CAMP CONNECT - National Multiple Sclerosis Society...Ohio Buckeye Chapter 1-800-344-4867 NOW: AN MS...

FALL 2014OHIO BUCKEYE CHAPTER

MS CONNECTION NEWSLETTER

INSIDE THIS ISSUE

4LEARN ABOUT NEW RESEARCH

6DISCOVER BENEFITS OF EXERCISE

10SEE THE SCHOLARSHIP RECIPIENTS

18ATTEND A SELF-HELP GROUP

CAMP CONNECT

2 MS CONNECTION: FALL 2014

LETTER FROM THE PRESIDENT

CHILDREN ENJOY CAMPThis summer we hosted Camp Connect for the third consecutive year thanks to funds provided by generous donors. This year’s camp was a huge success as 64 students attended the weekend camp at Camp Lazarus in Delaware, Ohio.

Camp Connect was established in 2012 after Gail and John Simonetti donated $20,000 toward the new program for children in grades 2 to 9 who had an MS diagnosis or a parent living with MS. The first year 19 students enjoyed camp activities.

In 2013, the number of campers doubled to 38 children. Additional funds were generated through the Columbus Dinner of Champions. A total of $10,000 was raised and the Simonettis generously donated another $10,000 to support Camp Connect.

It is the best, well-funded program that we offer. I am grateful and amazed by the number of people who have donated to this program to help the kids so that they can enjoy themselves and meet other kids who face similar challenges. It lets the children know they are not alone.

While at camp, the kids participate in activities like archery, canoeing, crafts, swimming, volleyball and yoga. They also attend educational classes about MS that are geared for their age level.

We are planning for next year’s activities and need your help. If you would like to donate or to volunteer for Camp Connect or any of our programs, please email me at [email protected] or call me at 216-503-4168. n

Sincerely,

Janet KramerChapter President, Ohio Buckeye Chapter

“CAMP CONNECT IS THE BEST, WELL-FUNDED PROGRAM THAT WE OFFER.”

CONNECT WITH US ONLINE:Ohio Buckeye Chapter MSohiobuckeye.org [email protected]

Like us: facebook.com/msohiobuckeye

Follow us: twitter@nmssohiobuckeye

Watch us: youtube.com/nationalmssociety

On the Cover: Photos from Camp Connect

3MSOHIOBUCKEYE.ORG | 1-800-344-4867

STOP DISEASE PROGRESSION RESTORE LOST FUNCTION END MS FOREVER



STOP

RESTORE

END

NATIONAL MULTIPLE SCLEROSIS SOCIETY

Board Chair: Roy Smoot President: Janet Kramer Executive Vice President Marketing & Outreach: Jennifer Hamilton Editor: Guyla Wehman

© 2014 National Multiple Sclerosis Society, Ohio Buckeye Chapter

Cleveland Office6155 Rockside Rd., Suite 202Independence, OH 44131Columbus Office651G Lakeview Plaza Blvd.Worthington, OH 43085Toledo Office401 Tomahawk DriveMaumee, OH 43537

Information provided by the National Multiple Sclerosis Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician.

The National Multiple Sclerosis Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National Multiple Sclerosis Society assumes no liability for the use or contents of any product or service mentioned. n

Ohio Buckeye Chapter 1-800-344-4867

NOW: AN MS RESEARCH REVOLUTION

SKIN CELLS USED TO INDUCE MYELIN REPAIR IN MICEA team of researchers has derived stem cells from the skin of people with primary progressive MS and induced them to become myelin-making cells, using a strategy that speeds up this process compared with previous studies. The cells repaired myelin when transplanted into mice. Although this was a mouse study and the safety and potential of these cells for treating people remains to be seen, this research contributes knowledge to the future development of a possible stem cell strategy in MS. With the urgent need for more effective treatments for MS, particularly for those with more progressive forms of the disease, the potential of all types of cell therapies must be explored.

The National MS Society is currently supporting 12 research projects exploring various types of stem cells, including cells derived from bone marrow, fat and skin. The Society has supported 70 stem cell studies over the past 10 years. n


RESEARCHERS DISCOVER NEUROPROTECTIVE ROLE OF IMMUNE CELL A type of immune cell widely believed to exacerbate chronic adult brain diseases, such as Alzheimer’s disease and multiple sclerosis, can actually protect the brain from traumatic brain injury (TBI) and may slow the progression of neurodegenerative diseases. The research team, led by Dr. Bruce Trapp, Chair of the Department of Neurosciences at Cleveland Clinic’s Lerner Research Institute, found that microglia can help synchronize brain firing, which protects the brain from TBI and may help alleviate chronic neurological diseases.

