Company Registration Number: 877990 Charity · PDF fileproviding for their care ... lives of...

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Company Registration Number: 877990 Charity Registration Number: 249338 SPINA BIFIDA • HYDROCEPHALUS • INFORMATION • NETWORKING • EQUALITY– SHINE (formerly the Association for Spina Bifida and Hydrocephalus) TRUSTEES REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2012

Transcript of Company Registration Number: 877990 Charity · PDF fileproviding for their care ... lives of...

Company Registration Number: 877990

Charity Registration Number: 249338

SPINA BIFIDA • HYDROCEPHALUS • INFORMATION • NETWOR KING • EQUALITY–

SHINE

(formerly the Association for Spina Bifida and Hydr ocephalus)

TRUSTEES REPORT AND FINANCIAL STATEMENTS

YEAR ENDED 31 MARCH 2012

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Company Information

Year Ended 31 March 2012

Company Secretary Brian S Delves-Deffee to September 2011

Margaret Conner from May 2011 Registered Office 42 Park Road

Peterborough PE1 2UQ

Principal Professional Advisers

Auditors Saffery Champness Unex House Bourges Boulevard Peterborough PE1 1NG

Bankers The Co-operative Bank Plc 33 Westgate Peterborough PE1 1PU

Solicitors Hegarty & Co 48 Broadway Peterborough PE1 1YW

Insurance Brokers Henderson Insurance Brokers Ltd. 8, The Forum Peterborough PE2 6FT

Pensions Administrator

The Pensions Trust, 6, Canal Wharf, Leeds LS11 5BQ

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Contents

Year Ended 31 March 2012

Page

Trustees’ Annual report 1 – 10

Independent auditors’ report 11 – 12

Consolidated statement of financial activities 13 – 14

Statement of financial activities of the charity 15 – 16

Balance sheets 17 – 17

Notes on the financial statements 18 – 29

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The Trustees are pleased to present their report together with the financial statements of the charity for the year ended 31 March 2012.

Reference and Administrative details of the Charity

Registration details Charity number 249338 Company number 877990

Registered Office 42, Park Road, Peterborough, PE1 2UQ

Royal Patron HRH The Duchess of Gloucester GCVO

President Dr Jeffrey Tate CBE

Patrons Dennis Bryant Patrick Daunt The Baroness Masham of Ilton, Countess of Swinton DL Danny Mills Natalie Povey David Proud Dr Rob Hicks

Directors and Trustees The directors of the charitable company (the charity) are its Trustees for the purpose of charity law and throughout this report are collectively referred to as the Trustees.

The Trustees serving during the year and since the year end were as follows:

Richard H Astle (Chairman) Austin Crowther (Vice Chairman) Mike Allen (Hon. Treasurer) Carole Armour Roger Bayston Jonathan Burke Lisa Cain Sarah Coates Katrina Grounsell Louise Iontton (resigned July 2012) Paul Manning Michael McKernan Eric Prentice Tim Robinson Beverley Rowe Louise Turner Lorraine Watson Neil Watts Paul Zickel It is confirmed that none of the serving Trustees had any beneficial interest in any contract with Shine in the year.

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Senior Management Team Chief Executive Jackie Bland Finance Director & Company Secretary Brian Delves-Deffee to September 2011

Margaret Conner from May 2011 Director Northern Ireland Cathy McKillop Director Wales Kate Thomas Director of Fund-Raising Initiatives Annette Angell

Structure, Governance and Management

Governing Document

In May 2011, the Association for Spina Bifida and Hydrocephalus changed its name to Spina bifida • Hydrocephalus • Information • Networking • Equality – SHINE following a resolution put to members at an Extraordinary General Meeting. Spina bifida • Hydrocephalus • Information • Networking • Equality – SHINE (Shine) is a company limited by guarantee registered in England and Wales (registration No 877990) formed in 1966. Shine is registered as a charity with the Charity Commission for England and Wales (Registration No 249338).

It is governed by a Memorandum and Articles of Association, which were last amended on 18 September 2004. The liability of members in the event of a winding up of the company is limited to £5.

Appointment of Trustees

The current Articles of Association specify that new Trustees are nominated by Members for up to a three year term. The Trustees are elected (or re elected) at the Annual General Meeting. There may be up to 20 Trustees, a third of the Trustees stand for re-election each year.

A resolution will be put to members at the AGM in November 2012 to amend the Articles so that all Trustees will be directly elected by the membership of Shine in future years. The size of the Board will be reduced over time to 12-16 members, Transition arrangements will be put in place to ensure continuity with the existing Board of Trustees.

Trustee induction and training

New Trustees undergo an induction day where they meet the Senior Management Team and other key employees. They are briefed on their legal obligations under charity and company law, the content of the Memorandum and Articles of Association, the committee decision making process, the business plan, and recent financial performance of the charity.

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Organisation

The Board of Trustees administers the charity. It meets around 4 times a year, and there are sub committees covering Policy & Resources, SAMC (Shine Adult Members Council), and the Medical Advisory Committee advising the Board on specific areas. The day-to-day management of the charity is delegated to the Chief Executive, who reports to the Trustees. The Chief Executive is assisted in the day-to-day management by the Senior Management Team.

Related parties

The charity has close relationships with 21 affiliated local associations. These are independent charities for spina bifida and hydrocephalus in their own right. The charity also works in partnership with many other bodies, voluntary and statutory, in carrying out work to support service users, undertake research and disseminate information.

The charity owns the entire share capital of Shine (Trading) Limited registered in England and Wales. The principal activity of Shine (Trading) Limited includes the sale of advertisements and the sale of virtual balloons for balloon races, raising funds for the charity.

Risk Management

The Board of Trustees recognises that it is responsible for the identification and management of the major risks facing the charity. A Risk Register is maintained and shared annually with the Trustees (more frequently if a significant issue is realised). The Register covers the following seven areas: Governance, External, Operations, People, Financial, Compliance and Reporting. At the time of this report the Trustees advise that their main concern is the economic climate. There has been a significant reduction in income from the trading subsidiary, and in other income streams, following the economic downturn. Shine continues to make structural and strategic changes to the organisation to mitigate this risk. Objectives & Activities

The main objective of the charity, as stated in Shine’s governing document, is for the relief of persons who have spina bifida and/or hydrocephalus or allied or related disorders by providing for their care, welfare, treatment, education, and integration into society. Shine’s vision is a society that meets the needs, values the contribution and celebrates the lives of people living with spina bifida and/or hydrocephalus A new five-year Strategic Plan (SHINE Forward) was adopted in 2011 with five main aims as below. The over-arching objective is that Shine will be an organisation focused on the needs of a highly involved membership, which meets those needs effectively, efficiently and creatively.

