Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher....

Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher.

Parkinson Disease Caregiver Training Program

Philosophy Goals Purpose of Training Outcome – expectations Certificate of Completion


What is Parkinson Disease?

A chronic (ongoing) and slowly progressive neurological (involving the nervous system) condition….medically classified as a

“movement disorder”The cause is unknown and there is no cure – treatments are to minimize symptoms and maximize functional abilities

***********************1.2 Million people in the US have PD

4.0 Million world-wide

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Early Detection of Parkinson Disease

Initially, mild symptoms can come and go --

often mistaken for normal aging.

The most commonly noticed first symptom -- one-sided

shaking of the hand

25% do not have a tremor, but may feel --

Easily fatigued

Slow moving

Change in gait (walk) and balance

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Hallmark Signs of Parkinson Disease

Hallmark Signs of PD include:

1.Resting tremor – when limb not in motion

2.Slowness – Bradykinesia

3.Rigidity – stiffness in limbs

4.Loss of balance, tendency to fall backwards

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What Caregivers Should Watch For

Difficulty arising from chair Difficultly changing position in bed Hands and fingers less mobile Muffled speech or low voice volume Shuffling gait – tendency to drag foot Reduced eye blinking Less frequent swallowing Anxiety and depression, difficulty concentrating Constipation, low blood pressure, sleep disorder


What is Wearing-Off?

When symptoms begin to reappear or become

noticeably worse before it is time to take the

next scheduled dose of medication

******

Important to know this so you can adjust

therapy to provide better control of the

symptoms

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Performing Caregiving Duties Yourself

You can receive training from:

Social service agencies

Hospitals

Community schools

The American Red Cross

Area Agency on Aging

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Safety, Safety, Safety

“Among all age groups “falls” ranked as the second leading cause of unintentional injury deaths in the United States. Of those who survive a fall, 20-30 percent will suffer debilitating injuries that affect them the rest of their lives.” (National Safety Council, Report on Injuries in America, 2003)

FIRST PRIORITY IS SAFETY

Many accidents can be prevented

Ask a relative or friend to survey the home

Your comfort, convenience, and safety

are also important

• Leave a blanket, pillow, and phone on the floor. In case of a fall, the person can stay warm and call for help.

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Dressing Someone with PD

Dressing is easier with a routine – don’t be rushedDress the person while sitting - lay clothes out in the order they will be put on – choose loose-fitting garments and avoid busy patterns if the person has dementia

Try adaptive equipment, such as a button hook, or Velcro fasteners

If a person is bedridden, avoid wrinkles in clothes and bedding.

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Where to Borrow Equipment and Supplies

PD Support Groups, Salvation Army, Red Cross, Visiting Nurses Association National Easter Seal Society, Muscular Dystrophy Association, American Cancer Society, Charity organizations, churches, senior centers, leisure clubs

Never buy equipment from a telephone solicitor, a door-to-door salesman, or a person who calls on

you before the doctor or hospital discharge planner has told you what equipment will be needed.

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Special Diet for Parkinson Disease

Protein management may be helpful for some patients with on/off motor fluctuations in response to levodopa.

Levodopa and protein interaction

Nutritional guidelines for those with PD

PD slows gastric mobilityMost benefit from taking levodopa on empty stomach

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Basics of Exercise

Good fitness is made up of three types of exercise:

Stretching – always stretch before exercising.

Strengthening – in home or gym

3-lb easy grip weights are useful Aerobics – works heart and lungs as well

as large muscles

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Preventing Back and Neck Injuries

To prevent injuries to yourself, get plenty of rest and maintain: optimal nutrition physical fitness / muscular strength good body mechanics a stress management program

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Emergencies

Many injuries can be avoided throughpreventive measures

Once a serious accident or sudden illness is obvious, do not delay calling for help.

Make sure 911 is posted on your phone

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Eating (3)

Eating Problems and Solutions

– Drooling - remind the person to swallow

– Spitting out food – offer/suggest small bites

– Difficulty chewing & swallowing

– Eating with fingers

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Dressing Someone with PD

Dressing is easier with a routine – don’t be rushedDress the person while sitting - lay clothes out in the order they will be put on – choose loose-fitting garments and avoid busy patterns if the person has dementia

Try adaptive equipment, such as a button hook, or Velcro fasteners

If a person is bedridden, avoid wrinkles in clothes and bedding.

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Speech and Swallowing

Speech

Most people with PD have gradual decreases in voice volume or

ability to speak clearly

Targeted speech therapy programs (LSVT)

Singing – great exercise for the voice!

Swallowing

• Swallowing changes

• Swallowing evaluation

• Swallowing checklist

• How to improve swallowing

• Coping with drooling

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Copyright 2007 CareTrust Publications Illegal to copy without a license from the publisher....

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