Chair in ASD Treatment and Care Research 2014 - Update
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Transcript of Chair in ASD Treatment and Care Research 2014 - Update
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Chair in ASD Treatment and Care Research 2014 Updates
November 7, 2014
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Overview • Purpose of the chair
• 2014 update around research projects
• Non academic dissemination activities
• Trainee involvement
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Announced in November 2012
The Chair in Autism Spectrum Disorders Treatment and Care Research is funded by the Canadian Institutes of Health Research in partnership with Autism Speaks Canada, the Canadian Autism Spectrum Disorders Alliance, Health Canada, NeuroDevNet and the Sinneave Family Foundation.
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Additional funds from the Spectrum of Hope Autism Foundation and support from York University and ORION’s O3 Collaboration.
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Thank you! • Organizers:
• Carly Albaum • Neil Walker
• Advisors: • KMb Unit at York (Michael
Johnny & Krista Jensen) • KT Core at NeuroDevNet
(Anneliese Poetz & Isaac Coplan)
• Volunteers: • Priscilla Burnham Riosa • Tamara Germani
¡ Speakers: ¡ Marg Spoelstra ¡ Senator Jim Munson ¡ MP Mike Lake ¡ Kendra Thomson ¡ Marg Whelan ¡ Carly McMorris ¡ Barry Isaac ¡ Esther Rhee ¡ Dan Goldowitz
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Purpose of the chair Work with people with ASD, their families, services providers, and governmental organizations (our stakeholders)
• Translate research to inform stakeholders about
mental health and ASD
• Study ways of addressing mental health in people with ASD
• Train the next generation of Canadian ASD researchers and clinicians
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Guiding principles With stakeholders
• Receive advice • Learn from • Research with • Disseminate results • Inform change
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Research Projects: Interventions
Title Community Year Progress to date
Recruitment Data collection
Analysis KT
Predictors of sport participation in youth with intellectual disability
Special Olympics Ontario
2013 - 2016
*Secret Agent Society: Operation Regulation (PI)
Spectrum of Hope
2013 - 2016
MYMind, Mindfulness training for teens (PI)
2014 - 2016
The Program to Assist Social Thinking (PI)
TCDSB 2013 -
Mental Health Screening Tool and Mindfulness Based Supports for Students with ASD (co-PI; PI Botschener)
Conestoga College
2013 - 2015
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One parent’s example
Retrieved June 2013: http://www.specialolympics.org/Stories/General/Autism_and_Special_Olympics.aspx
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Research Projects: Predictors, outcomes and subgroups
Title Year Progress to date Recruitment Data Collection Analysis KT
Experiences of interpersonal violence in adults with ASD (PI Viecili)
2013- 2015
Risk factors for peer victimization in children with ASD (co-PI; PI McCrimmon)
2013 - 2015
Understanding and assessing suicide in adults with ASD (co-I; PI Mishara)
2014- 2016
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Research Projects: Services
Title Community Year Progress to date Recruitment Data
Collection Analysis KT
*Health Care Access Research in Developmental Disabilities Program: Transition Age Youth (co-lead; PI Lunsky)
MCSS MCYS MED ICES
2013- 2015 N/A N/A
*Autism in Canada: National Needs Assessment Survey
CASDA 2013 – 2014
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KT activities: Publications 2013 2014 In Press
First Author (7) 2 1 4
Co-Author (14) 5 5 4
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Open Access to publications (Stats from Feb. 2014 to Sept. 2014)
• YorkSpace (http://yorkspace.library.yorku.ca/) Total Downloads = 1,115
• On ResearchGate.com • 4,421 downloads (in total)
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KT activities: The ASD Mental Health Blog
asdmentalhealth.blog.yorku.ca
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Effects of a Cognitive-Behavioral Therapy on Anxiety in Children with Autism Spectrum Disorders: A Randomized Controlled Trial
What you need to know:
A cognitive behavioral therapy program and a social recreational program both helped to reduce anxiety symptoms in children and adolescents with ASD.
What is this research about?
Many children and adolescents with autism spectrum disorder (ASD) have high levels of anxiety. Cognitive Behavior Therapy (CBT) has been shown to be an effective treatment of anxiety for children with ASD. Interventions that include social recreational activities may also be beneficial for children with ASD by teaching social skills and creating opportunities for social interaction. At the time this study was published there were no other studies that compared CBT to other forms of non-CBT based treatment. The purpose of this study was to compare CBT to a non-CBT based treatment for treating anxiety in children with ASD.
What did the researchers do?
Seventy children diagnosed with ASD and anxiety-related issues, aged 9-16 (66 boys and 4 girls) participated in the study. They were randomly assigned to a CBT program or a Social Recreational (SR) program.
The CBT program consisted of sixteen 90-minute weekly sessions led by two psychologists in groups of 3-4 participants. The first three sessions focused on the recognition and understanding of emotions. The following six sessions focused on anxiety management techniques. The final seven sessions focused on problem-solving strategies based on the “Stop, Think, Act, and Reflect” strategy.
The Social Recreation program (SR) also consisted of sessions led by two psychologists in groups of 3-4 participants. The SR program was comprised of age appropriate individual and group activities fostering self-development skills.
Researchers assessed the child’s anxiety using the Spence Child Anxiety Scale-Child (SCAS-C), which is a self-report measure, and the severity of the participants’ anxiety using the Clinical Global Impression-Severity (CGI-S), which is based on clinician ratings. Assessments were given before treatment, immediately after the treatment, and at three and six month follow-ups.
What did the researchers find?
The results indicated that children from both groups reported significantly fewer generalized anxiety and total anxiety symptoms at the six month follow-up. Children who participated in the SR program reported fewer total anxiety symptoms at the end of the treatment and significantly fewer panic attack symptoms at the 6 month time point. There were no significant differences in child reports of anxiety between the two groups at any of the time points. The proportion of participants who improved based on
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KT activities: The ASD Mental Health Blog
(Stats from Jan. 2014-Oct. 2014)
Unique page views in 2014 = 8162 Subscribers = 122
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Research Summary
Editorials In the News Videos Other Posts
Number of posts
2013 (Total posts: 34)
2014 (Total posts: 39)
asdmentalhealth.blog.yorku.ca
You can also follow us on Twitter @ASDMentalHealth and @DrJonathanWeiss
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Invited Presentations/Workshops
• 12 invited talks on mental health and ASD. • Early Childhood Resource
Teacher Network of Ontario.
• Ontario Southern Network
of Specialized Care Annual Research Meeting.
• Ministry of Education; School Board ABA Expertise Professional Learning Day.
• 2 Ottawa Hill Day events • NeuroDevNet Day on the
Hill
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Trainee Stipends • Research stipends (5)
• Victoria Ting, Andrea Maughan, Jennifer MacMullin, Ami Tint, Katherine Wincentak
• Conference travel (7) • Kendra Thomson, Jennifer MacMullin, Ami Tint, Michelle Viecili,
Suzanne Robinson, Stephanie Fung, Victoria Ting
• SAS-OR therapists (12) • Priscilla Burnham Riosa, Kendra Thomson, Melissa Rourke,
Nidhi Luthra, Katherine Wincentak, Odette Weiss, Nicole Racine, Jordana Waxman, Azin Taheri, Andrea Maughan, Rebecca Shine, Victoria Ting
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Students/Trainees • 2014
• Funded Post-Doctoral Fellows– Drs. Kendra Thomson & Priscilla Burnham Riosa
• New MA student – Andrea Maughan • New PhD students – Stephanie Fung & Suzanne
Robinson • New Research Assistants – Andrew Goodwin, Rachel
Grant & Emily Guertin • New Social Media/KT Correspondent – Jordan Cleland • New Lab Manager/Coordinator – Carly Albaum
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Looking forward to your input
Jonathan Weiss, PhD,CPsych
Associate Professor
Dept. of Psychology
York University
Tel: 416-736-5891 http://asdmentalhealth.blog.yorku.ca/
@ASDMentalHealth @DrJonathanWeiss