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To achieve its vision, Shine works to five main Aims: 1. To develop a larger, more interactive, more involved national membership of people

with spina bifida and hydrocephalus, their families and supporters 2. To become a force for change to address the many challenging issues that our

members face 3. To provide unique, high quality services 4. To put communication at the heart of all we do 5. Through on-going development and review of our operations, become an

organization that is exceptionally fit for purpose Trading Subsidiary

The consolidated accounts include Shine (Trading) Limited which is a wholly owned trading subsidiary of Shine (see note 4 and note 10). The principal activity of the company is to raise funds for the charity. Achievements & Performance

Shine works with families, individuals, carers and professionals to support all aspects of living with spina bifida and hydrocephalus, to overcome challenges and encourage achievements. It also advocates for better attitudes and services where appropriate. Shine’s support is offered throughout life, often starting when parents want information about healthy pregnancy, or when a pregnancy affected by a neural tube defect (NTD) is first discovered. Working together with families and individuals, Shine aims to empower people to obtain the best possible health, social and other services to meet their needs and to share the up-to-date and accurate information they need to live their lives to the full. During 2011-12 Shine’s comprehensive and well respected information has been reviewed, updated and expanded and more has been made available online. Our aim is to provide quality information including materials for children in colourful easy-to-understand publications. We produce accessible information for families and individuals and also for the health, social care, education and employment professionals who work with them. During 2011-12 we have produced our most popular leaflets in Braille/Large Print and any of Shine’s leaflets can now be translated or reformatted to meet individual language or visual needs. We have organised a range of information days to increase understanding for families, young people and professionals. For example during 2011-12 we held a day for Grandparents to better understand hydrocephalus; a Bowel and Bladder Day to focus on continence issues and several ‘Understanding Hydrocephalus’ days for parents and professionals. The feedback from these events was consistently positive with many people reporting an ‘excellent’ experience. Our health and education advisers contributed articles to nursing and special educational needs journals, on continence management and learning and hydrocephalus. Shine’s Services Department received thousands of contacts during the year, dealing with general enquiries on a range of subjects and referring callers needing more specialised

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help and information to our health and education advisers or to our Support and Development Workers at community level. Our teams of professional Support and Development Workers continue to provide support, across the country. This support ranges from advice and information at the time of diagnosis, to getting the best possible education for children to enable them to reach their potential, to working with adults to help them take control of the challenges they face. Coming to Shine from nursing, teaching, social work, therapy and allied backgrounds, our Support and Development Workers also work with other professionals to improve their understanding of the impact of the disabilities on learning, health and social wellbeing. Shine in Wales and Northern Ireland continued to reach out to those who could benefit from our support with services in both countries expanding, largely through project funding. Big Lottery funding in Northern Ireland has enabled the development of support and social groups which have significantly improved the opportunities available to individuals with spina bifida and hydrocephalus and their families. In Wales, work was completed to determine the most effective mechanisms for Shine CYMRU and the local associations to work together with a new structure agreed for 2012-13. Under its new Lifelong Opportunities Programme Shine organised a full calendar of events across England, Wales and Northern Ireland. This is a major area of development which will result in many more people being connected to the developing Shine community. Our major Folic Acid Awareness campaign Go Folic! was restructured and a Health Campaigns Officer employed to develop the campaign at local level throughout England Wales and Northern Ireland. Corporate funding was secured for another year and a vibrant new set of resources, including short promotional films, was produced. Work began to explore the possibility of adding a recommendation to include vitamin B12 in the current advice on NTD prevention and this will be continued in 2012-13. Care pathways for the diagnosis and care of pregnancies affected by NTDs were finalised by the Foetal Anomaly Screening Programme, in partnership with Shine, and rolled out to screening and maternity units throughout the NHS. Although Shine has not been able to direct significant funds into research during 2011-12, work to track children following MRI imaging in vitero has continued and Shine staff have continued to contribute to the Society for Research into Hydrocephalus and Spina bifida (SRHSB) as well as to follow world wide research with interest. Shine has undertaken a major health survey into its members which may lead to new fields of investigation and research in future. Following on from feedback about a continued low public profile, and evidence that people found the name ‘ASBAH’ difficult to remember, Shine undertook a major initiative in this respect during 2011-2012. Following consultation with organisations connected with the charity, its membership of disabled individuals and parents and the Shine Adult Members Council, the charity underwent a rebrand in October 2011. The charity was re-registered as Spina bifida • Hydrocephalus • Information • Networking • Equality – SHINE and a new

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brighter, more memorable image adopted. The feedback was welcoming and positive and the benefits from greater awareness and a renewal of energy were immediately felt. Several areas of fundraising attracted greater interest after the rebrand, most notably corporate. All materials and signage were redesigned in line with the new image and a campaign undertaken with the media and all stakeholders to make them aware of the rebrand. As Shine, the charity continues to work to become better known to the public, communicating the value of our work in our field and the wider public benefits this brings. Public benefits

The following are examples of direct public benefits of Shine’s work:

• A growing membership scheme bringing all 9,500 of Shine’s members together into a cohesive supportive community

• Support groups clubs and one-off activities across England Wales and Northern Ireland offering activities, sports, special interest sessions, advice information and peer support

• A magazine ‘Together’ four times a year mailed out to members and containing a range of news, information and feature material

• A ‘Benny Bear Club’ with over 300 members aged 10 and under who receive a newsletter each month and have a ‘Benny Bear Blog’ to inform and educate them

• A network of over 40 professionally qualified advisers and regional staff who inform, support and advise, raise awareness and encourage peer support and self help at every opportunity

• A busy national first point of contact service, open 5 days a week • A lifelong opportunities programme of events; for disabled adults to increase

independent living skills, for parents/carers to increase understanding and for young people to enhance social skills

• A range of high quality publications and web materials for use by individuals and their families, health professionals and others

• A range of social networking sites to bring people with similar life experiences and issues together

• Campaigns and initiatives to bring about positive changes in the lives of our beneficiaries

