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Issue No. 20 July / August 1999

CCARDIAC

RRISK in the

YYOUNG

BI-MONTHLY UPDATE

MEET OUR REPRESENTATIVES

Hi, my name is Tracy Scotton. On and before the 25th February 1995, I had a close familycomprising of mother, father and 2 brothers, Patrick and Philip. Life was good for all of us, untilthe very next day, 26th February 1995.

I was told that Patrick was in hospital. I did not know what for, as it was early Sunday morn-

ing. I thought he must have had an accident whilst playing football. I rushed as fast as I could

to the hospital, to be greeted by my sister-in-law and Patrick's girlfriend, both too upset to

speak. I was then guided into the family room to be told by my mother that Patrick had passed

away. All of our world just fell apart. That day. In that room. The pain was, and still is, inde-

scribable.

I was in shock for weeks. I could not accept this. Ineeded to know why. I had to find out as much as Icould just to help me cope. I was told that he had diedof cardiac arythmia. This at the time meant nothing tome. I did not see how a fit active 22 year old boy couldpossibly just die, and nothing could have been done toprevent it.

I was now feeling very lost and lonely. I could not talk tomy parents or brother about it, as they were all dealingwith their grief in their own way. I suffered many panicattacks in the months that followed. That alone was veryfrightening.

I still had so many questions that I needed answering.

On the 5th of April I came across a 2 page article on CRY in a magazine. I couldn't believe myeyes. I read it from beginning to end. It was so hard to believe that so many other young people had died also from the same problem. I believe that one of the cruellest feelings whengrieving is that you feel so alone and that no-one understands you. To read of all the other parents, brothers and sisters made me see that I was not alone. My heart went out to all ofthem.

I called the office at CRY. They helped me to understand what Patrick died of and what couldhave been done to prevent cases like this. I was horrified to find out that other countries scanchildren for these defects, yet we do not.

They also helped to get me and my son scanned. It was a massive relief to know that we wereboth clear.

CRY is a fantastic organisation. I am so glad to have found you. If there is ever anybody outthere that just needs someone to talk to and to share their pain, please do not think twice. Justpick up the phone and call me.

There is not a day that goes by, I do not think of Patrick. The pain never goes away, you justlearn how to cope with it differently.

IN THE MIDLANDS - IT`S TRACY SCOTTON

NEWSLETTERJULY / AUGUST 1999

CRY blasted into July with another fantastic fund-raising weekend at the Sutton Tennis

and Squash Club which looks as if it might double last year's total and has so far raised

over £14,000 with more to come.

With the unfailing energy and skill of Chairman (don't argue with me!) Steve Tiddy, and

the coercion of our brilliant committee members we secured Bob Champion for the

Friday night Auction (thank you Stuart), John Inverdale for the Pro-am (thank you Rona)

and our wonderful veteran tennis celebrities - Ken Rosewall, Fred Stolle, Frew

McMillan, Geoff Masters, Owen Davidson and Mark, who both participated and secured

these legendary players to support CRY. We are enormously grateful to the good

humour and resilience of these famous sportsmen, who took time out from their

Wimbledon exploits to join us on the Sunday for a lunch followed by a Pro-Am. The

Celebrity Tennis was preceded by a superbly organised Kids Tennis Clinic organised

by Mike Walker and Mark, and the Saturday again was dedicated to an Inter-Club

Home Counties Sponsored Mixed Doubles Tournament. Thank you also to Cookie for

his creative contributions to the Race Night and Honest the Bookie for doing such a

great job with everyone's money. With such support no wonder the weekend was a

blockbuster!

July also saw the culmination of a month's exhaustive fund-raising for the Eastbourne

Emergency Services 999 team effort in memory of Jeremy Cole. A spectacular CRY

profile on the Western Lawns highlighted this outstanding team commitment and an

especial thank you to team leaders Adrian White (Eastbourne Fire Brigade) and

Sergeant Charlie Connaughton (Eastbourne Police Force), Nigel and Jenny Cole and

all their helpers for their tremendous (and famous ) efforts including a day-long

Triathlon contest in the Arndale Centre and a European Bike Ride entailing 300 ardu-

ous miles through 4 countries.

