Cambridge Quarterly of Healthcare Ethics

The International Journal for Healthcare and Ethics Committees

Volume 25, 2016 Author Index and Contents

Cambridge University Press

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EDITORSThomasine Kushner, PhD, University of California, BerkeleySteve Heilig, MPH, San Francisco Medical Society

ASSOCIATE EDITORSMatti Häyry, School of Law, University of Manchester, EnglandTuija Takala, University of Helsinki, Finland

David C. Thomasma, PhD, Co-Editor, 1992–2002

Neuroethics Network/Cambridge Consortium for Bioethics Education/International Bioethics Retreathttp://www.icmbioethics.com/cambridge-home.html

EDITORIAL BOARDAkira Akabayashi, Kyoto University, JapanWilliam Andereck, Medicine and Human Values, California Pacific Medical Center, San FranciscoDaniel Callahan, The Hastings Center, Garrison, New YorkArthur Caplan, Division of Medical Ethics, NYU Langone Medical Center, New YorkAndrew Dobson, Keele University, EnglandDenise Dudzinki, Department of Bioethics and Humanities, University of Washington School of MedicineJoseph J. Fins, Division of Medical Ethics, Weill Medical College of Cornell University, New YorkLeonard M. Fleck, Center for Ethics and Humanities, Michigan State UniversityPaul J. Ford, Department of Bioethics, Cleveland ClinicJames Giordano, Georgetown University Medical CenterAmnon Goldworth, Stanford University School of MedicineJohn Harris, University of Manchester, EnglandGerrit K. Kimsma, Vrije Universiteit AmsterdamEric M. Meslin, Indiana University Center for Bioethics, IndianapolisChristine Mitchell, Center for Bioethics, Harvard Medical SchoolJonathan D. Moreno, Center for Bioethics, University of Pennsylvania School of Medicine, PhiladelphiaRosamond Rhodes, Mount Sinai School of Medicine, New YorkPablo Rodriguez del Pozo, Weill Medical College of Cornell University in QatarDoris Schroeder, Centre for Professional Ethics, University of Central Lancashire, EnglandRobyn Shapiro, Center for the Study of Bioethics, Medical College of WisconsinPavel Tichtchenko, Institute of Philosophy, Academy of Science, Moscow, RussiaGriffin Trotter, Center for Health Care Ethics, Saint Louis UniversityMark R. Wicclair, University of Pittsburgh & West Virginia University

Bioethics and LiteratureAntonio Casada Rocha, University of the Basque Country, Spain

Bioethics (Re)ConsideredRaymond DeVries, University of MichiganJill Fisher, University of North Carolina

Bioethics and Information TechnologyKenneth W. Goodman, University of Miami

By InvitationJohn Harris, University of Manchester, England

The Great DebatesD. Michah Hester, University of ArkansasAlissa H. Swota, University of North Florida

CQ ReviewGreg Loeben, A.T. Still University-School of Health Management

SECTION EDITORS

Ethics Committees and Consultants at WorkRuchika Mishra, California Pacific Medical Center, San Francisco

The Caduceus in CourtJennifer Chandler, University of Ottawa, CanadaBen A. Rich, University of California, Davis

Health and Human RightsDoris Schroeder, University of Central Lancashire, England

Dissecting PoliticsMatti Häyry, Aalto University, Helsinki, FinlandTuija Takala, University of Helsinki, Finland

ProfessionalismDavid Barnard, Oregon Health and Science UniversityMark R. Wicclair, University of Pittsburgh and West Virginia University

Pediatric EthicsKellie R. Lang, Medical College of WisconsinDouglas J. Opel, Seattle Children’s Hospital

The Cambridge Bioethics Education Working Groups: Connecting Bioethics Educators Around the World

The purpose of the Cambridge Bioethics Education Working Groups is to encourage people and institutions to work together on developing bioethics education in their countries. These focus groups invite others to share their information and develop mutual projects to further how bioethics is taught in universities, hospitals, and for the general public.journals.cambridge.org/bioethics

EDITORThomasine KushnerUniversity of California, Berkeleykushnertk@gmail.com

ASSOCIATE EDITORJames GiordanoGeorgetown University Medical Center

EDITORIAL BOARDYves AgidInstitut du Cerveau et de la Moelle Épinière, FranceJennifer ChandlerUniversity of Ottawa, CanadaMarkus ChristenUniversity of Zurich, SwitzerlandJoseph J. FinsWeill Medical College of Cornell University, New York