• Training and awareness sessions for professionals in education and health care settings

• An Adult Members Council offering members the chance to be more involved in the organisation and to use their skills, experience and influence in the delivery of the charity’s work

Support is offered to professionals by providing specialised information and advice, for example:

• Advice for doctors and the wider health service for better diagnosis and medical support

• Informing health and education professionals about spina bifida and hydrocephalus, through exhibitions, study days and publications;

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• Shine advisers attend multi-disciplinary clinics for those with spina bifida and/or hydrocephalus

Influence to improve Practice and Policy

• Promotion of folic acid (vitamin B9) to prevent neural tube defects • Involving disabled people in every aspect of Shine’s governance and activities • Membership of the Board of the International Federation of Spina bifida and

Hydrocephalus • Advice and support for embryonic activities in developing countries • Working to improve public information and attitudes to disabled people • Promoting positive images of disability and celebrating success • Offering a well designed and acclaimed website to bring key messages to a

worldwide audience. Medical Research to Improve Treatment and Quality of Life

• Encouraging and co-operating with specialist researchers in the UK and overseas • Disseminating research outcomes so they are translated into practice

All our work is made possible by the generosity of donors, the support of volunteers, through the work of our fundraising department and our wholly owned trading company, Shine (Trading) Ltd. We continue to succeed in gaining the vital support of individuals, trusts and companies in a highly competitive fundraising environment by demonstrating the scope and benefits of our work. We value highly the tremendous support from all our donors. Financial Review

In the year to 31st March 2012 the Trustees set a deficit budget of £104,000 on unrestricted funds. The deficit was funded from reserves so that the organisation could restructure and rebrand itself. The deficit in the year was just under £100,000 before losses on investments, so was within the target. There was also a deficit of £79,000 on restricted funds, as funds brought forward from previous years were utilised. The funding environment continues to be difficult but we were fortunate to secure £252k over four years from the Big Lottery Fund England, as well as continuing funding from other trusts. As an organisation we are constantly seeking to develop and broaden the range of our income streams. We are still heavily reliant on our trading subsidiary, which this year contributed £545k, slightly more than last year (£525k). Levels of donations from individuals were slightly lower than last year at £299k, (2011 £348k). Trusts income increased to £203k (last year £187k) and Corporate Donors increased to £172k (last year £103k). Corporate Donations includes sponsorship for the Go Folic and NPH campaigns. Legacies were £335k which was down on last year’s exceptional figure of £533k. Our other significant income streams were Grants £314k (down from £533k received in 2010-11 which had been boosted by income form the Financial Assistance Fund of £150k). We continued to invest in fund-raising, marketing and publicity. Total expenditure on these areas was £399k, compared to £380k last year, the increase was mainly due to increased

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allocation of support costs. Expenditure on shops increased due to one-off closure costs from one shop. Expenditure on direct charitable activities, mainly support to those with spina bifida and/or hydrocephalus and their families being £1,687k, down on last years figure of £1,954k Service levels have been maintained, and the reduction is largely due to a review of the basis of allocation of support costs, with a higher proportion being allocated to fund-raising in 2011-12.

The financial stability of the charity has improved over the past twelve months, though the ongoing economic climate remains fragile. At year-end we hold free reserves of £788k against the reserves policy level of £500k. Unrestricted current assets (reserves excluding investment in fixed assets and long term liabilities) were £398k. Financial Reserves Policy

Shine holds financial reserves to be applied to future activities in a number of categories. Unrestricted (or free) reserves are available to be applied, at the discretion of the Trustees, to any of Shine’s charitable purposes. Restricted must be applied to the specific purpose(s) intended by the donor. Free financial reserves are held to provide adequate working capital should a significant reduction in income be realised. As approximately 80% of the charity’s costs are staff related the Trustees have set an overall policy reserve level of £500,000. Investment Policy

Under the governing document the charity has the power to make any investment, which the Trustees see fit. An investment policy is in place that intends to move all the charity’s share investments to Common Investment Funds (CIF’s) or Unit Trusts to provide the best spread at minimal cost and risk. At the year end, 90% of the investments are held in these funds. Grant Making Policy

The organisation has had to restrict its grant making policy in response to a fall in income in this area of its work. Support and Development Workers help individuals at local level access grants from outside bodies. Grants are only available direct from Shine in situations of genuine emergency.

Plans for Future Periods The year 2012-13 represents the first full year of the rebranded name and image and care will be taken to maximise the positive impact of this move. There will be a heavy emphasis on communicating our key messages in order to improve public profile, which was a key driver in the decision to rebrand.

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2012 is also the second year of the current Five Year Plan ‘SHINE Forward’ and work will be undertaken to evaluate progress during year one and plan the development of the initiatives planned and published within the plan for 2012-13 and beyond. In particular we will be building on the work established in 2011-12 through our Health surveys which brought an overwhelming 1400 responses. The surveys have revealed significant health needs and healthcare inadequacies which must be addressed by Shine going forward. Within this work we will be highlighting the inequality in treatment and care between those who have acquired spinal injury and those people born with spina bifida. In order to reach as many people who can benefit as possible we will be seeking to expand our community through membership numbers and the setting up of Shine support groups for which we have a target of 50 by 2016. We will continue to seek employment and opportunities for meaningful activity for our members including the development of volunteering activities. We will also explore the possibilities of offering our resources, particularly training, to a wider field and we will be looking to develop partnerships with other organisations in order to do this. We will be holding the first ever Spina Bifida and Hydrocephalus Awareness Week from 22-28 October 2012, and will be participating in World Spina Bifida and Hydrocephalus Day on 25th October. Where resources allow we will be seeking to help those affected by spina bifida and hydrocephalus in less developed regions of the world, drawing on the skills and experience developed during Shine’s 46 year history, and making use of inexpensive methods of imparting information such as the internet and social networks. Work within our Fundraising Department will seek to broaden the fundraising base of the charity and to maximise opportunities in every area. An Income Action Group led by the Chief Executive has been established to monitor progress on this. Work is underway to promote fundraising in schools through ‘Benny Bear Birthday Parties’ and the ‘Wear Yellow and Shine’ initiative. Statement of Trustees’ Responsibilities The Directors, who also act as Trustees for the charitable activities of Spina bifida • Hydrocephalus • Information • Networking • Equality - SHINE, are responsible for preparing the annual report and the financial statements in accordance with applicable law and United Kingdom Generally Accepted Accounting Practice. Company law requires the Directors to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charitable group and of the net income or expenditure of the group for the year. In preparing these financial statements the directors are required to:

• select suitable accounting policies and then apply them consistently; • observe the methods and principles in the Charities SORP;

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• make judgements and estimates that are reasonable and prudent; • state whether applicable accounting standards have been followed, subject to any

material departures disclosed and explained in the financial statements; and • prepare the financial statements on the going concern basis unless it is inappropriate

to presume that the charity will continue in business. The Directors are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and the group and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charity and the group and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. Statement as to disclosure of information to auditors

So far as the Directors are aware, there is no relevant audit information of which the group’s auditors are unaware. Additionally, the Directors have taken all the necessary steps that they ought to have taken as Directors in order to make themselves aware of all relevant audit information and to establish that the group’s auditors are aware of that information. The Directors are responsible for the maintenance and integrity of the corporate and financial information included on the charitable company’s website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions. Appointment of Auditors Saffery Champness have expressed their willingness to remain in office as auditors of the company. Going Concern The activities of the charity, its objectives, factors likely to affect its future development and the policies for managing its capital and financial risk are detailed in the Trustees Report. The Trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. Thus they continue to adopt the going concern basis of accounting in preparing the financial statements. This report has been prepared in accordance with the special provisions relating to small companies within Part 15 of the Companies Act 2006. By order of the Board of Trustees R H Astle Chairman 27 September 2012

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Independent Auditors’ Report to the Trustees

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We have audited the financial statements on pages 13 to 29. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice). This report is made solely to the company’s members and the trustees, as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006. Our audit work has been undertaken so that we might state to the company’s members and trustees those matters we are required to state to them in an auditors’ report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the company, the company’s members and trustees as a body, for our audit work, for this report, or for the opinions we have formed.

Respective responsibilities of trustees and auditor s As explained more fully in the Statement of Trustees’ Responsibilities, the trustees (who are also the directors of the company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view. We have been appointed as auditors under the Charities Act 2011 and the Companies Act 2006 and report in accordance with those Acts. Our responsibility is to audit and express an opinion on the financial statements in accordance with applicable law and International Standards on Auditing (UK and Ireland). Those standards require us to comply with the Auditing Practices Board’s Ethical Standards for Auditors. Scope of the audit of the financial statements An audit involves obtaining evidence about the amounts and disclosures in the financial statements sufficient to give reasonable assurance that the financial statements are free from material misstatement, whether caused by fraud or error. This includes an assessment of: whether the accounting policies are appropriate to the group’s and the parent charity’s circumstances and have been consistently applied and adequately disclosed; the reasonableness of significant accounting estimates made by the trustees; and the overall presentation of the financial statements. In addition, we read all the financial and non-financial information in the director’s report to identify material inconsistencies with the audited financial statements. If we become aware of any apparent material misstatements or inconsistencies we consider the implications for our report. Opinion on the financial statements In our opinion the financial statements: • give a true and fair view of the state of the group’s and the parent charity’s affairs as at

31 March 2012 and of the group’s incoming resources and application of resources, including its income and expenditure, for the year then ended;

• have been properly prepared in accordance with United Kingdom Generally Accepted Accounting Practice; and

• have been prepared in accordance with the requirements of the Companies Act 2006 and the Charities Act 2011.

Opinion on other requirement of the Companies Act 2 006 In our opinion the information given in the Trustees’ Annual Report for the financial year for which the financial statements are prepared is consistent with the financial statements.

Spina bifida • Hydrocephalus • Information • Networking • Equality – SHINE Independent Auditors’ Report to the Trustees

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Matters on which we are required to report by exception We have nothing to report in respect of the following matters where the Companies Act 2006 and the Charities Act 2011 require us to report to you if, in our opinion: • the parent charity has not kept adequate and sufficient accounting records, or returns

adequate for our audit have not been received from branches not visited by us; or • the parent charity financial statements are not in agreement with the accounting records

and returns; or • certain disclosures of trustees’ remuneration specified by law are not made; or • we have not received all the information and explanations we require for our audit. Jane Hill (Senior Statutory Auditor) …………………………….. for and on behalf of Saffery Champness Chartered Accountants Unex House, Bourges Boulevard, Peterborough Statutory Auditors Cambridgeshire, PE1 1NG

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Consolidated Statement of Financial Activities

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Unrestricted Restricted Total

Funds Total Funds

Funds Funds 2012 2011 Note £ £ £ £ INCOMING RESOURCES Incoming resources from generated funds Voluntary income Donations 2 663,198 79,077 742,275 737,775 Legacies 335,019 - 335,019 516,482 Grants receivable 3 - 314,131 314,131 533,542 Activities for generating funds Trading turnover of subsidiary 4 1,007,494 - 1,007,494 1,019,595 Gifts sold through shops 172,425 - 172,425 188,495 Sale of Grand Draw Tickets 12,683 - 12,683 15,131 Investment income 7,445 - 7,445 10,676 Incoming resources from charitable activities Publications and fees 11,245 5,973 17,218 6,367 Other incoming resources - - - 5,937 Total incoming resources 2,209,509 399,181 2,608,690 3,034,000 RESOURCES EXPENDED Cost of generating funds Trading costs of subsidiary 4 465,422 - 465,422 497,395 Shops 200,145 - 200,145 196,600 Fundraising 369,271 - 369,271 324,404 Marketing & Publicity 30,520 - 30,520 56,262 1,065,358 - 1,065,358 1,074,661 Resources Available for Charitable Activities 1,144 ,151 399,181 1,543,332 1,959,339 Expenditure on Charitable Activities

Support to those with spina bifida and hydrocephalus and their families 1,209,231 477,930 1,687,161 1,954,120 Governance Costs 34,863 - 34,863 31,023 Total resources expended 5/6 2,309,452 477,930 2,787,382 3,059,804 Net incoming/(outgoing) resources before transfers (99,943) (78,749) (178,692) (25,803) Transfers 14 78,306 (78,306) - - Net incoming/(outgoing) resources before investment gains/losses (21,637) (157,055) (178,692) (25,803) Gains/Losses on investment assets (6,680) (6,680) 13,689 Net movement in funds (28,317) (157,055) (185,372) (12,114) Fund balances brought forward at 1 April 2011 837,317 388,632 1,225,949 1,238,063 Fund balances carried forward at 31 March 2012 809, 000 231,577 1,040,577 1,225,949

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Consolidated Statement of Financial Activities

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The notes on pages 18 to 29 form part of these accounts. The group has no recognised gains or losses other than those shown above. All amounts relate to continuing operations.

