CANCER PATIENTS AID ASSOCIATION 1969 – 2007 CANCER – WE MUST WIN IN OUR LIFETIME.
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Transcript of CANCER PATIENTS AID ASSOCIATION 1969 – 2007 CANCER – WE MUST WIN IN OUR LIFETIME.
CANCER PATIENTS AID ASSOCIATION
1969 – 2007
CANCER – WE MUST WIN IN OUR LIFETIME
Coping Mechanisms of Parents Who’s Children Suffer From Cancer
Meghana Suchak & Shubha Maudgal
Cancer Patients Aid Association,
Anand Niketan,
King George V Memorial Infirmary,
Dr. E. Moses Road,
Mahalaxmi,
Mumbai-400011, INDIA
OUR PHILOSOPHY
TOTAL MANAGEMENT OF
CANCER
OUR APPROACHRaising Awareness
Cancer Screening
Insurance
Patient Care
Rehabilitation
Providing Information
CPAA Activities for Children with Cancer
CPAA Activities for Children with Cancer in Hospitals
Statistics in India
» Each year, more than 160,000 children are diagnosed with cancer.
» An estimated 90,000 will eventually die of their disease.
» Worldwide, 70 to 90% childhood cancers are curable.
» In India as many as 80 per cent children do not survive.
CopingA diagnosis of cancer in your child is devastating
and probably the most distressing situation a parent will ever face.
Coping is the efforts that an individual has to make in order to adjust to the stressful
situation.
A variety of individual differences influence coping
» Characteristics of the individuals
» Existing coping resources
» Unique Situation
» Demands of the time
Issues Faced by Parents The typical Indian scenario» Lack of Awareness» Lack of Information» Fears, Myths, Misapprehensions» Lack of insurance or social security» Limited Access to cancer treatment » Accommodation» Language barrier» Single parent» Sibling issues» Child related issues
Problem solving
This method is a complex process with a variety of influencing factors like the individual’s
» Personality
» Relationship with other family members
» Openness to a new approach
» Effects of other life events
Hypotheses
» Economic status affects coping outcomes for parents of children suffering from cancer
» Parents from lower socio-economic strata will use more maladaptive forms of coping strategies to deal with their stresses
COPE Questionnaire
» We used the brief COPE questionnaire given by Carver (28 items)
» This is a shortened version of the original COPE questionnaire
» Translated into local languages
Scales measured» Self distraction» Active coping » Denial » Substance use » Use of emotional
support » Use of instrumental
support » Behavioral
disengagement
» Venting» Positive reframing » Planning » Humor » Acceptance » Religion» Self blame
Table 1- Mean Scores of Parents (High and Low Income Groups) on various Coping Styles of COPE
Styles High Income Group Low Income Group
Self distraction 2.87 5.73
Active coping 7.67 6.80
Denial 6.07 6.13
Substance use 2.00 2.40
Use of emotional support 7.20 6.26
Use of instrumental support 6.13 5.67
Behavioural disengagement 4.53 4.80
Venting 4.06 4.20
Positive reframing 6.80 7.47
Planning 6.13 6.93
Humour 4.27 6.33
Acceptance 6.13 6.40
Religion 6.80 7.47
Self blame 3.33 4.40
N= 30 df= 28
Results & Discussion» Major differences on Self Distraction, Active
Coping and Humour
» Many unresolved issues lying dormant
» Parents often did not have a safe outlet for their emotions
» Stigma attached to consulting a Psychologist
» CPAA plans to correct this imbalance by setting up dedicated counseling cells