Paul J. FordDepartment of Bioethics, Cleveland Clinic

Grant GillettUniversity of Otago Medical School, New ZealandJohn HarrisUniversity of Manchester, EnglandJudy IllesThe University of British Columbia, CanadaPhilipp KellmeyerUniversity of Freiburg Medical Center, GermanyCatherine MadisonCalifornia Medical Center, San FranciscoChristine MitchellHarvard Medical SchoolErik ParensThe Hastings Center, Garrison, New YorkJohn R. ShookUniversity at BuffaloAlan YeeCalifornia Pacific Medical Center

Clinical Neuroethics ADVISORY BOARD

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III

Agid, Yves, 750Ahola-Launonen, Johanna, 176, 448Akabayashi, Akira, 466Andereck, William S., 111Árnason, Vilhjálmur, 209, 421

Ball, Tonio, 623Barnard, David, 288Baum, Matthew L., 686Bayefsky, Michelle J., 350Beasley, Kara D., 751Berkman, Benjamin E., 350Biller-Andorno, Nikola, 623Bramhall, Simon, 435Brindley, Timothy, 712Browne, Alister, 377Browne, Katharine, 472 Buijsen, Martin, 395Byram, Adrian C., 613Bowyer, Lynne, 63

Cairncross, Molly, 691Chambers, Tod, 150Cochrane, Thomas, 623Coggon, John, 733Cunha, Thiago, 197Cunningham, Thomas V., 141

Danis, Marion, 93Dalton-Brown, Sally, 414, 518DeGrazia, David, 93de Hoyos, Adalberto, 186DeMarco, Joseph P., 674Devolder, Katrien, 384De Vries, Jantina, 726Di Pietro, Nina, 726DeSante, Jennifer, 93Draper, Heather, 435

Dudzinski, Denise M., 540Dupree, Claretta Y., 540

Earp, Brian D., 759Eisenberg, Leah R., 141

Fins, Joseph J., 108, 272, 583, 623Fleck, Leonard M., 366Ford, Paul, 753Foreman, Thomas, 330

Garrafa, Volnei, 197Gibb, Tyler S., 556Gillett, Grant, 19, 22, 634Giordano, James, 121, 570, 712, 755Glannon, Walter, 600Gofton, Teneille, 691Green, Rochelle, 141

Harris, John, 6, 250, 574Hauskeller, Michael, 153Häyry, Matti, 171, 262, 505Heilig, Steve, 343Hester, D. Micah, 141Hjörleifsson, Stefán, 209Holm, Søren, 228Horn, Ruth, 404

Illes, Judy, 613, 726Irshad, Ayesha, 497

Johnson, Reuben, 38

Kadioglu, Funda Gulay, 493Kaplan, Bonnie, 312Kellmeyer, Philipp, 623, 738Kelly, Terrence, 526Kerasidou, Angeliki, 404

Cambridge Quarterly of Healthcare Ethics

2016 Author Index

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IV

Kerruish, Nikki, 70Kon, Alexander A., 540Kushner, Thomasine, 570

Labrecque, Cory A., 301Lang, Kellie R., 540Lawrence, David R., 250Lazosky, Andrea, 691Lee, Grace, 613Lesandrini, Jason, 554LiPuma, Samuel H., 674

Magill, Gerard, 741Merrick, Allison, 141Mishra, Ruchika, 330, 553Mitchell, Christine, 623Moen, Ole Martin, 282, 515Moorlock, Greg, 435Muaygil, Ruaim, 336, 479Muders, Sebastian, 239Mukherjee, Debjani, 560Müller, Oliver, 623

Nakazawa, Eisuke, 466Neuberger, James, 435Neuhaus, Carolyn Plunkett, 659Nyholm, Sven, 647

Overby, Kim J., 272O’Connell, Carol, 554O’Neill, Elizabeth, 647Owen, Adrian M., 613

Palacios-González, César, 250Paolozza, Angelina, 726

Paris, John J., 166Peterson, Andrew, 691

Redinger, Michael J., 556Reid, Dorothy, 726Reynolds, James N., 726Ribary, Urs, 613Russell, J. S., 377

