BUILDING - University of Pittsburgh | University of ...
Transcript of BUILDING - University of Pittsburgh | University of ...
U n i v e r s i t y o f P i t t s b u r g h
FACETSSchool of health and rehabilitation sciences
BUILDING
Spring/Summer 2009
a better child
CONTENTSS p r i n g /S u m m e r
2 0 0 9
F A C E T S S c h o o l o f h e a l t h a n d r e h a b i l i t a t i o n s c i e n c e s
Publisher Clifford e. Brubaker
Executive Editor patty Kummick
Writing and Design Forge Communications
Photography William exler
University of Pittsburgh
FACETS is published by the Office of the Dean, School of Health and rehabilitation Sciences. it is produced twice a year for alumni, students, staff, faculty, and friends of SHrS.
The university of pittsburgh is an affirmative action, equal opportunity institution.
1 From the Dean CliffBrubaker
2 Giving PattyKummick
3 Access Dr.KateSeelman
4 Student News
6 Faculty News
8 Alumni News
9 Department News Calendar of Events
10 Clinical Instructor Profile SpeechTherapyand ThenSome
12 Alumni Profile LifelongAdvocacy
14 Real World CollinThompson
17 Rehabilitation Science and Technology ANewBrandof CareerBuilder
20 Communication Science and Disorders But,CanJohnnyWrite?
24 Health Information Management HealthCareDeliveryinFar AwayPlaces
26 Sports Medicine and Nutrition HelpingKidsEatRight
28 Physical Therapy WhiteMatterDoesMatter
30 Occupational Therapy AssessingIndividualswith High-FunctioningAutism
33 Dialogue AConversationwith CynthiaMiles(PT‘77)
28
28 20 14
Practice What You Preach Onthecoverofthefall/winter2008issueofFACETS,weusedaphotothatdepictedtwoseniorshavingagreattimeonatandembicycle,butinadvertentlyignoredtheprincipleswepreachlikewearingahelmetandholdingontothehandlebars.Weapologize.
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F A C E T S S P R I N G / S U M M E R 2 0 0 9 �
F r o m t h e D e a n
Dear Alumni and Friends of SHRS,
Thecurrentclimateofeconomicuncertaintyandyet-to-be-determinedimpact(s)oftheAmerican Recovery and Reinvestment Act of 2009 (ARRA)poseanumberofquestionsforhighereducationinstitutions.Whiletherearedivergentopinionsontheeffectivenessofthecurrent,andperhapsfuture,stimulusprovisionsenactedbyCongress,the“stimulus”increaseinthebudgetsofmajorfederalagenciessuchastheNIHandNSFappeartobodewellforresearch-intensiveuniversities–andparticularlythosewithcomprehensiveHealthScienceprograms.Theseadditionalfundshavecreatedaflurryofactivitiesasprospectiveinvestigatorsprepareapplicationstocompeteforsubstantialadditionalresearchawards.AstheUniversityofPittsburgh,includingSHRSandotherSchoolsoftheHealthSciences,can
beexpectedtocompetefavorably,thereisreasonforoptimismforresearchfundingoverthenexttwoyears.Forecastingfurtherintothefuturewouldseemproblematic,asourcontinuedsuccesseswilllikelybelinkedquitecloselytothegeneralstateandextentofrecoveryofthenationalandworldeconomies.
Forthepresent,applicationsforadmissiontoSHRSprogramscontinuetoberobustwithsubstantialincreasesinexcessofapplicationsreceivedlastyearbytheendofFebruary.Ibelievethatthiscanbeattributedatleastpartiallytothenationalandinternationalrecognitionwehavereceivedforthequalityofourprograms.Evenwiththiscontinuedandgrowingdemand,therisingcostsofeducationcannotbeignoredinthefaceofeconomicdifficultiesthatnowaffectnearlyallfamilies.Ourabilitytocontaincostsandprovidefinancialassistancehasbecomeanincreasinglycriticalconcern.
Inlightoftheincreasingfinancialburdenofeducation,IampleasedtoacknowledgethesuccessofourSHRSAlumniEndowedScholarshipFund.ThisscholarshipfundwasestablishedbytheSHRSAlumniSocietyBoardinrecognitionoftheschool’s35thanniversaryin2005.Ourinitialgoalhasbeenmetandinfacthasbeenexceeded.Asaresultofthesuccessinthiseffortwearenowawardingscholarshipsfromthisfund.StudentsfromallSHRSprogramsareeligibletoapplyandcriteriaincludeacombinationofmeritandneed.AsIamsureyouknow,needforsupportcontinuestogrowandweurgedonorstocontinuetocontributetothisfund.
Iwouldalsoliketotakethisopportunitytodirectyourattentiontoaparticularlyrelevantarticleinthisedition.Dr.CynthiaPuranik,whojoinedthefacultyoftheDepartmentofCommunicationScienceandDisorders,hasestablishedaresearchprogramonthemoreneglectedofthedualityofcommunicationdimensionsintheearlystagesofeducationforchildren.Thisinvestigationtoexploredevelopmentofwritingproficiencyprovidesauniqueandappropriateadditiontotheresearchenterpriseforstudyofcommunicationscience.Itrustthatyouwillfinditbothinstructiveandinteresting.
LetmeconcludebyalsonotingtheeffortsoffacultyinourDepartmentofRehabilitationScienceandTechnology(RST)intheiroutreacheffortstoprovideopportunitiesforResearchExperiencesforUndergraduatesonQualityofLifeTechnologies.ThearticleonRSTactivitiesalsoincludestheTech-Linkoutreachprogramthatbringstogetherminoritystudents,studentswithdisabilities,andothermiddleschoolstudentstoprovideeducationalandtrainingexperiencestopromoteinterestinSTEMactivitiesviaa10-weekroboticstrainingprogramthatculminateswiththeannualFIRST Lego Leaguecompetition.
ThankyouforyourcontinuedsupportofSHRSanditsprograms!
“Our ability to contain
costs and provide financial
assistance has become an
increasingly critical concern.”
� F A C E T S S P R I N G / S U M M E R 2 0 0 9
giving
[email protected],PA15260
PattyKummickDirectorofDevelopment
Lastfall,whenstudentswerebusyapplyingforvariousSHRSscholarshipsandawards,
theschoolquietlyrealizedamilestone.The2008-2009schoolyearmarkedthedistributionofthefirstawardsfromtheSHRSAlumniEndowedScholarshipFund,whichwascreated
in2005tocommemoratetheschool’s35thanniversary.Becauseofgenerousandon-goingsupportfromalumni,faculty,staff,andfriends,thefundprovidedthreetop-performingstudentswithscholarshipassistance.(ForalistingofallSHRSawardrecipients,seepage5.)
It’sexcitingtorealizethatthisfundgrewfromacommunaleffort…gifts,bothsmallandlarge,fromsomanyofyou.Yourreasonsforgiving,I’msure,werevariedandpersonal.Perhapsyouwantedtomakecollegelifealittleeasierforonewhomayfollowasimilarcareerpathasyours.Ormaybeyougavebecauseyou’reproudoftheeducationandclinicalexperienceyoureceivedwhileastudentatPitt.Ormaybeyourecognizehowvaluableyoureducationhasbeenandyouwanttoseeothersbenefitfromourexceptionalschool.
Whateverthereason,weappreciateyourcommitmentanddedicationtoyourAlmaMaterandencourageyoutocontinuesupportingtheschooloraparticularprogramordepartmentasyouareable.
Ifyourinterestlieswithinaparticularprogramordepartment,youcandirectyourgifttothatprogram.Oryoucandesignateyourgifttoanumberofexistingmulti-donorfunds(i.e.AudreyHolland,Matthews/Rubin,andEmeritusfundsinCSD;AnthonyDelitto,VickiGreenMemorial,andDTWatsonfundsinPT;ThomasJ.O’ConnorMemorialFundinRST;TimKerinMemorialandSportsMedicineStudentResourcefundsinAT/SM).Oryoumaycontinuesupportingtheschool-wideSHRSAlumniFund.
Ofcourse,theopportunityalwaysexistsforyoutoestablishyourownnamedfund.Eveninchallengingeconomictimes,optionsforcharitablegivingexist.Iwouldbehappytodiscusstheseoptionswithyouorassistyouinthestraightforward,painlessprocessthatenablesyoutocreatealastinglegacyofyourownhereatSHRSandatPitt.
Here’stoaprosperousandfruitfulSpringforallofus!
Sincerely,
PASCASIODELIVERSLECTURE
Students,faculty,andstaffweretreatedtoaonce-in-a-lifetimeexperienceonFriday,March20.AttheinvitationofSHRSstudents,Dr.AnnePascasio,foundingdean,presentedalecturetitled“HerStory:AHistoryofSHRS”toastanding-room-onlycrowd.PascasioreflectedonhertimeatD.T.Watson(asastudentandinstructor),hereducationatPitt,andhertenureasthefirstdeanforwhatisnowtheSchoolofHealthandRehabilitationSciences.It’saremarkabletaleofonewoman’sstrength,intelligence,intuition,determination,andboundlessenergy.
Attheveryheartofthelecturewasasenseofprideforwhattheschoolusedtobeandwhattheschoolhasbecome.Theaudiencewalkedawaywithagreaterappreciationoftheschool’sheritageandagreaterunderstandingoftheaccomplishments,challenges,andopportunitiesthatserveasthebackboneofSHRS.
ManythankstoDr.Pascasioforacceptingthestudents’invitationandforbeinghergracious,givingself.AndkudostostudentsRachelBlaskoandLeanneGanterforsuggestingtheforumandorganizingtheevent.
Dean Cliff Brubaker (left) and Dr. Anne Pascasio (right) thank Rehabilitation Science seniors Leanne Ganter and Rachel Blasko for organizing the “Her Story: A History of SHRS” lecture.
To view the lecture, go to www.shrs.pitt.edu and click on “Alumni” on the left, then click on “MediaSite” on the right. Click on the “SHRS Public Presentations” file and go to “Her Story” under presentations.
F A C E T S S P R I N G / S U M M E R 2 0 0 9 �
It is estimated that there are over 20 million deaf and hard-of-hearing children and adults in the United States. I am one of them. However, unlike other physical disabilities, ours is virtually invisible. Unfortunately, this invisibility seems to extend to government and the health care community as well. For example, deaf people have not been counted in the U.S. Census since 1930. The last known count was privately conducted by the National Association of the Deaf in 1971. Even the most essential assistive technology – a hearing aid – is not paid for by most government and private insurers. Recently, I paid $6,800 for new hearing technology – totally out-of-pocket. Many insurers view the devices as cosmetic. The ability to hear and communicate is not deemed a medical necessity.
Ray and Jennifer Spellman confronted this reality 11 years ago, when their then six-month-old son Andrew was diagnosed with deafness. I’ve asked them to share their experience.
Andrewwasoursecondchild.Hewasahappybaby,alertandalwayssmiling.Atthetime,newbornswerenotscreenedfordeafness,soitwasnotuntilhewas
sixmonthsoldthatwefirstsuspectedaproblem.Andonlythen,itwasbecauseofourdog.Andrewwouldalwaysturnhisheadtowarduswhenwewalkedintheroom.Weknownowthathefeltourvibration.Butonedaywhenwewereplayingwithhimwenoticedthathedidn’treactwhenthedogbarked.Thatwasour“aha”moment.
Thatrealizationsetusoffonweeksoftesting,retesting,andconsultation.Onespecialistintimatedthattherewasprobablymoreinvolvedthandeafness.Retardation,hesuggested,wasalsoapossibility.Anotherphysicianinsistedonamedical“fix”–acochlearimplant.Whileultimately,Andrewdidhavetheprocedure,atthetime,noonecouldexplaintouswhysurgerywastheonlyanswer.Andbecausewehadnoexperiencewithdeafness–nooneineitherimmediatefamilyhadanyhearingproblems–wehadnoideawheretoturnforanswers,andnoadvocatestopointusintherightdirection.Wewereonourown.
Throughtrial,error,andtenacity,weidentifiedresourcesandpiecedtogetherasupportsystem.Welearnedtosign,andtaughtothersaswell.SpeechandhearingprofessionalssuppliedbytheAlleghenyIntermediateUnitcametoourhometoworkwithAndrewonhiscommunicationsskills.Itwasoneoftheseprofessionalswhoalertedusthatstartingatagethree,AndrewwouldneedtobeginattendingclassesattheWesternPennsylvaniaSchoolfortheDeaf(WPSD).WeweretolditwasouronlyoptionifwewantedAndrewtohaveaccesstospecialservicesuntilage18.
WhilewewerenotopposedtoAndrewattendingtheWPSD,wewereconcernedaboutthedistancebetweenMoonTownship,wherewelive,andEdgewood,wheretheschoolwaslocated.Bothofusworked,ourolderdaughterwasinschool,and
anotherbabywasontheway.Bustransportationwasouronlyoption.Butwhowantstoentrusttheirthree-year-oldtoastrangerforanalmost50-mileroundtripcommutefivedaysaweek?Athree-year-oldwhocan’ttalkandcan’thear.
Ourconcernwasjustified.Withinashorttime,wereceivedatelephonecallfromthepolice.Oursonwasintheircustody.ThebusdriverhadtakenAndrewtoanearbybarwhosenamewassimilartoourstreetname.HeaskedacompletestrangerifshewastheretopickupAndrew.Fortunately,thestrangerwastheowneroftheestablishment,andshecalledthepolice.Oursoncamethroughtheincidentunscathed;however,thisexperienceignitedanotherfight–thistimeforsafe,reliabletransportation.Itwasabattlethatplayedoutinthemediaandultimatelywaswonthroughapainstakingfightwiththeschooldistrict.
AndrewcontinuedatWPSDuntilthethirdgrade.WhileitwasanexcellentschoolandprovidedAndrewwithasolidcommunicationsfoundation,wefeltthatifheweretoreachhisfullacademicpotential,heneededtobeinadifferentsetting.OurfirstchoicewasaprivateChristianschoolthatourthreeotherchildrenattended.Hereagain,weweretold“no”–notifweexpectedthestatetopaythecostofaninterpreterandothersupportprofessionals.Itdidn’tmatterthatwecoulddemonstratethatcostsattheChristianschoolwouldbelower,orthattherewasvalueinkeepingourchildrentogetherinthesameschool.Churchandstate,weweretold,hadtoremainseparate.Fundingforserviceswasavailableonlyinthepublicschools.Noexceptions.
Ultimately,wemovedAndrewandourotherchildrenintoapublicschoolsetting.We’velearnedtheinsandoutsofcreatingadetailedindividualizededucationplan,andalotmoreaboutourrights.Andrewnowhasacommittedteamofspeechandlanguageprofessionals,andisthrivinginhisnewenvironment.Nextyear,heentersthemiddleschool,andalreadytheelementaryschoolprincipalisadvocatingforhimtoensurehecontinuestoreceivethebestpossiblesupport.We’reoptimisticabouthisfuture.