Other notable events in the last 2 months were Keeley Ashley's superbly organised

CRY Mobile Screening Weekend in memory of her brother Howard Jennings (see

Update), a challenging Breakfast meeting at Gatwick with American Paediatric

Cardiologist Naomi Gautier who requested more information on us after tracking CRY

down through our Website, and an 8 minute TV slot with Lynne Lewis discussing our

impending programme in Scotland.

Kenny Bowen's inspirational Trust letters have now yielded £139,785 including a dona-

tion of £32,000 over 4 years that has come just in time to give us a desperately need-

ed boost to fund our pending office move. Hopefully by our next Update we will be

ensconced in our new premises and able to report that we are all learning, with space

no longer at a premium, the euphoric feeling of being able to breathe out again!

Thank you all for the incredible support that has made this move possible and watch

this space to see if we have made, and survived, the move!

ELEANOR’SINTERVIEW

WITH

Tony HillCRY’S

Manager

Eleanor: How long have you been with CRY?

Tony: I started in 96, 3 years ago. I was in a very boring job. It is rather different now!

Eleanor: Why did you get involved?

Tony: I knew Alison’s daughter and kept hearing about what was going on. I became

curious and offered to help out. Then Alison persuaded me to come full time. I didn’t realises

that full time meant nights and weekends as well!

Eleanor: What is the job you do?

Tony: Primarily the Brochure which has

expanded so much that it takes up most of my working week. I also over see the smooth run-

ning of the office and organise our dedicated team of volunteers.

Eleanor: Has CRY changed much in the 3 years you have been there?

Tony: Yes unbelievably so. The whole of CRY has been growing at an incredibe rate.

When I first started the Brochure was compiled using a ruler, scissors and glue. We now do it all

on computer and each Update seems to get better. The fundraising is now astonishing and the

development of Talking Point and the ECG Testing Programme has been amazing.

Eleanor: What do you feel is the most important part of CRY’s work?

Tony: This is a tricky one because I feel that everything we do is so important. We work

pro-actively to save lives through our screening programme. This, and our incredible fundrais-

ers, help us to raise awareness which also has such a vital impact in saving lives. Our network

of families give tremendous strength to those that come to us and need someone to talk to who

has suffered in the same way and who help them to know that they are not alone.

Eleanor: What would you like to see happen next?

Tony: I would like to see us get some government recognition and support so that we can

move forward even more effectively.

I would like to see us get some government

recognition and support so that we can move

forward even more effectively.

ELEANOR’SINTERVIEW

WITH

Jan SmithCRY Administrator

Sports Cardiology

unit Screeening

for ECG ProgrammeEleanor: What was your previous job?

Jan: I was employed as Administrator for the Department of Sexually Transmitted

Diseases at University College London Medical School. The job covered a wide range of tasks

including personnel issues, finance, strategic planning and "troubleshooting".

Eleanor: Have you had any personal experience with Sudden Death Syndrome?

Jan: Very tragically, a friend's six-year old child died suddenly and for no apparent reason.

Eleanor: What convinced you to apply for your new job?

Jan: I've always worked in the health sector, and was looking for something new where I

could get properly involved with an area I considered challenging and worthwhile. This job more

than fits the bill.

Eleanor: What exactly will you do as theAdministrator for the screening program at StGeorge's?

Jan: My role is quite varied, but to summarise: I'll be co-ordinating and developing the

programme under the direction of Professor Bill McKenna, and providing support for all the

family groups involved in screening programs.

Eleanor: Are you apprehensive about taking on all these new responsibilities?

Jan: Yes, of course, it's a demanding role - but I'm really looking forward to it and to

contributing to the work of the team.