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Statement of Financial Activities for the Charity

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Unrestricted Restricted Total Funds

Total Funds

Funds Funds 2012 2011 Note £ £ £ £ INCOMING RESOURCES Incoming resources from generated funds Voluntary income Donations 2 663,198 79,077 742,275 737,775 Legacies 335,019 - 335,019 516,482 Grants receivable 3 - 314,131 314,131 533,542 Activities for generating funds Gifts sold through shops 172,425 - 172,425 188,495 Sale of Raffle Tickets 12,683 - 12,683 15,131 Investment income 7,445 - 7,445 10,676 Gift Aid from subsidiary 4 545,000 - 545,000 525,000 Incoming resources from charitable activities - - Publications and fees 11,245 5,973 17,218 6,367 Other incoming resources - - - 5,937 Total incoming resources 1,747,015 399,181 2,146,196 2,539,405 RESOURCES EXPENDED Cost of generating funds Shops 200,145 - 200,145 196,600 Fundraising 369,271 - 369,271 324,404 Marketing & Publicity 30,520 - 30,520 56,262 Total Cost of Generating Funds 599,936 - 599,936 577,266 Resources Available for Charitable Activities 1,147 ,079 399,181 1,546,260 1,962,139 Expenditure on Charitable Activities Support to those with spina bifida and hydrocephalus and their families 1,209,231 477,930 1,687,161 1,954,120 Governance Costs 34,863 - 34,863 31,023 Total resources expended 1,844,031 477,930 2,321,961 2,562,409 Net incoming/(outgoing) resources before transfers (97,015) (78,749) (175,764) (23,004) Transfers 14 78,306 (78,306) - - Net incoming/(outgoing) resources before investment gains/losses (18,709) (157,055) (175,764) (23,004) Gains on investment assets (6,680) - (6,680) 13,689 Net movement in funds (25,389) (157,055) (182,444) (9,315) Fund balances brought forward at 1 April 2011 819,267 388,632 1,207,899 1,217,214 Fund balances carried forward at 31 March 2012 793, 878 231,577 1,025,455 1,207,899

Spina bifida • Hydrocephalus • Information • Networking • Equality – SHINE Statement of Financial Activities for the Charity

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The notes on pages 18 to 29 form part of these accounts.

The Charity has no recognised gains or losses other than those shown above.

All amounts relate to continuing operations.

Financial statements approved by the Board on 27 September 2012.

Signed on behalf of the Board of Trustees

R H Astle M J Allen Chairman Hon Treasurer

Spina bifida • Hydrocephalus • Information • Networking • Equality – SHINE Balance Sheets as at 31 March 2012

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Group Charity 2012 2011 2012 2011 Note £ £ £ £ Fixed Assets Tangible Assets 9 1,320,553 1,344,284 1,319,106 1,335,926 Investments 10 220,987 391,259 220,990 391,259 Total Fixed Assets 1,541,540 1,735,543 1,540,096 1,727,185 Current assets Debtors 11 373,833 271,697 402,909 596,257 Deposits with banks 165,000 467,933 165,000 467,933 Cash in hand and bank 153,233 75,572 114,978 58,329 Total Current Assets 692,066 815,202 682,887 1,122,519 Creditors Amounts falling due within one year 12 (283,276) (377,854) (287,775) (694,863) Net Current Assets 408,790 437,348 395,112 427,656 Total assets less creditors 1,950,330 2,172,891 1,935,208 2,154,841 Creditors due after 1 year 13 (910,566) (949,259) (910,566) (949,259) Debtors due and receivable after 1 yr 813 2,317 813 2,317 Net Assets 1,040,577 1,225,949 1,025,455 1,207,899 Funds Restricted funds 14 231,577 388,632 231,577 388,632 Unrestricted funds: Revaluation Reserve 60,334 67,014 60,334 67,014 Other charitable funds 733,545 752,254 733,544 752,253 Non-charitable trading funds 4 15,121 18,049 Total Unrestricted Funds 809,000 837,317 793,878 819,267 Total Funds 15 1,040,577 1,225,949 1,025,455 1,207,899

These financial statements have been prepared in accordance with the provisions applicable to companies subject to the small companies regime within Part 15 of the Companies Act 2006 and with the Financial Reporting Standard for Smaller Entities (effective April 2008). The financial statements were approved and authorised for issue by the Board and were signed on its behalf on 27 September 2012.

R H Astle M J Allen Chairman Hon Treasurer Company Registration No. 877990

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Notes to the Financial Statements

Year ended 31 March 2012

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1. ACCOUNTING POLICIES

1.1 Basis of Accounting

The financial statements have been prepared under the historical cost convention, in accordance with the Financial Reporting Standard for Smaller Entities (April 2008), the Companies Act 2006 and the Statement of Recommended Practice - Accounting and Reporting by Charities (SORP2005). The Trustees consider that in preparing these accounts, they have consistently applied appropriate accounting policies supported by reasonable and prudent judgements and estimates where required. The principal accounting policies adopted are those described below.

1.2 Basis of Consolidation

The consolidated accounts incorporate the results for the year ended 31 March 2012 of the Charity and of its wholly owned subsidiary.

1.3 Incoming Resources

Income from donations is accounted for when received. Legacies are included when the Charity is advised by the personal representative of an estate that payment will be made or property will be transferred and the amount involved can be quantified. Grant income is recognised according to the terms of each individual agreement. All other income is dealt with on an accruals basis. Gifts donated for resale are included as income when they are sold. No amounts are included in the financial statements for services donated by volunteers.

1.4 Resources Expended

Direct expenditure is analysed and charged to the department incurring the cost. Expenditure is included when incurred, the majority of costs being directly attributable to specific activities. Costs that cannot be directly attributed to particular headings, are allocated to activities on a basis consistent with use of the resources. Premises and other overheads have been allocated on a head count basis. The methodology was refined in 2012, resulting in increased charges to fund-raising and reduced charges to charitable expenditure.

A commitment to pay a research grant arises when approval for the grant is given by the Policy & Resources Committee and is recognised at the date of approval. All other grants are recognised when paid.

