7/27/2019 Creative Writing: This assignment prepared for Mr.Bakri, my honorable lecturer.

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Its all about me, yeahh Mariam Nabilah Binti Hasman Everything was fine to me until ... I ve been diagnosed as SLE patient on 2011.

Systemic Lupus Erytematosus. It started when my ankle bruises, rashes on both ofmy legs and become bloated. Every time I lay on my bed, I feel hurts. WEAK.

That s the word. Since then ward are my second home. Every week I have appointment with the doctor. I have lots of lots medicine to

eat. One of that is the Prednisolone or also known as the Steroid.

That what s making me looks like an obese girl (sigh). That is the gloomy chapter

of my life. I don t feel like to live. In my head, there s no chance for me to

become better again. You can check on Google if you want to know more

about this disease. At the back, I m the happy-go-lucky girl. It makes my

world turns upside down. I didn t even notice that long time there s no smile

sketch on my face. Until One day, my mom admonish me when I started

laugh to see one of the program on television. I want that smile to stay.

That s when I realize if I am that sad, what s on earth our mother would feel to

see her daughter being injected with the doctor so many times, seeing her

daughter full of sadness. Oh, I feel bad. At that time, I start to motivate myself. I

have to be strong for my mom, my siblings, and my family. My sickness the

doctor said have on and off . I can t get too stressed- then it will get me

even sicker. I can t do heavy task or prolonged walking under the sunshine. It

will worsen my skin. There so much of rules for me to stay healthy. But, I have to.

7/27/2019 Creative Writing: This assignment prepared for Mr.Bakri, my honorable lecturer.

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In my thought, let be the people who talking bad or talking back about me. I

had few times cried when other kids say something that would make you feel

heartache whenever I used the umbrella or can t join the curriculum at school

or when I have the specialty to sit when the assembly takes too long for me tostand. You have t o wear sunblock and if can wear long sleeve because of the

light of the lamp can affect your skin just like you stay under the sunshine. I

have to follow the entire doctor s will. Just because of I don t really want to be

the troublesome of my family. I just follow his instruction Prof. Doc shahrir ,

which is my main doctor that handles my case. I am not like others. If I get even

flu, I have to rush to the emergency of Hospital Universiti Kebangsaan

Malaysia (HUKM), because of low immunity antibodies I get soon after take the

steroid. Now, I m here at Johor. I will not be able to go there at any time. I have

to try to not get sick. My antibodies are low ever since the steroids get into my

blood. Every time I have an appointment with the doctor, I have to go for blood

test. My mom doesn t like the nurse. Not because of the attitude issues but my

mom can t stand to look me being like a lab rat. She even says they are all

Vampires. All I can say is I have joint pains. You just name it. At nights, before

go to sleep. I have to put cream all over the places that I feel hurts. Every time

before I go to class, I have to put especially on my knees to feel better when I

am walking. One week i used one cream flanil (for joint pains). Every time I think of

my parents, I fell like a burden to them. The hospital bills every time Ive been

awarded and etc. All this sadness gives me courage to give them my scroll, I will

hold their hands bring them to the hall for my graduation day and take picture

with my beloved parents in a full set of graduation cloth. InshaAllah .

I love this quote, always trust Allah 100% I know everythings happen must have

a reason. Alhamdulillah all this make me more closer to A llah =) freedom, fun,

enjoy who was I back then. But, after all this make feel scared of the Day of

7/27/2019 Creative Writing: This assignment prepared for Mr.Bakri, my honorable lecturer.

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