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Studying Eating Disorders
ISP SSS - LSE
Lonfon, May 11th, 2010
Promesses et limites des SMAP Tubaro & AA Casilli
Studying Eating Disorders in the Social Web
New methods, new questions
Antonio A. Casilli, CEM, EHESS
• Edgar Morin Centre, School forAdvanced Studies in SocialSciences (EHESS, Paris)http://en.wikipedia.org/wiki/Edgar_Morin_Centre
• Interdisciplinary Institute for
Promesses et limites des SMAP Tubaro & AA Casilli
• Interdisciplinary Institute forContemporary Anthropology(IIAC, Paris)
• Research topics: CMC andhealth - especially eatingbehaviors
• Social network approach toeating disorders (ANAMIAproject)
TOC
• Pro-ED online communities• Our approach• Methods
Promesses et limites des SMAP Tubaro & AA Casilli
• Methods• Empirical data• Agent-based simulations• Conclusions
• Pro-ED online communities
Promesses et limites des SMAP Tubaro & AA Casilli
• “Pro-ana”, “pro-mia”:controversial subculturesadvocating anorexia andbulimia nervosa on theweb 3
4
5
6
Search Volume Index
Ana_mia
Pro_ana
Promesses et limites des SMAP Tubaro & AA Casilli
web• A “movement”? A “skill”?• How to study this social
phenomenon?• How to devise suitable
public health tools andcommunication policies?
0
1
2
3
Jan 2 2005
Mar 27 2005
Jun 19 2005
Sep 11 2005
Dec 4 2005
Feb 26 2006
May 21 2006
Aug 13 2006
Nov 5 2006
Jan 28 2007
Apr 22 2007
Jul 15 2007
Oct 7 2007
Dec 30 2007
Mar 23 2008
Jun 15 2008
Sep 7 2008
Nov 30 2008
Feb 22 2009
Search Volume Index
Pro_ana
Pro_mia
Evolution over four years of the search volume index for common ana-mia queries
(Source: Google Trends, March 12th 2009)
• Rough typology ofonline pro-EDwebsites:
1. Personal websites
Promesses et limites des SMAP Tubaro & AA Casilli
1. Personal websites2. Online social
media/forums3. ‘Cloaked’ websites4. ‘Universities’
• ‘Thinspiration’, self-help, advice
• Our approach
Promesses et limites des SMAP Tubaro & AA Casilli
•The pro-ED population is:
•relatively small;
•vulnerable (health risk; underage);
•partly hidden;
Promesses et limites des SMAP Tubaro & AA Casilli
•frequent migrations.
•Large quantitative surveys & webcrawling possible only to an extent
•Rely on smaller-scale, purposive samples for qualitative enquiry
• Ongoing project(ANAMIA) : a socialnetworks approach topro-ED sociability
• Social factors
Promesses et limites des SMAP Tubaro & AA Casilli
• Social factorsinfluencing healthbehaviours
• Computer useinfluencing socialfactors
• Focus on online/offinepersonal networks
• Methods
Promesses et limites des SMAP Tubaro & AA Casilli
•A wide array of methods
•Online ethnographies
•Online experiments
•Social network analysis
Promesses et limites des SMAP Tubaro & AA Casilli
•Social network analysis
•Web-based in-depth interviews
•Multi-agent simulations
•General framework: Ethnographically-informed social simulation (P Tubaro & AA Casilli BMS, 2010)
• Combining qualitative data and agent-based computersimulation:• enriches model with insight into actors behavior and motivations;• performs “thought experiments” to test consistency of theories;• replicates and generalizes findings from fieldwork;• supports cross-disciplinary validation of results.
Promesses et limites des SMAP Tubaro & AA Casilli
• supports cross-disciplinary validation of results.
• Starting point: an actual social process;
• Qualitative sub-loop: formulate hypotheses, collect data,
• adjust categories, until a
Promesses et limites des SMAP Tubaro & AA Casilli
• adjust categories, until a theory is produced;
• Design, build, code and de-bug an agent-based model;
• Generate simulated data and revise theory;
• This may direct back to the field (resample and re-start sub-loop).
• Empirical data
Promesses et limites des SMAP Tubaro & AA Casilli
• Fieldwork with ana-mia subjects is currently at an early stage.
• Data collected so far are exploratory, and include:– At micro level: a qualitative study of network tie
formation on Facebook;– At macro level: a web cartography of the pro ED-sphere
Promesses et limites des SMAP Tubaro & AA Casilli
– At macro level: a web cartography of the pro ED-sphere in France and UK
• Use of preliminary data to inform and validate a first simulation.
• Facebook experiment• Creation of social structures
(‘friendship’, ‘social capital’) through self-disclosure and adoption of cultural traits
• 50 days (Apr. 27th, - Jun. 15th, 09)
Promesses et limites des SMAP Tubaro & AA Casilli
15th, 09) • Name generator and IOS to
select subjects• An actual and a control
profile send 50 friend requests
• Recognizable name and picture
• 15 reply (14 for control)
• “Friends” provide feedback on how to adapt profile– Comments– Private messages– Like– Share
Promesses et limites des SMAP Tubaro & AA Casilli
– Share• “Friends” appreciate
disclosure• Actual profile contains more
personal information, images, interactive data
• Control data contains sparse information
•Pete Warden, Nicholas Christakis :«harvesters» and «dataminers»
•«Mark Zuckerberg has built hissocial networking empire on thebelief that "information wants to beshared", a particular philosophy ofinformation that directly impacts the
Promesses et limites des SMAP Tubaro & AA Casilli
information that directly impacts thevalues built into the design ofFacebook, ranging from its userinterface, privacy policies, terms ofservice, and method of governance »(Michael Zimmer)•Social media is ethically puzzling
Promesses et limites des SMAP Tubaro & AA Casilli
Starting point 11 05 09
Actual Profile Control Profile
Promesses et limites des SMAP Tubaro & AA Casilli
Taste display 19 05 09
Actual Profile Control Profile
Promesses et limites des SMAP Tubaro & AA Casilli
Personal information 22 05 09
Control ProfileActual Profile
Promesses et limites des SMAP Tubaro & AA Casilli
Photo album online 13 06 09
Control ProfileActual Profile
•Insight from preliminary qualitative study is that online network formation may depend upon:
•Privacy settings, i.e. visibility of contents to others;
Promesses et limites des SMAP Tubaro & AA Casilli
others;•Self-display, i.e. personal and cultural traits exhibited and that traits may change with network composition.