Salmon, Amy, 726Sandberg, Anders, 759Savulescu, Julian, 759Schonfeld, Toby, 301Schroeder, Doris, 219Shashidhara, Shilpa, 333Shats, Katherine, 712Sheldon, Curtis, 113Shannon, Mary T., 744Shook, John R., 121Snelling, Jeanne, 50Stein, Dan J., 726Stoddard, Hugh A., 301Stoessl, A. Jon, 613Stramondo, Joseph A., 536

Takala, Tuija, 171Takimoto, Yoshiyuki, 466Townson, Andrea, 613

Weijer, Charles, 691Weir, Philip, 38Werner-Felmayer, Gabriele, 497Wilkinson, Dominic, 84Wilson, Marsha, 726Wright, Karen, 219

Zullo, Silvia, 700

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V

Cambridge Quarterly of Healthcare Ethics

Volume 25, Number 1, January 2016

CONTENTS

Contributors 1

From the Editors: Silver Anniversary 4

Breaking Bioethics

Germline Modification and the Burden of Human Existence John Harris 6

Special Section: The Best Interests of a Child: Problematic Neuroethical Decisions

Guest Editorial: An Enduring and Difficult Issue from a Multidimensional Perspective

Grant Gillett 19

Ashley, Two Born as One, and the Best Interests of a ChildGrant Gillett 22

Separation of Craniopagus Twins: A Clinical, Legal, and Ethical Conundrum

Reuben Johnson and Philip Weir 38

Minors and Contested Medical-Surgical Treatment: Where Are We with Best Interests?

Jeanne Snelling 50

The Ethical Grounds for the Best Interest of the Child Lynne Bowyer 63

Growth Attenuation Therapy: Views of Parents of Children with Profound Cognitive Impairment

Nikki Kerruish 70

Ethical Dilemmas in Postnatal Treatment of Severe Congenital Hydrocephalus

Dominic Wilkinson 84

Parents of Adults with Diminished Self-Governance: Unique Responsibilities

Jennifer DeSante, David DeGrazia, and Marion Danis 93

Departments and Columns

PerspectivesIn Remembrance, with Thanks to VoltaireJoseph J. Fins 108

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VI

End-of-Life Options in California: A Work in ProgressWilliam S. Andereck 111

Pathographies: Voices of IllnessThriving in Adversity: Psychotherapeutic Experiences in a Bone

Marrow Transplant UnitCurtis Sheldon 113

Neuroethics NowNeuroethics beyond Normal: Performance Enablement and

Self-Transformative Technologies John R. Shook and James Giordano 121

Bioethics EducationIntroducing the Medical Ethics Bowl Allison Merrick, Rochelle Green, Thomas V. Cunningham,

Leah R. Eisenberg, and D. Micah Hester 141

CQ Review Greg S. Loeben, section editor The Anticipatory Corpse: Medicine, Power, and the Care of

the Dying, by Jeffrey P. BishopReviewed by Tod Chambers 150

Responses and DialogueThe Art of Misunderstanding Critics: The Case of

Ingmar Persson and Julian Savulescu’s Defense of Moral Bioenhancement

Michael Hauskeller 153

A response to “The Art of Misunderstanding Moral Bioenhancement: Two Cases” by Ingmar Persson and Julian Savulescu (CQ 24(1))

Best Practices Guidelines for Publishing in the Bioethics Literature

Volume 25, Number 2, April 2016

CONTENTS

Contributors 163

The Road Less Traveled

Murder, Sex, Neonates, and Other Forays into BioethicsJohn J. Paris 166

Special Section: Responsibility, Vulnerability, Dignity, and Humanity

Guest Editorial: How to Be Human? Some Answers and New Questions

Matti Häyry and Tuija Takala 171

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VII

Humanity and Social Responsibility, Solidarity, and Social Rights

Johanna Ahola-Launonen 176

Issues on Luck Egalitarianism, Responsibility, and Intercultural Healthcare Policies

Adalberto de Hoyos 186

Vulnerability: A Key Principle for Global Bioethics?Thiago Cunha and Volnei Garrafa 197

The Person in a State of Sickness: The Doctor-Patient Relationship Reconsidered

Vilhjálmur Árnason and Stefán Hjörleifsson 209

Turning the Tables: The Vulnerability of Nurses Treating Anorexia Nervosa Patients

Karen Wright and Doris Schroeder 219

Undignified Arguments: A CritiqueSøren Holm 228

Natural Good Theories and the Value of Human DignitySebastian Muders 239

Artificial Intelligence: The Shylock SyndromeDavid R. Lawrence, César Palacios-González,

and John Harris 250

Discoursive Humanity as a Transcendental Basis for Cognitive (Dis)Ability Ethics and Policies

