Toronto, Canada)

2011 (09) - Head, Division of Pediatric Hematology/Oncology, Department of Pediatrics, IWK

Health Centre, Halifax, NS.

2011 (05-08) Interim Head, Division of Pediatric Hematology/Oncology, Department of Pediatrics,

IWK Health Centre, Halifax, NS.

2010 (07) - Senior Scientist, Beatrice Hunter Cancer Research Institute, Halifax, NS, Canada.

2009 - Professor, Pediatric Hematologist/Oncologist, Department of Pediatrics, IWK Health

Centre, Dalhousie University, Halifax, Nova Scotia, Canada.

2009 - Professor, Department of Bioethics, Dalhousie University, Halifax, Nova Scotia.

Canada. (Cross-appointment)

2005 - 2009 Associate Professor, Faculty of Graduate Studies, Dalhousie University, Halifax, Nova

Scotia, Canada. (Cross-appointment)

2005 - 2007 Associate Professor, Department of Medicine, QEII Hospital, Dalhousie University.

Halifax, Nova Scotia, Canada. (Cross-appointment)

2004 - 2009 Associate Professor, Department of Bioethics, Dalhousie University, Halifax, Nova

Scotia, Canada. (Cross-appointment)

2003 - 2009 Associate Professor, Pediatric Hematologist/Oncologist, Department of Pediatrics,

IWK Health Centre, Dalhousie University, Halifax, Nova Scotia, Canada.

2002 - 2005 Assistant Professor, Department of Medicine, QEII Hospital, Dalhousie University,

Halifax, Nova Scotia, Canada.

1998 - Medical Director, Maritime Provinces Pediatric Bone Marrow Transplantation

Program, IWK Health Centre, Halifax, Nova Scotia, Canada.

1998 - 2003 Assistant Professor, Pediatric Hematologist/Oncologist, Department of Pediatrics, IWK

Health Centre, Dalhousie University, Halifax, Nova Scotia, Canada.

1996 - 1998 Clinical Instructor, Pediatric Hematologist/Oncologist, British Columbia's Children's

Hospital, University of British Columbia, Vancouver, British Columbia, Canada.

1994 - 1996 Pediatric Hematology/Oncology Subspecialty Resident, University of British

Columbia, Vancouver, British Columbia, Canada.

1994 (01-04) Pediatrician, Nazareth Mission Hospital, Nairobi, Kenya.

1993 (07-12) Emergency Room Pediatrician, Izaak Walton Killam Children's Hospital. Halifax,

Nova Scotia, Canada.

1993 (07-12) Administrative Assistant, Postgraduate Medical Education (Pediatrics), IWK Health

Centre, Halifax, Nova Scotia, Canada.

1993 (08-12) Pediatric Respirology Assistant, Cystic Fibrosis, Chest and General Respirology

Clinics, IWK Health Centre, Halifax, Nova Scotia, Canada.

1993 (08-12) Clinical Research Fellow, Endocrinology, IWK Health Centre, Halifax, Nova Scotia,

Canada.

1993 (07) Pediatric Locum, Moncton, New Brunswick, Canada.

1992 - 1993 Co-Chief Resident, Pediatrics, IWK Health Centre, Dalhousie University, Halifax,

Nova Scotia, Canada.

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1989; 1991; Dalhousie Outpost Nurses Program, Teacher, Dalhousie University, School of Nursing

1992 Halifax, Nova Scotia, Canada.

1988 - 1989 Family Practice, The Hugh Allen Clinic, Sioux Lookout, Ontario, Canada. Including

monthly one-week fly-in visits to Native Canadian Reserve Outpost Nursing Stations.

(Fort Hope, Sandy Lake and Landsdowne House)

1987 (08) Family Practice Locum: Dr. M. Salomon, Ottawa, Ontario, Canada.

1986 - 1987 Family Practice, Ignace, Ontario, Canada.

1982 (06-08) Technical Assistant: Human WBC gene expression, Cell Science Laboratories,

University of Western Ontario, London, Ontario, Canada. Supervisor: Dr. B. G.

Atkinson.

1981 (06-08) Laboratory Assistant: Metabolic regulation, Institute for Biotechnological Research

(GBF).

1980 (06-07) Stoeckheim, West Germany. Supervisor: Dr. H.U. Schairer.

AWARDS and HONOURS:

2019 Nominated: 2019 IWK Family Leadership Council Award for Excellence in Patient

and Family Centred with Gloria Gallant and Hematology Team. Halifax, NS.

2018 Service and Leadership Award. Children’s Oncology Group. In recognition of role of

founding Co-Chair, Return of Research Results committee.

2011 Nominated: 2011 IWK Health Centre Family Leadership Council’s Annual Award for

Excellence in Patient and Family Centred Care, Halifax, Nova Scotia, Canada.

2010 Department of Pediatrics Endowment Award, Canadian research committee strategies

assessment, Halifax, Nova Scotia, Canada.

2008 Best poster, Society of International Pediatrics Annual meeting, Other Section (Ethics),

Berlin, Germany.

2005 Distinguished Service Award, Dalhousie Health Sciences Research Ethics Board,

Dalhousie University, Halifax, Nova Scotia, Candace.

2005 Nominated: PARI-MP Excellence in Teaching Award, Canada.

2004 Pediatric Resident 2004-2005 "Silver Spoon" Teaching Award, IWK Health Centre

and Dalhousie University, Halifax, Nova Scotia, Canada.

2003 Junta General del Principado de Asturias - International Society of Bioethics (SIBI)

2002 Prize in Ethics. Assent and Dissent to Research by Children with Chronic Illness.

Gijon, Spain.

1993 Ross Award for Resident Research. A Survey of Pain Management in Canadian Level

III Neonatal Intensive Care Units. IWK Health Centre, Halifax, Nova Scotia, Canada.

1982 Natural Science Dean’s List, University of Western Ontario, London, Ontario, Canada.

1982 Offered University of Western Ontario Graduate Scholarship, London, Ontario,

Canada.

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COMMITTEES - CURRENT SERVICE:

2019- Scientific Planning Committee. 10th International Conference on Renal Tumour

Biology. Marseille, France. Member.

2019 - Cell Line Advisory Subcommittee. Panel for Resarch Ethics. Secretariat for

Responsible Conduct of Research. TriCouncil Policy of Canada. Member.

2019 - PROFYLE Data Access Committee. Member.

2019- PROFYLE Publication Committee. Chair.

2019- Voting Body Steering Committee. Children’s Oncology Group. Vice Chair.

2019 - Beatrice Hunter Cancer Research Institute. Research Committee. Chair.

2019- C17 Nominating Committee. Chair.

2018 - Children’s Wish/Make-a-Wish Golf Tournament planning committee. Member.

2018- Canadian Partnership for Tomorrow. ELSI Standing Committee. Member.

2018 - Department of Pediatrics. Division Heads Council. Chair.

2018- Department of Pediatrics. Finance Management Committee. Member.

2017 - Canadian Institutes of Health Research. College of reviewers. Member.

2017 - Return of Research Results Committee. Children’s Oncology Group. Member.

2017 - Panel on Research Ethics. Secretariat on Responsible Conduct of Research. TriCouncil

Policy of Canada. Member.

2017 - Subspecialty Resident Training Committee. Division of Pediatric Hematology

Oncology. Member.

2016 - Program of Care for Cancer (Nova Scotia). Quality Improvement and Safety Council

Committee. Member.

2016- Renal Tumor Steering Committee, Children's Oncology Group. Chair.

2016- Specialty Committee in Adolescents and Young Adults Oncology (AYA). Royal

College of Physicians and Surgeons. Member.

2016 - Atlantic Provinces Pediatric Hematology Oncology Network (APPHON).

Board member.

2015 - PROFYLE. Executive Committee. Member. Ethics Node. Lead.

2015 - Project Every Child. Pediatric MATCH. Germline results reporting committee.

Children’s Oncology Group. Member.

2013 - Principal Investigator. Children’s Oncology Group. Site PI.

2013 - Beatrice Hunter Cancer Research Institute. Board Member.

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2013 - National Cancer Institute (US). PDQ Editorial Advisory Board. Member.

2011 - Hematology-Oncology Interdisciplinary Council (HOIC), Member.

2010 - Department of Pediatrics. Executive Committee (now ASC), IWK, Member.

2000 - “Tip of the Toes” Outdoor Expeditions for Teen Cancer Survivors, Local coordinator.

COMMITTEES - COMPLETED SERVICE

2019 Pediatric Hematology Oncologist Search Committee. Chair.

2019 Diagnostic Imaging. Faculty Search Committee. Member.

208 -2019 COG Bioethics Committee, Children’s Oncology Group, Vice Chair.

2005 -2109 COG Bioethics Research Steering Committee, Children’s Oncology Group, Member.

2018 - 2019 Voting Body Steering Committee. Children’s Oncology Group. Member.

2018 - 2019 Responsible Conduct of Research Investigative Committee. IWK Health Center Office

of the VP Research. Member.

2013 - 2018 Beatrice Hunter Cancer Research Institute. Research Committee. Member.

2015 - 2018 Panel on Research Ethics. Subcommittee on Incidental Findings. Member.

2011 – 2018 Division Heads Council, Department of Pediatrics, IWK Health Centre, Vice Chair.

2018 Gender Equity and FMC. Member.

2012 -2018 Dalhousie University Research Ethics Appeal Board, Member.

2017-2018 Pediatric Hematologist-Oncologist Search Committee. Chair.

2012 - 2017 Atlantic Regional Action Partnership, CPAC AYA Taskforce. Member.

2017 COG Publications Task Force. Member.

2016 – 2017 Program of Care for Cancer. Health Services Planning – Steering Committee. Member.

2014 - 2017 Panel of Research Ethics. Secretariat on Responsible Conduct of Research.

Research Participant Education Subcommittee. Member.

2016-2017 POGO Pediatric Oncology Group of Ontario. Provincial Pediatric Oncology Planning

Committee (Ontario). External Member.

2016-2017 Head of the Department of Pathology search committee. Member.

2016 CIHR Project Grant Pilot Competition. Stage I Review committee. Member.

2016 - 2017 Diagnostic Imaging faculty. Search committee. Member.

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2013 - 2017 Return of Results Committee. Children’s Oncology Group. Co-Chair. (now member)

2010 – 2017 Research Committee, Department of Pediatrics, IWK Health Centre, Chair.

2001 - 2016 Renal Tumor Steering Committee, Children's Oncology Group, Member.

2012 - 2016 Working Group Disclosing Genomic Incidental Findings in a Cancer Biobank: An

ELSI Experiment - NIH/NC/NHGRI grant. Member.

2016 CIHR Project Grant Pilot Competition. Stage I Review committee. Member.

2015 Search Committee. Anatomic Pathology Division Head. Member.

2014 Chair in Child and Adolescent Mental Health Outcomes. Search Committee. Member.

2014 - 2016 Canadian Partnership for Tomorrow Project – Access Oversight Committee. Member.

2013 - 2014 Beatrice Hunter Cancer Research Institute 5th Annual meeting 2014. Child, Adolescent

and Young Adult Cancer. Planning committee. Chair.

2013 - 2014 Canadian Bone Marrow Transplant Group Annual meeting 2014. Planning

Committee. Chair Pediatrics section.

2012 - 2013 CIHR Health Professional Awards – Fellowships Committee. Member.

2012 AFP Standing Committee on Innovation. Member.

2010 - 2012 AYA Committee, Canadian Partnership Against Cancer/C17, Member.

2010 - 2011 Web Site Redevelopment Committee, CureSearch, California, Member.

2011 - 2012 AYA RCPSC Fellowship Diploma, Working Committee, Member.

2011 - 2012 Haematopathologist, IWK Health Centre, Search Committee, Member.

2011 - 2015 Cancer Care Nova Scotia Site Teams (Pediatric Site Team rep), Member.

2011 Pediatric Hematologist/Oncologist Search Committee, Chair.

2011 Canada Research Chair Tier 2, Faculty of Medicine, Search Committee, Member.

2011 Promotion and Tenure Committee, Department of Bioethics, Member.

2010 Vaccine Epidemiologist Search Committee, IWK Health Centre, Member.

2010 Department of Pediatrics Trainee Research Day 2010, Organizing Committee,

Chairman.

2009 -2016 ELSI and Privacy Task Force, Canadian Partnership for Tomorrow, Member.

2009 - 2012 PATH - Atlantic Senior Leadership Team, Member.

2009 - 2010 AYA Steering Committee, Children’s Oncology Group, Member.

2009 - 2010 CARMS Pediatric Resident Selection Committee, Member.

2009 Joint ASCO/COG Ethics Symposium Planning Committee, Member (Past Co-Chair).

2008 - 2012 Taskforce on Returning Research Results to Participants, Bioethics Committee,

Children’s Oncology Group, Chair.

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2008 -2012 NCEHR, National Advisory Board, Best Practices for Research Involving Children and

Adolescents, Member.

2008 - 2010 Nominating Committee, Faculty of Medicine, Dalhousie University, Member.

2008 - 2009 Search Committee – Faculty, Department of Bioethics, Dalhousie University, Chair.

2008 - 2009 NSHEN Meeting, Planning Committee, Member.

2008 Joint ASCO/COG Ethics Symposium Planning Committee, Member (Past Co-Chair).

2008 Annual Hematology/Medical Oncology Symposium, Planning Committee, October

2008, Halifax, NS, Member.

2007 - 2011 Appointment, Promotion & Tenure Committee, Department of Bioethics, Dalhousie

University, Member.

2007 - 2010 IWK Health Centre Research Ethics Board, Co-Chairman.

2007 Pediatric Rheumatology Search Committee, IWK Health Centre, Member.

2007 Joint ASCO/COG Ethics Symposium Planning Committee, October 2007, Denver, CO,

Co-Chairman.

2007 Annual Hematology/Medical Oncology Symposium, Planning Committee, September

2007, Halifax, NS, Member.

2006 - 2007 IWK Health Centre Research Ethics Board, Member.

2006 Annual Hematology/Medical Oncology Symposium, Planning Committee, Member.

2006 Norah Stephens Oncology Scholar Awards, Grants Committee, Member.

2005 - 2009 Pediatric Palliative Care Search Committee, IWK Health Centre, Member.

2005 - 2008 Taskforce on Ethical Issues in Correlative Biology Studies, Bioethics Committee,

Children’s Oncology Group, Chairman.

2005 - 2007 Canadian Cancer Society (NS Division) Chair in Population Cancer Research, Search

Committee, Member.

2005 - 2006 CIHR Tier II Chair: Health Economics, Search Committee, Member.

2005 Canadian Bioethics Society Annual Meeting (2005), Abstract Committee, Member.

2004 - 2010 Canadian Pediatrics Society, Bioethics Committee, Member.

2004 - 2005 Pediatric Hematology - Oncology Clinician Scientist Search Committee, IWK Health

Center, Chairman.

2004 - 2005 Canadian Bioethics Society Annual Meeting (2005), Organizing Committee, Member.

2004 Hematopoietic Stem Cell Transplantation Committee, Children’s Oncology Group,

Member.

2004 Intellectual Property Rights, Subcommittee, Finance Management Committee,

Department of Pediatrics, IWK Health Centre, Member.

2003 - 2005 Assent Task Force, Bioethics Committee, Children’s Oncology Group, Member.

2003 - 2004 Dalhousie University Health Sciences Research Ethics Board, Chairman.

2003 Gastroenterology Search Committee, IWK Health Centre, Member.

2002 - 2004 Patient Safety Advisory Group, Capital Health District Authority, Member.

2002 - 2004 Mortality Review Committee, IWK Health Centre, Chairman.

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2002 - 2004 Patient Care Committee, IWK Health Centre, Member.

2001 - 2008 Adult Hematology Residency Training Committee, QEII, Member.

2001 - 2008 Bioethics Committee, Children’s Oncology Group, Member.

2001 - 2003 Young Investigators Committee, Children’s Oncology Group, Member.

2001 Department of Surgery, IWK Health Centre Internal Review Committee, Member.

2000 - 2001 Maritime Hereditary Cancer Program, Steering Committee, Member.

2000 - 2002 Canadian Bone Marrow Transplantation Group, Annual Meeting, Organizing

Committee, Member; Co-Chair: Pediatric Transplantation; Co-Chair: Higher Plains-

Conflicts and Dilemmas.

2000 - 2002 IWK-Grace End-of-Life Standards Committee, DNR Working Group, Member.

1999 - 2003 Candlelighters Research Steering Committee, Member.

1999 - 2002 Dalhousie University Health Sciences Research Ethics Board, Member.

1999 - 2000 Long-Term Follow Up Committee, Member, Canadian Children’s Cancer Cooperative.

1999 - 2000 Small Centers Committee, Chairman, Canadian Children’s Cancer Cooperative.

1998 - 2002 Morbidity Committee, Chairman, IWK Grace Health Centre, Halifax, Nova Scotia.

1998 - 2001 Medical Care Committee, Member, IWK Grace Health Centre, Halifax, Nova Scotia.

1998 - 2000 Long-Term Follow Up Committee, Member, Atlantic Pediatric Hematology Oncology

Network, IWK Grace Health Centre, Halifax, Nova Scotia.

1996 - 1998 Sociobehavioural Cancer Research Network Pediatric Oncology Research Interests

Group, BC Cancer Agency, Vancouver, BC.

1996 - 1997 Sedation Committee, BC's Children's Hospital, Vancouver, BC.

1996 - 1997 Fever/Neutropenia Committee, BC's Children's Hospital, Vancouver, BC.

1996 - 1997 Long-Term Follow Up Committee, Oncology, BC's Children's Hospital, Vancouver,

BC.

1995 - 1997 Pain Committee, BC's Children's Hospital, Vancouver, BC.

(For committees prior to 1996, please contact me)

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MANUSCRIPTS SUBMITTED/PENDING:

1. Robinson CA, Orr A, Gaston D, Yorke J, Nightingale M, Matsuoka M, Jiang H, Hu P,

Macgillivray C, Corkery D, Steele S, Dellaire G, Berman J, Fernandez C, Samuels M,

Majewski J, Geldenhuys L, Hewlett T, West M, McMaster CR, Bedard K. A germline

mutation in HYOU1 predisposes individuals to nephrosclerosis and chronic kidney failure.

Submitted to JCI. Under revision.

2. Arbiv OA, Kalbfleisch M, Klaassen RJ, Fernandez CV, Yanofsky RA, Wu J, Pastore Y, Silva

M, Lipton JH, Brossard J, Michon B, Abish S, Steele M, Sinha R, Belletrutti M, Breakey V,

Jardine L, Goodyear L, Sung L, Schechter-Finkelstein T, Waespe N, Zlateska B, Cada M,

Dror. Risk factors for poor survival after hematopoietic stem cell transplantation in inherited

bone marrow failure syndromes. Submitted to Pediatr Blood Cancer.

3. Mullen EA, Gooskens SLM, Hamilton TE, van den Heuvel-Eibrink MM, Green DM,

Grundy PE, Daw NC, Dome JS, Fernandez CV. Severe Hepatopathy and Sinusoidal

Obstruction Syndrome (SOS) in National Wilms Tumor Study 3 to 5: A report of incidence,

severity, and effects on planned treatment and outcome. To be submitted to Journal of Clinical

Oncology.

4. Ali S, Ali M, Brager R, Gassas A, Gacsadi A, Hong C, Naqvi A, Weitzman S, Fernandez CV,

Crooks B, Schechter T, Krueger J. Effect of Different Conditioning Regimens on Survival and

Engraftment for Children with Hemophagocytic Lymphohistiocytosis Undergoing Allogeneic

Hematopoeitic Stem Cell Transplantation: A Single Institution Experience. Submitted to

Pediatric Blood & Cancer.

5. Lauhasurayotin S, Cuvelier J, Klaassen RJ, Fernandez CV, Pastore YD, Abish S, Wu JK,

Steele M, Jardine L, Breakey VR, Brossard J, Sinha R, Silva M, Goodyear L, Lipton JH,

Michon B, Belletrutti MJ, Sung L, Stephen SW, Shabanova I,Li H, Zlateska B, Dhanraj S,

Cada M, Dror Y. Re-analysis of next generation sequencing gene panel data by normalized

coverage values unravel CNVs in bone marrow failure syndromes. Submitted to NPG Genomic

Medicine. Revisions submitted.

6. Goldstein JA, Cajaiba MM, Chi YY, Jennings LJ, Mullen EA, Geller J, Vallance K,

Fernandez CV, Dome JS, Perlman EJ. BRAF exon 15 mutations in the evaluation of well-

differentiated epithelial nephroblastic neoplasms in children; A report from the Children's

Oncology Group study AREN03B2. To be submitted to

7. Mackley MP, Fernandez NR, Fletcher B, Woolcott C, Fernandez CV. Revisiting the ethics of

phase 1 oncology trials in the era of precision medicine: a systematic review. Submitted to.

8. McMahon KR, Rassekh SR, Schultz KR, Blydt-Hansen T, Cuvelier GDE, Mammen C, Pinsk

M, Carleton BC, Tsuyuki RT, Palifan A, Huynh L, Yordanova M, Crepeau-Hubert, Boyko D,

Zappitelli M for the Applying Biomarkers to Minimize Long-Term Effects of Childhood

Cancer Treatment (ABLE) Research Study Group (Fernandez study investigator).

Epidemiology of Acute Kidney Injury During Cisplatin Infusions in Children Treated for

Cancer: A Canadian Multicenter Prospective Study. Submitted to JAMA Pediatrics. In

revision.

9. Dunn KA, Connors J, Bielawski JP, Langille MGI, Van Limbergen J, Fernandez CV,

Macdonald T, Kulkarni K. The relationship between the gut microbiome and changes in serum

asparaginase levels in children undergoing treatment for acute lymphoblastic leukemia.

Submitted to Frontiers in Oncology.

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10. Lim Y, Arbiv OA, Kalbfleisch ME, Klaassen RJ, Fernandez CV, Rayar M, Steele M, Lipton

JH, Cuvelier G, Pastore YD, Silva M, Brossard J, Michon B, Abish S, Sinha R, Belletrutti MJ,

Breakey VR, Jardine L, Goodyear L, Sung L, Schechter-Finkelstein T, Zlateska1 B, Cada M,

Dror Y. The Impact of identifying the syndromic and genetic diagnoses on hematopoietic stem

cell transplantation outcome in patients with inherited bone marrow failure syndromes.

Manuscript to be submitted to BBMT.

11. Marwa B, Krueger J, Stephenson E, Malkin D, Shlien A, Fernandez CV, Villani A. Ethical

Challenges with Sequencing of Relapsed Tumors Following Allogeneic Hematopoietic Stem

Cell Transplantation: A Statement from the PROFYLE Program Executive Committee. To be

submitted to BMT.

12. Verwaaijen EJ, Ma J, de Groot-Kruseman HA, Pieters R, van der Sluis IM, van Atteveld JE,

Halton J, Fernandez CV,Hartman A, de Jonge R, Lequin MH, te WinkelML, Alos N,

Atkinson SA, Barr R, GrantRM, Hay HJ, Huber AM, Ho J, Jaremko JL, KoujokK, Lang B,

Matzinger B, Shenouda N, Rauch F, Rodd C, Siminoski K, van den Heuvel-Eibrink MM,

Pluijm SMF, Ward LM, The Canadian STOPP Consortium. Developing and validating

clinical prediction models for symptomatic fractures and low bone mineral density in pediatric

acute lymphoblastic leukemia. To be submitted to JCO.

13. Geller JI, Cost NG, Chi YY, Tornwall B, Cajaiba M, Perlman E, Kim Y, Mullen E, Glick R,

Khanna G, Daw N, Ehrlich P, Fernandez CV, Dome JS. On Behalf of the COG Renal Tumor

Committee. A Prospective Study of Pediatric Renal Cell Carcinoma: A Report from the

Children’s Oncology Group (COG) Study AREN0321. To be submitted to Cancer.

PUBLICATIONS (Peer Reviewed): h-index 42 (i10 index 104) as of 12 April 2020

1. J Ehrlich PF, Chi YY, Chintagumpala MM, Hoffer FA, Perlman EJ, Kalapurakal JA,

Tornwall B, Warwick A, Shamberger RC, Khanna G, Hamilton TE, Gow KW, Paulino AC,

Gratias EJ, Mullen EA, Geller JI, Grundy PE, Fernandez CV, and Dome JS. Results of

Treatment for Patients with Multi-centric, or Bilaterally-Predisposed Unilateral Wilms Tumor

(AREN0534): A report from the Children’s Oncology Group. Accepted to Cancer.

2. Jibb LA, Nathan PC, Breakey V, Fernandez C, Johnston DL, Lewis V, McKillop S, Patel S,

Sabapathy C, Strahlendorf C, Victor JC, Moretti M, Nguyen C, Hundert A, Cassiani C, El-

Khechen Richandi G, Insull H, Hamilton R, Fang G, Kuczynski S, Stinson JN. The Pain

Squad+ Smartphone App to Support Real-Time Pain Management for Adolescents with

Cancer: Protocol for a Randomized Controlled Trial. BMJ Open. 10: e037251. doi:

10.1136/bmjopen-2020-037251.

3. Sandberg JK, Chi YY, Smith EA, Servaes S, Hoffer F, Mullen EA, Perlman EJ, Tornwall B,

Ehrlich PF, Geller JI, Grundy P, Fernandez CV, Dome JS, Khanna G. Imaging characteristics

of nephrogenic rest vs. small Wilms tumor: a report from the Children’s Oncology Group

study AREN03B2. AJR Am J Roentgenol. 2020 Mar 11:1-8. doi: 10.2214/AJR.19.22301.

PMID: 32160052

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4. Daw NC, Chi YY, Kalapurakal JA, Hoffer FA, Geller JI, Perlman EJ, Ehrlich PF, Mullen EA,

Warwick AB, Grundy PE, Gratias E, Ward D, Anderson JR, Fernandez CV, Dome JS on

behalf of the AREN0321 Study Committee. Activity of vincristine and irinotecan in diffuse

anaplastic Wilms tumor and therapy outcomes of stage II-IV disease: Results of the Children’s

Oncology Group AREN0321 study. J Clin Oncol. 2020 Mar 5:JCO1901265. doi:

10.1200/JCO.19.01265. [Epub ahead of print]PMID:32134700.

5. Parsons LN, Mullen EA, Geller J, Chi YY, Khanna G, Glick RD, Vallance KL, Kim Y,

Fernandez CV, Dome JS, Perlman EJ. Outcome Analysis of Stage 1 Epithelial Predominant

Favorable Histology Wilms tumors. A report from the Children’s Oncology Group Study

AREN03B2. Cancer. 2020 Apr 8. doi: 10.1002/cncr.32855. [Epub ahead of print] PMID:

32267967.

6. Lauhasurayotin S, Cuvelier J, Klaassen RJ, Fernandez CV, Pastore YD, Abish S, Wu JK,

Steele M, Jardine L, Breakey VR, Brossard J, Sinha R, Silva M, Goodyear L, Lipton JH,

Michon B, Belletrutti MJ, Sung L, Stephen SW, Shabanova I,Li H, Zlateska B, Dhanraj S,

Cada M, Dror Y. Re-analysis of next generation sequencing gene panel data by normalized

coverage values unravel CNVs in bone marrow failure syndromes. NPJ Genom Med. 2019

Dec 9;4:30. doi: 10.1038/s41525-019-0104-9. eCollection 2019. PMID:31839986.

7. Català A, Ali SS, Cuvelier GD, Steele M, Klaassen RJ, Fernandez CV, Pastore YD, Abish S,

Rayar M, Jardine L, Breakey VR, Brossard J, Sinha R, Silva M, Goodyear L, Lipton JH,

Michon B, Corriveau-Bourque C, Sung L, Lauhasurayotin S, Zlateska B, Cada M, and Dror Y.

Androgen therapy in Inherited Bone Marrow Failure syndromes: analysis from the Canadian

Inherited Marrow Failure Registry. Br J Haematol. 2020 Mar 3. doi: 10.1111/bjh.16445.

[Epub ahead of print] PMID:32128787.

8. Walz AL, Fernandez CV, Geller JI. Novel Therapy for Pediatric and Adolescent Kidney

Cancer. Cancer and Metastases Reviews. 2019. https://doi.org/10.1007/s10555-019-09822-4.

9. Ma J, Siminoski K, Wang P, Alos N, Cummings EA, Feber J, Halton J, Ho J, Houghton K,

Lang B, Miettunen P, Scuccimarri R, Jaremko JL, Koujok K, Lentle B, Matzinger M,

Shenouda N, Rauch F Ward LM, and the Canadian STOPP Consortium (Fernandez

member). The Accuracy of Prevalent Vertebral Fracture Detection in Children Using Targeted

Case Finding Approaches. Journal of Bone and Mineral Research. November 2019. Accepted.

10. Dix DB, Fernandez CV* (co first author), Chi YY, Anderson J, Mullen EA, Geller JI,

Gratias EJ, Khanna G, Kalapurakal JA, Perlman EJ, Seibel NL, Ehrlich PF, Malogolowkin M,

Gastier-Foster J, Shamberger RC, Kim Y, Grundy PE, Dome JS. On behalf of the

AREN0532 and AREN0533 study committees. Augmentation of therapy for favorable

histology Wilms Tumor with combined loss of heterozygosity of chromosomes 1p and 16q: A

report from the Children’s Oncology Group Studies AREN0532 and AREN0533. J Clin

Oncol. 2019 Oct 20;37(30):2769-2777. doi: 10.1200/JCO.18.01972. Epub 2019 Aug 26.

PMID:31449468.

11. Tutelman PR, Chambers CT, Urquhart R, Fernandez CV, Heathcote LC, Noel M, Flanders A,

Guilcher GMT, Schulte F, Stinson JN, MacLeod J, Stern M. When “A Headache is Not Just a

Headache”: A Qualitative Examination of Parent and Child Experiences of Pain After

Childhood Cancer. Psychooncology. 2019 Sep;28(9):1901-1909. doi: 10.1002/pon.5170. Epub

2019 Jul 16.PMID: 31276614.

12. Daw NC, Chi YY, Kim Y, Mullen EA, Kalapurakal JA, Tian J, Khanna G, Geller JI, Perlman

EJ, Ehrlich PF, Warwick A, Grundy PE, Fernandez CV and Dome JS on behalf of the

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AREN0321 Study Committee. Treatment of stage I anaplastic Wilms Tumor: A report from

the Children’s Oncology Group. Eur J Cancer 2019; Sept; 118:58-66. PMID 31325873.

13. Unguru Y, Bernhardt MB, Berg S, Johnson LM, Pyke-Grimm K, Woodman C, Fernandez

CV on behalf of the Children’s Oncology Group Allocation Task Force Position Paper –

Chemotherapy and Supportive Care Agents are Essential Medicines for Children with Cancer.

JAMA Pediatr. 2019 May 1;173(5):477-484. doi: 10.1001/jamapediatrics.2019.0070.

Published online March 4, 2019. PMID: 30830204.

14. Ma J, Siminoski K, Alos N, Halton J, Ho J, Cummings E, Shenouda N, Matzinger MA, Lentle

B, Jaremko J, Wilson B, Stephure D, Stein R, Sbrocchi AM, Rodd C, Lewis VA, Laverdière

C, Israels S, Grant R, Fernandez CV, Dix DB, Couch R, Cairney E, Barr R, Atkinson S,

Abish S, Moher D, Rauch F, Ward LM and the Canadian STOPP Consortium. Impact of

vertebral fractures and glucocorticoid exposure on height deficits in children during treatment

for leukemia. J Clin Endocrinol Metab. 2019 Feb 1;104(2):213-222. doi: 10.1210/jc.2018-

01083. PMID: 30247635.

15. Iaboni DSM, Chi YY, Dome JS, Fernandez CV. Outcome of Wilms Tumor patients with

bone metastasis enrolled on National Wilms Tumor Studies 1-5: A report from the Children’s

Oncology Group. Pediatric Blood Cancer. Pediatr Blood Cancer. 2019 Jan;66(1):e27430.

doi: 10.1002/pbc.27430. Epub 2018 Aug 30. PMID:30160355.

16. Msaouel1 P, Hong AL, Mullen EA, Atkins MB, Walker CL, Lee C, Carden MA, Genovese G,

Linehan WM, Rao P, Merino MJ, Grodman H, Dome JS, Fernandez CV, Geller JI, Apolo

AB, Daw NC, Hodges CH, Moxey-Mims M, Wei D, Bottaro DP, Staehler M, Karam JA,

Rathmell WK, Tannir NM. Updated recommendations on the diagnosis and clinical trial

eligibility criteria for patients with renal medullary carcinoma. Clin Genitourin Cancer. 2019

Feb;17(1):1-6. Epub 2018 Sep 12. pii: S1558-7673(18)30384-7. doi: 10.1016/j.clgc.

2018.09.005. PMID:30287223.

17. Tutelman PR, Chambers CT, Stinson JN, Parker JA, Barwicke M, Wittemani HO, Jibb L,

Stinson H, Fernandez CV, Nathan PC, Campbell F, Irwin K. The Implementation

Effectiveness of a Freely Available Pediatric Cancer Pain Assessment Application: A Pilot

Study. J Medical Internet Research (JMIR) Cancer. 2018 Dec 21;4(2):e10280. doi:

10.2196/10280. PMID:30578200.

18. Mullen EA, Chi YY, Hibbits E, Anderson JR, Steacy KJ, Geller JI, Green DM, Khanna G,

Malogolowkin MH, Grundy PE, Fernandez CV and Dome JS. Impact of surveillance

imaging modality on survival after recurrence in patients with Wilms tumor: A Report from

the Children’s Oncology Group. J Clin Oncol. 2018 Oct 18. doi: 10.1200/JCO.18.00076.

[Epub ahead of print] PMID:30335557.

19. Cajaiba MM. Dyer , Geller JI, Jennings LJ, George D, Kirschmann D, Rohan SM, Cost N,

Khanna G, Mullen EA, Dome JS, Fernandez CV, Perlman EJ. The Classification of Pediatric

and Young Adult Renal Cell Carcinomas Registered on the Children’s Oncology Group

(COG) Protocol AREN03B2 Following Focused Genetic Testing. Cancer. 2018

Aug;124(16):3381-3389. doi: 10.1002/cncr.31578. Epub 2018 Jun 15. PMID:29905933

20. Friedman JM, Bombard Y, Cornel M, Fernandez CV, Junker AK, Plon SE, Stark Z, and

Knoppers BM for the Paediatric Task Team of the Global Alliance for Genomics and Health

Regulatory and Ethics Works team. Genome-wide Sequencing in Acutely-Ill Infants:

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Genome Medicine’s Critical Applicaiton? Genet Med. 2019 Feb;21(2):498-504. doi:

10.1038/s41436-018-0055-z. Epub 2018 Jun 12. PMID:29895853.

21. Ward LM, Ma J, Lang B, Ho J, Alos N, Matzinger MA, Shenouda N, Lentle B, Jaremko JL,

Wilson B, Stephure D, Stein R, Sbrocchi AM, Rodd C, Lewis V, Laverdière C, Israels S,

Grant RM, Fernandez CV, Dix DB, Cummings EA, Couch R, Cairney E, Barr R, Abish S,

Atkinson SA, Hay J, Rauch F, Moher D, Siminoski K, Halton J and the Canadian STOPP

Consortium. Bone Morbidity and Recovery in Children with Acute Lymphoblastic Leukemia:

Results of a Six-Year Prospective Longitudinal Study. J Bone Miner Res. 2018

Aug;33(8):1435-1443. doi: 10.1002/jbmr.3447. Epub 2018 May 22. PMID: 29786884.

22. Dix DB, Seibel NL, Chi YY, Khanna G, Gratias E, Anderson JR, Mullen EA, Geller JI,

Kalapurakal JA, Paulino AC, Perlman EJ, Ehrlich PF, Malogolowkin M, Gastier-Foster JM,

Grundy PE, Fernandez CV, Dome JS on behalf of the AREN0533 Study Committee.

Treatment of Stage IV Favorable Histology Wilms Tumor With Lung Metastases: A Report

From the Children's Oncology Group AREN0533 Study. J Clin Oncol. 2018 Jun

1;36(16):1564-1570. doi: 10.1200/JCO.2017.77.1931. Epub 2018 Apr 16.PMID:29659330.

23. Wolf SM, Scholtes E, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB,

Fernandez CV, Green RC, LeRoy BS, Lindor NM, O’Rourke PP, Radecki Breitkopf C,

Rothstein MA, Van Ness B, and Wilfond BS. Pragmatic Tools for Sharing Genomic Research

Results with the Relatives of Living and Deceased Research Participants. J Law Med Ethics.

2018 Mar;46(1):87-109. doi: 10.1177/1073110518766024. Epub 2018 Mar 27. PMID:

30008546

24. Geerlinks AV, Digout C, Bernstein M, Chan A, MacPhee S, Pambrun C, Gallant G, Lois

Wyatt L, Fernandez CV, Price VE. Improving Time To Antibiotics For Pediatric Oncology

Patients With Fever and Suspected Neutropenia By Applying Lean Principles. Accepted

Pediatric Emergency Care. In press.

25. Bettle A, Latimer M, Fernandez CV, Hughes J. Supporting Parents Acute Lymphoblastic

Leukemia (ALL) Pain Care involvement: A Qualitative Interpretive Description. J Pediatr

Oncol Nurs. 2018 Jan/Feb;35(1):43-55. doi: 10.1177/1043454217727518. Epub 2017 Aug 29.

PMID:28849687.