“Our findings suggest the innate immune system helps protect the brain after injury or during chronic disease, and this role should be further studied,” Dr. Trapp said. “We could potentially harness the protective role of microglia to improve prognosis for patients with TBI and delay the progression of Alzheimer’s disease, MS and stroke. The methods we developed will help us further understand mechanisms of neuroprotection.”

Microglias are primary responders to the brain after injury or during illness. While researchers have long believed that activated microglia cause harmful inflammation that destroys healthy brain cells, some speculate a more protective role. Dr. Trapp’s team used an advanced technique

DR. BRUCE TRAPP

called 3D electron microscopy to visualize the activation of microglia and subsequent events in animal models.

They found that when chemically activated, microglia migrate to inhibitory synapses, connections between brain cells that slow the firing of impulses. They dislodge the synapse, thereby increasing neuronal firing and leading to a cascade of events that enhance survival of brain cells.

Dr. Trapp is internationally known for his work on mechanisms of neurodegeneration and repair in MS. His past research has included investigation of the cause of neurological disability in MS patients, cellular mechanisms of brain repair in neurodegenerative diseases and the molecular biology of myelination in the central and peripheral nervous systems.

Dr. Trapp’s research won the National MS Society’s 2009 Stephen C. Reingold Award and he was inducted into the Society’s Volunteer Hall of Fame for Scientific Researchers in 2013. n


MS TRIAL ALERTSInvestigators are recruiting people with primary or secondary progressive MS for a phase II clinical trial of oral ibudilast. The study, called the SPRINT-MS trial, is principally funded by the

National Institutes of Neurological Diseases and Stroke with additional support by MediciNova and the National MS Society. The study will be conducted through the NeuroNEXT Network, a clinical trials initiative of the National Institutes

of Health. Dr. Robert Fox from the Cleveland Clinic is the national principal investigator and Dr. Daniel Ontaneda is the clinic’s local principal investigator.

The study will take place at 28 sites nationwide and will include 250 people with progressive forms of MS. Eligibility criteria include primary or secondary MS, age 21-65, and the ability to walk at least 25 feet with or without assistance. For more information about the Cleveland Clinic site, please contact Dawn Diorio, RN, at 216-444-4817 or 1-800-223-2273, ext. 44817. To learn about enrollment criteria at The Ohio State University, please contact Amy Bartlett at [email protected] or 614-366-9050.

In another study, known as the RADIANCE study, investigators worldwide are recruiting

1,410 people with relapsing-remitting MS to test the safety and effectiveness of the experimental oral therapy RPC1063. The study is funded by Receptos, Inc.

Eligibility criteria include relapsing-remitting MS, age 18-55, and the ability to walk 200 meters (about 656 feet) unassisted, and no previous treatment with Gilenya, Tysabri or rituximab. The principal investigator at the Cleveland Clinic is Dr. Jeffery Cohen and more information is available by contacting Dawn Diorio, RN, at 216-444-4817 or 1-800-223-2273, ext. 44817. For enrollment criteria at Neurology & Neuroscience Associates, please contact Katherine Stapleton, LPN, at [email protected] or 330-572-1011, ext. 232. n

DR. ROBERT FOX


MAKE EXERCISE A PART OF DAILY LIFEBY JULIE STACHOWIAK, PH.D.

We all know that we should be exercising. Besides the benefit of lowered cardiovascular risk and increased muscle mass, research on the effects of exercise in multiple sclerosis has shown that it can improve mood, MS-related fatigue and cognitive function.

Notably, exercise has also been shown to increase overall daily activity level, functional capacity and balance in people with MS. In total, this adds up to a measurable increase in quality of life.

There is even limited evidence in animal models that exercise therapy may halt, slow or reverse disease progression of MS. Exercise therapy is an individualized exercise or plan typically prescribed by a doctor and done under the supervision of a physical therapist or other healthcare provider. There are specific guidelines, based on scientific data, for programs combining resistance and endurance testing. While that is great, raise your hand if you are currently participating in an exercise therapy program. See what I mean?

Studies show that fewer than 20 percent of people in the general U.S. population get the recommended 150 minutes of moderate-intensity exercise per week. In people with MS, this number is definitely lower, as research shows that activity in people with MS starts off low and declines over time.

So, why don’t we exercise? As a person with MS, that is a pretty simple question to answer. Even though I know it will make me feel better, many times I feel so horrible or so fatigued that the thought of 30 minutes of sustained exercise just makes me laugh. Or cry.