Matti Häyry 262

Departments and Columns

Neuroethics NowOrgan Transplantation for Individuals with

Neurodevelopmental Disorders: Sandra Jensen’s LegacyKim J. Overby and Joseph J. Fins 272

PerspectivesBright New WorldOle Martin Moen 282

ProfessionalismVulnerability and Trustworthiness: Polestars of

Professionalism in HealthcareDavid Barnard 288

Bioethics EducationUsing a Scoring Rubric to Assess the Writing of

Bioethics StudentsHugh A. Stoddard, Cory A. Labrecque,

and Toby Schonfeld 301

Bioethics and Information TechnologyHow Should Health Data Be Used? Privacy, Secondary

Use, and Big Data SalesBonnie Kaplan 312

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VIII

Ethics Committees and Consultants at WorkThe Case: A Clash between Culture and CareRuchika Mishra 330

Commentary: The Reluctant SurrogateThomas Foreman 330

Commentary: Looking beyond Treatment RefusalShilpa Shashidhara 333

Commentary: Cultural Issues in DecisionmakingRuaim Muaygil 336

What Actually Happened 338

Best Practices Guidelines for Publishing in the Bioethics Literature

Volume 25, Number 3, July 2016

CONTENTS

Contributors 339

From the Editors: Last Rights: Hippocratic Hypocrisy Meets Reality—a Personal Reflection

Steve Heilig 343

Breaking Bioethics

The Ethics of Allocating Uterine TransplantsMichelle J. Bayefsky and Benjamin E. Berkman 350

Choosing Wisely: Is Parsimonious Care Just Rationing?Leonard M. Fleck 366

Special Section: Bioethics Beyond Borders

Physician-Assisted Death in CanadaAlister Browne and J. S. Russell 377

Euthanasia for Detainees in Belgium: The Case of Frank Van Den Bleeken

Katrien Devolder 384

Communicating Concerns: Reviewing the Review Procedure in Dutch Euthanasia Law

Martin Buijsen 395

The Concept of Dignity and Its Use in End-of-Life Debates in England and France

Ruth Horn and Angeliki Kerasidou 404

Healthcare in Australia: Gene Patenting and the Dr. Death Issue

Sally Dalton-Brown 414

Bioethics in Iceland: Recent DevelopmentsVilhjálmur Árnason 421

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IX

An Empirically Informed Analysis of the Ethical Issues Surrounding Split Liver Transplantation in the United Kingdom

Greg Moorlock, James Neuberger, Simon Bramhall, and Heather Draper 435

Social Responsibility and Healthcare in Finland: The Luck Egalitarian Challenge to Scandinavian Welfare Ideals

Johanna Ahola-Launonen 448

The Social Framework Surrounding the Development of Regenerative Medicine in Japan

Eisuke Nakazawa, Yoshiyuki Takimoto, and Akira Akabayashi 466

The Measles and Free Riders: California’s Mandatory Vaccination Law

Katharine Browne 472

The Role of Physicians in State-Sponsored Corporal Punishment: A View from Saudi Arabia

Ruaim Muaygil 479

An Ethical Analysis of Performance-Based Supplementary Payment in Turkey’s Healthcare System

Funda Gulay Kadioglu 493

An Ethical Analysis of Assisted Reproduction Providers’ Websites in Pakistan

Ayesha Irshad and Gabriele Werner-Felmayer 497

Departments and Columns

Responses and DialogueIncreasing the Sum Total of General Intelligence,

As Measured by Individual IQ Scores: What, How, and Why?

Matti Häyry 505

A Response to “Bright New World” by Ole Martin Moen (CQ 25(2))

Smarter BabiesOle Martin Moen 515

A response to “Increasing the Sum Total of General Intelligence, As Measured by Individual IQ Scores: What, How, and Why?” by Matti Häyry (CQ 25(3))

Neuroethics NowPublic Engagement and Nanotechnology in AustraliaSally Dalton-Brown 518

ProfessionalismConflicts about Conflict of Interest: A Comparison of

Performance-Based and Trustworthiness Models in the Context of Detailing and Gifts to Physicians

Terrence Kelly 526

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X

CQ ReviewShaping Our Selves: On Technology, Flourishing, and a Habit

of Thinking, by Erik ParensReviewed by Joseph A. Stramondo 536

Pediatric EthicsCalling Out Implicit Racial Bias as a Harm in Pediatric CareKellie R. Lang, Claretta Y. Dupree, Alexander A. Kon,

and Denise M. Dudzinski 540

Ethics Committees and Consultants at WorkThe Case: Caregiving in Long-Term FacilitiesRuchika Mishra 553

Commentary: The Broader Context of Long-Term Care EthicsJason Lesandrini and Carol O’Connell 554

Commentary: Clarifying Medical Decisionmaking—Who, How, and Why?

