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CULTURAL NEWS - Dementia Australia · Cultural News is an initiative of the Australian Government ....
Transcript of CULTURAL NEWS - Dementia Australia · Cultural News is an initiative of the Australian Government ....
In August 2012 the
Commonwealth Government made dementia a
National Health Priority. This was a great
milestone for our organisation and for those
living with dementia around the country as it
acknowledges that dementia is one of the
major health issues facing Australia in the 21st
Century.
Dementia will no longer be considered as a
natural part of ageing. Instead, for the first time
in health policy, it is recognised as a chronic
disease which needs to be addressed as a
priority in both the health and aged care
systems. However, this is not reflected in the
funding of dementia research by the Australian
Government.
Yet an increased investment in dementia
research is the only hope we have for the
development of medical interventions to delay,
stop or reverse the diseases that lead to
dementia. Dementia research in Australia is
significantly underfunded in comparison to
other chronic diseases in relation to prevalence,
disability burden and cost to the health system.
Currently dementia research receives about $24
million each year through the National Health
and Medical Research Council. This compares
to $160 million for cancer and over $90 for
heart disease.
Alzheimer’s Australia is calling for an
increased investment in dementia research of
$200 million over five years in the 2013-14
Federal Budget. This relatively modest amount
would bring the total investment in dementia
research though the National Health and
Medical Research Council (NHMRC) to just over
$60 million each year, or around 1% of the
costs of dementia in health and aged care.
The report of the Strategic Review of Health
and Medical Research in Australia which is
expected shortly will set the scene for change
in public policy in relation to research. It is
expected that there will be recommendations to
increase the emphasis on priority driven
research.
This will serve to better meet the urgent needs
for new knowledge and innovation in emerging
health priority areas
such as dementia and
mental health where
research capacity is
l i k e l y t o b e
underdeveloped in
c o m p a r i s o n t o
l o n g e r - s t a n d i n g
health priority areas.
The measures to
boost the role of the
NHMRC in sector
leadership will also
(Continued on page 4)
National Ageing & Aged
Care Strategy, CALD 2
Education Programs for
CALD Carers 3
Your Brain Matters 6
Interpreter Mediated
Cognitive Assessments 8
Speaking My Language 9
CULTURAL NEWS
ALZHEIMER'S AUSTRALIA
N a t i o n a l C r o s s C u l t u r a l D e m e n t i a N e t w o r k N e w s l e t t e r
(VOLUME 7, ISSUE 3 ) DECEMBER 2012
THREE MILLION AUSTRALIANS WILL
DEVELOP DEMENTIA BY 2050
Glen Rees, National Chief Executive Officer, Alzheimer’s Australia
Cultural News is an initiative of the Australian Government
CULTURAL NEWS
PAGE 2
In June 2012, the Minister for Mental Health
and Ageing, the Hon. Mark Butler, announced
the Australian Government’s intention to
develop and release a National Ageing and
Aged Care Strategy for People from CALD
Backgrounds by the end of 2012. In keeping
with this commitment, work on the Strategy
has proceeded at an accelerated pace over the
past few months. The Department of Health
and Ageing convened a Steering Committee
comprising of key CALD ageing sector
stakeholders, and engaged the Federation of
Ethnic Communities’ Councils of Australia, to
contribute toward the Strategy and to hold a
series of consultations on the draft Strategy
throughout October and early November.
Two initial consultations, held in Melbourne
and Sydney in early September, set the scene
for the drafting of the National Ageing and
Aged Care Strategy for People from CALD
Backgrounds. Following the release of the draft
Strategy, a further 11 focus group consultations
were held in each state capital city and in three
regional locations: Cairns, Wollongong and
Shepparton. Feedback was also provided by 32
written submissions from aged care
stakeholders and by the National Aged Care
Alliance (NACA).
Each consultation group tended to concentrate
on particular local issues, which varied
according to geography and population
dynamics. However, a number of common
themes emerged at all consultations, including
a discussion of the additional barriers faced by
older CALD people in receiving culturally and
linguistically sensitive diagnosis of and
treatment for dementia. These challenges were
particularly great in rural and regional areas.
The feedback collected at the consultations was
extremely useful and helped to strengthen
the Strategy.
The Strategy focuses on five key principles of
inclusion, empowerment, access and equity,
quality and capacity building. While the aim of
the Strategy is to provide an overarching
framework from which more detailed policy
will be developed, Dementia is addressed as a
key issue in need of particular attention and
support. The Strategy recognises Dementia as
a priority area for new aged care initiatives and
supports the strengthening of CALD
communities’ capacities as potential aged care
providers, including dementia services and
respite services for carers of CALD people
living with dementia.