However, there may be an answer, according to Robert W. Motl, Ph.D., who noted that it is not just people with MS who don’t stick to exercise programs. According to studies, over 50 percent of adults drop out of any formal exercise program after three months. And after six months, 75 percent have stopped exercising.

He has some ideas on how to prevent this exercise attrition. Rather than pushing for a formal exercise therapy program, we should strive to incorporate more physical activity into our daily lives. Dr. Motl calls this “lifestyle activity,” and points out that intermittent exercise has been shown to have the same effect as continuous bouts of exercise. In other words, accumulating 30 minutes a day of moderate exertion doing things like walking, gardening or pushing a vacuum cleaner can be as effective as a more formal 30-minute exercise session.

In addition to this new approach to getting our recommended daily allowance of exercise, Dr. Motl has been researching the effect of social cognitive theory, which relies on perceived self-efficacy. Simply put, a person will be much more likely to do something if they believe that they can do it. Putting this theory to the test, Dr. Motl’s research group tried it out on people with MS. After three months, the people who

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FIND INFORMATION ANDACCESS RESOURCES Did you know that the Ohio Buckeye Chapter can provide a wide range of medical equipment such as manual or power wheelchairs, scooters and lifts on loan to you while you wait for your insurance to approve a new item, or while you wait for your equipment to be repaired?

Do you commonly receive assistance from a caregiver and wonder what help is available to provide relief to your caregiver, or to you while you are having an MS flare-up or other difficulty?

Did you know that in many communities accessible and affordable transportation services are available that can assist you in getting to and from doctors appointments, grocery shopping and social outings?

Are you working and wondering what services are available to help you in working with your employer and what information you might need to disclose to your employer regarding disability-related symptoms?

Finding answers and making decisions depends on having the right information at the right time. The National MS Society provides a team of professional staff that acts as MS Navigators to help you find the information and access the resources you need.

We’re here to help you navigate the challenges of MS with a personalized response to your unique needs. Please call us at 1-800-344-4867 or e-mail [email protected]. n

HELP WITH HEATING COSTS Did you know there is assistance for gas and electric bills through a variety of programs?

HEAP is designed to help low income Ohioans meet the high costs of home heating. HEAP can pay a one-time payment to most utility companies. To learn more call 1-800-282-0880 or TDD 1-800-686-1557. HEAP applications may also be downloaded from the Ohio Development Services Agency website or picked up at community action agencies, post offices and libraries.

Winter Crisis Program is a special component of HEAP that is offered to consumers one time per heating season. The program is designed to help low-income households that are disconnected, threatened with disconnection or have less than a 10-day supply of bulk fuel. Households must be at or below 175 percent of the federal poverty limit. Contact your local community action agency to learn more.

PIPP Plus allows eligible customers to make affordable monthly payments year round. To find out if you qualify, contact your local energy assistance program provider or request an application by calling 1-800-282-0880.

In addition, AEP, Columbia Gas of Ohio, Dominion East Ohio and Duke Energy Ohio have their own HeatShare programs. If your provider is listed, contact them for more details.

If you are still experiencing difficulties or find yourself in an emergency financial situation, please call the National MS Society at 1-800-344-4867. n


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HAPPY MS ANNIVERSARY TO MEBY DOUG ANKERMAN, MS AMBASSADOR

Fall holds a special place in my heart. It’s my anniversary—my MS anniversary.

Yep, multiple sclerosis and I have been together 18 years now. We began with a short courtship. A few twinges of weakness here and there. Some numbness. But just enough to raise suspicions by my family doctor. An MRI later confirmed a diagnosis of MS.

It was September of 1996 when we finally exchanged our vows.

I, Doug, take you MS, to be my chronic disease.To have and to hold (Are they referring to the MS Hug?) From this day forward. For better or for worse (I’m hoping for the better.) For richer or for poorer. In sickness and in health, until death do us part.

We didn’t have much of a honeymoon as soon after our ceremony, I was hooked to a steroid IV. (I guess this is part of the “in sickness and in health!”) Like most relationships, through the years we had our share of ups and downs, highs and lows, stumbles and falls (mostly by me).

Since separation or divorce wasn’t an option, we did the counseling and support group thing only to realize we really didn’t like each other. I wasn’t fond of MS and likewise, MS didn’t think much of me.

It took several years before we came to a mutual compromise. MS would do its thing and I would do mine. When MS would zig, I would zag. When MS threatened my ability to drive I got hand controls for the car. When it challenges my balance I use grab bars, canes and a rollator. And when MS swipes my powers to walk I use a wheelchair.