Eleanor: Had you heard about CRY before you applied for the job?

Jan: No, I hadn't. I really believe that it is important that people are aware of CRY and

its work so that more people have the opportunity to take advantage of screening.

I really believe that it is important that

people are aware of CRY and it`s work

so that more people have the opportunity

to take advantage of screening

Theme - Hospital

Photo-Call

WHAT`S

RONA

SAYING TO

TONY?

........ ... ...!

NURSE:W ell, Mr Mitchell, youseem to be coughingmuch more easily this

morning.MR MITCHELL, groaning

in bed: That's

VOICEoN THE pHONE: Hello? Is that

the maternity hospital?RECEPTIONIST: Yes.VOICE ON THE PHONE:Can you please send anambulance; my wife'sabout to have the baby.RECEPTIONIST: Is this her

first baby?VOICE ON THEPHONE: No,this is herhusband.

Amanrushed intoa pub in an agitatedstate. 'Does anyone here owna large black cat with a white col-lar?' he asked, somewhat nervously.There was no reply. 'Does anyoneown a large black cat with a white collar?'asked the man again, raising his voiceeven higher above the general noise ofthe bar. But still no one answered thequestion. 'Oh dear' muttered the man.'I must have run over the vicar'.

VISITOR:Excuse me, butcan you tell mewhich ward VeraSmith is in?RECEPTIONIST: Ah,yes. Wasn't she thelady who was run down by asteamroller earlier this morning?VISITOR: Yes.

RECEPTIONIST:

can you find

these words?WORDSEARCH

Julie age 7has kindlyoffered to dotheW ordseachfor this

SARAH LOUISE WILLIAMSON MEMORIAL FUND

The Children at Martock Primary School have been helping CRY

by running a “Mini – Marathon” in their school grounds, The children

really enjoyed themselves and raised £162.20 in memory of Sarah.

Julie pictured here at

The Walton Carnival

Mr Cool....

A great way to relax after a hard weekend screening!

Sanjay & Keeley

discussing the CRY Screening

programme with Dr Kanani

Kieren

(Howard`s

youngest) in

Sanjay`s

capable

hands!

I promise this won`t hurt!

....being sustained by Gilly`s Crisps!

“Thank you Gilly for saving

our day” says Capt Harry

She`s mine - No she`s mine!

Keeley, Terry, Tina & Phyllis

Jennings with Ryan & Kieren

KINGS LANGLEY MOBILE SCREENING

IN MEMORY OF HOWARD JENNINGS

Our screening took place at Kings Langley Football Club on 24th and 25th July 99.

With panic stations on Friday we discovered that Ken Jones had been taken ill and therefore Ken and

Annette would not be able to attend the screening as our Echo team. Harry was like a tired fly with a

blue bottom as he had been desperately trying to find someone to stand in. Eventually he got in touch

with Gilly Smith from the Brompton Hospital who was able to step into the breach for Saturday. She

was a wonder!!!!

We had decided to meet with Harry and Alison on Friday at 20:30 at their hotel, only to see Harry's

van parked outside the football club at 19:30, he should have been there about 1600!!!! He had been

caught on the M25 and his schedule was put back by 3 hours. That was no problem for Harry who

arrived at the bar on time and bright as a button!!!!

We discussed the expected events for the weekend and Harry told us expressly "not to worry, every-

thing was in hand". Dad was detailed to collect Sanjay from the station at 09:15 on Saturday morning.

He became a worried man when Sanjay had not arrived by 09:30 but it turned out that the train was

only leaving Euston at that time and he arrived in Kings Langley at about 09:40. Good timing as the

screening was due to commence at 09:45.

Back at the club our first patients had arrived and were ready to be screened. We had given every-

one specific screening times and on the whole these were held. There were one or two who arrived

outside their timeslots but there were no particular problem areas. I had arranged for the boys under

16 to get their consent forms completed and returned to the football secretary prior to the event. This

meant that if they should arrive minus their parents there should be no problem. All their paperwork

was filed together in time order allowing easy access on arrival and consequently each patient was

processed swiftly with little delay. We even found that there was plenty of time for tea and doughnut

breaks. (Kit-Kats were provided for Sanjay for all photographic opportunities!!!)

