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    MillenniumVillagesProject:ChildCount+:ACommunityHealthEventsReportingandAlerts

    SystemAConceptPaper

    "Tomakepeoplecount,wefirstneedtobeabletocountpeople."DrLEEJongwook,FormerDirector

    GeneralWHO(20042006)

    A. Background

    Reducingchildandmaternalmortality,by66%and75%respectively,havebeenidentifiedascore

    MillenniumDevelopmentGoal(MDG)targets.InmuchofsubSaharanAfrica,10to20percentof

    childrendiebeforeturningfive,andthedeathofmothersduringchildbirth,arareeventinindustrialized

    countries,occursfartoofrequently.

    Thereissubstantialevidencedocumentingthepositiveeffectsofarangeofsimpleandcosteffective

    interventionsonmaternalandchildsurvivalincludingvaccinations,oralrehydrationtherapy,

    insecticidetreatedbednetsalongsidestrengtheninghealthsystemstoimproveantenatalcare,safe

    deliveryandtheintegratedmanagementofsickchildren[14].However,theirwidescaleapplicationin

    areasoftheworldthatneeditmostremainsinsufficient.

    InthesubSaharanAfricancontext,numerouschallengeshamperprogresstowardsrapidgainsin

    maternalchildsurvival.First,weakanddeeplyunderfinancedhealthsystemshavebeenunableto

    introduceandsustainthedeliveryofcriticalinterventions[4].Second,factorssuchuserfees,distance,

    andtransportcreatesignificantaccessbarriers.Itisestimatedthatovera100millionpeoplefallinto

    povertyeachyearduetoofoutofpockethealthexpenses[5].Finally,thelimitedavailabilityof

    accurateandtimelyhealthinformationhasmadeitdifficulttotracktheprogressofinterventionsand

    identifycoveragegaps[6].

    TheMillenniumVillagesProject(MVP)seekstoaddresstheselimitations.MVPinvolvesthecoordinated

    deliveryofapackageofprovenhealthanddevelopmentinterventionsatthevillagelevelamong14

    diversesitesin10subSaharanAfricancountries[7].Theaimoftheprojectistorapidlyaccelerate

    progresstowardstheMDGtargetsovera5to10yearperiod.Inthehealthsector,MVPemphasizes

    integrateddeliveryoffreeminimumpackageofmaternalnewbornchildhealthservices,withgoalof

    achievinguniversalcoveragethroughinputstoreferralhospitalsandprimarycareclinics,alongside

    providingdirectsupporttohouseholdsthroughacadreofpaidprofessionalcommunityhealthworkers.

    CHWsareanimportantlinkbetweenthehealthsectorandthecommunity[8],andthereissubstantial

    evidencesuggestingtheycanbeeffectivevehiclesforreducingmaternalandchildmortalityand

    improvinghealthoutcomes[3,9,10].ArandomizedtrialintheGambiademonstrateda61%reduction

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    inneonatalmortalityaftertraditionalbirthattendantsweretrained[11].Othermorerecentcluster

    randomizedtrials[2,1214]andcontrolledtrials[1517]havealsodocumentedpronouncedbenefitsof

    CHWprogramsonreducingneonatal,perinatalandmaternalmortality.

    IntheMVPcontext,CHWsaresalariedsecondaryschoolgraduatesgenerallyfromthelocalcommunity

    whoaretrainedinaminimumsetofcorecompetencies.Therearenearly800CHWsacrossthe14MV

    sites.Dependingongeographyandpopulationdensity,thereisaratioofapproximately1CHWfor

    every100200households,witheachhouseholdisvisitedatleastonaquarterlybasis.Bytakinghealth

    carefromtheclinicsdirectlytovulnerablehouseholds,theprojecthopestodemonstrateimprovements

    indiseasepreventionaswellasintheearlydetection,treatmentandreferralofsickindividuals.