(Continued on page 3)
FECCA is currently developing a National CALD Ageing Network (NCAN), a web-based communication tool
for the CALD ageing sector that already has a large and rapidly growing membership base. NCAN will
become a facilitator of discussion within the sector as the aged care reforms unfold, a key source of CALD
ageing and aged care information and a base for sector-wide advocacy. For more information and to join
NCAN, please visit the FECCA website: http://www.fecca.org.au
NATIONAL AGEING AND AGED CARE STRATEGY
FOR PEOPLE FROM CALD BACKGROUNDS READY
FOR RELEASE Federation of Ethnic Communities’ Councils of Australia
T H E N E T W O R K
CHAIRPERSON
Pino Migliorino
NSW
Yvonne Santalucia
South West Sydney Area Health Service
Dr Desiree Leone
Western Local Health District
VIC
Maree McCabe
Alzheimer’s Australia Vic
Claire Naffah
Alzheimer’s Australia Vic
Jaklina Michael
RDNS
Nicky Hayward-Wright
Knowledge Management Consultant
Dr Dina LoGiudice
Royal Park Campus Melbourne Health
QLD
Dino Bazarbassis
Nova Community Care
WA
Linda Grenade
Alzheimer’s Australia WA
ACT
Lily Muthurajah
Multicultural HACC
SA
Gosia Skalban
Domiciliary Care
Ron Sinclair
National Carer Advisory Committee
Dr. Faizal Ibrahim
Consultant Geriatrician QEH
TAS
Ms Marianne Potma
Migrant Resource Centre, Southern TAS
NT
Dr Sadhana Mahajani
ACAT Northern Territory
AUSTRALIAN GOVERNMENT
Mark Gaukroger
ALZHEIMER’S AUSTRALIA
Glenn Rees
Ellen Skaldzien
SECRETARIAT
Helena Kyriazopoulos
CULTURAL NEWS
PAGE 3
EDUCATION PROGRAMS FOR
CALD CARERS
(Continued from page 2)
FECCA is very pleased to have
been able to contribute toward
this important Government
document that will play a key
role in shaping the direction of
the aged care reforms over the
next three years and beyond.
We look forward to the
Strategy’s release in December,
and to the further reforms that
will stem from it. We are
confident that they will be
of great benefit to CALD
communities.
Bruce Shaw (Senior Policy
Officer, Aged Care, FECCA) –
Melanie Tulloch (Policy Officer,
Aged Care, FECCA) –
Despite an increasing number
of support and education pro-
grams for carers, there are very
few programs specifically for
CALD carers.
To address this a number of
agencies collaborated to
deliver an Intervention Pro-
gram to Chinese and Spanish
speaking carers of people living
with dementia. The agencies
are:
Mult icul tural Heal th
Western and South
Western Sydney Local
Health Districts,
NSW Spanish and Latin
American Association for
Social Assistance,
Chinese Welfare Services
of South Australia,
Alzheimer’s Australia SA,
Stanford University ,and
Dementia Collaborative
Research Centre (DCRC)
UNSW.
The DCRC, provided $40,000
to trial the Intervention
Program developed by
Professors of Psychology at
Stanford University, which has
proved in the past to have had
positive results with Chinese
and Spanish speaking carers
based in the USA.
The intervention was modified
for the Australian context, and
adapted to the specific needs of
each community. It is being
delivered to two groups of
Spanish speakers in NSW and
Chinese speakers in SA. The
groups are almost complete
and data is being analysed.
Comments from carers have
been positive.
The findings will be presented at conferences, a journal article and a report.
Desiree Leone
Senior Multicultural Access
Project Officer
Multicultural Health /
Diversity Health Institute
_____________________________________________________________________
CULTURAL NEWS
make a significant difference, and we are
confident that the recommendations, if
implemented, will result in better healthcare
outcomes for consumers in Australia.
The urgent need for increased funding is high
lighted in a new report commissioned by
Alzheimer’s Australia that forecasts that three
million Australians will develop dementia
between 2012 and 2050. Almost all of them will
be people who are in their 30s, 40s, 50s or 60s
today. The economic and social impacts will be
enormous in terms of costs in the health and
aged care systems, and on the quality of life of
millions of Australians and their families and
friends including those from culturally and
linguistically diverse backgrounds.