We had visits from two press photographers, the Hemel Hempstead Gazette and the Watford

Observer. Both newspapers covered the event in the following weeks editions.

The weather was very hot on Saturday requiring plenty of cold drinks to keep everyone going.

We decided to present our ECG machine to Dr Kanani on Saturday evening when the days' screen-

ing was complete. This took place at about 19.30 and Alison did a great job of presenting the machine

with no speech prepared!!! Dr Kanani found plenty to discuss with Sanjay who had undergone

training at Hemel Hempstead hospital.

Roy Mitchard the chairman of the youth football club also joined us for the presentation.

Myself, Mum and Dad joined Alison, Sanjay and Harry for a lovely meal at the hotel in the evening to

set us up for the following mornings-hectic activities.

Gilly was unable to do the Echo`s on Sunday morning, so Sanjay offered his services and performed

the Echo scans as well whilst Harry wired up the ECG patients for him. In a slack moment I was able

to put my skills to the test and performed my first ECG on Harry whose ECG was pretty good

considering his age!!!!!!!!! (Didn't mean it Harry).

The club had arranged some matches to be played on the Sunday morning which allowed us to raise

some awareness with parents, sell some badges and even charge for cold drinks extracted from the

fridge!!!! Handy man Harry had been kind enough to change the hinges on the fridge door to reduce

our confusion … We had problems opening it, what we forgot was that the club members were

obviously well used to it!!!! They can always change it back!!!!

The lads who were being screened on the Sunday morning were slightly more on edge than the lads

from Saturday as most were actually playing in the match!!! This did mean their manager was

hassling them to hurry up as they were due on the pitch.

The screening was deemed to be a great success with no problems. In total we screened 42 people.

These included members of the football club, their families and people who have helped our

fundraising efforts over the last 2.5 years.

The screening team were fantastic and Harry was incredible. He was right, everything

was under control and we had no need to worry!! Thanks Guys (& Gilly)!!!!

KINGS LANGLEY MOBILE SCREENING

IN MEMORY OF HOWARD JENNINGS

SUTTON TENNIS & SQUASH CLUBAUCTION NIGHT WITH BOB CHAMPION

Mike - Horseing around

My racket.........for your horse? Blowing thier bugles for Bob!

Odds on “Honest” the Bookie?You got it!

Wait for this!

A Champion mixer!

Bob Champing at “Honests” advice!

Prizes Dave donated

raised £3,000!

THE 3 DAY EVENT ALSO FEATURED A

SPONSORED INTER-CLUB DOUBLES

TOURNAMENT & A KIDS TENNIS CLINIC

Geoff Masters

made Sheila`s day!

Steve`s

prayers didn`t keep

the rain away

Kids Time! - can you spot our CRY Tennis celebrities?

Watchout here comes Fred!

You mean all this mess is really Tony`s fault?Top fundraisers Tanya Clarke

& Geff Schmidt with Steve

Lunchtime with Ken & Wilma

- The Heads of the table

Frew - waxing lyrical

in a CRY TV interview

SUNDAY`S PRO-AM WITH MARK COX, OWEN

DAVIDSON, JOHN INVERDALE, GEOFF MASTERS, FREW

MCMILLAN, KEN ROSEWALL, FRED STOLLE, & MIKE

WALKER WAS PLAYED INDOORS BECAUSE OF RAIN

Mark, Geoff, Ken, Davo, John & Mike - mixing in!

4 hours sleep - what me? Would you repeat that - please! John PENNing his balls for CRY!

Stuart`s tennis made Fred laugh! That was your fault! CRY`S most

famous supporter!

Mike, Fred, John, Mark, Ken & Frew - changed partners again!