    WhileCHWscanplayacriticalroleinfacilitatingcoveragewithlifesavinginterventions,theyalsohave

    thepotentialtoprovidethevitalfeedbackofhouseholdlevelhealthinformation.Aspartoftheir

    householdscreeningvisits,CHWshavethepotentialtogenerateahostofprogramrelevantinformation

    including:theregistrationofcommunityhealtheventsincludingrecentbirthsanddeaths;theburdenof

    illnesssuchasacutemalnutritionormalaria;andlevelsofcoveragewithessentialinterventionssuchas

    immunizations,antenatalcareandskilleddelivery.

    Thiscollectionofhouseholdlevelinformationcanbegreatlyfacilitatedbynewadvancesinmobile

    communicationstechnology.WithineachMVsite,eachCHWisprovidedwithacellphone.Througha

    partnershipwithEricsson,nearlyallMillenniumVillageshaveachievedhighlevelsofcellphone

    coverage.TheMVPhasbeenpilotingtheuseofelectronicmobilephonebasedsystemsforthe

    collectionofhealthrelatedinformationinanumberofsites.Forexample,inSauri,Kenyathe

    ChildCountSystemhasallowedover90%ofchildrenunder5yearsofagetobeelectronically

    registeredandroutinelymonitoredthroughanSMS(textmessage)basedreportingandmonitoring

    systemfornutrition,immunization,malaria,andothersignsofchildhoodillness(Seewww.ChildCount.org).

    ThewidespreaduseofCHWstofacilitatingthisrealtimecollectionofhouseholdleveldatainremote

    ruralAfricansettingshasnotbeenpreviouslyattempted.Thisproposaloutlinesanovelapplicationof

    themobiletechnologytoguidethetargetingofpublichealthinterventions.Thecentralaimofthe

    proposedMVPCommunityHealthEventsRegistryandAlert(CHILDCOUNT+)Systemistofacilitate

    reductionsinchildandmaternaldeathsaswellasearlydetection,referral,andtreatmentfortargetrisk

    signs.

    Theobjectivesareasfollows:

    1. TodevelopandimplementacommunityhealtheventsreportingandverbalautopsysystemforCHWs

    2. Todevelopandimplementtwowaymobilephonebasedcommunityhealtheventsreporting,feedback,andillnessalertsystemtomonitorandmanagefollowupforbirthsanddeaths;

    pregnantwomenandnewborns;childrenunder5years;andadultillnessessuchasHIV,TB,

    malaria,andotherchronicnoncommunicablediseases.

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    3. Todeveloptoolsandreportingformatsandstructurestobetterenabletheuseofdataforactivecasemanagementanddecisionmakingaswellasperformancemonitoringofhealthworkers

    Potentialoutputsofthisworkincludeascalablemodelforthedeliveryandmonitoringofhousehold

    leveldeliveryofcriticalmaternalnewbornchildhealthinterventionsthatisappropriateandrelevantto

    regionsoftheworldwhereeffectivestrategiestoaddresshealthrelatedMDGsareurgentlyrequired.

    B. Descriptionofprojectobjectives

    1. TodevelopandimplementacommunityhealtheventsreportingandverbalautopsysystemforCHWs

    2. Todevelopandimplementtwowaymobilephonebasedcommunityhealtheventsreporting,feedback,andillnessalertsystemtomonitorandmanagefollowupforbirthsanddeaths;

    pregnantwomenandnewborns;childrenunder5years;andadultillnessessuchasTB,

    malariaandnoncommunicablediseases

    Communityhealtheventsmonitoring,whichwouldincludeaVerbalAutopsysystemforallmaternal

    childdeaths,hasbeenputforthasakeystrategytoaddresstheinformationinterventionnexuswithin

    theMillenniumVillagesProject.Thehypothesisisthattimelyinformationontheburdenofdisease

    alongsidebetterunderstandingpatternsofpreventablemortalityandchallengesfacedinaccessingcare

    hasthepotentialtocriticallyinformthetargetinganddeliveryofinterventions.Bybuildingupon

    existingsitepersonnelandresources,alowcostMVPCHILDCOUNT+Systemisbeingdevelopedtotest

    thishypothesis.Theproposedsystemhasanumberofdifferentcomponentswhichwillbeoutlined

    brieflybelow.