My point being, whatever your MS throws at you, you can return the favor with something bigger and better. You can exercise to improve

your tolerance to fatigue. You can stretch to lessen the spasms of spasticity. And you can take part in activities you enjoy to combat the negative doldrums of MS.

Personally, I enjoy writing about MS. I make fun of it, to its face, on my MS humor-inspired blog, My Odd Sock.

Writing about MS helps me cope with the everyday challenges and frustrations that people with MS face. Making light of MS gives me a feeling that I am bigger than the disease.

I hope the readers of My Odd Sock feel the same way. As an MSer way wiser than myself once commented, “It is better to live and laugh than cry and die.” Well stated. Living by that standard could be the reason why MS and I have been able to put up with one another for 18 years.

By the way, that reminds me, what is the traditional gift for an 18th MS anniversary?

DOUG ANKERMAN USES HUMOR TO COPE WITH MS.


CONTINUED FROM PG.6participated in the self-efficacy component exercised more, exerted themselves more and reported feeling better than those in the group who did not receive the self-efficacy message.

I’m a huge fan of this new paradigm of incorporating exercise into daily life. I bought a pedometer and now force myself to get at least 10,000 steps a day. Since a part of self-efficacy involves modeling or seeing others do the same thing, I monitor an online group of people who log their steps daily. In this way, I have made exercise a habit. For those of you who may have limited mobility, you can still get the many benefits of exercise by exerting yourself to the extent possible to do your daily activities. Talk to your healthcare provider about what activities may work best for you. For more ideas on how to make exercise a part of your everyday life, visit www.nationalmssociety.org/Living-Well-With-MS/Health-Wellness/Exercise or call 1-800-344-4867. n

Julie Stachowiak, Ph.D., is an epidemiologist and author of “The Multiple Sclerosis Manifesto.”

An A.F.O.? Cane tips? Bottle of Baclofen? As I “celebrate” the anniversary of my illness with much sarcasm, my true feelings are filled with hope and positive energy for a long future with MS. May you live with MS much the same.

To find Doug Ankerman’s blog, please visit myoddsock.com. For more nonsense, follow him on Twitter @myoddsock. n

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FISHING TOURNAMENT CELEBRATED 25TH YEAR The MS Walleye Fishing Tournament was held June 14, 2014 at the Midway Marina in Port Clinton. This was the largest walleye event since its inception 25 years ago. Participants filled 31 boats and caught more than 2,000 pounds of walleye, the largest catch ever for this event. The volunteer committee was led by Bob Tempero who helped to create the tournament and who continues to oversee its successful completion every year. n

BOB TEMPERO AND JANET KRAMER

EDUCATIONAL RESOURCES

KEEP S’MYELINKeep S’myelin is an engaging and informative newsletter to help children and their parents learn about MS together. Each issue is filled with stories, interviews, games and activities that highlight a specific topic related to MS. To receive a free subscription to Keep S’myelin, please email [email protected] or call 1-800-344-4867. n


SCHOLARSHIP PROGRAM CONTINUES TO GROWThe National MS Society established the Scholarship Program eleven years ago and it immediately became a source of great encouragement for families concerned that multiple sclerosis might put college out of reach. In its first year of operation the program awarded 36 scholarships for a total of $68,000.This year, over $1.1 million in awards was presented to 718 new and renewal recipients nationwide. Scholarships generally range from $1,000 to $3,000 and were awarded to four students in the Ohio Buckeye Chapter although one student living with MS has chosen not to disclose the diagnosis. The other three recipients are:

Phoebe Breckenridge graduated from Austintown Fitch High School and chose to attend Youngstown State University where she will major in journalism. Her mom, Marcy, was diagnosed with MS in 1992 before Phoebe was born so the

chronic, unpredictable disease of the central nervous system has always been a part of her life.

“Whether it’s driving my mom to a doctor’s appointment, helping her walk through a store or helping her back up when she has fallen, MS is not an easy thing to watch someone go through,” Phoebe said. “MS complicates life

in a way that someone who does not see it can never understand.”

Julie Demboski, a graduate of Lake High School, decided to attend the University of Cincinnati and major in criminal justice. Her mom, Barb, was recently diagnosed with MS although she had symptoms for many years.

“My mom was always slow, tired and could never keep up but I never knew why,” Julie said about her life prior to her mom’s diagnosis. “My childhood was really hard but you can’t change the past. All you can do is get past it and work on a better future which is exactly what I plan to do.”