AFTER A LONG WEEKEND THE STSC

HAVE A TOTAL NEARING £14,000

(And there`s still more to come)!

Our CRY

celebrities

Trustee Tony Mason waiting

for Ted to stop talking?

Steve - bottling out

of a match with Ken?

What do you

want me to do now?

Where`s MY beer then!

Fred being abstemious

at the CRY lunch!

Wilma &

Ken - waiting for

the rain to stop!

Stuart`s tiddler knows

Daddy`s a star!

I think he`s found

your cap Frew!

Now - in my day......!

Where`s my

racket gone?

Rona tabling John!

William Henry Tyley

Memorial Fund

Mr Dave Barnett abseiled down

St Johns Church, Frome,

Somerset. On his own! “He`s a

brave man and kind enough to

support CRY” writes Daphne,

and he raised £75.00 in

memory of William.

Daphne (William`s Mum) has been busy emptying her Collecting Boxes

and Richard (William`s Dad) has been looking after William`s fund with

£15.45 from the Woolacombe Dairy, £32.00 from The Bath Arms,

Horningsham. & £43.36 from The Norton Ferris Collecting Box (which is

situated in The Tyley`s kitchen).

A Soup, Snacks & Sales held at The Tyley`s farm was a great

success - where bargain hunters were tempted with some fantastic culi-

nary delights! Leila Pollard won the “guess how many sweets in the

sword”. The lunchtime event raised a fabulous £361.00. Special thanks to

P G Whitfield and Mrs W Hunt for their donations making a brilliant total

of £596.81 in memory of William.

OUR FUNDRAISERS

William at Portland in 1993

IN MEMORY OF

STEWART HOWARD

Jane (Stewart`s Mum) her CRY Committee &

friends organised a 60`s & 70`s Disco night. The

evening went really well and raised a brilliant

£270.00.

The Worthington Cup came to the Tesco Thetford

store (where Jane works). Customers were asked

to make donations to CRY for having their photo

taken with the trophy (see Raising Awareness). A

super idea that raised £83.67 in memory of

Stewart.

VARIOUS FUNDRAISING VENTURES IN MEMORY OF

NEIL WICKERS AND DAVID STAFF

The Staff and Wickers families joined forces back in 1997 to achieve theircommon goal of starting up an ECG programme in the the North - West inmemory of their sons. David Staff died age 17 on 27.12.94 after collapsingnear the end of the Darwin Dashers Road Race in which his Dad (Granville)was a Marshall. Neil Wickers died age 31 on 30.08.96 after collapsing at aGym in Blackburn. Both families are now Northern contacts for CRY involvedin the testing initiative. Irene (Neil`s mum) has recruited a strong team offundraisers comprising of J Squelch, M Yates, C Taylor, Rachel Stancliffe,Patricia Rutter & Angela Wilson (Neil`s sister) who all make a big commit-ment to their fundraising! - Here`s what they`ve been up to in Darwen:-

Each year The Darwin

Dashers hold the David

Staff Memorial Fell Race

in aid of CRY. since

the race started in

1997 the club have

donated the wonderful

sum of £1,100.00

Lancashire County Cricket Club

donated some home match tickets

and the proceeds a great £100.00

was raised for the fund

At the initiative of

Patricia Rutter The

Darwen & Blackburn

Mayors Charity Fund

awarded CRY a fantastic

£1,000.00. What a stun-

ning tribute to Neil & David

Bolton Road Church Hall

was the venue for a

Clothes Sale & Coffee

Morning where a stagger-

ing £575.00 was raised in

memory of Neil & David

A CRY stall at The Darwen

Lions Gala featuring a

Tombola, Clothes sale & Bric -a

Brac raised a brilliant £327.01

Denise Gavin organised a Big Raffle (all

on her own!) She managed to find donors

for all the Prizes and raised a staggering

£422.00 in David & Neil`s memory

The Staff & Wickers

families were delighed

to hear that The W.M.