•The model aims to problematize these factors in simulated larger networks.
• Agent-based simulations
Promesses et limites des SMAP Tubaro & AA Casilli
•We focus on the impact of:•tendency to conformism vs. dissonance in cultural traits;•preference for bonding vs. bridging in tie formation;•possibility to limit incoming ties through privacy protection.
Promesses et limites des SMAP Tubaro & AA Casilli
ties through privacy protection.•We measure impact through:
•number and size of components;•homogeneity of traits within and between components;•evolution of privacy settings over time.
Promesses et limites des SMAP Tubaro & AA Casilli
•At initialization, each actor is endowed with:•a vector (several dimensions) of traits;•a privacy setting (visible/invisible).
•Actors can be:•isolates;•connected;
•If connected:
Promesses et limites des SMAP Tubaro & AA Casilli
•If connected:•they share most traits with their contacts;•but may dffier on one dimension;•this depends on the ‘Dissonance’ parameter
•We test the following values of parameters:
Paramètres Valeurs
Dissonance 0,01 0,03 0,08
Seuil de bonding 0,20 0,50 0,70
Privacy On Off
SETUP
Tick t+1
Pick up random A
Y
N
Is anom(A) < AnomThrshld?
Update z(Ai) ≠ µz (friendsi)
Promesses et limites des SMAP Tubaro & AA Casilli
Break Tie
Y
Create Tie
Is µz(A)-µz (grp) < BBThrshd? Create Bridging Tie
N
Y
Create Bonding Tie
Is µz(A)-µz (grp) ≥ BBThrshd?
Y
Break Bonding Tie
Break Bridging Tie
N
• Simulation results (20,000 ticks): three stable configurations
Promesses et limites des SMAP Tubaro & AA Casilli
(1) Giant Component (2) Hegemony (3) Little Boxes
Promesses et limites des SMAP Tubaro & AA Casilli
Number and size of components, varying Dissonance and Bonding Propensity, privacy protection on
Promesses et limites des SMAP Tubaro & AA Casilli
Number and size of components, varying Dissonance and Bonding Propensity, privacy protection off
• Explain the effects of parameters– With lower propensity to bonding (=greater openness to– bridging), only one or few components emerge;– This effect is stronger with higher Dissonance;– With higher propensity to bonding, many small communities emerge;– In this case, differences in Dissonance have little impact;– With no privacy protection, these effects are slightly amplified, because
Promesses et limites des SMAP Tubaro & AA Casilli
– With no privacy protection, these effects are slightly amplified, because more ties can be formed.
• Explain changes in privacy over time– Agents restrict access only when a giant component appears;– This is the only case in which average privacy increases;– Otherwise, average privacy diminishes until there are no more isolates,
then is stable.
Promesses et limites des SMAP Tubaro & AA Casilli
Average Privacy over time, varying Dissonance and Bonding propensity
Structural signatures of learning dynamics
Promesses et limites des SMAP Tubaro & AA Casilli
1. Inprinting 2. No learning
3. Mixed situation (no learning & continuous learning)
•Retrodictive validation •Web cartography of the pro ED-sphere in France and UK•Close to configuration 2 ‘Hegemony’
Promesses et limites des SMAP Tubaro & AA Casilli
‘Hegemony’•Large component: personal pages and blogs of teenagers and young adults, strongly pro-ana;•Smaller components: different age groups and social positioning (cultural variance)•Homogeneity within components, heterogeneity between them.
French pro-ED sphere (by Dr. Manuel Boutet)
•Retrodictive validation •Web cartography of the pro ED-sphere in France and UK•Close to configuration 2 ‘Hegemony’
Promesses et limites des SMAP Tubaro & AA Casilli
‘Hegemony’•Large component: personal pages and blogs of teenagers and young adults, strongly pro-ana;•Smaller components: different age groups and social positioning (cultural variance)•Homogeneity within components, heterogeneity between them.
British pro-ED sphere (by Dr. Manuel Boutet)
• Conclusions
Promesses et limites des SMAP Tubaro & AA Casilli
• Preliminary results support the claim that agent-based models can complement analyses based on small qualitative fieldworks
• Combine insight into social phenomenon and
Promesses et limites des SMAP Tubaro & AA Casilli
• Combine insight into social phenomenon and generalization of results
• These methods are particularly useful with sensitive and hidden populations.
• These methods are particularly open to cross-disciplinary validation
Thank you!
Promesses et limites des SMAP Tubaro & AA Casilli
Contact me at:antonio [dot] casilli [at] ehess [dot] frFind this presentation on my research blog: http://www.bodyspacesociety.euFollow me on Twitter: http://www.twitter.com/bodyspacesoc