Hannah Maynard, who graduated from Rutherford B. Hayes High School, planned to attend Capital University and major in pre-medical biology. Her dad, Jeff, was diagnosed with MS about 14 years ago. While Hannah was in high school, Jeff started to run on a regular basis and he has completed three half marathons, including the Capital City Half Marathon that he ran with Hannah in May 2014.

“He isn’t the champion of any races but he’s

CONTINUED ON PG.11

JULIE DEMBOSKI

HANNAH MAYNARD

PHOEBE BRECKENRIDGE


the biggest champion my world has known,” Hannah said. “Watching him compete, I have come to understand that I should live my life like this. He has given me inspiration to take on

tasks that I never thought I would do.”

Congratulations to each of the scholarship recipients and best of luck to them as they begin their college education. n

National Multiple Sclerosis Society: Annual Meeting Proxy Vote Only

Mail to: National MS Society, 6155 Rockside Rd., Suite 202, Independence, OH 44131

Name ____________________________________________________________________

Address ___________________________________________________________________

City __________________________________________ State _____ Zip ______________

q I am unable to attend, but would like to assign my proxy vote to: q Janet Kramer, Chapter Presidentq Other:

OHIO BUCKEYE CHAPTER ANNUAL MEETING The Ohio Buckeye Chapter will hold their Annual Meeting on November 11, 2014 in Perrysburg, OH. Please check MSohiobuckeye.org for details.

During the Annual Meeting the Ohio Buckeye Chapter will elect the Board of Trustees, present the Board of Trustee’s Annual Report and the

Treasurer’s Report of the chapter’s accounts. Nominations to the Board of Trustees (which should include the name, address, telephone number and brief background of the nominee, as well as your name and telephone number) must be submitted to: Board Governance Committee, National MS Society, 6155 Rockside Rd., Suite 202, Independence, OH 44131. If you cannot attend but would like to vote by proxy, please return the following form or call 1-800-344-4867 by September 30, 2014. n

CONTINUED FROM PG.10

The National MS Society established the Scholarship Program in 2003 for people living with MS or their children who were pursuing a college or technical school education. Information about scholarships for 2015-16 will be available on the National MS Society website on October 1, 2014. For more information, please visit www.nationalMSsociety.org/scholarship or call 1-800-344-4867


LESS CAN EQUAL MORE BY MICHAEL KUCHARSON, CPA AND CERTIFIED FINANCIAL PLANNER

How do you “make do” with less money? That’s a tough question to answer right off the bat. Let’s find out what you need for an answer.

The first step is to list down in writing your monthly income and expenses. Pay special attention to your expenses. Your expenses should be classified and labeled as either a “want” or a “need.” For example, your rent or mortgage and utility bills are normally classified as a “need” expense. You need to live somewhere and your monthly housing costs are a necessary expense. Other monthly expenses such as cable, food and clothing costs are normally classified in the “want” category. These types of expenses may be adjusted either higher or lower and should be considered as variable expenses. To a certain extent you can control these “want” expenses to

fit under your available monthly income.

There is no magic math to your monthly budget. In short, your monthly income must equal or exceed your monthly expenses, otherwise, you must have savings or borrow additional money to cover your shortfall or increase your income. Too often people turn to credit cards or even worse high interest short-term loans to cover the monthly shortfall. This can lead to a host of other problems. This type of borrowing is not a long-term solution to your household finances.

Please contact me for a free financial planning consultation. I’m located in the Ohio Buckeye Chapter’s Independence office and I’m available for in-person or telephone consultations every Thursday from 9:00 a.m. to 4:00 p.m. You can reach me at [email protected] or 216-503-4159. Together we can work towards balancing your financial life so less can equal more. n

GET CLOSE TO NATURE Life is full of simple pleasures. One of them is savoring the sights and smells of the woods. Another is warming up to a campfire while gazing at the stars. There are many parks that offer special facilities so visitors of all abilities can enjoy the great outdoors. To find out more about accessible trails, nature centers, fishing piers and lodges at Ohio State Parks, please visit parks.ohiodnr.gov/accessiblefacilities. n

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MS CONNECTION: FALL 201414

DATES TO REMEMBERWHAT’S HOT IN MS?This program, held in collaboration with the Cleveland Clinic’s Mellen Center, will provide updates on MS research. Participants will also learn about cognitive impairment, caregiving and new treatment options. Cost is $5 per person with a limited number of fee waivers available. Registration deadline is October 14.Date: Saturday, November 1, 2014Time: 8:30 a.m. – 1:00 p.m.Location: Hilton Garden Hotel, 700 Beta Dr., Mayfield, OH 44143