Tyler S. Gibb and Michael J. Redinger 556

Commentary: Surrogate Decisionmaking and CommunicationDebjani Mukherjee 560

What Actually Happened 564

Best Practices Guidelines for Publishing in the Bioethics Literature

Volume 25, Number 4, October 2016

CONTENTS

Contributors 565

From the Editors: Clinical Neuroethics: From Bench to Bedside . . . and Beyond

Thomasine Kushner and James Giordano 570

The Road Less Traveled

The Accidental ProfessorJohn Harris 574

Articles

Giving Voice to Consciousness: Neuroethics, Human Rights, and the Indispensability of Neuroscience

Joseph J. Fins 583

The Value and Disvalue of Consciousness Walter Glannon 600

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XI

Ethical and Clinical Considerations at the Intersection of Functional Neuroimaging and Disorders of Consciousness: The Experts Weigh In

Adrian C. Byram, Grace Lee, Adrian M. Owen, Urs Ribary, A. Jon Stoessl, Andrea Townson, and Judy Illes 613

The Effects of Closed-Loop Medical Devices on the Autonomy and Accountability of Persons and Systems

Philipp Kellmeyer, Thomas Cochrane, Oliver Müller, Christine Mitchell, Tonio Ball, Joseph J. Fins, and Nikola Biller-Andorno 623

Culture, the Crack’d Mirror, and the Neuroethics of DiseaseGrant Gillett 634

Deep Brain Stimulation, Continuity over Time, and the True Self

Sven Nyholm and Elizabeth O’Neill 647

Teens and Research: Should We Enroll Adolescents in Trials of Deep Brain Stimulation for Anorexia Nervosa?

Carolyn Plunkett Neuhaus 659

Dementia, Advance Directives, and Discontinuity of Personality

Joseph P. DeMarco and Samuel H. LiPuma 674

Patient Requests for Off-Label Bioprediction of DementiaMatthew L. Baum 686

Assessing Decision-Making Capacity in Patients with Communication Impairments: A Case Study

Molly Cairncross, Andrew Peterson, Andrea Lazosky, Teneille Gofton, and Charles Weijer 691

Naturalizing Responsibility: The Role of Neuroscience in Addressing the Question of Moral Responsibility in Law and Clinical Practice

Silvia Zullo 700

Don’t Ask a Neuroscientist about Phases of the Moon: Applying Appropriate Evidence Law to the Use of Neuroscience in the Courtroom

Katherine Shats, Timothy Brindley, and James Giordano 712

Ethical Challenges in Contemporary FASD Research and Practice: A Global Health Perspective

Nina Di Pietro, Jantina De Vries, Angelina Paolozza, Dorothy Reid, James N. Reynolds, Amy Salmon, Marsha Wilson, Dan J. Stein, and Judy Illes 726

Departments and Columns

CN ReviewHow to Be Good: The Possibility of Moral Enhancement,

by John HarrisReviewed by John Coggon 733

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Rights Come to Mind: Brain Injury, Ethics, and the Struggle for Consciousness, by Joseph J. Fins

Reviewed by Philipp Kellmeyer 738

Biological Determinism, Free Will and Moral Responsibility: Insights from Genetics and Neuroscience, by Chris Willmott

Reviewed by Gerard Magill 741

Pathographies: Voices of IllnessThe Upside of Madness Mary T. Shannon 744

What Do I Do Now?The Case: “It’s Like It’s Not Her Anymore” 749

Commentary: Dealing with the AftermathYves Agid 750

Commentary: Old Self vs. New SelfKara D. Beasley 751

Commentary: Unexpected Benefits that Challenge the Orthodoxy of DBS Outcomes

Paul Ford 753

Commentary: The Value of Patient Benefit: Consideration of Framing Contingencies to Guide the Ethical Use of DBS—a Case Analysis