& B.M. Lloyd Charity

Trust had decided

to award CRY

£2,000 in memory of

David & Neil

HAVE RAISED £9,449.29 FOR THEIRECG TESTING PROGRAMME

A

L

W

k

A huge Christmas

Raffle was held with

scores of donated

prizes that raised a

wonderful £448.00

A Charity night was held at the

Conservative Club. Performing were

Jim Fitzgerald, Roy Leah, Donald

Banks & The Generation Gap. These

were all local Artists who gave a

concert for CRY. A wonderful evening

was had by all, and a tremendous

£500.46 was raised

Brian Taylor (Irene`s brother)completed The Flora LondonMarathon in memory of Neil and David and raised £700.00in the process

A Funday held at Darwen Football Ground was well

attended with attractions to include Tombola, Raffles,

Bar-B-Que, Bric-A-Brac, also Cake & Book stalls.

There was a “Beat the Goalie Competition” a donated

Bouncy Castle, with a manicure and a Face Painting

Stall. A special thank you to the owners of the ground

for donating the venue. It was a fantastic day and

£1,620.00 was raised in memory of David & Neil.

Mercers Charitable

Foundation have made

a donation to CRY with

a wonderful £500.00 in

memory of David & Neil

David Staff Neil Wickers

CRY CHRISTMAS CARDS

CRY CHRISTMAS CARDS 1999

We would like to thank the Cross and Gard families for the tremendous amount of work they have done to produce our beautiful CRY Christmas

cards. These have all been donated by professional artists with the printing done at a price special to CRY! We would appreciate it very much if you would consider ordering CRY cards, or include them in your pre-Christmas fund raising endeavours.

Post all orders please to Caroline Gard – 5 Glebe Way, Frinton on Sea, Essex CO13 9HR

Thanks for Christmas Cards - from the Cross family

Jo and Charlie Cross have commissioned three full colour Christmas cards for CRY and would like to thank the two artists who have kindly donated superb artwork to CRY. Liz Carcas – sister of Charlie, has donated two paintings – one a sprig of holly and the other a poinsettia. Margaret Morrison, a popular

artist in Northumberland, has allowed us to use her well known painting of a winter scene of Bolam Lake Northumberland. This scene has been used both for a blank card for all occasions, as well as a Christmas card.

Thanks must go to the printing company BLP Printing and Packaging in New-castle who have been outstanding in their advice and help in the printing of these superb quality cards. The Managing Director, Mr Leo Kane, has taken a personal interest in CRY and in particular its screening programme in the

North East. Thanks to him, his company has been extremely generous to CRY. We think he and his dedicated team must be feeling very relieved not to have Jo ‘phoning or faxing numerous times a week, asking copious ques-tions on the printing of the cards. It’s not surprising to hear they have been

voted UK Printing Company of the Year. Patience should be added to their title!

Thanks for Christmas Cards - from the Gard family

We would like to express thanks to the following artists who have kindly given

their permission to CRY for the use of their designs as Christmas cards this year: Elizabeth Clifford-Turner, for her lovely Madonna.

Jane Charles and her children, Robert and Louisa, for their wonderful images of Christmas. Margaret Turnbull, for her fun Santa and his hearts. Edna Stock, for her beautiful holly arrangement.

Very special thanks must go to John and Sheana Fenwick for all their help, advice, support and patience, and to all at John’s printing company, Benfoy Press, for printing the leaflets and cards, and for supporting CRY as their

chosen charity in so many ways.

£1,000 HAS BEEN RAISEDIN MEMORY OF LAURA FOX

Laura was a bright, bubbly, beautiful 13 year old who was popular with every one she

met.

She had a burning ambition to be famous - a Popstar, an Actress, a Sports Star -

Something! Anything! Days after returning from a family holiday in France with her

Mum, Dad, twin brother Mark, and 15 year old sister Sam, she was found dead in her

bedroom.

