ChildCountPlus_ConceptNote
Transcript of ChildCountPlus_ConceptNote
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MillenniumVillagesProject:ChildCount+:ACommunityHealthEventsReportingandAlerts
SystemAConceptPaper
"Tomakepeoplecount,wefirstneedtobeabletocountpeople."DrLEEJongwook,FormerDirector
GeneralWHO(20042006)
A. Background
Reducingchildandmaternalmortality,by66%and75%respectively,havebeenidentifiedascore
MillenniumDevelopmentGoal(MDG)targets.InmuchofsubSaharanAfrica,10to20percentof
childrendiebeforeturningfive,andthedeathofmothersduringchildbirth,arareeventinindustrialized
countries,occursfartoofrequently.
Thereissubstantialevidencedocumentingthepositiveeffectsofarangeofsimpleandcosteffective
interventionsonmaternalandchildsurvivalincludingvaccinations,oralrehydrationtherapy,
insecticidetreatedbednetsalongsidestrengtheninghealthsystemstoimproveantenatalcare,safe
deliveryandtheintegratedmanagementofsickchildren[14].However,theirwidescaleapplicationin
areasoftheworldthatneeditmostremainsinsufficient.
InthesubSaharanAfricancontext,numerouschallengeshamperprogresstowardsrapidgainsin
maternalchildsurvival.First,weakanddeeplyunderfinancedhealthsystemshavebeenunableto
introduceandsustainthedeliveryofcriticalinterventions[4].Second,factorssuchuserfees,distance,
andtransportcreatesignificantaccessbarriers.Itisestimatedthatovera100millionpeoplefallinto
povertyeachyearduetoofoutofpockethealthexpenses[5].Finally,thelimitedavailabilityof
accurateandtimelyhealthinformationhasmadeitdifficulttotracktheprogressofinterventionsand
identifycoveragegaps[6].
TheMillenniumVillagesProject(MVP)seekstoaddresstheselimitations.MVPinvolvesthecoordinated
deliveryofapackageofprovenhealthanddevelopmentinterventionsatthevillagelevelamong14
diversesitesin10subSaharanAfricancountries[7].Theaimoftheprojectistorapidlyaccelerate
progresstowardstheMDGtargetsovera5to10yearperiod.Inthehealthsector,MVPemphasizes
integrateddeliveryoffreeminimumpackageofmaternalnewbornchildhealthservices,withgoalof
achievinguniversalcoveragethroughinputstoreferralhospitalsandprimarycareclinics,alongside
providingdirectsupporttohouseholdsthroughacadreofpaidprofessionalcommunityhealthworkers.
CHWsareanimportantlinkbetweenthehealthsectorandthecommunity[8],andthereissubstantial
evidencesuggestingtheycanbeeffectivevehiclesforreducingmaternalandchildmortalityand
improvinghealthoutcomes[3,9,10].ArandomizedtrialintheGambiademonstrateda61%reduction
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inneonatalmortalityaftertraditionalbirthattendantsweretrained[11].Othermorerecentcluster
randomizedtrials[2,1214]andcontrolledtrials[1517]havealsodocumentedpronouncedbenefitsof
CHWprogramsonreducingneonatal,perinatalandmaternalmortality.
IntheMVPcontext,CHWsaresalariedsecondaryschoolgraduatesgenerallyfromthelocalcommunity
whoaretrainedinaminimumsetofcorecompetencies.Therearenearly800CHWsacrossthe14MV
sites.Dependingongeographyandpopulationdensity,thereisaratioofapproximately1CHWfor
every100200households,witheachhouseholdisvisitedatleastonaquarterlybasis.Bytakinghealth
carefromtheclinicsdirectlytovulnerablehouseholds,theprojecthopestodemonstrateimprovements
indiseasepreventionaswellasintheearlydetection,treatmentandreferralofsickindividuals.
WhileCHWscanplayacriticalroleinfacilitatingcoveragewithlifesavinginterventions,theyalsohave
thepotentialtoprovidethevitalfeedbackofhouseholdlevelhealthinformation.Aspartoftheir
householdscreeningvisits,CHWshavethepotentialtogenerateahostofprogramrelevantinformation
including:theregistrationofcommunityhealtheventsincludingrecentbirthsanddeaths;theburdenof
illnesssuchasacutemalnutritionormalaria;andlevelsofcoveragewithessentialinterventionssuchas
immunizations,antenatalcareandskilleddelivery.