James Giordano 755

Responses and DialogueThe Medicalization of Love: Response to CriticsBrian D. Earp, Anders Sandberg, and Julian Savulescu 759

Best Practices Guidelines for Publishing in the Bioethics Literature

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Cambridge Quarterly of Healthcare Ethics

GUIDELINES FOR CONTRIBUTORS

SCOPE OF THE JOURNAL. Cambridge Quarterly of Healthcare Ethics is designed to serve as an international forum for addressing the increasingly complex challenges of biology, medi-cine, and healthcare. As a journal committed to expanding the community of bioethicists worldwide, CQ welcomes well-argued papers from a variety of methodological and nor-mative viewpoints.

PREPARATION OF MANUSCRIPTS. Papers submitted to CQ should be sent as electronic copy, preferably in MS Word, and should contain in the following order: title page, text, ref-erences. Manuscripts typically should not exceed 3,500 words, including endnotes. On a separate page, supply a brief entry listing academic degrees, institutional affiliation, and current projects for a “Contributors” section that appears in each issue of CQ. More detailed guidelines follow.

Title Page: Title of the article, name of each author with institutional affiliation and com-plete mailing address for correspondence, plus phone and fax numbers and e-mail address. Include a short title of 45 characters or fewer to be used as a runninghead. Acknowledgments, if any, are to be provided with the submission as an unnumbered footnote. They are not to be added later with proof corrections.

References: Responsibility for accuracy and thoroughness of citations rests with the author(s). References are to be placed as endnotes following the article (not as footnotes on each page) and are to be numbered in the order of the callouts. For multiple callouts of the same reference, each callout is to be given its own superscript arabic number; then in the Notes section a crossreference should be used, styled as in item 4 below. The names of the first six authors of each reference item should be provided, followed by “, et al.” if there are more than six authors.

References should follow the format of the International Committee of Medical Journal Editors, with the CQ modification that titles of journals and books are to be spelled out in full (except JAMA) and italicized. Sample references in the style of the ICMJE Uniform Requirements for Manuscripts Submitted to Biomedical Journals can be obtained at http://www.nlm.nih.gov/bsd/uniform_requirements.html. Lawyers may use their own standard style (“The Bluebook”) but avoid abbreviations.

Examples of the correct CQ format follow.1. Parker SG, Kassirer JP. Decision analysis. New England Journal of Medicine 1987;316:250–8.

or: . . . 1987;316(2):250–8.2. Beauchamp TL, Walters L, eds. Contemporary Issues in Bioethics, 4th ed. Belmont, CA:

Wadsworth; 1994.3. Weinstein L, Swartz MN. Pathogenic properties of invading microorganisms. In: Sodeman

WA Jr, Sodeman WA, eds. Pathologic Physiology: Mechanisms of Disease. Philadelphia: WB Saunders; 1974:457–72.

4. See note 2, Beauchamp, Walters 1994:431–512.5. Mathewes-Green F. Dignity, always dignity. World Magazine 1995 Feb 18; available at

http://www.theologymatters.com/TMIssues/Mayjun97.pdf (last accessed 15 Jul 2007). “Unpublished observations” and “personal communications” should not appear in the references, but should be inserted in parentheses in the text.

Quotations: Extensive quotations should be set off in a separate paragraph with double indentation. Short quotations remain in the running text, enclosed in double quotation marks. When quoting another author, always indicate the specific source page number in the corresponding endnote.

Abbreviations: Avoid abbreviations in the title. The full term for which an abbreviation stands should precede its first use in the text.

MANUSCRIPT SUBMISSION. Manuscript submissions should be sent to Thomasine Kushner, Ph.D. To facilitate review, manuscripts are to be submitted as electronic copy, preferably in MS Word, and addressed to: kushnertk@gmail.com. Before manuscripts can be considered for review, they must meet the standard requirements of written academic English. Author(s) should state, in a covering letter, that the material has not been previously published elsewhere nor submitted for publication elsewhere. Authors should also disclose financial or other relationships that might lead to a conflict of interest.

COPYRIGHT. Authors of accepted articles will be asked to sign a Transfer of Copyright form, transferring copyright of the article to the publisher.

