Congenital Adrenal Hyperplasia · Gland ACTH Adrenal Glands _ Angiotensin Re nin Aldosterone Kidney...

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Congenital Adrenal Hyperplasia A Parents’ Handbook Dr Ellie Rice Carey Sentman Mandi Tembo

Transcript of Congenital Adrenal Hyperplasia · Gland ACTH Adrenal Glands _ Angiotensin Re nin Aldosterone Kidney...

Page 1: Congenital Adrenal Hyperplasia · Gland ACTH Adrenal Glands _ Angiotensin Re nin Aldosterone Kidney Cortisol • - Androstenedione Testes Testosterone . A Gunk ... we 9 Both equal

Congenital Adrenal Hyperplasia

A Parents’ Handbook

Dr Ellie Rice Carey Sentman Mandi Tembo

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WHY A PARENT’S HANDBOOK?

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WHAT IS CONGENITAL ADRENAL HYPERPLASIA (CAH)?

CONGENITAL – PRESENT AT BIRTH ADRENAL – INVOLVING THE ADRENAL GLANDS HYPERPLASIA – RESULTS IN OVERGROWN GLANDS

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SYMPTOMS OF CAH

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TREATMENT Treatment is based on the individual and the type of CAH they have. Treatment includes…

• Glucocorticoid Treatment

• Mineralocorticoid Treatment

•  Stress Dosing

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THE BEGINNING…. •  The Clinic for Special Children

•  PBH course

•  Family Day

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Table of Contents Foreword Chapter 1: Getting Started Chapter 2: What is Congenital Adrenal Hyperplasia? Chapter 3: How Did This Happen? Chapter 4: How Will I Recognize the Symptoms of the Condition? Chapter 5: The Importance and Challenge of Glucocorticoid Treatment Chapter 6: Water, Salts and Aldosterone Chapter 7: Stress Dosing and Adrenal Crisis Chapter 8: How Will CAH Affect My Child’s Pubertal Development? Chapter 9: Other Issues Appendix Glossary

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FOR THE SUMMER….

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•  6 very different drafts to edit

•  Review

•  Amish Home Visits

•  Design Elements

•  Medical Reviews

•  Editorial Review

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THE END-PRODUCT?

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