Thiscollectionofhouseholdlevelinformationcanbegreatlyfacilitatedbynewadvancesinmobile
communicationstechnology.WithineachMVsite,eachCHWisprovidedwithacellphone.Througha
partnershipwithEricsson,nearlyallMillenniumVillageshaveachievedhighlevelsofcellphone
coverage.TheMVPhasbeenpilotingtheuseofelectronicmobilephonebasedsystemsforthe
collectionofhealthrelatedinformationinanumberofsites.Forexample,inSauri,Kenyathe
ChildCountSystemhasallowedover90%ofchildrenunder5yearsofagetobeelectronically
registeredandroutinelymonitoredthroughanSMS(textmessage)basedreportingandmonitoring
systemfornutrition,immunization,malaria,andothersignsofchildhoodillness(Seewww.ChildCount.org).
ThewidespreaduseofCHWstofacilitatingthisrealtimecollectionofhouseholdleveldatainremote
ruralAfricansettingshasnotbeenpreviouslyattempted.Thisproposaloutlinesanovelapplicationof
themobiletechnologytoguidethetargetingofpublichealthinterventions.Thecentralaimofthe
proposedMVPCommunityHealthEventsRegistryandAlert(CHILDCOUNT+)Systemistofacilitate
reductionsinchildandmaternaldeathsaswellasearlydetection,referral,andtreatmentfortargetrisk
signs.
Theobjectivesareasfollows:
1. TodevelopandimplementacommunityhealtheventsreportingandverbalautopsysystemforCHWs
2. Todevelopandimplementtwowaymobilephonebasedcommunityhealtheventsreporting,feedback,andillnessalertsystemtomonitorandmanagefollowupforbirthsanddeaths;
pregnantwomenandnewborns;childrenunder5years;andadultillnessessuchasHIV,TB,
malaria,andotherchronicnoncommunicablediseases.
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3. Todeveloptoolsandreportingformatsandstructurestobetterenabletheuseofdataforactivecasemanagementanddecisionmakingaswellasperformancemonitoringofhealthworkers
Potentialoutputsofthisworkincludeascalablemodelforthedeliveryandmonitoringofhousehold
leveldeliveryofcriticalmaternalnewbornchildhealthinterventionsthatisappropriateandrelevantto
regionsoftheworldwhereeffectivestrategiestoaddresshealthrelatedMDGsareurgentlyrequired.
B. Descriptionofprojectobjectives
1. TodevelopandimplementacommunityhealtheventsreportingandverbalautopsysystemforCHWs
2. Todevelopandimplementtwowaymobilephonebasedcommunityhealtheventsreporting,feedback,andillnessalertsystemtomonitorandmanagefollowupforbirthsanddeaths;
pregnantwomenandnewborns;childrenunder5years;andadultillnessessuchasTB,
malariaandnoncommunicablediseases
Communityhealtheventsmonitoring,whichwouldincludeaVerbalAutopsysystemforallmaternal
childdeaths,hasbeenputforthasakeystrategytoaddresstheinformationinterventionnexuswithin
theMillenniumVillagesProject.Thehypothesisisthattimelyinformationontheburdenofdisease
alongsidebetterunderstandingpatternsofpreventablemortalityandchallengesfacedinaccessingcare
hasthepotentialtocriticallyinformthetargetinganddeliveryofinterventions.Bybuildingupon
existingsitepersonnelandresources,alowcostMVPCHILDCOUNT+Systemisbeingdevelopedtotest
thishypothesis.Theproposedsystemhasanumberofdifferentcomponentswhichwillbeoutlined
brieflybelow.
i) CommunityHealthWorkers(CHWs)andCHWCoordinators:InallMVPsites,CHWshavebeenintroducedtomaximizethedeliveryofhealthinformationandservicestohouseholdsinthe
projectclusters.Therecurrentlyaratioof1CHWtoevery100200households,withhousehold
visitstakingplaceatleastquarterly.CHWsaresupportedbytheCHWCoordinatorwhoisinturn
supportedbyHealthCoordinators(doctorsoralliedhealthprofessionals),andprovidea
spectrumofhealthinterventionstotargethouseholds.