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Contents continued from back cover

Naturalizing Responsibility: The Role of Neuroscience in Addressing the Question of Moral Responsibility in Law and Clinical Practice

Silvia Zullo 700

Don’t Ask a Neuroscientist about Phases of the Moon: Applying Appropriate Evidence Law to the Use of Neuroscience in the Courtroom

Katherine Shats, Timothy Brindley, and James Giordano 712

Ethical Challenges in Contemporary FASD Research and Practice: A Global Health Perspective

Nina Di Pietro, Jantina De Vries, Angelina Paolozza, Dorothy Reid, James N. Reynolds, Amy Salmon, Marsha Wilson, Dan J. Stein, and Judy Illes 726

Departments and Columns

CN ReviewHow to Be Good: The Possibility of Moral Enhancement,

by John HarrisReviewed by John Coggon 733

Rights Come to Mind: Brain Injury, Ethics, and the Struggle for Consciousness, by Joseph J. Fins

Reviewed by Philipp Kellmeyer 738

Biological Determinism, Free Will and Moral Responsibility: Insights from Genetics and Neuroscience, by Chris Willmott

Reviewed by Gerard Magill 741

Pathographies: Voices of IllnessThe Upside of Madness Mary T. Shannon 744

What Do I Do Now?The Case: “It’s Like It’s Not Her Anymore” 749

Commentary: Dealing with the AftermathYves Agid 750

Commentary: Old Self vs. New SelfKara D. Beasley 751

Commentary: Unexpected Benefits that Challenge the Orthodoxy of DBS Outcomes

Paul Ford 753

Commentary: The Value of Patient Benefit: Consideration of Framing Contingencies to Guide the Ethical Use of DBS—a Case Analysis

James Giordano 755

Responses and DialogueThe Medicalization of Love: Response to CriticsBrian D. Earp, Anders Sandberg, and Julian Savulescu 759

Best Practices Guidelines for Publishing in the Bioethics Literature

EDITORSThomasine Kushner, PhD, University of California, BerkeleySteve Heilig, MPH, San Francisco Medical Society

ASSOCIATE EDITORSMatti Häyry, School of Law, University of Manchester, EnglandTuija Takala, University of Helsinki, Finland

David C. Thomasma, PhD, Co-Editor, 1992–2002

Neuroethics Network/Cambridge Consortium for Bioethics Education/International Bioethics Retreathttp://www.icmbioethics.com/cambridge-home.html

EDITORIAL BOARDAkira Akabayashi, Kyoto University, JapanWilliam Andereck, Medicine and Human Values, California Pacific Medical Center, San FranciscoDaniel Callahan, The Hastings Center, Garrison, New YorkArthur Caplan, Division of Medical Ethics, NYU Langone Medical Center, New YorkAndrew Dobson, Keele University, EnglandDenise Dudzinki, Department of Bioethics and Humanities, University of Washington School of MedicineJoseph J. Fins, Division of Medical Ethics, Weill Medical College of Cornell University, New YorkLeonard M. Fleck, Center for Ethics and Humanities, Michigan State UniversityPaul J. Ford, Department of Bioethics, Cleveland ClinicJames Giordano, Georgetown University Medical CenterAmnon Goldworth, Stanford University School of MedicineJohn Harris, University of Manchester, EnglandGerrit K. Kimsma, Vrije Universiteit AmsterdamEric M. Meslin, Indiana University Center for Bioethics, IndianapolisChristine Mitchell, Center for Bioethics, Harvard Medical SchoolJonathan D. Moreno, Center for Bioethics, University of Pennsylvania School of Medicine, PhiladelphiaRosamond Rhodes, Mount Sinai School of Medicine, New YorkPablo Rodriguez del Pozo, Weill Medical College of Cornell University in QatarDoris Schroeder, Centre for Professional Ethics, University of Central Lancashire, EnglandRobyn Shapiro, Center for the Study of Bioethics, Medical College of WisconsinPavel Tichtchenko, Institute of Philosophy, Academy of Science, Moscow, RussiaGriffin Trotter, Center for Health Care Ethics, Saint Louis UniversityMark R. Wicclair, University of Pittsburgh & West Virginia University

Bioethics and LiteratureAntonio Casada Rocha, University of the Basque Country, Spain

Bioethics (Re)ConsideredRaymond DeVries, University of MichiganJill Fisher, University of North Carolina

Bioethics and Information TechnologyKenneth W. Goodman, University of Miami

By InvitationJohn Harris, University of Manchester, England

The Great DebatesD. Michah Hester, University of ArkansasAlissa H. Swota, University of North Florida