26. V Rahimzadeh, C Schickhardt, BM Knoppers, K Sénécal, DF Vears, CV Fernandez, S

Pfister, S Plon, EW Clayton, S Terry, J Williams, MS Williams, M Cornel, JM Friedman. Key

Implications of Data Sharing in Pediatric Genomics: Points to Consider for KIDS. JAMA

Pediatrics. 2018 May 1;172(5):476-481. doi: 10.1001/jamapediatrics.2017.5500. PMID:

29554172

27. Tutelman PR, Chambers CT, Stinson SN, Parker JA, Fernandez CV, Witteman HO, Nathan

PC, Barwick M, Jibb LA, Irwin K, Campbell F. Pain in Children with Cancer: Prevalence,

Characteristics, and Parent Management. Clinical Journal of Pain. Clin J Pain. 2018

Mar;34(3):198-206. doi: 10.1097/AJP.0000000000000531. PMID:28678061.

28. Arbiv OA, Klaassen R, Fernandez CV, Yanofsky RA, Wu J, Robitaille N, Silva M, Lipton

JH, Brossard J, Michon B, Abish S, Steele M, Sinha R, Belletrutti M, Breakey V, Jardine L,

Goodyear L, Sung L, Waespe N, Zlateska b, Cada M, and Dror Y. Molecular Analysis and

Genotype-Phenotype Correlation Among Patients with Diamond-Blackfan Anemia. Clin

Genet. 2018 Feb;93(2):320-328. doi: 10.1111/cge.13158. Epub 2017 Dec 27. PMID:

29044489.

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29. Borretta L, MacDonald T, Price V, Bernstein M, Fernandez C, Kulkarni K. Management

Experience of Peripherally inserted central catheters in Pediatric Oncology Patients: A 15 year

Population-Based review from Maritimes, Canada. J Pediatr Hematol Oncol. 2018

Jan;40(1):e55-e60. doi: 10.1097/MPH.0000000000000882.PMID: 28562513

30. Fernandez CV, Mullen EA, Chi YY, Ehrlich PF, Perlman EJ, Kalapurakal JA, Khanna G,

Paulino AC, Hamilton TE, Gow KW, Tochner Z, Hoffer F, Withycombe J, Shamberger RC,

Kim Y, Geller JI, Anderson JR, Grundy PE, Dome JS. Outcome and prognostic factors in

stage III Favorable Histology Wilms Tumor (FHWT). A report from the Children’s Oncology

Group Study AREN0532. J Clin Oncol. 2018 Jan 20;36(3):254-261. doi:

10.1200/JCO.2017.73.7999. Epub 2017 Dec 6.PMID: 29211618.

31. Ehrlich PF,Chi YY, Chintagumpala M, Hoffer F, Perlman E, Kalapurakal J, Warwick A,

Shamberger RC, Khanna G, Hamilton T, Gow K, Barnhardt D, Paulino A, Gratias E, Mullen

E, Geller J, Grundy P, Fernandez CV, Ritchey M, Dome J. Results of the first Prospective

Multi-Institutional Treatment Study in Children with Bilateral Wilms Tumor (AREN0534): A

report from the Children’s Oncology Group. Annals of Surgery. 2017 Sep;266(3):470-478.

doi: 10.1097/SLA.0000000000002356. PMID: 28795993.

32. Fernandez CV, EJ Perlman, EA Mullen, YY Chi, TE Hamilton, KW Gow, FA Ferrer, D

Barnhart, PF Ehrlich, G Khanna, J Kalapurakal, T Bocking, V Huff, Q An, JI Geller, PE

Grundy JR Anderson, JS Dome, RC Shamberger for the AREN0532 committee. Clinical

outcome and biological predictors of relapse following nephrectomy only for Very Low Risk

Wilms tumor (VLR WT). A report from Children’s Oncology Group AREN0532.

Annals of Surgery. 2017 Apr;265(4):835-840. [Epub ahead of print 2016. Mar

16.]PMID:27811504.

33. Sandberg J, Cajaiba M, Smith E, Servaes S, Perlman E, Mullen E, Geller J, Ehrlich PF, Dome

JS, Fernandez CV, Khanna G. Distinctive imaging findings of renal medullary carcinoma

amongst pediatric renal tumors: a report from the Children’s Oncology Group. Pediatr Radiol.

2017 Nov;47(12):1615-1621 8. doi: 10.1007/s00247-017-3926-6 . PMID 28689245.

34. Waespe N, Dhanraj S, Wahala M, Tsangaris E, Enbar1 T, Zlateska B, Li H, Klaassen RJ,

Fernandez CV, Yanofsky R, Wu JK, Pastore YD, Silva M, Lipton JH, Brossard J, Michon B,

Abish S, Steele M, Sinha R, Belletrutti MJ, Breakey VR, Jardine L, Goodyear L, Kofler L,

Ghemlas IA, Cada M, Sung L, Shago M, Scherer SW, Dror Y. The clinical impact of copy

number variants in underlying inherited bone marrow failure syndromes. NPJ Genom Med.

2017 May 10;2. pii: 18. doi: 10.1038/s41525-017-0019-2. PMID:28690869

35. Geerlinks AV, Issekutz T, Sullivan K, Cowan MJ, Dvorak C, Fernandez CV. Severe,

Persistent and Fatal T-Cell Immunodeficiency Following Therapy for Infantile Leukemia.

Pediatr Blood Cancer. 2016 Nov;63(11):2046-9. doi: 10.1002/pbc.26108. Epub 2016 Jun 29.

PMID:27354010

36. Gratias EJ, Dome JS, Jennings LJ, Anderson J, Grundy P, Mullen EA, Geller JI, Fernandez

CV, Perlman EJ. Association of Chromosome 1q Gain with Inferior Survival in Favorable

Histology Wilms Tumor: A Report from the Children’s Oncology Group. J Clin Oncol. 2016

Sep 10;34(26):3189-94. doi: 10.1200/JCO.2015.66.1140. Epub 2016 Jul 11.Jul 11. pii:

JCO661140. [Epub ahead of print] PMID:2740093.

37. Elzinga KE, Khan OF, Tang AR, Fernandez CV, Elzinga C, Heng DYC, Vickers MM,

Truong T, Tang PA. Adult Patient Perspectives on Clinical Trial Result Reporting: A survey

of cancer patients. Clin Trials. 2016 Dec;13(6):574-581.Aug 23. pii: 1740774516665597.

[Epub ahead of print]. PMID: 27559022

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38. Birnie KA, Chambers CT, Chorney J, Fernandez CV, McGrath PJ. A multi-informant multi-

method investigation of family functioning and parent-child coping during child pain.

J Pediatr Psychol. 2017 Jan 1;42(1):28-39. doi: 10.1093/jpepsy/jsw045. [ Epub ahead of

print:2016 Jun 13. pii: jsw045]. PMID:2729829.

39. Knoppers BM, Sénécal K, Boisjoli J, Borry P, Cornel M, Fernandez CV, Grewal J, Holm IA,

Nelson E, Pinxten W, Shabani M, Tassé AM, Zawati M, Clayton EW on behalf of the P3G

International Paediatric Research Platform. Attaining Majority in Biomedical Research: Re-

contact for Consent? IRB: Ethics & Human Research. IRB vol. 38, no. 6;1-9. November -

December 2016. PMID: 30088377.

40. LeBlanc MA, Bettle A, Berman JN, Price VE, Pambrun C, Yu Z, Tiller M, McMaster CR,

Fernandez CV. Study of glycine and folic acid supplementation to ameliorate transfusion

dependence in congenital sideroblastic anemia. Pediatr Blood Cancer. 2016 Jul;63(7):1307-9.

doi: 10.1002/pbc.25981. Epub 2016 Apr 1.PMID:27038157.

41. Ghotra S, Pambrun C, Fernandez CV, Ashley S, Parkash S, Koupaei R, Jangaard K.

Congenital Methemoglobinemia due to Hb F-M-Fort Ripley in a Preterm Newborn.

BMJ Case reports. 2016. Mar 11;2016. pii: bcr2016214381. doi: 10.1136/bcr-2016-214381.

PMID: 26969357.

42. MacDonald T, Kulkarni K, Bernstein M, Fernandez CV. Allergic reactions for intravenous

peg-asparaginase as compared to intramuscular peg-asparaginase in children with high risk

acute lymphoblastic leukemia: a population based study from the Maritimes, Canada.

J Pediatr Hematol Oncol. 2016 2016 Jul;38(5):341-4. doi: 10.1097/MPH.0000000000000520.

PMID:26925715.

43. Unguru Y, Fernandez CV, Bernhardt B, Berg S, Pyke-Grimm K, Woodman C, Joffe S. An

Ethical Framework for Allocating Scarce Life-saving Chemotherapy and Supportive Care

Drugs for Childhood Cancer. J Natl Cancer Inst. 2016 Jan 29;108(6). pii: djv392. doi:

10.1093/jnci/djv392. Print 2016 Jun. PMID: 26825103

44. Pedro Fernández-Murray JP, Prykhozhij SV, Dufay N, Steele S, Gaston D, Nasrallah GK,

Coombs AJ, Fernandez CV, Berman JN, McMaster CR. Glycine and folate ameliorate

models of congenital sideroblastic anemia. PLOS Genetics . 2016 Jan 28;12(1):e1005783. doi:

10.1371/journal.pgen.1005783. eCollection 2016 Jan. PMID:26821380.

45. Birnie KA, Chambers CT, Chorney J, Fernandez CV, McGrath PJ. Dyadic analysis of child

and parent trait and state pain catastrophizing in children’s pain. Pain. 157 (2016) 938–948.

Epub 2015 Dec 12. [Epub ahead of print] PMID:26713422. Awarded the Brain Star Award

from CIHR Institute of Neurosciences, Mental Health and Addiction (http://www.cihr-

irsc.gc.ca/e/9600.html) and the Dr. John T. Goodman Award for Trainee Research in

Pediatric Pain (http://pediatric-pain.ca/Goodman%26PatPrize).

46. Sénécal K, Rahimzadeh V, Knoppers BM, Fernandez CV, Avard D, Sinnett D. Statement of

Principles on the Return of Research Results and Incidental Findings in Paediatric Research: A

Multi-site Consultative Process. Genome. 2015 Dec;58(12):541-8. doi: 10.1139/gen-2015-

0092. Epub 2015 Nov 10.PMID:26613133.

47. Fernandez CV, O’Connell C, Ferguson M, Orr AC, Robitaille JM, Knoppers BM, McMaster

CR. Stability of Attitudes to the Ethical Issues Raised in the Return of Incidental Genomic

Research Findings in Children – A Follow up Study. Public Health Genomics. 2015 Sept

2015;18(5):299-308. doi: 10.1159/000439244. PMID:26352440.

48. Leblanc CM A, Ma J, Taljaard M, Roth J, Scuccimarri R, Miettunen P, Lang B, Huber AM,

Houghton K, Jaremko J L, Ho J, Shenouda N, Matzinger M, Lentle B, Stein R, Sbrocchi AM,

Oen K, Rodd C, Jurencak R, Cummings EA, Couch R, Cabral DA. Atkinson S, Alos N,

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Rauch F, Siminoski K, Ward LM and the Canadian STOPP Consortium. Incident Vertebral

Fractures and Risk Factors in the First Three Years Following Glucocorticoid Initiation

Among Pediatric Patients With Rheumatic Disorders. Journal of Bone and Mineral Research,

30(9):1667-75, 2015 DOI: http://dx.doi.org/10.1002/jbmr.2511

49. Ghemlas I, Li H, Zlateska B, Klaassen R, Fernandez CV, Yanofsky RA, Wu J, Pastore Y,

Silva M, Lipton JH, Brossard J, Bruno M, Abish S, Steele M, Sinha R, Belltrutti M, Breaky V,

Jardine L, Goodyear L, Sung L, Dhanraj S, Reble E, Wagner A, Beyene J, Ray P, Meyn S,

Cada M, Dror Y. Application of novel next generation sequencing gene panel assay to genetic

and clinical diagnosis of inherited bone marrow failure syndromes. J Med Genet. 2015

Sep;52(9):575-84. doi: 10.1136/jmedgenet-2015-103270. Epub 2015 Jul 1.PMID: 26136524.

50. Cummings EA, Ma J, Fernandez CV, Halton J, Alos N, Miettunen PM, Jaremko JL, Ho J,

Shenouda N, Matzinger MA, Lentle B, Wilson B, Taback S, Stephure D, Stein R, Sbrocchi

AM, Rodd C, Lewis VA, Laverdiere C, Israels S, Grant RM, Dix DB, Couch R, Cairney E,

Barr R, Atkinson S, Abish S, Moher D, Gaboury I, Hay J, Rauch F, Siminoski K, Ward LM

and the Canadian STOPP Consortium. Incident Vertebral Fractures in the Four Years

Following Chemotherapy Initiation in Children with Acute Lymphoblastic Leukemia: Fracture

Characteristics and Risk Factors. J Clin Endocrinol Metab. 2015 Sep;100(9):3408-17. doi:

10.1210/JC.2015-2176. Epub 2015 Jul 14. PMID: 26171800.

51. Dome JS, Graf N, Geller JI, Fernandez CV, Mullen EA, Spreafico F, Van den Heuvel-

Eibrink M, Pritchard-Jones K. Advances in Wilms Tumor Treatment and Biology: Progress

through International Collaboration. Journal of Clinical Oncology. 2015 Sep 20;33(27):2999-

3007. PMID: 26304882.

52. LeBlanc CM, Ma J, Taljaard M, Roth J, Scuccimarri R, Miettunen P, Lang B, Huber AM,

Houghton K, Jaremko JL, Ho J, Shenouda N, Matzinger MA, Lentle B, Stein R, Sbrocchi AM,

Oen K, Rodd C, Jurencak R, Cummings EA, Couch R, Cabral D, Atkinson S, Alos N, Rauch

F, Siminoski K, Ward LM; Canadian STeroid-Associated Osteoporosis in Pediatric Population

(STOPP) Consortium. Incident Vertebral Fractures and Risk Factors in the First Three Years

Following Glucocorticoid Initiation Among Pediatric Patients With Rheumatic Disorders. J

Bone Miner Res. 2015 Sep;30(9):1667-75. doi: 10.1002/jbmr.2511. Epub 2015 May 26.

Collaborator. PMID: 25801315.

53. Wilfond BS, Fernandez CV, Green RC. Disclosing secondary findings from pediatric

sequencing to families: Considering the “benefit to families” in provider recommendations. J

Law Med Ethics. 2015. 43(3):552-558. Article first published online: 19 OCT 2015 | DOI:

10.1111/jlme.12298. PMID:26479565.

54. Fernandez CV, O’Rourke PP, Beskow LM. Canadian Research Ethics Board Leadership

attitudes to the return of genetic research results to individuals and their families. J Law,

Medicine, and Ethics. 2015. 43(3):514-522. Article first published online: 19 OCT 2015 | DOI:

10.1111/jlme.12293. PMID: 26479560.

55. Jaremko JL, Siminoski K, Firth GB, Matzinger M, Shenouda N, Konji VN, Roth J, Sbrocchi

AM, Reed M H, O’Brien M K, Nadel H, McKillop S, Kloiber R, Dubois J, Coblentz C,

Charron M, Ward LM, and the Canadian STOPP Consortium. Common normal variants of

pediatric vertebral development that mimic fractures: a pictorial review from a national

longitudinal bone health study. Pediatric Radiology, 45(4):593-605, 2015. DOI

http://dx.doi.org/10.1007/s00247-014-3210-y

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56. Wolf SM, Branum R, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB,

Fernandez CV, Green RC, LeRoy BS, Lindor NM, O’Rourke PP, Radecki Breitkopf C,

Rothstein MA, Van Ness B, Wilfond BS. Returning a Research Participant’s Genomic Results

to Relatives: Analysis and Recommendations. J Law Med Ethics 2015. 43(3):440-463. Article

first published online: 19 OCT 2015 | DOI: 10.1111/jlme.12288. PMID: 26479555.

57. Cada M, Segbefia CI, Klaassen R, Fernandez CV, Yanofsky RR, Wu J, Pastore Y, Silva M,

Lipton JH, Brossard J, Michon B, Abish S, Steele M, Sinha R, Belletrutti M, Breakey V,

Jardine L, Goodyear L, Sung L, Shago M, Sharma P, Zlateska B, Dror Y. Impact of category,

cytopathology and cytogenetics on outcome of clonal and malignant myeloid transformation in

inherited bone marrow failure syndromes. Haematologica. 2015 May 100(5):633-42. E pub 14

Feb2015. pii: haematol.2014.117457. PMID: 25682607

58. Guilcher G, Fernandez CV, Joffe S. Are hybrid umbilical cord blood banks really the best of

both worlds? J Med Ethics. 2015 Mar;41(3):272-5. doi: 10.1136/medethics-2013-101673.

Epub 2014 May 13. PMID: 24825373

59. Noel M, Boerner KE, Birnie KA, Caes L, Parker JA, Chambers CT, Fernandez CV, Lee K.

The Ethical Acceptability of Deception in Research with Children. J of Developmental and

Behavioural Pediatrics 2015 Feb/Mar 36(2):75-85. PMID: 25650951.

60. Ma J, Siminoski K, Alos N, Halton J, Ho J, Lentle B, Matzinger MA, Shenouda N, Abish S,

Atkinson S, Barr R, Cabral DA, Cairney E, Clarson C, Couch R, Cummings EA, Dix DB,

Fernandez CV, Grant RM, Israels S, Laverdière C, Lewis VA, Rodd C, Sbrocchi A, Scharke

M, Stein R, Stephure D, Taback S, Wilson B, Rauch F, Ward LM and the Canadian STOPP

Consortium. The Choice of Normative Pediatric Reference Database Changes Spine Bone

Mineral Density Z-scores but Not the Relationship of Bone Mineral Density With Prevalent

Vertebral Fractures. J of Clin Endocrinol and Metabolism. 2015 Mar;100(3):1018-27. doi:

10.1210/jc.2014-3096. Epub 2014 Dec 11 2014 PMID: 25494661.

61. Samuel N, Villani A, Fernandez CV, Malkin D. Treating the Family with Cancer:

Sequencing, Surveillance and Society. Nature Rev Clin Oncol. 2014 Dec;11(12):723-731 doi:

10.1038/nrclinonc.2014.169 PMID: 25311347.

62. Gaston D, Hansford S, Oliveira C, Nightingale M, Pinheiro H, Macgillivray C, Kaurah P,

Rideout A, Steele P, Soares G, Huang W, Whitehouse S, Blowers S, LeBlanc MA, Jiang H,

Greer W, Samuels M, Orr A, Fernandez CV, Majewski J, Ludman M, Dyack S, Penney L,

McMaster CR, Huntsman D, Bedard K. Germline mutations in MAP3K6 are associated with

familial gastric cancer. PLoS Genetics. 2014 Oct 23;10(10):e1004669. doi:

10.1371/journal.pgen.1004669. eCollection 2014. PMID:25340522.

63. Cataudella D, Morley T, Nessin A, Fernandez C, Johnston D, Sung L, & Zelcer S.

Development of a New Instrument – the Pediatric Supportive Care Scale (PSCS) - to Assess

the Quality of Life in Children with Advanced Cancer. Pediatric Blood and Cancer. 2014 Oct

14;61(10):1840-5. doi: 10.1002/pbc.25115. [Epub 2014 Jun 19] PMID:24947134.

64. Morley T, Cataudella D, Fernandez C, Sung L, Johnston D, Nesin A, & Zelcer, S.

Development of the Pediatric Advanced Care Quality of Life Scale (PAC-QoL): Evaluating

Comprehension of Items and Response Options. Pediatric Blood and Cancer. 2014

Oct;61(10):1835-9. doi: 10.1002/pbc.25111. [Epub 2014 Jun 19] PMID:24947009.

65. Chappells H, Parker L, Fernandez CV, Conrad C, Drage J, MacDonald J, O’Toole G,

Campbell N, Dummer T. Private drinking water wells and arsenic exposure: a review of

policy and management systems for health risk awareness and reduction. J of Water and

Health.2014 Sep;12(3):372-92. doi: 10.2166/wh.2014.054. PMID:25252340.

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66. Siminoski K, Lentle B, Matzinger M, Shenouda N, Ward LM and the Canadian STOPP

Consortium. Observer Agreement in Pediatric Semi-quantitative Vertebral Fracture

Diagnosis. Pediatric Radiology, 44(4):457-66, 2014. DOI http://dx.doi.org/10.1007/s00247-

013-2837-4

67. Fernandez CV, Bouffet E, Malkin D, Jabado N, O’Connell C, Avard D, Knoppers BM,

Ferguson M, Boycott KM, Sorensen PH, Orr AC, Robitaille JM, McMaster CR. Attitudes of

Parents to the Return of Targeted and Incidental Genomic Research Findings in Children.

Genetics in Medicine. 2014 Aug;16(8):633-40. [E pub 16 Jan 2014] doi:

10.1038/gim.2013.201.PMID:24434691

68. Robitaille JM, Gillett RM, Leblanc M, Gaston D, Nightingale M, Mackley MP, Parkash S,

Hathaway J, Thomas A, Ells A, Traboulsi E, Héon E, Roy M, Shalev S, Fernandez CV,

MacGillivray C, Wallace K, McMaster CR, Bedard K. Phenotypic Overlap Between Familial

Exudative Vitreoretinopathy (FEVR) and Microcephaly Lymphedema Chorioretinal Dysplasia

(MLCRD) Caused by KIF11 Mutations. JAMA Ophthalmology. 2014 Dec 132 (12):1393-

1399. E pub Aug 14. doi: 10.1001/jamaophthalmol.2014.2814. PMID 25124931.

69. Birnie KA, Chambers CT, Fernandez CV, Forgeron PA, Latimer MA, McGrath PJ,

Cummings EA Finley GA. Hospitalized children continue to report undertreated and

preventable pain. Pain Research & Management 2014 Jul-Aug;19(4):198-204 [Epub May 7]

pii: 16011. PMID: 24809068.

70. Ferrer FA, Herbst KW, Fernandez CV, Khanna G, Dome JS, Mullen EA, Geller JI, Gratias E,

Shamberger R, Ritchey M, Ehrlich PF. Feasibility and Potential Impact of Using CT Volume

as a Predictor of Specimen Weight in a Subgroup of Patients with Low Risk Wilms Tumors

Registered on COG Study AREN03B2.. J Pediatr Urol. 2014 Oct;10(5):969-73. doi:

10.1016/j.jpurol.2014.02.006. Epub 2014 Mar 15. PMID:24863984

71. DeCamp M, Joffe S, Fernandez C, Faden RR, Unguru Y and the Working Group on

Chemotherapy Drug Shortages in Pediatric Oncology. Chemotherapy Drug Shortages In

Pediatric Oncology: A Consensus Statement. Pediatrics. 2014 Mar;133(3):e716-24. doi:

10.1542/ peds.2013-2946. [Epub 2014 Feb 2] PMID: 24488741.

72. Phan V1, Blydt-Hansen T, Feber J, Alos N, Arora S, Atkinson S, Bell L, Clarson C, Couch R,

Cummings EA, Filler G, Grant RM, Grimmer J, Hebert D, Lentle B, Ma J, Matzinger M,

Midgley J, Pinsk M, Rodd C, Shenouda N, Stein R, Stephure D, Taback S, Williams K, Rauch

F, Siminoski K, Ward LM; Canadian STOPP Consortium. Skeletal findings in the first 12

months following initiation of glucocorticoid therapy for pediatric nephrotic syndrome.

Osteoporos Int. 2014 Feb;25(2):627-37. doi: 10.1007/s00198-013-2466-7. Epub 2013 Aug 16.

Collaborator. PMID 23948876.

73. Chappells H, Campbell N, Drage J, Fernandez CV, Parker L, Dummer TJB. Understanding

the translation of scientific knowledge about arsenic risk exposure among private well water

users in Nova Scotia. Science of the Total Environment (STOTEN). Epub 18 Jan 2014;

doi:10.1016/j.scitotenv.2013.12.108. PMID:24444512.

74. Kleiderman E, Knoppers BM, Fernandez CV, Boycott K, Ouellette G, Wong-Rieger D,

Adam S, Richer J, Avard D. Returning Incidental Findings from Genetic Research to Children:

Views of Parents of Children Affected by Rare Diseases. J Med Ethics. Epub: 2013 Dec 19;

doi:10.1136/medethics-2013-101648. PMID:24356209.

75. Ferrer FA, Rosen N, Herbst K, Fernandez CV, Khanna G, Dome JS, Mullen E, Gow KW,

Barnhart DC, Shamberger RC, Ritchey M, Ehrlich P. Image-based Feasibility of Renal

Sparing Surgery for Very Low Risk Unilateral Wilms Tumors. J Urol. 2013

Nov;190(5):1846-51 [Epub: 2013 May 30] doi: pii: S0022-5347(13)04513-

8.10.1016/j.juro.2013.05.060. PMID 23727411.

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76. Fernandez CV, Strahlendorf C, Avard D, Knoppers K, O’Connell C, Malkin D, Jabado N,

Boycott K, Sorenson P. Attitudes of Researchers to the Return to Participants of Incidental and

Targeted Genomic Findings Obtained in a Research Setting. Genetics in Medicine. 2013

Jul;15(7):558-64. [On line 31 Jan 2013.

http://www.nature.com/doifinder/10.1038/gim.2012.183] PMID 23370450.

77. Dome JS, Fernandez CV, Mullen EA, Kalapurakal JA, Geller JI, Huff V, Gratias EJ, Dix

DB, Ehrlich PF, Khanna G, Anderson JR, Naranjo A, and Perlman EJ. Children’s Oncology

Group’s 2013 Blueprint for Research. Pediatric Blood Cancer 2013 Jun;60(6):994-1000. [E

pub 2012 Dec 19] PMID:23255438.

78. Siminoski K, Lee K, Abish S, Alos N, Bell L, Blydt-Hansen T, Couch R, Cummings EA,

Ellsworth J, Feber J, Fernandez CV, Halton J, Huber AM, Israels S, Jurencak R, Lang B,

Laverdière C, LeBlanc C, Lewis V, Midgley J, Miettunen PM, Oen K, Phan V, Pinsk M,

Rauch F, Rodd C, Roth J, Saint-Cyr C, Scuccimarri R, Stephure D, Taback S, Wilson B,

Ward LM, and the Canadian STOPP Consortium. The Development of Bone Mineral

Lateralization in the Arms. Osteoporosis International 2013(Mar) 24: 999-1006. [E Pub 2012

Jun 29] PMID 22109742.

79. Unguru Y, Joffe S, Fernandez CV, Yu A. Ethical issues for control arm patients after

revelation of benefits of experimental therapy for neuroblastoma. J Clinical Oncology 2013

Feb 10;31(5): 641-63 [E pub 2013 January 7] PMID 23295797.

80. Shiff NJ1, Brant R, Guzman J, Cabral DA, Huber AM, Miettunen P, Roth J, Scuccimarri R,

Alos N, Atkinson SA, Collet JP, Couch R, Cummings EA, Dent PB, Ellsworth J, Hay J,

Houghton K, Jurencak R, Lang B, Larche M, Leblanc C, Rodd C, Saint-Cyr C, Stein R,

Stephure D, Taback S, Rauch F, Ward LM; Canadian Steroid-associated Osteoporosis in the

Pediatric Population Consortium. Glucocorticoid-related changes in body mass index among

children and adolescents with rheumatic diseases. Arthritis Care Res (Hoboken). 2013

Jan;65(1):113-21. doi: 10.1002/acr.21785. Collaborator. PMID 22826190.

81. Fernandez CV, Ruccione K, Wells R, Long JB, Pelletier W, Hooke MC, Pentz RD, Noll RB,

Baker J, O’Leary M, Reaman G, Adamson PC, Joffe S. Recommendations for the return of

research results to study participants and guardians: A report from the Children’s Oncology

Group. J Clinical Oncology 2012;30:4573-4579. [E pub 2012 Oct 29] PMID 23109703

82. Alos N, Grant RM, Ramsay T, Halton J, Cummings EA, Miettunen PM, Abish S, Atkinson S,

Barr R, Cabral DA, Cairney E, Couch R, Dix DB, Fernandez CV, Hay J, Israels S, Laverdière

C, Lentle B, Lewis V, Matzinger M, Rodd C, Shenouda N, Stein R, Stephure D, Taback S,

Wilson B, Williams K, Rauch F, Siminoski K, Ward L; STOPP consortium. High Incidence

of Vertebral Fractures in Children with Acute Lymphoblastic Leukemia 12 Months After the

Initiation of Therapy. J Clin Oncology 2012 (Aug); 30(22):2760-7. [Epub 2012 Jun 25]

PMID 22734031.

83. Siminoski K, Lee KC, Jen H, Warshawski R, Matzinger MA, Shenouda N, Charron M,

Coblentz C, Dubois J, Kloiber R, Nadel H, O'Brien K, Reed M, Sparrow K, Webber C, Lentle

B, Ward LM; STOPP Consortium. Anatomical distribution of vertebral fractures: comparison

of pediatric and adult spines. Osteoporos Int. 2012 Jul;23(7):1999-2008. doi: 10.1007/s00198-

011-1837-1. Epub 2011 Nov 23. PMID:22109742

84. Gardiner B, Morash B, Riddell C, Wang H, Fernandez CV, Yhap M, Berman JN. The

Incidence and Prognostic Significance of 9p21 Abnormalities In Pediatric Acute

Lymphoblastic Leukemia Patients. Pediatric Blood Cancer 2012 (Jun);58(6):852-9. [Epub

ahead of print Jul 27. doi: 10.1002/pbc.23285]. PMID 21796768.

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85. Angelski CL, Fernandez CV, Weijer C and Gao J. The Publication of Ethically Uncertain

Research: Attitudes and Practices of Journal Editors. BMC Medical Ethics 2012 (Apr);13:4.

PMID 22494972.

86. Shaw R, Issekutz AC, Fraser R, Schmit P, Morash B, Monaco-Shawver L, Orange JS,

Fernandez CV. Bilateral adrenal EBV-associated smooth muscle tumors in a child with a

natural killer cell deficiency. Blood 2012 (Apr);119(17):4009-401. (doi:10.1182/blood-2011-

10-385377). PMID 22427204.

87. Marjerrison S, Fernandez CV, Price VE, Njume E, Hesseling P. The use of ultrasound in

endemic Burkitt’s lymphoma in Cameroon. Pediatr Blood Cancer 2012 (Mar);58(3):352-5.

88. Kazenwadel J, Secker GA, JL Yajuan, Rosenfeld JA, Wildin RS, Dyack S, Fernandez CV,

Shimamura A, Zhang M, Walsh T, Holland SM, Hickstein DD, Horwitz MS, Hahn CN, Scott

HS, Harvey NL. Loss of function germline GATA2 mutations in patients with MDS/AML or

MonoMAC syndrome and primary lymphedema. Blood 2012 (Feb);119(5):1283-91. PMID

22147895.

89. Feber J, Gaboury I, Ni A, Alos N, Arora S, Bell L, Blydt-Hansen T, Clarson C, Filler G, Hay

J, Hebert D, Lentle B, Matzinger M, Midgley J, Moher D, Pinsk M, Rauch F, Rodd C,

Shenouda N, Siminoski K, Ward LM; Canadian STOPP Consortium. Skeletal findings in

children recently initiating glucocorticoids for the treatment of nephrotic syndrome.

Osteoporos Int. 2012 Feb;23(2):751-60. doi: 10.1007/s00198-011-1621-2. Epub 2011 Apr 15.

PMID: 21494860

90. Rodd C, Lang B, Ramsay T, Alos N, Huber AM, Cabral DA, Scuccimarri R, Miettunen PM,

Roth J, Atkinson SA, Couch R, Cummings EA, Dent PB, Ellsworth J, Hay J, Houghton K,

Jurencak R, Larché M, LeBlanc C, Oen K, Saint-Cyr C, Stein R, Stephure D, Taback S, Lentle

B, Matzinger M, Shenouda N, Moher D, Rauch F, Siminoski K, Ward LM; Canadian

Steroid-Associated Osteoporosis in the Pediatric Population (STOPP) Consortium.

Incident vertebral fractures among children with rheumatic disorders 12 months after

glucocorticoid initiation: a national observational study. Arthritis Care Res (Hoboken). 2012

Jan;64(1):122-31. doi: 10.1002/acr.20589.

91. McMurter B, Parker L, Fraser RB, Magee JF, Kozancyzn C, Fernandez CV. Parental Views

on Tissue Banking in pediatric Oncology patients. Pediatr Blood Cancer 2011

(Dec)15;57(7):1217-21 [E pub Jan 2010) PMID 21254370.

92. Birnie K, Noel M, von Baeyer CL, Chambers CT, Fernandez CV. The cold pressor task

(CPT): Is it an ethically acceptable pain research method in children? J Pediatric Psychology

2011 (Nov) 36(10):1071-81. [E pub Oct 5 2010] PMID 20926408.

93. Fernandez CV, Li N, Mullen E, Grundy P, Perlman E, Shamberger R, Ehrlich P, Dome J.

Barriers to the enrolment of children in the Children’s Oncology Group study of very low risk

Wilms’ tumor. A report from the Children’s Oncology Group. J Pediatr Hematology

Oncology 2011 Oct;33(7):521-523. PMID 21941145.

94. Cox K, Fernandez CV, Chambers CT, Bandstra NF, Parker JA. Impact on Parents of

Receiving Individualized Feedback of Psychological Testing Conducted With Children as Part

of a Research Study. Accountability in Research 2011 Sep-Oct;18(5):342-56. PMID

21916741.

95. Tsangaris E, Klaassen R, Fernandez CV, Yanofsky R, Scherek E, Champagne J, Silva M,

Lipton JH, Brossard J, Samson Y, Abish S, Steele M, Ali K, Dower N, Athale U, Jardine L,

Hand JP, Stephen D, Odame I, Canning P, Allen C, Beyene J, Dror Y. Genetic analysis of

inherited bone marrow failure syndromes from the CIMFR comprehensive cohort of Canadian

patients. J Med Genet 2011 Sep;48(9):618-28. [E pub 2011 Jun 9]. PMID: 21659346.

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96. Hashmi SK, Klaassen R, Fernandez CV, Yanofsky R, Wu J, Champagne J, Silva M, Lipton

JH, Brossard J, Samson Y, Abish S, Steele M, Ali K, Dower N, Athale U, Jardine L, Hand JP,

Allen C, Beyene J, Dror Y. Comparative analysis of Shwachman-Diamond Syndrome to

Other Inherited Bone Marrow Failure Syndromes and Genotype-Phenotype Correlation.

Clinical Genetics 2011 (May) 79:5:448-458 [E pub 22 May 2010] doi: 10.1111/j.1399-

0004.2010.01468. PMID: 20569259.

97. Fernandez CV, Fraser G, Freeman C, Grunfeld E, Gupta A, Mery LS. Schechter B for the

Canadian Task Force on Adolescents and Young Adults with Cancer. Principles and

Recommendations for the Provision of Health Care in Canada to AYA with Cancer and

Survivors of Cancer as AYA and Children. J Adolescent Young Adult Oncology 2011

(May);1(1):53-59. PMID: 2361073.

98. Hilliard R, Fernandez CV, Tsai E and the Canadian Pediatrics Society Bioethics Committee.

Ethical participation of children and youth in medical education. Position statement. Pediatr

Child Health 2011 (Apr);16(4):223-232. PMID 22468127.

99. Fabsitz RB, McGuire A, Sharp RR, Hudson K, Pandey M, Beskow LM, Biesecker LG,

Bookman E, Burke W, Burchard EG, Church G, Wright Clayton E, Eckfeldt J, Fernandez

CV, Fisher R, Fullerton SM, Gabriel S, James C, Jarvik G, Kittles R, Leib J, O’Donnell C,

O’Rourke RP, Lyman Rodriguez L, Romero F, Schully SD, Shuldiner AR, Sze RF, Thakuria

J, Wolf SM, Burke GL. Ethical and Practical Guidelines for Reporting Genetic Research

Results to Study Participants: Updated Guidelines from an NHLBI Working Group.

Circulation: Cardiovascular Genetics 2010 (Dec);3:574-580. PMID 21156933. \

100. Huber A M, Gaboury I, Ni A, Cabral D.A, Lang B, Stephure D, Taback S, Dent P, Ellsworth J,

Leblanc C, Saint-Cyr C, Scuccimarri R, Hay J, Lentle B, Matzinger M, Shenouda N, Moher D,

Rauch F, Siminoski K, Ward LM and the Canadian Steroid-Associated Osteoporosis in the

Pediatric Population (STOPP) Consortium. Prevalent vertebral fractures among children

initiating glucocorticoid therapy for the treatment of rheumatic disorders. Arthritis Care &

Research, 62 (4): 516-526, 2010. DOI: http://dx.doi.org/10.1002/acr.20171

101. Abbott LS, Deevska M, Fernandez CV, Dix D, Price VE, Wang H, Parker L, Yhap M,

Fitzgerald C, Barnard D, Berman JN. The Impact of Prophylactic Cryoprecipitate and Fresh

Frozen Plasma on the Incidence of CNS Thromboses in Children with Acute Lymphoblastic

Leukemia Receiving Asparaginase. Blood 2009 Dec 10;114(25):5146-51. [Pre-published

online October 12, 2009; DOI 10.1182] PMID 19822902.

102. Quackenbush KE, Luna-Fineman S, Magee JF, Gundogan M, Golobi M, Takeshi I,

Fernandez CV. Neuroblastoma involvement of the falx cerebri. Pediatr Blood Cancer 2009

Dec 15;53(7):1337-9. PMID 19821537.