MS UPDATEThis program is being held in collaboration with The Ohio State University MS Center. Topics to be covered include interdisciplinary care in MS, new and emerging treatments, stem cell research and a panel discussion on best practices. Cost is $5 per person. A continental breakfast will be provided. Registration deadline is October 31. Date: Saturday, November 8, 2014Time: 9:00 a.m. - 12:30 p.m.Location: Fawcett Center, 2400 Olentangy River Rd., Columbus, OH 43210

NEW THERAPIES FOR MS - MEDICATIONS & STEM CELLSDr. Jeffery Cohen from the Cleveland Clinic’s Mellen Center will discuss new therapies for MS and his stem cell research findings. This will also be the Ohio Buckeye Chapter’s Annual Meeting where we will honor some of our longtime volunteers. Dinner will be provided. Registration deadline is November 4.

Date: Tuesday, November 11, 2014Time: 6:00 p.m. - 8:30 p.m.Location: Holiday Inn French Quarter, 10630 Fremont Pike, Perrysburg, OH 43551

TIPS FOR PEOPLE WITH MS AND THEIR CARE PARTNERS: PLANNING FOR THE FUTUREPresented by Dick Bell of Financial Education Partners Foundation and Bradley Frigon of the National Academy of Elder Law Attorneys, this session will provide helpful information including legal and financial considerations. Visit nationalMSsociety.org/telelearn or call 1-800-344-4867 to reserve your spot.Date: Tuesday, November 18, 2014Time: 5:00 p.m.Date: Thursday, November 20, 2014Time: 10:00 p.m.Location: Telephone from Home Program

PROGRAM REGISTRATION IS EASY1. Register online at MSohiobuckeye.org 2. Register by calling 1-800-344-4867Unless noted, all programs are offered free of charge but donations are accepted.

Support Local Programs and Services

Did you know that you can help provide for local programs and services through Community Health Charities and the United Way Campaign? You can designate the Ohio Buckeye Chapter of the National MS Society as the charity of your choice when you make a donation. For more information, please contact Janet Kramer at [email protected] or 216-503-4168.


LEND A HELPING HAND THIS HOLIDAY SEASON Have you made it on the “nice list” yet? The good news is that you still have time! Every year the National MS Society is able to distribute small holiday bags to individuals who have MS. We need your help this year as we branch out to brighten the holidays for 64 counties across Ohio. We need volunteers and donations.

We would appreciate the donation of the following items:

• Socks and slippers• Blankets and quilts• Shower gels and body washes

NICOLE SANDRELLA PREPARES TO MAKE HOLIDAY BAG DELIVERIES.

• Shampoos and conditioners• Water bottles with long straws• Picture frames and albums• Tissues• Magazines, books or puzzle books (large font)• Notecards• Small decorations like door hangers or

window catchers

If you would like to donate any of these items to Candy’s Compassionate Companions Program, please send or drop off your items at the following locations:

National MS SocietyAttn: April Wolfe6155 Rockside Rd., Bldg. 1, Suite 202Independence, OH 44131

National MS Society Attn: Myra Gray651G Lakeview Plaza Blvd.Worthington, OH 43085

National MS SocietyAttn: Maureen Mohney401 Tomahawk Dr. Maumee, OH 43537

The deadline for donations to be received is Friday, November 7, 2014. If you would like to volunteer to help deliver the gift bags or if you have questions about the donation items, please email April Wolfe at [email protected] or call 216-503-4169 or 1-800-344-4867. n


13th Annual Toledo Dinner of Champions presented by Key Bank

Honoree: James A. HoffmanPresident, Key BankTuesday, September 23, 20146:00 p.m., The Premier Banquet Complex

Individual reservations are $125 and table sponsorships begin at $1,500. For more information, please contact Natalie Phillips at [email protected] or 419-482-1593.

Gold Sponsor

19th Annual Cleveland Dinner of ChampionsHonoree:Michael F. HiltonPresident & CEO, Nordson CorporationTuesday, November 18, 20146:00 p.m., Cleveland Marriott Downtown at Key Center

Individual reservations are $150 and table sponsorships begin at $2,500. For more information, please contact Michelle Wohlfeiler at [email protected] or 216-503-4184. n

Gold Sponsor

The Akron Dinner of Champions raised more than $34,000 for Camp Connect in 2015. Total proceeds reached $120,000 to support programs, services and MS research.

Platinum Sponsor

Gold Sponsors

DINNER OF CHAMPIONSThe Ohio Buckeye Chapter welcomed over 200 guests for the 7th Annual Akron Dinner of Champions on May 20, 2014 at Quaker Station at The University of Akron. Guests enjoyed cocktails, delicious cuisine and a unique silent auction. The Norman Cohn Hope Award was presented to Tim Ochsenhirt, former chairman, Roetzel & Andress, for his commitment to volunteer leadership, philanthropy, community involvement and service.