The report, Modelling the impact of
interventions to delay the onset of dementia in
Australia, was prepared by the Dementia
Collaborative Research Centre – Assessment
and Better Care at the University of New South
Wales. Centre Director, Scientia Professor
Henry Brodaty, believes that the new statistics
provide compelling evidence that Australia
must invest in dementia research now. The
analysis shows that if we can develop an
effective intervention or treatment to delay the
onset of dementia by just five years, close to
one million people would be spared the
personal tragedy of a diagnosis of dementia.
The release of these statistics coincides with
findings from Medicines Australia, which
suggest that Australians are more worried
about dementia than diabetes, obesity or
depression. Investment in research is a good
way to give people hope.
I urge you to support our Fight Dementia
Campaign and sign up to our new site –
www.donateamemory.org.au. This site is
creating a collection of memories that people
want to share with others. It is a great way of
illustrating to the government that we as a
community are committed to working for world
without dementia through research.
Thank you for your ongoing support and Merry
Christmas
Glen Rees
National Chief Executive Officer
Alzheimer’s Australia
(Continued from page 1)
PAGE 4
WEB LINKS
Alzheimer’s Australia www.alzheimers.org.au
Alzheimer’s Disease International www.alz.co.uk
Australian Government www.australia.gov.au
_______________________________________________________________________________________________________
Registration is now open for the
Alzheimer’s Australia 15th National Conference
Hobart, May 2013
Alzheimer’s Australia would like to welcome you to their 15th National Conference, in Hobart, 2013.
The theme of the conference, The Tiles of Life - Colouring the Future, challenges participants to
reflect on their experience of living with dementia, how to stretch their thinking about the
condition, and how best we can care for people living with dementia.
This conference will be an opportunity to reflect on how we can be positive in addressing dementia
through promoting awareness, rehabilitation, social engagement, opportunities for creativity and
self-expression.
It’s also an opportunity to look to the future and the critical role investment in dementia research
can play in identifying the causes of dementia as well as helping to find a cure and developing new
treatments.
For anyone interested in improving the quality of life for people with dementia and their carers –
and looking to a better future – this is a conference not to be missed in 2013.
Join our Facebook page so that you don’t miss any updates.
For further information and to download a hard copy of the registration brochure
click here or visit www.alzheimers2013.com
CULTURAL NEWS
PAGE 5
CULTURAL NEWS
I n Sep t em b er 2012 , A l z h e i m er ' s
Australia launched its new brain health
program, Your Brain Matters: A guide to
healthy hearts and minds.
Your Brain Matters is designed to help
Australians live a brain healthy life, to help
them reduce their risk of developing dementia.
It replaces the previous dementia risk reduction
program, Mind your Mind. A new look and feel
was created for the program to help guide
people on what they need to be brain healthy.
Your Brain Matters has three key areas to help
you live a brain healthy life, and all of these are
important:
All three are important in looking after your
brain health
Keeping your brain active matters: keep your
brain challenged and be socially active.
Being fit and healthy matters: eating healthily
and participating in regular physical activity are
important for a healthy body and a healthy
brain.
Looking after your heart matters: what’s good
for the heart is good for the brain – avoid
smoking, manage your blood pressure,
cholesterol, blood sugar and body weight.
Following the Your Brain Matters guide is
particularly important once you reach middle
age, as this is when changes in the brain start
to occur. But it’s even better if you follow them
throughout life. It’s never too late to start
either, as brain function can be improved an
protected at any age.
Here are some tips on what you can do to live a
brain healthy life and help to reduce the risk of
developing dementia:
KEEPING YOUR BRAIN ACTIVE MATTERS
YOUR BRAIN MATTERS
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CULTURAL NEWS
PAGE 7
BEING FIT AND HEALTHY MATTERS LOOKING AFTER YOUR HEART MATTERS
UP-COMING CONFERENCES NATIONAL DEMENTIA CONGRESS
4TH ANNUAL CONGRESS
NOVOTEL MELBOURNE ON COLLINS
21-22 FEBRUARY 2013,
For more information click here
RURAL HEALTH CONFERENCE
12TH NATIONAL CONFERENCE
ADELAIDE CONVENTION CENTRE
7-10 APRIL 2013
For information click here
ALZHEIMER’S AUSTRALIA
15TH NATIONAL CONFERENCE
THE TILES OF LIFE, COLOURING THE FUTURE
14-17 MAY 2013
HOTEL GRAND CHANCELLOR, HOBART, TASMANIA
For information click here
AGEING IN A FOREIGN LAND
2ND INTERNATIONAL CONFERENCE
FLINDERS UNIVERSITY, ADELAIDE
27-30 JUNE 2013
For information click here
FECCA CONFERENCE VENUE TBA
6-8 NOVEMBER 2013
For information click here
_______________________________________________________________________________________________________
CULTURAL NEWS
The National Ageing Research Institute (NARI)
has been funded by Alzheimer’s Australia
Research Foundation and the Institute for a
Broadband Enabled Society (IBES) to explore
the experiences and perceptions of
stakeholders in cognitive assessments that
involve the use of interpreters. Social justice
and equity of access to care can be
compromised by the communication gaps
w h i c h f r e q u e n t l y o c c u r d u r i n g
interpreter-assisted cognitive assessments.