Laura died on August 5th last year. Although the cause of death was not established her

parents believe she probably was a victim of Long QT Syndrome, or an

undetected heart condition.

She was a perfectly healthy teenager. There were no problems. No possible clues. She

went up to her room to get ready for a family game of tennis and died.

Since then the Fox family have been trying to come to terms with their terrible ordeal,

and have started a fund in Laura`s memory. Laura`s old School Farlingaye High School,

in Woodbridge Suffolk have held 2 events - a School Disco and a School Rock Evening

which raised the wonderful amount of £619.02. Personal family donations have

amounted to £380.978 an incredible total of £1,000.00 in memory of Laura.

Laura seen here in Bury St Edmonds - 2 weeks before she died

CAROLINE & ANNE RAISED £5,884.00

IN MEMORY OF ANDY GARD

Following a hearty breakfast of porridge and honey, Caroine and her close friend Anne

Lines, set off for the start of the 1999 London Marathon. Neither of them had run the

race before, but were driven by the desire to honour Andy. Caroline because he was

her son, Anne because he was a former employee. With a button each from Andy’s

clothes, and a very special glass bead found on the beach, they set off determined to

complete the course in style. They certainly did that and between them also raised over

£5,884.00. Andy was represented by 8 runners in all (7 of them were donated places)

raising a staggering £7,706.40 to date. Thank you all for your incredible efforts for CRY.

Caroline & Anne cross the finishing line after 5hrs 34mins

IN MEMORY OF ANDY GARD

THE EMERGENCY SERVICESCHALLENGE HELD ON THE

WESTERN LAWNS EASTBOURNE

The CRY supporters club! It`s a shirt!

OR a skirt

Taking “time out” The CRY team

Gang leaders - Adrian White

& Charlie Connaughton

Tracy`s

son Jason

stayed up until

very late helping

to organise the

CRY raffle!

Caroline on Gard with Amy! Still waiting for Mum!

Nigel & Peter - shady characters!

Come on Caroline

pick us a winner!

Look what I won!

Whatta lotta lolly!

Amy on track!

Promise I wont touch

Showdown at High Noon

Soon to be wed Adrian & Tracy

Jenny on her 351st raffle

ticket - and still smiling!Believe me. I really promise. You honestly didn`t win the telly!

RAISED OVER £5,500 IN MEMORYOF JEREMY COLE

RAISING AWARENESS

With Permission Bella Magazine 06.07.99

RAISING AWARENESS

With Permission Bella Magazine 06.07.99

RAISING AWARENESS

with permission The Journal 05.07.99

RAISING AWARENESS

with permission The Journal 05.07.99

RAISING AWARENESS

with permission The Gazzette 03.06.99

RAISING AWARENESS

with permission The Advertiser 24.06.99

RAISING AWARENESS

with permission Tesco Today Magazine with permission Northumberland Countryside News

RAISING AWARENESS

with permission The Watford Observer 30.07.99

RAISING AWARENESS

with permission The Weekly News 29.05.99

Bulletin Board

E MAIL CONTACTSKeeley Ashley - Keeley.Ashley@Supplies-Team.co.uk

Roy Ball - royandgillball@selcroftavenue.freeserve.co.uk

Nigel & Jenny Cole - nigel.cole1@virgin.net

Jo & Charlie Cross - chascross@compuserve.com

Mike Foster - foster1m@aol.com

Caroline Gard - caroline@cryoung.freeserve.co.uk

Harry Hindle - capt.harry@tesco.net

Anne Jolly - jollyjon@netcom.co.uk

Alan & Gloria Moss - mosses@cherrystonescottage.freeserve.co.uk

Adrian Woodhead - adrian@woodhead88.freeserve.co.uk

More and morepeople are usingemail as a fast and convienient

way of communication.If you would like to be put on ourCRY list, please

email us withyour details.

Maureen Ward CRY`s

ECG “Consultant”!