Butwouldtheoutcomehavebeenthesamehadwenotbeensowillingtofightforhisrights?Weknewnothingabouthisdisability,theprosandconsofthevarioustreatmentoptions,ortherulesandregulationsthatgovernsupportservices.Wehadtolearnaswewent.Werefusedtotake“no”forananswer.Yet“no”wastheanswerweheardmostoftenfrompeoplewhoeitherdidn’tknow,ordidn’tcare.
Parentingachildwithahearingdisabilityisachallenge.Butthedifficultiesarecompoundedwhenyou’reforcedtobecomeafull-timeadvocateaswell.Whathappenstothosechildrenwhoseparentsorcaregiverscan’t–orwon’t—dobattle?Wecanonlywonder.
ACCESSGivinggiving
Access
DR. KATE SEELMAN
� F A C E T S S P R I N G / S U M M E R 2 0 0 9
Student NewsJoe Olson,graduatestudentintheDepartmentofRehabilitationScienceandTechnology,washonoredatthe4thAnnualCelebrationofInnovationonOct.6.Olsonworkedwithasmallteamofresearcherswhodevelopedawheelchairconvoysystemthatallowsmultiplepeopleinchairstosafelymoveatonetime.Thetechnology,whichwonanInnovatorAward,waslicensedtoacompanyinOctober2007.TheCelebrationofInnovationwashostedbytheUniversity’sOfficeoftheProvostandtheOfficeofTechnologyManagement.JoiningOlson(secondfromright)are(lefttoright)Dr.ArthurLevine,seniorvicechancellorforHealthSciences,JamesV.Maher,provostandseniorvicechancellor,andChancellorMarkA.Nordenberg.
Kimberly MeighandApril Scott,doctoralstudentsintheDepartmentofCommunicationScienceandDisorders,wereawardedthe2008NewCenturyScholarsDoctoralScholarshipsfromtheAmericanSpeech-Language-HearingFoundation.Theywereamong20doctoralcandidatestoreceivetheawardbecauseoftheircommitmenttoattainingtheresearchdoctoraldegreeandworkinginahighereducationacademiccommunityinthefieldofCSDintheUnitedStates.
Rhona Galera,CScDstudentintheDepartmentofCommunicationScienceandDisorders,receivedthe2008GraduateStudentScholarshipfromtheAmericanSpeech-Language-HearingFoundation.Theaward,oneofsevenawardedannually,recognizesgraduateordoctoralstudentswho
demonstrateoutstandingacademicachievement.
Lisa Guttertag Lederer,agraduatestudentintheDepartmentofCommunicationScienceandDisorders,receivedtheAmericanSpeech-Language-HearingAssociationSpecialInterestDivision2StudentResearchTravelFellowship.Shewasrecognizedforoutstandingstudentresearchinneurophysiologyandneurogenicspeechandlanguagedisorders.
Lindsay Diethorn,AuDstudentintheDepartmentofCommunicationScienceandDisorders,receivedthePennsylvaniaAcademyofAudiologyStudentScholarshipfor2008.Thisstatecompetitionawardsstudentsforoutstandingachievementinaudiology.
Veronica Umeasiegbu,amaster’scandidateintheDepartmentofRehabilitationScienceandTechnology’sRehabilitationCounselingprogram,spent10weeksasaninternwiththeWorldHealthOrganization.Duringherinternship,VeronicafoundasponsorandspearheadedasuccessfulfundraisingeffortamongherinternclasstosendasetofessentialclinicaltextstoacommunityhealthcenterinherhomecountryofNigeriathroughWHO’sBlueTrunkLibraryprogram.ShealsowonanessaycontestforUNinternsonimplementationoftheMilleniumDevelopmentGoalsandpresentedaprojectproposalatapaneldiscussionduringtheDialogueonGlobalGovernance.
Alexandra Jefferds,graduatestudentintheDepartmentofRehabilitationScienceandTechnology,recentlyself-publishedherfirstscience-fictionnovel.“EarlierHeaven”addressesmanyreal-worldthemesandservesasavehicleforJefferdstoexpandupononeofherlife’spassions–helpingpeoplewithdisabilities(theheroineisayounggirlwithadisability).
Steve Gaul,astudentintheAthleticTrainingprogram,becamethesecondPittathletictrainingstudentinthelast
S t u d e n t N e w s
threeyearstoparticipateinavictoriousSuperBowlcelebrationfollowingthePittsburghSteelersdramatic27–23winovertheArizonaCardinalsonFeb.3.Stevespenttheentire2008seasonwiththeSteelerscompletingoneofhisclinicaleducationexperiencesaspartoftheathletictrainingstaff.HealsotookpartintheSteelersvictoryparadefollowingtheteam’sreturntoPittsburgh.
Bailee Miller,astudentintheAthleticTrainingprogram,wasselectedasoneofthreeathletictrainingstudentsfromPennsylvaniatoparticipateinthefirstiLeadConferenceinWashington,DC.Theprogram,sponsoredbytheNationalAthleticTrainers’Association,promotesstudentleadershipdevelopmentandoffersopportunitiestoattendworkshopsandmeetingsaswellasspendingadayonCapitolHillmeetingwithlegislatorstodiscussandpromotetheprofessionofathletictraining.
Michelle Petraglia,master’sstudentintheDepartmentofCommunicationScienceandDisorders,wasselectedbytheCSDfacultytoreceiveastudenthonorsawardfromtheSouthwestPennsylvaniaSpeechandHearingAssociation(SWPSHA).TheawardwaspresentedattheSWPSHAHonorsmeetinginMarch.
Rhona Galera,adoctoralstudentintheclinicalscienceinspeechlanguagepathologyprogram,participatedinamedicalmissioninQuito,Ecuador,attheNuevaTierraHospitalthroughFacesofTomorrow.Galeraworkedasateamwithpediatricians,dentists,surgeons,socialworkers,andtranslatorstoaidechildrenwithcleftlipandcleftpalatedeformitiesandtheirfamilies.
Melissa Stauffer,MOTstudent,wasawardedtheGreekRoomCommitteeScholarshipfromtheUniversityofPittsburghNationalityRooms.ItwillsupportherparticipationintheExperientialLearningInternational’sPrograminGreece.
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�008-�009 SHRS Scholarship and award recipientsThe following is a listing of SHRS scholarships and awards granted to students during the 2008-2009 academic year.
Wikar Kadhim,MOTstudent,wasawardedtheFredC.BruhnsMemorialAwardfromtheUniversityofPittsburghNationalityRooms.ItwillsupporthisparticipationintheExperientialLearningInternational’sPrograminJordan.
Michelle AndersonandStephanie Young,MOTstudents,andDrs. Ketki Raina,assistantprofessorandDenise Chisholm,associateprofessor,presentedPromotingOccupationalTherapyThroughInternationalExperientialLearningatthe31stAnnualPennsylvaniaOccupationalTherapyAssociationConference.YoungandRainaalsopresentedTheCulturalImpactonDisabilityinTanzanianChildren.
Michelle Anderson,Benjamin Gross,andWikar Kadhim,MOTstudents,wereselectedas2008–2009JewishHealthcareFoundationJonasSalkFellows.
Betsy Boyce,Alisha Cousins,Cortney DiVito,Caitlin Feeney,Ellen Malinoski,Shelley McCauley,Renee McDade,Amanda Miller,Angela Pasquarelli,Sarah Petrus,Lori Sopko,Anne Marie Sweeney,Carla Tcruz,andJeanna Thomas,MOTstudents,wereinductedintotheBetaTauChapterofPiThetaEpsilon,thenationalhonorsocietyforoccupationaltherapystudents.
Natalie D’Angelo,Benjamin Gross,Shelley McCauley,Amanda Miller,andSarah Petrus,MOTstudents,andYu Yun Huang,MSstudent,representedtheDepartmentofOccupationalTherapyattheNationalDisabilityDayeventandprovidedassistancetostudentswithdisabilities.
Betsy Boyce,Benjamin Gross,andCaitlin Feeney,MOTstudents,presentedOccupationalTherapyasaCareerto
9th–12thgradestudentsattheSchooltoCareerDaysponsoredbytheOaklandPlanningandDevelopmentCorps.BoyceandGrossalsopresentedahands-onworkshop,OccupationalTherapyasaCareerto10th–12thgradestudentsatCareerConnectionsCharterHighSchoolofPittsburgh.
Andi Saptono,doctoralcandidateintheDepartmentofHealthInformationManagement,presentedaninstructionalcourseonTelerehabilitation:AViableMethodWheelchairPrescriptionatthe25thInternationalSeatingSymposiuminOrlando,Fla.,inMarch.SaptonowillalsopresentUserRoles,Needs,andInformationManagementFeaturesinTelerehabilitationattheAmericanTelemedicineAssociation14thAnnualInternationalMeetingandExpositioninLasVegasinApril.
Bruce Baker Travel Award (school-wide) GustavoAlmeida(PT) KearaChestney(HIM) MariaDietrich(CSD) CaitlinFeeney(OT) AmandaGillespie(CSD) PatrickLambert(EM) PalmaLiberto(HIM) DanielleMaloney(RS) MichaelMorgan(RS) AnaSouza(RST) PauloTeixeira(PT) MatthewWeaver(EM)
Anne Pascasio Scholarship (school-wide) SarahChunko(PT) ShelleyMcCauley(OT) AlyssaMeisenhelter(RS)
SHRS Alumni Endowed Scholarship (school-wide) AlexandraJefferds(RST) KaHeiKarenLau(CDN) SvenLynch(PT)
UPMC Scholarship (school-wide) MeghanJablonski(CSD) SarahPetrus(OT) KristinRobb(CDN)
Mildred Wood Student Resource Award (school-wide) SuzanneAdjogah(CSD) TessaUtz(CSD) MohamedHagahmed(EM) MarkMurphy(EM)
AVADA Book Award (CSD) GregoryGenna JeniferPowers MeganHannonVargo
Bruce Baker Student Training Award (CSD) ThomasKovacs
Emeritus Award (CSD) KathleenHodges
Lisa Levy Memorial Award (CSD) InbalVellucci
Dorothy Bradley Brown Scholarships (PT) ChristaBauer JeffersonHolm JillianKosinski JessicaMiller KristinOrenchuk
Pat Croce Scholarship (PT) TimothyZelch
Joseph M. David/David PT & Sports Medicine Center Scholarship (PT) LauraFawcett
Victoria Green Memorial Resource Award (PT) SamanthaWaller
Patti Leahy Memorial Award (PT) ZabrinaLanger
Pearl Cricco Mann Scholarship (PT) RalphHoerner
Alice Chagnot Oulette Scholarship (PT) WilliamBuchala
Paul and Judy Rockar Scholarship (PT) ChristinDonofrio
D.T. Watson Scholarship (PT) AndreaWysochansky
Rory A. Cooper/Dion Johnson Student Award (RST) SaraSibenaller
Sean and Stephanie Shimada Student Award (RST) HyunwookKa
Freddie Fu Athletic Training Scholarship (SMN) StephenGaul KimberlyStoner DougZaruta
Freddie Fu Sports Medicine Graduate Research Award (SMN) Yung-ChienChu AnthonyHouse Hung-ChunHuang
Tim Kerin Athletic Training Scholarship (SMN) JenniferLucy
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F a c u l t y N e w s
Faculty News
Dr. Sajeesh Kumar,assistantprofessor,iscoordinatingallresearchinitiativesoftheCenterforTelehealth,aninformalgroupofpeersinvolvedintelemedicineservicesatPittandUPMC.
Dr. Leming Zhou,assistantprofessor,presentedaposter,“SPARK – A Systems Biology Framework for Agent-Based Biomedical Modeling,”attheComputationalCellBiologyMeetinginMarchatColdSpringHarborLab,NY.
Occupational Therapy
Dr. Denise Chisholmwaspromotedtoassociateprofessor.
Mary Lou Leibold,assistantprofessor,authoredtwochaptersofthenewlyinitiatedAmericanOccupationalTherapyAssociation’sFieldworkEducatorCertificateProgram.
Joanne BairdandLeibold,assistantprofessors,wereselectedasoneof15teamsnationwidetoparticipateinathree-dayTrain-the-TrainerInstituteandwill,inturn,providemultipletwo-dayworkshops,locallyandregionally,foroccupationaltherapypractitionerswhosupervisestudentsduringfieldwork.The
SHRSwelcomesthefollowingnewfacultytoitsranks:
Joanne Merante BairdhasjoinedtheDepartmentofOccupationalTherapyasanassistantprofessor.SheisalsoresponsibletotheCentersforRehabServices(CRS)astheoccupationaltherapycoordinatorofclinicaleducationandprofessionaldevelopment.Inthisrole,shewilloverseeplacementofoccupationaltherapystudentsfromavarietyofacademicprogramsatCRSclinicalsites.BairdreceivedherBachelorofArtsdegreeinOTatPittandherMasterofArtsinOTfromtheUniversityofSouthernCalifornia.Shehasclinicalexperiencefromacrossthehealthcarecontinuumincludingacuteandinpatientrehabilitationaswellascommunity-basedoutpatientandskillednursingcare.SheisthePennsylvaniaOccupationalTherapyAssociationDistrictIIsecretary.
Dr. Sajeesh KumarhasjoinedtheDepartmentofHealthInformationManagementasanassistantprofessor.KumarreceivedhisdoctorateinTelemedicinefromtheUniversityofWesternAustralia,andhisresearchinterestsarerelatedtothedesignanddevelopmentoftelemedicinetechnology,ruralandremotehealthcareservice,andassessmentofmedicaltechnology.PriortocomingtoPittsburgh,KumarconductedresearchandserviceactivitiesinAustralia,Singapore,theNetherlands,Seychelles,UnitedArabEmirates,andIndia.Healsorecentlyeditedthefirstbooksonteleradiologyandtelepathology(publishedbySpringer).Heiscontinuinghisinnovativeresearchintelemedicineande-healthatSHRS.
Communication Science and Disorders
Dr. Katya Hill,associateprofessor,receivedtheDepartmentoftheArmyCertificateofAppreciationforhercontributiontotheeducationofstaffatWalterReedArmyMedicalCenter.HillwasalsoapresenteratiCREATe’s3rdInternationalConventioninSingapore.Whilethere,sheconsultedonAACservicedeliveryandresearchneedsatvariousspecialschoolsandrehabilitationorganizations.
Dr. Sheila Pratt,associateprofessor,wasnamedaFellowoftheAmericanSpeech-Language-HearingAssociation,recognizingheroutstandingprofessionalandscientificachievementsinthefield.ShealsoreceivedtheASHAEditors’AwardfortheAmerican Journal of Audiology.