103. Read K, Fernandez CV, Gao J, Strahlendorf C, Moghrabi A, Pentz R, Barfield R, Baker J,

Santor D, Kodish E, Weijer C. Decision-making by adolescents and parents of children with

cancer regarding health research participation. Pediatrics 2009 Sept 12;4(3):959-956. [Epub

2009 Aug 10] PMID 19706586.

104. Bebbington M, Langley JM, Fernandez CV. Clinical Vignette: Fever and purpuric lesions in

a preschooler. The Canadian Journal of Infectious Diseases and Medical Microbiology 2009

(Aug) 20(3): e110-111. PMID 20808451.

105. Henry H, Fernandez CV, Corsten G. Post transplant lymphoproliferative disorder in an

adolescent masquerading as a complicated primary EBV infection. BMJ Case Reports 2009;

doi:10.1136/bcr.04.2009.1758 [Published 9 June 2009] PMID 21686965.

106. Guernsey DL, Jiang H, Campagna DR, Evans SC, Ferguson M, Kellogg MD, Lachance M,

Matsuoka M, Nightingale M, Rideout A, St-Amant L, Schmidt PJ, Orr A, Bottomley SS,

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Fleming MD, Ludman M, Dyack S, Fernandez CV, Samuels ME. Mutations in

mitochondrial carrier family member SLC25A38 cause non-syndromic autosomal recessive

congenital sideroblastic anemia. Nature Genetics 2009 Jun;41(6):651-3. [Epub 2009 May 3]

PMID 19412178.

107. Baker JM, Lewis VA, Fernandez CV, Duval M, Crooks BN, Yuille K, Freedman MH, Doyle

JJ, and Dror Y. Allogeneic Hematopoietic Stem Cell Transplantation of Patients with Fanconi

Anemia and High Risk Features Using Fludarabine without Radiation. Pediatic Blood Cancer

2009 May;52(5):683-5. PMID 19156855.

108. Halton J, Gaboury I,Grant R, Alos N, Cummings EA, Matzinger M, Shenouda N, Lentle B,

Abish S, Atkinson S, Cairney E, Dix D, Israels S, Stephure D,Wilson B, Hay J, Moher D,

Rauch F,Siminoski K, Ward LM and the Canadian STOPP Consortium. Advanced Vertebral

Fracture Among Newly Diagnosed Children With Acute Lymphoblastic Leukemia: Results of

the Canadian Steroid-Associated Osteoporosis in the Pediatric Population (STOPP) Research

Program. J Bone Mineral Research 2009 24(7):1326-1134 [Published online on February 9,

2009] doi: 10.1359/JBMR.090202.

109. Fernandez CV, Gao J, Strahlendorf, C, Moghrabi A, Pentz RD, Barfield RC, Baker JN,

Santor D, Weijer C, Kodish E. The return of research results to participants: Attitudes and

needs of adolescents and parents of children with cancer. Journal of Clinical Oncology 2009

Feb;27(6):878-83. [E pub 21 Jan 2009] Profiled: Hem/Onc Today, 2009. PMID 19164211.

110. Fernandez CV, Anderson J, Breslow NE, Dome JS, Grundy PE, Perlman EJ, Green DM, and

the National Wilms Tumor Study Group/Children’s Oncology Group. Anthropomorphic

measurements and event free survival in patients with favourable histology Wilms tumor: A

report from the Children’s Oncology Group. Pediatr Blood Cancer 2009 (Feb);52(2):254-258.

[E pub 6 Nov 2008] PMID 18989885.

111. Rowan Legge A, Weijer C, Gao J, Fernandez CV. A comparison of journal instructions

regarding institutional review board approval and conflict of interest between 1995 and 2005. J

Med Ethics 2009 (Jan);35:74-78. PMID: 19103950.

112. Fernandez CV. Physician obligations to patients in clinical research. Bioethics Education

Project. Royal College of Physicians and Surgeons of Canada. 2009 (Jan). Available at:

Section VII. http://rcpsc.medical.org/bioethics/cases/index.php

113. Fernandez CV. Public expectations for return of results - time to stop being paternalistic?

AJOB 2008 (Nov);8:46-48.

114. Berman JN, Greer, WL, Loh M, Riddell C, Morash B, Dumas N, Fernandez CV, Ludman M.

JAK2 V617F Positive polycythemia vera in a child with neurofibromatosis type I. Pediatr

Blood Cancer 2008 (Nov);51(5):689-91. [E print 2008 July 11] PMID 18623221.

115. Tsai E, principal author. Fernandez CV, member of committee. Advance care planning for

pediatric patients. Position statement (B2008-02). Statement of the Canadian Pediatric

Society. Pediatr Child Health 2008 13(9):791-796. PMID 19061110.

116. Fernandez CV (lead author). Ethical Issues in Health Research in Children. Canadian

Paediatric Society Position Statement. Bioethics Committee. Pediatr Child Health 2008

(Oct);13(8):707-712. (Parent supplement:

www.caringforkids.cps.ca/healthybodies/HealthResearch.htm).

117. Finlay KA, Fernandez CV. Failure to report and provide commentary on research ethics

board approval and informed consent in medical journals. J Med Ethics

2008(Oct);34(10):761-764. PMID: 18827111.

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118. Teo TJ, Klaassen R, Fernandez CV, Yanofsky R, Wu J, Champagne J, Silva M, Lipton JH,

Brossard J, Samson Y, Abish S, Steele M, Ali K, Dower N, Athale U, Jardine L, Hand JP,

Maniatis G, Beyene J, Dror Y. Unclassifiable inherited bone marrow failure syndrome: A

report from the Canadian Inherited Marrow Failure Registry (CIMFR). Pediatrics 2008

(July);122:e139-148. PMID 18595958.

119. Simpson CD, Gao J, Fernandez CV, Yhap M, Price VE, Berman JN. Routine Bone Marrow

Examination in the Initial Evaluation of Pediatric Hodgkin’s Disease: The Canadian

Perspective. Br J Hematology 2008 (June);141(6):820-826. [E pub 18 April 2008] PMID

18422997.

120. Wang C, Camfield CS, Fernandez CV, Hurley T, Campbell K. Successful Neurological

Outcome of a Child with Classical Phenylketonuria and Acute Lymphoblastic Leukemia: A

Seven Year Follow Up. American Journal of Medical Genetics 2007 Dec 15;143A(24):3324-

7. [E pub 4 May 2007] PMID 17480007.

121. Benedict J, Simpson C, Fernandez CV. Validity and consequence of informed consent in

pediatric bone marrow transplantation: The parental experience. Pediatr Blood & Cancer

2007 (Nov);49:846-851. [E pub 6 Oct 2006] PMID 17029247.

122. Kozanczyn C, Collins K and Fernandez CV. Providing Research Results to Study

Participants: US Institutional Review Board Guidance. Accountability in Research 2007

(Oct);14(4):255-267. PMID 18246944.

123. MacNeil SD, Fernandez CV. Attitudes of Research Ethics Board Chairs toward disclosure of

research results to research participants. Results of national survey. J Med Ethics 2007

(Sept);33:549-553. PMID 17761827.

124. J Brown, E Cooper, L Frankton, M Steeves-Wall, J Gillis-Ring, W Barter, A McCabe, CV

Fernandez. Complementary and alternative therapies: Survey of knowledge and attitudes of

health professionals at a tertiary pediatric/women’s care facility. Complementary therapiesin

Clinical Practice 2007 (Aug);13(3):194-200. PMID 17631262.

125. Rigby H, Fernandez CV, Langley J, Mailman T, Crooks BNA, Higgins A. Routine

surveillance for bloodstream infections in a pediatric hematopoietic stem cell transplant

cohort: do patients benefit? Can J Infect Dis & Med Microbiol 2007 (July/Aug);18:253-256.

PMID 18923737.

126. Fernandez CV. Abnormal volunteer results. AHRQ WebM&M [serial online] June 2007.

Available at: http://www.webmm.ahrq.gov/case.aspx?caseID=153. Accessed June 11, 2007.

127. Lefaivre MJ, Chambers CT, Fernandez CV. Providing parents with individualized feedback

on the results of psychological testing conducted for research purposes with children: Ethical

issues and Guidelines. J Clin Child Adoles Psychiatr 2007 (Jun);36(2)242-252. Awarded:

Michael Enzle Memorial Award for best graduate student peer-reviewed publication in the

area of research ethics and human participant protection in research. Co-sponsored by the

National Council on Ethics in Human Research, Canadian Institutes of Health Research and

the Interagency Panel on Research Ethics. Ottawa, Canada. 2008. PMID 17484696.

128. Fernandez CV. The return of research results to participants: an ongoing debate modeled in

cancer research. Harvard Health Policy Review 2007 (Spring);8(1):16-28.

129. Fernandez CV, Santor D, Weijer C, Strahlendorf C, Moghrabi A, Pentz R, Gao J, Kodish E.

The return of research results to participants: Pilot questionnaire of adolescents and parents of

children with cancer. Pediatr Blood & Cancer 2007 (Apr); 48(4):441-6. [E pub 19 Jan 2006].

130. Fernandez CV. Our moral obligations in caring for patients with orphan cancers. CMAJ

2007 (Jan) 176(3):297-9. PMID 17261816.

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131. Joffe S, Fernandez CV, Pentz RD, Ungar DR, Matthew NA, Alessandri AJ, Woodman CL,

Singer DA, Kodish E. Guidelines for involving children in decision-making about research

participants. J Pediatr 2006 (Dec);149(6):862-868. PMID 17137908.

132. Steele JM, Sung L, Klaassan R, Fernandez CV, Yanofsky R, Wu J, Odame I, Silva M, Ali K,

Brossard J, Samson Y, Champagne J, Abish S, Le D, Jardine L, Hand JP, Dower N, Lipton J,

Charpentier K, Freedman M, Morgovsky L, Stephens D, Dror Y. Disease progression in

recently diagnosed patients with inherited marrow failure syndromes: A report from the

Canadian Inherited Marrow Failure Registry. Pediatr Blood & Cancer 2006 (Dec);47(7):918-

925. [E pub 4 May 2006].

133. Fernandez CV, Weijer C. Obligations in offering to disclose genetic research results.

American Journal of Bioethics 2006 (Nov-Dec);6(6):44-46. PMID 17085409.

134. Baruchel S, Diezi M, Hargrave D, Stempak D, Gammon J, Moghrabi A , Coppes M,

Fernandez CV, and Bouffet E. Safety and pharmacokinetics of Temozolomide using a

dose-escalation, metronomic schedule in recurrent pediatric brain tumors. Eur J Cancer 2006

(Sept);42(14):2335-42. [E pub 7 Aug 2006]. PMID:16899365.

135. Fernandez CV. Ethical Issues Arising in the Return of Research Results to Research

Participants. Bioethics Education Project. Royal College of Physicians and Surgeons of

Canada. April 2006. http://rcpsc.medical.org/bioethics/cases/case_7_3_5_e.php

136. Satyanarayana S, Cummings EA, Fernandez CV, Barnard D. Hyperphagia following Acute

Lymphoblastic Leukemia - A symptom worth heeding. Clin Pediatr (Phil) 2006 (Apr);

45(3):271-273.

137. Fernandez CV, Barr R. Adolescents and young adults with cancer: an orphaned population.

Pediatr & Child Health 2006 (Feb);11(2):103-106. PMID 19030262.

138. MacNeil SD, Fernandez CV. Informing research participants of research results: analysis of

Canadian university-based research ethics board policies. J Med Ethics 2006 (Jan);32(1):49-

54. PMID: 16373524.

139. Yu W, Fraser RB, Gaskin DA, Fernandez CV, Wright JR. C-kit positive metastatic

pigmented clear cell epithelioid tumor (Malignant PEComa) arising from the kidney in a child

without tuberous sclerosis. Ann Diagnost Path 2005 (Dec);9(6):330-334.

140. Fernandez CV, Fraser RB, Magee F. The crucial role tumor specimen handling plays in

childhood cancer outcomes. Pediatr & Child Health 2005 (Oct);10(8):471-472.

141. Rigby H, Fernandez CV. Providing research results to study participants: support versus

practice of researchers presenting at the American Society of Hematology annual meeting.

Blood 2005 (Aug);106(4):1199-1201 [E pub 5 May 2005].

142. Steele M, Hitzler J, Doyle JJ, Yuille K, Fernandez CV, Dror Y. Low-intensity hematopoietic

stem-cell transplantation across human leukocyte antigen barriers in a patient with congenital

amegakaryocytic thrombocytopenia and monosomy 7. Pediatr Blood & Cancer 2005

Aug;45(2);212-6. [E pub 21 Mar 2005].

143. Losier A, Taylor B, Fernandez CV. Use of alternative therapies in patients presenting to a

pediatric emergency department. J Emerg Med 2005;28(3):267-271. Reprinted in: Yearbook

of Emergency Medicine 2006, Quintana E ed. 2006.

144. Rigby H, Schmidt M, Yu W, Fernandez CV. Lack of response of a metastatic renal PEComa

to successive courses of DTIC based therapy and imatinib mesylate. Pediatr Blood & Cancer

2005 Aug;45(2):202-6. [E pub 9 Feb 2005].

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145. Fernandez CV, Taweel S, Kodish ED, Weijer C. Disclosure of research result to research

participants: Needs and attitudes of adolescents and parents. Pediatr Child Health

2005;10(6):332-334.

146. Conway J, Dyack S, Crooks BNA, Fernandez CV. Mixed donor chimerism and low level

iduronidase expression may be adequate for neurodevelopmental protection in Hurler’s

syndrome. J Pediatr 2005 (Jul);147(1):106-8.

147. Anglesio MS, Evdokimova V, Melnyk N, Zhang L, Fernandez CV, Grundy PE, Leach S,

Marra MA, Brooks-Wilson AR, Penninger J, Sorensen PH. Differential expression of a novel

ankyrin containing E3 ubiquitin-protein ligase, Hace1, in sporadic Wilms' tumour versus

normal kidney. Hum Mol Genet 2004;13(18): 2061-2074.

148. Macfarlane RJ, McCully BJ and Fernandez CV. Induction therapy without tumor lysis

syndrome for pediatric leukemia patients with marked hyperleukocytosis treated with

rasburicase. Pediatr Neophrol 2004;19(8):924-927.

149. Fernandez CV, Skedgel C, Weijer C. Consideration and costs of disclosing study findings to

research participants. CMAJ 2004;170(9):1417-1419.

150. Fernandez CV. Context in shaping the ability of a child to assent to research. Amer J

Bioethics 2003;3(4):29-30.

151. Fernandez CV, Gillis-Ring J. Strategies for the Prevention of Medical Error in Pediatrics. J

Pediatr 2003;143(2):155-162.

152. Fernandez CV, Kodish ED, Shurin SB, Weijer C. Disclosure of the right of research

participants to receive research results: Attitudes and needs of principal investigators in the

Children’s Oncology Group. J Pediatr Hemat Oncol 2003;25(9):704-708.

153. Shouldice E, Fernandez CV, McCully B, Schmidt M, Fraser R, Cook C. Successful

treatment of disseminated osteomyelitic and hepatosplenic aspergillosis in a patient with acute

undifferentiated leukemia. J Pediatr Hemat Oncol 2003;25(9):732-734.

154. Fernandez CV, Kodish ED, Taweel S, Shurin SB, Weijer C. Disclosure of the right of

research participants to receive research results: An analysis of consent forms in the

Children’s Oncology Group. Cancer 2003;97(11):2904-2909.

155. Fernandez CV, Kodish E, Weijer C. Returning research results to subjects. An ethical

imperative. IRB: Ethics & Human Research 2003;25(3):12-19.

156. Beresford L, Fernandez CV, Cummings E, Sanderson S, Ming-Yu W, Giacomantonio M.

Mediastinal polyembryoma associated with Klinefelter’s syndrome. J Pediatr Hemat Oncol

2003;25(4): 321-323.

157. McMulkin HM, Yanchar NL, Fernandez CV, Giacomantonio C. Sentinel lymph node

mapping and biopsy: a potentially valuable tool in the management of childhood extremity

rhabdomyo-sarcoma. Pediatr Surg Int 2003 Aug;19(6):453-6. [E pub May 10 2003].

158. Fernandez CV, Gordon K, Van Den Hof M, Baylis F. Knowledge and attitudes of pregnant

women with regard to collection, testing and banking of cord blood stem cells. CMAJ 2003

(Mar);168:695-698.

159. Ljungman G, McGrath PJ, Cooper E, Widger K, Ceccolini J, Fernandez CV, Frager G,

Wilkins K. Psychosocial needs of families with a child with cancer. J Pediatr Hemat Oncol

2003;25: 223-231.

160. Fernandez CV, Lestou V, Wildish J, Lee CLY Sorensen P. Detection of a novel t(6;15)

(q21;q21) translocation in a pediatric Wilms tumor. Cancer Genetics and Cytogenetics

2001;129(2):165- 167.

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161. Kim A, Fernandez CV , Greer WL, Hogg D, Lassam N, Resch L. Concurrent acute lympho-

blastic leukemia and juvenile pilocytic astrocytoma in a pediatric patient. Am J Ped Hem

Oncology 2000;2:451-453.

162. Fernandez CV. Can we prevent cytotoxic disasters? Br J Hematology 2000;108:464-469.

163. Fernandez CV, Esau R, Hamilton D, Fitzsimmons B, Pritchard S. Intrathecal vincristine: an

analysis of reasons for a recurrent fatal chemotherapeutic error with recommendations for

prevention. J Pediatr Hemat/Oncol 1998;20:587-590.

164. Fernandez CV, Stutzer C, MacWilliam L, Fryer C. Alternative and complementary therapy

use in pediatric oncology patients in British Columbia. Prevalence of and reasons for use or

non-use. J Clin Oncol 1998;16:1279-1286.

165. Schultz KR, Fernandez CV, Israel DM, Magee F, Wensley D, Sargent MA, Abella E,

Karanes C. Association of gastroesophageal reflux with obstructive lung disease in children

after allogeneic bone marrow transplantation. Blood 1995;85:3763-3765.

166. CV Fernandez. Pediatric Bone Marrow Transplantation: Ethical Considerations. Annals

RCPSC 1994;27:291-295.

167. CV Fernandez and EP Rees. Pain Management in Canadian Level III Neonatal Intensive

Care Units. Can Med Assoc J 1994;150:499-504.

168. Finley GA, MacManus B, Sampson SE, Fernandez CV and Retallick R. Delayed Seizures

following sedation with propofol: Report of two pediatric cases. Can J Anes 1993;40:863-865.

169. CV Fernandez, R Bortolussi, KE Gordon, JG Gatien, SHS Lee, MS Shadrabadi.

Mycoplasma pneumoniae infection associated with central nervous system complications. A

report of two cases and review of the literature. J Child Neuro 1993;8:27-31.

170. CV Fernandez. Hallucinations induced by an antihistamine-decongestant mixture. Can Fam

Phys 1992;38:2184-2186.

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ABSTRACTS SUBMITTED:

1. Tutelman, PR., Chambers, CT., Urquhart, R., Fernandez, C.V., Flanders, A., Guilcher,

G.M.T., Heathcote, L.C., Noel, M., Schulte, F., Stinson, J.N., MacLeod, J. & Stern, M. (2020,

April). “Am I Getting a Needle Today?” Exploring Parent and Child Experiences of Medical

Tests and Surveillance After Completion of Cancer Treatment. Poster submitted for

presentation at the Dalhousie Department of Pediatrics Research day. Also submitted to the

PICH2GO Pediatric Pain conference.

2. Tutelman, PR., Chambers, CT,. Urquhart, R., Fernandez, C.V. (2020, June). “Am I Getting a

Needle Today?” Exploring Parent and Child Experiences of Medical Tests and Surveillance

After Completion of Cancer Treatment. Poster submitted for presentation at the International

Institute of Qualitative Methods Thinking Qualitatively Conference, Edmonton, AB.

3. Tuttleman PR, Jibb LA, Chambers CT, Stinson JN, Parker JA, Barwick M, Campbell F,

Drake EK, Fernandez CV, Irwin K, Nathan PC, Witteman HO. Parent Perspectives on the

Benefits and Limitations of a Social Media Campaign to Disseminate Evidence-Based

Information on Pediatric Cancer Pain. Submitted to the Canadian Pain Society meeting.

4. Tutelman, P.R., Chambers, C.T., de Gagne, S., Fernandez, C.V., Flanders, A., Guilcher, G.,

Hashmi, J., Heathcote, L., MacLeod, J., Noel, M., Schulte, F., Stern, M., Stinson, J. &

Urquhart, R. (2020, March). An Exploratory Mixed Methods Approach to Understanding Pain

in Childhood Cancer Survivors: From Neural Mechanisms to Phenomenal Experience. In A.

Hildenbrand (Chair), Harnessing Mixed Methods Designs to Advance Psychosocial Oncology

Research: Illustrations from the Study of Cancer Pain. Workshop submitted for presentation at

the 2020 American Psychosocial Oncology Society Annual Conference, Portland, OR, USA.

5. Lim YJ, Arbiv OA, Kalbfleisch ME, Klaassen RJ, Fernandez C, Rayar M, Steele M, Lipton

JH, Cuvelier G, Pastore YD, Silva M, Brossard J, Michon B, Abish S, Sinha R, Belletrutti RJ,

Breakey VR, Jardine L, Goodyear L, Sung L, Schechter-Finkelstein T, Zlateska B, Cada M,

Dror Y. The Impact of identifying the syndromic and genetic diagnoses on hematopoietic stem

cell transplantation outcome in patients with inherited bone marrow failure syndromes.

Submitted to ASH. Orlando, Flda. December 2019.

6. Stephanie A. Grover, Jason Berman, Jennifer Chan, Rebecca Deyell, David Eisenstat, Conrad

V Fernandez, Paul Grundy, Abha Gupta, Cynthia Hawkins, Meredith Irwin, Nada Jabado,

Steven Jones, Michael Moran, Rod Rassekh, Adam Shlien, Daniel Sinnett, Poul Sorensen,

Patrick Sullivan, Michael Taylor, Anita Villani, James Whitlock, David Malkin, on behalf of

the Terry Fox PROFYLE Consortium. Terry Fox PRecision Oncology For Young peopLE

(PROFYLE): A Canadian precision medicine program for children, adolescents and young

adults with hard-to-treat cancer. Submitted to the AACR Annual Meeting 2020. San Diego.

April 2020.

7. Shane Sinclair, Shelley Raffin Bouchal, Fiona Schulte, Greg Guilcher, Adam Rapoport,

Angela Punnett, Conrad V Fernandez, Joanna Chung, Susan Kuhn, Nicole Letourneau The

Building Blocks of Compassion in Pediatric Healthcare: The Perspectives and Experiences of

Healthcare Providers, Parents, and Patients. Submitted to the International Palliative Care

Congress. Montreal, October 2020.

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8. Lim YJ, Arbiv OA, Kalbfleisch ME, Pastore YD, Klaassen RJ, Cuvelier J, Fernandez C,

Rayar M, Steele M, Lipton JH, Silva M, Brossard J, Michon B, Abish S, Sinha R, Belletrutt

MJ, Breakey VR, Jardine L, Goodyear L, Sung L, Schechter-Finkelstein T, Zlateska B, Cada

M , Dror Y. The outcome of hematopoietic stem cell transplantation in children with

Shwachman-Diamond syndromes. Submitted to the 10th international congress on SDS.

Cambridge, UK. April 2020.

9. Katherine Dunn, Jessica Connors, Johan VanLimbergen, Morgan Langille, Conrad

Fernandez, Tamara MacDonald, Ketan Kulkarni. Significant association of gut microbiome

with serum asparagainase levels in pediatric patients with acute lymphoblastic leukemia. To be

submitted to the SIOP annual meeting 2020. Ottawa, ON. Oct 2020.

10. Verwaaijen J, Ma J, de Groot-Kruseman H, Pieters R, van der Sluis IM, van Atteveld JE,

Halton J, Fernandez CV, Hartman A,de Jonge A, Lequin MH, te Winkel1 ML, Atkinson

SA, Barr R, Hay HJ, Huber AM, Ho Jo, Jaremko JL, Koujok K, Matzinger M, Shenouda N,

Rauch F, Rodd C, Siminoski K, Pluijm SMF, van den Heuvel-Eibrink MM, Ward LM.

Developing and validating clinical predicition models for symptomatic fractures and low bone

mineral density in pediatric acute lymphoblastic leukemia. Submitted to the 12th Biennial

Childhood Leukemia and Lymphoma symposium May 2020, Valencia, Spain, and the SIOP

annual meeting 2020. Ottawa, ON. Oct 2020.

ABSTRACTS:

1. Pabari R, Cohen E, Cuvelier GD, Klaassen RJ, Fernandez CV, Brossard J, Abish S, Steele M,

Pastore YD, Lipton JH, Rayar M, Breakey VR, Silva M, Jardine L, Sinha R, Goodyear L,

Michon B, Corriveau-Bourque C, Sung L, Lim YJ, Zlateska B, Dror Y, Cada M. Predictors of

Disease Progression and Survival in Patients With Myelodysplastic Syndrome Secondary to

Inherited Bone Marrow Failure Syndromes. Poster presentation. ASH, Orlando, Flda.

December. 2019.

2. Tutelman, P.R., Chambers, C.T., Urquhart, R., Fernandez, C.V., Heathcote, L.C., Noel, M.,

Flanders, A., Guilcher, G.M.T., Schulte, F., Stinson, J.N., MacLeod, J. & Stern, M. When “A

Headache is Not Just a Headache”: A Qualitative Examination of Parent and Child

Experiences of Pain After Childhood Cancer. Sept 2019. Accepted for presentation at the

International Psycho-Oncology Society’s 21st World Congress, Banff, Canada. Poster

presentation.

3. Goudie C, Cullinan N, Reichman L, Cacciotti C, Coltin H, Felton K, Fernandez C, Gibson P,

Laffay-Cousin L, Larouche V, Matthews N, Mourad S, Perrier R, Pike M, Toupin A, Vairy S,

vanEngelen K, Villani A, Foulkes W, Malkin D. Performance of an E health decision-support

tool for identifying cancer predisposition syndromes in Canadian pediatric oncology centres.

SIOP 2019 Annual meeting. Lyon, France. October 2019. Platform presentation.

4. Ehrlich PF, Chintagamupala MM, Chi YY, Tornwall B, Hoffer FA, Perlman EJ, Kalapurakal

JA, Warwick A, Shamberger RC, Khanna G, Gow KW, Glick R, Paulino AC, Gratias EJ,

Mullen EA, Geller JI, Fernandez CV, Dome JS. Chemotherapy in preserving renal units

and preventing Wilms Tumor development in children with DHPLN. A report from the

Children’s Oncology Group AREN0534 Study. SIOP 2019 Annual meeting. Lyon, France.

October 2019. Poster presentation.

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5. Mackley MP, Fernandez NR, Fletcher B, Woolcott C, Fernandez CV. Revisiting the ethics of

phase 1 oncology trials in the era of personalized medicine: a systematic review. SIOP 2019

Annual meeting. Lyon, France. October 2019. Poster presentation.

6. Jibb LA, Tutelman PR, Chambers CT, Stinson JN, Parker JA, Irwin K, Witteman H,

Barwick M, Fernandez CV, Campbell F, Drake EK, Nathan PC, #KidsCancerPain

Parent/Patient Partners. A qualitative analysis of parents' knowledge needs related to child

cancer pain and its management. 12th International Symposium on Paediatric Pain. Basel,

Switzerland June 2019. poster presentation.

7. Tutelman PR, Chambers CT, Urquhart R, Fernandez CV, Heathcote LC, Noel M, Flanders A,

Guilcher GMT, Schulte F, Stinson JN, MacLeod J, Stern M. When “A Headache is Not Just a

Headache”: A Qualitative Examination of Parent and Child Experiences of Pain After

Childhood Cancer. Department of Pediatrics Research Day. April 2019. Winner of the Best

Research Presentation by a Postdoctoral Fellow/PhD Student.

8. Mackley MP, Fernandez NR, Fletcher B, Woolcott C, Fernandez CV. Revisiting the ethics of

phase 1 oncology trials in the era of personalized medicine: a systematic review. ASCO

annual meeting. June 2019. Chicago Ill. .

9. Mackley MP, Fernandez NR, Fletcher B, Woolcott C, Fernandez CV. Revisiting the ethics of

phase 1 oncology trials in the era of personalized medicine: a systematic review. Platform

presentation to Department of Pediatrics Research Day.23 April 2019. Winner of the Best

Research presentation by a Medical Student or Resident.

10. Salah Ali, Muhammad Ali, KY Chiang, Ahmed Naqvi, Sheila Weitzman, Rae Braeger, Paul

Gibson, Conrad Fernandez, Bruce Crooks, Tal Schechter, Joerg Krueger. Comparison of

hematopoietic stem cell transplantation conditioning regimens for pediatric HLH. Poster

presentation to ASPHO annual meeting. May 2019. New Orleans.

11. Maclellan, S Sokloenko, E Gray, C Fernandez, R Romao, TK Karakach, YY Chi. Urinary

Metabolomics in Wilms Tumor. Oral presentation. Soc Pediatr Urology Annual meeting. May

2019. Chicago, ILL

12. Jesse Sandberg, Ethan Smith, Fred Hoffer, Sabah Servaes, Yueh-Yun Chi, Elizabeth Mullen,

Elizabeth Perlman, Peter Ehrlich, James Geller, Jeffrey Dome, Conrad Fernandez, Geetika

Khanna Nephrogenic rest vs. small Wilms tumor: distinguishing clinical and imaging

characteristics. Society of Pediatric Radiology. May 2019. San Francisco, CA.

13. Kalapurakal JA, Paulino AC, Chi YY, Kim Y, Ji L, Ehrlich PF, Perlman EJ, Mullen EA,

Geller JI, Khanna G, Fitzgerald TJ, Laurie F, Tochner Z, Hamilton TE, Gow KW,

Shamberger RC, Grundy PE, Dome JS, Fernandez CV. Impact of radiation therapy on

patterns of relapse and survival in children with stage III favorable histology Wilms tumor.

Oral presentation ASTRO. San Antonio, TX. Oct 2018

14. Sharon E. Plon, Sarah Scollon, Steve Joffe, Jaclyn Biegel, Shashikant Kulkarni, George Miles

Conrad V Fernandez Pediatric MATCH Germline Reporting Committee, D. Williams

Parsons. Germline reporting in the NCI-COG Pediatric MATCH National Precision Oncology

Trial. Poster presentation Number 2838/W. American Society of Human Genetics. October

2018. San Diego, Ca.

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15. Tutelman, P.R., Chambers, C.T., Stinson, J.N., Parker, J.A., Irwin, K., Witteman, H., Barwick,

M., Fernandez, C., Jibb, L., Campbell, F., & Nathan, P. Evaluating the Engagement of

Patients and Parents as Research Partners in a Knowledge Translation Intervention to Improve

Children’s Cancer Pain Management. IASP 17th World Congress on Pain, Boston, MA. Sept

2018.

16. M-E Robinson, J Ma, N Alos, S Atkinson, D Cabral, R Couch, E A Cummings, J Feber R M

Grant, J Ho, J L Jaremko, B Lentle, M Matzinger, H Nadel, C Rodd, A Sbrocchi, N Shenouda,

R Stein, D Stephure, F Rauch, K Siminoski, L M Ward, and the Canadian STOPP

Consortium. The Incidence of Vertebral Fractures in Pediatric Nephrotic Syndrome in the Six

Years Following Glucocorticoid Initiation. American Society for Bone and Mineral Research

Conference. September 2018. Montreal, PQ.

17. Geller JI, Cost NG, Chi YY, Perlman E, Cajaiba M, Khanna G, Mullen E, Kalapurakal J,

Tracy E, Ehrlich PF, Dome J and Fernandez CV. Trial in Progress – Children’s Oncology

Group (COG) Study AREN 1721: A Randomized Phase 2 Trial of Axitinib/Nivolumab

combination therapy vs single agent Axitinib or Nivolumab for Translocation Renal Cell

Carcinoma (tRCC) across all age groups. Poster 17th Kidney Cancer Association annual

meeting. 2-3 November 2018. Miami, Fl.

18. James I. Geller, Nicholas G. Cost, Mariana Cajaiba, Yueh-Yun Chi, Elizabeth J. Perlman,

Yeonil Kim, , Elizabeth A. Mullen, Richard D. Glick, Geetika Khanna, Najat C. Daw, Peter F.

Ehrlich, Conrad V. Fernandez, Jeffrey S. Dome. A Prospective Study of Pediatric Renal

Cell Carcinoma: A Report From the Children’s Oncology Group (COG) Study AREN0321.

Poster the 17th Kidney Cancer Association annual meeting. 2-3 November 2018. Miami, Fl.

19. Murali Chintagumpala, Elizabeth Perlman, Yeonil Kim, Fred Hoffer, John Kalapurakal, Ann

Warwick, Robert Shamberger, Geetika Khanna, Tom Hamilton, Ken Gow, Arnold Paulino,

Eric Gratias, Elizabeth Mullen, James Geller, Paul Grundy, Conrad Fernandez, Michael L

Ritchey, Jeff Dome, and Peter Ehrlich. Outcomes based on histopathologic response to pre-

operative chemotherapy in children with bilateral wilms tumor-a prospective study (COG

AREN0534). SIOP annual meeting. Kyota, Japan. November 2018. Oral presentation.

20. Peter F Ehrlich, Murali M Chintagumpala, Yueh-Yun Chi, Frederic A Hoffer, Elizabeth J

Perlman, John A Kalapurakal, Ann Warwick, Robert C Shamberger, G Khanna, Tom E

Hamilton, Ken W Gow, Richard Glick, Arnold C Paulino, Eric J Gratias, Elizabeth A Mullen,

James I Geller, Paul E Grundy, Conrad V Fernandez , Michael L Ritchey, and Jeff S

Dome. Nephron Sparing Surgery and Outcomes of Bilaterally-Predisposed Unilateral Wilms

Tumors. A report from the Children’s Oncology Group Study ARENO534. Plenary.

American Pediatric Surgery Association meeting. Palm Desert, CA. May 2018.

21. Geller J, Cost N, Chi YY, Perlman E, Kim Y, Cajaiba M, Mullen E, Glick R, Khanna G, Daw

N, Ehrlich P, Fernandez CV, Dome JS. A prospective study of pediatric renal cell carcinoma:

A report from the Children’s Oncology Group. Oral presentation at the Annual meeting of

ASCO. Chicago, Ill. June 2018.

22. Parker, J.A., Chambers, C.T., Stinson, J.N., Tutelman, P.R., Drake, E.K., Barwick, M.,

Campbell, F., Fernandez, C.V., Irwin, K., Jibb, L., Nathan, P., Witteman, H. (2017, May).

The reach of the #KidsCancerPain Campaign: A partnership to improve parent awareness and

use of evidence-based pain management in children with cancer. 39th Annual Canadian Pain

Society Scientific Meeting, May 2018. Montreal, QC.

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23. Tutelman, P.R., Chambers, C.T., Stinson, J.N., Parker, J.A., Drake, E.K., Barwick, M.,

Campbell, F., Fernandez, C. V., Irwin, K., Jibb, L.., Nathan, P.C., & Witteman, H. (2018,

April). Making Cancer Less Painful for Kids: Partnering with an Online Cancer Education

Resource to Reach Parents with Evidence-Based Cancer Pain Information. In A. Kzazk,

Innovative interventions for children with cancer and their families. Workshop accepted for

presentation at the 2018 Society of Pediatric Psychology Annual Conference (SPPAC),

Orlando, Florida.

24. Iaboni DSM, Chi YY, Dome JS, Fernandez CV. Outcome of Wilms Tumor patients with

bone metastasis enrolled on National Wilms Tumor Studies 1-5: A report from the Children’s

Oncology Group. Accepted for oral presentation at the Department of Pediatrics Annual

Research Trainee Day. April 2018. Halifax, NS.

25. Parsons L, Mullen EA, Geller J, Chi YY, Khanna G, Glick R, Vallance K, Kim Y, Cajaiba

MM, Fernandez CV, Dome JS, Perlman EJ. Outcome Analysis of Stage 1 Epithelial

Favorable Histology Wilms tumors. Presented at the Annual meeting Society for Pediatric

Pathology. Vancouver, BC. March 2018

26. Goldstein JA, Jennings LJ, Chi YY, Mullen EA, Geller J, Vallance K, Fernandez CV, Dome

JS, Perlman EJ, Cajaiba MM. BRAF exon 15 mutations in the evaluation of well-

differentiated epithelial nephroblastic neoplasms in children. Presented at the Annual meeting

Society for Pediatric Pathology. Vancouver, BC. March 2018.

27. Lauhasurayotin S, Shabanova I, Li H, Dhanraj S, Zlateska B, Klaassen RJ, Fernandez C,

Cuvelier GDE, Wu JK, Pastore YD, Silva M, Lipton JH, Brossard J, Michon B, Abish S,

Steele M, Sinha R, Belletrutti MJ, Breakey VR, Jardine L, Goodyear L, Sung L, Shago M,

Cada M, Stephen SW and DrorY. Re-analysis of next generation sequencing gene panel data

by normalized coverage values reveals previously undetected copy number variations in

inherited bone marrow failure syndrome. Presented at the American Society of Hematology

annual meeting. Abstract 2460. Dec 2017.