    i) CommunityHealthWorkers(CHWs)andCHWCoordinators:InallMVPsites,CHWshavebeenintroducedtomaximizethedeliveryofhealthinformationandservicestohouseholdsinthe

    projectclusters.Therecurrentlyaratioof1CHWtoevery100200households,withhousehold

    visitstakingplaceatleastquarterly.CHWsaresupportedbytheCHWCoordinatorwhoisinturn

    supportedbyHealthCoordinators(doctorsoralliedhealthprofessionals),andprovidea

    spectrumofhealthinterventionstotargethouseholds.

    o TheCHWCoordinatorwillberesponsibleforoverallintegrationofthepaperbasedandelectronicsystemintotheCHWProgramineachsiteaswellasusingthedatagenerated

    toimproveoutreachactivitiesinthecommunities.

    o TheCHWswillberesponsiblefordatacaptureandfollowupatthehouseholdlevel.AspartofitsoverallHealthServicesDeliverySystemsandMonitoringandEvaluation,the

    MillenniumVillagesProjectisfurtherdevelopingthefunctionalityandexpanding

    ChildCount(seewww.childcount.or)beyondchildrenunder5.ChildCount+:A

    CommunityHealthEventsReportingandAlertSystemwillintegratewithexisting

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    informationmanagementsystemsandcatalyzeactionaroundthefollowingcommunity

    healthevents:

    BirthsandDeaths Under5ChildHealthEvents:newbornchecks,nutritionalStatus,presenceof

    diarrhea,immunizationsandthepresenceofdangersigns[MDG4]

    Pregnancyrelatedeventsincludingantenatalcarevisitsandinstitutionaldeliveries[MDG5]

    PresenceofHIV,TB,malaria[MDG6]aswellasotherchronicconditions

    ii) Mobilephonebasedhealthinformationsystem:AllCHWsinaclusterwillhaveaccesstoamobilephonebasedcommunicationsystemforthereportingofcommunityhealthevents.This

    platformwillallowreportingofeventsthroughSMS(RapidSMS)orstructuredquestionnaire

    (JavaRosa)byaCHWtobetransmittedinstantlytoacentralizeddatabase(MGVNet),whichwill

    thenthroughanalgorithmdrivensystemprovidefeedbackand/orguidanceonappropriate

    actiontobetakenwhethertotreat/monitorinthehome,refertoafacility,and/oractivatethe

    emergencytollfreenumber.ThissystemwillbelinkedbyclientIDtothefacilitybased

    electronicmedicalrecordsystemnamelyOpenMRS,sothatallcommunityenteredinformation

    willbeavailabletocareproviders.Whileallsiteswillinitiallybeginwithpaperbaseddata

    collection,itistheintentiontoimplementthiscomponentasquicklyaspossibleacrossallsites.

    eHealthSpecialists,DatabaseManagers,andaroamingteamoftechnicalsupportproviderswill

    bestrategicallyengagedanddeployedbasedontheneedsandconditionsofeachsite.

    iii)

    OpenMRSandUniqueIDsystem:ItisimportanttobeabletouniquelyidentifypersonswithintheMillenniumVillagesaswellasthosewhoattendMVPclinicsorotherwiseuseMVPservices.

    Uptonow,theonlyuniqueidentifierswerethoseusedbytheresearchvillageswhichwerenot

    availableforpublicuse.AspartoftheChildCount+andMGVNetsystems,OpenMRSwill

    generateaunique6digitalphanumericIDwhichcanbeusedthroughoutthevillages.Itwas

    designedtobeshortenoughtobeenteredusingamobilephone,yetproduceenoughunique

    numberstocovertheentireMVPclusterineachsite.OpenMRSwillalsobeusedastheprimary

    databaseforcollectingallfacilitybased,personspecificdatainthecluster,allowingfor

    continuityofinformationfromthecommunityallthewayuptothedistricthealthofficeandthe

    MinistryofHealth.