Dr. Scott Yaruss,associateprofessor,wasnamedthe2008Speech-LanguagePathologistoftheYearbytheNationalStutteringAssociation.
Health Information Management
Dr. Mervat Abdelhak,chairandassociateprofessor,presentedrecentlyatasymposiumbytheInternationalUniversityofHealthandWelfareinTokyo.Thesymposiumaddressedformaleducationaswellasworkforceissuesforhealthinformationandcancerregistry.
Abdelhakwasalsoinvitedtopresentthekeynoteaddress,“Advances in e-HIM: From Vision to Reality”ataconferenceinSaudiArabiainMarch.Duringhervisit,shealsoevaluatedtheHealthInformaticsgraduateprogramatKingSaudBinAbdulazizUniversityofHealthSciencesandconsultedwithotheracademicinstitutionswithinterestinhealthinformation.
Dr. Abdelhak, front row, second from left, is joined by the dean of the International University and the chair of the Health Information Management program and representatives from the Japan Hospital Association.
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twoalsopresentedatthePennsylvaniaOccupationalTherapyAssociationandthePittsburghFieldworkCouncil’sConferenceforOccupationalTherapyPractitioners.Also,BairdisrepresentingtheAmericanOccupationalTherapyAssociationontheShortTermAlternativesforTherapyServices(STATS)ContractProjectadministeredbytheComputerSciencesCorporation(CSC)andfundedbytheCentersforMedicareandMedicaidServices.
Drs. Ketki Raina,assistantprofessor,Joan Rogers,professor,TerenceStarz,professor,andAmalie Andrew,researchoccupationaltherapist,presentedPatients’ Perceptions of the Meaning of the FIQ Activity ItemsattheAmericanCollegeofRheumatology/AssociationofRheumatologyHealthProfessionals2008AnnualScientificMeeting.
Dr. Elizabeth Skidmore,assistantprofessor,wasinvitedtopresentatalkonLife After Stroke: Long-term Issues for Stroke Survivorsatthe4thAnnualAcuteStrokeManagementConference.ShealsopresentedDeveloping Clinical Practice Guidelines for RehabilitationatthePennsylvaniaAssociationofRehabilitationFacilitiesAnnualConference.
Dr. Nancy Baker,assistantprofessor,andMOTstudentAbby SipppresentedThe Association Between Impairments Due to Rheumatoid Arthritis and Typing SkillsattheAmericanCollegeofRheumatology/AssociationofRheumatologyHealthProfessionals2008AnnualScientificMeeting.BakeralsopresentedObservational Studies of Non-Pharmacologic Interventions: Methods to Measure PerformanceattheACRClinicalResearchConference:SessionI:MethodsforNon-PharmacologicInterventions.
Drs. Denise Chisholm,associateprofessor,Margo Holm,professor,Ketki Raina,assistantprofessor,Joan Rogers,professor,Elizabeth Skidmore,assistantprofessor,Min-Mei Shih,postdoctoralassociate,Joanne Bairdassistantprofessor,andSHRSalumnaeDrs. Razan HamedandSana Abu-Dahab
presentedpeer-reviewedpapersatthe31stAnnualPennsylvaniaOccupationalTherapyAssociationConference.
Rehabilitation Science and Technology
Al Condeluci,adjunctfaculty,servedasguesteditorofthelatesteditionoftheJournal of Vocational Rehabilitation.
AspartofanationalcampaignorganizedbytheVeteransAdministration,VACanteenService,andGeneralMills,Cheerios®releasedacerealboxfeaturingseveralveteranathletesfromthe28thNationalVeteransWheelchairGamesincludingDr. Rory Cooper,distinguishedprofessorandchair.Coopersignedcerealboxesand“sportsherocards”atvariousVACanteenServiceStoresinthePittsburghareaaspartofthecampaign.
Cooper,anArmyveteran,alsocompetedthispastfallinthe33rdMarineCorpMarathon,finishingfourth.CooperwascloselyfollowedbyaMarineheteamedupwithandthetwofoughtinfriendlyinter-servicerivalryastheyclimbedthehilltotheIwoJimaMemorialinWashington,DC.
Deborah L. Endres,instructor,receivedaPostsecondaryEducationProgramsNetwork(PEPNet)granttosupportherattendanceatthe“AddressingNeedsofStudentsLabeledDeafandLowFunctioningAt-RiskorDeafblind”heldinHoustonlastfall.PEPNet’sgoalinthissupportwastoexplorethedevelopmentofaprogrambasedupontheCognitiveSkillsEnhancementProgramdevelopedandimplementedbyRSTfacultyandstudentsincooperationwiththeHiramG.AndrewsCenter,Johnstown,Pa.
Dr. Katherine Seelman, associatedeanofdisabilityprograms,professor,DepartmentofRehabilitationScienceandTechnology,wasnamedtotheCommunityAdvisoryBoardofWQED,thepublicbroadcastingentityinPittsburgh.Theboardreviewsprogramminggoalsestablished,theservicesprovided,andthesignificantpolicydecisionsrenderedbytheWQEDCorporation.
Sports Medicine and Nutrition
Dr. Kevin Conley,assistantprofessorandprogramdirector,AthleticTrainingEducationProgram,wasnamedtheassistantdeanforundergraduatestudiesfortheSchoolofHealthandRehabilitationSciences.
Judy Dodd,adjunctassistantprofessor,ClinicalDieteticsandNutrition,wasnamedtotheAmericanDieteticAssociationBoardofDirectorsasthechairmanoftheADAFoundation.ShewasalsoelectedtotheAdagioHealth(formerlyFamilyHealthCouncil)BoardofDirectors.
GeneralMillsissupporting
militaryfamiliesandfeaturing
goldmedalwinnersofthe2009
NationalVeteransWheelchair
Games,includingDr.Rory
Cooper,chair,Departmentof
RehabilitationScienceand
Technology,onspecialedition
Cheeriosboxes.Theywillbesold
inmilitarymarketsandVeterans
CanteenServiceretailoutlets.
8 F A C E T S S P R I N G / S U M M E R 2 0 0 9
Emergency Medicine
Turki Alhamid(EM’04)isaparamedicfortheRoyalClinic/King’sPalaceinRiyadh,SaudiArabia.HeisalsopartoftheKingAbdullahMedicalTeamestablishinganon-emergencymedicaltransportprogram.AlhamidmetwithDeanCliffBrubakerduringthedean’striptotheKingdominNovember.
Health Information Management
Meagan Sampogna(HIM’00)waspromotedtodirectorofclientsolutionsandimplementationfortheReimbursementAccessServicesDivisionofMcKessonSpecialty.ThenewpositioninvolvedrelocatingtoScottsdale,Ariz.Previously,Sampognaservedasdirectorofpharmacyoperationsanddirectorofstrategyandprogramdevelopmentforthecompany.
Meredith Flack(HIM’08)acceptedapositionasimplementationspecialistwithMcKessonProviderTechnologies,Alpharetta,Ga.
Julie Rudolph(HIM’08)hasacceptedthepositionofimplementationspecialistwithNextGenHealthcareInformationSystems,Horsham,Pa.
Sarah Smith(HIM’08)recentlyacceptedthepositionofmedicalrecordscoordinatorwithPrecisionTherapeutics,Pittsburgh,Pa.
Dr. Bakheet Aldosari(HIM’00,’03)waspromotedtochairmanoftheDepartmentofHealthInformaticsintheCollegeofPublicHealthandHealthInformaticsatKingSaudBinAbdulazizUniversityforHealthSciences,Riyadh,SaudiArabia.InNovember2008,AldosarimetwithDean
Alumni NewsCliffBrubakerduringthedean’svisittoRiyadhandassistedinmeetingswithSaudieducators.
HIMalumnijoinedfacultyandguestsatareceptionheldinconjunctionwiththeAHIMAConferenceinSeattle,Wash.,inOctober.GatheringforaClassof1981reunionphotowere(lefttoright)Barbara Rosen Knight (HIM’81),Jill Sell-Kruse(HIM’81),Dr. Mervat Abdelhak(HIM’73,SIS’81),HIMchairandassociateprofessor;Denise Dunyak(HIM’81)andMark Dietz,AHIMAdirector.
Jill Sell-Kruse(HIM’81),codingcompliancecoordinatorforMemorialHealthSystem,ColoradoSprings,Co.,isa2008ACEmemberofAHIMAandisaroutinepresenterfortheSouthernColoradoHealthInformationManagementAssociation.She’salsotheproudmotherofthreechildren(twoincollege).
Physical Therapy
Charlotte Carey(PT’65),acompetitiveballroomdancer,competedintherecentAmerica’sBallroomChallengeandplaced1st(worldchampion)inAmericanSmoothStyleWorldPro-Aminthesenior(60andolder)level,and2ndintheAmericanSmooth“C”level(50andover).Sheandherpartneralsotook2ndplaceintheInternationalStandardWorldPro-Amintheseniorleveland5thplaceintheStandard“C”level.
Dr. Ahmad Alghadir,(PT’02,’06)ischairandassistantprofessor,DepartmentofRehabilitationSciencesintheCollegeofAppliedMedicalSciencesatKing
SaudUniversity,Riyadh,SaudiArabia.HeisalsoservingaspresidentoftheSaudiPhysiotherapyAssociation(SPTA).AlghadirprovidedDr.TonyDelitto,chairandprofessor,DepartmentofPhysicalTherapy,atourofSPTAheadquartersduringDelitto’srecentvisittoRiyadhinNovember.
Rehabilitation Science and Technology
Maggie Casteel(RST’07)contributedachapterinarecentlypublishedbookondeafness,ACCESS – Multiple Avenues for Deaf People.Casteelprovidedadescriptionofthelatestinnovativehearingassistivetechnology.ShealsocontributestoHearing Loss Magazine,distributedtomembersofHearingLossAssociationofAmerica.Casteel,withhermaster’sdegreeinrehabilitationcounseling,servesasavocationalrehabilitationcounselorwiththeVA.
Athletic Training
Ryan Grove(AT’93,’96),triathloncompetitor,performedhispersonalbestinthe2008IronmanAustriainKlagenfurt,Austria,recordinga10-hour17-minutetimeinthegruelingtriathlon.GrovecompetesinatleastfourOlympicdistance,Half-Ironman,andIronmanDistanceraceseachyear.NextupistheKineticHalf-IronmaninLakeAnna,Va.Inaddition,Grove,athletictrainerforthePittsburghSteelers,witnessedhissecondSuperBowlwinandvictoryparadewiththeNFLteamthispastFebruary.
A l u m n i N e w s
F A C E T S S P R I N G / S U M M E R 2 0 0 9 9
Alumnus Named Legacy Laureate
Dr. David Perrin(AT’85),picturedwithChancellorMark A. Nordenberg,wasnamedaUniversityofPittsburghLegacyLaureatelastOctober.Recognizedforhisoutstandingpersonalandprofessionalaccomplishments,Perrinwasamong12honoreesfor2008.
Renownedinthefieldofsportsmedicineandathletictraining,PerrinreceivedhisdoctorateinExercisePhysiologyfromtheUniversityofPittsburghin1985.Hecurrentlyservicesasprovostandvicechancellorofacademicaffairs,andaprofessorofExerciseandSportsScienceattheUniversityofNorthCarolinaatGreensboro.
AsamemberoftheNationalAthleticTrainingAssociation(NATA)ProfessionalEducationCommittee,Perrinhelpedestablishaccreditationguidelinesforbothundergraduateandgraduateathletictrainingprograms.Hehaspublishedover130researcharticlesandtextbookchapters.PerrinisarecipientofNATA’sMostDistinguishedAthleticTrainerAwardandisamemberoftheNATAHallofFame.HewasnamedtheSHRSSportsMedicine/AthleticTrainingDistinguishedAlumnusin2005.
Calendar of Eventsa p r i lSaturday, April 18, 2009Health Sciences Alumni Reception, Phoenix, Ariz.
TheSchoolsoftheHealthScienceswillhostanalumnireceptionattheUniversityClubPhoenix,10a.m.–2p.m.PleaseRSVPto412-647-8983.
April 23 – 26, 2009AOTA 89th Annual Conference, Houston, Texas
j u n eJune 17 – 20, 2009NATA �009 Annual Meeting, San Antonio, Texas
TheAthleticTrainingandSportsMedicineprogramswillhostawelcomereceptionfortheiralumni.Date,timeandplaceTBA.Sponsored in part by the SHRS Alumni Society.
June 23 – 27, 2009RESNA Annual Conference, New Orleans, La.
TheDepartmentofRehabilitationScienceandTechnologywillhostanalumnieventcoincidingwiththeconference.DetailsTBA.Sponsored in part by the SHRS Alumni Society.
o c t o b e rOctober 5 – 7, 2009AHIMA Annual Meeting, Grapevine, Texas
TheDepartmentofHealthInformationManagementwillhostareceptionforHIMalumni,Monday,October5,6–7:30p.m..LocationTBA.Sponsored in part by the SHRS Alumni Society.
Tuesday, October 13, 2009Fifteenth Annual Endowed Scully Visiting Lecture Program
Detailstofollow
October 30 – 31, 2009��nd Annual Pennsylvania Occupational Therapy Association Conference,StationSquareSheratonHotel,Pittsburgh,Pa.
Ezine Anyone?Everyday,virtuallyallofusreceiveane-mailnewsletterorotherelectroniccommunication.AtSHRS,weareexploringwaystomakeourinformationmoreappropriatefortheon-lineworld.That’swhywe’reconsideringanEzineversionofFACETS,oneyoucanbrowsetoyourheart’scontent,justlikethehard-copyversion.
Pleasedropusalineat:facets@shrs.pitt.eduandletusknowwhatyouthinkaboutanEzineversion.Andwhileyou’reatit,byallmeansgiveusyourfeedbackonthiscurrentissueofFACETS.
We’dlovetohearfromyou.
�0 F A C E T S S P R I N G / S U M M E R 2 0 0 9
C l i n i c a l I n s t r u c t o r P r o f i l e
Clinicaleducation–thehands-onlearningthatoccurswhenstudentsleavetheclassroomandpracticetheircraftintherealworld–isavaluablepartofstudents’
learningexperienceatSHRS.Notonlydoesitensurethatstudentsareputtingtheirlearningintopractice,ithelpsstudentsweighwhatexperiencesandenvironmentstheyvaluemost,smoothingtheirtransitionintoacareer.
TheDepartmentofCommunicationScienceandDisorders’(CSD)16-weekclinicalpracticumsallowstudentstoputthemselvesintheshoesoftheclinician,learningtheintricaciesofprevention,screening,evaluation,andtreatment.Notonlyaretheyalearninggroundforclinicalcompetenciesandcoreclinicalskills,theyalsoallowstudentstogettoknowthefundamentalsbehindclinicaldecision-making–thetrue“whys”aswellasthe“hows”oftheirfuturejobs.