CQ ReviewGreg Loeben, A.T. Still University-School of Health Management

SECTION EDITORS

Ethics Committees and Consultants at WorkRuchika Mishra, California Pacific Medical Center, San Francisco

The Caduceus in CourtJennifer Chandler, University of Ottawa, CanadaBen A. Rich, University of California, Davis

Health and Human RightsDoris Schroeder, University of Central Lancashire, England

Dissecting PoliticsMatti Häyry, Aalto University, Helsinki, FinlandTuija Takala, University of Helsinki, Finland

ProfessionalismDavid Barnard, Oregon Health and Science UniversityMark R. Wicclair, University of Pittsburgh and West Virginia University

Pediatric EthicsKellie R. Lang, Medical College of WisconsinDouglas J. Opel, Seattle Children’s Hospital

The Cambridge Bioethics Education Working Groups: Connecting Bioethics Educators Around the World

The purpose of the Cambridge Bioethics Education Working Groups is to encourage people and institutions to work together on developing bioethics education in their countries. These focus groups invite others to share their information and develop mutual projects to further how bioethics is taught in universities, hospitals, and for the general public.journals.cambridge.org/bioethics

EDITORThomasine KushnerUniversity of California, Berkeleykushnertk@gmail.com

ASSOCIATE EDITORJames GiordanoGeorgetown University Medical Center

EDITORIAL BOARDYves AgidInstitut du Cerveau et de la Moelle Épinière, FranceJennifer ChandlerUniversity of Ottawa, CanadaMarkus ChristenUniversity of Zurich, SwitzerlandJoseph J. FinsWeill Medical College of Cornell University, New York

Paul J. FordDepartment of Bioethics, Cleveland Clinic

Grant GillettUniversity of Otago Medical School, New ZealandJohn HarrisUniversity of Manchester, EnglandJudy IllesThe University of British Columbia, CanadaPhilipp KellmeyerUniversity of Freiburg Medical Center, GermanyCatherine MadisonCalifornia Medical Center, San FranciscoChristine MitchellHarvard Medical SchoolErik ParensThe Hastings Center, Garrison, New YorkJohn R. ShookUniversity at BuffaloAlan YeeCalifornia Pacific Medical Center

Clinical Neuroethics ADVISORY BOARD

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VOLUME 25

NUMBER 4

OCTOBER 2016

Contents continued

CONTENTS

Contributors 565

From the Editors: Clinical Neuroethics: From Bench to Bedside . . . and Beyond

Thomasine Kushner and James Giordano 570

The Road Less Traveled

The Accidental ProfessorJohn Harris 574

Articles

Giving Voice to Consciousness: Neuroethics, Human Rights, and the Indispensability of Neuroscience

Joseph J. Fins 583

The Value and Disvalue of Consciousness Walter Glannon 600

Ethical and Clinical Considerations at the Intersection of Functional Neuroimaging and Disorders of Consciousness: The Experts Weigh In

Adrian C. Byram, Grace Lee, Adrian M. Owen, Urs Ribary, A. Jon Stoessl, Andrea Townson, and Judy Illes 613

The Effects of Closed-Loop Medical Devices on the Autonomy and Accountability of Persons and Systems

Philipp Kellmeyer, Thomas Cochrane, Oliver Müller, Christine Mitchell, Tonio Ball, Joseph J. Fins, and Nikola Biller-Andorno 623

Culture, the Crack’d Mirror, and the Neuroethics of DiseaseGrant Gillett 634

Deep Brain Stimulation, Continuity over Time, and the True SelfSven Nyholm and Elizabeth O’Neill 647

Teens and Research: Should We Enroll Adolescents in Trials of Deep Brain Stimulation for Anorexia Nervosa?

Carolyn Plunkett Neuhaus 659

Dementia, Advance Directives, and Discontinuity of Personality Joseph P. DeMarco and Samuel H. LiPuma 674

Patient Requests for Off-Label Bioprediction of DementiaMatthew L. Baum 686

Assessing Decision-Making Capacity in Patients with Communication Impairments: A Case Study

Molly Cairncross, Andrew Peterson, Andrea Lazosky, Teneille Gofton, and Charles Weijer 691

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VOLUME 25 NUMBER 4 OCTOBER 2016

CQCambridgeQuarterly ofHealthcareEthicsA Quarterly Journal Devoted toEngaging a World Community ofBioethicists

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