There is a shortage of interpreters in many
languages, even in metropolitan areas, and
difficulties for people to access services with
appropriate interpreters. Recent developments
in telehealth has improved access for some
people, but there has been little research
exploring the use of Videoconferencing in
mental health interviews.
This project aims to explore clinician, family
member and interpreter perceptions of their
experience of a multicultural cognitive
assessment; develop interpreter and clinician
guidelines and a training DVD; and pilot the use
of videoconferencing in interpreted
cognitive assessments.
Stage 1 methods includes scoping of training
and accreditation for interpreters in mental
health; a demographic survey, focus groups
and interviews with stakeholders; and analysis
of survey data, focus groups and interviews.
Stage 1 consultations are currently underway.
Stage 2 includes videoconferencing of
interpreter-assisted cognitive assessments with
the interpreter at a separate location, and the
development of guidelines and a training DVD
to assist both clinicians and interpreters.
Findings to date highlight the challenges for all
stakeholders in the multicultural cognitive
interview, contribut ing to greater
understanding between all parties. The new
guidelines and training materials will educate
and support clinicians as well as interpreters,
enabling improved collaboration between these
groups of professionals. This will improve the
experience for patients and their families,
and contribute to better diagnosis and
care planning.
For more information please contact:
Dr Jean Tinney: [email protected]
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INTERPRETER MEDIATED COGNITIVE ASSESSMENTS –
STAKEHOLDER EXPERIENCES INFORMING
GUIDELINES AND TRAINING DVD AND USE OF VIDEO
CONFERENCING SOFTWARE
CALD WEB LINKS Australian Multicultural Foundation www.amf.net.au
Cultural Diversity in Ageing www.culturaldiversity.com.au
Federation of Ethnic Communities Council (FECCA) www.fecca.org.au
CULTURAL NEWS
Dementia is often associated with changes in
personality and behaviour. Apart from factors
related to the dementia itself (e.g. type of
dementia, area and extent of damage to the
brain), a variety of other factors may be
involved. These include environmental factors
(e.g. the person’s physical or social
environment), their life history, and personality.
Understanding the potential influence of such
factors on a person’s responses or behaviours
is therefore extremely important in order to
minimize the likelihood of their occurrence and
to assist in identifying specific intervention
strategies. For people with dementia from CaLD
backgrounds, considerations related to the
person’s culture, language and/or migration
experiences also need to be taken into account.
With this in mind, the Dementia Behaviour
Management Advisory Services (DBMAS) WA
has developed a training resource, Speaking
My Language aimed at assisting residential and
community care workers to better understand
and address ‘behaviours of concern’ amongst
people with dementia from CaLD backgrounds.
The resource has been developed specifically
for use by DBMAS personnel in each state, who
deliver the training in conjunction with
organizations funded under the PICAC (Partners
in Culturally Appropriate Care) program.
Speaking My Language comprises six modules
that focus on different topics including
communication, assessment and information
gathering, family caregivers, and intervention.
The modules have been designed to promote
discussion and interaction, providing
opportunities for workshop participants to
share their experiences, thoughts and ideas.
This includes group activities and a number of
accompanying DVD clips (acted case scenarios
or ‘real life’ interviews) related to the different
topics covered.
The training can be delivered as a one day
workshop (covering all six modules), or in
accordance with the needs and preferences of
individual organizations /services (e.g. short
session covering one or two modules only).
Since the launch of this resource in late 2011, a
number of successful workshops in both
metropolitan and regional locations have been
held in different States.
Anyone interested in knowing more about this
resource, or wishing to access the training,
should contact either the relevant state DBMAS
(www.dbmas.org.au) or PICAC service provider
(www.health.gov.au) – Go to: For Health
Professionals > Aged Care > Support for people
with special needs).
Linda Grenade
Project Officer - Multicultural Communities
Alzheimer’s Australia WA
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SPEAKING MY LANGUAGE: A TRAINING RESOURCE
FOCUSING ON BEHAVIOUR CHANGES AND PEOPLE
WITH DEMENTIA FROM CULTURALLY AND
LINGUISTICALLY DIVERSE BACKGROUNDS: