Care co-ordination network UK CCNUK including key working in England and supporting Every Disabled...
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Transcript of Care co-ordination network UK CCNUK including key working in England and supporting Every Disabled...
Care co-ordination network UK
CCNUK including key working in England and supporting Every Disabled Child Matters campaign
Cath Walder development co-ordinator England
Care Co-ordination Network UK
•CCNUK is a networking organisation promoting key working for disabled children and their families in England, Northern Ireland, Scotland and Wales.
•CCNUK is an independent registered charity based at Tower House, Fishergate, York.
history
•Evidence based research from1999 at a Wrexham conference
•2000 JRF convene steering group and in 2001 worker appointed
•2002 charitable status and trustees appointed
•2006 company limited by guarantee with charitable status
•2006 independence from University of York
CCNUK mission
work in partnership with disabled children, their families and professionals, to ensure that all
families throughout the UK have access to high quality care co-ordination or key worker services
director
Scotlanddevelopment
worker
Wales administrator
Wales developmentco-ordinator
Walesdevelopment
worker
admin manager
Englanddevelopment co-ordinator
Englanddevelopment
worker
England clerical
assistant
staff
CCNUK definition
•key working is a service, involving two or more agencies, that provides disabled children and young people and their families with a system whereby services from different agencies are co-ordinated. It encompasses individual tailoring of services based on assessment of need, inter-agency collaboration at strategic and practice levels, and a named key worker for the child and family giving a single point of contact. Families with disabled children should only have a key worker if they want one.
CCNUK definition
•a key worker is both a source of support for disabled children and young people and their families and a link by which other services are accessed and used effectively. Key workers have responsibility for working together with the family and with professionals from services and for ensuring delivery of an interagency care plan for the child and family.
policy context
•Every child matters – five outcomes (BSEMA)
•Early Support Programme
•Children’s NSF – disabled children key workers (standard 5.8)
•Development of children’s trusts and children’s centres
•Improving the life chances of disabled people Prime Minister’s strategy unit January 2005
•Aiming high for disabled children (May 2007)
•Aiming high for disabled children – National Core Offer (May 2008 2. Assessment)
Aiming High for disabled children
•access and empowerment
•responsive services and timely support
• improving quality and capacity
• the context
• the funding
• making the system work better
The vision – all families with disabled children to have the support they need to live ordinary family
lives, as a matter of course
national core offer
• CCNUK key working - where does this fit?
• 2.assessment
• disabled children and young people receive child- centred multi-agency co-ordinated services from the point of referral through identification and assessment to delivery
five elements grouped under three headings
•information and transparency
• assessment
•participation and feedback
standards
• organisational standards
• practice standards including:
• assessment• planning• review
key working in England where are we now?
development work England
•Department of Children Schools and Families
•designing a key worker standards training module
•regional meetings
•government offices
•networking
•working in partnership with other sector organisations
•parent partnership
•free membership
•poster
care co-ordination and key working in England - the facts
• key working is requested by government policy
• 150 local authorities in England
• 73presently signed up to the EDCM charter
• 150 primary care trusts
• 52 presently signed up to the EDCM charter
• actual operational key worker services are unknown
Every Disabled Child Matters
CCNUK are members and active supporters of the EDCM campaign
What is Every Disabled Child Matters?• Campaign to get rights and justice for every disabled child
• Run by:
– Contact a Family
– Council for Disabled Children
– Mencap
– Special Education Consortium
Why was a campaign needed?
• Disabled children too low on the agenda
• ECM outcomes not being delivered for disabled children
• Need for new rights to services and support
• Opportunity to influence the Comprehensive Spending Review
20
The current situation
• Poverty – higher rates than other families
• Exclusion – at least 7 times more likely
• Family breakdown – 8 in 10 at breaking point
The changing population
• Since 1975…
• children 0-16 are the fastest growing group of disabled people in the UK (from 476,000 in 1975 to 772,000 in 2002)
• This represents an increase of 62%.
[Improving Life Chances Report, 2005]
CSCI report - March 2007
'Services remain variable and in some areas, very limited and insufficiently joined up. Parents… are dissatisfied with the overall experience. Despite the principles of Every Child Matters, they feel there is a lack of information, too much duplication of assessments and services, access is difficult and there are high thresholds to social care support. Parents and young people say they do not get enough respite and what is provided is often inappropriate.’
EDCM wants…
1 – New rights
2 – New resources
3 – New priority – (a) nationally and (b) locally
Highlights to date
New rights – CYP Act 2008 – duty to provide short breaks
New resources – AHDC - £430m ringfenced plus millions for NHS
New priority – national indicator and EDCM charter sign-up
If I could change one thing…
Disabled children and young people want:
1) Things to do and places to go
2) To be respected
3) A good education
Parents want:
1) To not have to fight for support
2) To be included in their communities
3) To find educational provision that meets their child’s needs
29,000 supporters signed up online…
Please sign up and ask everyone you know to do
the same!
www.edcm.org.uk
Thanks and questions
Cath Walder, England development co-ordinator
e: [email protected] t: 01904 567314
Contact EDCM
Laura Courtney, Campaign Manager
Louise Franklin, Policy Manager
Pam Shaw, Campaign Officer
e: [email protected] t: 020 7843 6318