Fundraising, marketing and publicity costs are those incurred in seeking voluntary contributions and do not include the costs of disseminating information in support of charitable activities.

Governance costs are those incurred in connection with the governance arrangements of the Charity and compliance with constitutional and statutory requirements.

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1.5 Fixed Assets

Assets over £1,000 in value are capitalised at cost. Tangible assets are depreciated on the straight-line basis at the following rates:

Buildings 2% Furniture, fittings and equipment 20% Software and Website 20 - 33%

1.6 Fixed Asset Investments

As required by the Statement of Recommended Practice, investment assets are included at market value. Unrealised gains and losses on investments are recognised in the statement of financial activities in the period in which they occur.

1.7 Operating Leases

Rentals payable under operating leases are charged in the period in which they are incurred.

1.8 Pension Scheme

For employees choosing to participate, the Charity operates a defined contribution pension scheme providing benefits additional to those from the State. The assets are held in a separately administered scheme. The pension cost charge represents contributions payable by the company to the pension scheme in respect of the year.

1.9 Funds

General funds are unrestricted funds which are available for use at the discretion of the Trustees in furtherance of the general objectives of the Charity and which have not been designated for other purposes. Designated funds comprise unrestricted funds that have been set aside by the Trustees for particular purposes. The aim and use of each designated fund is set out in the notes to the financial statements. Restricted funds are funds which are to be used in accordance with specific restrictions imposed by donors or which have been raised by the Charity for particular purposes. The aim and use of each restricted fund is set out in the notes to the financial statements.

1.10 Cash Flows and Liquid Resources

Cash flows comprise increases and decreases in cash. Cash includes cash in hand, deposits repayable on demand and overdrafts. Deposits are repayable on demand if they are in practice available within 24 hours without penalty. Liquid resources comprise assets held as a readily disposable store of value.

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2. DONATIONS RECEIVED

Unrestricted Restricted 2012 2011 £ £ £ £ Individuals 297,305 1,500 298,805 348,435 Trusts 200,208 3,286 203,494 187,425 Corporate Donors 104,557 67,587 172,144 102,280 Groups - - - 10,649 Local Authorities 30,004 - 30,004 46,803 Local Associations 31,124 6,704 37,828 42,183 Total Grants 663,198 79,077 742,275 737,775

3. GRANTS RECEIVABLE

Unrestricted Restricted 2012 2011 £ £ £ £ Welsh Assembly - 28,500 28,500 30,000 Big Lottery Fund - England - 50,077 50,077 - Big Lottery Fund - Northern Ireland - 136,175 136,175 165,306 Big Lottery Fund - Wales - 25,000 25,000 - Local Authorities - - - 43,038 Trusts - 62,384 62,384 96,575 Financial Assistance Fund - - - 150,000 Department of Health - - - 16,783 Other - 11,995 11,995 31,840 Total Grants - 314,131 314,131 533,542

4. NET INCOME FROM TRADING ACTIVITIES OF SUBSIDIARY UNDERTAKING

The Charity has one wholly active trading subsidiary undertaking. Shine (Trading) Limited (formerly ASBAH Ltd) which sells advertising space in various publications and balloons for virtual balloon races. The company gift aids virtually all its taxable profits to Shine. A summary of its trading results is shown below. Audited accounts have been filed with the Registrar of Companies.

Shine (Trading) Ltd Profit & Loss Account 2012 2011 £ £ Turnover 1,007,494 1,019,595 Cost of Sales (308,109) (316,823) Gross Profit 699,385 702,772 Administration Expenses (157,313) (180,572) Operating Profit 542,072 522,200 Amount payable by Gift Aid to Shine (545,000) (525,000) Loss on ordinary Activities (2,928) (2,800) Retained in Subsidiary (2,928) (2,800)

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Notes to the Financial Statements

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Shine (Trading) Ltd Balance Sheet 2012 2011 £ £ Fixed Assets 1,447 8,358 Current assets 399,099 713,617 Current Liabilities (385,422) (703,923) Current Assets 13,677 9,694 Total Net Assets 15,124 18,052 Aggregate Share capital and Reserves 15,124 18,052

5. ANALYSIS OF RESOURCES EXPENDED

Direct Staff Other Direct Support 2012 2011

£ £ £ £ £ Expenditure on Charitable Activities Support to those with spina bifida and hydrocephalus and their families 1,143,667 289,135 254,359 1,687,161 1,954,120 Shops 79,299 27,983 92,863 200,145 196,600 Trading 272,242 88,187 104,993 465,422 497,395 Fund-raising 248,212 42,286 78,773 369,271 324,404 Marketing 22,758 7,762 - 30,520 56,262 Cost of Generating Funds 622,511 166,218 276,629 1,065,358 1,074,661 Governance - 13,895 20,968 34,863 31,023 Total 1,766,178 469,248 551,956 2,787,382 3,059,804

6. SUPPORT COSTS

Staff Costs IT Premises Other Total £ £ £ £ £ Charitable Activities 140,533 21,492 57,603 34,731 254,359 Shops 4,750 2,830 80,711 4,572 92,863 Trading 44,935 7,347 41,115 11,596 104,993 Fund-raising 35,812 4,828 30,331 7,802 78,773 Cost of Generating Funds 85,497 15,005 152,157 23,970 276,629 Governance 20,968 - - - 20,968 Total 246,998 36,497 209,760 58,701 551,956

In the year ending 31st March 2012, the method of allocating support costs was reviewed. This resulted in increased charges to fund-raising and lower charges to charitable expenditure compared to previous years. Our actual levels of support were unchanged.