Maureen has offered to

talk to anyone needing

help with organising

Mobile Screenings,

ECG Testing , or Ethical Approval. You name

it. She`s done it!

Try her on 01834 843742

Ken & Annette Jones were

unfortunately unable to join us

for our Kings Langley Screening

due to Ken`s ill health. We really

missed you!, and wish Ken a

speedy recovery.

LATEST STATISTICS

NOW REVEAL THAT

NEARLY 1 IN 100

CHILDREN ARE

BORN WITH A

HEART DEFECT

JOHN FENWICK

A VERY SPECIAL THANK YOU TO JOHN FROM

BENFOY PRESS FOR SUPPLYING US WITH OUR

WONDERFUL CHRISTMAS CARD ORDER

FORMS. THE PRINT & THE PAPER QUALITY ARE

ABSOLUTELY 1ST CLASS. JOHN IS AN AVID CRY

SUPPORTER ALWAYS WILLING TO LEND A

HAND WITH ANYTHING THAT HE CAN DO, FROM

ORGANISING QUIZ NIGHTS IN FRINTON TO

GETTING US OUT OF TROUBLE BY

RUNNING OFF URGENT LEAFLETS (AT VERY

SPECIAL PRICES) - JOHN`S OUR MAN!

John seen here at the Quiz Night

DONATION FROM THE GARD`S

WE ARE TERRIFICALLY

GRATEFUL FOR THE

WONDERFUL COMPUTER &

BRILLIANT FAX MACHINE YOU

HAVE GIVEN US WHICH WILL

MAKE SO MUCH DIFFERENCE

TO OUR OFFICE

SHEILA CLARKE IS

LOOKING FOR TEAM-MATES

FOR THIS YEARS CHALLENGE

Would you like to be stuck

in a tunnel with Sheila?

If so please call Sheila or Mike

THE CRY COMMANDO CHALLENGE?

This years CRY Commando

Challenge will be on October 3rd at

Woodbury Common in Devon

If you would like to register your

team please contact Mike Foster -

Co-ordinator of CRY Commando

Challenge on 01329 231734

Teams need to be a minimum of 3

and a maximum of 5 people

June Boulton is dedicating

all her fundraising money

for office furniture and

equipment, in memory of

her 17 year old son John,

who died suddenly last

year in his sleep of Sudden

Adult Death Syndrome.

She is doing a “Pubs &

Clubs” circuit & would be

grateful for Raffle prizes. If

you have any ideas or

prizes please contact her on

0151 287 2519

Bulletin Board

OFFICE FURNITURE

APPEAL

We are moving into local

offices in October and

desperately need Office

Furniture. We would very

much appreciate items

donated or at very

special prices.

especially sound proofedpanels!

Please contact the CRY Office

if you can help us in any way

Breakfast at Gatwick Airport

with American Paediatric Cardioligist

Naomi Gautier & her husband

CRY`S Powerpoint Presentation is now

available in either CD ROM or FLOPPY

DISC formats. Ideal for fundraisings

where a computer can be used to dis-

play information about CRY. Also fea-

tured is CRY`S Website so if any of you

haven`t got access to the Internet and

you would like to see the site now`s your

chance! The cost is £10.00 inc P&P and

can be obtained from the office

LLuuccii’’ss LLoocckkeett ffoorr CCRRYYLuci has designed, especially for CRY, a

superb sterling silver (or 9 carat gold)

locket which opens to hold two photos.

The silver chain can be any length up to a

maximum of 20 inches, and the locket can

be personalised with the addition of any

initial. The cost, including post, packing & insurance is £75,00 and order forms are

available from the office. Gold initial and clasp are available for the additional charge

of £15.00. All lockets are made individually, hallmarked and engraved on the back

with CRY and our ECG line.

SECTION 64 GRANTS

CRY was again unsuccessfull in it`s application for a

Section 64 Grant for 1999. Ifanyone would like the list of

successfull applicants pleaseapply to the office