CBCN Outreach November 2015 - saskbreastcancerconnect.org...Survey asks about physical activity for...

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From: CBCN [email protected] Subject: CBCN Outreach November 2015 Date: November 3, 2015 at 12:09 PM To: [email protected] Having trouble viewing this email? Click here Stay Connected November 2015 Outreach Stay up-to-date on the latest breast cancer news & events! CBCN in action CBCN report, Waiting for Treatment: Timely, Equitable Access to Drugs for Metastatic Breast Cancer, receives national media coverage In October, CBCN successfully launched our new report, Waiting for Treatment: Timely, Equitable Access to Drugs for Metastatic Breast Cancer. The report calls for more equitable access to treatments for the thousands of Canadian women living with metastatic breast cancer. The report received extensive media coverage across the country, generating 76 stories, including features in the Toronto Star, Chronicle Herald, and both CBC Radio and online coverage. Overall, the report reached over 12.1 million people nationally and raised an incredible amount of awareness of the need to reduce wait time delays and improve access to new treatments for Canadians living with metastatic breast cancer. To view our news coverage, please visit our website . Join CBCN's Call to Action to increase timely, equitable access to drugs for Canadians living with metastatic breast cancer CBCN is asking Canadians to take action to reduce lengthy wait times for new treatments and to promote increased accountability and transparency in drug reviews for metastatic patients and their families. Join us in calling for provincial Ministries of Health to commit to listing new treatments for metastatic breast cancer within defined deadlines and to raise awareness of the need for urgent access to new treatments for all Canadians affected by metastatic breast cancer. Visit our website to find out how you can take action.

Transcript of CBCN Outreach November 2015 - saskbreastcancerconnect.org...Survey asks about physical activity for...

Page 1: CBCN Outreach November 2015 - saskbreastcancerconnect.org...Survey asks about physical activity for breast cancer survivors Currently, as many as 90 percent of breast cancer survivors

From: CBCN [email protected]: CBCN Outreach November 2015Date: November 3, 2015 at 12:09 PMTo: [email protected]

Having trouble viewing this email? Click here

Stay Connected

November 2015

OutreachStay up-to-date on the latest breast cancer news & events!

CBCN in actionCBCN report, Waiting for Treatment: Timely, Equitable Access to Drugsfor Metastatic Breast Cancer, receives national media coverageIn October, CBCN successfully launched our new report,Waiting for Treatment: Timely, Equitable Access to Drugs forMetastatic Breast Cancer. The report calls for moreequitable access to treatments for the thousands ofCanadian women living with metastatic breast cancer.

The report received extensive media coverage across thecountry, generating 76 stories, including features in theToronto Star, Chronicle Herald, and both CBC Radio andonline coverage. Overall, the report reached over 12.1million people nationally and raised an incredible amount ofawareness of the need to reduce wait time delays andimprove access to new treatments for Canadians living withmetastatic breast cancer. To view our news coverage,please visit our website.

Join CBCN's Call to Action to increase timely, equitable access to drugsfor Canadians living with metastatic breast cancerCBCN is asking Canadians to take action to reduce lengthy wait times for new treatmentsand to promote increased accountability and transparency in drug reviews for metastaticpatients and their families.

Join us in calling for provincial Ministries of Health to commit to listing new treatments formetastatic breast cancer within defined deadlines and to raise awareness of the need forurgent access to new treatments for all Canadians affected by metastatic breastcancer. Visit our website to find out how you can take action.

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cancer. Visit our website to find out how you can take action.

CBCN represents the perspective of Canadians living with metastaticbreast cancer at an international conferenceCBCN is thrilled to present the perspective of Canadians living with metastatic breastcancer at the third International Consensus Conference for Advanced Breast Cancer (ABC)in Lisbon, Portugal from November 5 to 7. The conference will bring together healthexperts, researchers, industry, and patient advocates from across the world to discuss newresearch, clinical guidelines, and recent advancements in diagnosing, treating, and caringfor metastatic breast cancer patients. CBCN is looking forward to sharing the Canadianpatient and policy perspective, as well as to gaining insights into the global treatment ofmetastatic breast cancer.

CBCN participates in Best Medicines Coalition meeting, PharmaceuticalCare for Patients: Current Issues and Future OpportunitiesOn November 4 and 5, CBCN will join representatives from more than 40 patientorganizations to discuss key issues affecting equitable and consistent access forCanadians to safe, effective, and good-quality drugs. The annual Best Medicines meetingprovides an opportunity for CBCN to present findings from our report, Waiting forTreatment: Timely, Equitable Access to Drugs for Metastatic Breast Cancer. Theconference will also feature discussions on such issues as how Canada compares to othercountries on drug access, developing a consistent vision for national pharmacare, and apost-election analysis. CBCN looks forward to continuing to work with the Best MedicinesCoalition, as we share information with other patient organizations, and striving towardseffecting change on Canadians' health outcomes through collaborative advocacy.