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Notes to the Financial Statements

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Resources Expended include:

2012 2011 £ £ Auditors remuneration for the Group Audit Services Taxation and Other Services

11,200 780

11,527 500

Operating Lease rentals – land and buildings 66,808 72,075 Depreciation 40,779 37,796

7. PARTICULARS OF STAFF FOR THE CHARITY

2012 2011 £ £ Wages and Salaries 1,507,363 1,682,193 Redundancy Costs 19,005 87,214 Social Security Costs 134,781 148,538 Pension Contributions 34,851 36,997 Total 1,696,000 1,954,942

Average number of full-time equivalent employed in the year

2012 2011 Services 38 38 Fundraising and publicity 11 11 Shops 5 5 Administration 4 6

Total full-time equivalent staff 58 60 The number of staff earning in excess of £60,000 p er annum was as follows:

Group Charity 2012 2011 2012 2011 £60,000 - £70,000 1 1 1 1

Redundancy costs included relate to one member of staff taking voluntary redundancy and the closure of one shop in the year. The accounts include a charge of £2,028 (2011 - £2,023) to provide the Trustees with indemnity insurance. No remuneration has been received by any member of the Board of Trustees or any other Committee in either year. In respect of attending meetings of committees, travel expenses amounting to £4,010 have been reimbursed to 14 members of the Board of Trustees (2011 - £5,215 to 15 members)

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8. PENSIONS

Shine participates in The Pensions Trust’s Growth Plan (the Plan). The Plan is funded and is not contracted-out of the State scheme. The Plan is a multi-employer pension plan.

Contributions paid into the Plan up to and including September 2001 were converted to defined amounts of pension payable from Normal Retirement Date. From October 2001 contributions were invested in personal funds which have a capital guarantee and which are converted to pension on retirement, either within the Plan or by the purchase of an annuity.

The rules of the Plan allow for the declaration of bonuses and/or investment credits if this is within the financial capacity of the Plan assessed on a prudent basis. Bonuses/investment credits are not guaranteed and are declared at the discretion of the Plan’s Trustee.

The Trustee commissions an actuarial valuation of the Plan every three years. The purpose of the actuarial valuation is to determine the funding position of the Plan by comparing the assets with the past service liabilities as at the valuation date. Asset values are calculated by reference to market levels. Accrued past service liabilities are valued by discounting expected future benefit payments using a discount rate calculated by reference to the expected future investment returns.

The rules of the Plan give the Trustee the power to require employers to pay additional contributions in order to ensure that the statutory funding objective under the Pensions Act 2004 is met. The statutory funding objective is that a pension scheme should have sufficient assets to meet its past service liabilities, known as Technical Provisions.

If the actuarial valuation reveals a deficit, the Trustee will agree a recovery plan to eliminate the deficit over a specified period of time either by way of additional contributions from employers, investment returns or a combination of these.

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Notes to the Financial Statements

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9. TANGIBLE FIXED ASSETS

Land &

Buildings Equipment Software Total £ £ £ £ Group Cost at 31 March 2011 1,487,404 248,982 25,303 1,761,689 Additions - 1,928 15,120 17,048 Disposals - (189,557) - (189,557) Cost 31 March 2012 1,487,404 61,353 40,423 1,589,180 Depreciation At 31 March 2011 162,454 238,888 16,063 417,405 Charge for the Year 25,749 6,273 8,757 40,779 Depreciation on Disposals - (189,557) - (189,557) At 31 March 2012 188,203 55,604 24,820 268,627 Net book value 31 March 2012 1,299,201 5,749 15,603 1,320,553 Net book value 31 March 2011 1,324,950 10,094 9,240 1,344,284

Land &

Buildings Equipment Software Total £ £ £ £ Charity Cost at 31 March 2011 1,487,404 148,527 10,138 1,646,069 Additions - 1,928 15,120 17,048 Disposals - (101,580) - (101,580) Cost 31 March 2012 1,487,404 48,875 25,258 1,561,537 Depreciation At 31 March 2011 162,454 143,000 4,689 310,143 Charge for the Year 25,749 3,153 4,966 33,868 Depreciation on Disposals - (101,580) - (101,580) At 31 March 2012 188,203 44,573 9,655 242,431 Net book value 31 March 2012 1,299,201 4,302 15,603 1,319,106 Net book value 31 March 2011 1,324,950 5,527 5,449 1,335,926

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Notes to the Financial Statements

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10. FIXED ASSET INVESTMENTS

Group 2012 2011

£ £ Market Value @ 31 March 2011 391,259 476,252 Add Acquisition at cost 509 1,318 Less Disposal at opening book value - (100,000) Profit/loss on disposals - 4,209 Net gain/loss on revaluation (6,680) 9,480 Transfer to Current Assets (164,101) -

Market value @31 March 2012 220,987 391,259

Historic cost @ 31 March 2012 160,653 324,245

Investments Comprise: Cost Market Value

£ £ £ 2012 2011 Charishare CIF 30,055 96,977 103,215 UK Unit Trusts 89,402 101,257 100,489 UK Quoted Shares 41,196 22,753 23,454 Total 160,653 220,987 227,158 Deposits with banks - - 164,101 Total 160,653 220,987 391,259

Charity In addition to the above SHINE holds the following UK unquoted shares:

2012 2011 £ £

Cost of investment in subsidiary 3 3 The cost of investment in subsidiary represents the cost of shares in the subsidiary undertaking Shine (Trading) Limited, which is wholly owned and registered in England. The principal activity of the company is to generate funds for Shine.

11. DEBTORS

Group Charity 2012 2011 2012 2011

£ £ £ £

Trade Debtors 249,924 208,218 41,863 10,226

Gift Aid Receivable 240,000 525,000

Other Debtors 9,991 19,384 9,991 19,384

Accrued Income 75,763 8,178 75,763 8,178

Prepayments 38,155 35,917 35,292 33,469

Total Debtors 373,833 271,697 402,909 596,257

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Notes to the Financial Statements

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12. CREDITORS – amounts falling due within one year

Group Charity 2012 2011 2012 2011

£ £ £ £

Trade Creditors 138,420 167,741 15,432 18,395

Amount due to Subsidiary - - 149,883 495,935

Accruals 34,146 95,756 24,019 79,927

Other Creditors 1,887 - 1,887

Other taxation and social security 57,147 51,781 44,878 38,030

Bank Loan 53,563 60,689 53,563 60,689

Total Creditors 283,276 377,854 287,775 694,863

Group trade creditors contains income which has been deferred within the accounts of Shine (Trading) Limited. An amount of £99,120 (2011 - £121,430) has been deferred in relation to balloon race income and £16,925 (2011 - £18,990) in relation to advertising income. Balloon race income is recognised after the event has been held and advertising income is recognised when the advertising has been produced.