o TheCHWCoordinatorwillberesponsibleforoverallintegrationofthepaperbasedandelectronicsystemintotheCHWProgramineachsiteaswellasusingthedatagenerated
toimproveoutreachactivitiesinthecommunities.
o TheCHWswillberesponsiblefordatacaptureandfollowupatthehouseholdlevel.AspartofitsoverallHealthServicesDeliverySystemsandMonitoringandEvaluation,the
MillenniumVillagesProjectisfurtherdevelopingthefunctionalityandexpanding
ChildCount(seewww.childcount.or)beyondchildrenunder5.ChildCount+:A
CommunityHealthEventsReportingandAlertSystemwillintegratewithexisting
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informationmanagementsystemsandcatalyzeactionaroundthefollowingcommunity
healthevents:
BirthsandDeaths Under5ChildHealthEvents:newbornchecks,nutritionalStatus,presenceof
diarrhea,immunizationsandthepresenceofdangersigns[MDG4]
Pregnancyrelatedeventsincludingantenatalcarevisitsandinstitutionaldeliveries[MDG5]
PresenceofHIV,TB,malaria[MDG6]aswellasotherchronicconditions
ii) Mobilephonebasedhealthinformationsystem:AllCHWsinaclusterwillhaveaccesstoamobilephonebasedcommunicationsystemforthereportingofcommunityhealthevents.This
platformwillallowreportingofeventsthroughSMS(RapidSMS)orstructuredquestionnaire
(JavaRosa)byaCHWtobetransmittedinstantlytoacentralizeddatabase(MGVNet),whichwill
thenthroughanalgorithmdrivensystemprovidefeedbackand/orguidanceonappropriate
actiontobetakenwhethertotreat/monitorinthehome,refertoafacility,and/oractivatethe
emergencytollfreenumber.ThissystemwillbelinkedbyclientIDtothefacilitybased
electronicmedicalrecordsystemnamelyOpenMRS,sothatallcommunityenteredinformation
willbeavailabletocareproviders.Whileallsiteswillinitiallybeginwithpaperbaseddata
collection,itistheintentiontoimplementthiscomponentasquicklyaspossibleacrossallsites.
eHealthSpecialists,DatabaseManagers,andaroamingteamoftechnicalsupportproviderswill
bestrategicallyengagedanddeployedbasedontheneedsandconditionsofeachsite.
iii)
OpenMRSandUniqueIDsystem:ItisimportanttobeabletouniquelyidentifypersonswithintheMillenniumVillagesaswellasthosewhoattendMVPclinicsorotherwiseuseMVPservices.
Uptonow,theonlyuniqueidentifierswerethoseusedbytheresearchvillageswhichwerenot
availableforpublicuse.AspartoftheChildCount+andMGVNetsystems,OpenMRSwill
generateaunique6digitalphanumericIDwhichcanbeusedthroughoutthevillages.Itwas
designedtobeshortenoughtobeenteredusingamobilephone,yetproduceenoughunique
numberstocovertheentireMVPclusterineachsite.OpenMRSwillalsobeusedastheprimary
databaseforcollectingallfacilitybased,personspecificdatainthecluster,allowingfor
continuityofinformationfromthecommunityallthewayuptothedistricthealthofficeandthe
MinistryofHealth.
iv) Verbalautopsyspecialist:WhenadeathisalertedthroughtheChildCount+system,theVAspecialist,anonclinicalhealthworkerspeciallytrainedintheVAmethodology,willbedeployed
toconductaverbalautopsyatthehouseholdleveltocollectinformationonthebasiccauseof
death.Dependingsitecapacity,VAswilleitherbeconductedbyasingleVASpecialistoraby
SeniorCHWs(thereisoneSeniorCHWforevery5juniorCHWs).ItisanticipatedthatVAswill
visithouseholdswithin26weeksafteradeathhastakenplace.StandardizedVAshavebeen
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developedforuseatallMVPsites,withseparateformsforadults/maternaldeathsandfor
children.ThesemodifiedVAs(paperbaseddatacapture)havetwomaincomponents:
o MedicalCauseofdeath:thishasbeenderivedfromVAtoolsthathavebeenpreviouslyvalidatedtoassesssignsandsymptomsexperiencedbythedeceasedinthetime
precedingdeath.Themoduleconsistsofbothcloseandopenendedsectionsasperbestpracticeguidelines.
o Socialautopsy:aspecificmodulehasbeendevelopedfortheMVPsites,andincludeddetailsregardingthesocialcircumstancessurroundingdeath.Itincludesinformationon
healthseekingbehavior,accessbarrierstohealthcare,communication,transport,and
economics.
