Creating an online resource for medical archives at the Wellcome Library
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Creating an Online Resource for Medical Archives at the Wellcome Library
Christy HenshawProgramme Manager - Wellcome Digital LibraryLibraries@cambridge Conference 2012
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The Wellcome Trust
• A global charitable foundation
• Achieving extraordinary improvements in human and animal health
• Supporting the brightest minds in biomedical research and the medical humanities
• Exploring medicine in historical and cultural contexts
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The Wellcome Library
• Major resource for the study of medical history
• Collections of books, manuscripts, archives, films and pictures on the history of medicine from the earliest times to the present day.
• Provide insight and information to anyone seeking to understand medicine and its role in society, past and present.
• Provide access to a growing collection of contemporary biomedical information resources relating to consumer health, popular science, biomedical ethics and the public understanding of science.
The Wellcome Library
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The Wellcome Library
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The Library Transformation Strategy2009 - 2014
To provide global access to, and expert interpretation of, a world class collection that explores medicine in its cultural contexts
• Targeted collecting – putting challenges in context
• Expert interpretation – engaging (new) audiences
• Strategic digitisation – online access to our collections
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The Wellcome Digital Library Pilot
Genetics and its Modern Foundations 2010-2013
A new online resource for everyone interested in the history of human and animal health.
Aims• build sustainable/expandable mechanism – foundation stone
for WDL• digitise key library holdings - relating to a major Trust
challenge area• digitise important third party content – linked to theme• use innovative content and tools – to encourage discovery and
use• explore commercial partnerships – enhance access to non-
theme material
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Archival material – 1.1m imagesWellcome Library - 600,000 imagesExternal – 500,000 images
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Books related to genetic research - 600,000 images
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ProQuest, Early European Books – 5.5m images
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Medical Officer of Health reports – 400,000 images
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Born digital material – initially small but growing
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Digitising archives – key tasks
2 years – 10 collections – 600k pages
Physical preparation• Flattening• Check sequence of items• Protect fragile items with sleeves• Remove staples• 0.6 FTE
Digitisation• Complete “cover to cover” digitisation• Canon digital cameras (medium format)• 2 FTE
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Digitising archives – managing users
Managing information• Make clear which items are not available in the catalogue(s)• Maintain up-to-date list online• Keep up-to-date schedule on staff wiki
Reducing impact• Good understanding of timing built over time• Remove items for shortest possible time• Include a good buffer in advertised “unavailability” time• Set targets/batches based on complete series (if possible)
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External partners
1.5 years – 9 collections – 500k pages
• Churchill Archives Centre• Cold Spring Harbour Laboratory• KCL• University of Glasgow• UCL
Wellcome Trust provides the funding, digitisation managed by and carried out at the host institutions.
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Sensitivity and archives – overview
Archives commonly contain the following types of content that may be sensitive:
• Personal information
• Private information
• Medical information
• Personal opinions
• Formal assessments of others
• Clinical images or other visual content
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Assessing sensitivity - overview
10,000 files with ca. 1.1m pages of content – impossible to read everything
Step 1 Analyse series level metadata for sensitivities
Step 2 Determine level of checking required for risky series (usually a percentage, or number of files)
Step 3 Check items
Step 4 Determine whether further checking is required
Step 5 Carry out further checking
Step 6 Record items to be suppressed (may be entire file)
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Sensitivity and archives – online access
Access category Sensitivity Online availability
Open (>100 years old) Non-sensitive Open access
Open (<100 years old) Non-sensitive Registration only access
Closed Highly sensitive No access
Restricted Some sensitivity Access with special permission in the Library only
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Sensitive items
Examples of content we would restrict from online access:
• Reference letters about a 3rd party less than 60 years old
• Job and grant applications submitted by a 3rd party less than 30 years old
• Letters or notes discussing someone’s
• Mental health
• Debilitating diseas
• Sexual orientation
• Race/ethnicity
Information may not be sensitive if it is in the public domain.
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Registration
Registration requires a user to provide an email address and agree to a set of Terms of Conditions of Use (still in draft) that will include something along these lines:
I will not make any use of personal data on living persons that contravenes s.33 of the Data Protection Act 1998. In particular, I will not use the information obtained from archival material:
(a) to support measures or decisions with respect to particular individuals;
(b) in such a way that substantial damage or distress is, or is likely to be, caused to any data subject.
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Reuse
Distribution and reuse is encouraged within the parameters of the Terms and Conditions:
• Complies with Copyright Law and Data Protection Act• Acknowledges copyright holder(s)• Non-commercial
Viewing, zooming, downloading, sharing, printing: all permissible.
Accessing high resolution images (i.e. TIFFs) will incur an administration fee.
Use for commercial purposes may incur a fee.
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Thank you!
Christy Henshaw
Useful links
Access policy: goo.gl/WPVww
Archives digitisation: goo.gl/T1RS9
WDL information: goo.gl/uR5OI