13. CREDITORS OVER ONE YEAR

Group Charity

2012 2011 2012 2011 £ £ £ £ Bank Loan 910,566 946,259 910,566 946,259

The bank loan is secured by a first legal charge over the freehold property known as 42 Park Road, Peterborough. The loan is repayable over 25 years with interest being charged at 1% over the bank’s base rate. The balance is repayable as follows:

£ Between one and two years 53,563 Between two and five years 160,688 After more than five years 696,315 Total 910,566

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Notes to the Financial Statements

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14. RESTRICTED FUNDS Group and Charity

The income funds of the Charity include restricted funds comprising the following unexpended balances of donations and grants held on trust to be applied for specific purposes:

Balance 01/04/11 Incoming Expenditure Transfers

Balance 31/03/12

£ £ £ £ £ Children in Need 17,618 38,944 (42,808) - 13,754

Big Lottery Fund (NI) – Gateway to Opportunity 34,611 138,134 (143,215) - 29,530 Big Lottery Fund (Wales) – Supporting Financial Sustainability and greater social inclusions (599) 25,000 (20,941) - 3,460 Big Lottery Fund (England) – Empowering a community - 50,077 (44,881) - 5,196 Welsh Assembly Government 3,848 28,500 (32,348) - - WCVA – Volunteering in Wales 12,070 12,468 (15,183) - 9,355

Go Folic/NPH Campaign (4,201) 67,587 (63,386) - -

Lloyds TSB Foundation 16,600 0 (16,600) - - Equitable Charitable Trust - 6,840 (6,840) - - Welfare Grants 1,832 11,995 (13,827) - - Other Services 69,323 19,586 (76,816) - 12,093

Provision of Specific Services 151,102 399,131 (476,845) - 73,388 Research Fellowship 73,293 - - (18,293) 55,000 Bursary Fund 90,808 - - (60,013) 30,795 Carolyn Smith Fund 379 50 - - 429 Research Reserve 73,050 - (1,085) - 71,965 Total 388,632 399,181 (477,930) (78,306) 231,577

Grants and contracts are received for specific activities, which are itemised under Provision of Specific Services.

The Research Fellowship Fund was created in 1973 by a special appeal and transfer of funds from the Spina Bifida Trust. A Fellowship was awarded when income on the capital has accumulated in the restricted fund to what is considered at the time to be a satisfactory level. The Bursary Fund was established in 1988 to help fund those with spina bifida and/or hydrocephalus with further education. Awards were made from income received into the restricted fund. As these funds have not been utilised for some years, the Board agreed that the portion previously designated should be transferred back to unrestricted funds. The Carolyn Smith Fund received donations and interest for the payment of grants in respect of housing needs.

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The Research Reserve comprises donations for general research. Grants are made from this reserve to relevant applicants.

15. ANALYSIS OF GROUP NET ASSETS BETWEEN FUNDS Unrestricted Restricted Total Funds Funds Funds £ £ £ Fund balances at 31 March 2012 are represented by: Tangible fixed assets 1,320,553 1,320,553 Investments 135,192 85,795 220,987 Current Assets 546,284 145,782 692,066 Current liabilities (283,276) (283,276) Debtors over one year 813 813 Creditors over one year (910,566) (910,566) Total Net Assets 809,000 231,577 1,040,577

Unrealised gains included above on investment asset s: £ £ £ Unrealised gains at 31 March 2011 67,014 - 67,014 Add: loss arising on revaluation (6,680) - (6,680) Unrealised gains at 31 March 2012 60,334 - 60,334

16. LEASING COMMITMENTS

The Association is committed to the following payments within the next year under operating leases (rentals on shops and offices) expiring:

2012 2011

£ £

Within one year - 25,000

Between two and five years 32,700 32,960

Over five years 16,000 15,000

Total 48,700 72,960 17. LEGACIES

At the year-end the Charity had been notified of material legacies amounting to approximately £66,000 (2011 - £200,000) which have not been included in the accounts.

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18. RELATED PARTY RELATIONSHIPS AND TRANSACTIONS

The charity has taken advantage of the exemption available in FRS 8 “Related party disclosures” whereby it has not disclosed transactions with the ultimate parent company or any wholly owned subsidiary undertaking of the group.

There are no other related party transactions during the current or previous years.

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Thank-you

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On behalf of the thousands of individuals with hydrocephalus and / or spina bifida and their families who we are able to help each year through your continuing support.

Trusts and Foundations

Beatrice Laing Trust Big Lottery Fund – England Big Lottery Fund – Northern Ireland Big Lottery Fund – Wales Children In Need Childwick Trust Donald Forrester Trust Equitable Charitable Trust Eveson Charitable Trust Florence Shute Millennium Trust G C Gibson Charitable Trust Godshill Trust Goldsmiths' Company Charity Hobson Charity Homelands Charitable Trust T19 Ian Fleming Charitable Trust John Ellerman Foundation Langdale Trust Lloyds TSB Foundation for England and Wales Margaret Giffen Charitable Trust Ruffield Charitable Trust Scouloudi Foundation Sir James Knott Trust Sir William Coxen Trust Fund Steel Charitable Trust Thomas Cook Children’s Charity Companies and Organisations Bayer Clearblue Codman Coloplast Hollister Lanes Health Marmite Vitabiotics

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE Thank-you

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Local Associations Donations and Adviser Contributi ons We would like to thank all those Local Associations who have generously sent us a donation in this year and those Local Associations who have an ongoing arrangement regarding adviser funding:-

Surrey Sussex Government Bodies, Local Authorities and Health Tru sts We would wish to thank all those Local Authorities and Health Trusts who provide funding for the employment of advisers: Department of Health Northern Health & Social Care Trust (Northern Ireland) Southern Health & Social Care Trust (Northern Ireland) Suffolk County Council Wales Council for Voluntary Action Welsh Assembly Government

Spina bifida • Hydrocephalus • Information • Networ king • Equality – SHINE

National Office: SHINE 42, Park Road Peterborough PE1 2UQ Tel 01733 555988 Email info@Shine charity.org.uk www.Shine charity.org.uk Regional Offices located in: England (Eastern) 42, Park Road, Peterborough PE1 2UQ Tel 01733 421309 England (North & West) 64, Bagley Lane, Farsley, Leeds LS28 5LY Tel 0113 2556767 England (London & South) 209, Crescent Road, New Barnet, Herts. EN4 8SB Tel 020 84419967 Northern Ireland SHINE PO Box 132 Cushendall BT44 0WA Tel 07762 574861 Wales SHINE Cymru, PO Box 325, Bridgend CF31 9LD Tel 01656 864102