AllVAformswillbeenteredintoacomputerizeddatabasemonthly,andsubjecttoanalgorithmic
assessmentofthemedicalcauseofdeathaswellassocialcircumstancessurroundingthedeath.The
medialcauseofdeathalgorithmsareestablished,validtechniquesfordeterminingtheprobablecause
ofdeathandcanbeeasilyadaptedorappendedforlocalcontext.Thisinnovationeliminatestheneed
fordualphysicianbasedassessments,whichcanbebothexpensiveandcreatealongtimedelayin
generatingrealtimeinformationforprogrammanagers.
3. Todeveloptoolsandreportingformatsandstructurestobetterenabletheuseofdataforactivecasemanagementanddecisionmakingaswellasperformancemonitoringofhealth
workers
Thebroadaimofthissystemistoimprovethequalityofcare,andoptimizethetargetinganddeliveryof
essentialhealthservices.TheChildCount+systemwillprovidethebasisforlongitudinalinformationtrackingatanindividualandhouseholdlevelwithintheMillenniumVillages.Integratedwithanexisting
platformknownastheMillenniumGlobalVillageNetwork(MGVNet),ChildCount+willtakeadvantage
ofthemultilingual,multinational,opensourceinformationsystembeingimplementedthroughoutMVP.
Capturinginformationviapaper,mobilephonesandcomputerswillbringtogetherinformationfrom
community,clinicandreferralcenterstoprovideanoverarchingviewofhealthwithinthevillages.
Threekeycomponentswillallowthisinformationtobeusedtoinformdecisionmaking.Theseinclude
analertsystemforcriticalevents;thedevelopmentofaplatformforquarterlyreportingofaggregate
indicators,and;aprocessofusingthemtoinformservicedeliveryknownasCommunityMorbidityand
MortalityRounds.
i) Alertsystem:Aseachindividualhasauniqueidentificationnumber,thesystemhasthecapacitytofacilitatealertswhicharetextmessagessenttoCHWstohelptargetservicedelivery.For
example,thesemightsignaltheneedforfollowupofaseverelymalnourishedchild,thataclinic
patienthasalabvaluethatrequiresareturnvisittotheclinic,orthatarecentlydeliveryhas
takenplace andaneonatalcheck isrequired.Thiswillbean additionto logbooks thathave
beendevelopedtofacilitatehouseholdandpatientbasedtracking.
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ii) CommunityBasedReportingandAggregateIndicators:Itiscriticalthatinformationcollectedinthecommunityisavailabletolocaldecisionmakerstofacilitateplanningandservicedelivery.
Toachievethisgoal,reportingandvisualizationtoolswillbeprovidedaspartoftheChildCount+
andMGVNetimplementation.UsingbasicreportingtoolssuchasMSExcelandPivottables,in
additiontostandard reports, the system will allow localuserswith appropriateprivileges to
view important information at the touch of a button. In addition, standard performance
indicators that are reportedtoMVP onaquarterlybasiswill beautomatically calculated for
entryintothewebbasedcentralizeddatasystem.
iii) CommunityMorbidity&MortalityRounds:theprincipleintentoftheVAmodulewithinMVPChildCount+systemistogenerateinformationonthecauseandsocialcircumstances
surroundingtreatmentdelaysanddeathtoinformandimprovethedeliveryofhealthand
developmentinterventionsontheground.Monitoringinformationaswellasdatacollectedon
causeofdeathwillbecompiledandformthebasisofacommunitymorbidityandmortality
roundswhichwillbecoordinatedbetweentheMVPHealthCoordinators,CHWCoordinators,
clinicstaff,VAS,andtheCHWs.Thesemeetingswillprovideaforumforengagingwiththe
medicalandsocialautopsydatawithappropriaterecommendationsbeingmaderegardingthe
introductionsofnewhealthprograms,modificationsinthedeliveryortargetingofexisting
healthprograms,ortheneedtoliaisewithothersectorssuchasinfrastructure,educationor
nutritiontoaddressotherremediableconcerns.
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