28. JA Parker, CT Chambers, JN Stinson, PR Tutelman, E Drake, M Barwick, F Campbell, CV

Fernandez, K Irwin, L Jibb, P Nathan, & H Witteman. The Reach of the #KidsCancerPain

Campaign: A Partnership to Improve Parent Awareness and Use of Evidence-Based Pain

Management in Children with Cancer. Presented at the International Forum on Pediatric Pain

(IFPP). White Point, NS. October 2017.

29. Tutelman, P, Chambers, C., Stinson, J., Parker, J., Stinson, H., Barwick, M., Campbell, F.,

Fernandez, C., Irwin, K., Jibb, L., Nathan, P., & Witteman, H. The Implementation of a

Freely Available Smartphone App to Assess Pain and Its Impact in Children with Cancer.

Poster presented at the 2017 Society of Pediatric Psychology Annual Conference. March

2017.Portland, OR.

30. Sandberg J, Smith E, Cajaiba M, Servaes S, Mullen E, Ehrlich P, Geller J, Dome J, Fernandez

C, Khanna G. Pediatric renal medullary carcinoma - distinctive imaging findings: a report

from the Children's Oncology Group. SPR. Vancouver, BC. May 2017. Pediatr Radiol 2017;

47 (Suppl 1):S162.

31. MacLellan, Dawn L., Karakach, Tobias K., Romao, Rodrigo L.P., Fernandez Conrad V.

Urinary Metabolite alterations in Wilms’ Tumor. Oral presentation Society of Pediatric

Urology annual meeting, Montreal, PQ September 2017.

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32. LS Penney, E. Aberg, K. Harrison, J. Brock, C. Fernandez, J. Frazer. Beckwith-Wiedemann

Syndrome Caused by Non-Mosaic uniparental Disomy of the Complete Chromosome 11.

European Society of Human Genetics. 27-30 May, 2017. Copenhagen, Denmark.

33. Perri R. Tutelman, Christine T. Chambers, Jennifer N. Stinson, Jennifer A. Parker, Barwick,

M., Campbell, F., Fernandez, C., Irwin, K., Jibb, L., Nathan, P. & Witteman, H. Using

Thunderclap To Raise Awareness About #Kidscancerpain Over Social Media. Oral

presentation. SIOP annual meeting. October 2017. Washington, DC. Pediatr Blood Cancer

2017;64:226772.S80.

34. Najat C. Daw, Yueh-Yun Chi, Yeonil Kim, John A. Kalapurakal, Fredric A. Hoffer, James I.

Geller, Elizabeth J. Perlman, Peter F. Ehrlich, Elizabeth A. Mullen, Anne Warwick, Paul E.

Grundy, Eric Gratias, Deborah Ward, James R. Anderson, Rajkumar Venkatramani, Conrad

Fernandez and Jeffrey S. Dome on behalf of the AREN0321 Study Committee. Effect of

chemotherapy dosage on outcome in the treatment of stage II – IV diffuse anaplastic Wilms

tumor: results from the Children’s Oncology Group AREN0321 study. Oral presentation.

SIOP annual meeting. October 2017. Washington, DC. Pediatr Blood Cancer

2017;64:226772.S44.

35. Elizabeth Mullen, Elizabeth Perlman, Yueh-Yun Chi, David Dix, Eric Gratias, Julie Gastier-

Foster, Geetika Khanna, Peter Ehrlich, James Geller, John Kalapurakal, Conrad Fernandez,

Jeff Dome, COG Renal Tumors Committee. Impact of 1q status on outcomes of Stage IV

Favorable Histology Wilms Tumor (FHWT) patients treated on Children’s Oncology Group

(COG) Study AREN0533: on behalf of the Renal Tumor Committee. Oral presentation. SIOP

annual meeting. October 2017. Washington, DC. Pediatr Blood Cancer 2017;64:226772.S43.

36. E Smith , P Ehrlich, G Khanna, K Gow, T Hamilton, S Servaes, D Barnhart, R Glick, R

Dasgupta, F Ferrer, E Mullen, J Geller, C Fernandez, J Kalapurakal,E Gratias, J Dome, D

Dix. Feasibility of Complete Resection of Residual Lung Nodules after Chemotherapy in

Patients with Stage IV Favorable Histology Wilms Tumor (WT). A report from the COG

AREN0533 study. Oral presentation. SIOP annual meeting. October 2017. Washington, DC.

Pediatr Blood Cancer 2017;64:226772.S84.

37. James I. Geller, Yueh-Yun Chi, John A. Kalapurakal, Najat Daw, Yeonil Kim, John A.

Kalapurakal, Fredric A. Hoffer, Elizabeth J. Perlman, Peter F. Ehrlich, Elizabeth A. Mullen,

Anne Warwick, Arnold Paulino, Zelig Tochner, Kenneth Gow, Paul E. Grundy, Eric Gratias,

Deborah Ward, James R. Anderson, Conrad Fernandez and Jeffrey S. Dome on behalf of the

AREN0321 Study Committee. Rhabdoid Tumor: Results From The Children’s Oncology

Group Aren0321 Study. Oral presentation. SIOP annual meeting. October 2017. Washington,

DC. Pediatr Blood Cancer 2017;64:226772.S245.

38. Tutelman, P., Chambers, C., Stinson, J., Parker, J., Stinson, H., Barwick, M., Campbell, F.,

Fernandez, C., Irwin, K., Jibb, L., Nathan, P., & Witteman, H. (2017, May). Physical and

psychological interventions for pediatric cancer pain management. Poster presented at the

Canadian Pain Society 2017 Annual Scientific Meeting, Halifax, NS.

39. Tutelman, P, Chambers, C., Stinson, J., Parker, J., Irwin K, Barwick, M., Campbell, F.,

Fernandez, C., Irwin, K., Jibb, L., Nathan, P., & Witteman, H. Home-based management of

pediatric cancer pain. Poster presentation to the International Symposium on Pediatric Pain

(ISPP). July 2017. Kuala Lumpur, Malaysia.

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40. Iaboni DSM, Chi YY, Dome JS, Fernandez CV. Outcome of Wilms Tumor patients with

bone metastasis enrolled on National Wilms Tumor Studies 1-5: A report from the Children’s

Oncology Group. Poster presented at the annual meeting of ASPHO. Apr 26-29, 2017.

Montreal, PQ.

41. Tutelman, P, Chambers, C., Stinson, J., Parker, J., Stinson, H., Barwick, M., Campbell, F.,

Fernandez, C., Irwin, K., Jibb, L., Nathan, P., & Witteman, H. The Implementation of a

Freely Available Smartphone App to Assess Pain and Its Impact in Children with Cancer.

Poster presented at the 2017 Society of Pediatric Psychology Annual Conference. March

2017.Portland, OR.

42. V.N. Rahimzadeh , C. Schickhardt , J. Friedman , M.C. Cornel , S. Pfister , D. Avard , D.F.

Vears , K. Sénécal , W. Pinxten , C. Fernandez , S. Plon , A. Thorogood , B.M. Knoppers , E.

Winkler. The sharing of genomics and health-related data from children: a case of big data and

little ethics? Presented at the 66th Annual Meeting of The American Society of Human

Genetics, Program number 3059. October 2016, Vancouver, Canada.

43. Ketan Kulkarni, Zeina Asyyed, Tamara MacDonald, Victoria Price, Conrad Fernandez,

Mark Bernstein. Body Mass Index is independently associated with symptomatic venous

thrombotic events in pediatric oncology patients: A study from Maritimes, Canada. ISTH.

Montpellier, France. May 2016.

44. Ketan Kulkarni, Tamara MacDonald, Carol Digout, Krista Rigby, Vicky Price, Conrad

Fernandez, Mark Bernstein. Age, type of cancer and use of asparaginase are independently

associated with requirement of tissue plasminogen activator for episodes of central venous

catheter dysfunction in pediatric oncology patients. E poster presented at SIOP, Dublin,

Ireland. October 2016.

45. Forbrigger Z, Digout C, Fernandez CV, Bernstein M, Kulkarni K. Significantly Inferior year

Overall and Event Free Survival In Pediatric Oncology Patients with Symptomatic Venous

Thrombotic events (sVTE) As Compared To Those Without sVTE: A Population Based Study

From Maritimes, Canada. Accepted to ASH San Diego Dec 2016. Oral presentation.

46. Halton J, Ma J, Babyn P, Kaste S, Matzinger, MA, Abish S, Barr R, Cairney E, Dix DB,

Fernandez CV, Grant, RM, Israels S, Laverdière C, Lewis, V, Wilson B, Ward LM and the

Canadian STOPP Consortium. The prevalence of osteonecrosis is high after treatment for

acute lymphoblastic leukemia. E poster presented at SIOP, Dublin, Ireland. October 2016.

47. Ashley Geerlinks, Carol Digout, Mark Bernstein, Andrew Chan, Shannon MacPhee, Chantale

Pambrun, Gloria Gallant, Lois Wyatt, Elizabeth Irving, Conrad Fernandez, Victoria Price.

Improving time to antibiotics for pediatric oncology patients with febrile neutropenia by

applying Lean process improvement methodology. E poster presented at SIOP, Dublin,

Ireland. October 2016.

48. Najat C. Daw, Yueh-Yun Chi, Elizabeth A. Mullen, John A. Kalapurakal, Jing Tian, Geetika

Khanna, James I. Geller, Elizabeth J. Perlman, Peter F. Ehrlich, Anne Warwick, Conrad V.

Fernandez, Paul E. Grundy, and Jeffrey S. Dome on behalf of the AREN0321 Study

Committee. Treatment of stage I focal or diffuse anaplastic Wilms Tumor: A report from the

Children’s Oncology Group. Oral platform presented at SIOP Dublin Ireland October 2016.

49. Fernandez CV, Hebb AO, Bouchard M, Walling SA. Return of genomic results relevant to

personalized decision-making in brain tumor patients. Pilot questionnaire results. E poster.

Presented at SIOP Dublin Ireland October 2016.

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50. Kathryn A. Birnie KA, Chambers CT, Chorney J, Fernandez CV, McGrath PJ. Family

Functioning and Parent-Child Coping During Children’s Acute Pain. The Canadian Pain

Society Annual meeting. Vancouver. BC. May 2016.

51. Marissa A. LeBlanc, Amanda Bettle, Jason Berman, Victoria Price, Chantale Pambrun, Zhijie

Yu, Marilyn Tiller, Christopher R. McMaster, Conrad V. Fernandez. Glycine and folic acid

supplementation does not ameliorate transfusion dependence in congenital sideroblastic

anemia. Canadian Statistical and Human Genetics meeting. Halifax, NS April 2016. Poster

presentation.

52. Arbiv OA. Zlateska B, Klaassen RJ, Fernandez C, Yanofsky R, Wu J, Silva M, Lipton JH,

Brossard J, Michon B, Abish S, Steele M, Sinha S, Belletrutti MJ, Breakey VR, Jardine L,

Goodyear L, Sung L, Wahala M, Ghemlas IA, Li H, Cada M, Dror Y. Molecular analysis of

Diamond Blackfan anemia and genotype-phenotype correlation: Experience from the

Canadian Inherited Marrow Failure Registry. Diamond Blackfan Anemia International

Consensus Conference, Atlanta, GA, March 5-7, 2016 SRA

53. Zlateska B, Klaassen R, Fernandez CV, Yanofsky R, Wu J, Silva M, Lipton JH, Brossard J,

Abish S, Steele M, Jardine L, Sinha R, Breakey V, Michon B, Pastore Y, Goodyear L,

Beletrutti M, Waespe N, Dhanraj S, Li H, Cada M, Sung L, Dror Y. Bone Marrow

Characteristics In Shwachman-Diamond Syndrome And Hematological Complications. 8th

International Congress on Shwachman-Diamond Syndrome, Verona, Italy, April 17-20, 2016.

SRA

54. Crooks B, Doyle J, Fernandez C, Spicer C, Shea S. Defending the Donor: When at-Risk

Siblings Cannot Consent. Tandem Bone Marrow Transplant meetings. Hawaii. Feb 2016.

Poster presentation.

55. Spicer C, MacLellan D, Fraser R, Crooks BNA, Fernandez CV. Isolated penile meatal

chronic GVHD in a boy following allogeneic transplant for JMML. Tandem Bone Marrow

Transplant meetings. Hawaii. Feb 2016. Poster presentation.

56. Ma J. Hay, B. Martin, B. Wilson, P.M. Miettunen, J. L. Jaremko, A. M. Huber, K Houghton, J.

Ho, R. Grant, D.B. Dix, M. Charron, R. Barr, T. Blydt-Hansen, L.M Ward and the Canadian

STOPP Consortium. Contrasting bone fragility at diagnosis between active and inactive

children with Acute Lymphoblastic Leukemia. Pediatric Work Physiology (PWP) Conference.

Utrecht, Netherlands. September 2015. Published in: Pediatric Exercise Science Volume 28

issue 4 Suppl 1 2016 [doi 10.1123]

57. Nicolas Waespe, Santhosh Dhanraj, Manju Wahala, Tom Enbar, Bozana Zlateska, Hongbing

Li, Robert Klaassen, Conrad V Fernandez, Rochelle A Yanofsky, John Wu, Yves Pastore,

Mariana Silva, Jeff H Lipton, Josee Brossard, Bruno Michon, Sharon Abish, MacGregor

Steele, Roona Sinha, Mark Belletrutti, Vicky R. Breakey, Lawrence Jardine, Lisa Goodyear,

Liat Kofler, Michaela Cada, Lillian Sung, Mary Shago, Stephen Scherer, Yigal Dror. Copy

number variants underlying inherited bone marrow failure syndromes. Blood 2015; 126 (23):

2416 ASH annual meeting. Orlando, FLD. Dec 2015.

58. Omri A Arbiv, Bozana Zlateska, Robert Klaassen, Conrad V Fernandez, Rochelle Yanofsky,

John Wu, Nancy Robitaille, Mariana Silva, Jeff H Lipton, Jossee Brossard, Bruno Michon,

Sharon Abish, MacGregor Steele, Roona Sinha, Mark Belletrutti, Vicky Breakey, Lawrence

Jardine, Lisa Goodyear, Lillian Sung, Manju Wahala, Ibrahim Ghemlas, Hongbing Li,

Michaela Cada, Yigal Dror. Molecular analysis of Diamond Blackfan anemia and genotype-

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phenotype correlation; experience from the Canadian Inherited Marrow Failure Registry.

Blood 2015; 126 (23): 3621. ASH annual meeting. Orlando, FLD. Dec 2015.

59. Zeina Asyyed, MacDonald T, Price V, Fernandez C, Bernstein M, Kulkarni K. Assessing

Incidence of and Risk Predictors Ascertained at Diagnosis for Symptomatic Venous

Thrombotic Events in Pediatric Cancer Patients: a 20-Year Population Based Study from the

Maritimes, Canada. Accepted to ASH annual meeting. Orlando, FLD. Dec 2015. Selected for

ASH Abstract Achievement Award and 2016 Highlights of ASH.

60. Lisa Borretta, Tamara MacDonald, Vicky Price, Conrad Fernandez, Mark Bernstein, Ketan

Kulkarni. Management Experience of Peripherally inserted central catheters in Pediatric

Oncology Patients: A 15 year Population-Based Study from Maritimes, Canada. Accepted to

ASH annual meeting. Orlando, FLD. Dec 2015.

61. Ketan Kulkarni, Tamara MacDonald, Vicky Price, Conrad Fernandez, Jason Berman,

Pamala Cox, Mark Bernstein, Bruce Crooks, Samina Afzal, Margaret Yhap. Peripherally

inserted central catheters are significantly associated with symptomatic venous thrombotic

events in pediatric oncology patients: a population based study form Maritimes, Canada.

Submitted to SIOP. Cape Town, S Africa Oct 2015. Pediatr Blood Cancer.2015;62:S293.

62. Ketan Kulkarni, Tamara MacDonald, Carol Digout, Victoria Price, Pamala Cox, Conrad

Fernandez, Mark Bernstein, Margaret Yhap. Symptomatic venous thrombotic events are

associated with significantly increased requirement of central venous catheters in pediatric

cancer patients: a population-based study from Maritimes, Canada. Submitted to SIOP. Cape

Town, S Africa Oct 2015. Pediatr Blood Cancer.2015;62:S168

63. Birnie KA, Chambers CT, Chorney J, Fernandez CV, McGrath P. Predicting child pain

outcomes from child and parent pain catastophizing. Accepted to the International Forum of

Pediatric Pain (IFPP) in White Point, NS October 2015.

64. Bozana Zlateska, Robert Klaassen, Conrad V Fernandez, Rochelle Yanofsky, John Wu,

Yves Pastore, Mariana Silva, Jeff H Lipton, Jossee Brossard, Bruno Michon, Sharon Abish,

McGregor Steele, Roona Sinha, Mark Belletrutti, Vicky Breakey, Lawrence Jardine, Lisa

Goodyear, Michaela Cada, Ibrahim Ghemlas, Hongbing Li, Yigal Dror. Genotyping strategies

in Fanconi Anemia patients in Canada. The 27th Annual Fanconi Anemia Research Fund

Scientific Symposium, Toronto, Ontario, September 17-20, 2015.

65. Fernandez CV, EJ Perlman, EA Mullen, YY Chi, TE Hamilton, KW Gow, FA Ferrer, D

Barnhart, PF Ehrlich, G Khanna, J Kalapurakal, T Bocking, V Huff, Q An, JI Geller, PE

Grundy JR Anderson, JS Dome, RC Shamberger for the AREN0532 committee. Clinical

outcome and biological predictors of relapse following nephrectomy only for Very Low Risk

Wilms tumor. A report from Children’s Oncology Group AREN0532. Accepted for poster

with discussion. American Society of Clinical Oncology Annual meeting. Chicago, Ill. June

2015. J Clin Oncology 2015;33(supp;abstract 10023).

66. Ketan Kulkarni, Tamara MacDonald, Vicky Price, Pamala Cox, Conrad Fernandez, Mark

Bernstein, Peggy Yhap. Blood group, Age and Type of cancer are independently associated

with symptomatic venous thrombotic events in pediatric cancer patients: A population based

study from Maritimes, Canada. Accepted ISTH 2015. Toronto, ON, June 2015.

67. Dix D, Fernandez CV, Chi Y-Y, Anderson J, Mullen E, Geller J, Gratias E, Khanna G,

Kalapurakal J, Perlman EJ, Seibel N, Ehrlich P, Malogolowkin M, Grundy P, Dome J on

behalf of the AREN0533 Study Committee. Treatment of favorable histology Wilms Tumor

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with combined loss of heterozygosity of chromosome 1p and 16q: A report from the

Children’s Oncology Group studies AREN0532 and AREN0533. American Society of Clinical

Oncology Annual meeting. Chicago, Ill. June 2015. J Clin Oncol 2015; 33(suppl;abstract

10009). ASCO Post Evening News Spotlight

https://urldefense.proofpoint.com/v2/url?u=http-3A__cl.s4.exct.net_-3Fqs-

3Df2fc978d4a95ab7b16caae7b167f165d2e4cff40e71ad628f5a0aa127819f287&d=BQMCAg&

c=Zoipt4Nmcnjorr_6TBHi1A&r=3bVQWgTcgONyQpCBLpHmUw&m=GMCR7mapD6m6d

jyy_QBi5DM8eBQAtc2EcO0WSGIML_Y&s=tUKqM6N1Y6Q4-

fh4SRM6A_gqO4zYm1iip5AuPmPp6Gs&e=

68. CV Fernandez, EA Mullen, PF Ehrlich, J Kalapurakal, G Khanna, YY Chi, E Perlman, A

Paulino, TE Hamilton, KW Gow, FA Ferrer, Z Tochner, FA Hoffer, J Withycombe, R

Shamberger, JI Geller, JR Anderson, PE Grundy, J Dome for the AREN0532 study committee.

Outcome and prognostic factors in COG stage III Favorable Histology Wilms Tumor treated

with doxorubicin, actinomycin , vincristine and radiotherapy. A report from the Children’s

Oncology Group study AREN0532. American Society of Clinical Oncology Annual meeting.

Chicago, Ill. June 2015. J Clin Oncology 2015;33(suppl;abstract 10010).

69. Ashley Geerlinks, Carol Digout, Mark Bernstein, Andrew Chan, Shannon MacPhee, Chantale

Pambrun, Gloria Gallant, Amy Long, Lois Wyatt, Elizabeth Irving, Conrad Fernandez,

Victoria Price. Improving time to antibiotics for pediatric oncology patients with febrile

neutropenia by applying lean process improvement methodology. Platform presentation A

Geerlinks. Department of Pediatrics Research Day. April 2015. Winner best presentation.

70. Ashley Geerlinks, Thomas Issekutz, Mark Bernstein, Victoria Price, Samina Afzal, Bruce

Crooks, Jason N Berman, Robert Fraser, Conrad V Fernandez. Severe, Persistent and Fatal

T-cell Immunodeficiency Post Infantile Leukemia Therapy. Poster presentation Department of

Pediatrics Research Day. April 2015.

71. M.A. LeBlanc, A. Brown, D. Gaston, M. Nightingale, N. Hamel, J. Zhang, E. Lalonde, J.

Majewski, W. Foulkes, A. Orr, C.V. Fernandez, CR. McMaster, K. Bedard. Identification of

the genomic mutation causing a rare inherited form of kidney cancer. Poster presentation.

American Society of Pediatric Hematology Oncology Annual Meeting. Phoenix, AZ. May

2015.

72. Geerlinks A, Issekutz T, Bernstein M, Price V, Berman JN, Crooks B, Afzal S, Fraser R,

Fernandez CV. Persistent and Fatal T cell Immunodeficiency Post Infantile Leukemia

Therapy American Society of Pediatric Hematology Oncology Annual meeting. Phoenix, AZ.

May 2015.

73. Ghotra SK, Pambrun C, Fernandez CV, Parkash S, Koupaei R, Jangaard K. Congenital

Methaemoglobinemia due to Hb F-M-Fort Ripley in a Preterm Newborn. Poster presentation

Department of Pediatrics Trainee Research Day. Halifax, NS. April 2015.

74. Birnie KA, Chambers CT, Chorney J, Fernandez CV, McGrath P. Predicting child pain

outcomes from child and parent pain catastophizing, anxiety and distress. Poster presentation

Department of Pediatrics Trainee Research Day. Halifax, NS. April 2015.

75. Birnie KA, Chambers CT, Chorney J, Fernandez CV, McGrath PJ.. Predicting child pain

outcomes from child and parent pain catastrophizing, anxiety, and distress. Canadian Pain

Society annual meeting. Charlottetown, PEI. May 2015.

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76. Noel M, Boerner KE, Birnie KA, Caes L, Parker JA, Chambers CT, Fernandez CV, Lee K.

The Ethical Acceptability of Deception in Pediatric Psychology Research. Society of Pediatric

Psychology Annual Conference. San Diego. Apr 2015.

77. Ghotra SK, Pambrun C, Fernandez CV, Parkash S, Koupaei R, Jangaard K. Congenital

Methaemoglobinemia due to Hb F-M-Fort Ripley in a Preterm Newborn. Presented at

Canadian National Perinatal Meeting February 2015.

78. Ghemlas I, Li H, Zlateska B, Klaassen R, Fernandez CV, Yanofsky RA, Wu J, Pastore Y,

Silva M, Lipton JH, Brossard J, Bruno M, Abish S, Steele M, Sinha R, Belltrutti M, Breaky V,

Jardine L, Goodyear L, Sung L, Dhanraj S, Reble E, Wagner A, Beyene J, Ray P, Meyn S,

Cada M, Dror Y. Application of novel next generation sequencing gene panel assay to genetic

and clinical diagnosis of inherited bone marrow failure syndromes. Oral presentation.

American Society of Hematology. San Francisco. Blood 2014 (Dec);124:257; published ahead

of print Dec 5, 2014.

79. Kalbfleisch M, Cada M, Klaassen R, Fernandez CV, Yanofsky RA, Wu J, Pastore Y, Silva

M, Lipton JH, Brossard J, Michon B, Abish S, Steele M, Sinha R, Belletrutti M, Breakey V,

Jardine L, Goodyear L, Sung L, Bayene K, Finkelstein Shechter T, Zlateska B, Dror Y. Risk

factors for poor survival after hematopoietic stem cell transplantation in inherited bone marrow

failure syndromes. Poster presentation. American Society of Hematology. San Francisco. Blood

2014 (Dec);124:2592; published ahead of print Dec 5, 2014.

80. M.A. LeBlanc, A. Brown, D. Gaston, M. Nightingale, N. Hamel, J. Zhang, E. Lalonde, J.

Majewski, W. Foulkes, A. Orr, C.V. Fernandez, CR. McMaster, K. Bedard. Identification of

the genomic mutation causing a rare inherited form of kidney cancer. Oral presentation. The

BHCRI Biannual Research Meeting. Halifax, NS. 4 Nov 2014.

81. Birnie, K.A., Chambers, C.T., Chorney, J., Fernandez, C.V., & McGrath, P.J.Relationships

between anxiety, the parent-child dyad, and parenting during a conflict discussion task. Poster

presentation. Department of Psychiatry Research Day. Halifax, NS. 24 Oct 2014.

82. Romao R, Pierce J, Afzal S, Davies D, Fernandez CV, Bernstein M, Lorenzo A. Surgical

resection and buccal mucosa vaginoplasty for local control in botryoid rhabdomyosarcoma.

Poster presentation. Canadian Association of Pediatric Surgery Annual Meeting. Toronto,

ON. Oct 2014.

83. R Romao, J Pierce, S Afzal, D Davies, CV Fernandez, M Bernstein, A Lorenzo. Surgical

resection and buccal mucosa vaginoplasty for local control in botryoid rhabdomyosarcoma.

Poster presentation. SIOP Annual Meeting. Toronto, ON. Oct 2014. Pediatric Blood &

Cancer 2014:61(S2):1455.

84. MacDonald T, Kulkarni K, Berstein M, Fernandez C, Yhap M. Significantly higher incidence

of allergic reactions for intravenous peg-asparaginase as compared to intramuscular peg-

asparaginase in children with high risk acute lymphoblastic leukemia. Poster presentations.

SIOP Annual Meeting. Toronto, ON. Oct 2014. Pediatric Blood & Cancer 2014:61(S2):664.

85. Kulkarni K, MacDonald T, Price V, Fernandez C, Berman J, Bernstein M, Crooks B, Afzal

S, Yhap M. Establishing incidence and characteristics of symptomatic venous thrombotic

events in pediatric cancer patients in the Maritimes, Canada: a population based study. Poster

presentation. SIOP Annual Meeting. Toronto, ON. Oct 2014. Pediatric Blood & Cancer

2014:61(S2):745.

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86. Mullen E, Geller J, Gratias E, Perlman E, Ehrlich P, Khanna G, Najaro A, He Y, Hamilton T,

Ferrer F, Glick R, Gow K, Barnhardt D, Kandel J, Dasqupta R, Hill A, Hoffer F, Serveas S,

Gastier-Foster J, Huff V, Fernandez C, Grundy P, Dome J. First 4000 patients on Children’s

Oncology Group (COG) Renal Tumor (RT) Risk Stratification and Biology Protocol

AREN03B2. Oral presentation. SIOP Annual Meeting. Toronto, ON. Oct 2014. Pediatric

Blood & Cancer 2014:61(S2):364.

87. Howard AF, Hasan H, Fernandez C, Lo A, Pritchard S, Nelson M, Bobinski MA, Goddard K.

Canadian initiatives to recall childhood cancer survivors lost to medical follow up. Oral

Presentation. European Symposium on Late Complications after Childhood Cancer.

Edinburgh, UK. Sept 2014.

88. Paulino AC, Gratias EJ, Fernandez CV, Ehrlich PF, Gow KW, Naranjo A, Perlman EJ, Dome

JS, Kalapurakal JA Outcomes and Patterns of Failure after Preoperative Chemotherapy for

Favorable Histology Wilms Tumor on National Wilms Tumor Study (NWTS) – 5. Oral

presentation. ASTRO (American Society for Radiation Oncology). San Francisco, CA. Sept

2014.

89. Spicer C, MacLellan D, Fraser R, Crooks BNA, Fernandez CV. Isolated penile meatal

chronic GVHD in a boy following allogeneic transplant for JMML. Poster presentation.

Canadian Bone Marrow Transplant Group Annual Meeting. Halifax, NS. June 2014.

90. Bettle A, Latimer M, Hughes J, Fernandez C. Parental involvement to reduce pain in children

with acute lymphoblastic leukemia. Poster presentation. Integrated Health Research Training

Partnership Graduate Student Research Day. Halifax, NS. May 2014.

91. Brown A, LeBlanc MA, Gaston D, Majewski J, Foulkes W, Fernandez CV, McMaster CR,

Bedard K. Epigenetic mechanisms potentially influencing gene expression in a rare form of

familial Wilms Tumour. Poster discussion. European Human Genetics Conference. Milan,

Italy. May 2014. Eur J Hum Genetics2014;22(suppl 1):320 ( P16.77.S).

92. Gillett RM, Gaston D, Nightingale M, MacGillivray C, Fernandez CV, Hayne O, Couban S,

McMaster CR, Greer W, Bedard K. Elucidation of genetic changes associated with a rare form

of familial myelodysplastic syndrome. European Human Genetics Conference. Milan, Italy.

May 2014. Eur J Hum Genetics2014;22(suppl 1):472 ( J12.086).

93. Brown A, LeBlanc MA, Gaston D, Majewski J, Foulkes W, Fernandez CV, McMaster CR,

Bedard K. Epigenetic mechanisms potentially influencing gene expression in a rare form of

familial Wilms Tumour. Poster presentation. Department of Pathology Research Day.

Halifax, NS. May 2014.

94. Gaston D, Whitehouse S, Nightingale M, MacGillivary C, Orr A, Steele P, Rideout AL, Huang

WY, Greer W, Majewski J, Dyack S, Ludman M, Penney LS, Fernandez CV, McMaster CR,

Bedard K. Mutations in MAP3K6 are associated with familial gastric cancer. Oral

presentation. Department of Pathology Research Day. Halifax, NS. May 2014.

95. Gillett RM, Gaston D, Nightingale M, MacGillivray C, Fernandez CV, Hayne O, Couban S,

McMaster CR, Greer W, Bedard K. Elucidation of genetic changes associated with a rare form

of familial myelodysplastic syndrome. Poster presentation. Department of Pathology Research

Day. Halifax, NS. May 2014.

96. MacLellan D, Karakach T, Naranjo A, Fernandez CV. Urinary metabolite profiling by

nuclear magnetic resonance spectroscopy distinguishes control patients from wilms tumor

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(WT) and WT tumor by stage. Print publication. American Society of Clinical Oncology

Annual Meeting. Chicago. May 2014.

97. Mullen E, Geller J, Gratias E, Perlman E, Ehrlich P, Khanna G, Najaro A, He Y, Hamilton T,

Ferrer F, Glick R, Gow K, Barnhardt D, Kandel J, Dasqupta R, Hoffer F, Serveas S,

Fernandez C, Grundy P, Dome J. Real Time Central Review: A report of the first 3000

patients enrolled on the Children’s Oncology Group Renal Tumor Biology and Risk

Stratification Protocol AREN03B2. Platform presentation. American Society of Clinical

Oncology Annual Meeting. Chicago. May 2014.

98. Gaston D, Hansford S, Oliveira C, Nightingale M, Pinheiro H, Macgillivray C, Kaurah P,

Rideout A, Steele P, Soares G, Huang W, Whitehouse S, Blowers S, LeBlanc MA, Jiang H,

Greer W, Samuels M, Orr A, Fernandez CV, Majewski J, Ludman M, Dyack S, Penney L,

McMaster CR, Huntsman D, Bedard K. Germline mutations in MAP3K6 predispose to familial

gastric cancer. Platform presentation. European Human Genetics Conference. Milan, Italy.

May 2014. Eur J Hum Genetics2014;22(suppl 1):29 (C08.3).

99. Geerlinks A, Digout C, Bernstein M, Chan A, MacPhee S, Pambrun C, Irving E, Wyatt L,

Gallant G, Long A, Wilson K, Fernandez C, Price V Improving time to antibiotics for

pediatric oncology patients with febrile neutropenia by applying lean process improvement

methodology. Poster presentation. American Society of Pediatric Hematology Oncology

Annual Meeting. Chicago. May 2014.

100. Higgins KS, Chambers CT, Birnie K, Fernandez CV. Offering Parents Individualized

Feedback from Psychological Testing Conducted with Children for Research Purposes:

Perspectives of Canadian Researchers and REB Members. Poster presentation. Department of

Pediatrics Research Trainee Day 2014. Halifax, NS. April 2014

101. Zlateska B, Li H, Ghemlas I, Klaassen R, Fernandez CV, Yanofsky R, Wu J, Pastore Y, Silva

M, Lipton J, Brossard J, Michon B, Abish S, Steele M, Sinha R, Belletrutti M, Breakey V,

Jardine L, Goodyear L, Wagner A, Cada M, Dror Y. Genotyping strategies for Diamond

Blackfan Anemia patients in Canada. DBA meeting. Atlanta GA. March 2014.

Haematologica [0390-6078] Zlateska B. yr:2014 vol:99 pg:385 -385

102. Cataudella D, Morley T, Fernandez C, Johnston D, Sung L, and Zelcer S. Development of the

pediatric supportive care scale (PSCS): preliminary content validation. POGO Annual

Meeting. Toronto, ON. Nov 2013.

103. Sénécal K, Knoppers BM, Rahimzadeh V, Fernandez CV, Sinnett D, Boycott KM. Statement

of Principles on the Return of Research Results and Incidental Findings in Paediatric

Research: A Multi-site Consultative Process. POGO Annual meeting. Toronto, ON. Nov

2013.

104. Birnie K, Chambers C, Chorney J, Fernandez CV, McGrath P. Influence of child and parent

pain catastrophizing and anxiety on child experimental pain outcomes. Department of

Psychiatry Annual Research Day. Halifax, NS. Nov 2013.

105. Yorke J, Fernandez C, Morash B, Dyack S. How individuals with a chromosome deletion

can reveal candidate genes for congenital anomalies. Annual Department of Pediatrics

Trainee Research Day. Halifax, NS. April 2013.

106. Fernandez CV, Bouffet E, Malkin D, Jabado N, O’Connell C, Avard D, Knoppers K,

Boycott K, Sorensen P, Orr AC, McMaster C. Attitudes to the Return of Incidental and

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Targeted Genomic Findings Obtained in a High Risk Pediatric Cancer versus an Inherited

Genetic Condition Research Setting. J Clin Oncol 2013;31 (suppl; abstr 10066).

107. Senecal K, Knoppers BM, Avard D, Fernandez C. Returning research results and incidental

findings: challenges for the health care system. Canadian Association Health Services Policy

Research. Vancouver, BC. May 2013.

108. Kleiderman E, Avard D, Knoppers B, Fernandez C and Boycott K. Parental Views on

Returning Incidental Findings from Genetic Research to Children: Is it in the Child’s Best

Interest? Canadian Bioethics Society Annual Meeting. Banff, ALTA. May 2013.

http://www.cbs-scb2013.ca/posters.php

109. Senecal K, Levesque E, Fernandez C, Tasse AM, Zawati M, Knoppers BM, Avard D.

Statement of principles on the return of research results and incidental findings. Canadian

Bioethics Society Annual meeting. Banff, ALTA. May 2013. http://www.cbs-

scb2013.ca/posters.php

110. Senecal K, Levesque E, Fernandez C, Tasse AM, Zawati M, Knoppers BM, Avard D.

Statement of principles on the return of research results and incidental findings. Canadian

Association of Research Ethics Board. Annual Meeting. Calgary, ALTA. April 2013.

111. Knoppers BM, Avard D, Fernandez C, Longo C, Boycott K. Comparison of Parental and

Researcher Perceptions on the Return of Incidental Findings from Genetic Research to

Children. International Cancer Genome Consortium Meeting. Heidelberg, Germany.

December 2012.

112. Berman JN, Fernandez-Murray JP, Nasrallah GK, Fernandez CV, Jarrar AB, Coombs AJ, and

McMaster CR. Glycine supplementation – a novel therapeutic strategy for congenital

sideroblastic anemia. Proceedings of the Annual meeting of the American Society of

Hematology. Atlanta, GA USA. Dec 2012. https://ash.confex.com/ash/2012/webprogram/

Paper49165.html

113. Fernandez CV, Strahlendorf C, Avard D, Knoppers K, O’Connell C, Malkin D, Jabado N,

Boycott K, Sorenson P. Attitudes of Researchers to the Return to Participants of Incidental and

Targeted Genomic Findings Obtained in a Research Setting. Proceedings of the Annual

meeting of the American Society of Hematology. Atlanta, GA USA. Dec 2012.

(https://ash.confex.com/ash/2012/webprogram/Paper46954.html).

114. Cada M, Segbefia CI, Klaassen R, Fernandez CV, Yanofsky R, Wu J, Champagne J, Silva M,

Lipton JH, Brossard J, Samson Y, Abish S, Steele M, Ali K, Dower N, Athale U, Jardine L,

Hand JP, Odame I, Canning P, Allen C, Sung L, Beyene J, Dror Y. Outcome and Clinical

Characteristics of Clonal and Malignant Myeloid Transformation in Inherited Bone Marrow

Failure Syndromes. Proceedings of the Annual Meeting of the American Society of

Hematology. Atlanta, GA USA. Dec 2012.

https://ash.confex.com/ash/2012/webprogram/Paper51339.html

115. Bartlett G, Avard D, MacGibbon B, Page M, Fernandez CV, Palmour R, Secko D, Knoppers

B. Direct-to-Consumer Genomic Testing in Children: Pilot Survey to Assess Health

Professionals’ Experiences. 40th North American Primary Care Research Group Annual

Meeting. New Orleans, Louisiana USA. Dec 2012.