JenniferBlack,a2003master’slevelgraduateofCSD,completedherclinicalpracticumlikesomanyotherswhileatSHRS.“ItwasthetypeofexperienceIneededtoreallyunderstandwhereIcouldbestputmyskillstouse,”shesaysofthepracticum.“Iexperiencedawiderangeofsettingsinashortamountoftime,workingwithadultsandchildren.TherewasnobetterwayformetohoneinonwhereIwouldfitbestoverthelong-term.Itwasoneofthemostvaluablecomponentsofmyeducation.”
Speech Therapy and Then SomeRecent Graduate Takes the Reins as Clinical Instructor
C l i n i c a l I n s t r u c t o r P r o f i l e
F A C E T S S P R I N G / S U M M E R 2 0 0 9 ��
growth.“Theirconfidenceisreallyelevatedknowingthatsomanypeopleareinvolvedintheirpersonalgrowth.It’sunspoken,butitsthere.Mystudentsreallyfeelgoodaboutalltheattentiontheygetaspartofthepracticum.”
Butthegoodfeelingsarefarfromone-sided.
“Thebondsthatthegraduatestudentsformwiththechildreninmycaseloadareverystrong.Duringthelastdayoftherapy,it’softenmySHRSstudentswhoaremoreupsetaboutendingthepracticumandmovingonthanarethechildren.It’snotablehowclosethegraduatestudentsbecomewithmystudents.It’sthespecialpartoftheprogramthatcangounnoticedbut,inreality,itiswhereagoodpartofpersonalgrowthoccurs.Graduatestudentscanreallyrecognizethevalueoftheirworkwhenit’stimeforthemtomoveon.”
Turning the Tables
Itwasn’tthatlongagothatBlackwasthestudentwithother,moreexperienced,speechtherapistsasmentors.Butnow,justsixyearsafterhavinggraduatedfromtheUniversityofPittsburgh,Blackisintheroleoftutorandhermentees,first-yeargraduatestudentsinCSD,arelearningthenuancesofbeingspeechtherapists.
BlackisjustoneofmanyprofessionalswhoparticipateasclinicalinstructorsforSHRS.SheworksasaspeechtherapistforK-5atHighlandsSchoolDistrictinNatronaHeights,Pa.,givinghertimetomorethan60CSDstudentseachsemester.
Interestingly,itwastheclinicalpracticumitselfthatsetBlackonhercurrentcareercourse.Whileshewasconfidentinthefactthatshehadchosentherightprofession,shewasabithazywhilestillastudentaboutwhatworkingenvironmentwouldsuitherbest.Hervisionforthefuturebecameclearerafterherfirststeadydoseofhelpingchildren.
“IneverthoughtIwouldbeworkingwithchildren,”sheexplains,“ButoneofmylastexperiencesinthepracticumwasinearlyinterventioninthePittsburghPublicSchools.Itwasanamazingexperience–reallylife-changingforme.Ifellinlove.”
Aftergraduation,Blacktookajobalmostimmediatelyworkingwithkidsand,whileshedescribestheexperienceasabigchangeinitially,itdidn’ttakelongforhertofindacomfortablegroove.“TheworkismoreenrichingthanIwouldhaveeverimagined,butatfirstitwasabigchange,”sheconcedes.“Workingwithchildreninaschoolenvironmentcanbechallenging.”
Winning Hearts and Minds
Aspartoftheprogram,graduatestudentscometoworkwithBlackonedayeachweekpersemester.Themaindutyofbothmentorandmenteeistoprovidetherapyandguidancetothechildrenwithwhomtheywork.Buttherelationshipsthatdevelopandthetrustthatevolvesbetweentherapist,graduatestudent,andchildcanprovidelong-lastinglessonsinandofthemselves.
“Ideveloplong-termrelationshipswithmyyoungstudentsastheirprimaryspeechtherapist,buttheadditionofagraduatestudentclinicianintothemixleadstoextraopportunitiesfordevelopmentbothwiththechildrenandwithmygradstudents,”shenotes.“Anywayyoulookatit,it’sawin-winforeveryoneinvolved.”
Sheaddsthatherstudentsalsobenefitfromhavingtwopeople,notjustone,showinterestintheirprogressand
�� F A C E T S S P R I N G / S U M M E R 2 0 0 9
A l u m n i P r o f i l e
Itisn’tsurprisingthatthroughoutthepast40yearsthepeoplewhohavemadethebiggeststridesin
disabilityresearchandrightshavebeenpeoplewithdisabilitiesthemselves.UntiltheAmericanswithDisabilitiesActwassignedintolawin1990,theU.S.hadalessthanstellartrackrecordofaddressingtherightsofthisgroup.Andithasonlybeenwithinthelast25yearsthatfunding,research,andacademicinstructionintodisabilitieshavecometogethertomakesignificantheadwayinaddressingproblemsanddiscoveringsolutions.
Ittookearlypioneerstobeginshapingthedisciplinesthatwenowknowasoccupationaltherapy,rehabilitationscienceandtechnology,andrehabilitationcounseling.Notonlydoyoungfieldsneedscientistsandresearchers,theyalsoneedadvocatesanddevotededucators–peopletopushtheboundariesofthecurrentknowledgeandbegintrainingthenextgenerationofleaders.Inthefieldofrehabilitationcounseling,Dr.RobertChubon,anearlyalumnusoftherehabilitationcounselingprogramatPitt,isoneofthoseleaders.
An Early Start
Chubonbecamedisabledatarelativelyearlyageafterafreaktrampolineaccidentlefthimwithaspinalcordinjuryinhissenioryearofhighschool.Theyearwas1954andlittlewasknownabouthowtotreatspinalcordinjuries.ButChubonslowlyovercamethechallengesitposed.Ittooknearly10years.
Heremembers,“Iwentfromanathletic16-year-oldwithaNavyROTCscholarshipnearlyinhandtosomeonestrugglingwiththechallengesofadisability.Whilethetreatmentformyspinalcordinjurywasbetterthanitwouldhavebeen10yearsbefore,duelargelytotheadvancesthatcameoutof
Lifelong AdvocacyPittAlumnusDr.RobertChubonaShiningExampleofEducationandAdvocacyatWork
F A C E T S S P R I N G / S U M M E R 2 0 0 9 ��
WorldWarII,itwasstillalongroad.Atthatage,emotionally,itwasanightmare;butintheendImadeit.”
MuchofhisinitialrehabilitationwasaccomplishedattheKesslerInstituteforRehabilitationinWestOrange,NJ,andtheWoodrowWilsonRehabilitationCenterinFishersville,Va.,pioneersintherehabilitationfield.However,therealbreakthroughoccurredin1960atSt.FrancisMedicalCenter’sDepartmentofRehabilitationMedicineinPittsburgh.
Hewasunabletofinishhissenioryearinthemonthsfollowinghisinjurybecause,inthosedays,Chubonwasconsideredtoodisabledtobenefitfromevenhomeboundinstruction.Despitethelackofahighschooldiploma,hisrehabtherapists–whobynowhadbecomehisadvocates–urgedhimtoapplytoPitt.“Tosaytheytreatedmelikefamilyisanunderstatement.”HisSATscoresandsolidhighschoolgradeswonhimacceptance.WiththesupportandencouragementfromtheSt.FrancisandPittstaffs,hestartedatPittinthefallof1961.
TheschoolingwentwellforChubon,despitehislimitedabilitytowrite.But,hesayshestudiedrelentlesslyandreliedonin-classfocusandagoodmemory.Thefirsttwoyearswereastruggle,havingtocopewiththephysicalbarriersandadeficienthighschooleducation,buthewasabletoraisehisgradestoalevelacceptableforadmissiontograduateschool.Thebiggestchallenge,heexplains,wasgettingtoclass.
“TherewerenoaccessibleentrancesorelevatorsinmanyofthebuildingsatPittinthosedaysandcertainlynoramps.Soforexample,Ihadtorelyonthefootballteamtogetmeupanddownthedormsteps.Atthattime,Iwasthefirstresidentialstudentina
recognitionandpraiseforakeyboardingsystemheinventedforpeoplewithdisabilities.Chubonreorganizedthekeysonastandardcomputerkeyboardsothatthemostfrequentlytypedlettersarearrangedclosetothemiddleofthekeyboard,makingiteasierforpeoplewithlimitedfingerdexterityorforthosewhouseatypingstickashedoes.Healsohasgainedinternationalrecognitionforhisworkintheareaofqualityoflifeassessment.Andhismostcurrentpassion,asanauthorandplaywright,hasbeenconsuminghiminretirement.He’swrittennumerousplaysandshortstoriesandisworkingonanInternetWeb-basedmemoir.
Butintheend,hislife’sworkhasbeeninhelpingpeoplewithdisabilitiestolivebetterlives–andeducatingbothprofessionalsandthepublicatlargetodothesameforothers.
Hislongroadtowardfullrehabilitationasayoungpersonshapedhimasamanandshapedhimasateacher.“AdaptingtomydisabilitywasachallengeandI’vecommittedmywholelifetohelpingothersinthesamewaythatIwashelped,withcompassionandwithatotalcommitmenttounderstandingthechallenge,whileatthesametimechallengingtheindividual,”heexplains.
HealsocreditstheopportunityhewasgivenatPittformakingallthedifferenceinhislifeandhiscareer.Withoutit,headmits,hispathcouldhavebeenquitedifferent.
“I’vealwaysbeendeeplyindebtedtotheUniversityofPittsburghfortheeducationandtheopportunity,andI’vedonemybestthroughoutmylifetoextendthatopportunitytootherswithdisabilities.Intheend,that’swhatcountsthemost.IhavebeenbothproudofandgratefulfortheleadershipPittdemonstratedbyacceptingme.”
wheelchairtohaveeverattendedPittsoyoucanimaginehowthatsituationmademefeel.Iwaswellawarethatmysuccessorfailurewoulddetermineifotherswithdisabilitieslikeminewouldfollow.”
Byhisjunioryear,theUniversityhadbuiltthreewheelchair-accessibledormsandbythetimehegraduated,13residentialstudentsusingwheelchairswereattendingPitt.
Experience that Counts
ChuboncontinuedontoearnaMaster’sdegreefromPittinrehabilitationcounselingandbeganworkingwithpeoplewithdisabilitiesatSt.FrancisMedicalCenter.Withintwoyears,hebecametheadministratoroftheRehabilitationMedicineDepartmentwhereheusedhisbackgroundandexperiencetorefineandexpandtheprogram.AsaresultofguestlecturingatPitt,hewaspersuadedtobecomeafull-timeeducatorandearnedadoctoratefromPittin1979.In1980,Chubonandhiswife,Sandra(NURS’66,GSPH‘69),movedtoColumbia,S.C.,wherehewasaneducator-researcherattheUniversityofSouthCarolinaSchoolofMedicineforthenext21years.
Chubonhaswrittenawell-knowntextbookonrehabcounselingentitled“TheSocialandPsychologicalFoundationsofRehabilitation,”andhasauthoreddozensofpeer-reviewedarticlesonthesubject.Healsohasreceivedwide
“I was well aware that my success or failure would determine if
others with disabilities like mine would follow.”
�� F A C E T S S P R I N G / S U M M E R 2 0 0 9
R e a l W o r l d
Nowinthehomestretchtowardgraduation,ThompsoniscompletingfieldworkatTheChildren’s
Institute.HerpreviousexperiencesattheWesternPennsylvaniaSchoolforBlindChildrenaffirmedherloveofworkinginpediatrics,whichcontinueswithherassignmentattheChildren’sInstitute.AdditionalexperienceshaveincludedworkingwithstrokepatientsandthosewithspinalcordinjuriesonanoutpatientbasisatUPMCSouthsideCentersforRehabServices(CRS).
Onthisday,sheisworkingwithColton,atwo-year-oldwhowasbornwithArnold-ChiariMalformation,acompressionofthespinalcordorbrainstem.This
real WorldThe
F A C E T S S P R I N G / S U M M E R 2 0 0 9 ��
congenitalanomalyconsistsofelongatedpeg-likecerebellartonsilsthataredisplacedintotheuppercervicalcanal.Oneofthesymptomsofthediseaseisdifficultyswallowingordysphagia.
“Coltonhasdifficultyeatingandwasseverelyundernourished,”saysThompson.“Ratherthaninsertingafeedingtube,hewasadmittedtotheFunctionalFeedingProgramaboutamonthago.Weintroducehimtoavarietyoffoods,differenttextures,inanefforttogethimtoeatmoreandgainweight.”AsanexampleofsomeofColton’seatingissues,shenoteshehaslatedumpingsyndrome,sohedoesn’tfeelhungry.Onamorepersonalnote,hedoesn’tliketogetmessysopuddingdidn’tappealtohim,
althoughnow,afterparticipatingintheFunctionalFeedingProgram,hedelightsinpushingitaroundhisplate.
“OneofthefirstthingsIdidwithColtonwastomakefunnyfacesoutofthefood.We’vealsoaddedpastatotherepertoirebecauseithasadifferenttexture,”sheimparts.Playingwithfoodisonewaytohelpmakeeatingfun,somethingthatisoftenmissingforchildrenwitheatingdisorders.
TheChildren’sInstitutetakesanintegratedteamapproachwithpatientslikeColton.BeforehearrivedforhisrehabilitationsessionwithThompson,Coltonhadbreakfastwithhismotherandabehavioralpsychologist,whohelps
thefamilyunderstandColton’stherapysotheycancontinuewithitwhenhegoeshome.“Childrencanfallbacktotheiroldeatinghabitsoncetheyleavetherapy,soit’simportantthatweteachColton’smothertoreinforcewhathe’slearnedonceshe’sbackinthedriver’sseat,”saysLesliePaat,anoccupationaltherapistattheChildren’sInstituteandaco-supervisorandmentortoThompson.
Colton’smealshavebeenprescribedbytheteamclinicaldietician,whomakessurehisdailynutritionalandcaloricintakeareoptimal.Coltonalsoseesaspeech-languagetherapistandtheentireteamworksunderthedirectionofapediatrician.
real WorldTheWhen Collin Thompson was a sophomore at Juniata College in Huntington, Pa.,
a friend suggested she might make a great occupational therapist. Thompson did
some investigation and volunteer work and decided the profession was right for her.
�� F A C E T S S P R I N G / S U M M E R 2 0 0 9
AnothersideeffectofArnold-Chiariisataxia,thelackofcoordinationandunsteadiness.Unlikeaveragekidswholovetoswing,spin,andtwirl,Coltondoesnotlikethesesensations.TohelpColtonfeelmorecomfortablewiththesemotionsThompsonputshiminaswing,“Wewanthimtofeelcomfortableintheswingandhelpimprovehisvestibularmovement,”shenotes.