This event focused on Camp Connect. Camp Connect is an overnight weekend kid’s camp for children living with MS or living with a parent with MS. Throughout the weekend kids participate in numerous activities including archery, canoeing and ropes course as well as engage in educational sessions about MS and meet other kids living in a similar situation.

(LEFT-RIGHT) RUSS PRY, TIM OCHSENHIRT AND TONY ALEXANDER

James A. Hoffman, President, Key Bank and Michael F. Hilton, President & CEO, Nordson Corporation will receive the Norman Cohn Hope Award, the most prestigious National MS Society award. They are being recognized for outstanding commitment to philanthropy and volunteer leadership in their communities.


APRIL WOLFE (CENTER) ACCEPTED THE DONATION FROM THE BIKE THE US FOR MS RIDERS.

BIKE THE US FOR MS Bike the US for MS organizes cross country bike trips to raise awareness and funds for multiple sclerosis, particularly the need for MS-related research. They also perform volunteer projects along their route. One of the groups traveled through Ohio in June and they stopped in Cleveland. While they were in town they provided lunch for residents at the Aristocrat Berea and Westpark long-term care facilities.

“They took the time to sit with our residents and talk to them and get to know them,” said Jamie White from the Aristocrat Berea Skilled Nursing and Rehabilitation Center. “It was amazing. I was so grateful to be able to watch the interactions and see the glowing faces of our residents.”

At another stop in Bowling Green, riders got the chance to meet with several members from the Findlay Self-Help Group who gathered to cheer them on as they traveled from Bar Harbor, Maine to Seattle, Washington. According to the

self-help group facilitator, Dana Roca, the riders were able to put a face, a smile and a personality to the blanket name of MS, giving the riders a better understanding of the disease.

In addition, the group donated $10,000 to the Ohio Buckeye Chapter. The majority of the funds will be used to cover the cost of building a ramp for a person living with MS. Proceeds from all the Bike the US for MS rides in 2014 will support research and fund home modification projects across the United States. n

ADVERTISE IN THE MS CONNECTION• Published four times a year reaching

more than 14,000 people with MS living in 64 Ohio counties, including the Akron, Cleveland, Columbus, Toledo and Youngstown metropolitan areas

• Received by people with MS, family members, event participants, donors, sponsors, health professionals, volunteers and others who support the MS cause

• Distribution months: March, June, September, December

• Next deadline: October 15, 2014 Ad Type 1x 4x* Full page $1,000 $3,000 Half page $500 $1,500 Quarter page $250 $750*Discount of one free issue when entire series is purchased

CONTACT:Guyla Wehman

216-503-4167or [email protected]

MS CONNECTION: FALL 201418

MS OHIO ONLINE GROUPEvery Tuesday 11:00 a.m. and every Wednesday 7:00 p.m.Ohio chat room can be accessed through MSWorld. You will need to become a member of MSWorld in order to chat. Membership is free. Visit msworld.org.For Ohio Loop/Support Group E-mail Information: [email protected] COUNTYLima MS Support GroupCall for more information 1-800-344-4867

AUGLAIZE COUNTYWapakoneta Group3rd Thursday 6:30 p.m. VFW 25A South DixieBetty 419-738-8440

CARROLL COUNTYCarroll Group2nd Wednesday 6:30 p.m.Call for more informationLois 330-484-5382CUYAHOGA COUNTYBrunch Bunch2nd Monday 10:30 a.m.Denny’sEric 440-826-3742

Eastside But You Look So Good Group1st Monday 6:30 p.m.Shaker Heights Library Teresa 216-408-7855

Eastside Newly DX/Minimally Affected3rd Wednesday 7:00 p.m.Good Shepherd ChurchCharlene 440-349-3936

Northwest Satellites2nd Wednesday 7:30 p.m.North Olmsted Senior CenterMarge 440-777-4156

Parma Posse of PossibilitiesLast Friday 12:00 p.m.Ridgewood YMCAPam 440-888-1469

Strongsville Group3rd Thursday 7:00 p.m.Strongsville Senior CenterDebbie [email protected]

ERIE COUNTYSandusky GroupCall for more information 1-800-344-4867

FAIRFIELD COUNTYLancaster Movers & Shakers2nd Tuesday 7:00 p.m.

Fairfield Center for disAbilities and Cerebral PalsyEd 740-653-5501Maria 740-243-4368

FRANKLIN COUNTYClintonville Group3rd Friday 6:30 p.m.Whetstone Community Center Tasia 614-268-9124Aaron 614-352-3463

Columbus Eastside Group2nd Tuesday 12:00 p.m.MCL Cafeteria Rachel 614-860-1968Regina 614-863-1911

HANCOCK COUNTYFindlay Group2nd Monday 6:30 p.m. First United Church of ChristDana 419-318-4102

LAKE COUNTYMentor’s Best2nd Thursday 11:30 a.m.Java Express3rd Wednesday 7:00 p.m.Denny’sKathy 440-479-8179

LORAIN COUNTYMS Support Group of Hope1st Monday 6:00 p.m.Elyria Memorial Hospital Teresa [email protected] Monday 6:00 p.m.Lorain Gathering Hope House Adrian 440-233-4332

SELF-HELP GROUPSFor exact times, locations, programs and other details, please call the National MS Society at 1-800-344-4867 or contact the person listed. You are encouraged to attend the group of your choice regardless of its location.

MSOHIOBUCKEYE.ORG | 1-800-344-4867

Last Wednesday 6:30 p.m.Wellington Elms/Sprenger Assisted Living Wanda 440-935-7048

LUCAS COUNTYGreater Toledo Group2nd Tuesday 6:30 p.m. Maumee Senior Center Davonna 419-705-0819

Toledo Lunch Bunch2nd Thursday 11:30 a.m. Bob EvansSherrie 419-382-8821

SW Toledo GroupLast Tuesday 6:30 p.m. Heatherdowns Rehab Peggy 419-382-5050

MAHONING COUNTYMS Musketeers2nd Thursday 12:30 p.m.Jewish Community CenterDawn 330-782-1845Mike [email protected]

MARION COUNTYMarion Group1st Thursday 6:30 p.m. Emmanuel Lutheran ChurchAnita 740-751-9704

MERCER COUNTYCelina Group1st Monday 7:00 p.m. Richardson Bretz Memorial CenterSue 419-586-9417

19OTTAWA COUNTYPort Clinton MS in Motion Group1st Tuesday 6:30 p.m.Magruder Hospital Conference Center Karen 419-607-6021 Lori 419-707-9307

RICHLAND COUNTYMS Motivated Supporters and Awareness Group4th Thursday 6:30 p.m.Care Companions of OhioTerri 419-908-5857Dana 419-747-6195

STARK COUNTYBut You Look So GoodCall for more information1-800-344-4867

Massillon Group2nd Monday 10:00 a.m.Jackson Township Buehler’sKim [email protected]

SUMMIT COUNTYMighty Oaks Group1st Saturday 11:00 a.m.Green YMCA & Oak ClinicMicheala 330-861-5252

WAYNE/HOLMES COUNTIES Wooster Group2nd Monday 7:00 p.m.Wooster Community HospitalPixie 330-345-7374

WOOD COUNTYToledo/Oregon My Strength Group1st Wednesday 7:00 p.m. Northwood Community Center Mary 419-467-7000

TRIBUTES AND MEMORIALS If you want to honor someone with MS or have lost a loved one, please consider naming the Ohio Buckeye Chapter of the National MS Society as the charity of your choice for donations. All contributions help to support local programs and services and fund MS-related research efforts. All tribute and memorial gifts are appreciated. n

NON-PROFITORGANIZATION

U.S. POSTAGEPAID

Cleveland, OhioPermit #3860

Ohio Buckeye Chapter6155 Rockside Rd., Suite 202Independence, OH 44131-2217

Address Service Requested

VOLUNTEERSSPOTLIGHT ON LORI PIERCE AND KAREN OHM Self-help groups are a vital aspect of keeping connections within communities and the chapter. Our volunteer self-help group facilitators are the eyes and ears within their community and help to bring these connections full circle.

Lori Pierce and Karen Ohm are the self-help group facilitators for the Port Clinton MS in Motion Group that meets the first Tuesday of every month at the Magruder Hospital Conference Center. This dynamic duo work to make sure their members are welcomed, supported and connected with the chapter. They ensure that the MS in Motion Self-Help

NationalMultiple SclerosisSocietyOhio BuckeyeChapter

Group offers a strong support system for people living with MS and their significant others. Lori and Karen lead the group by providing a fun, open and educational atmosphere. Thank you to Lori and Karen for their continued support! n

LORI PIERCE (LEFT) AND KAREN OHM

CAMP CONNECT - National Multiple Sclerosis Society...Ohio Buckeye Chapter 1-800-344-4867 NOW: AN MS...

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