116. Leblanc MA, Nightingale M, Gaston D, Majewski J, Orr A, Fernandez CV, McMaster CR,

Bedard K. Identification of the genomic mutation causing a rare inherited form of childhood

kidney cancer. Gairdner Foundation meeting. Ottawa, ON. November 2012.

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117. Birnie KA, Chambers CT, Cummings EA, Fernandez CV, Finley GA, Forgeron PA, Latimer

MA, McGrath PJ. Agreement between hospitalized children and parents’ ratings of pain

intensity and pain treatment threshold. IWK Interdisciplinary Research Conference. Halifax,

NS. November 2012.

118. Cada M, Segbefia CI, Klaassen R, Fernandez CV, Yanofsky R, Wu J, Champagne J, Silva

M, Lipton JH, Brossard J, Samson Y, Abish S, Steele M, Ali K, Dower N, Athale U, Jardine

L, Goodyear L, Odame I, Canning P, Zlateska B, Sung L, Beyene J, Dror Y. Clonal and

malignant myeloid transformation in inherited bone marrow failure syndromes. Poster

presentation. European Working Group of MDS and JMML in Childhood – 6th International

Symposium on MDS and Bone Marrow Failure Syndromes in Childhood. Prague, Czech

Republic, Nov 2012.

119. Mullen EA, Gooskens SLM, Hamilton TE, vanden Heuvel-Eibrink MM, Green DM, Grundy

PE, Daw NC, Dome JS, Fernandez CV, Children’s Oncology Group. Sinusoidal obstruction

syndrome during treatment for renal tumors on NWTS3, 4 and 5: Treatment and Outcome.

SIOP 2012 Annual Meeting. London, UK. Oct 2012. Pediatric Blood and Cancer 2012;59

(6):1010-1011.

120. Ferrer F, Herbst KW, Fernandez CV, Khanna G, Mullen EA, Dome JS, Shamberger RC,

Ritchey ML, Ehrlich P. Image-based Feasibility of Renal Sparing Surgery for Low Volume

Unilateral Wilms Tumors. American Academy of Pediatrics Annual Meeting. New Orleans,

LA. Oct 2012.

121. Leblanc MA, Nightingale M, Gaston D, Majewski J, Orr A, Fernandez CV, McMaster CR,

Bedard K. Identification of the genomic mutation causing a rare inherited form of childhood

kidney cancer. Department of Pathology Research Day. Halifax, NS. May 2012.

122. Chen PL, Greer W, Fernandez C, McMaster CR, Bedard K. Development of a cell culture

model for Charcot-Marie Tooth Disease – a functional study of the LRSAM1 protein.

Department of Pathology Research Day. Halifax, NS. May 2012.

123. Gaston D, Orr A, Fernandez CV, McMaster C, Bedard K. Next-Gen Sequencing, Systems

Biology, and the Data Deluge: Identifying Causative Genes of Rare Diseases in the Post-

Genomics Era. Department of Pathology Research Day. Halifax, NS. May 2012.

124. Birnie KA, Chambers CT, McGrath PJ, Fernandez CV, Chorney J. The influence of parent-

child factors on communication during painful experiences: A dissertation proposal. Poster

presentation. Canadian Pain Society Annual meeting. May 2012, Whistler BC.

125. Ferrer F, Ehrlich P, Shamberger R, Fernandez CV. Image-based Feasibility of Renal Sparing

Surgery for Low Volume Unilateral Wilms Tumors. American Urological Association Annual

Meeting. Atlanta, GA. May 2012.

126. Birnie KA, Chambers CT, Cummings EA, Fernandez CV, Finley GA, Forgeron PA, Latimer

MA, McGrath PJ. Agreement between hospitalized children and parents’ ratings of pain

intensity and pain treatment threshold. Poster presentation. Canadian Pain Society Annual

meeting. Whistler BC. May 2012.

127. Birnie KA, Chambers CT, Cummings EA, Fernandez CV, Finley GA, Forgeron PA, Latimer

MA, McGrath PJ. Agreement between hospitalized children and parents’ ratings of pain

intensity and pain treatment threshold. Poster presentation. Department of Pediatrics

Research Day. Halifax, NS. April 2012.

128. Morley T, Cataudella D, Nesin A, Johnston D, Fernandez C, Sung L, Zelcer S. The pediatric

supportive care scale (PSCS): an instrument to assess quality of life in children with terminal

malignancy. Poster presentation. POGO Annual Meeting. Toronto, ON. Nov 2011. Winner

– best poster in psychosocial category.

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129. Kathryn A. Birnie, Christine T. Chambers, Elizabeth A. Cummings, Conrad V. Fernandez,

G. Allen Finley, Paula A. Forgeron, Margot A. Latimer, & Patrick J. McGrath. Patient and

parent-reported pain prevalence and management in a Canadian pediatric hospital. Poster

presentation. International Forum on Pediatric Pain. Whitepoint, NS . Oct 2011.

130. Mullen EA, Anderson JR, Steacy KJ, Geller JI, Green DM, Norkool P, Fernandez CV,

Khanna G, Malogolowkin MH, and Dome JS. The impact of surveillance imaging on overall

survival in patients with recurrent Wilms Tumor: A Report from the Children’s Oncology

Group. ASCO Annual Meeting. Chicago, Ill. June 2011. JCO 2011;29:15s:593s.a9536.

131. Elzinga K, Fernandez CV, Heng DYC, Tang PA. Returning research results to clinical trial

participants: a survey of cancer patients. ASCO Annual Meeting. Chicago, Ill. June 2011.

JCO 2011;29:15s:192s.a2611.

132. Zlateska B, Hashmi SK, Klaassen R, Fernandez CV, Yanofsky R, Shereck, E, Champagne J,

Silva M, Lipton JH, Brossard J, Samson Y, Abish S, Steele M, Ali K, Dower N, Athale U,

Jardine L, Hand JP, Beyene J, Dror Y. Comparative analysis of Shwachman-Diamond

Syndrome to Other Inherited Bone Marrow Failure Syndromes and Genotype-Phenotype

Correlation. Proceedings of the 6th International Congress on Shwachman-Diamond

syndrome. New York, June 2011.

133. Birnie KA, Chambers CT, Cummings EA, Fernandez CV, Finley GA, Forgeron PA, Latimer

MA, & McGrath PJ. Patient and parent-reported pain prevalence and management in a

Canadian pediatric hospital. Poster Presentation. British Pain Society and Canadian Pain

Society Joint Scientific Meeting. Edinburgh, Scotland. June 2011.

134. Fabsitz RB, McGuire A, Sharp RR, Hudson K, Pandey M, Beskow LM, Biesecker LG,

Bookman E, Burke W, Burchard EG, Church G, Wright Clayton E, Eckfeldt J, Fernandez

CV, Fisher R, Fullerton SM, Gabriel S, James C, Jarvik G, Kittles R, Leib J, O’Donnell C,

O’Rourke RP, Lyman Rodriguez L, Romero F, Schully SD, Shuldiner AR, Sze RF, Thakuria

J, Wolf SM, Burke GL. Ethical and Practical Guidelines for Reporting Genetic Research

Results to Study Participants: Updated Guidelines from an NHLBI Working Group. ELSI

2011. Chapel Hill, NC. May 2011.

135. Birnie KA, Chambers CT, Cummings EA, Fernandez CV, Finley GA, Forgeron PA, Latimer

MA & Patrick J. McGrath. Patient and parent-reported pain prevalence and management in a

Canadian pediatric hospital. Department of Pediatrics Research Day, IWK Health

Centre/Dalhousie University. Halifax, NS. April 2011.

136. Finkelstein-Schechter T, Doyle JJ, Gassas A, Chong D, Stetsco N, Ashraf K, Fernandez CV.

Hypertension in pediatric allogeneic hematopoietic stem cell transplant patients. ABMT

Annual Meeting. Honolulu, Hawaii. February 2011.

137. Berman J, Greer W, Fernandez CV, Bernstein M, Couban S. Higher peripheral blood

compared to bone marrow BCR; ABL transcript levels in chronic phase chronic myeloid

leukemia (CML) suggests a need to revise surveillance approaches and questions the anatomic

niche of the CML stem cell. Accepted for publication. ASH 2010. Orlando, FL. December

2010.

138. Gardiner B, Morash B, Riddell C, Wang H, Fernandez CV, Yhap M, Berman J. The

incidence and prognostic significance of 9p21 abnormalities in pediatric acute lymphoblastic

leukemia patients – the IWK Health Centre experience. Poster presentation. ASH 2010.

Orlando, FL. December 2010.

139. Fernandez CV, Couban S, Liwski R, Matsuoka MP, Morash B, Berman J, Greer W, Orr AC,

Guernsey. Do the SLC25A38 or ALAS2 Genes play a Role in the Phenotypic Express Ringed

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Sideroblasts in Acquired Myelodysplastic Syndrome? Accepted for publication. ASH 2010.

Orlando, FL. December 2010.

140. Craig TJ, Chambers CT, Kay-Raining Bird ER, Cummings E, Deacon SH and Fernandez CV.

Expressive and Receptive Pain Language in Typically-Developing Children. BHCRI Annual

Symposium. November 2010.

141. Craig TJ, Chambers CT, Kay-Raining Bird ER, Cummings E, Deacon SH, and Fernandez

CV. Expressive and Receptive Pain Language in Typically-Developing Children. IWK

Interdisciplinary Annual Meeting. Halifax, NS. November 2010.

142. Birnie KA, Noel M, Chambers CT, von Baeyer CL, Fernandez CV. A Survey of

Researchers’ Use of the Cold Pressor Task with Children: Methods, Ethics, and Experiences.

IWK Interdisciplinary Conference. Halifax, NS. November 2010. Winner: Best poster

award.

143. Cataudella, D., Zelcer, S., Morley, T., Johnston, D., Fernandez, C., D., Sung, L.

Development of the P-SCS: The Pediatric Supportive Care Scale, an instrument for quality of

life in children with terminal malignancy. POGO Annual Conference. Toronto, ON.

November 2010.

144. Fernandez CV, Li N, Mullen EA. Attitudes and practice towards the management of very

low risk Wilms’ tumor in the Children’s Oncology Group. SIOP 2010 Annual Meeting.

Boston, MA. October 2010.

145. Fernandez CV, Davies S, Radloff G, Hauser J, Grundy P, Breslow N, Anderson J. A case-

control study assessing the relationship of GST polymorphisms and the risk of development of

hepatopathy on NWTS-5. SIOP 2010 Annual meeting. Boston, MA. October 2010.

146. Marjerrison SL, Fernandez CV, Price VE, Njume E, Hesseling P. Use of Ultrasound in

Diagnosis in endemic Burkitt Lympoma in Cameroon. SIOP 2010 Annual Meeting. Boston,

MA. October 2010.

147. Kathryn A Birnie, Melanie Noel, Christine T Chambers, Carl L von Baeyer, Conrad V

Fernandez. A Survey of Researchers’ Use of the Cold Pressor Task with Children: Methods,

Ethics, and Experiences. World Congress of Pain. Montreal, QC. August 2010.

148. Fernandez CV, Li N, Mullen EA. Attitudes and practice towards the management of very

low risk Wilms’ tumor in the Children’s Oncology Group. 7th International Symposium on the

Biology of Renal Tumors. Banff, Alta. March 2010.

149. Fernandez CV, Davies S, Radloff G, Hauser J, Grundy P, Breslow N, Anderson J. A case-

control study assessing the relationship of GST polymorphisms and the risk of development of

hepatopathy on NWTS-5. 7th International Symposium on the Biology of Renal Tumors.

Banff, Alta. March 2010.

150. Craig TJ, Chambers CT, Kay-Raining Bird ER, Cummings E, Deacon SH, and Fernandez

CV. Expressive and Receptive Pain Language in Typically-Developing Children. Presenter,

C. Chambers. International Symposium on Pediatric Pain. Acapulco. March 2010.

151. Berman JN, Couban S, Ebbin A, Frangoul H, Quisumbing MEB, Riddell, C, Ferguson M,

Ludman M, Fernandez CV, Cantor AB. Familial platelet disorder and predisposition to

myeloid leukemia (FDP/AML) in the absence of RUNX1 mutations. Publication only. ASH.

Annual meeting. New Orleans. December 2009. Abstract 4689.

http://abstracts.hematologylibrary.org/cgi/content/abstract/ashmtg;114/22/4689

152. Berman JN, Couban S, Ebbin A, Frangoul H, Quisumbing MEB, Riddell, C, Ferguson M,

Ludman M, Fernandez CV, Cantor AB. Familial platelet disorder and predisposition to

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myeloid leukemia (FDP/AML) in the absence of RUNX1 mutations. Blood 2009

(Nov);114(22):abstract 4689.

153. J. A. Kalapurakal, M. Gopalakrishnan, R. Shore, Y. Zhang, C. Fernandez, Z. Tochner, A.

Paulino, J. Dome, V. Sathiaseelan, A. Kepka. Feasibility And Potential Utility Of Cardiac-

sparing Lung IMRT In Children With Wilms Tumor: A dosimetry study. ASTRO meeting.

Chicago, Ill. November 2009.

154. Britney McMurter, Louise Parker, Robert B Fraser, Fergall Magee, Christa Kozancyzn,

Conrad V Fernandez. Parental Views on Tissue Banking. Platform presentation. BHCRI

2009 Cancer Research Symposium. Halifax, NS. November 2009.

155. Britney McMurter, Louise Parker, Robert B Fraser, Fergall Magee, Christa Kozancyzn,

Conrad V Fernandez. Parental Views on Consent, Tissue Taking and Tissue Banking in

Pediatric Oncology Patients. Blood 2009 (Nov);114(22):34a.

156. Burrell S, Johnson S, Fernandez CV, Colwell B. Nuclear Medicine Assessment of Non-

target Organ Response to Cancer Therapy. Poster presentation. BHCRI 2009 Cancer

Research Symposium. Halifax, NS. November 2009.

157. Berman JN, Couban S, Ebbin A, Frangoul H, Quisumbing MEB, Akie TE, Ridell C, Ferguson

M, Ludman MD, Fernandez CV, Cantor AB. Familial platelet disorder and predisposition to

myeloid leukemia (FDP/AML) in the absence or RUNX1 mutations - a report of three

families. Poster presentation. BHCRI 2009 Cancer Research Symposium. Halifax, NS.

November 2009.

158. Gardiner RB, Berman JN, Riddell C, Gaudet M, Fernandez CV, Yhap M, Morash B. The

incidence and prognostic significance of 9p21 abnormalities in pediatric ALL patients - the

IWK experience. Poster presentation. BHCRI 2009 Cancer Research Symposium. Halifax,

NS. November 2009.

159. Burrell S, Colwell B, Johnson S, Fernandez CV. Nuclear Medicine Assessment of Non-

target Organ Response to Oncology Therapy. Annual meeting RSNA (Radiological Society of

Nuclear Medicine. Chicago. November 2009.

160. Lesleigh S. Abbott, Mariana Deevska, Victoria E. Price, Dorothy R. Barnard, Conrad V.

Fernandez, Margaret Yhap, Colleen Fitzgerald, David Dix, and Jason N. Berman. The

Impact of Prophylactic Cryoprecipitate and Fresh Frozen Plasma on the Incidence of CNS

Thromboses in Children with Acute Lymphoblastic Leukemia Receiving Asparaginase. Poster

presentation, S. Abbot. ISTH Annual Meeting. Boston, MA. July 2009.

161. Karine Bédard, Bartha Maria Knoppers, Cathy Anne Pachnowski, Saminda Pathmasiri, Paula

Robson on behalf of the CPT Project Investigator Group and ELSI/Privacy Task Force.

Accessing Population Database Biobanks: Challenges and Considerations in the Canadian

Partnership for Tomorrow (CPT) Project. The Age of Personalized Genomics Conference.

Banff, Alta. June 2009.

162. Magee JF, Cavanaugh J, Rudolph K, Fernandez CV. System delays in childhood cancer

diagnosis. Poster presentation, F Magee. PAS annual meeting. Baltimore, MD. June 2009.

163. Tsangaris E, Klaassen R, Fernandez CV, Yanofsky R, Scherek E, Champagne J, Silva M,

Lipton JH, Brossard J, Samson Y, Abish S, Steele M, Ali K, Dower N, Athale U, Jardine L,

Hand JP, Stephen D, Odame I, Canning P, Allen C, Beyene J & Dror Y. Genetic Analysis of

Inherited Bone Marrow Failure Syndromes from one comprehensive cohort of patients.

Proceedings of the 5th International Congress on Pediatric MDS and Bone Marrow Failure

Syndromes. June 2009: pp 2.

164. Hashmi SK, Allen C, Klaassen R, Fernandez CV, Yanofsky R, Wu J, Champagne J, Silva M,

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Lipton JH, Brossard J, Samson Y, Abish S, Steele M, Ali K, Dower N, Athale U, Jardine L,

Hand JP, Beyene J, Dror Y. Comparative analysis of Shwachman-Diamond Syndrome to

other Inherited Marrow Failure Syndromes. Proceedings of the 5th International Congress on

Pediatric MDS and Bone Marrow Failure Syndromes. Page 3. June 2009.

165. Segbefia C, Klaassen R, Fernandez CV, Yanofsky R, Shereck E, Champagne J, Silva M,

Lipton JH, Brossard J, Samson Y, Abish S, Steele M, Ali K, Dower N, Athale U, Jardine L,

Hand JP, Allen C, Beyene J, Dror Y. Malignant myeloid transformation is high in patients

with inherited marrow failure syndromes (poster). Proceedings of the 5th International

Congress on Pediatric MDS and Bone Marrow Failure Syndromes. Page 3. June 2009.

166. Cox K, Bandstra N, Fernandez C, Chambers C, Craig T. Impact on parents of receiving

individualized feedback on results of language and development testing conducted as part of a

research study. Poster presentation, K. Cox. Canadian Bioethics Society Conference.

Hamilton. May 2009.

167. Fernandez CV, Strahlendorf C, Santor D, Pentz R, Barfield R, Gao J, Baker J, Kodish E,

Moghrabi A, Weijer C. Adolescent decision-making in clinical trial participation. Annual

meeting of SIOP, Berlin, Germany. Oct 2008.

http://www3.interscience.wiley.com/homepages/106561790/SIOP-2008-Online-Abstracts.pdf

168. Fernandez CV, Gao J, Strahlendorf C, Pentz R, Barfield R, Baker J, Moghrabi A, Kodish E,

Santor D, Weijer C. Parental decision-making in clinical trial participation. Annual meeting

of SIOP. Berlin, Germany. Oct 2008.

http://www3.interscience.wiley.com/homepages/106561790/SIOP-2008-Online-Abstracts.pdf

169. Andrew C. Issekutz, Thomas B. Issekutz, Derek Rowter, Conrad V. Fernandez, Robert

Fraser, Bruce Mazer and David Mitchell. Two New Cases of ZAP70 Deficient Severe

Combined Immune Deficiency with Unusual Presentations, Novel Gene Mutations and

Successful Immune Reconstitution with Cord Blood Stem Cell Transplantation. European

Society Immunodeficiency Meeting. October 2008.

170. Angelski C, Fernandez CV, Weijer C, Gao J. The Publication of Ethically Uncertain

Research: Attitudes and Practices of Journal Editors. Poster presentation, C Angelski.

Canadian Bioethics Society Annual Meeting. John’s, Nfld. June 2008.

171. Hashmi SK, Klaassen R, Fernandez CV, Yanofsky R, Wu J, Champagne J, Silva M, Lipton

JH, Brossard J, Samson Y, Abish S, Steele M, Ali K, Dower N, Athale U, Jardine L, Hand JP,

Allen C, Beyene J, Dror Y. Shwachman-Diamond syndrome among other inherited marrow

failure syndromes. A report from the Canadian Inherited Marrow Failure Registry (CIMFR).

Pediatr Blood Cancer 2008;10 (May):8a.

172. R.Grant, J. Halton, S.Abish, R. Barr, E. Cairney, D. B. Dix, C. Fernandez, S. Israels, V.

Lewis, A. Moghrabi, B. Wilson, N. Shenouda, M. Matzinger, L. M. Ward and the Canadian

STOPP Consortium. Osteoporosis Screening in Childhood Acute Lymphoblastic Leukemia:

A First Step in Understanding the Natural History of Vertebral Compression. Pediatr Blood

Cancer. 2008.

173. J. Halton, S.Abish, R. Barr, E. Cairney, D. B. Dix, C. Fernandez, R. Grant, S. Israels, V.

Lewis, A. Moghrabi, B. Wilson, S. Atkinson, M.A. Matzinger, N. Shenouda, L. M. Ward and

the Canadian STOPP Consortium. The Relationship Between Lumbar Spine Bone Mineral

Density and Vertebral Compression at Leukemia Diagnosis. Pediatr Blood Cancer. 2008.

174. Simpson DC, Gao J, Fernandez CV, Yhap M, Price VE, Berman JN. The role of Bone

Marrow Examination in the Initial Evaluation of Pediatric Hodgkin’ Disease: The Canadian

Perspective. Blood 2007 (Dec);110 (11):688a.

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175. Berman JN, Greer WL, Loh M, Riddell C, Morash B, Dumas N, Fernandez CV, Ludman M.

Rare Case Of Jak2 V617f Positive Polycythemia Vera In A Child With Neurofibromatosis

Type 1. Blood 2007 (Dec);110 (11): 239b.

176. Fernandez CV, Anderson J, Breslow N, Dome J, Grundy P, Perlman E, Green D for the

NWTSG/COG. Patient weight and event free survival for children under 2 years of age at

diagnosis with favorable histology Wilms' tumor. American Society of Clinical Oncology

Annual Meeting. Chicago. May 2007. JCO 2007;25(18S): 723s.

177. Fernandez CV, Santor D, Weijer C, Strahlendorf C, Moghrabi A, Pentz R, Kodish E, Gao J,

Barfield R. The return of research results to participants: a multicenter study. Pediatr Blood&

Cancer 2007;49(4):543.

178. Craig TJ, Chambers CT, Cummings E, Deacon H, Fernandez CV, Gillespie J, Kay-

Rainingbird E. Expressive and receptive pain language and its relationship to general

language development among children with and without medical conditions: A work in

Progress. CRTP Halifax. May 2007. No published abstract.

179. Skidmore DL, Hunter A, Morash B, Beis J, Fernandez CV. A Case of ATR-16 in

conjunction with a duplication of 4pterm: The importance of haematological manifestations in

pointing to the diagnosis. American College of Medical Genetics Annual Meeting. March

2007. No published abstract.

180. Fernandez CV, Rigby H, Langley J, Mailman T, Crooks BNA, Higgins A. Routine

surveillance for bloodstream infections in a pediatric hematopoietic stem cell transplant

cohort: do patients benefit? Blood 2006(Dec);108(11):409b.

181. Rowan-Legg A, Weijer C, Gao J, Fernandez CV. A 10-year follow-up study on the

requirement for institutional review board approval prior to publication of human research

results. Public Responsibility in Medicine and Research. Annual meeting. Washington.

November 2006. No published abstract.

182. Lefaivre M-J, Chambers CT, Fernandez CV. Offering parents individualized results of

psychological testing conducted for research purposes with children: Ethical issues and

guidelines. Canadian Psychology 2006;47(2a):200-201a.

183. MacDonald T, Payne L, Dyack S, Schmidt M, Gordon K, Fernandez CV, Barnard D, Yhap

M, Crooks B, Price V. Hypermanganesemia, polycythemia, iron deficiency and neurological

deterioration in a young girl. Pediatr Blood & Cancer 2006;46(6):701a.

184. Pentz R, Barfield R, Joffe S, Fernandez C, Kodish E. A research ethics case: sibling donors.

Pediatr Blood & Cancer 2006;46(6):706a.

185. Maniatis G, Klaassen R, Fernandez CV, Yanofsky R, Wu J, Champagne J, Odame I, Silva M,

Lipton JH, Ali K, Brossard J, Samson Y, Abish S, Le D, Dower N, Jardine L, Hand JP, Sung

L, Freedman M, Stephens D, Dror Y. Diamond Blackfan Anemia (DBA) among other

inherited marrow failure syndromes. A report from the Canadian Inherited Marrow Failure

Registry (CIMFR). 7th Annual International Diamond Blackfan Anemia Consensus

Conference 2006. (Presenter, G Maniatis). No published abstract.

186. Fernandez CV, Santor D, Weijer C, Strahlendorf C, Mohgrabi A, Pentz R, Kodish E. The

return of research results to potential research participants. Pilot study of adolescents and

parent of children with cancer. Pediatr Blood & Cancer 2005;45(4):583a.

187. Gaudet M, Lee CLY, Fernandez CV. Clinical significance of i(7)(q10) as the sole acquired

abnormality in the bone marrow of an infant with Shwachman-Diamond syndrome.

Association of Genetics Technologists Annual Meeting. June 2005. (Presenter, M. Gaudet).

No published abstract.

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188. MacNeil SD, Fernandez CV. Informing research participants of research results: An analysis

of the attitudes of Canadian University-based Research Ethics Board Chairs. Pediatric Child

Health 2005;10 suppl B:40B.

189. JM Steele, L Sung, R Klaassen, C Fernandez, R Yanofsky, J Wu, I Odame, M Silva, A

Kaiser, J Brossard, Y Samson, J Champagne, S Abish, D Le, L Jardine, JP Hand, N Dower, J

Lipton, M Freedman, K Charpentier, L Morgovsky, D Stephens, Y Dror, and Canadian

Inherited Marrow Failure Registry. Disease progression in recently diagnosed patients with

inherited marrow failure syndromes: A report from the Canadian Inherited Marrow Failure

Registry. Pediatric Blood Cancer 2005; 44(6): 538.

190. Crooks BNA, Dror Y, Fernandez CV, Dooley J. Demylelinating encephalopathy following

second BMT for Fanconi anemia. Stem cell transplantation in children: current results and

controversies. Meeting #8. Scottsdale, Az. Jan 2005. (Presenter, B Crooks). No published

abstract.

191. Conway J, Dyack S, Fernandez CV. Mixed donor chimerism and low level

alpha-1-iduronidase expression may be adequate for neurodevelopmental protection in

Hurler’s syndrome. Stem cell transplantation in children: current results and controversies.

Meeting #8. Scottsdale, Az. Jan 2005. (Presenter, J Conway). No published abstract.

192. Fernandez CV, Jurgens T, Brown J, Cooper E, Otley A, Frankton L, McLellan A,

Mykhaloviskiy E, Milroy P. The scope of practice of complementary and alternative health

care practitioners caring for children and youth in Canada. Building your research team.

Accepted for presentation at demystifying the research process: practical advice for health

professionals. IWK Health Centre. Nov 2004. (Presenter, J Brown). No published abstract.

193. Jennifer Conway, David Dix, Conrad Fernandez. Comparison of the incidence of sinus

venous thrombosis between two pediatric centers that differ in their practice of replacing

fibrinogen and antithrombin III during induction chemotherapy for ALL. Canadian Child

Health Clinician Scientist Program 2nd Annual National Symposium. Nov 2004. (Presenter, J

Conway). No published abstract.

194. Conway J, Dyack S, Crooks BNA, Schmidt M, Fernandez CV. Mixed donor chimerism and

low level alpha-L-iduronidase expression may be adequate for neurodevelopmental protection

in Hurler’s syndrome. Blood 2004;104(11):5149a.

195. Rigby HB, Fernandez CV. A survey of researchers’ practice in returning research results to

research participants. Oral abstracts presented at ASH Annual meeting 2003. Blood

2004;104(11):3130a.

196. Benedict J, Simpson C, Fernandez CV. Informed consent in pediatric bone marrow

transplan-tation: the parental experience. Blood 2004;104(11):3150a.

197. C Fernandez, T Jurgens, J Brown, E Cooper, L Frankton, A MacLellan, A Otley. Pilot study

of a national survey of the scope of practice of complementary and alternative health care

practitioners in caring for children and youth. The International Pediatric Nursing Research

Symposium Proceedings. Montreal PQ. Nov 2004. (Presenter J Brown). No published

abstract.

198. Ravitsky V, Geller G, Chen DT, Fernandez CV. Disclosing research results to participants in

genetic research: Clarifying the debate. American Society of Bioethics and Humanities Annual

Meeting. Oct 2004. No published abstract.

199. J Benedict, C Simpson, CV Fernandez. Parental perceptions of the informed consent process

in pediatric bone marrow transplantation (BMT). Proc ASCO 2004;23:547a.

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200. Fernandez CV, Taweel S, Kodish ED, Weijer C. Disclosure of research results to research

participants. Focus group and questionnaire development examining attitudes of participants.

Blood 2003;102(11):202a.

201. MacNeil SD, Kodish ED, Fernandez CV. Informing research participants of research results:

An analysis of pediatric informed consent conferences in randomized controlled trials. Blood

2003;102(11):202a.

202. Arif Manji, Conrad Fernandez, Rochelle Yanofsky, Robert Klaassen, John Wu, Isaac

Odame, Mariana Silva, Josette Champagne, Sharon Abish, Johan Lategan, Nancy Dower,

Kaiser Ali, John Hand, Jossee Brossard, Yvan Samson, Lawrence Jardine, Melvin Freedman,

Derek Stephen, Sunita Vohra, Karen Charpentier and Yigal Dror. Characterization Of

Hematological Phenotype Of The Inherited Marrow Failure Syndromes. Report from The

Canadian Inherited Marrow Failure Registry (CIMFR). Blood 2003;102(11):500a.

203. Arif Manji, Conrad Fernandez, Rochelle Yanofsky, Robert Klaassen, John Wu, Isaac

Odame, Mariana Silva, Josette Champagne, Sharon Abish, Johan Lategan, Nancy Dower,

Kaiser Ali, John Hand, Jossee Brossard, Yvan Samson, Lawrence Jardine, Melvin Freedman,

Derek Stephen, Sunita Vohra, Karen Charpentier and Yigal Dror. Clonal marrow cytogenetic

abnormalities in patients with Shwachman-Diamond syndrome (SDS). Report from the

Canadian Inherited Marrow Failure Registry (CIMFR). Blood 2003;102(11):427a.

204. Crooks BNA, Fraser RB, Crocker J, Acott P, Fernandez CV, Yhap ME. Evolution of

aggressive PTLD through cytotoxic therapies following renal transplantation. J Pediatr

Hemat Oncol 2003;25(4):S14.

205. Steele M, Doda W, Freedman M, Yanofsky R, Silva M, Wu J, Woodman R, Dower N, Kaiser,

Klaassan R, Odame I, Jardine L, Bernstein M, Brossard J, Fernandez C, Hand JP, Vohra S;

Stephens D, Dror Y. Hematological phenotype in Shwachman-Diamond syndrome. A report

from Canadian Inherited Marrow Failure Registry (CIMFR). Proceedings of the Second

International Congress on Shwachman-Diamond Syndrome June 16 - 17, 2003. P 98.

206. Doda W, Freedman M, Yanofsky R, Silva M, Wu J, Woodman R, Dower N, Kaiser A, Halton

J, Odame I, Jardine L, Bernstein M, Brossard J, Fernandez C, Hand JP, Stephens D, Dror Y.

The inherited marrow failure syndromes: epidemiology and hematological abnormalities at

presentation. A report from Canadian Inherited Marrow Failure Registry (CIMFR).

Proceedings of the Second International Congress on Shwachman-Diamond Syndrome June

16 - 17, 2003 p 90.

207. Yigal Dror for the Canadian Inherited Marrow Failure Registry (CIMFR). Clonal marrow

cytogenetic abnormalities in patients with Shwachman-Diamond syndrome. Report from the

Canadian Inherited Marrow Failure Registry (CIMFR). Second International Congress on

Shwachman-Diamond Syndrome June 16 - 17, 2003. No published abstract.

208. Fernandez CV, Kodish ED, Taweel S, Shurin SB, Weijer C. Disclosure of the right of

research participants to receive research results: An analysis of consent forms in the

Children’s Oncology Group. Blood 2002;110(11):221a.

209. Fernandez CV, Kodish ED, Shurin SB, Weijer C. Disclosure of the right of research

participants to receive research results: Attitudes and needs of principal investigators in the

Children’s Oncology Group. Blood 2002;110(11):870a.

210. Doda W, Freedman M, Yanofsky R, Silva M, Wu J, Woodman R, Dower N, Kaiser A, Halton

J, Odame I, Jardine L, Bernstein M, Brossard J, Fernandez CV, Hand JP, Vohra S, Stephens

D, Dror Y. The Canadian Inherited Marrow Failure Registry (CIMFR). Blood

2002;110(11):874a.

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211. McGibbon A, Beresford L, Sanderson S, Ming-Yu WM, Giacomantonio M, Fernandez C,

Cummings E. Precocious puberty in a 4-year-old boy with a mediastinal polyembryoma and

Klinefelter syndrome. Can J Diab 2002;23(3):287.

212. Fernandez CV, Gordon K, Van Den Hof M, Baylis F. Attitudes of pregnant women to cord

blood donation, storage and testing. Med Ped Onc 2002; 39:262a.

213. Yue Li, Grace Ma, Zhigui Ma, Conrad V Fernandez, Catherine Lee, E. Fred Saunders,

Jeremy Squire, Steve W. Scherer, Stephan W. Morris, Johann K. Hitzler. Variant

RBM15-MKL1 and MKL1-RBM15 fusion transcripts in an infant with recurrent acute

megakaryoblastic leukemia and t(1;22) after allogeneic bone marrow transplantation. Blood

2001;98:563a-564a.

214. Fernandez CV, Gordon KE, Van den Hof MC, Taweel S, Baylis F. Attitudes of pregnant

women to cord blood stem cell collection, testing and donation. Proc ASCO 2001;20:18a.

215. Fernandez CV, Wildish J, Lee CLY. A unique 6q21;15q21 translocation identified in a

Wilms’ tumor. Proc ASCO 2000;19:618a.

216. Fernandez CV, Anderson RA, Massing B. Bone marrow reticulin fibrosis in a patient with

Kostmann's syndrome treated with recombinant human granulocyte-colony stimulating factor.

Proc ASPH/O 1996;5:30.

217. Fernandez CV, Stutzer C, MacWilliam L, Fryer C. Prevalence of and reasons for use or

non-use of alternative/complementary therapies in pediatric oncology patients. A survey of

patients at BC's Children's Hospital. Proc ASPH/O 1996;5:16a.

218. Stutzer C, Esau R, Fernandez CV, Lange B, Rosen-Harris B. Pediatric Oncology Pain

Management Guidelines. International Association for the Study of Pain, 8th World Congress,

1996. No published abstract.

219. Anderson RA, Corr TR, Lockitch G, Fernandez CV and Rogers P. Beta-2 microglobulin

(B2M) and N-acetyl-glucosaminidase (NAG) excretion are elevated post nephrotoxic

chemotherapy. Proc ASCO 1995;14:A1461.

220. C Fernandez, S Walling, M Riding, H Bawden, L Resch, W Howes and S Salisbury. Long-

term outcome of childhood craniopharyngioma. Clin Inv Med 1994;17(S):B30.

221. CV Fernandez, EP Rees. Pain management in Canadian level III neonatal intensive care

units. Clin Inv Med 1993;16(S):A39.

222. CV Fernandez and EP Rees. A survey of pain management in Canadian level III neonatal

intensive care units. Clin Res 1992;40(3):660A.

223. CV Fernandez, R Bortolussi, KE Gordon, JG Gatien, SHS Lee, MS Shadrabadi.

Mycoplasma pneumoniae infection associated with central nervous system complications. A

report of two cases and a review of the literature. Abstract. Clin Inv Med 1990;13(S):B107.

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BOOK CHAPTERS:

1. Fernandez CV, Geller JI, Ehrlich PF, Hill DA, Kalapurakal JA, Grundy PE, Dome JS. Renal

tumors. Submitted. In Poplack and Pizzo Principles and Practices of Pediatric Oncology. 8th

Ed. Lipincott Raven. Wolters Kluwer Health: Medical Practice. 2020.

2. Michael J.S. Beauvais, Karine Sénécal, Conrad V. Fernandez, Daniel Sinnett, Vasiliki

Rahimzadeh, Bartha Maria Knoppers. Frontline Ethico-legal Issues in Childhood Cancer

Genetics Research. In The Hereditary Basis of Childhood Cancer. 2020

3. Brandelli Y, Chamber CT, Fernandez CV. Ethical Considerations in Paediatric Pain Research

and Clinical Practice. In volume 1. Pain Neuroethics and Bioethics of the serial: Developments

in Neuroethics and Bioethics. Ed. DZ Buchman and DK Davis. Elsevier. London, UK. 2018.

4. Fernandez CV. Treatment of Wilms’ Tumor in the Children’s Oncology Group. In Renal

Tumors in Childhood. Ed. K Pritchard-Jones, J Dome. 2015.

5. Fernandez CV, Geller JI, Ehrlich PF, Hill DA, Kalapurakal JA, Grundy PE, Dome JS. Renal

tumors. In Poplack and Pizzo Principles and Practices of Pediatric Oncology. 7th Ed.

Lipincott Raven. 2014.

6. Herder M, Fernandez CV. Cancer Genomics and Bio-banking: Exploring Key Ethical and

Legal Issues. In Cancer Genomics, 1st Edition. Ed. Dellaire G, Arceci R, Berman J.

Elselvier/Academic. C 2014.