AspartofThompson’sfieldwork,shehasdevisedanewtwistforFunctionalFoodTherapy,PlayPicnic.SheremarksthatPlayPicnicisbasedonearlierEuropeanworkdesignedtomakechildrencomfortablewithfood.“The‘picnic’lastsaboutanhourandistotallydirectedbythekids,mostofwhomaretwo-year-olds–withadultsupervisionofcourse,”shesmiles.“It’sanythinggoesfor60minutes.Theycanthrowthefood,theycaneatthefood,theycanplaywiththefood,thesky’sthelimit.”
ButThompson’sfieldworkattheChildren’sInstitutehasn’tallrevolvedaroundtheFunctionalFeedingProgram.“I’vehadtheopportunitytoworkwithyoungpatientswithbraininjuries,burns,tumors,andthoseintheRND(reflexneurovasculardystrophypain)program.”
Beforegraduation,ThompsonhasonefinalfieldworkassignmentatUPMCPresbyterianHospitalinacutecare.“I’mlookingforwardtotheexperiencebecauseitwillbesomuchdifferentfrommycurrentfieldwork.”ButcountonThompsontoendupinpediatrics.“Ireallyfindworkingwithchildrenincrediblyrewarding.”
R e a l W o r l d
“They can throw the
food, they can eat
the food, they can
play with the food,
the sky’s the limit.”
F A C E T S S P R I N G / S U M M E R 2 0 0 9 ��
Therearesomecareersevenyoungchildrendreamabout:adoctor,ateacher,amusician,
oractor.Theseareprofessionsweareexposedtofromearlyinlife.Schoolorscoutscanbroadenourhorizons.Literatureandfilmexposeustothelegionsofpossibilitiesavailable.Thesky’sthelimit.
Butworkingtohelppeoplewithdisabilitiesisn’tgenerallyatthetopofthelist.Unlessyouhavefamilyorfriendswithdisabilities,chancesareit’snotevenontheradarscreen.Sohowdostudentsdiscovercareersinrehabilitationscienceandtechnology?
Almostsinceitsinceptionin1994,theDepartmentofRehabilitationScienceandTechnology(RST)hasoffered
undergraduatestudentstheabilitytotestdrivethedisciplinethroughaseriesofinternshipsandundergraduateresearchprograms.“TheResearchExperienceforUndergraduates(REU)beganasaninformal
programtoexposestudentstothesubject,”saysMary
Goldberg,educationandoutreachcoordinator
fortheQuality
ofLifeTechnology(QoLT)CenterandtheUniversityofPittsburghDepartmentofRehabilitationScienceandTechnology.GoldbergisalsoresponsibleforthefacilitationoftheREU,anoffspringoftheAmericanStudentPlacementsinRehabilitationEngineers(ASPIRE)ProgramwithgrantfundingfromtheNationalScienceFoundation.StudentscometoREUfromavarietyofdisciplines.
“Theymaybestudentsinengineering,rehabilitationscience,physicaltherapy,oroccupationaltherapy,”Goldbergnotes.
Studentsinthe2009programwillhaveanopportunitytochooseamongseveralresearchprojectsincludinginvestigatingtransfertechniquestominimizeshoulderjoint-loadinginwheeledmobilityusers,buildingandtestingasmartcontrollerforelectricalpoweredwheelchairs,orthedevelopmentofaVirtualJobCoachforveteranswithtraumaticbraininjury.
“Ithinkit’simportantforstudentstoworkonissuesthatarerealandwhoseoutcomesmightreallymakeadifferencetoapersonwithadisability,”statesDr.DanDing,assistantprofessorofRSTandarehabilitationscientistattheHumanEngineeringResearchLaboratories(HERL).Aspartoftheprogram,participantsalsovisittheCenterforAssistiveTechnologywheretheyinteractwithclients.
“Thestudentssaidtheyappreciatedtheexperienceofinteractingwiththeendusers,somethingtheywouldneverhavetheopportunitytododuringtheirundergraduateyears.”
R e h a b i l i t a t i o n S c i e n c e a n d T e c h n o l o g y
A New BrANd of CAreer Builder
�8 F A C E T S S P R I N G / S U M M E R 2 0 0 9
Theyoungresearchersworkhard,puttingin40-hourworkweeksrunningfromlateMaythroughAugust.“Studentsreceivetravelexpenses,astipend,andhousingintheuniversitydorms,”Goldbergpointsout.
“Attheendofthesummer,weholdaresearchsymposiumwithbothinternshipprogramssostudentscanshowcasetheirresearchinpostersandmakepresentations,”Dingnotes,indicatingthatthisyear,theyplanto
extendinvitationstotheadvisorsfromthestudents’homeuniversities.“IfthestudentcomesfromtheUniversityofFlorida,forexample,wewouldinvitethatstudent’sadvisororclosefacultymentorsotheywouldgettoseefirsthandtheworkthatthestudentsaredoing.”Shenotesthatstrengtheningrelationshipswithfacultyaroundthecountryisalsoimportantfortheprogram.
Goldbergsaysallstudentsarerequiredtowriteatechnicalpaperbasedontheirresearchexperience.Theyarealsoencouragedtosubmittheirworktoaconferenceoftheirchoice,suchastheRehabilitationEngineeringandAssistiveTechnologySocietyofNorthAmerica(RESNA).“Iftheirpapergetsaccepted,weunderwritetheirattendanceattheconference.”
GoldberghasbeenusingmoderntechnologylikeFacebooktodeterminehowpreviousparticipantshaveincorporatedtheirexperiencesintotheirprofessionaloreducationallives.“Nearly60percentofthestudents
who‘graduated’fromREUwentontograduateschool,32percentofwhompursuedadvancedpractitionerdegreessuchasphysicaltherapy,occupationaltherapy,ormedicine.”Shealsonotesthatherresearchindicatesthatnearly30percentworkinafieldrelatedtoassistivetechnology.
TheREUprogramhasbecomemorepopularasstudentsbecomemorefamiliarwithit.“Overthepastthreeyears,we’vereceivedmorethan100applications,whichistriplewhatweusedtoget,”saysDing,“Sowearedefinitelymoreselective.”Goldbergadds,“Wejustpassedthedeadlineforthe2009programandreceivedmorethan175applications.”
Encouraging STEM Studies
ProgramsliketheREUrelyonundergraduateswithaloveofscienceandtechnology,althoughtheymaynotstartoutthatway.Manystudentsarechallengedbyscience,technology,engineering,andmath,knownasSTEMsubjects.Butimagineyou’reamiddleorhighschoolstudentwiththeadditionalchallengescausedbyaphysical,visual,orhearingdisability.STEMsubjectsmayseemevenfartheroutofreach.EnterTech-Link,whosemissionistoencouragestudentswithdisabilitiestoconsidercareersintechnology.SondraBalouris,RSTinstructor,isfounderandexecutivedirectoroftheprogram.“Wethinkthatitisfundamentallyimportantforyoungpeoplewithdisabilitiestobeabletolivefunctionalandindependentlives,andcareersintechnologyandthesciencescanputthemonthatroad.”
“Nearly 60 percent of the students who ‘graduated’
from REU went on to graduate school, 32 percent of whom pursued advanced practitioner degrees such as
physical therapy, occupational therapy, or medicine.”
R e h a b i l i t a t i o n S c i e n c e a n d T e c h n o l o g y
F A C E T S S P R I N G / S U M M E R 2 0 0 9 �9
“OnewaytoincreasediversityamongSTEMprofessionalsistoactivelyrecruitstudentswithdisabilitiesatayoungage.Tech-Link’sfallroboticscampengagesmiddleschool-agedchildrenwithdisabilitiestojointeamswiththeirnon-disabledpeers,”Balouriscomments.
The10-weekTech-LinkprogramculminateswiththeregionalFIRSTLegoLeagueCompetition,inwhichmorethan1,000studentsfromaroundtheareacompete.Fittingly,theeventishostedbyCarnegieMellon’sNationalRoboticsInstitute.TheFIRSTLegoLeagueisaglobalroboticsprogramthatignitesanenthusiasmfordiscovery,science,andtechnologyinkidsagesnineto14,or16outsideoftheU.S.andCanada.
Eachyear,world-wide,athemeisselectedandparticipantsconstructandprogramrobotstofitthetheme.
Tech-Linkcompetitorsgoanextrastepinthattheyconductaresearchprojectrelevanttothetheme.“Oneyear,thethemewasOceanOdyssey,andthestudentsinvestigatedbeachaccessibilityforpeopleusingwheelchairs,”saysGoldberg.
Balourispointsoutthat,moreandmore,Tech-LinkstudentsarematriculatingintotheREU.“WebelievethisdemonstratesthatifyoucanexposestudentsearlytoSTEMsubjects–andmakethemfunandapplicable–theycanbecomeenthusiasticlearners.”
“We think that it is fundamentally important
for young people with disabilities to be able to live functional and independent
lives, and careers in technology and the sciences can put them on that road.”
Tech-Linkstudentsalso‘shadow’professionalsinthesciencesandhaveinternedwithorganizationsandcompaniesincludingHERL,Highmark,andtheNationalWeatherService.
OnestudentwithcerebralpalsywhoparticipatedinTech-Linkisgoingontoengineeringschool.“Hermothersaidthatifitwerenotforthisexperience,shewouldn’thavehadtheinterestinengineeringthatshedoes,andshe’snowbeenacceptedtoanumberofengineeringprograms,”saysDing.ThatsamestudentsubmittedapostertoaQoLTcompetitionandherentrywon.Another“six-yearveteran”ofTech-LinkwillcompletehisfirstyearofengineeringatCarnegieMellonUniversitythisMay.
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Beingliterateinmodernsocietymeansbeingabletoreadandwrite.Yet,“TherehasbeensomuchattentionpaidtohelpingchildrenreadthatIthinkwehaveallbutignoredtheoriginsofgoodwriting,”saysDr.Cynthia
S.Puranik,assistantprofessor,DepartmentofCommunicationScienceandDisorders.AccordingtotheNationalAssessmentofEducationalProgress(NAEP),75percentofschool-agestudentsonlyachievepartialmasteryofgrade-levelwriting,andjustonepercentwriteataproficientlevel.
“Justaswecanpredictwhichchildrenareatriskforreadingdisabilities,weshouldbeabletospotthestudentforwhomwritingmaybeachallenge.”AndthatiswhatPuranik’sresearchisdesignedtoaddress.Thankstoa$1.1milliongrantfromtheNationalCenterforEducationResearch,Puranikwillsoonbeginassessingpreschoolchildren,agesthreetofiveyears.Theywillberepresentativeofthenationwithrespecttoage,gender,andethnicity,andwillincludechildrenfromdifferenttypesofpreschoolsandfamilysocioeconomicbackgrounds.Puranik’sresearchisdesignedtoestablishcriteriaforassessingchildren’swrittenlanguage.Hercurrentstudiesfollowalineofresearchsheinitiatedatthe
FloridaCenterforReadingResearch,FloridaStateUniversity,whichwassupported
byapostdoctoralfellowshipfromtheInstituteofEducationScience,
USDepartmentofEducation.
C o m m u n i c a t i o n S c i e n c e a n d D i s o r d e r s
WRITE?JohnnyBut, Can
F A C E T S S P R I N G / S U M M E R 2 0 0 9 ��
“IwasoriginallylookingatolderchildrenwhenIrealizedthattheoriginsofwritinginyoungchildrenhavenotbeenstudiedthatintensely.Mostoftheresearchthathadbeenconductedhasbeenmoreobservationalorcasestudy-basedbutnotsomethingthathasbeenquantified,”Puranikcontinues.
Puraniknotesthatchildrenenterschoolhavinghaddifferentqualitativeandquantitativeencounterswithprintthroughtheirexperiencesathome.Shealsoindicatesthatitiswellknownthatchildrenlivinginpovertyaredisproportionatelymorelikelytobereferredforspecialservicessuchasspeechandlanguagetherapyorlearningdisabilityclassesduetopoorreadingandwritingskillsandacademicperformance.
“Perhapsthesechildrencomefromhomeswherenoadultreadsanewspaper,receivesapersonalletter,orreadsbooksoutloud,”notesPuranik,whoindicatesthatthesechildrenenterkindergartenclassroomswithlowlevelsofemergentliteracyskillsintheareasoflanguage,phonologicalprocessing,andprintknowledge.“Unfortunately,thesechildrenmayalsoattendpreschoolsthatdon’tprovideoptimalsupportforthedevelopmentofliteracyskills.”
When Does Writing Begin?
Virtuallyeveryparentofayoungchildhasturnedtherefrigeratorintoamuseum,adornedwiththelatestartcreatedbyabuddingvanGoghorWarhol.Theseseeminglymeaninglessscribblesareanearlyprecursortothewrittenword.Doyourememberthefirsttimeyouwrotesomethinglegible?Probablynot,butchancesareitwasyourname–oratleastthefirstletterofyourname.Researchindicatesthatthisisthecasebecauseone’snameisimportanttodevelopingasenseofselfandfeelingsofcontrol.
“Thisdemonstratesagainwhyparentsorcaregiversaresoimportanttoemergentliteracy,”statesPuranik.
Parentsattachmeaningtothespokenwordandthat’showchildrenlearntotalk.Similarly,parents,caregivers,andteachersattachmeaningtoearlyscribblesandthat’safirststepinlearningtowrite.Butit’smorecomplicatedthanthat.“Youhavetorememberthatwritingalsohasamotoriccomponenttoit,soaskingathree-year-oldtowritehisorhernamemightnotbereasonable,”shepointsout.
Justaschildrendonotbegintotalkbyspeakingincomplexutterances,childrendonotbeginwritingincompletesentences.Similartothedevelopmentoforallanguage,theacquisitionofwritingskillprogressesinstages.Aschildren’swritingdevelops,certainfeaturesaremanifestintheirwrittenoutput.Thesewritingfeaturescanbegroupedintouniversalandlanguagespecificfeatures.Universalfeaturesofwritingincludelinearity(writingunits/marksareorganizedinstraightlines),discretenessorsegmentation,andlackoficonicity(writingunitsareabstract)thatalllanguagesshare.Language-specificfeaturesofwritingincludedirectionality–lefttoright–symbolshapes,andspacingbetweenwords.
Forexample,inEnglishwewritefromlefttoright,butinArabiconewritesfromrighttoleft.“Linearityisafeaturethatislearnedearly,whichchildrenseemtopickupfromwatchingadultswriteorfromnoticingtheorientationofprint,”shepointsout.“Segmentation,understandingthatwritingissomehowmadeupofdiscreteseparateunits,comesabitlater.Researchsuggeststhatchildrenbegindisplayingsomeknowledgeoftheuniversalproperties
ofwritingasearlyasagethree,andbyfour,mostchildrenhavewrittenoutputthatislinearanddiscrete,”saysPuranik.Butsheaddsthatit’snotreallywritingasweconventionallyknowit,butratherscribblescontainingmade-upletters.