    iv) Verbalautopsyspecialist:WhenadeathisalertedthroughtheChildCount+system,theVAspecialist,anonclinicalhealthworkerspeciallytrainedintheVAmethodology,willbedeployed

    toconductaverbalautopsyatthehouseholdleveltocollectinformationonthebasiccauseof

    death.Dependingsitecapacity,VAswilleitherbeconductedbyasingleVASpecialistoraby

    SeniorCHWs(thereisoneSeniorCHWforevery5juniorCHWs).ItisanticipatedthatVAswill

    visithouseholdswithin26weeksafteradeathhastakenplace.StandardizedVAshavebeen

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    developedforuseatallMVPsites,withseparateformsforadults/maternaldeathsandfor

    children.ThesemodifiedVAs(paperbaseddatacapture)havetwomaincomponents:

    o MedicalCauseofdeath:thishasbeenderivedfromVAtoolsthathavebeenpreviouslyvalidatedtoassesssignsandsymptomsexperiencedbythedeceasedinthetime

    precedingdeath.Themoduleconsistsofbothcloseandopenendedsectionsasperbestpracticeguidelines.

    o Socialautopsy:aspecificmodulehasbeendevelopedfortheMVPsites,andincludeddetailsregardingthesocialcircumstancessurroundingdeath.Itincludesinformationon

    healthseekingbehavior,accessbarrierstohealthcare,communication,transport,and

    economics.

    AllVAformswillbeenteredintoacomputerizeddatabasemonthly,andsubjecttoanalgorithmic

    assessmentofthemedicalcauseofdeathaswellassocialcircumstancessurroundingthedeath.The

    medialcauseofdeathalgorithmsareestablished,validtechniquesfordeterminingtheprobablecause

    ofdeathandcanbeeasilyadaptedorappendedforlocalcontext.Thisinnovationeliminatestheneed

    fordualphysicianbasedassessments,whichcanbebothexpensiveandcreatealongtimedelayin

    generatingrealtimeinformationforprogrammanagers.

    3. Todeveloptoolsandreportingformatsandstructurestobetterenabletheuseofdataforactivecasemanagementanddecisionmakingaswellasperformancemonitoringofhealth

    workers

    Thebroadaimofthissystemistoimprovethequalityofcare,andoptimizethetargetinganddeliveryof

    essentialhealthservices.TheChildCount+systemwillprovidethebasisforlongitudinalinformationtrackingatanindividualandhouseholdlevelwithintheMillenniumVillages.Integratedwithanexisting

    platformknownastheMillenniumGlobalVillageNetwork(MGVNet),ChildCount+willtakeadvantage

    ofthemultilingual,multinational,opensourceinformationsystembeingimplementedthroughoutMVP.

    Capturinginformationviapaper,mobilephonesandcomputerswillbringtogetherinformationfrom

    community,clinicandreferralcenterstoprovideanoverarchingviewofhealthwithinthevillages.

    Threekeycomponentswillallowthisinformationtobeusedtoinformdecisionmaking.Theseinclude

    analertsystemforcriticalevents;thedevelopmentofaplatformforquarterlyreportingofaggregate

    indicators,and;aprocessofusingthemtoinformservicedeliveryknownasCommunityMorbidityand

    MortalityRounds.

    i) Alertsystem:Aseachindividualhasauniqueidentificationnumber,thesystemhasthecapacitytofacilitatealertswhicharetextmessagessenttoCHWstohelptargetservicedelivery.For

    example,thesemightsignaltheneedforfollowupofaseverelymalnourishedchild,thataclinic

    patienthasalabvaluethatrequiresareturnvisittotheclinic,orthatarecentlydeliveryhas

    takenplace andaneonatalcheck isrequired.Thiswillbean additionto logbooks thathave

    beendevelopedtofacilitatehouseholdandpatientbasedtracking.

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    ii) CommunityBasedReportingandAggregateIndicators:Itiscriticalthatinformationcollectedinthecommunityisavailabletolocaldecisionmakerstofacilitateplanningandservicedelivery.

