Coping with a Disability Coping with a Disability Your State AgrAbility Project Peer Support...
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Transcript of Coping with a Disability Coping with a Disability Your State AgrAbility Project Peer Support...
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Coping with a DisabilityCoping with a Disability
Your State AgrAbility Project Peer Support TrainingDate
Promoting Success in Agriculture for People with Disabilities and their Families
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Goals and Objectives
• Increase understanding of the impact of a disability
• Recognize the stages of loss cycle
• Learn about coping methods
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Disabilities may be
• Congenital Present at birth
• Acquired Acquired at anytime during a lifetime Traumatic or chronic injuries or illnesses
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Congenital Disabilities
• Muscular Dystrophy• Down Syndrome• Cerebral Palsy• Fetal Alcohol Syndrome
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Acquired Disabilities• Back injury• Spinal cord injury• Traumatic brain injury• Amputation• Stroke• Diabetes• Cancer• Arthritis• Mental illness
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Research Findings• People with congenital disabilities tend to adjust
better.
• People with acquired disabilities are more likely to experience severe psychological trauma from personal loss and life changes.
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Research Findings
• It is more difficult to adjust to an acquired disability than a congenital one.
• Family and friends may have difficulty adjusting to an acquired disability which makes the adjustment for the person with the disability more difficult.
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Emotional Responses to Disability
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Stress
• Stress is a reaction to something considered a challenge or a threat
• Stress can have a positive or negative effect
• Occasional stress is a natural part of life
• Stress that gets out of control or is prolonged can affect health
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Some Symptoms of Stress
• Headaches• Depression• Irritability• Difficulty sleeping• Low self-esteem• Excessive drinking or smoking• Overeating or loss of appetite• Fatigue• Upset stomach• Aggressive driving
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Anger
• Anger is a feeling …. It’s OK
• What a person does with anger (behavior) could become an issue
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Depression
• 1 in 5 Americans could be suffering from depression
• It is common for a person to feel sad, down, or blue from time to time, but if this condition persists or is recurrent it is possible that the person is suffering from depression
• Depression can be a serious, life-threatening condition
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Symptoms of Major Depression
• Persistent sad or irritable mood
• Pronounced changes in sleep, appetite, and/or energy
• Difficulty thinking, concentrating, or remembering
• Physical slowing or increased agitation
• Lack of interest in or pleasure from activities that were once enjoyed
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Symptoms of Major Depression
• Feelings of guilt, worthlessness, hopelessness, or emptiness
• Recurrent thoughts of death or suicide
• Persistent physical symptoms that do not respond to treatment, such as headaches, digestive disorders, and chronic pain
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Depression may co-occur with certain medical conditions
• Stroke• Cancer• Heart attack• Parkinson’s disease• Rheumatoid Arthritis• Hormonal disorders
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Men and Depression
• Men are less likely to admit to depression
• Depression is often masked by alcohol or drugs, working long hours, or by anger, irritability, or being discouraged
• The suicide rate in men is four times that of women, though more women try it
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Stressful events that may trigger suicidal thinking
• Untreated depression
• Major life changes; family death, divorce, disability, bankruptcy
• Prolonged or terminal illness
• Use or abuse of drugs or alcohol
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Stages of the Loss CycleNormal Functioning
Shock and Denial
Anger/Blaming
Depression and Detachment
Dialogue
Acceptance
Return to Meaningful Life
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Research Findings
• The adjustment process has been described as:
“Learning to accept the reality of a condition and then finding suitable ways to live with that condition.”
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Taking Time to Adjust
• People need time to adjust• They need to feel sadness, anger, blame,
depression, etc.• People need others with whom they can talk
and tell their story in order to heal • At some point people need to reassess and
reaffirm themselves
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Taking Time to Adjust
• People need to find new coping strategies and mobilize themselves
• They need to have the opportunity for open dialogue about new situations
• It may take a couple of years to heal from emotional wounds
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• What emotions did you experience in the first days and weeks after your disability condition?
• How did you come to self-acceptance and renewed self-esteem?
Discussion
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• Individuals move through each phase at different paces
• Some may stop at a particular phase for a long time or even remain there the rest of their lives
• Family members often experience a similar adjustment process
Research Findings
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• How much do you think it would have helped you to have worked through your transition with a good friend who provided peer support?
Discussion
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How Individuals Cope with Disability
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Coping Successfully with Disability• Take care of self and health
• Take care of others
• Continue working and recreating
• Maintain friendships and accept social supports from others
• Confine sense of loss more narrowly to the loss itself
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Coping Successfully with Disability• Realize that there is meaning to life, and
that all is not lost by the disability
• Focus on present, specific, and manageable challenges
• Don’t let illness take center stage in your life or relationships
• Maintain a sense of “I can do this; I can manage”
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How Families Cope
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Family Coping Skills• Disability is a family affair
• Revisit family roles
• Adapt leisure activities
• Adjust to financial hardships
• Deal openly with emotional needs
• Spot signs of high stress, anger, and depression
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Family Coping Skills
• Encourage spirituality
• Seek out peer support
• Focus on family strengths
• Learn about the disability or condition
• Develop stress management skills
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Family Coping Skills
• Wives and mothers talked with a friend• Were involved in work• Prayed or meditated• Participated in a support group or engaged in
recreation to cope• Developed a healthy outlook• Took time for one’s self• Went on family outings
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Effective Peer Support
• Should: Provide a safe place for another to tell his/her story Encourage them to find strength within themselves Empower them to find solutions to problems Let them know they are respected, appreciated, and
recognized for who they are Acknowledge that their feelings are normal and
temporary
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Bottom Line
• When someone has acquired a disability, there is a period of adjustment
• They will experience a range of emotions from depression to anger
• Helping them cope will have positive effects
• Active listening is what peer support is about
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Promoting Success in Agriculture for People with Disabilities and their Families