Get the metastatic breast cancer edition of Network News

A new special edition of Network News shines aspotlight on metastatic breast cancer. This issueoffers articles on the new targeted therapies forbreast cancer, tips for dealing with insomnia and thedifficult emotions that metastatic breast cancerbrings, and a first-person story of a patient with thisdisease. Click here to read this special edition!

Learn & connectNovember webinar series aids spouses and partnersWillow Breast & Hereditary Cancer, in partnership with The Caregiver Networkand Ovarian Cancer Canada, is offering a series of free webinars intended toprovide tools, resources, and strategies to support spouses and partners ofwomen with breast or ovarian cancer. On November 10 is a webinar entitled,"Life after Treatment: Adjusting to a 'New Normal' for You and Her." OnNovember 17 is "Living with Metastatic Breast or Ovarian Cancer." OnNovember 24 is "Living with a Gene Mutation: Impact on the Family." Formore information or to register, visit www.willow.org/get-involved/events/.

Conference on women's cancers takes place November 13 and 14 in

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Conference on women's cancers takes place November 13 and 14 inFredericton, New BrunswickOn November 13 and 14, the New Brunswick Breast and Women's Cancer Partnershippresents InterAction, a conference on breast, cervical, ovarian, and uterine cancer. After ahalf-day of speakers, a Community Forum on mindfulness and compassion, open to all,takes place at 6:45 p.m. on November 13. It addresses two questions:

How do we harness the wisdom of the heart, the body, and the mind to be healthyand to stay healthy? How do we use this wisdom to uncover, to reveal, and to reconnect with our basichuman state so that it becomes one's own health, happiness, and well-being that willget you to the path to self-care?

The conference takes place at the Fredericton Inn, 1315 Regent St., Fredericton, NewBrunswick. For more information, to register, or to see the full schedule, visit www.nbbwcp-pcscfnb.ca/en/content/events.

Conference on compression for lymphedema November 17 in MontrealThe Lymphedema Association of Quebec, together with the McGillLymphedema Research Program and the Lymphedema SupportCentre of the Quebec Breast Cancer Foundation, invite you to aneducation and awareness conference entitled Living Well withLymphedema: Spotlight on Compression. It takes place November17 from 5:30 to 8:00 p.m. at the McGill University Health Centre(MUHC), Glen Site, Block E, Research Institute, AuditoriumS1.1129, 1001 Decarie Boulevard, Montreal. Topics include:

the science of compression and its role in the management of lymphedemamulti-layer compression bandagingthe different types of compression garments (circular, made to measure, daytime,nighttime)practical advice for the self-management of lymphedemaquestion and answer period

For more information or to register, call 514-979-2463 or email [email protected].

November 18: Conversations and questions about treatment and qualityof life for metastatic breast cancerIf you or a loved one has been diagnosed withmetastatic breast cancer, you may beinterested in a webinar presented by theUniversity of Kansas Cancer Center andLiving Beyond Breast Cancer. Learn abouthow you can improve your quality of life, understand new research directions, and makeinformed decisions about your care. The webinar takes place on November 18 from 6:00to 7:30 p.m. Central Time. (You can also attend the presentation in person.) For moreinformation or to register, visit www.lbbc.org/mbc360.

Survey asks about physical activity for breast cancer survivorsCurrently, as many as 90 percent of breast cancer survivors are not physically activeenough to gain health benefits. Understanding reasons for this inactivity is very importantfrom both research and public health perspectives.

With funding from the Canadian Breast Cancer Foundation, researchers from theUniversity of Toronto are conducting a brief (20- to 25-minute) online survey that willexamine some of these reasons in breast cancer survivors who are at least one yearfollowing completed primary treatment (not including hormonal therapy).

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following completed primary treatment (not including hormonal therapy). The survey can be found at http://icanbeactive.com/. If you have any questions, pleaseemail Angela at [email protected]. Thank you for your help!

Featured video

Susan, one of thewomen with metastatic

breast cancer whoshares her story in

CBCN's Living Legacyvideo

This month we are featuring our own Living Legacy video,supporting Canadians living with metastatic breast cancer.We asked nine women from across Canada to share theirpersonal stories, words of support, and advice to othersfacing this disease and, of course, to share their LivingLegacies! Watch the video and download our new Story-TellingToolkit to help you better tell your story at cbcn.ca/index.php?pageaction=content.page&id=125&lang=en.

To nominate a video for CBCN's Featured Video, emailRebecca at [email protected].

Learn & Connect!

Become a Supporter! CBCN adheres to theCCAN Code of

Conduct

Canadian Breast Cancer Network331 Cooper Street, Suite 602, Ottawa ON K2P 0G5

Telephone: 1-800-685-8820; Ottawa: 613-230-3044 Fax: 613-230-4424; [email protected]; www.cbcn.ca

Outreach is published 12 times a year by the Canadian Breast Cancer Network. It is available in English orFrench, and is distributed as a text-only e-mail message. The views expressed herein are the views of theauthors and do not necessarily represent the views of CBCN. To be added to the Outreach distribution listor to update your e-mail address, please e-mail Wendy at [email protected]. Send your content submissions