Inherearlierresearchresults,Puranikexplains,“Ourresultspointmoretowardalinearprogressionoflearning;developmentofwritingtakesplaceinsequentialsteps.Earlyfeaturesaremasteredfirst,andtheseearlyfeatures,inturn,contributetotheacquisitionoflaterdevelopingskills.Asappliedtowriting,whatthismeansisthatchildrenwilldemonstratetheuniversalfeaturesofwritingbeforetheydemonstrateknowledgeofthelanguage-specificcharacteristicsoftheirwritingsystem.”
Numerous Gaps Remain
Puraniknotesthatalthoughpreviousresearchonemergentwritinghasbeeninstrumentalintheidentificationofearlywritingbehaviorsinyoungchildren,numerousgapsremaininourcurrentunderstandingaboutearlywriting.“First,thereisnocommontheoryofhowwritingdevelops,”saysPuranik.“Whetherthewritingofveryyoungchildrenshowssuperordinatefeatures,ordinatefeaturesorbothhasnotbeenthesubjectofthoroughinvestigations.”
Shecontinues,“Second,withafewexceptions,studiesexaminingearlywritinghavegenerallyinvolvedasmallnumberofparticipantsfromselectsocio-economicgroupsorhavebeendescriptivecasestudies.”
Andfinally,Puraniknotesthatamajorshortcominginresearchonemergentwritingisthelackofconsensusonhowitshouldbemeasuredandquantified.PuranikpointstotheNationalEarlyLiteracyPanel,whichidentified10studiesonwriting.“Butnostudyusedasimilarscoringsystemandasaresult,eachchild’sscorevarieddependingonthecriterionusedforaparticularstudy.”
…75 percent of school-age students only achieve partial
mastery of grade-level writing, and just one percent
write at a proficient level.
WRITE?JohnnyBut, Can
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C o m m u n i c a t i o n S c i e n c e a n d D i s o r d e r s
CSDGrantProvidesStudentScholarshipsTheDepartmentofCommunicationScienceandDisorders(CSD)hasbeenawardeda$600,000grantfromtheU.S.DepartmentofEducation(DOE)toprovidescholarshipstoqualifiedstudentsenrolledintheDoctorofAudiology(AuD)program.StudentscurrentlybeingrecruitedfortheFall2009-2010termmayreceivescholarshipsthatwillcoverthemajorityoftuitioncostsoverthethreepre-externschoolyears.Severalstudentscurrently
enrolledintheAuDprogramarebeingselectedtoreceivesupport.
TheDOEprogramisintendedtobringincreasedattentiontothegrowingnationwideneedforpractitionersofpediatricandeducational(“ped-ed”)audiology.Selectionofawardeesfavorsstudentsofhighscholasticachievement,strongundergraduateCSDbackgrounds,andanexpressedcareergoalofjoiningtheranksofaudiologistsworkinginthesefields.
AccordingtoDr.JohnDurrant,professorandvicechairofCSDandprojectdirector,studentswillbeeducatedunderanintensifiedplanthataimstomeetgeneralaudiology
competenciesandprovideapediatric/educationalaudiologyemphasis.“Studentswillreceiveped-edenhanceddidacticstudy,clinicalpracticum,clinicalresearch,specialconferences,and,ultimately,pediatricand/oreducationalexternshipplacement.”
“Studentswillalsobecomepartnerswithfaculty,workingtogethertofocuseffortsandresourcesacrossspecialtiesonthisimportantareaoftheaudiologist’spractice,”hepointsout.Theprogramwillalsostrivetobringtogetheraudiologists,speech-languagepathologists,andeducatorstoincreaseattentiontolinksacrossauditoryprocessing,speech-language,andliteracydevelopment.
Consequently,comparisonsamongstudiesaredifficultandgeneralizationoffindingsisalmostimpossible.
Inhercurrentresearch,PuranikisbuildingonherworkattheFloridaCenterforReadingResearch.“Inthecurrenttestinganddevelopmentstage,we’relookingatwhatskillsareimportanttowriting.Howdochildrenlearntherearedifferentkindsofprintandthatprintservesdifferentfunctions?Howdotheycometothepointofrecognizingsymbolsandprint?Ithink
that’soneaspectofit.Andthenthere’sthephysicalactofwriting,andfinallybeingabletoputwordstogetherandmakeacoherentsentence.”
Home Environment Key
Justaswithreading,youngchildrenwhohaveparents,caregivers,oroldersiblingsactivelyinvolvedwiththeiremergentliteracyappeartodobetterthanthosewhodonot.“Wedon’treallyknowwhatspecifichomeliteracybehaviorsmightberesponsibleforthegrowthofwriting,”
saysPuranik.“Butit’ssafetosaythatwhenchildrenareallowedtoexplorewithwritingutensils,whenparentsactivelyengageachildin‘writing’projects,thekidsdobetter.Wedon’tknowspecificallywhatismoreimportant;isitthatparentsactuallymaketheirchildrenwrite,teachthemthelettersofthealphabet,playgameswithsounds,orisitjustsufficientthattheypointtowordsinabook.”
Youngchildrenmimicwhattheyseetheirparentsdoingorsomethingthey’veseenontelevision.Theymightpretendtocreateashoppinglistoransweratoytelephoneandtakeamessage.Puranikpointsoutthatveryyoungchildren,aroundtwo-and-a-half,justknowtheyneedtofillinanemptyspaceonpaper,andit’susuallywithscribbles.Butparentshelpchildreninotherways.“Ababypointsandsayssomethingundecipherable,butthemothersays‘hewantshisbottle.’Childrenlearnfromthemeaningsthatadultsassigntowhattheysay.Theylearnspokenlanguagelikethat,andtheyactuallylearnwrittenlanguagethesameway.Adultsgivemeaningtotheirearlyscribbles.”
F A C E T S S P R I N G / S U M M E R 2 0 0 9 ��
Theacademiccoordinatoroftheproject,entitled“PreparationofAudiologiststoServeChildrenwithAuditoryDisorders,”isDr.DeborahMoncrieff,assistantprofessor.ShenotesthatthegrantsubmissionwastheconcertedeffortoftheentireaudiologyfacultyandstronglysupportedbytheCSDfacultyatlarge.ThisisthefirstgrantofitstypetobeawardedtoCSD.
Durrantnotesthat,althoughagreatdealofsuccessfulresearchhasbeenconductedtodevelopuniversalnewbornhearingscreeningandearlyinterventionofhearingimpairments,theAuDdegreehasbeenstronglydrivenbyadvancesinthe
diagnosisandtreatmentofhearingproblemsinadults,especiallyintheagingpopulation.Technicaladvancesandinformationgrowthhavesimilarlygreatlybenefitedthediagnosisandtreatmentofchildren,evenyounginfants,yet,accordingtoDurrant,thegrowthrateofaudiologistsgoingintopediatricandeducationalaudiologyisratherflat.
“Encouragingstudentstopursueped-edwillhelpensureacontinuingpooloftrainedprofessionals.”
Puranikrelatesthestoryofateacherwhotellsheryoungstudentstowritetheirnamesandonelittlegirlbecameexcitedandproudthatshehadwrittenhernametellingtheteacher,“Look,thatsaysmyname!”“Anuntrainedpersonmightwonderwhatthefussisallaboutbecauseallthechildhadwasawavylineonthepaper.However,theteachermadethoseearlyattemptsatwritingmeaningfulandattachedsignificancetoawavyline.Ithinkitwasanexampleofunderstandingbythelittlegirlthatwhatshewritesactuallycarriesmeaning.”
On-line Environment Creating Shifts
Thereisnoquestionthatthecomputerhasrevolutionizedourlivesinagoodway.Butitmayhavealsoledtoadeclineinourhandwritingskills.“Today,kidsarealreadytypingandspendingalotoftimeonthecomputeratayoungageandwedon’tunderstandthelongterminfluenceofverylittlewritingonpenmanshipandwriting.Thereisagoodamountofresearchthatshowshavinghandwritingfluidtyandspeed,notpenmanship,isactuallyaveryimportantcomponentofwritingandcomposing,”Puranikcautions.
Thereisalsothequestionofthe‘new’languagebeingcreatedbyanoverabundanceoftextmessaging,whichhasledtodeteriorationinspellingskills.Furthermore,“Wehavealreadybecomereliantonthespell-checkingfeatureonourcomputers.EvenIoftenhavetroublespellingwords.IknowIcantypeawordthatcloselyresemblesthetargetwordandthecomputerwill
dotherestforme.Idon’twanttoimaginetheimpactofthisonthecurrentgeneration,”Puranikconcludes.
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H e a l t h I n f o r m a t i o n M a n a g e m e n t
Itissaidthatnecessityisthemotherofinvention.Sometimesthisclichéevenhelpsplotthecoursewetakein
life.That’swhathappenedtoDr.SajeeshKumar,assistantprofessor,DepartmentofHealthInformationManagement.AsayoungboyinruralIndia,Kumar’sgrandfatherwasworkinginthefieldswhenanaccidentcausedaseriouseyeinjury.Whilethegeneralpractitionerdidhisbest,bythetimetheytraveledtothecitytoconsultaneyespecialist,Kumar’sgrandfatherhadlosthiseyesight.
“Ithought,whyshouldwehavetogotothecity?Whydidwehavetowaitforhoursandhoursandhoursintheclinic?”saysKumar.Ashegrewolder,herealizedthatwhenNeilArmstrongwalkedonthemoonin1969,NASAscientistswereabletomonitorhisheartratefrom250,000milesaway.“Telemedicineisn’tnew;wejustneededtoadaptittothevariousmedicaldisciplines.”
SobeganKumar’seducationalsojourn,firstwithadegreeinvisionsciencefromtheMedicalResearchFoundation
inIndia,toamaster’sinmedicalinformaticsfromErasmusUniversityinTheNetherlands,andfinallyadoctorateintelemedicinefromtheUniversityofWesternAustralia.
“Telemedicineusestelecommunicationstodeliverhealthcare,oftenovergreatdistances,withpotentialcostsavings,particularlyinremoteandruralareas.Itisamulti-disciplinaryundertakingrequiringexpertisefromthetelecommunications,healthcare,andinformationtechnologysectors,”Kumarexplains.“However,therearealsoconcernsaboutliability,confidentiality,andotherpolicyandregulatoryissues.”Sothedisciplineisworkingtoadoptsoundpoliciesandstrategicplansthatguaranteetheprovisionofhigh-quality,sustained,andintegratedhealthcareservices.
AndKumarhasstudiedthepracticalitiesoftelemedicinearoundtheworld.NomoreprofoundanexampleofwhereitissuccessfullybeingusedistheRepublicofSeychelles,anarchipelagoof115
islands1,000mileseastofAfricaintheIndianOcean.Thetotalnumberofinhabitantsintheislandchainisjust82,300.
ThereisoneprimaryhospitalinthecapitalofVictoria,someprivateclinics,andcommunityhealthcentersonjustfouroftheislands,makingregularmedicalcareandscreeningsfortheaverageresidentverydifficult.Patientsneedtobetransportedbyboattothemainislandforspecialistcare.Therefore,theSeychellesrepresentedanenormousopportunitytodemonstratetheimportanceoftelemedicine.
“Withmypersonalinterestinvision-relateddiseases,Ifocusedonglaucoma,thesecondleadingcauseofblindnesstodayafterdiabeticretinopathy.
“IwantedtodofurtherinvestigationoftelemedicineandIfoundWesternAustraliatobeideal,”Kumarpointsout.WesternAustraliaisthesecondlargestsubnationalentityintheworld–almostamillionsquaremiles–yethasapopulationofjust2.1million.
F A C E T S S P R I N G / S U M M E R 2 0 0 9 ��
Asanexample,hepointstothenortherntownofKununurra,withjust3,700inhabitants,some1,900milesfromthecapitalofPerth.Kununurraistoosmalltosupportitsownhospital,yettooremoteforcitizenstoregularlytraveltohealthcarefacilitiesinthecapital.
Traditionally,ophthalmologistsandothermedicalpersonnelwouldtraveltofar-flungsectionsofWesternAustraliaonceortwiceayear.Butthiswasanexpensiveundertaking,Kumarpointsout,oftencosting$8,000perweek.
Buttheideaoftele-ophthalmologywasappealingtotheAustralianDepartmentofHealth.“Web-basedeyecaremakesincrediblesense,”saysKumar,notingthatitincreasesefficiency,resultsindigital,qualityimages,andnewertechnologyhasmitigatedband-widthproblems.
“Wecantrainnon-professionals,includingretirees,tooperatetheequipment,whichisveryuserfriendly.”Imagestakenwithnew,portabledevicesarestoredonalaptopandthenuploadedtoacentralizedserver.Whenapatientisscreened,ane-mailisautomaticallysenttoanophthalmologistwhocanprovidethepatientwithadiagnosiswithin24hours.
Kumarcommentsthatearlyintheprocess,aroundtheyear2000,therewassomeconcernaboutpatientconfidentiality.“Buttoday,wehaveexcellentfirewallsandsecuresystemsthatinsureallinformationisprotected.”
The Evolution of Medicine
Telemedicineisjustthenextstepinamedicalcaresystemthathasevolvedoverthelastcentury.“Therehasbeenashiftinmedicalcaredelivery–awayfromthehospitalsandintothecommunity.”Infact,$155millionfromtheAmericanRecoveryandReinvestmentAct(ARRA)hasbeenreleasedtoestablishmorethan5,500communityhealthcentersacrossthenation.
“Peoplenowwantqualityhealthcareintheirneighborhoods,orevenintheirhomes,”saysKumar.“Theyasktheirphysicianforcertaintreatmentormedications.ThereisextensiveinformationavailableontheInternetandpatientsarebecomingmuchmoresavvyabouttheircare.
“Ithinktheshiftinthecurrentcenturywillbetowardevenearlierdiagnosisandpreventionratherthantreatingthedisease,”hecontinues.Continuingadvancesingenotypingcouldallowmoreindividualizedtreatment.“Butatthesametime,thepopulationisaging,andtherewillbemoremorbidityandmultiplediseasestotreat.IwitnessedthisinSingapore,wherepatientsrequiredmorespecializedcare.Themedicalestablishmentisadjustingtothenewparadigm.”
Andofcourse,patientswithmultiplediseasesareagreaterchallengetomanage.“Electronicmedicalrecordsarethewayofthefuture.Changeisalwaysdifficult,butintheend,costswillbereduced,medicalerrorswillbereduced.”Thefederalgovernmentrecognizestheimportanceofelectronicrecords.TheARRAincludes$19.2billiontojumpstartthetaskofEMRexpansion,andPresidentObama’sproposedbudgetallocates$76.8billionover10yearstocontinuetheprocess.
