Chronic Illness: Cystic Fibrosis
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Cystic Fibrosis By Jennifer Clark
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With this presentation i taught my classmates what Cystic Fibrosis is and how it affects people living with it.
Transcript of Chronic Illness: Cystic Fibrosis
Cystic FibrosisBy Jennifer Clark
Why I chose CF
History of CF
Very New Misdiagnosed 1930s
Swiss pediatrician Dr. Fanconi Celiac Syndrome
Dr. Dorothy Anderson 1940-present
Causes
Both parents to child CF patients have an abnormal cystic
fibrosis transmembrane conductance regulator (CFTR) gene.
Symptoms/Signs
Usually begins with simple complications 1st symptom Excessive Coughing – leads to scarred
lungs Clubbing Salt Content Infertility
Diagnosing CF
Most are diagnosed at birth or before age 2
Sweat Test Genetic Testing
Treatments
No Cure Vary from person to person – ITP Treatments for lung infections ACTs Breathing Techniques
Psychological/Social Factors
Can live a normal lifestyle No cure
Genetic mutation is from mother and father
Relevance to Child Life
Frequent hospital visits Breathing treatments Isolation
Relevant Information
NO summer camps
Cystic Fibrosis Foundation Great Strides Walk
Bibliotherapy Robyn’s Book Alex: The Life of a Child
References
About cystic fibrosis. (n.d.). Retrieved from http://www.aboutcysticfibrosis.com/
Cystic fibrosis foundation. (n.d.). Retrieved from http://www.cff.org/