7. Senegal K, Knoppers BM, Avard D, Fernandez CV, Sinnett D, Rahimzadeh V. Ethical

Issues in Childhood Cancer Susceptibility. In The Genetic Basis of Childhood Cancer. Ed. D

Malkin. Springer. 2013. C 2014.

8. Fernandez CV, Geller JI, Ehrlich PF, Hill DA, Kalapurakal JA, Grundy PE, Dome JS. Renal

tumors. In Poplack and Pizzo Principles and Practices of Pediatric Oncology. 6th Ed.

Lipincott Raven. 2010.

9. Kenny N and Fernandez CV. Basics in Research Ethics. History of Research Ethics and the

Concept of Risk. In: Handbook for Clinician Scientists. Tools for a successful academic

career. R Bortolussi editor. Canadian Child Health Clinician Scientist Program. 2008.

BOOK (Peer-Reviewed):

1. Fernandez CV. "Convention on Human Rights and Biomedicine of the Council of Europe,

Article 6 - Protection of Persons Not Able to Consent: Assent and Dissent to Research by

Children with Chronic Illness." International Society of Bioethics. Gijon, Asturias. Spain.

2003.

EDITORIALS (Invited):

1. Fernandez CV. Orphan cancers and our moral obligations. CMAJ 2007 Jan

30;176(3):297,299.

2. MacNeil SD, Fernandez CV. Offering results to research participants: Is ethically right but

not yet fully explored. BMJ 2006;332(7535):188-189.

3. Fernandez CV. Publication of ethically suspect research: Should it occur? Int J Qual Health

Care 2005;17(5):377-378. (E pub 12 Aug 2005).

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LETTERS TO THE EDITOR:

1. Dix DD, Fernandez CV, Dome JS. Reply to DM Green. JCO In press.

2. Mullen EA, Geller JI, Khanna G, Fernandez CV, Dome JS. Reply to L Xie. J Clin Oncol.

2019 Mar 15:JCO1900012. doi: 10.1200/JCO.19.00012. PMID: 30875281.

3. Dix DB, Seibel NL, Chi YY, Khanna G, Gratias E, Anderson JR, Mullen EA, Geller JI,

Kalapurakal JA, Paulino AC, Perlman EJ, Ehrlich PF, Malogolowkin M, Grundy PE,

Fernandez CV, Dome JS. Reply to D Green. J Clin Oncol. 2018 Sep 13:JCO1800659. doi:

10.1200/JCO.18.00659. PMID:30212299

4. Fernandez CV, Dome JS, Perlman EJ, Gastier-Foster J, Ehlich PF, Mullen EA. Reply to B

Zhang. J Clin Oncol. 2018 May 10;36(14):1454-1455. doi: 10.1200/JCO.2018.78.0445.

PMID: 29613833.

5. Fernandez CV, Whitlock JA, Strahlendorf C, Dix D, Leaker MT, Strother D, Hull P,

Eisenstat D, Mpofu C, Sinha R, Doyle JJ, Jardine L, Chan A, Silva MP, Johnston D, Pastore

Y, Mitchell D, Brossard J, Bowes. Protecting the welfare of all Canadian children. CMAJ

2015 Jan 29. Published online:

http://www.cmaj.ca/content/187/3/162.full/reply#cmaj_el_727824

6. Fernandez CV, Shurin S, Kodish E. Offering to provide research results to participants is an

obligation. Cancer 2006:107(6):1419-1420. (E pub July 21, 2006).

7. Fernandez CV and Frager G. Not Hurting - Not Harming. CMAJ 2006 (Jan);174(2):206.

8. Fernandez CV, Kodish E, Weijer C. The importance of informed consent in offering to

return research results to research participants. Med Pediatr Oncol 2003;41:592-593.

9. Fernandez CV, Pyesmany A, Stutzer C. Alternative therapies for the treatment of childhood

cancer. N Engl J Med 1999;340:569-570.

10. JM Connor and CV Fernandez. Genetic aspects of hemifacial microsomia. Hum Gen 1984;

68:349.

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PUBLICATIONS (Non-Peer Reviewed):

1. Panel on Research Ethics. How to Address Material Incidental Findings Guidance in Applying

TCPS 2 Article 3.4. Member of the MIF Subcommittee. www.pre.ethics.gc October 2018.

2. Fernandez CV. CAR T cells. A careful drive to the future. Impact Ethics. September 2017.

https://impactethics.ca/2017/08/31/car-t-cells-a-drive-to-the-future-of-cancer-treatment/amp/

3. Senecal K, Levesque E, Fernandez C, Tasse AM, Zawati M, Knoppers BM, Avard D.

Statement of Principles on the Return of Research Results and Incidental Findings. Network of

Applied Genetic Medicine. Montreal, PQ.

http://www.rmga.qc.ca/en/documents/RMGAStatement_Principles_English_May272013_000.

pdf

4. Fernandez CV. Case 7.3.5. Informing study participants of research results. Royal College of

Canada. Bioethics Curriculum. Chapter 7. 2016. Extensively revised.

http://www.royalcollege.ca/portal/page/portal/rc/resources/bioethics/cases/section7

5. Fernandez CV. Case 7.3.5. Informing study participants of research results. Royal College of

Canada. Bioethics Curriculum. Chapter 7. 2012.

6. Guidelines for genetic testing of healthy children - addendum. Position statement (B2003-01).

Joint statement of the Canadian Pediatric Society and the Canadian College of Medical

Geneticists. Fernandez CV, principal author for addendum. L Arbour, principal author

statement. Pediatr Child Health 2008 13(4):1.

7. Fernandez CV et al. Guidelines for the Ethical Conduct of Collection of Tissue for Research

Purposes. White paper for the Bioethics Committee. Children’s Oncology Group. (Project

coordinator and principle author). 2007. COG website.

8. Joffe S, Fernandez CV, Pentz RD, Ungar DR, Matthew NA, Alessandri AJ, Woodman CL,

Singer DA, Kodish E. Guidelines for involving children in decision making about research

participants. White paper for the Bioethics Committee. Children’s Oncology Group,

(contributing author). 2006. COG website.

9. Fernandez CV. Web Module. Consideration of 'Risk' in Research Involving Children.

Canadian Child Health Clinician Scientist Program. 2005.

http://cchcsp.ca/index.php?PHXSESSID=6173ef58e88693cdb828a35ed1d20c4c

Reprinted in: Handbook for clinician scientists: Tools for a successful academic career. R

Bortolussi, ed. Canadian Child Health Clinician Scientist Program. 2008.

10. Fernandez CV. Ethical challenges in pediatric translational research. Taking “the bench to

the bedside.” SIOP 2005 Education Book.

11. Fernandez CV. Informing Study participants of research results. Children’s Oncology News

2001;2:10.

12. Handbook for Parents and Families of Children with Cancer. Contributor to sections on

Palliative Care and on Ethics, 1985. McMaster University Medical Centre, Hamilton, Ontario.

Coordinator: Dr. R. Barr.

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PRESENTATIONS (Provincial, National and International):

(Unless indicated, all presentations made by C Fernandez)

Precision Medicine in Pediatric, Adolescent and Young Adult Oncology: Hopes, Limits and Ethical

Challenges

1. Fernandez CV. Precision Medicine in Pediatric, Adolescent and Young Adult Oncology:

Hopes, Limits and Ethical Challenges. Oncology Grand Rounds networked to province.

Platform presentation. Halifax NS 5 December 2019.

2. Fernandez CV, Berman J, Palmer A, Jessa S. Pediatric Oncology: A new frontier –

navigating the opportunities and ethical challenges of precision medicine. Canadian Cancer

Research Conference. Platform presentation. Ottawa, ON. 3 November 2019.

3. Fernandez CV. Management of Febrile Neutropenia in Childhood. Valley Regional Hospital

Levels of Care Site Visit. Kentville, NS. 29 October 2019.

4. Fernandez CV. Life Beyond Cancer – A view from a pediatric oncologist. National Survivor’s

Day. Leukemia and Lymphoma Society of Canada Education Day. Halifax, NS. 2 June 2019.

5. Fernandez. CV. PROFYLE. Ethics nodes updates. PROFYLE annual F2F meeting. Winnipeg,

MN. 28 May 2019.

6. Fernandez CV. PROFYLE. Implications for the Maritime provinces. APPHON annual

meeting. Halifax, NS. 10 May 2019.

7. Fernandez CV. Late effects in childhood and adolescent and young adult cancer survivors.

Spring Nova Scotia Program of Cancer Care. Provincial Cancer Network Meeting. Halifax

NS. 1 May 2019

8. Fernandez CV. Use of 1q gain in COG protocols. SIOP RTSG general meeting. Kyoto, Japan.

16 November 2018

9. Fernandez CV. Using PROFYLE to explore ELSI implications of Precision Medicine in

Pediatric Oncology. BHCRI/TFRI Research Conference. Halifax, NS. 6 November 2018.

10. Fernandez CV, Joffe S, Wakefield C. The Gordian Knot of Precision Medicine: Ethical

Dilemmas and Psychosocial Impacts. Pediatric Oncology Group of Ontario. Annual meeting.

Workshops. Toronto, ON. 2 and 3 November 2018.

11. Fernandez CV. PROFYLE and how it may apply to the Marathon of Hope Network. TFRI

Atlantic Workshop. Halifax, NS. 11 June 2018.

12. Fernandez CV. PROFYLE – update of current Node status and plans. C17 Annual meeting.

Halifax, NS. 23 May 2018.

13. Fernandez CV. Oncologic Emergencies. APPHON Regional Education Rounds. Halifax, NS.

3 May 2018.

14. Fernandez CV. Oncologic Emergencies. APPHON annual meeting. Halifax, NS. 18 Nov 2017.

15. Fernandez CV. Update on COG renal trials and PROFYLE. APPHON. Halifax, NS.

17 Nov 2017.

16. Fernandez CV. Consent and Assent in Phase I trials. Workshop: Developing the next

generation of early phase trials:moving the bar in paediatric oncology. Panel discussion.

Vancouver, BC. 4 November 2017.

17. Fernandez CV. Children’s Oncology Group Renal Tumor Concepts. Renal Tumour Study

Group – SIOP Annual meeting. Mallorca, Spain. 12 June 2017

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18. Fernandez CV. Renal tumors concept plans update. Montreal Children’s Hospital. Montreal,

PQ. March 1, 2107.

19. Fernandez CV. Offering research results to pediatric participants: an ethical responsibility and

challenge. Vineberg invited lecture. Montreal Children’s Hospital. Montreal, PQ. March 1,

2017

20. Fernandez CV. Childhood Cancer Foundation. Fund raiser. Halifax, NS. Sept 25. 2016.

21. Fernandez CV. Shortages of drugs, surpluses of ethical challenges: an allocation framework

for childhood cancer. C17 annual meeting. CHU Ste. Justine. Montreal, PQ. 2 June 2016

22. Fernandez CV. A moral obligation to offer research results to participants. Pediatic Grand

Rounds. CHU Ste. Justine. Montreal, PQ. 27 January 2016.

23. Fernandez CV. Small group discussion (return of results, TRICEPs study, CGH in global

developmental delay) x 3 hrs. CHU Ste. Justine. Montreal, PQ. 27 January 2016.

24. Fernandez CV. Research ethics. 6th Halifax symposium of ethics in ophthalmology.

Workshops x 3. Halifax, NS. 20November 2015.

25. Geerlinks A, Digout C, Bernstein M, Chan A, MacPhee S, Pambrun C, Irving E, Wyatt L,

Gallant G, Long A, Wilson K, Fernandez C, Price V. Improving time to antibiotics for

pediatric oncology patients with febrile neutropenia by applying lean process improvement

methodology. Nova Scotia Health Quality Summit. Platform presentation by A Geerlinks.

Halifax, NS. 19 November 2015.

26. CV Fernandez. COG Research and Regional Centers. APPHON annual conference. Platform

presentation. Halifax, NS. 14 November 2015.

27. CV Fernandez. COG Wilms tumor and Neuroblastoma Research Update. APPHON annual

conference. Platform presentation. Halifax, NS. 14 November 2015.

28. CV Fernandez. Planning to offer target and incidental genomic results in the pediatric setting.

International Society for Genetic Eye Diseases and Retinoblastoma. Platform presentation:

Halifax, NS. 6 August 2015.

29. CV Fernandez on behalf of the renal tumor study committee. Results of AREN0532 clinical

trial for pediatric very low and standard risk Wilms tumor. Renal Tumors Study Group- SIOP.

Platform presentation: Stockholm, Sweden. 25 June 2015.

30. CV Fernandez, EA Mullen, PF Ehrlich, J Kalapurakal, G Khanna, YY Chi, E Perlman, A

Paulino, TE Hamilton, KW Gow, FA Ferrer, Z Tochner, FA Hoffer, J Withycombe, R

Shamberger, JI Geller, JR Anderson, PE Grundy, J Dome for the AREN0532 study committee.

Outcome and prognostic factors in COG stage III Favorable Histology Wilms Tumor treated

with doxorubicin, actinomycin , vincristine and radiotherapy. A report from the Children’s

Oncology Group study AREN0532. Platform presentation. American Society of Clinical

Oncology Annual meeting. Chicago, Ill. 1 June 2015.

31. Dix D, Fernandez CV, Chi Y-Y, Anderson J, Mullen E, Geller J, Gratias E, Khanna G,

Kalapurakal J, Perlman EJ, Seibel N, Ehrlich P, Malogolowkin M, Grundy P, Dome J on

behalf of the AREN0533 Study Committee. Treatment of favorable histology Wilms Tumor

with combined loss of heterozygosity of chromosome 1p and 16q: A report from the

Children’s Oncology Group studies AREN0532 and AREN0533. Platform presentation.

American Society of Clinical Oncology Annual meeting. Chicago, Ill. June 2015. David Dix

presenter.

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32. Fernandez CV. Recontact in Biomedical Research. Implications of attaining age of majority.

Clinical trial perspectives. P3G International Pediatric Research Platform. Think Tank

meeting. 11 May 2015. Montreal, PQ. Platform presentation.

33. Fernandez CV. The Children's Oncology Group: An example of the power of a cooperative

clinical trials network to answer therapeutic questions in rare conditions. Pediatric Grand

Rounds. 8 April 2015. Halifax, NS, Platform presentation.

34. Fernandez CV. Challenges of consent in the child research context. CAURA East. CAREB

Atlantic 2014. 14 November 2014. Halifax, NS. Platform presentation.

35. Fernandez CV. IBMFS: A clinical approach and recent updates. Atlantic Hematology

Workshop. 13 November 2014. Halifax, NS. Platform presentation.

36. O’Rourke PP, Beskow L, Berry S, Fernandez CV. What is the IRB’s role in the return of

results? Annual Conference: Should we offer genomic research results to a participant’s

family, including after death? Consortium on Law and Values in Health, Environment & the

Life Sciences. 6 Nov 2014. Minneapolis, MN. Platform presentation by O’Rourke (Fernandez

contributor to presentation).

37. Wilfond B, Fernandez CV, Green R. Returning secondary findings from pediatric sequencing

to families. Annual Conference: Should we offer genomic research results to a participant’s

family, including after death? Consortium on Law and Values in Health, Environment & the

Life Sciences. 6 Nov 2014. Minneapolis, MN. (Fernandez contributor to presentation and

participant in panel).

38. Fernandez CV. Genomics and paediatric cancer: New ethical challenges. SIOP Meet the

Expert lectures. Society of International Pediatric Oncology. 23 and 24 October 2014.

Toronto, Ontario Platform presentations.

39. Fernandez C. Leukemia in children – where we have been and where we are going? Leukemia

and Lymphoma Society of Canada. 13 May 2014. Halifax, NS. Platform presentation

40. Fernandez CV. Ethics research platform. Young People's Cancer Research Program

Workshop. Toronto, ON. 30 March2014. Workshop platform presentation

41. Fernandez CV, Friedman J, Zawat M. The ethical and legal dilemma of reporting incidental

findings. POGO. Innovation in Pediatric Oncology. Nov 22 and 23, 2013.

Toronto, ON. Workshop platform presentations.

42. Fernandez CV. Providing research results to participants. POGO. Innovation in Pediatric

Oncology Nursing. Nov 21, 2013. Toronto, Ont. Platform presentation.

43. Fernandez CV. Attitudes of participants and researchers to the return of genomic research

results. Genetics & Genomics Lunch Seminar Series. Genome Atlantic. 19 June 2013. Halifax,

NS. Platform presentation.

44. Fernandez CV, Bouffet E, Malkin D, Jabado N, O’Connell C, Avard D, Knoppers K, Boycott

K, Sorensen P, Orr AC, McMaster C. Attitudes to the Return of Incidental and Targeted

Genomic Findings Obtained in a High Risk Pediatric Cancer versus an Inherited Genetic

Condition Research Setting. The American Society of Clinical Oncology. 1 June 2013.

Chicago, USA.Poster presentation.

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45. Fernandez CV, Brandow C, McNeil S, Burgess W. Challenges of Informed Consent in

Research Protocols: Does TCPS2 provide further practical guidance? Canadian Bar

Association 2013 National Health Law Summit: Critical Issues in Health Law. Halifax NS.

May 2013. Platform presentation

46. Dome J, Graf N, Pritchard-Jones K, Mullen E, Perlman E, Geller J, Fernandez CV. Expert

panel in renal tumors. Questions from families. 8th International Conference on Pediatric

Renal Tumors Biology. Bethesda Md. May 2013. Platform presenter.

47. Fernandez CV. Canadian Pediatric Cancer Genomics Consortium. GELS progress. Return of

research results. CPCGC Face to Face. March 2013. Montreal PQ. Platform presentation.

48. Fernandez CV, Strahlendorf C, Avard D, Knoppers K, O’Connell C, Malkin D, Jabado N,

Boycott K, Sorenson P. Attitudes of Researchers to the Return to Participants of Incidental and

Targeted Genomic Findings Obtained in a Research Setting. Annual meeting of the American

Society of Hematology. Atlanta, GA USA. Dec 2012. Poster presentation.

49. Mullen E, Gooskens S, Hamilton TE, van den Heuverl-Eibrink MM, Green DM, Grundy PE,

Daw NC, Dome JS, Fernandez CV. Sinusoidal obstruction syndrome during treatment for

Wilms tumors in NWTS 3, 4 and 5: Incidence, severity and effect on planned treatment and

outcome. International Society of Pediatric Oncology. London, UK. October 2012. Platform

presentation.

50. Fernandez CV. On return of results in in pediatric cancer genetic research. SIOP Pediatric

Psycho-oncology program. International Society of Pediatric Oncology. London, UK.

October 2012. Platform presentation.

51. Fernandez CV and Sheikh F. Complexities of Clinical Trial Design. Workshop x 2. 5th Annual

Pediatric Chemotherapy Update Conference. Toronto. October 2012. Platform presentation.

52. Fernandez CV, Hinds P, Gammon J, Fung K. Phase I Decision making panel. 5th Annual

Pediatric Chemotherapy Update Conference. Toronto. October 2012. Platform presentation.

53. Fernandez CV. Evidenced based policy to address ethical issues that arise in genomics

research. Late Effects of Childhood Cancer Treatments – networking meeting. CIHR Institute

of Cancer Research. Toronto. September 2012. Platform presentation.

54. Fernandez CV. IGNITE scientific advisory board GELS update. Halifax NS. June 2012.

Platform presentation.

55. Fernandez CV, McMaster C. The IGNITE project. Update. The IGNITE research symposium

and annual general meeting. Exploring strategies to bridge the gap between bench and

bedside. June 2012. Halifax, NS. Joint Platform presentation.

56. Fernandez CV. Return of incidental findings and research results to guardians or parents of

pediatric probands. Disclosing Genomic Incidental Findings in a Cancer Biobank: An ELSI

Experiment Working Group Workshop. May 2012. Minneapolis. MN. Platform presentation.

57. Fernandez CV. Return of research results to clinical trial participants. Presidential Symposium

(Ethical Dilemmas in Pediatric Hematology/Oncology). American Society of Pediatric

Hematology Oncology annual meeting. May 2012. New Orleans, LA. Platform presentation.

58. Fernandez CV. Canadian Pediatric Cancer Genomics Consortium scientific advisory board

GELS update. April 2012. Vancouver, BC. Platform presentation.

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59. Fernandez CV, Herder M, West M. Orphan Diseases: Policy and Other Societal Implications.

Genome Atlantic Rare Disease Day. February 2012. Halifax, NS. Panel platform

presentation.

60. Fernandez CV, Joffe S, Revera G. Decision making and ethics in a transplant context. POGO

Symposium. Unravelling the mysteries of transplantation. November 2011. Toronto, ON.

Panel platform presentation.

61. Fernandez CV. Research ethics: Challenges and considerations in children. Fourth Halifax

Symposium of ethics in Ophthalmology. October 2011. Halifax, NS. Workshops for national

residents (x 3).

62. Fernandez CV, Orr A. IGNITE. Identifying genes and novel therapeutics to enhance treatment.

Pediatric Grand Rounds. November 2011. Halifax NS. Platform presentation.

63. Fernandez CV. Adolescents and Young Adults with Cancer. Progress 2011. Capital

Health/QEII HSC Cancer Care Program Oncology Grand Rounds. Halifax NS. Provincial

videoconference. March 2011. Platform presentation.

64. Fernandez CV, Li N, Mullen EA. Attitudes and practice towards the management of very low

risk Wilms tumor in the Children’s Oncology Group. SIOP 2010 Annual Meeting. Boston,

MA. October 2010. Platform presentation.

65. Fernandez CV, Davies S, Radloff G, Hauser J, Grundy P, Breslow N, Anderson J. A case-

control study assessing the relationship of GST polymorphisms and the risk of development of

hepatopathy on NWTS-5. SIOP 2010 Annual Meeting. Boston, MA. October 2010. Platform

presentation.

66. Fernandez CV. Informed consent for the treatment of AYA patients with cancer. Texas

Adolescents and Young Adults Symposium. San Antonio, Texas. October 2010. Platform

presentation.

67. Fernandez CV. Beatrice Hunter Cancer Research Institute. Integrated Learning Session.

Long-term consequences of treatment. When is the cost too high? June 2010. Halifax, NS,

with videoconference to Newfoundland. Platform presentation.

68. Fernandez CV, Davies S, Radloff G, Hauser J, Grundy P, Breslow N, Anderson J. A case-

control study assessing the relationship of GST polymorphisms and the risk of development of

hepatopathy on NWTS-5. 7th International Symposium on the Biology of Renal Tumors.

March 2010. Banff, Alta. Platform presentation.

69. Fernandez CV, Li N, Mullen EA. Attitudes and practice towards the management of very low

risk Wilms’ tumor in the Children’s Oncology Group. 7th International Symposium on the

Biology of Renal Tumors. March 2010. Banff, Alta. Platform presentation.

70. Britney McMurter, Louise Parker, Robert B Fraser, Fergall Magee, Christa Kozancyzn, Conrad

V Fernandez. Parental Views on Consent, Tissue Taking and Tissue Banking in Pediatric

Oncology Patients. American Society of Hematology Annual Meeting. New Orleans.

December 2009. Platform presentation by B McMurter.

71. Fernandez CV. The Children’s Oncology Group approach to Low and Standard Risk Wilms’

tumor. The Chemotherapy Foundation Annual Symposium XXVII. NY, NY. November 2009.

Platform presentation.

72. Fernandez CV. Pediatric perspectives on childhood marrow failure. Aplastic Anemia &

Myelodysplasia Association of Canada. Education Day. Halifax, NS. October 2009.

Platform presentation.

73. Fernandez CV. Wilms tumor update. CRA Education Day. Children’s Oncology Group.

Dallas, Texas. October 2009. Platform presentation.

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74. Fernandez CV. Returning results to participants: Researcher, participant and IRB

perspectives. Society of Clinical Research Associates. Annual Meeting. Nashville, TN. Sept

2009. Platform presentation.

75. Fernandez CV. Issues of Assent, Consent and Re-consent in pediatric research. Resident

Academic Rounds. Children’s Hospital of Eastern Ontario. Ottawa. May 2009. Platform

presentation.

76. Fernandez CV. Disclosing study results to research participants. Grand Rounds. Children’s

Hospital of Eastern Ontario. Ottawa. May 2009. Platform presentation.

77. Fernandez CV. Congenital Sideroblastic Anemia. Atlantic Medical Genetics and Genomics

Initiative Annual meeting. Halifax. May 2009. Platform presentation.

78. Fernandez CV. Complications and surveillance: Importance and methods for early detection.

Marrow Failure and Myelodysplasia Conference 2009. Hospital for Sick Children. Toronto.

March 2009. Platform presentation.

79. Fernandez CV. Disclosing research results to participants. C17 National Educational

Videoconference. Montreal, Canada. November 2008.

80. Read K, Fernandez CV, Gao J, Strahlendorf C, Pentz R, Barfield R, Baker J, Moghrabi A,

Kodish E, Santor D, Weijer C. Parental decision-making in health research participation.

Cancer Training Research Program. 2008 Cancer Research Symposium. Halifax, NS.

November 2008. Poster presentation. (Presenter, K. Read).

81. Read K, Fernandez CV, Strahlendorf C, Pentz R, Barfield R, Gao J, Baker J, Moghrabi A,

Kodish E, Santor D, Weijer C. Adolescent decision-making in health research participation.

Cancer Training Research Program. 2008 Cancer Research Symposium. Halifax, NS.

November 2008. Poster presentation. (Presenter, K. Read).

82. Fernandez CV, Strahlendorf C, Santor D, Pentz R, Barfield R, Gao J, Baker J, Kodish E,

Moghrabi A, Weijer C. Adolescent decision-making in clinical trial participation. Annual

Meeting of SIOP. Berlin, Germany. October 2008. Poster presentation.

83. Fernandez CV, Gao J, Strahlendorf C, Pentz R, Barfield R, Baker J, Moghrabi A, Kodish E,

Santor D, Weijer C. Parental decision-making in clinical trial participation. Annual meeting

of SIOP. Berlin, Germany. October 2008. Poster and platform presentation (best poster).

84. Fernandez CV. Disclosing research results to participants. C17 National Educational

Videoconference. Canadian pediatric oncology sites. June 2008.

85. Fernandez CV. Return of research results to participants: considerations in research involving

children. Development of best practices for research involving children and adolescents:

Filling the knowledge gap. NCEHR. St. John’s, Nfld. June 2008. Platform presentation.

86. Angelski C, Fernandez CV, Weijer C, Gao J. The publication of ethically uncertain research:

attitudes and practices of journal editors. 19th Annual Canadian Bioethics Society Conference.

St. John’s, Nfld. June 2008. Platform presentation. (Presenter, C. Angelski).

87. Angelski C, Fernandez CV, Weijer C, Gao J. The publication of ethically uncertain research:

attitudes and practices of journal editors. 20th Annual National Pediatric and Fellow Research

competition. Winnipeg, Manitoba. May 2008. Platform presentation. Presenter, C. Angelski).

88. Fernandez CV. Returning research results to participants. Are we? Should we?

Interdisciplinary Medical Oncology Grand Rounds. Telemedicine province. Halifax, Nova

Scotia. February 2008. Platform presentations.

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89. Fernandez CV. Returning results to research participants. Areas of black, white and grey.

Health Law Institute Seminar Series 2007-2008. Dalhousie University. Halifax, Nova Scotia.

January 2008. Platform presentation.

90. Fernandez CV, Santor D, Weijer C, Strahlendorf C, Moghrabi A, Pentz R, Kodish E, Gao J,

Barfield R. The return of research results to participants: a multicenter study. 2007 SIOP

Annual Meeting. Mumbai, India. November 2007. Poster presentation.

91. Fernandez CV. Disclosure of research results to research participants. Normative and

philosophical considerations. 2007 ASCO/COG Symposium. Considerations in disclosing

study results to research participants. Denver, Colorado. October 2007. Platform

presentation.

92. Fernandez CV. “Ethical Challenges of Funding for Orphan Diseases Research and Treatment”.

Halifax Symposium on Ethics for Residents in Ophthalmology. Three sequential workshops.

Halifax, Nova Scotia. October 2007. Platform presentation.

93. Fernandez CV. Disclosure of research results to participants. What do participants want?

Atlantic Pediatric Hematology Oncology Network Annual Meeting. Halifax, Nova Scotia.

April 2007. Platform presentation.

94. Fernandez CV. Pediatric transfusion - indications and consequences. 2007 Anesthesia

Refresher & Blood Management Meeting. Halifax, Nova Scotia. February 2007. Platform

presentation.

95. Fernandez CV. Error in Pediatric Care (and what we might do about it). Quality and Safety

Symposium. Halifax, Nova Scotia. February 2007. Platform presentation.

96. Fernandez CV, Friedman M, Volpe J. Informed consent for complex protocols? Workshops.

Pediatric Oncology Group of Ontario 2006 Multidisciplinary Symposium on Childhood

Cancer. Childhood leukemia and its broader implications. Toronto, Canada. November 2006.

Platform presentations.

97. Rowan-Legg A, Weijer C, Gao J, Fernandez CV. A 10-year follow-up study on the

requirement for institutional review board approval prior to publication of human research

results. Public Responsibility in Medicine and Research. Annual meeting. (Presenter, A

Rowan-Legg). Washington, USA. November 2006.

98. Lefaivre MJ, Chambers C, Fernandez CV. Offering parents individualized results of psycho-

logical testing conducted for research purposes with children: ethical issues and guidelines.

(Presenter MJ Lefaivre). Ethics Update 2006. Canadian Psychology Association Annual

Meeting. Calgary, Canada. June 2006. Platform presentation.

99. Jillian Baker, Victor Lewis, Conrad Fernandez, Michel Duval, Kim Yuille, Melvin Freedman,

John Doyle, and Yigal Dror. Allogeneic hematopoietic stem cell transplantation of patients

with Fanconi anemia and high-risk features using fludarabine without radiation. 17th Annual

Fanconi Anemia Scientific Symposium. Geneva, Switzerland. September 2005. Poster

presentation. (Presenter, J. Baker.)

100. Fernandez CV. Ethical and philosophical challenges of taking the bench to the bedside.

Education course: Trends in the diagnosis, surveillance and treatment of children with

malignancies - the role of biology and biologicals. International Society of Pediatric Oncology

37th Annual Conference. Vancouver, Canada. September 2005. Platform presentation.

101. Fernandez CV, Santor D, Weijer C, Strahlendorf C, Mohgrabi A, Pentz R, Kodish E. The

Return of research result to potential research participants. Pilot study of adolescents and

parent of children with cancer. International Society of Pediatric Oncology 37th Annual

conference. Vancouver, Canada. September 2005. Poster presentation.

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102. Fernandez CV. Low risk Wilms tumor. Fifth International Conference on Childhood Renal

Tumors. Vancouver, Canada. September 2005. Platform presentation.

103. Gaudet M, Lee CLY, Fernandez CV. Clinical significance of i(7)(q10) as the sole acquired

abnormality in the bone marrow of an infant with Schwachman-Diamond syndrome.

Association of Genetics Technologists Annual Meeting. June 2005. Poster presentation.

(Presenter, M Gaudet).

104. MacNeil SD, Fernandez CV. Informing research participants of research results: analysis of

Canadian university-based Research Ethics Board policies. Canadian Pediatric Society

Annual Meeting. Vancouver, Canada. June 2005. Poster presentation.

105. MacNeil SD, Fernandez CV. Informing research participants of research results: analysis of

Canadian university-based Research Ethics Board policies. “Ethics of Bioethics” Conference.

Albany, NY. April 2005. Platform presentation. (Presenter D MacNeil).

106. Crooks BNA, Dror Y, Fernandez CV, Dooley J. Demyelinating encephalopathy following

second BMT for Fanconi Anemia. Pediatric Bone Marrow Transplantation Update.

Scottsdale, Arizona. January 2005. (Presenter, B Crooks).

107. Conway J, Dyack S, Fernandez CV. Mixed donor chimerism and low level

alpha-1-iduronidase expression may be adequate for neurodevelopmental protection in Hurler’s

syndrome. Pediatric Bone Marrow Transplantation Update. Scottsdale, Arizona. January

2005. (Presenter J Conway).

108. Rigby HB, Fernandez CV. A survey of researchers’ practice in returning research results to

research participants. Oral abstracts presented at ASH Annual meeting 2003. ASH Annual

Meeting 2004. San Diego, CA. December 2004. Poster presentation. (Presenter, H Rigby).

109. Benedict J, Simpson C, Fernandez CV. Informed consent in pediatric bone marrow

transplantation: the parental experience. ASH Annual meeting 2004. San Diego, CA.

December 2004. Poster presentation. (Presenter J Benedict).

110. Fernandez CV. Medication errors in pediatrics. The 7th Pediatric & Women’s Health

Continuing Education Day. Halifax, Nova Scotia. November 2004. Platform presentation.

111. Shalowitz D, Ravitsky V, Kahn J, Fernandez CV. Disclosing research results to participants in

genetic research: clarifying the debate. American Society of Bioethics and Humanities Annual

Meeting. Philadelphia, PA. October 2004. Platform presentation.

112. Fernandez CV. Issues of assent, consent and re-consent in the adolescent. Atlantic Provinces

Pediatric Hematology Oncology Network Annual meeting. Halifax, Nova Scotia. October

2004. Platform presentation.

113. Fernandez CV. Adolescent/young adults with cancer - an orphaned group. Atlantic Provinces

Pediatric Hematology Oncology Network Annual Meeting. Halifax, Nova Scotia. October

2004. Platform presentation.

114. Fernandez CV, Taweel S, Kodish ED, Weijer C. Disclosure of research results to research

participants. Focus group and questionnaire development examining attitudes of participants.

American Society of Hematology Annual Meeting. San Diego, CA. December 2003. Platform

presentation.

115. MacNeil SD, Kodish ED, Fernandez CV. Informing research participants of research results:

An analysis of pediatric informed consent conferences in randomized controlled trials.

American Society of Hematology Annual Meeting. San Diego, CA. December 2003. Platform

presentation. (Presenter, D MacNeil).

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116. Fernandez CV. The Third Halifax Symposium on Health Care Safety. From Theory to

Reality. Pediatric Issues Seminar. Halifax, NS. October 2003. Platform presentation.

117. Fernandez CV, Kodish ED, Taweel S, Shurin SB, Weijer C. Disclosure of the right of research

participants to receive research results: An analysis of consent forms in the Children’s

Oncology Group. American Society of Hematology Annual Meeting. Philadelphia, PA.

December 2002. Platform presentation.

118. Fernandez CV, Kodish ED, Shurin SB, Weijer C. Disclosure of the right of research participants

to receive research results: Attitudes and needs of principal investigators in the Children’s

Oncology Group. American Society of Hematology Annual Meeting. Philadelphia, PA.

December 2002. Poster presentation.

119. Fernandez CV. Disclosure of the right of research participants to receive research results.

Atlantic Provinces Pediatric Hematology Oncology Network Annual Meeting. Halifax, Nova

Scotia. November 2002. Platform presentation.

120. McGibbon A, Beresford L, Sanderson S, Ming-Yu W, Giacomantonio M, Fernandez C,

Cummings E. Precocious puberty in a 4-year-old boy with a mediastinal polyembryoma and

Klinefelter syndrome. Canadian Diabetes Association/Canadian Society of Endocrinology and

Metabolism. Vancouver. October 2002. Poster presentation. (Presenter, A McGibbon).

121. Fernandez CV. Cord Blood Banking. SIOP (International Society of Pediatric Oncology)

Annual meeting. Porto, Portugal. September 2002. Platform presentation.

122. Fernandez CV. Error in Pediatric Medicine. Nova Scotia Branch Canadian Society of

Hospital Pharmacists. Continuing Education Day. Halifax, Nova Scotia. May 2002.

Platform presentation.

123. Fernandez CV. Returning research results to research participants. Children’s Oncology

Group Semi-Annual Meeting. Symposium: You Just don’t understand: Investigators and

subjects in conversation. Jacksonville, Florida. April 2002. Platform presentation.

124. Fernandez CV. Cord Blood Transplantation. Canadian College of Medical Genetics and

Canadian Association of Genetic Counsellors. Annual Meeting. Symposium: Pushing the

Edge of the Envelope. Halifax, Nova Scotia. December 2001. Platform presentation.

125. Fernandez CV. Cord Blood Stem Cell Transplantation. Atlantic Provinces Pediatric

Hematology Oncology Network. Annual meeting. Halifax, Nova Scotia. November 2001.

Platform presentation.

126. Fernandez CV. Cord Blood Stem Cell Transplantation. Atlantic Provinces Pediatric Meeting.

Halifax, Nova Scotia. September 2001. Platform presentation.

127. Fernandez CV. Pediatric Medical Error. Medical Error Symposium: Frontline Approaches to

Clinical Practice. Halifax, Nova Scotia. August 2001. Platform presentation.

128. Fernandez CV. Attitudes of pregnant women to cord blood stem cell collection, testing and

donation. American Society of Clinical Oncology. Annual Meeting. San Francisco, USA.

May 2001. Poster presentation.

129. Fernandez CV. Attitudes of pregnant women to cord blood stem cell collection, testing and

donation. American Society of Clinical Oncology. Virtual Meeting (www.asco.org). San

Francisco, USA. May 2001.

130. Chan HSL, Calderwood S, Heon E, Fernandez CV, Blaser S, Budning A, Saunders EF, Doyle

J, Gallie BL. Combined intensive multimodality therapy successfully treats ocular extension of

retinoblastoma. 13th International Symposium for Genetic Eye Diseases and the 10th

International Symposium on Retinoblastoma. Florida, USA. May 2001. Poster presentation.