Astelemedicinebecomesmorecommon,theimportanceofelectronichealthrecordswillgrow.Theaccessibilityofup-to-dateinformationondiagnosisandmedications,forexample,willbeparamounttosuccess.Justasimportantly,therecordswillbeupdatedquicklyandeasily,ensuringthatthenexthealthcareprofessionalwillhaveaccesstothenewdata.Kumaralsopointstoagreenbenefittoelectronicmedicalrecords,“Thinkofthetreesthatwe’llsavebyswitchingfrompaperrecords.”
Hetakesitastepfurther,“Offercarboncreditsforpeoplewhousetelemedicine.Thehealthcareindustryisalreadyoneofthebiggestusersofenergyinthiscountry.Ifwecaneliminatetheneedforpatientstodrivetoseetheirphysiciansorhealthcareprofessionals,wecanimprovehealthcaredeliveryandhelpsaveourresources.”
“Electronic medical records are the way of the future. Change is
always difficult, but in the end, costs will be
reduced, medical errors will be reduced.”
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Nodoubtatsomepointinyourlife,momadmonished“Don’tplaywithyourfood!”Behonest,aservingofpeas
scatteredaroundtheplatejustmighthavebeenmissed.
ButforJudithL.Dodd,adjunctassistantprofessor,DepartmentofSportsMedicineandNutrition,andsomeofherstudents,playingwithfoodislearningaboutfood–withaservingofnutritionontheside.DuringMarch,NationalNutritionMonth,Doddandthestudentstooktheir“foodplay”totheChildren’sMuseumofPittsburghforwhatthemuseumdubbed,“GetMoving,GetHealthy!”TheactivitywaspartoftheWeCan!series,promotinghealthy,physicallyactiveplay,sponsoredbyUPMCHealthPlanandtheGiantEagleChildDevelopmentSeries.
“TheChildren’sMuseumisagreatplacetoconductthiskindofactivity,”saysDodd.“Theyhaveayoungclientelewhoaregenerallyaccompaniedbyparentsorcaregivers,whichisgreatforexposingthewholefamilytogoodnutritionandhealth.”Shefurthernotesthatparentstaketheirchildrentothemuseumbecausetheyareinterestedinaneducationalexperiencesothekidsaregenerallypredisposedtolearning.
Doddandherstudentsseealotofhome-schooledchildrenandschoolgroups,aswell.
“Wealwaysbringhulahoopsandjumpropesbecausewewanttohighlighthowimportantitisforkidstobeactive,”Doddcontinues.Theyalsoofferinteractivegamesthathelpchildrenlearnaboutfoodsandthefoodpyramid.Commonitemslikeapplesareplacedinabagandchildrenhavetoidentifythemjustbytouch.Thekidsaregivenclues,‘it’safruit,it’savegetable,’whichvarydependingontheirage.
Andhowdothechildrendo?“Surprisinglywell,”Doddreports,“Althoughtheyfrequentlycan’tidentifyarealcarrot,whichisnottoosurprisingsincemostkidstodayeatshort-cutcarrots.”Therearealsotheoccasionalunfortunateerrors,likemistakinghealthylow-fatmozzarellasticksforbeefjerky.
“Weliketogetadiscussiongoingaboutfoodandnutrition.Onegamechildrenseemtoenjoyisfishingforfood,”shepointsout.Oncethey’ve‘caught’thefood,theyhavetoplaceitinitsfoodgrouporidentifywhereitlandsonthefoodpyramid.
ForDodd’sgraduatestudents,thisispartofthecourseSupervisedPracticeintheCommunity,whichplacesstudentsinsettingsthatspanthelifecycle.“It’sanopportunityforthestudentstoseethatthesearegoodvenuestotakenutritioneducationandtowatchtheinteractionwiththeparents,who,ofcoursedon’twanttheirchildrentofail.”Itcouldproveembarrassingforaparentifhisorherchildcan’tidentifyacommon,healthyfood.
S p o r t s M e d i c i n e a n d N u t r i t i o n
Nutritional Knowledge Decreasing
Despitethefactthatmorepeople,includingyoungchildren,areobese,ourknowledgeofgoodeatinghabitsseemstobeonthedecline.Evenchildren’sknowledgeofactualfoodandwhereitcomesfromisonthedecline.“Forsomekids,theythinkafruitcomesinalittleplasticcontainerthatyoudrinkwithastraworyoufindpeasinthesupermarketinacanorthefreezer,”lamentsDodd.“Andlemonjuicecomesfromasqueezebottle.”
Shealsonotesthatwehavegivenpeoplepermissionnottocook.“Inmyestimate,weareonthethirdgenerationoffoodilliterates.Wegaveuphomeeconomicsinschools.Wegaveuptheideaofhomecooking.ThefingerthatactivatesthemicrowaveisthesameoneweusefortheTVremoteand,forsomepeople,that’sprobablythemostexercisetheygetinaday.”ButDoddandhercolleaguesandstudentsaretryingtoreversethetrend.
Helping Kids Eat Right
“…they frequently can’t identify a real carrot, which is not too surprising since
most kids today eat short-cut carrots.”
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Theyareoutinthecommunity,notjustinmuseums,butinschoolsandevengrocerystorestryingtospreadtheimportanceofgoodnutritionforchildren.“Thiscoursetakesthestudentsintovariouscommunitysettings,”shenotes,includingchildcarecenters,seniorcenters,aWICprogram.Theyarerequiredtogotocertaincoreplaces,butatthesametime,studentshavetheoptionofvolunteeringatcertaineventsandlocations.”
ShecitesstudentsupportofacollaborativeresearchprojectdesignedbyCarnegieMellonUniversitySchoolofDesignandUPMCSaintMargaretFamilyHealthCenterscalledFitWits™.Createdtohelpprimarilyinnercitykidsandtheirfamiliesachievehealthylifestyles,FitWitsincludesfuncharacterslikeElvisPretzley,MontyandJack,andSunnyYoketohelpchildrenlearnaboutthedifferencebetweenhealthyandnot-so-healthyfoods.
AspartofNutritionMonthawareness,participantswereinvitedtotheShadysideMarketDistrictsupermarketforascavengerhunttotrackdowntheFitWitsandtheNitWits,includingtheFryGirls,LollyParton,andChipandtheLittleDipperCrew.
“WeofferedthesamegamesandactivitiesaswedidattheChildren’sMuseum,”saysDodd.“Wealsocloseddownthecafé,whichdidn’tendearustotheseniorcommunitywhoconsiderithome.”
BecausemostofthekidsinvolvedintheprogramalreadyhadtheadvantageoftheirFitWitseducation,theywerefairlyknowledgeableabouthealthyfoodsandtheimportanceofactivity.
Don’t Overlook an Opportunity
BookscanhelpeventheyoungestchildrenlearntheABCsofnutrition,Doddpointsout.Andsheandherstudentshaveheldstoryhoursatlocallibrariesandsupermarkets,evendevelopinglessonplanssurroundingbookslikeGreen Eggs and Ham and
The Berenstain Bears and Too Much Junk Food.
Helping Kids Eat Right
“GreenEggsandHamisagreatwaytoteachkidsabouttryingnewfoods,”accordingtothelessonplanthatcomescompletewitharecipe.
Butsheacknowledgesthatit’softentheparentswhomakefooddecisionsfortheirchildrenwithlittleornoinput.“Aparentmightsay‘Oh,theywon’tlikethatfood’wheninfact,theylikeitverymuchoncethey’vehadachancetosampleit,”declaresDodd.
Inall,Doddismorethansatisfiedwiththecommunity-basedactivitiesinwhichsheandherstudentsparticipate.“There’ssomuchmorewecoulddobuttherejustaren’tenoughentrypointsandpeopletogetthejobdone.Wellnessisacommoditythatisn’treimbursedandtheassumptioniseverybodyknowshowtoeatandeverybodyknowsgoodnutrition.Weknowthat’sjustnotso,andtheresearchprovesit,”Doddconcludes.
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P h y s i c a l T h e r a p y
Agingaffectsusalldifferently.Dependingonlifestyle,diet,andgenetics,theagingprocess
canvarygreatly.Inthesameway,ourbrainchangesasweageandhasprofoundeffectsonmood,memory,andmotorfunction.Whiletherehasbeenagreatdealofresearchinrecentyearsonthechangesinthebrainoftheelderly,inmanyways,wehaveyettoconnectallthedots.
Dr.PatrickSparto,associateprofessor,DepartmentofPhysicalTherapy,hasbeeninterestedinthecorrelationbetweenchangesinthebrainintheelderlyandthelossofbalance,posture,andmobilityforseveralyears.Herecentlybeganpreparingstudieshewillconductaspartofanewfour-year$800,000NationalInstitutesofHealth(NIH)grant.Hisprimaryfocusisonthestudyofthedegenerationinwhitematterpathwaysofthebrain.
Spartoinitiallybecameinterestedinthebrainwhileworkingatabalancedisordersclinic.Aftertreatingawiderangeofolderadults,includingthosewithexcellentstrengthandsensation,itoccurredtohimthatthecentralnervoussystemhadtoberesponsibleforaslow-downinmotorskillsaspeopleage.Ashetookacloserlook,hefeltsurethesechangesweredirectlyrelatedtothebrain.AsSpartobegantoexaminetheissuemoreclosely,hehonedinonwhitematterastherootcause;specifically,hehypothesizedthataswhitematterdegeneratesasweagesodoesourbalanceandabilitytowalk.
Brain Anatomy �0�
TotrulyunderstandthepotentialimpactofSpartoandhisteam’sresearch,it’simportanttofirstknowthephysiology.
Greymatterisamajorcomponentofthecentralnervoussystem,consistingofnervecellbodies,glialcells,capillaries,andshortnervecellextensions/processes–axonsanddendrites.Itsfunctionistoroutesensoryormotorstimulustointer-neuronsofthecentralnervoussystem,thepartofthenervoussystemthatconsistsofthebrainandthespinalcord,inordertocreatearesponsetothestimulusthroughchemicalsynapseactivity.Graymatterstructuresprocessinformationoriginatinginthesensoryorgansorinothergraymatterregions.Putsimply,explainsSparto,thegreymatterofthebrainiswheretheactionhappens.
Greymatterisalsoveryinvolvedinregionsofthebrainthatmanage
musclecontrol,sensoryperceptionslikesightandhearing,aswellasmemory,emotions,andspeech.
Whitematter,ontheotherhand,iscomposedofbundlesofaxons,andistheconnectorbetweenvariousgreymatterareas,carryingnerveimpulsesbetweentheseareas.SaysSparto,“Whenonepartofthebraincommunicateswithanotherpart,thatmessageisdirectedalongapathwaywhich,inessence,isthewhitematterinourbrain.”
Usingacommonanalogy,Spartosaysthatifourbrainwerelikenedtoacomputernetwork,thegreymatter
White Matter Does Matter
F A C E T S S P R I N G / S U M M E R 2 0 0 9 �9
evaluatedbasedontheirperformance.TheneachwillbegivenanMRItoexaminethequalityofthewhitematterinthebrain.“We’rehopingthatacloselookatmobilityandbalancetestingcomparedtowhitematterchangeswillleadtosomestrongerconclusionsabouttheconnectionbetweenthewhitematterlossandlossofmobility,”hesays.
Whilethestudyisstillalongwayfromcompletion,Spartofeelsthattheconnectionsbetweenmobilityandwhitematterlossaretoostrongtoignore.Inaddition,hebelievesitisimportanttounderstandtherelationshipbecauseitmayimpacttherehabilitationprocess.Forinstance,otherstudieshaveshownthatwhitematterdegenerationaffectslearning–acriticalcomponentforanyrehabilitation.
Ultimately,helpingpeopletomaintainmotorskillsandbalancelongerwillpreventinjuries–keepingthemoutofthehealthcaresystemandsavingmoney.Butbeyondthis,there’sthemoreobviousmotivation:helpingolderpeopleeverywhereleadmorehealthyandproductivelives.
wouldbetheindividualcomputerswhilethewhitematterrepresentsthenetworkcablesconnectingthecomputerstogether.
ItisthewhitematterthatisofparticularinteresttoSparto.
Dissecting the Problem
Agingcanleadtodegradationofthewhitematterinthebrain.Asthepathwaysthatconnectthegreymatterareaserode,theyleadtothereductionofahostoffunctions,includingcognition,moodregulation,andmostnotablytoSparto,balance,walking,andothermotorskillsdealingwithmobility.
“Weknowthatalossordegradationofgraymatterleadstoanumber
ofconditions,includingdementia,Alzheimer’sdisease,and
Parkinson’sdisease,anditseemsclearthat
White Matter Does Matter
similarneurologicalfunctionsalsoarespawnedbyalossofwhitematter.Butthespecificsremainunclear,”heposits.
PerhapsthemostcommondiseasethataffectswhitematterisMultipleSclerosis(MS).Inthisdevastatingdisease,whichusuallyoccursinyoungadulthoodtomiddleage,whitematterisdestroyedbyinflammationandmotorskillsdecreaseovertime.Thewhitematterdegenerationthatoccursinolderadultsisadifferentdiseaseprocess.Itisthoughttobecausedbyareductioninbloodflowtocertainareasofthebrain,inasimilarwaythatcloggedarteriesreducebloodflowtotheheartandextremities.
Spartocontinues,“Gettingtothebottomofhowwhitematterlossaffectsusremainsoneofthebigmysteriesofthebrain–especiallyasit’stiedtoaging.”
Spartoandhisteamwillrecruit,meet,andworkwith120adultsovertheageof70.Therearenospecificcriteriaeachpersonmustmeettoqualifyforthestudyotherthanage.Spartosays,“Theonlycriterionisthateachpersoncanstillmoveaboutinthecommunity–it’sprettyinclusive.”MostoftherecruitmenthasbeendonethroughtheUniversityofPittsburghClaudeD.PepperOlderAmericansIndependenceCenter,butSpartoandtheteamhavealsobeenrecruitingparticipantsinthecommunity.
Eachindividualwillbeguidedthroughaseriesofbalanceandphysicaltherapy-relatedskillactivitiesand
Getting to the bottom of how white matter loss affects
us remains one of the big mysteries of the brain –
especially as it’s tied to aging.
�0 F A C E T S S P R I N G / S U M M E R 2 0 0 9
O c c u p a t i o n a l T h e r a p y
Therearemorethan1,700internationalstudentsenrolledattheUniversityofPittsburgh.Theycomefromdeveloping
nationsandmembercountriesoftheG8,representingeverycontinentandregionoftheworld.SomecomefromwealthyfamilieswhorecognizethatanAmericanuniversityeducationisessentialtoadvanceinaglobaleconomy.OthershavebeensingledoutbytheirgovernmentstocometotheU.S.andlearnscience,medicine,engineering,andotherdisciplinessotheycanreturnhomeandaidtheircountriesandfellowcitizens.
