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Community Based Participatory Research
Opportunities through HSTA Knowledge Brokers
(Community Research Associates)
Ann Chester, PhD
Cathy Morton-McSwain, MS
Summer Kuhn, MPH
Merge McMillion, MS
Sara Hanks, MPHc
Objectives
Engage clinicians and scientists in Community Based Participatory Research with HSTA
Understand roles and function of Community Research Associates as knowledge brokers
Determine ways to collaborate to reduce health disparities and increase health literacy in West Virginia
NCATS: Science of Community Engaged Research: Future
Directions – Chris Austin MD, Director of NCATS
Diagnostics and therapeutics
Behavioral interventions
Develop, demonstrate, and disseminate innovative methods and technologies
NCATS and Community Engagement Across the Translational Spectrum
Observation to point of care intervention (T1)
Identify most important research questions
Recruit best researchers
Build partnerships
Complementary funding for research studies
Bridge gap between fundamental science researchers and patients
Clinical and translational research (T2-T3)
Help develop relevant and practicable research protocols
Foster community participation and recruiting research participants for clinical trials
Increase collaboration and communication within the CTSA networks and between key stakeholders (e.g., academia, public/private entities, and communities)
Community health and population research (T4) Adoption of demonstrably useful interventions (i.e. dissemination)
Adherence
Interface with research partners including PCORI, Collaboratory, AHRQ, etc.
The Power of HSTA to Engage Community and ResearchersOver 17 years of NIH support
About $5 million
$28M history of funding with: NIHHHMIBenedumPrivate FoundationsState
Policy Changing Capacity
A New Work Force for Community Based Participatory ResearchAdolescents can be vectors for change in their
communities
Students are able to conduct CBPR in the most inaccessible communities
The HSTA families offer new insights into public health issues
The infrastructure is in place and unique to West Virginia
HSTA Infrastructure
Community Based Organization 159 Volunteer Board
Members
800 9th -12th grade students in 48 high schools After school club setting Complete annual research
projects
67 teachers
14 Field Site Coordinators
4 Community Research Associates (Knowledge Brokers)
HSTA Students
30% African American
63% Financially Disadvantaged
74% First in their families to go to college
83% Rural
67% Female
Community Research Associates (CRAs)
Background in high school education
Understanding of experimental design and statistics
Ability to relate scientific information to high school teachers and students
Ability to help scientists relate to HSTA and community
What do CRAs do?
Build partnerships between HSTA and researchers to promote community based research
Work with teachers and students on implementing research protocols
Act as liaison between community and research
Disseminate and translate knowledge between researchers and HSTA communities and vice versa
Facilitate IRB process
Fitting the Needs of Many
ResearchersCommunities
Resources
Participants
IdentifyIssues
HSTA CRAs
CommunityStakeholders
Methods
Mentor HSTA Students/teachers
HSTA Clubs
Disseminateknowledge
Empower to change
Policy change
State Legislators
Network
Gain a new perspective
Translate
HSTA Student Research Projects
Students complete annually
Timeline for completion:August – October – ProposalOctober – January – Proposal Approval Upon Proposal Approval – Implementation and Data
CollectionMay – HSTA Symposia – Presentation of project
Work with students on projects of mutual interest
What can HSTA provide? A pool of 800 ethics trained students
Trust of locals
CRA assistance
IRB assistance
IRB approved lifestyle survey
Teacher oversight
Access to hard to reach populations
Translation and dissemination of research to community
Opportunity to recruit future healthcare providers
What do we need from you?
Research ideas
Experimental design
Materials and supplies
Instruments needed for data collection
Guidance on data collection
Data access for student analysis and presentations
HSTA participant recognition for any publications
Mentoring and role modeling
Partnership Proposal Timeline
August Project Idea Development with CRAs Joint Governing Board Approval
September HSTA student/club recruitment
October - January Work with student on student’s research proposal
January – April Begin implementation upon approval Data analysis
May Student Symposia
Current Research Collaborations
Stress reduction – Dr. Julie Brefczynski-Lewis
Kidney Disease – Dr. Rebecca Schmidt
Ginseng harvesting – Dr. Jim McGraw
HSTA students as coaches of physical activity behavior changes
Lifestyle and Physical Activity Investigation – Dr. Bob Branch, University of Pittsburgh
Various Projects - NIOSH
My First Patient Research Opportunity
Collaboration between HSTA, School of Medicine, School of Dentistry, School of Pharmacy, Center for Cardiovascular and Respiratory Services, Engineering and the Davis College
Incorporates individualized health assessment and coaching into HSTA yearly activities
Hypothesis: HSTA students from 26 counties are change agents for their communities starting with themselves
Two Phase Project Phase 1: July 2014 – May 2015 – HSTA Students Phase 2: July 2015 – May 2016 – HSTA Families
IRB in progress now
Set-Up
HSTA students will be assessed for various health indicators while on campus for Summer Institute, July 2014
Students will select a goal to work towards throughout the school year
Will receive personalized coaching based on self-prescribed goal throughout the school year from team of professional students (Medical, Dental, Pharmacy, etc.)
Post assessment will occur at a HSTA event on campus in March 2015
Assessments Dental Health
Blood pressure
Heart rate
Respiratory rate
BMI/Body Fat
Waist Circumference
Hemoglobin A1C
Lipid Profile
Fasting Glucose
Endothelial function
FMRI
NIH funding PAR’s for partnering with HSTA R01 PAR-13-130: Understanding and Promoting Health
Literacy
Dissemination and Implementation Research in Health R03 PAR-13-056 and R21 PAR-13-054 and R01 PAR-13-055:
identify, develop, evaluate and refine effective and efficient methods, systems, infrastructures and strategies to disseminate and implement research-tested health behavior change interventions, evidence-based prevention, early detection diagnostic, treatment and management, quality of life improvement serves, and data monitoring and surveillance reporting tools into public health and clinical practice settings that focus on patient outcomes.
Address WV Health Disparities
HSTA
Researchers
Communities across WV
Enablecapabilities to test effectiveness of • Understandi
ng• Disseminati
on• Adoption• Policy
change
HSTA Health Research Collaboratory
Final Thoughts
Opportunity for research in hard to access communities
Unprecedented access and ability to influence policy
Adolescents as workforce for CBPR
Empowering adolescents as vectors for change
Mentoring future public health practitioners, clinicians, and researchers
Unique infrastructure for community engagement
Funding Opportunities are available NOW
How to Get Involved
Contact Cathy Morton-McSwain304-847-2372