(Presenter, HSL Chan).

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131. Fernandez CV. Can we prevent Cytotoxic Disasters? St. John Regional Hospital, Grand

Rounds. Saint John, New Brunswick. January 2001. Platform presentation.

132. Fernandez CV. Alternative and Complementary Therapies: A conventional medicine

perspective. Candlelighter’s 4th International Conference on Childhood Cancer. Toronto,

Canada. August 2000. Platform presentation.

133. H. McMulkin, N. L. Yanchar, C. V. Fernandez. Sentinel lymph node mapping and dissection -

a valuable modern management of childhood extremity rhabdomyosarcoma. Canadian

Association of Pediatric Surgeons. Ottawa, Canada. August 2000. Poster presentation.

(Presenter, H McMulkin)

134. Fernandez CV. A unique 6q21;15q21 translocation identified in a Wilms’ tumor. American

Society of Clinical Oncology. Annual Meeting. New Orleans, USA. May 2000. Poster

presentation.

135. Fernandez CV. Wilson’s disease - Hematological Manifestations. Atlantic Provinces

Pediatric Meeting. Halifax, Nova Scotia. October 1998. Platform presentation.

136. Fernandez CV. Alternative and Complementary Therapies. Atlantic Provinces Pediatric

Meeting. Halifax, Nova Scotia. October 1998. Platform presentation.

137. Fernandez CV. Assent and dissent to research in children with chronic, life-threatening illness.

Workshop on Assent and Dissent in Research involving Children. Halifax, Nova Scotia. March

1998. Platform presentation.

138. Fernandez CV, Freyer C, Stutzer C. Prevalence of and reasons for use or non-use of

alternative/complementary therapies in pediatric oncology patients. A survey of patients at

BC’s Children’s Hospital. Canadian Bone Marrow Transplant Group Annual Meeting.

Vancouver, British Columbia. March 1998. Platform presentation.

139. Fernandez CV. Prevalence of and reasons for use or non-use of alternative/complementary

therapies in pediatric oncology patients. A survey of patients at BC’s Children’s Hospital.

Association of Pediatric Oncology Nurses, British Columbia Chapter. Vancouver, British

Columbia. February 1997. Platform Presentation.

140. Stutzer C, Esau R, Fernandez CV, Lange B, Rosen-Harris B. Pediatric Oncology Pain

Management Guidelines. International Association for the Study of Pain, 8th World Congress.

Vancouver, BC. 1996.

141. Fernandez CV, Freyer C, Stutzer C. Prevalence of and reasons for use or non-use of

alternative/complementary therapies in pediatric oncology patients. A survey of patients at

BC’s Children’s Hospital. American Society of Pediatric Hematology/Oncology Annual

Meeting. Chicago, Illinois. October 1996. Platform presentation.

142. Fernandez CV. Childhood Cancer and the Family: Forward to the Future. Alternative/

complementary therapies in pediatric oncology. Candlelighter’s Childhood Cancer

Foundation. Calgary, Canada. August 1996. Platform presentation.

143. Fernandez CV, Salisbury S. Long-term outcome of childhood craniopharyngioma. Royal

College of Physicians and Surgeons of Canada, Annual Meeting. Canadian Society of

Endocrinology and Metabolism, Scientific Program. Toronto, Canada. September 1994.

Platform presentation.

144. Fernandez CV, Rees E. Survey of Pain Management in Canadian Level III Neonatal Intensive

Care Units. Canadian Pediatric Society, Scientific Program, Vancouver, Canada. Vancouver,

Canada. June 1993. Platform presentation.

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145. Fernandez CV, Rees E. Survey of Pain Management in Canadian Level III Neonatal Intensive

Care Units. Eastern Society for Pediatric Research, American Federation for Clinical

Research, Joint Meeting. New York, USA. October 1992. Platform presentation.

146. Fernandez CV, Bortolussi R, Gordon KE, Gatien GJ, Lee SHS, Shadrabadi MS. Mycoplasma

pneumoniae infection associated with central nervous system complications. A report of two

cases and a review of the literature. Third Annual Pediatric Residents and Fellows Research

Symposium, University of Manitoba. Winnipeg, Manitoba. May 1991. Platform presentation.

147. Fernandez CV, Bortolussi R, Gordon KE, Gatien JG, Lee SHS, Shadrabadi MS. Mycoplasma

pneumoniae infection associated with central nervous system infection. A report of two cases

and a review of the literature. Royal College of Physicians and Surgeons of Canada, Annual

Meeting. Canadian Pediatric Society, Scientific Program. Toronto, Ontario. September 1990.

Platform presentation.

PRESENTATIONS (Local):

(All presentations by Fernandez unless noted)

1. Fernandez CV. Pediatric Solid tumors. Pediatric residents academic half day. IWK Health

Centre. Halifax, NS. 25 March 2020 (1 hour)

2. Fernandez CV. Acute lymphoblastic leukemia in children. Pediatric Residents academic Half

Day. (1 hour). Halifax, NS. 10 March 2020

3. Fernandez CV. Oncology Emergencies for the ER physician with a focus on solid tumors. ER

subspecialty fellow Rounds. (1.5 hours). Halifax NS. 7 Aug 2019.

4. Fernandez CV. Pediatric Solid tumors. Pediatric residents academic half day. IWK Health

Centre. Halifax, NS. 26 March 2019 (1 hour)

5. Fernandez CV. Pediatric Oncology perspectives. Physiotherapy lecture series (Year 2).

Dalhouise University. Halifax, NS. 20 March 2019. (1 hour)

6. Fernandez CV. Pediatric Renal tumors. Small group session. Pediatric Oncology NP. Halifax

NS. 7 March 2019.

7. Fernandez CV. An approach to soft tissue sarcomas in pediatric and adolescent patients.

Pediatric NP and resident teaching. 6 March 2019. (1 hour)

8. Fernandez CV. Profyle. Lunch and Learn Laboratory Services. IWK Health Centre, Halifax,

NS. 5 February 2019.

9. Fernandez CV. Oncology Emergencies. Small group session. Pediatric Oncology NP and

resident teaching. Halifax, NS. 4 February 2019

10. Fernandez CV. Iron deficiency. An anemia with Harm. Pediatric Resident Seminars. Halifax,

NS. 22 January 2019.

11. Fernandez CV. Precision medicine in Pediatric Oncology. Hopes, Limits and Ethical

Challenges. Pediatric Grand Rounds. IWK Health Centre. Halfiax, NS. 16 January 2019.

12. Fernandez CV. PROFYLE. Implementation at the IWK Health Centre. Academic Rounds

Pediatric Hematology Oncology Service. IWK Health Centre. Halifax, NS. 21 December

2018.

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13. Fernandez CV. The impact of using genomics in childhood kidney cancer. Laboratory

Genetics Journal Club. IWK Health Centre Halifax, NS. 28 November 2018.

14. Fernandez CV. Oncology emergencies. Pediatric Resident Orientation Seminars. IWK Health

Centre. Halifax, NS. 17 July 2018. (1 hour)

15. Fernandez CV. Renal tumors and Neuroblastoma. Pediatric Surgery Academic Rounds. IWK

Health Centre. Halifax, NS. 28 May 2018 (2 hours)

16. Fernandez CV. Pediatric Oncology perspectives. Physiotherapy lecture series (Year 2).

Dalhouise University. Halifax, NS. 18 April 2018. (1 hour)

17. Fernandez CV. Oncology Emergencies for the ER physician with a focus on solid tumors. ER

subspecialty fellow Rounds. (1.5 hours). Halifax NS. 17 Jan 2018.

18. Fernandez CV and Gallant G. Thalassemia and Bone Marrow Transplantation. ISANS.

Parent information session (3 hours). Halifax NS. 11 May 2017

19. Fernandez CV. Pediatric Oncology Perspectives. Physiotherapy Lecture Series (Year 2).

Dalhousie University. Halifax, NS. 10 May 2017.

20. Fernandez CV and Berman JN. PROFYLE. Clinical site initiation. Pediatric Hematology

Oncology Academic rounds lecture series. Halifax NS. 13 March 2017.

21. Fernandez CV. Renal tumors and the Genome. Human Genetics Research Seminar Series.

LSRI. Halifax, NS. 15 February 2017.

22. Fernandez CV. COG renal tumors: Update and plans. Pediatric Hematology Oncology

Academic rounds lecture series. Halifax NS. 10 February 2017.

23. Steve Jones, Chris McMaster, Conrad Fernandez, Andrew Burke, Johan Van Limbergen,

James Cowan. Research and the Future of Health Care: Using genetics to find new treatments

of disease. Panel presentation. Piccione lecture series. Halifax Central Library. Halifax, NS.

17 January 2017.

24. Fernandez CV. Pediatric Oncology Perspectives. Physiotherapy Lecture Series (Year 2).

Dalhousie University. Halifax, NS. 31 March 2016.

25. Fernandez CV. Oncology solid tumor presentations in Emergency Department. Pediatric

Emergency Resident Rounds. Dalhousie University. 23 September 2015.

26. Fernandez CV. Pediatric Oncology Perspectives. Physiotherapy Lecture Series (Year 2).

Dalhousie University. Halifax, NS. 31 March 2015.

27. Fernandez CV. Genomics and incidental findings – using paediatric cancer as a model to

explore new ethical challenges. Works in Progress series. Department of Bioethics. 9

February 2015.

28. Fernandez CV. Pediatric Oncology Chemotherapy Perspectives. Pediatric Residents Academic

Half Day rounds.2 December 2014.

29. Fernandez CV. IBMFS: A clinical approach and recent updates. Pediatric Residents Academic

Half Day rounds.2 December 2014.

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30. Fernandez CV. Pediatric Oncology Perspectives. Physiotherapy Lecture Series (Year 2).

Dalhousie University. Halifax, NS. 9 April 2014.

31. Fernandez CV. Advances in the care of children with Wilms tumor. BHCRI Seminar Series

Session. 7 April 2014.

32. Fernandez CV. An embarrassment of riches: returning results in the age of genomics. Dr.

Tom Marrie Lecture Series. 28 February 2014.

33. Fernandez CV. Challenges and opportunities in AYA cancer Care in the Maritimes. Children’s

Health Program. 3 February 2014.

34. Fernandez CV. The return of research results in the genomic age. IWK Health Centre

Laboratory Genetics Journal Club lecture. 18 November 2013.

35. Fernandez CV. Oncology Emergencies. Pediatric Residents Academic Half Day rounds. May

2013.

36. Fernandez CV. Challenges and opportunities in pediatric oncology care in the Maritimes.

Cancer Care Nova Scotia Advisory Board. Halifax, NS. April 2013.

37. Fernandez CV. Pediatric Oncology Perspectives. Physiotherapy Lecture Series (Year 2).

Dalhousie University. Halifax, NS. March 2013.

38. Fernandez CV. Disclosing a summary of study results to participants. COG return of results

taskforce. Pediatric Hematology/Oncology Academic Half Day. Halifax, NS. March 2013.

39. Fernandez CV. Adolescent and Young Adults with Cancer: Progress 2012 and Beyond.

Pediatric Residents Academic Half Day rounds. December 2012.

40. McMaster C and Fernandez CV. Orphan diseases: Identifying genes and novel therapeutics to

enhance treatment. Department of Medicine Grand Rounds. Halifax, NS. September 2012.

41. Fernandez CV. Return of results – aggregate and individual. Hematology/Hematopathology

Fellow Ethics Series. Halifax, NS. June 2012.

42. Fernandez CV, McMaster C, Grant D. IGNITE – science, GE3LS and IP. Medical Genetics

Rounds. Halifax, NS. February 2012.

43. Fernandez CV. Pediatric Oncology. Late effects. Pediatric Residents Seminar Series. Halifax.

NS. November. 2011.

44. Fernandez CV. Research Ethics. Adult Hematopathology Ethics Series. Halifax. NS. June

2011.

45. Fernandez CV. Pediatric Oncology Perspectives. Physiotherapy Lecture Series (Year 2).

Dalhousie University. Halifax, NS. March 2011.

46. Fernandez CV. Navigating the REB. Academic Skills. Pediatrics and Obstetrics and

Gynecology Residents. IWK Health Centre. Halifax NS. February 2011.

47. Fernandez CV. Consent for research participation. Challenges and considerations. Vision

Research Study Group (PVRSG). IWK Health Centre. Halifax, NS. Platform presentation.

November 2010.

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48. Fernandez CV. The ethics of bioethics. Unravelling the mysteries of the Research Ethics

Board. Department of Pediatrics Research Day. Halifax, NS. Platform presentation. April

2010.

49. Fernandez CV. Pediatric Oncology Perspectives. Physiotherapy Lecture series. Department

of Physiotherapy. Halifax, NS. April 2010.

50. Marjerrison SL, Fernandez CV, Price VE, Njume E, Hesseling P. Use of Ultrasound in

Diagnosis in endemic Burkitt Lympoma in Cameroon. Department of Pediatrics Research

Day. Halifax, NS. (Marjerrison, presenter, mini-poster talk). April 2010.

51. Gardiner RB, Berman JN, Riddell C, Gaudet M, Fernandez CV, Yhap M, Morash B. The

incidence and prognostic significance of 9p21 abnormalities in pediatric ALL patients - the

IWK experience. Department of Pediatrics Research Day. Halifax, NS. (Gardiner, presenter,

mini-poster talk). April 2010.

52. Fernandez CV and Nicholson D. Navigating the REB. Academic Skills. Pediatrics and

Obstetrics and Gynecology Residents. Halifax, NS. February 2010.

53. Fernandez CV. Consent review. IWK Research Ethics Board Annual Retreat. Halifax, NS.

January 2010.

54. Fernandez CV and Campbell D. Integrated Ethics. Dalhousie University Medical Student

Coffee House Case Discussions. November 2009.

55. Fernandez CV. Error and disclosure in pediatric care. Fellows CANMEDS Academic Rounds.

IWK Health Centre. Halifax, NS. May 2009.

56. Fernandez CV and Diann Nicholson. Navigating the REB. Academic Skills Course. Pediatric

Residents. IWK Health Centre. Halifax, NS. January 2009.

57. Read K, Fernandez CV, Gao J, Strahlendorf C, Pentz R, Barfield R, Baker J, Moghrabi A,

Kodish E, Santor D, Weijer C. Parental decision-making in health research participation.

Interdisciplinary Research Conference. Health Services Research: Evidence Informing

Action. Halifax, NS. November 2008. (K Read, poster presenter)

58. Fernandez CV. Favourable histology Wilms’ tumor. A work in progress. Dept of Pediatrics.

Research Day. Platform presentation. October 2008.

59. Fernandez CV, Vaughn A. Ethics of decision making in children with serious illness. Med I

Panel Discussion. Halifax, NS. September 2008.

60. Parker L, Berman J, Bernstein M, Fernandez CV. Childhood cancer research: zebrafish,

periwinkles, power lines, and ethical dilemmas. Halifax, Nova Scotia. (joint

presentations).Café Scientifique. Halifax, NS. June 2008.

61. Fernandez CV, Hall R, Simpson C. The importance of ethics review. Summer Student

Program. Dalhousie University. Halifax, NS. (Joint presentations.) June 2008.

62. Fernandez CV. REB process. Interdisciplinary Research Program - Research Design Course.

Platform presentation. IWK Health Center. Halifax, Nova Scotia. May 2008.

63. Craig T, Chambers CT, Cummings E, Deacon SH, Gillespie J, Fernandez C, Kay-Raining Bird

E. Expressive and receptive pain language and its relationship to general language

development among children with and without medical conditions: A work in progress. Dept

of Pediatrics Research Day. Platform presentation. (Craig, presenter). May 2008.

64. Cox K, Fernandez C, Chambers CT, Craig T, Bandstra N. Impact on parents of receiving

individualized feedback on research results. Dept of Pediatrics Research Day. Poster. (K

Cox, presenter). May 2008.

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65. Fernandez CV. Cerebral X-linked adrenoleukodystrophy. Case presentation to visiting

speaker. IWK Health Centre. Halifax, NS. April 2008.

66. Fernandez CV and Diann Nicholson. Navigating the REB. Academic Skills Course. Pediatric

residents. IWK Health Centre. Halifax, NS. February 2008.

67. Fernandez CV. Returning result to research participants. WIPS. Dept of Bioethics. Halifax,

NS. January 2008.

68. Fernandez CV. Returning results to research participants. IWK REB Retreat. Halifax, NS.

January 2008.

69. Fernandez CV. A clinical and research path to integrating bioethics in a career. Med I

Seminar with Drs. Curvin, Kirby and Robinson. Halifax, NS. September 2007.

70. Fernandez CV. Neurosurgery - navigating the REB. Seminar. Neurosurgery Residents.

Halifax, NS. July 2007.

71. Fernandez CV. Guidelines for the ethical conduct of collection of tissue for research purposes.

Works in Progress Seminar. Department of Pediatrics. Halifax, NS. June 2007.

72. Finlay KA, Fernandez CV. Failure to Report and Provide Commentary on Research Ethics

Board Approval and Informed Consent in the Literature. Poster and Platform presentation.

Department of Pediatrics Research Day. (Presenter Finlay) Halifax, NS. April 2007.

73. Kozanczyn C, Collins K, Fernandez CV. Providing Research Results to Study Participants: US

Institutional Review Board Guidance. Poster presentation. Department of Pediatrics Research

Day. (Presenter Kozanczyn) Halifax, NS. April 2007.

74. Kozanczyn C, Collins K, Fernandez CV. Providing Research Results to Study Participants: US

Institutional Review Board Guidance. Poster and Platform presentation. (Presenter,

Kozanczyn). Dalhousie Medical School Research Day. Halifax, NS. February 2007.

75. Fernandez CV. Success stories and challenges in pediatric oncology. Pediatric Residents.

IWK Health Centre. Dalhousie University. Halifax, NS. March 2007.

76. Fernandez CV and Diann Nicholson. Navigating the REB. Academic Skills Course. Pediatric

residents. IWK Health Centre. Halifax, NS. February 2007.

77. Fernandez CV. Success stories and challenges in pediatric oncology. Cancer Research

Training Program. Dalhousie University. Halifax, NS. December 2006.

78. Fernandez CV. Offering to return research results to research participants: Evidence and

questions. Works in Progress session. Department of Bioethics. Dalhousie University. May

2006.

79. A Rowan Legg, Charles Weijer, Jun Gao, Conrad Fernandez. A 10-year follow up study on

the requirement for research ethics board approval prior to publication of human research

results. Dept of Pediatrics Research Day. (Presenter, A. Rowan Legg) May 2006.

80. H Rigby, J Langley, T Mailman, A Higgins, BNA Crooks, CV Fernandez. Utility and cost of

surveillance central line blood cultures in the early detection of asymptomatic bloodstream

infections in pediatric patients following hematopoietic bone marrow transplantation. Dept. of

Pediatrics Research Day. (Presenter, H Rigby) May 2006.

81. Fernandez CV. Navigating the REB. Academic Skills Course. Pediatric residents. IWK

Health Centre. January 2006.

82. Fernandez CV, C Spicer. Infection control procedures for autologous bone marrow transplant

patients. 6N In-patients. IWK Health Centre. July 2005.

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83. CV Fernandez, T Jurgens, J Brown, E Cooper, L Frankton, A MacLellan, P Milroy, A Otley.

The experience of complementary and alternative health care practitioners caring for children

and youth in Nova Scotia. Dalhousie School of Nursing Annual Research Conference.

(Presenter, J Brown). June 2005.

84. Conway J, Dyack S, Crooks BNA, Fernandez CV. Mixed donor chimerism and low level

iduronidase expression may be adequate for neurodevelopmental protection in Hurler’s

syndrome. Dept. of Pediatrics Research Day. (Presenter, J. Conway). April 2005.

85. Rigby HB, Fernandez CV. A survey of researchers’ practice in returning research results to

research participants. Oral abstracts presented at ASH Annual Meeting 2003. Dept. of

Pediatrics Research Day. (Presenter, H Rigby). April 2005.

86. MacNeil SD, Fernandez CV. Informing research participants of research results: An analysis

of the attitudes of Canadian university-based Research Ethics Board chairs. Dept. of Pediatrics

Research Day. (Presenter, D MacNeil). April 2005.

87. M Lefaivre, CT Chambers, Fernandez CV. Providing parents with individualized feedback on

results of psychological testing conducted for research purposes with children: Ethical issues

and guidelines. Dept. of Pediatrics Research Day. (Presenter, M Lefaivre). April 2005.

88. Fernandez CV. Adolescents/young adults with cancer: An orphan population. QEII Medical

Oncology Grand Rounds (telehealth transmission to Nova Scotia sites). April 2005.

89. Fernandez CV. Pediatric Oncology emergencies. Pediatric Residents. IWK Health Centre.

March 2005.

90. Fernandez CV. Success stories in Pediatric Oncology. Cancer Research Training Program.

Dalhousie University. Halifax, NS. May 2004.

91. Fernandez CV. Pediatric Oncology. Radiotherapy Residents. QEII. Halifax, NS. April 2004.

92. Rigby H, Yu W, Fernandez CV. Lack of efficacy of Gleevic in Pecoma. Poster. Dept of

Pediatrics Research Day. (Rigby - presenter; Fernandez - supervisor). May 2004.

93. Benedict J, Simpson C, Fernandez CV. A survey of parental perceptions of the informed

consent process in pediatric bone marrow transplantation (BMT). Platform presentation. Dept

Pediatrics Research Day. (Benedict - presenter; Fernandez - supervisor). May 2004.

94. MacNeil SD, Kodish ED, Fernandez CV. Informing research participants of research results:

An analysis of pediatric informed consent conferences in randomized controlled trials. Poster.

Dept. of Pediatrics Research Day. (MacNeil - presenter; Fernandez - supervisor). May 2004.

95. Fernandez CV, Taweel S, Kodish ED, Weijer C. Disclosure of research result to research

participants: Needs and attitudes of adolescents and parents. Poster. Dept. of Pediatrics

Research Day. May 2004.

96. Benedict J, Simpson C, Fernandez CV. A survey of parental perceptions of the informed

consent process in pediatric bone marrow transplantation (BMT). Faculty of Medicine Medical

Student Research Day. Poster. (Benedict, presenter; Fernandez, supervisor). December 2003.

97. MacNeil SD, Kodish ED, Fernandez CV. Informing research participants of research results:

An analysis of pediatric informed consent conferences in randomized controlled trials. Faculty

of Medicine Medical Student Research day. Poster. (MacNeil, presenter; Fernandez,

supervisor). December 2003.

98. Macfarlane RJ, McCully BJ, Fernandez CV. Is exchange transfusion or leukopheresis needed

for leukemia patients with hyperleukocytosis when treated with recombinant urate oxidase?

Poster. Dept. of Pediatrics Research Day. (Macfarlane - presenter; Fernandez - supervisor).

June 2003.

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99. Fernandez CV, Kodish ED, Taweel S, Shurin SB, Weijer C. Disclosure of the right of research

participants to receive research results: An analysis of consent forms in the Children’s

Oncology Group. Platform presentation. Dept. of Pediatrics Research Day. Halifax, Nova

Scotia. June 2003.

100. Fernandez CV, Kodish ED, Shurin SB, Weijer C. Disclosure of the right of research

participants to receive research results: Attitudes and needs of principal investigators in the

Children’s Oncology Group. Poster. Dept of Pediatrics Research Day. Halifax, NS. June

2003

101. Fernandez CV. Error recognition in mortality review. IWK Pediatric Residents. January

2003.

102. Fernandez CV. Pediatric acute lymphoblastic leukemia. Hematology Grand Rounds. QEII.

January 2003.

103. Fernandez CV. Cord blood stem cell transplantation. Family Medicine Grand Rounds. IWK.

November 2002.

104. Fernandez CV. Disclosure of results to research participants. Hematology Grand Rounds.

QEII. November 2002.

105. Fernandez CV. Attitudes of pregnant women to cord blood collection, testing and storage.

Dept. of Pediatrics Research Day. Halifax, NS. May 2001.

106. Fernandez CV. Cytotoxic disasters. Grand Rounds, Dept of Pediatrics. IWK. March 2001.

107. Fernandez CV. Cytotoxic disasters. Hematology Grand Rounds. QEII. June 2001.

108. Fernandez CV. Cord blood stem cell transplantation. Division of Cytogenetics. IWK. October

2001.

109. Fernandez CV. Oncologic emergencies. Pediatric Residents. IWK. 2000.

110. Fernandez CV. Graft vs host disease. Nursing Rounds. IWK. July 1999.

111. Fernandez CV. Cord blood stem cell transplantation. Hematology Grand Rounds. QEII.

February 1999.

112. Fernandez CV. Stem cell transplantation: late complications. Nursing Rounds. IWK.

December 1998.

113. Fernandez CV. Ethics: best interests of child. (Presenter, C. Simpson). Faculty

representative. November 1998.

114. Fernandez CV. Stem cell transplantation: acute complications. Nursing Rounds. IWK.

November 1998.

115. Fernandez CV. Stem cell transplantation. Pediatric Grand Rounds. IWK Health Centre.

October 1998.

116. Fernandez CV. Wilson’s disease - hematological manifestations. Atlantic Provinces Pediatric

Meeting. October 1998.

117. Fernandez CV. Neonatal thrombocytopenia. Pediatric Residents. IWK Health Centre.

October 1998.

118. Fernandez CV. Stem cell transplantation: acute complications. Nursing Rounds. IWK Health

Centre. August 1998.

(Please contact me for a list of local presentations prior to 1998).

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GRANTS (Peer-reviewed, Awarded):

Date (Start – Finish)

Title Granting Agency Role Total Amt. (Cdn $)

2020-2023 Access to precision therapies for

young people with cancer: A

comparative health systems and

policy analysis

Terry Fox Research

Institute new

Investigtor with

CIHR-ICR 2019

Co-investigator

A Denburg PI

2019 - 2021 Identification of genetic changes

associated with relapse and/or adaptive resistance in patients

registered as Favorable

Histology Wilms tumor on

AREN03B2

Beau Biden Cancer

Moonshot

MP2PRT

Co-investigator

E Perlman PI

$ 189,530.00

US

2018-2022 The Pain Squad+ smartphone

app to support real-time pain

management for adolescents with cancer: a randomized

controlled trial.

CIHR Project Grant Co-investigator

JN Stinson and L Jibb PI

$573,752.00

2018-2021 The Pain Squad+ smartphone

app to support real-time pain management for adolescents

with cancer: a randomized

controlled trial.

Canadian Cancer

Society Research Institute

Quality of Life Grant

Co-investigator

JN Stinson and L

Jibb PI

$176,248

2018-19 Development of Liquid Biopsy Assays for Wilms Tumor

Translational Pilot Studies for Solid

Malignancies in the

Children’s Oncology Group

Co-Investigator

Walz/Crompton PIs

$75,000 US

Jan 2017 –

Jan 2018

Febrile Neutropenia in Atlantic

Canada Pediatric Population, are

we adhering to the Clinical Guidelines?

TRIC – IWK/NSHA Scientific co-PI $7000.00

June 2016 –

June 2021

The Terry Fox PROFYLE

project

TFRI Ethics Node Lead

Co-PI

(Director Malkin)

$25,000,000.00

Oct 2015-

Sept 2016

Familial Wilms RNA seq

project

Coast to Coast (not

peer reviewed) Co-investigator

K Bedard PI

$10,000.00

Aug 2015-

July 2017

Cancer Pain Assessment and

Management in Children: Using

Social Media to Bridge the Gap

Canadian Cancer

Society Research

Institute

KTA grant

Co-investigator

C Chambers co-PI

C Stinson co-PI

$100,000.00

over 2 years

July – Dec

2015

Sideroblastic Anemia treatment

with Glycine/Folate

Coast to Coast Supervisor $3600.04

July 2014-

June 2016

Canadian Aplastic Anemia and

Myelodysplastic Syndrome Study (CAMS)

C17 Research

Network And Alexion

Co-investigator

Y Dror PI

$90,000.00

C17 +$60,000

Alexion

May 2014- Dec 2014

Parental Involvement to Reduce Pain in Children with Acute

Lymphoblastic Leukemia

Nursing Research and Development Fund

Co-investigator

Amanda Bettle PI

$3,881.60

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Date (Start – Finish)

Title Granting Agency Role Total Amt. (Cdn $)

2013 - 2018 Canadian Inherited Marrow

Failure Registry - Inherited bone

marrow failure syndromes: from

gene discoveries to pathobiology

CIHR Co-investigator

Y Dror PI

$760,000.00

Mar 2013 –

Mar 2017

(NCE 2018)

Biomarkers and therapeutic

stratification of pediatric

glioblastoma through genomics and epigenomics

Genome Canada

Large Scale Applied

Research

Co-investigator

Jabado PI

$6,567,000.00

Feb 2013-

Feb 2014

Catastrophizing and Parenting

During Parent-Child Interactions

About Pain and Conflict

Department of

Psychiatry research

fund

Co-investigator

K Birnie PI

$10,000.00

Sept 2012-

Sept 2014

Canadian Inherited Marrow

Failure Registry - Bone Marrow

Failure-causing Alleles in Canada and Genotype-

Phenotype

C17 Research

Network

Co-investigator

Dror PI

$200,000.00

July 2011 -Dec 2014

Identifying New Genes and Medicines for the Treatment of

Orphan Diseases (IGNITE)

Genome Canada - Large Scale Applied

Research

Co-Project Leader

McMaster Co-PI

$4,825,936.00 ($2,374,541.00

from GC)

July 2011-

June 2013

Drinking water quality and

cancer risk: Translating epidemiological evidence into

risk reduction policy

CIHR Co-investigator

Dummer PI

$196,570.00

Mar 2011 -

Mar 2012 The Canadian Pediatric

Cancer Genome Consortium:

Unravelling the genetic basis

of childhood cancer through

next-generation sequencing

Genome Canada -

CIHR Advancing Technology Innovation

through Discovery

Co-investigator

Sorenson PI

$2,500,000.00

Jan 2011 -Jan

2012

The Canadian Pediatric Genetic

Disorders Sequencing

Consortium (FORGE)

Genome Canada-

CIHR Advancing

Technology Innovation

through Discovery

Collaborator

Boycott PI

$3,000,000.00

July 2010 -

June 2012

Quality of life assessment in a

phase III study of BMT versus

chemotherapy in high risk relapsed Wilms' tumor.

C17 Research

Network -

Candlelighter’s

Principal

Investigator

$43,397.00

June 2010 -

June 2011 Urinary metabolite profiles in

Wilms’ tumor

IWK Category B Co-investigator

MacLellan PI

$10,250.00

2010 - 2011 Pain Experiences of

Hospitalized Children

IWK Category A Co-investigator

Birnie PI

$4,000.00

2009 - 2014 Cancer Research Training

Program: A research legacy for

Atlantic Canada

CIHR Co-principal

applicant

$1,625,000.00

June 2009 - June 2010

Pertussis vaccination in BMT patients.

Canadian Bone Marrow Transplant

Group

Principal Investigator

$3,000.00

June 2009 - 2011

Development of the P-SCS: The Pediatric Supportive Care Scale

C17 Research Network - Candlelighter’s

Co-Investigator

Zelcer PI

$113,374.00

June 2009-

2012

STOPP- AVN C17 Research

Network

Co-Principal

Investigator

$3900 (IWK support)

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Date (Start – Finish)

Title Granting Agency Role Total Amt. (Cdn $)

June 2009 -

Aug 2009

Parental views on consent, tissue

taking and tissue banking in

pediatric COG populations

IWK Summer

Studentship

Co-investigator

(Supervisor)

McMurter PI

$2,500.00

June 2009 - Aug 2009

Parental views on Consent, Tissue Taking and Tissue

Banking in Pediatric COG

populations

IWK Category A Principal investigator

$492.00

May 2009 -

May 2010

Influence of genetic

polymorphisms for GST on

occurrence of hepatotoxicity in

Wilms’ tumor patients

Hope Hart Johnson

Fund

Principal

Investigator

$4,900.00

July 2008 -

June 2010

Quality of life assessment in a

phase III study of BMT versus

chemotherapy in high risk relapsed Wilms' tumor.

Dalhousie Cancer

Research Program

Principal

Investigator

$43,827.00

June 2007 -

June 2008

A Survey of Editorial Practice &

Policy in the Publication of

Ethically Suspect Research.

IWK Category A Co-investigator

(Supervisor)

$2,700.00

June 2006 -

Aug 2006

Informing Research Participants

of Research Results: Analysis of

selected American University-

Based Institutional Review Boards Policies.

IWK Summer

Studentship Research

Program (joint with grant below)

Co-Investigator

(Supervisor)

$2,125.50

June 2006 -

Aug 2006

Informing Research Participants

of Research Results: Analysis of selected American University-

Based Institutional Review

Boards Policies.

Dalhousie

Undergraduate Medical Student

Summer Research

Program

Co-investigator

(Supervisor)

$2,125.50

May 2006 -Apr 2007

Routine bone marrow examination in the initial

evaluation of pediatric

Hodgkin’s disease: the Canadian perspective.

IWK Category A Co-investigator (15%)

$2,350.00

Jan 2006 -

Jan 2007

Utility and cost of surveillance

central line blood cultures in the

early detection of asymptomatic bloodstream infections in non-

neutropenic pediatric patients

following hematopoietic stem cell transplantation.

IWK Category A Co-Investigator

(Supervisor)

$3,800.00

Oct 2005 -

Oct 2006

A 10-year follow-up study on the

requirements for research ethics

board approval prior to publication of human research

results

IWK Category A Co-Investigator

(Supervisor)

$2,300.00

May 2005 -

May 2006

Expressive and receptive pain

language in healthy children and children with medical conditions

IWK Category A Co-Investigator $4,000.00

May 2005 -

May 2006

Alternative therapy use in

children with chronic illness

IWK Category A Co-Investigator $4,000.00

Sept 2004 - Aug 2006

A possible role for hepcidin in anemia associated with systemic

onset juvenile idiopathic arthritis

(SoJIA)

IWK Category A Co-Investigator $4,932.59

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Date (Start – Finish)

Title Granting Agency Role Total Amt. (Cdn $)

June 2004 -

May 2005

Return of research results to

research participants. ASH

abstracts

HOIC

Summer Studentship

Co-Investigator

(Supervisor)

$3,633.75

Apr 2004 - Mar 2007

Return of research results to research participants. Attitudes

and needs of participants

CIHR - Strategic Initiative - Ethics

Principal Investigator

$143,587.00

Mar 2004 -

Mar 2005

A survey of parental perceptions

of the informed consent process in pediatric bone marrow

transplantation Supplemental

funds

Catherine Betts Fund

and Hemat/Oncology Endowed Fund

Co-Investigator

(Supervisor)

$2,908.78

Feb 2004 -

Aug 2016

Phase III study of very low, low

and standard risk Wilms Tumor

NCCF

U10 CA98543-02

Principal

Investigator

$14,569.10 Per

yr x 9 yrs

July 2003 -

Dec 2004

Return of research results to

research participants: 1. Attitudes of REB chairs.