    Toachievethisgoal,reportingandvisualizationtoolswillbeprovidedaspartoftheChildCount+

    andMGVNetimplementation.UsingbasicreportingtoolssuchasMSExcelandPivottables,in

    additiontostandard reports, the system will allow localuserswith appropriateprivileges to

    view important information at the touch of a button. In addition, standard performance

    indicators that are reportedtoMVP onaquarterlybasiswill beautomatically calculated for

    entryintothewebbasedcentralizeddatasystem.

    iii) CommunityMorbidity&MortalityRounds:theprincipleintentoftheVAmodulewithinMVPChildCount+systemistogenerateinformationonthecauseandsocialcircumstances

    surroundingtreatmentdelaysanddeathtoinformandimprovethedeliveryofhealthand

    developmentinterventionsontheground.Monitoringinformationaswellasdatacollectedon

    causeofdeathwillbecompiledandformthebasisofacommunitymorbidityandmortality

    roundswhichwillbecoordinatedbetweentheMVPHealthCoordinators,CHWCoordinators,

    clinicstaff,VAS,andtheCHWs.Thesemeetingswillprovideaforumforengagingwiththe

    medicalandsocialautopsydatawithappropriaterecommendationsbeingmaderegardingthe

    introductionsofnewhealthprograms,modificationsinthedeliveryortargetingofexisting

    healthprograms,ortheneedtoliaisewithothersectorssuchasinfrastructure,educationor

    nutritiontoaddressotherremediableconcerns.

    C. References1. Black,R.E.,S.S.Morris,andJ.Bryce,Whereandwhyare10millionchildrendyingeveryyear?

    Lancet,2003.361(9376):p.22262234.2. Bhutta,Z.A.,etal.,Interventionstoaddressmaternal,newborn,andchildsurvival:whatdiff

    erencecanintegratedprimaryhealthcarestrategiesmake?TheLancet,2008.372:p.972989.

    3. Bhutta,Z.A.,etal.,CommunityBasedInterventionsforImprovingPerinatalandNeonatalHealth

    OutcomesinDevelopingCountries:AReviewoftheEvidence.Pediatrics,2005.115:p.519617.

    4. Ekman,B.,I.Pathmanathan,andJ.Liljestrand,Integratinghealthinterventionsforwomen,

    newbornbabies,andchildren:aframeworkforaction.TheLancet,2008.372:p.9901000.

    5. Xu,K.,etal.,ProtectinghouseholdsfromCatastrophichealthexpenditures.HealthAffairs,2007.

    6:p.972983.

    6. Hill,K.,Makingdeathscount.BulletinoftheWorldHealthOrganization,2006.84(3):p.162.

    7. Sachs,J.D.andJ.W.McArthur,TheMillenniumProject:aplanformeetingtheMillennium

    DevelopmentGoals.TheLancet,2005.365(347353).

    8. UNICEF,StateoftheWorld'sChildren:ChildSurvival.2008,UNICEF:NewYork.

    9. Haines,A.,etal.,Achievingchildsurvivalgoals:potentialcontributionofcommunityhealth

    workers.TheLancet,2007.369:p.21212131.

    10. Bhutta,S.Z.andS.Soofi,Communitybasednewborncare:arewethereyet?TheLancet,2008.

    372:p.11241126.

    11. Greenwood,A.,etal.,EvaluationofaprimaryhealthcareprogrammeinTheGambia.I.The

    impactoftrainedtraditionalbirthattendantsontheoutcomeofpregnancy.JournalofTropical

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    12. Kumar,V.,etal.,Effectofcommunitybasedbehaviourchangemanagementonneonatal

    mortalityinShivgarh,UttarPradesh,India:aclusterrandomisedcontrolledtrial.TheLancet,

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    13. Baqui,A.H.,etal.,Improvingnewbornsurvivalandchanginghouseholdessentialnewborncare

    practicesinruralBangladesh:theProjahnmoexperience.TheLancet,2008.371:p.19361944.

    14. Jokhio,A.H.,H.R.Winter,andK.K.Cheng,Aninterventioninvolvingtraditionalbirthattendants

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    15. Bhutta,Z.A.,etal.,Implementingcommunitybasedperinatalcare:resultsfromapilotstudyin

    ruralPakistan.BulletinoftheWorldHealthOrganization,2008.86:p.452459.

    16. Bang,A.T.,etal.,Effectofhomebasedneonatalcareandmanagementofsepsisonneonatal

    mortality:fieldtrialinruralIndia.TheLancet,1999.354:p.19551961.

    17. Kohn,D.,CommunityinvolvementsavesnewbornsinIndia.TheLancet,2008.371:p.12351236.