SuchwasthecasewithDr.SanaAbu-Dahab,currentlychairandassistantprofessorofoccupationaltherapy(OT)ontheFacultyofRehabilitationSciencesattheUniversityofJordaninAmman.AfterreceivingherundergraduatedegreefromJordan,shewastappedtotravelabroadtostudypediatricoccupationaltherapy.ItbecameherchargetostudythelatestmethodsforOTsworkingwithchildrenwithautism.Globally,onein166childrenisbornwithautism,andinJordan,diagnosisofautismisontherise.IntheU.S.,itisestimatedthatonein150childrenisbornwithautism.
Autismisadevelopmentaldisordercharacterizedbyqualitativeimpairmentsinsocializationandcommunication,andbyrepetitiveandrestrictedpatternsofbehavior.Itistheresultofdisturbancesinthedevelopmentofbrainconnections.Rarecaseshavebeenassociatedwithabnormalitiesingenesthatcodefortheformationormaintenanceofcontactsbetweenbraincells.Somecasesaretheresultofotherneurologic,metabolic,genetic,orinfectiousdiseases.Thecauseofmostcasesthoughisnotyetknown.
SobeganAbu-Dahab’sventureintoSHRSandtheDepartmentofOccupationalTherapy,whereshefirstearnedamaster’sdegree.“WhenitcametimeforSanatobeginherPhDdissertation,weaskedDr.NancyMinshewifshewouldserveonthecommittee,”saysDr.MargoHolm,
Assessing Individuals with High-Functioning
Autism
F A C E T S S P R I N G / S U M M E R 2 0 0 9 ��
professoranddirector,Post-ProfessionalEducationinOT.Minshew,aninternationalauthorityonautismresearchandtreatment,isdirectoroftheNIH-fundedAutismCenterofExcellenceattheUniversityofPittsburgh–CarnegieMellonUniversity.
“Sanacameforwardwithfourdifferentproposalsforherdissertation,whichwereallexcellent.Butgiventhetimeframe,webelievedtheywereunworkable,”saysMinshew.
HolmandAbu-Dahabsuggestedasecondarydataanalysis,usingMinshew’sexistingresearchdatabases.HolmpointsoutthateverypersoninthedatabasehasundergoneanAutismDiagnosticInterviewandanAutismDiagnosticObservationSchedule.“Bothofthesetoolsareusedtoensurethatthere’sstandardizationacrossresearchsites,andthatthere’sreliabilityandvalidityinthediagnosis,”saysMinshew.Inaddition,eachindividualhasanIQscoregreaterthan80,classifyingthemashigh-functioning.
Usingthedatabases,Abu-Dahabsetouttoexploremotor,sensory-perceptual,andexecutivefunctioningskillsinindividualswithhigh-functioningautism(IHFA).“Executivefunctionsallowustoanticipateoutcomesandadapttochangingsituations.Theabilitytoformconceptsandthinkabstractlyareoftenconsideredcomponentsofexecutivefunction,”accordingtoMinshew.
Three’s a Charm
Abu-Dahabconductedthreestudies:inthefirst,sheexaminedsimplemotorskills,suchasgripstrengthandtheFingerTappingTest,andcomplexmotorskills,asmeasuredbytheGroovedPegboardtest.ThedataincludedIHFAandIQ-matchedtypicallydevelopingindividuals(TDI),ranginginagefrom5to21yearsold.Simplesensory-perceptualskillsandcomplexsensory-perceptualskillswerealsoexaminedwithinthesametwogroups.
SaysAbu-Dahab,“TheIHFAwerefoundtobesignificantlyimpaired,whencomparedtoTDI,onallmotormeasuresacrosstheagecontinuumwithoneexception:thespeedoftappingrevealednodifferencesbetweenthetwogroupsatayoungage(8–9yearsold),”butforolderIHFA(14–15yearsold)theimpairmentsweresignificant.
“Inchildrenfrom5to8yearsold,thestudyfoundthatgripstrengthwassignificantlyweakerthantheirtypicallydevelopingpeers,whichhasnotbeenreportedintheliteratureanywhere,”Holmpointsout.
Minshewstatesthatthegripstrengthdifferencesthatweredemonstratedprovideadditionalevidencethatthebasalgangliamightbeinvolvedinorresponsibleforsomeofthemotorsymptomsofautism.“Sana’sresearchdocumentedthemotorproblems,sensoryproblems,andofcourse,thewidelyknownexecutivefunctioningproblems.Thepresenceofmotorandsensoryabnormalitiesmeansthatwhat’sdifferentaboutthebrainofapersonwithautismhastobemuchbroaderthanjustthesocial,language,andcommunicationsystems.Wenowhavetoaddressmotorandsensoryskills.”
Inhersecondinvestigation,Abu-Dahabdevelopedastatisticalmodelthatexplainedrelationshipsamongfactorsthatpredictedorwereassociatedwithgoodandpoorcomplexfine-motorskillsorskilledmotormovements(psychomotorspeed,hand-eyecoordination,andmanipulativedexterity),asmeasuredbytheGroovedPegboardtest.
Assessing Individuals with High-Functioning
AutismGlobally, one in 166
children is born with autism, and in Jordan, diagnosis of
autism is on the rise.
�� F A C E T S S P R I N G / S U M M E R 2 0 0 9
O c c u p a t i o n a l T h e r a p y
TherewereseveralfactorsthatplayedanimportantroleincomplexfinemotorskillsintheIHFAmodel,suchaseducationallevel,memory,attention,andvisual-spatialskills.“ButintheTDImodel,age,finemotorskillsofthenon-dominanthand,memory,andproblem-solvingskillsweretheinfluencingfactors,”saysAbu-Dahab.ThismeansthatIHFAmayneedtorelyonstructuredexperiences,suchasschool,toacquirethecomplexfinemotorskillsthataresimplyorautomaticallyacquiredwithageinatypicallydevelopingindividual,”shecontinues.
Herthirdinvestigationalsodevelopedastatisticalmodeltodelineaterelationshipsamongfactorspredictinggoodandpoorexecutivefunctioningskills,asmeasuredbytheWisconsinCardSortingTest.SaysAbu-Dahab,“Ingeneral,wefoundsimilarfactorspredictedperformance:complexlanguage/conceptformationandmemorywereimportantfactorsinbothofthemodels,oneforIHFAandoneforTDI.However,theorderofimportanceofeachfactorforcontributingtogoodexecutivefunctioningskillswasnotthesameforIHFAandTDI.“
Findings May Alter Interventions
“ThesefindingsareofsignificantclinicalimportanceforguidingassessmentandinterventionplanningforIHFA,”Abu-Dahabcontinues.“Whilememory
skillsappeartoenhancethecapacityofexecutivefunctionskills,theirinfluenceforIHFAseemstobesecondarytocomplexlanguage/conceptformationskillsthatareusuallychallengingforhigh-functioningindividualswithautism.”
“WeusedtobelievethatrotelearningwasappropriateforcomplexmotorskilldevelopmentforIHFA”interjectsHolm.“Letterslikeb,d,p,qaresimilar,sowewouldhavethechildrenpracticecopyingthemoverandoveragain.”
GivenAbu-Dahab’sfindings,therapistsneedtofocusonattentionandproblem-solvinginadditiontopracticingcomplexmotorskills.“Forexample,therapistsneedtohavethechildfocusonthebandthepinisolation,andpointoutthatbotharemadeofcirclesandlines,butask‘howdoesthebdifferfromthep?’”shecontinues.
“IthinkthatSana’sworksuggeststherearemanyreasonsIHFAhavedifficultywithcomplexmotorskills,andthemodelsshedevelopedprovideguidancefortherapists–whichskillstofocusonfirst,andhowtobuildonthoseskills.It
encouragestherapiststothinkoutsidetheboxanddeterminewhytheycan’twriteletters,andofferafunctionalanalysisofbehavior,”Holmmaintains.
Minshewoffers,”Ithinkit’sveryimportantthattheoccupationaltherapist,whocanbetheentrypointintothehealthcaresystem,isn’tjustconfinedtoevaluatingandworkingwiththemotorsystemorthesensorysystem,butseesthatinrelationtoalltheotherimpairments.Theyneedtohaveaholisticviewofthechild,totacklemorethanonechallengeatatime.”
Insummary,Abu-Dahab’sfindingssupporttheimportanceofmotorandsensoryskillsintheassessmentandinterventionofindividualswithautismofallages.Herresultsprovideguidanceabouthowtointerveneinatieredapproachtobuildskillsinthemotorandsensoryareasinconnectionwithbuildingskillsinlanguageandproblemsolving.“Sana’sresearchandreturntoJordanexemplifyhowthetrainingofonepersoninanareaofneed–inthiscaseautismassessmentandintervention–canintroduceimprovementstotheentirehealthsystemofacountry,”Holmasserts.
A Conversation withCynthia Miles
Cynthia Miles
Cindy Miles is a 1977 graduate of SHRP, now SHRS, with a degree in physical therapy. Today, she directs a successful pediatric therapy practice in the Lehigh Valley. She is Board Certified by the American Board of Physical Therapy Specialties as a Pediatric Clinical Specialist, and serves on the executive committee for the Section on Pediatrics of the American Physical Therapy Association (APTA).
F A C E T S S P R I N G / S U M M E R 2 0 0 8 ��
After you received your PT education,
what were your career plans?
Myinitialinterestwasinpediatricsandsports
medicine,soItookapositionatanacutecare
hospitalthinkingthatwastheplaceforme,
anditwas.Ashiftinmypersonallifeledme
tofindmoreflexibleemploymentsoIjoined
UnitedCerebralPalsy(UCP)ofNortheastern
Pennsylvania.ItwasthenIdiscoveredapassion
forworkingwithchildrenofallabilities.After
severalyears,Idecidedtostrikeoutonmy
own,offeringprivatephysicaltherapy.In1993,
weopenedafacilitywedesignedandbuilt.The
growthofthepracticehasbeenveryrewarding.
You now offer a full range of therapies
and other programs. How did that come
about?
Webeganaddingservicestoaccommodate
ourclients.Amotherrequestedspeech
therapyforherchild,soIcalledonaformer
colleaguetoprovidetheservice.Theaddition
ofanoccupationaltherapistfollowedsuit.
Weexpandedtoprovideearlyintervention
forinfantsandtoddlers,engaginganearly
childhoodeducationteacher.Wesawaneed
forfitnessprogramstoencouragechildren
toparticipateincardioandstrengthening
activities.Therapeuticaquaticswasthenext
logicalstep,sowebuiltapool.
How many clients are you currently
serving?
Wecurrentlyserveabout275clientsin300
visitsperweek,whichislowforaprivate
practiceofoursize.Withtheexceptionof
swimming,eachchildisseenone-on-onefor
anhoureachsession.Atraditionaltherapy
practicecouldbecoordinatingasmanyas
fourpatientsinthattime.Childrenofall
abilitiesrequireindividualizedtherapy.
Please describe the children you see in
your practice.
Ourprimaryfocusischildren,birththrough
youngadult,includingyoungathleteswith
sportsinjuriesandchildrenofallabilities
forfitnessprograms.Westrivetobuildon
eachindividual’sstrengthsotheycanachieve
maximumability.Weprovideanaccessiblearea
whereindividualscanworkindependentlyon
theirperformanceincludingmusclestrength,
cardioendurance,functionalability,and
mobility.WhenIlectureonfitness,mymantra
is‘FitforLife.’Ibelievethatphysicaltherapists
canprovidetrainingandfitnessfortheir
challengedclientsandencouragechildrenof
allabilitestobeactive.Parentsareamongtheir
children’sbestadvocates.Thetherapistjust
needstoprovidethetoolsandencouragement
tofindactivitiesthatinteresttheirwholefamily.
Tell us about Fun & Fitness Day,
celebrating its 10th anniversary.
Afewyoungboyschallengedmetorunina
raceatthelocalUCP;butwhenthatracewas
cancelled,westagedourown.Wesecured
alocalparkandprovidedadayfulloffitness
andfunforourclientsandfamilies.Thatyear,
wehadabout50childrenparticipateandseven
sponsors.Lastfall,wehadmorethan250
participants,40volunteers,and30sponsors.
It’sevolvedintoagreatfamilyevent.
The Lehigh Valley seems to be very
supportive of children with disabilities.
In2006,alocalfatherwantedtostarta
MiracleLeague–baseballplayedona
rubberizedfieldsothatALLchildrencan
play.Hepitchedtheideatoagroupoflocal
donors,andwithinfivemonths,theyprepared
a$750,000complexforopeningday.They
cametousforassistanceinfieldingteams.Our
staffandvolunteerscontinuetoparticipateas
“angelsintheoutfield,”andIjoinedtheboard.
WebeganachapterofAmTryke,asubsidiary
ofAMBUCS,anorganizationdedicatedto
creatingmobilityandindependenceforpeople
withdisabilities.AmTrykesaretherapeutic
tricyclesdesignedforkidsunabletoride
traditionalbikes.Ourgoalistoraise$12,000
topurchase20bikesbyJune.Westartedthe
ballrolling,butwe’returningtheleadership
overtothecommunity.CamelotHouseand
DreamComeTruearetwootherorganizations
herethatsupportchildrenwithdisabilities.
Are there ‘alumni’ of yours who still stay
in contact?
Absolutely,therearemanywhostayintouch,
somehavecomebackandvolunteered.One
youngman,bornwithoutbilateralfemurs,went
ontowintwogoldmedals,onesilverandone
bronzeinswimmingattheParalympicsin
Atlanta,Barcelona,andAthens.Hecameback
lastfalltosharehisexperiences.He’sjustone
ofthereasonsIlovemyjob.
What are you doing to help the profession and future therapists?
Weacceptinternsfromacrossthecountry,
andvolunteersfromcollegesandhighschools
throughoutthearea.It’sawin-winforeveryone.
Wearealsoplanningaresidencyforphysical
therapygraduates.Personally,I’mseekinga
doctorateinpediatricphysicaltherapyandhope
tocontributetomuch-neededresearch.I’m
pleasedtoplayaroleinhelpingfuturetherapists
andchildrenandtheirfamilies,andIamgrateful
formyeducationandtheopportunitytohave
attendedtheSHRSphysicaltherapyprogram!
Cindy Miles with associate Andrew Sutphin (PT ‘05)
university of pittsburgh School of Health and rehabilitation Sciences 4031 Forbes Tower pittsburgh, pennsylvania 15260
Change Service requested nonprofit Org. u.S. postage
pAiD pittsburgh, pA permit no. 511
www.giveto.pitt.edu