2. Canadian REB policies.

IWK Research Office

Category A

Co-Investigator

(Supervisor)

$875.00

July 2003 -

Oct 2003

Population-based survey of care

provided by comple-mentary and alternative therapists to children

in NS

NSHRF Capacity

Building Grant

Co-Principal

Investigator

$12,000.00

Feb 2003 - Jan 2004

A survey of parental perceptions of the informed consent process

in pediatric bone marrow

transplantation

IWK Research Office - Catherine Betts Fund

Co-Investigator (Supervisor)

$2,132.50

Jan 2003 - Dec 2003

Returning research results to pediatric oncology research

subjects. Focus groups and

questionnaire development

IWK Research Office - ARG McNaught

Fund

Principal Investigator

$2,615.12

Dec 2002 - Nov 2005

Clinical Research Associate for Registries

IWK Research Office - ARG McNaught

Fund

Principal Investigator

$138,850.00

2002 - 2003 Returning research results to pediatric oncology research

subjects. PI study

Children’s Oncology Group

Principal Investigator

Services in kind

2002 - 2003 A survey of principle investi-

gators - attitudes and institutional practices in returning research

results to pediatric oncology

research subjects or guardians

IWK Research Office

- Hope-Hart-Johnson Fund

Principal

Investigator

$5,685.33

2001 - 2002 Use of complementary and alternative therapies in pediatric

patients presenting to a pediatric

emergency department

IWK Research Office Category A

Co-Investigator (Supervisor)

$2,174.00

2001 - 2002 The comprehensive cancer care

project for children: Needs

assessment

IWK Research Office

Category B

Co-Investigator $6,178.83

2001 - 2002 The comprehensive cancer care project for children: Web page

assessment

Cancer Care Nova Scotia

Co-Investigator $20,000.00

2000 - 2003 A phase I trial of Temodal using

an extended continuous oral schedule in pediatric patients

with recurrent brain tumors

Schering Local Principal

Investigator

$4,000.00

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Date (Start – Finish)

Title Granting Agency Role Total Amt. (Cdn $)

1999 - 2001 Attitudes of pregnant women to

cord blood donation, storage and

testing

IWK Research Office

Category B

Principal

Investigator

$14,276.50

1999 - 2001 Hydroxychloroquine as treatment of immune- mediated

thrombocytopenic purpura

IWK Research Office Category A

Co-Investigator (local Principal

Investigator)

$1,980.24

1999 - 2000 Examination of the safety of

abrupt cessation of TPN versus tapering in pediatric patients

IWK Research Office

Associate Researcher

Principal

Investigator

$7,750.00

1999 Wilms' tumor cytogenetics -

summer studentship

Cancer Care Nova

Scotia

Co-Investigator

(Supervisor)

$5,000.00

1993 A Cross Canada Survey of Pediatric House Officers’ Pain

Management Attitudes and

Practices

IWK Research Office Category A

Co-Investigator $1,800.00

GRANTS (Pending):

Date

(Start –

Finish)

Title Granting Agency Role Total Amt

Applied for

(Cdn $)

2018-2019 Pharmacogenomic Analysis in

Wilms Tumor Patients with

Treatment-Related Severe Hepatotoxicity

Pablove foundation

(LOI submitted)

Walz PI

Fernandez (co-investigator)

US$50,000

2020 - 2023 Access to precision therapies

for young people with cancer:

A comparative health systems and policy analysis

CIHR Project Grant Denburg PI Fernandez

(co-investigator)

$825,000

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INVITED JOURNAL PEER REVIEW

1. JAMA Network Open. March 2020. Journal article.

2. Cancer Reports. March 2020. Journal article.

3. Pediatric Blood & Cancer. November 2019. Journal article.

4. Cancer. November 2019. Journal article.

5. Pediatrics. November 2019. Journal article.

6. Frontiers in Oncology. September 2019. Journal article.

7. J Pediatrics and Palliative Care. July 2019. Journal article.

8. Cancer Science. July 2019. Journal article.

9. J Pain and Symptom Management. June 2019. Journal article.

10. Pediatric Blood & Cancer. February 2019. Journal article.

11. BMJ Case Reports. February 2019. Journal article.

12. Eur J Cancer. December 2018. Journal article.

13. JAMA. November 2018. Journal article.

14. Pediatric Blood & Cancer. October 2018. Journal article.

15. Journal of Clinical Oncology. October 2018. Journal article.

16. Pediatrics. July 2018. Journal article.

17. Journal of Clinical Oncology. July 2018. Journal article.

18. Pediatric Blood & Cancer. July 2018. Journal article.

19. JNCI. Journal of National Cancer Institute. June 2018. Journal article.

20. Pediatric Blood & Cancer. May 2018. Journal article.

21. JNCCN—Journal of the National Comprehensive Cancer Network. April 2018. Journal article.

22. American Journal of Human Genetics. January 2018. Journal article.

23. Pediatric Blood & Cancer. September 2017. Journal article.

24. European J Cancer. August 2017. Journal article.

25. J Law, Medicine, & Ethics. July 2017. Journal article.

26. Pharmaceutical Medicine. June 2017. Journal article.

27. J Pediatrics. April 2017. Journal article.

28. Pediatric Blood & Cancer. March 2017. Journal article.

29. J Genetic Counselling. February 2017. Journal article.

30. American Journal of Transplantation. January 2017. Journal article.

31. Pediatric Blood & Cancer. November 2016. Journal article.

32. Journal of the National Cancer Institute. October 2016. Journal article.

33. Cancer. September 2016. Journal article.

34. Future Medicine. August 2016. Journal article.

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35. Journal of Clinical Oncology. July 2016. Journal article.

36. JAMA. June 2016. Journal article.

37. The Oncologist. May 2016. Journal article.

38. J Genetic Counselling. March 2016. Journal article.

39. Clinical Trials. March 2016. Journal article.

40. Personalized Medicine. February 2016. Journal article.

41. Pediatric Blood & Cancer. January 2016. Journal article.

42. Hasting Center Report. November 2015. Journal article.

43. J Medical Ethics. October 2015. Journal article.

44. CMAJ. September 2015. Journal article.

45. J Adolescent Health. September. 2015. Journal article.

46. Pediatric Blood & Cancer. July 2015. Journal article.

47. Future Oncology. April 2015. Journal article.

48. J Pediatrics. March 2015. Journal article.

49. Current Genomics. March 2015. Journal article (review).

50. Pediatric Blood & Cancer. December 2014. Journal article.

51. BMJ Case Reports. December 2014. Journal article.

52. Pediatric Blood & Cancer. September 2014. Journal article.

53. BMC Medical Ethics. July 2014. Journal article.

54. J Genetic Counselling. May 2014. Journal article.

55. Mayo Clinic Proceedings. May 2014. Journal article.

56. European Journal of Cancer. April 2014. Journal article.

57. Emerging Themes in Epidemiology. April 2014. Journal article.

58. Health Expectations. December 2013. Journal article.

59. Translational Pediatrics. December 2013. Journal article.

60. Pediatric Blood & Cancer. October 2013. Journal article.

61. Pediatric Blood & Cancer July 2013. Journal article.

62. Pediatric Blood & Cancer. April 2013. Journal article.

63. Clinical Genetics. April 2013. Journal article.

64. Genetics in Medicine. March 2013. Journal article.

65. J Women’s Health, Issues and Care. January 2013. Journal article.

66. J Genetic Counselling. December 2012. Journal article.

67. Blood Transfusion. December 2012. Journal article.

68. BMC Medical Ethics. November 2012. Journal article.

69. Pediatric Blood & Cancer. September 2012. Journal article (commentary).

70. Pediatric Blood & Cancer. May 2012. Journal article.

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71. Journal of Clinical Research and Bioethics. March 2012. Journal article.

72. Pediatric Blood & Cancer. March 2012. Journal article.

73. Genetics in Medicine. November 2011. Journal article.

74. Pediatric Blood & Cancer. October 2011. Journal article.

75. Journal of Pediatric Hematology/Oncology. August 2011. Journal article.

76. Journal of Empirical Research on Human Research Ethics. June 2011. Journal article.

77. Pediatric Blood & Cancer. March 2011. Journal article.

78. Trials. February 2011. Journal article.

79. Expert review of Anticancer Therapy. February 2011. Journal article.

80. BMC Medical Research Methodology. January 2011. Journal article (review major revision).

81. BMC Medical Research Methodology. November 2010. Journal Article.

82. Clinical Trials. November 2010. Journal article.

83. Journal of Pediatric Hematology Oncology. October 2010. Journal article.

84. Trends in Genetics. September 2010. Journal article.

85. Pediatric Health. August 2010. Journal article.

86. Trials. June 2010. Journal article.

87. Pediatric Hematology & Oncology. June 2010. Journal article.

88. BMC Medical Ethics. May 2010. Journal article.

89. BMC Health Services. April 2010. Journal article.

90. Public Health Genomics. March 2010. Journal article (review major revision).

91. Cancer Investigation. March 2010. Journal article.

92. CMAJ. January 2010. Journal article.

93. CMAJ. January 2010. Journal article (different from 50).

94. British Journal of Cancer. December 2009. Journal article.

95. Public Health Genomics. December 2009. Journal article.

96. Cancer Investigation. November 2009. Journal article.

97. Pediatric Blood & Cancer. November 2009. Journal article.

98. Pediatrics. November 2009. Review of resubmitted Journal article.

99. Cancer. October 2009. Journal article.

100. Archives of Pediatrics & Adolescent Medicine. October 2009. Journal article.

101. Pediatrics. July 2009. Journal article.

102. Pediatrics. July 2009. Journal article (different from 54).

103. Journal of Clinical Oncology. June 2009. Journal article.

104. Pediatric Blood & Cancer. June 2009. Journal article.

105. Health Expectations. May 2009. Journal article.

106. Pediatric Blood & Cancer. March 2009. Journal article.

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107. Accountability in Research. February 2009. Journal article.

108. Expert Review of Anticancer Therapy. February 2009. Journal article.

109. Journal of Pediatric Hematology/Oncology. January 2009. Journal article.

110. Pediatric Blood & Cancer. November 2008. Journal article.

111. Pediatrics. November 2008. Journal article.

112. Journal of Pediatric Hematology Oncology. October 2008. Journal article.

113. Journal of Pediatric Hematology Oncology. September 2008. Journal article.

114. Patient Education and Counseling. September 2008. Journal article.

115. Journal of Pediatric Hematology Oncology. June 2008. Journal article.

116. Pediatric & Child Health. May 2008. Journal article.

117. JAMA. March 2008. Journal article.

118. IRB: Ethics & Human Research. February 2008. Journal article.

119. Journal of Clinical Oncology. December 2007. Journal article.

120. Trials. December 2007. Journal article.

121. Accountability in Research. November 2007. Review of resubmitted Journal article.

122. Pediatrics & Child Health. September 2007. Review revised Journal Article.

123. Pediatric Blood & Cancer. September 2007. Journal article.

124. Accountability in Research. July 2007. Journal article.

125. Pediatric Hematology and Oncology. February 2007. Journal article.

126. Journal of Empirical Research on Human Research Ethics. January 2007. Journal article.

127. Journal of Genetic Counseling. September 2006. Journal article.

128. Pediatrics. September 2006. Journal article.

129. Journal of Medical Ethics. July 2006. Journal article.

130. Archives of Pediatrics & Adolescent Medicine. July 2006. Journal article.

131. BMC Urology. May 2006. Journal article.

132. American Journal of Kidney Diseases. April 2006. Journal article.

133. Cancer. March 2006. Journal Article.

134. Pediatric Blood Cancer. January 2006. Journal Article.

135. British Medical Journal. December 2005. Invited editorial - article review.

136. Pediatrics & Child Health. December 2005. Journal Article.

137. Pediatrics & Child Health. November 2005. Journal Articles (x2).

138. American Journal of Kidney Diseases. September 2005. Journal Article.

139. Pediatric Nephrology. July 2005. Journal Article.

140. JAMA. May 2005. Journal Article.

141. Pediatric Blood & Cancer. April 2005. Journal Article.

142. Pediatrics. April 2005. Journal Article.

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143. Pediatric Blood & Cancer. March 2005. Journal Article.

144. Pediatrics. January 2005. Journal article.

145. International Journal for Quality in Health Care. December 2004. Journal article.

146. Pediatric Blood & Cancer. July 2004. Journal Article.

147. Canadian Medical Association Journal. October 2003. Journal Article.

148. Journal of Pediatric Hematology/Oncology. November 2002. Journal Article.

149. Journal of Pediatric Hematology/Oncology. April 2002. Journal Article.

150. Expert Review of Anticancer Therapy. November 2001. Journal article.

151. Pediatrics. August 2001. Journal article.

152. Pediatrics. March 2001. Journal article.

153. Pediatric Pain Letter. June 2000. Journal article.

154. Pediatrics. February 2000. Journal article.

155. Science and Social Medicine. February 1999. Journal article.

GRANT PEER REVIEW

1. Canadian Cancer Society. Emerging Scholar applications. LOI reviewer. Halifax, NS. January

2020.

2. SynergiQc 2019 Open Competition. CQDM. Grant reviewer. Montreal, PQ. June 2019.

3. National Institutes of Health. Special Emphasis Panel/Scientific Review Group. Societal and

Ethical Issues in Research. (ZRG1 SEIR). Grants panel reviewer. Seattle, WA. October 2018.

4. Scientific Review and Grants KWF Kankerbestrijding – Dutch Cancer Society (DCS). External

grant reviewer. Netherlands. August 2018.

5. The French Society for Children Cancer and Leukemia (SFCE). External Grant reviewer.

June 2017.

6. CIHR Project Grant: Fall 2016 competition. Stage II Application panel reviewer (30 grants).

May 2017.

7. CIHR Project Grant: Fall 2016 competition. Stage I Application panel reviewer (8 grants).

Jan – March 2017.

8. The French Society for Children Cancer and Leukemia (SFCE). Grant reviewer. November 2016.

9. MITACs Accelerate Program. Grant review. Reviewer. July 2016.

10. CIHR Project Scheme: 2016 1st Live Pilot. Application panel reviewer. May - June 2016.

11. Dutch ZonMw's 'Ethiek en Gezondheid’. External grant reviewer. Netherlands. October 2015.

12. Beatrice Hunter Cancer Research Institute. Research Committee member. Regular grant

application reviewer. 2013 – present.

13. CIHR Health Professional Awards - Fellowships Committee. Application panel reviewer.

Ottawa, ON. January 2014.

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14. CIHR Health Professional Awards Committee. Application panel reviewer. Ottawa, ON. May

2013.

15. National Institutes of Health. Special Emphasis Panel/Scientific Review Group. 2013/10 ZRG1

HDM-V(57) R. Grants panel reviewer. Teleconferenced Bethesda, Md. May 2013.

16. CIHR Fellowship Training Award Committee. Application panel reviewer. Ottawa, ON. January

2013.

17. Dutch ZonMw's national 'Priority Medicines for Children and Elderly Program' programme:

‘Ethical and Legal Aspects of Medicine Research’. External grant reviewer. Netherlands.

October 2011.

18. Pediatric Cancer Outcomes Initiative. Pediatric Oncology Group of Ontario (POGO). 2010/2011

Competition - Outcomes and impacts of Pediatric Cancer. Grants panel reviewer. Toronto,

ON. April 2011.

19. National Institutes of Health. Special Emphasis Panel/Scientific Review Group 2010/10 ZRG1

CRE-B (01) S meeting Research Ethics Study section. Grants panel reviewer. Bethesda, Md.

June 2010.

20. Pediatric Oncology Group of Ontario. Seed funding grant application. External reviewer.

January 2010.

21. C17 Research Network for Pediatric Oncology, Hematology and Hematopoietic Stem Cell

Transplantation. External reviewer. Edmonton, Alberta. January 2010.

22. C17 Research Network for Pediatric Oncology, Hematology and Hematopoietic Stem Cell

Transplantation. External reviewer. Edmonton, Alberta. June 2009.

23. Canadian Institutes of Health Research. Health Ethics, Law & Humanities. Grants Committee.

External Reviewer. May 2009.

24. Research Grants Council Hong Kong. University Grants Committee. External Grant reviewer.

May 2009.

25. Research Grants Council Hong Kong. University Grants Committee. External Grant Reviewer.

March 2009.

26. Pediatric Oncology Group Ontario. Seed grant application. External grant reviewer. January

2009.

27. Research Grants Council Hong Kong. University Grants Committee. External Grant Reviewer.

February 2008.

28. Cancer Research UK. Population and Behavioural Sciences Committee. Outline programme

grant application. External grant reviewer. February 2008.

29. National Institutes of Health. Bethesda, Md. Special Emphasis Panel/Scientific Review Group

2008/01 ZRG1 HOP-E (90) S Research Ethics Study section. Grants panel reviewer.

October 2007.

30. Hospital for Sick Children. Toronto. Foundation award. External Grant reviewer. June 2007.

31. Research Grants Council Hong Kong. University Grants Committee. External Grant Reviewer.

May 2007.

32. Nova Scotia Health Research Foundation. External grant reviewer. May 2007.

33. Norah Stephens Oncology Scholar Awards. Halifax. Grants panel reviewer. March 2007.

34. Research Grants Council Hong Kong. University Grants Committee. External Grant Reviewer.

February 2007.

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35. Research Grants Council Hong Kong. University Grants Committee. External Grant Reviewer.

January 2007.

36. Diabetes UK. London, UK. External Grant Reviewer. October 2006.

37. Norah Stephens Oncology Scholar Awards. Halifax. Grants panel reviewer. March 2006.

38. Research Grants Council Hong Kong. University Grants Committee. External Grant Reviewer.

May 2006.

39. Hospital for Sick Children. Toronto. Foundation award. External Grant reviewer. October 2005.

40. Anemia Institute AIRE research grant competition. Grant review requested. Declined: conflict

of interest. February 2004.

41. Medical Research Council of Canada. April 2000. Grant application reviewer.

42. CIHR. Grant review requested. Declined: conflict of interest. April 2003. Grant.

43. Alberta Cancer Board. October 1999. Foundation grant application reviewer.

PROMOTION AND OTHER PEER REVIEW

1. Harvard Medical School. Dean of the Faculty of Medicine. External reviewer for granting

promotion to Full Professor. August 2019 (IH).

2. Rutgers Biomedical and Health Sciences. External Reviewer for granting of Tenure. August

2019. (PC)

3. IWK Health Centre. Application for promotion to Associate Professor. July 2019. Review (RM).

4. Hospital for Sick Children. Promotions Committee. External Reviewer for Associate

Professorship. October 2018 (MC).

5. Expert Review of Wilms Tumour information for cancer.ca. Canadian Cancer Society. 30 March

2018.

6. Moderator Best poster presentation. Solid Non-Brain Tumors II. SIOP. Washington DC 13

October 2017.

7. Ann & Robert H. Lurie Children's Hospital of Chicago Feinberg School of Medicine

Northwestern University. Chicago, Ill. External reviewer for promotion to Assistant Professor.

October 2017.

8. Wilms tumor staging. Canadian Cancer Society. Content development. 25 July 2017.

9. Adolescents and Young Adults with cancer (AYA) Review Panel. Document development.

Canadian Partnership Against Cancer. External reviewer. December 2016.

10. Wilms Tumor. PDQ Pediatric Treatment Editorial Board, Office of Cancer Content Management

Office of Communications and Education, National Cancer Institute. External Reviewer. May

2016.

11. BC Children’s Hospital. Reviewer for Child & Family Research Institute (CFRI) five-year

Investigator Salary Award. January 2015.

12. Canadian Cancer Encyclopedia. Canadian Cancer Society. Wilms tumor treatment. External

expert reviewer content. May 2014.

13. Expert Panel on Therapeutic Products for infants, children, and youth. Report on the assessment

of medicines for children. Council of Canadian Academies. External Expert Reviewer.

January 2014.

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14. Wilms Tumor. PDQ Pediatric Treatment Editorial Board, Office of Cancer Content Management

Office of Communications and Education, National Cancer Institute. External Reviewer.

August 2013.

15. Hospital for Sick Children. Promotions Committee. External Reviewer for Associate

Professorship. December 2012 (RZS).

16. Children’s Oncology Group Bioethics Committee review of the Presidential Commission for the

Study of Bioethical Issues report: Privacy and Progress. November 2012.

17. University of Western Ontario. Children’s Hospital. Promotions Committee. Reviewer for

Associate Professorship. June 2012 (SZ).

18. Promotion & Tenure Committee. Department of Bioethics. Dalhousie University. Member.

October 2011.

19. Oxford University Press Canada. The Higher Education Division. Proposed Undergraduate

Textbook: The Canadian Bioethics Companion. Expert reviewer. April 2010.

20. Hospital for Sick Children. Care of Infants and Children with Life-limiting Conditions. Policy

review. Expert reviewer. December 2009.

21. Hospital for Sick Children. Promotions Committee. Reviewer for Associate Professorship.

October 2009 (AG).

22. Wilms’ tumor chapter. Canadian Cancer Encyclopedia. Expert reviewer. Canadian Cancer

Society Information Service. December 2008.

23. IWK Health Centre. Promotions Committee. Reviewer for CAPR application. September 2008.

24. Dalhousie University. Promotion & Tenure Committee. Department of Bioethics. Dalhousie

University. Member. October 2007.

25. IWK Health Centre. Promotions Committee. Reviewer for CAPR application. September 2006.

26. IWK Health Centre. Promotions Committee. Reviewer for Associate Professorship application.

October 2003.

27. Hospital for Sick Children. Promotions Committee. Reviewer for Associate Professorship.

October 2003 (JD).

28. Hospital for Sick Children. Promotions Committee. Reviewer for Associate Professorship.

October 2000.

29. University of British Columbia Research Ethics Board. Bone marrow transplant study. External

expert reviewer. March 2000.

30. Canadian Cancer Encyclopedia. Long Term Effects. Reviewer. October. 1998.

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SUPERVISOR - Electives (primary supervisor):

(In addition to 4-6 pediatric residents per year on the hematology/oncology service):

Micaela Sabean: Medical student. Med I Elective. Sept – Dec 2019.

Rachel Trites: Medical student. Observership. August 2019.

Michael Mackley: Medical student – Med I RIM. November 2017 – Dec 2019.

Meghan Pike: Pediatric Resident – research elective. July 2017 – June 2018

Douglas Iaboni: Medical student – Med I RIM student. November 2015 – June 2017.

Marissa Leblanc: Medical student – Med II elective. January – April 2015.

Marissa Leblanc: Medical student – Med I RIM student. January 2014- June 2016.

Berit Dool: Medical Student – NOMS, Ontario. Elective. July 2014.

Ashley Geerlinks: Pediatrics resident – research elective. June 2014 – June 2016.

Sarah Sampson: Medical student – Med I elective. Planned Jan-May 2013.

Pier Glaude: Pediatrics resident – research elective. December 2012 – June 2015.

Rachel Shaw: Medical student - Med I elective. Jan 2011 – May 2011.

Bernice Duan: Medical student - Med I elective. Sept - Dec 2010.

Stacey Marjerrison: Pediatrics resident - research elective. July 2009 - June 2010.

Britney McMurter: Kinesiology Student. IWK Summer Studentship. June - August 2009.

Katherine Quackenbush: Medical Student - Med I elective. October 2008 - May 2009.

Rosie Ashton: Medical Student - Med I elective. October 2008 – May 2009.

Kate Read: Medical Student - research elective. April 2008 - August 2009.

Christa Kozanczyn: Medical Student - research elective. September 2006 - August 2008.

Kelly Cox: Pediatric Resident - research elective. November 2006 - June 2011

Katy Adair Finlay: Medical Student - elective. October 2006 - June 2007.

Carla Angelski: Pediatric Resident - research elective. May 2006 - 2008.

Christa Kozanczyn: Medical Student - summer student. May 2006 - September 2006

Heather Rigby: Medical Student - elective. October 2005 - September 2006.

(Dr. J Donald Hatcher Research Prize for outstanding research in undergraduate medicine. 2007)

Anne Rowan-Legg: Pediatric Resident - research elective. May 2005 - June 2007.

Jennifer Conway: Pediatric Resident - research elective. September 2004 - October 2005.

Heather Rigby: Medical Student - summer student. June - August 2004.

Heather Rigby: Medical Student - hematology/oncology elective. September 2003 - May 2004

Danielle McNeil: Medical Student. BSc Med program. September 2002 - June 2006.

(Dr. J. Donald Hatcher Research Prize for outstanding research in undergraduate medicine. 2006)

Jan Benedict: Medical Student - hematology/oncology elective. September 2002 - September 2004

Robyn McFarlane: Medical Student - hematology oncology elective. September 2002 - June 2003

Elizabeth Shouldice: Medical Student - hematology/oncology elective. September 2001 - April 2002

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Sara McDonald: Medical Student - hematology/oncology elective. September 2000 - April 2001

Julia Wildish: Cancer Care Nova Scotia Summer Studentship. May - August 2000.

Julia Wildish: Medical Student - hematology/oncology elective. September 99 - April 2000

Jennifer Gillis: Medical Student - hematology/oncology elective. September 99 - April 2000

Chrystal Todd: Medical Student - hematology/oncology elective. September 99 - April 2000

Amanda Kim: Medical Student - hematology/oncology elective. September 98 - April 99

GRADUATE STUDENT SUPERVISION:

Perri Tutelman. PhD Psychology. Committee member. October 2017 – present.

Melissa Richardson. MSc. Committee member. STAG2 in EWS. Sept 2016- June 2018.

Successful defense. 15 June 2018.

Amanda Bettle: Masters of Nursing Committee member. Pain in pediatric oncology patients. December

2013 – 2015. Successful defense July 2015.

Victoria Bentley MSc Pathology. Committee member. PI3K/AKT/NOTCH signaling in T-Cell Acute

Lymphoblastic Leukemia (T-ALL). August 2012 – July 2014. Successful defense July 2014.

Katie Birnie: PhD Psychology. Dissertation Committee Member. Pain and parent/child

catastrophizing. January 2011- Sept 2015. Successful defense Sept 2015.

Tessa Craig: MA Committee member. Pain expression in children. May 2007 - August 2009.

Successful defense.

Holly Richardson: Interdisciplinary PhD. Spirituality in cancer children. Committee Member. June

2005 - 2013. Successful defense June 2013.

Marie Josee Faivre: Psychology student comprehensive. Returning results in psychology studies. Co-

supervisor. June 2004 - May 2005. Successful defense.

Victoria Seavilleklein: PhD Candidate Philosophy. AMS Bioethics Internship. Clinical Supervisor.

May 2004 - August 2006.

Christy Simpson: PhD Candidate Ethics - Clinical Elective. October 1998

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Internal GRANT review (tracked starting 2017)

1. Azar Mehrabadi. The utilization, safety, and effectiveness of periconceptional high-dose folic

acid supplementation. Resubmission to CIHR. Feb 2020.

2. Ketan Kulkarni and Tamara MacDonald. Examining gut microbiome changes and

association with toxicity and clearance in pediatric oncology patients treated with high dose

methotrexate: A pilot study. Major revisions. IWK project grant. Oct 2019

3. Jason Berman – Developing an MLL-rearranged infant leukemia model for the screening of

novel therapeutics and investigating the role of KNT2C in the rapid onset of infant leukemia

using zebraish. Project proposal. C17. May 2019

4. Tamara McDonald - The association of the gut microbiome with clearance of and toxicity

associated with high dose methotrexate in pediatric oncology patients: A pilot study. IWK

Project Grant. March 2019.

5. Ketan Kulkarni - Understanding the roles of oral microbiome in chemotherapy-induced oral

mucositis using a novel mammalian-microbe co-culture model. NSHRF Grant March 2019

6. Craig Erker – Time Symptoms to Diagnosis. CNS tumors. Dec 2018.

7. Jason Berman – Schwachman Diamond syndrome. Leukemia and Lymphoma Society. Feb

2018.

8. Ketan Kulkarni – BHCRI new investigator support award Oct 2017.

9. Jason Berman – Neuroblastoma TME grant September 2017.

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TEACHING/EDUCATION (see Teaching Dossier for full details):

1. Pediatric Residents. Exam preparation. 1.5 hr. 11 March 2020

2. Academic Skills Course. Research Integrity. PG Y1 Pediatrics and Obstetrics. 28 January 2020. (1

hour)

3. Royal College History and Physical Exam Skills Assessment. IWK Health Centre. 15 November

2019. (2 hrs)

4. Med 3. Anemia and Thrombosis cases x 1.5 hr. 6 November 2019 (1.5 hours).

5. Pediatric Residents Seminar. Late effects in pediatric Oncology. 15 October 2019. (1 hour)

6. Pediatric Resident – Research topics (ethics). 17 September 2019 (0.5 hrs)

7. Pediatric Residents OSCE examiner. Station: Pediatric Palliative Care. 17 May 2019 (4 hours)

8. Neonatal Fellows (NPM seminar). WBCs in neonates including bone marrow failure. IWK Health

Centre. (1.5 hours). 15 May 2019.

9. Adult hematopathology Resident Rounds. Ethics cases. QE2. Halifax, NS (1 hour) 3 May 2019.

10. Pediatrics Residents. Seminar. Solid Tumors in Pediatrics. IWK Health Centre. (1 hr). 26 March

2019

11. Royal College History and Physical Exam Skills Assessment. IWK Health Centre. (2 hrs). 8

March 2019.

12. Pediatric Residents. Seminar. Inherited Bone Marrow Failure Syndromes. x1 hr. 23 October 2018.

13. Med 3. Anemia and Thrombosis cases x 1.5 hr. 17 October 2018.

14. Pediatric Residents. Exam preparation. 2 hr. 9 August 2018.

15. Master’s student (T Huynh). External examiner. Dalhousie University. 9 August 2018.

16. Med 3. Anemia and Thrombosis cases x 1.5 hr. 24 July 2018.

17. Pediatric Residents. Seminar. Bone Marrow Transplant. 1 hr. 31 October 2017.

18. Royal College History and Physical Exam Skills Assessment. IWK Health Centre. 19 May

2017.

19. Practice OSCE. Pediatric Hematology Oncology Fellow. 17 May 2017.

20. Ethics cases discussion. Royal College of Physicians and Surgeons. Fellow academic half day.

12 May 2017.

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21. OSCE case writing. Royal College practice exams. Subspecialty resident training program

Pediatric Hematology Oncology. Submitted Jan 2017.

22. Pediatric Residents. Journal Club. Late mortality in cancer patients. 1 hr. 16 January 2017.

23. Pediatric Residents. Seminar. Aplastic Anemia 1 hr. 16 January 2017.

24. Pediatric Hematology Oncology Academic Half Day. Ethics. 2 December 2016.

25. Pediatric Residents. Exam preparation. 1.5 hrs. 11 October 2016. (solid tumors)

26. MCQ Question creation for Med students. X2. Submitted. May 2016

27. Pediatric Hematology Oncology Academic Half Day. Hepatoblastoma. 20 May 2016

28. Clinical Investigator Program. Expert facilitator. GCP and clinical trials. 18 May 2016.

29. Pediatric Hematology Oncology Academic Half Day. Wilms tumor. 11 Dec 2015

30. Med 3. Anemia and Thrombosis cases x 1.5 hr. 3 February 2016

31. Renal tumors. Half day teaching (2 hours). 11 December 2015.

32. Neonatal-perinatal Half day teaching (1.5 hours). WBC. 2 December 2015.

33. Pediatric Residents. Exam preparation. 1 hr. 30 November 2015

34. Pediatric Residents. Exam preparation. 1 hr. 27 October 2015.

35. Grade 9 Education telephone interview re: Pediatric Oncology. 28 April 2015.

36. Med 3. Anemia and Thrombosis cases x 1.5 hr. 4 February 2015

37. Pediatric Residents. Exam preparation x 1.5 hrs. 30 October 2014

38. OSCE teaching pediatrics residents. Breaking bad news. 9 June 2014.

39. Judge. Department of Pathology Research Trainee Day. 1 May 2014.

40. Pediatric Residents. Moral distress seminar. IWK Health Centre. 25 February 2014

41. Emergency Department Student teaching. Solid tumor presentations. IWK Health Centre. 19

Feb 2014.

42. Neonatal Perinatal Medicine Fellow teaching. WBC. IWK Health Centre. 12 Feb 2014

43. Royal College History and Physical Exam Skills Assessment. IWK Health Centre. 15 Nov

2013.

44. Royal College History and Physical Exam Skills Assessment. IWK Health Centre. October

2012.

45. Royal College History and Physical Exam Skills Assessment. IWK Health Centre. April 2010.

46. CARMS pediatric resident applications. Review committee member. December 09 - February

10.

47. Med I Dalhousie University. Patient-doctor skills. Interviewee for ethics assignment.

December 2009.

48. Ethics consultation. Therapeutic misconception and study design. NovelTech Ethics. Baylis

and MacQuarrie. November 2009.

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49. CIHR Canadian Child Health Clinician Scientist Training Program. Facilitator. Ethics of

Database Use. November 2009.

50. Royal College History and Physical Exam Skills Assessment. IWK Health Centre. March

2008.

51. Med I Dalhousie University. Patient-doctor skills. Interviewee for ethics assignment (2

groups). November 2007.

52. Royal College History and Physical Exam Skills Assessment. IWK Health Centre. March

2007.

53. Canadian Child Health Clinician Scientist Program. Case discussion. Expert resource - ethics.

December 2006.

54. Pediatric Resident Journal Club. March 2006.

55. OSCE examiner/case writer. Pediatric residents. November 2005.

56. Case development. Bioethics Education Project. Royal College of Physicians and Surgeons of

Canada. Case writer. November 2005.

57. COPS case writer. Skin, Glands and Blood Unit. Hematology case. September 2005.

58. Medical Student Multiple Choice question writer. August 2005.

59. Medical Student Admissions Interviews. February 2005.

60. OSCE examiner. Medical School III Exams. March 2004.

61. Dalhousie Faculty Research Ethics Workshop. Case writer. February 2004.

62. Royal College of Physician Examination Board in Hematology. SAQ - Case writer. February

2004.

63. Canadian Child Health Clinician Scientist Program - Core Curriculum for Research Ethics and

Integrity. Unit: Consideration of Risk in Research Involving Children. November 2003.

Online January 2004.

64. Medical Student Admissions Interviews. January 2004.

65. Pediatric Resident Journal Club. February 17, 2003.

66. COPS Curriculum. Human Body Unit. August - September 2001.

67. Royal College of Physicians and Surgeons. Site Examiner. 2000 - present.

68. Royal College of Physicians and Surgeons. SAQ Writer. 2000 - present.

69. Medical students and Residents. Dalhousie University and external university electives (4-8 per

year). 1998 - present.

70. Pediatric Senior Resident Examination preparation. 1998 - present (1-2 hour preparation

sessions given 2-3 times per year).

71. Medical Student Hematology tutorials. 1998 - present (5-6 per year).

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HOSTED VISITING PROFESSORS:

Dr. Nathaniel Treister. Associate Professor of Oral Medicine at Harvard School of Dental Medicine.

Associate Surgeon in the Division of Oral Medicine and Dentistry at Brigham and Women's

Hospital. Hematology, Oncoloyg and Pediatric Academic Rounds and trainee seminar. June 21-

22. 2018.

Dr. Torunn Yock, Associate Professor. Massachusetts General Hospital. Invited lecturer for Pediatric

Grand Rounds, Radiation Oncology teaching and seminar. May 5-6. 2015.

Dr. David Malkin, Professor. Hospital for Sick Children. Invited seminars. Key note speaker Trainee

Research Day. April 29-30, 2015.

Dr. Stephen Sallan, Professor, DFCI. Invited lecture Pediatric Grand Rounds. Adult Hematology Grand

rounds and seminars. February 6-8, 2013.

Dr. Steve Joffe, Associate Professor, Harvard and DFCI. Invited lecturer for Pediatric Grand Rounds,

Medical Oncology Grand rounds and several seminars. October 24, 25th. 2012

HOSTED MEETINGS

C17 Annual meeting. 23-24 May 2018. Halifax, NS.

EDUCATIONAL MATERIAL PREPARATION:

1. IWK Tumor board Brochure. 2013. Parents.

2. Stem Cell Transplantation Binder. Guidelines 2000. Physicians/Nursing. Full revision 2003.

3. Video - Graft Versus Host Disease. 2000. Nursing.

4. Royal College of Physicians and Surgeons. MCQ Development. 2000.

5. Video - Stem Cell Transplantation: Late Complications. 1999. Nursing.

6. Video - Alternative therapies in Pediatric Oncology. 1999. Nursing.

7. Late Effects after Pediatric Oncology Treatment - Candlelighters News Letter. 1999. Parents.

8. Video - Stem Cell Transplantation: Acute Complications. 1998. Nursing.

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NEWS MEDIA:

96.5 The Breeze. Radio interview for Children’s Wish. 29 Nov 2019.

CTV news. Osteosarcoma. Live at 5. October 2019. https://review.bellmedia.ca/view/577113622

IWK/Pulse Newsletter. Becky Chapman. IWK. February 2019.

Dyna Rochmyaningsih. Freelance writer. Nature. July 2018.

Fredericton Daily Gleaner. Rare cancer. July 2017.

CTV Atlantic. Atlantic News. House calls. Oncofertility in AYA patients. May 2017. http://ctv.news/4EkFWf

Global TV. Global News at 6. #KidsCancerPain project. August 2016.

Global TV. Breakfast Show. #KidsCancerPain. July 2016.

Chronicle Herald. Izaak Magazine. IGNITE and orphan diseases. September 2013.

Canadian Institutes of Health Research. “Show me the Evidence”. September 2013. Return of results in

the age of genomics.

CTV News. April 2013. Bone marrow transplant in a child.

Science - January 2011. Return of Results from GWAS Studies.

USA Today - December 2008.

Returning research results to participants.

CBC Radio - May 2008. Michael Enright’s Sunday Edition. Panel discussion: consent in children.

CIHR - May 2006. Return of investment in research. Summary for Members of Parliament.

Medical Post - April 2006. Adolescents and young adults with cancer.

Chronicle Herald - March 2006. Adolescents and young adults with cancer.

IRB Advisor (journal) - October 2005. Returning research results to participants.

Chronicle Herald - November 2004 - newspaper article: HLA types in registries for BMT.

CBC Television - November 2004 - The National: Cord blood transplantation.

CKDU - September 2004 - Radio interview: Cord blood transplantation.

Chronicle Herald - October 2003: Infection post bone marrow transplant.

ATV - July 2003 - TV interview: Cord blood transplantation.

Chronicle Herald - June 2003 - newspaper article interview: Fanconi’s anemia and BMT.

CBC French - TV interview: Hurler’s syndrome.

Globe and Mail - newspaper article interview: Complementary and alternative therapies.

Chronicle Herald - newspaper article interview: Hurler’s syndrome.

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QUALIFICATIONS/ TRAINING:

Conflict Management and Negotiation. Physician Leadership Institute. 27-28 March 2019

MEDIDATA PI COURSE.FEB 2016.

TCPS 2 CORE - course on research ethics May 2014.

Health Canada Division 5 Training. April 2014.

Merck Consent Process e-Learning Course 15 March 2014

Merck Adverse Experience Reporting course 15 March 2014

Merck ICH/GCP Course 15 March 2014

Pediatric Advanced Life Support, Instructor Course 1993.

Pediatric Advanced Life Support, Instructor Course 1993.

PROFESSIONAL MEMBERSHIPS:

Canadian Medical Association

Canadian Society for Clinical Investigation

Canadian Pediatric Society

Children’s Oncology Group

American Society of Clinical Oncology

American Society of Pediatric Hematology/Oncology

American Society of Hematology

Nova Scotia Medical Society

Royal College of Physician and Surgeons of Canada (FRCPC)

International Society of Pediatric Oncology (SIOP)

INTERESTS:

Sports: ice hockey, golf.

Birding.

COMMUNITY:

Assistant Coach. Halifax Hawks Hockey Association. (2004 - 2007)

Board of Directors (member) German Language Heritage School. (2005 - 2007)