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8/17/2019 BSFC English o

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New: Burden Scale for Family Caregivers in 20 European languages

With this scale, valid assessment of subjective burden among family caregivers ispossible all over Europe using the same questionnaire.

1. Background

The burden eperienced by family caregivers is the most important caregiver!relatedvariable in care at home of a chronically!ill person. The etent of subjective burdenhas significant impact on the emotional and physical health of the family caregiver,and even influences the mortality of spouse caregivers. "t affects the #ay the familycaregiver deals #ith the care!receiver and determines the time of institutionali$ation.

%. Burden &cale for 'amily (aregivers B&'(

1



We are asking you for information about your present situation. The present

situation comprises your caregiving deduced from the illness of your family

member (or friend).

The following statements often refer to the type of your assistance. This may be

any kind of support up to nursing care.

Please draw an “X” for the best description of your present situation. Please

answer every question!

strongly

agree

agree disagree strongly

disa

gree

1. I feel fresh and rested in the morning.

2. y life satisfaction has suffered

because of the care.

!. I often feel physically e"hausted.

#. $rom time to time I wish I could %runaway& from the situation I am in.

'. I miss being able to talk with others

about the care.

. I have enough time for my own needs

and interests.

. *ometimes I feel that the person I am

caring for is using me.

+. ,way from the caring situation I can

switch off.

-lease turn to ne"t page

2



strongly

agree


disa

gree

. It/s easy for me providing the

necessary nursing care (washing0

feeding etc).

1. *ometimes I don/t really feel like

%myself& as before.

11. The care I give is acknowledged by

others.

12. *ince I have been a caregiver my

financial situation has decreased.

1!. I feel like being forced into thiscaregiving situation.

1#. The wishes of the person I am caring

for are reasonable in my opinion.

1'. I feel I have a handle on the care

situation.

1. y health is affected by the care

situation.

1. I am still capable of feeling really

oyful.

1+. I have had to give up future plans

because of the care.

1. It doesn/t bother me if outsiders are

aware of the sick person/s situation.

2. The care takes a lot of my own

strength.

21. I feel torn between the demands of my

environment (such as family) and the

demands of the care.

-lease turn to ne"t page

!



strongly

agree


disa

gree

22. I feel I have a good relationship withthe person I am caring for.

2!. I have problems with other family

members due to the care.

2#. I feel I should take a break.

2'. I am worried about my future because

of the care I give.

2. y relationships with other family

members0 relatives0 friends and

ac3uaintances are suffering as a result

of the care.

2. I feel sad because of the fate of the

person I am caring for.

2+. I can take care of other dailyobligations to my satisfaction in

addition to the caregiving.

Thank you very much!

#



). Evaluation

The responses to the %* statements of the B&'( are rated according to the follo#ingscheme+

a 'or the statements numbered1, 6, , !, 11, 1", 1#, 1$, 1!, 22 and 2the rating is as follo#s+

%esponse: &oin's:

&trongly agree - gree 1/isagree %&trongly disagree )

b 'or the remaining statements numbered

2, (, ", #, $, 10, 12, 1(, 16, 1, 20, 21, 2(, 2", 2#, 26 and 2$the rating is reversed+

%esponse: &oin's:

&trongly agree ) gree %/isagree 1&trongly disagree -

'



0. "nterpretation of the sum score

The interpretation of the B&'( score depends on the disease causing the need forcare. "f this is dementia, the interpretation is made according to Table 1. 'or all otherdiseases, that is #hen dementia is not involved, Table % applies.

The assignment of the B&'( score to the categoriesa no' or mildly burdenedb modera'ely burdenedc severely or very severely burdenedis made depending on the risk of psychosomatic symptoms, #hichin a is no' increased,in b is increasedin c is s'rongly increased.

Table 1+ "nterpretation of the B&'( score for caregivers of individuals #ith demen'ia

BSFC Score Su)*ec'ive)urdenca'egories

%is+ of psycosoma'icsymp'oms

Sample percen'age-N . 12(6/

- )2 none to mild not at risk a )).* 3

)4 02 moderate increased risk b %2.) 3

04 *0 severe to verysevere

at very high risk c 0-.5 3

a if the B&'( score ranges from - to )2, the etent of overall physical symptoms67ie8en &ymptom 9ist 7BB!%0 corresponds to the epected value in the :normalpopulation;, that is, 2-3 of those caregivers have a percentile rank 6<= of physicalsymptoms > 2- and the other 2-3 a <= ? 2-.

b

if the B&'( score ranges from )4 to 02, @03 of those caregivers have an above!average etent of physical symptoms 6<= ? 2-.

c if the B&'( score ranges from 04 to *0, 5-3 of those caregivers have an above!average etent of physical symptoms 6<= ? 2-.



Table %+ "nterpretation of the B&'( score for caregivers of individuals wi'ou'demen'ia

BSFC Score Su)*ec'ive )ur

den ca'egories

%is+ of psycosoma'ic

symp'oms

Sample percen'age

-N . #!1/

- 01 none to mild not at risk a 41.0 3

0% ! 22 moderate increased risk b %0.0 3

24 *0 severe to verysevere

at very high risk c 10.% 3

a if the B&'( score ranges from - to 01, the etent of overall physical symptoms

67ie8en &ymptom 9ist 7BB!%0 corresponds to the epected value in the :normalpopulation;, that is, 2-3 of those caregivers have a percentile rank 6<= of physicalsymptoms > 2- and the other 2-3 a <= ? 2-.

b if the B&'( score ranges from 0% to 22, @03 of those caregivers have an above!average etent of physical symptoms 6<= ? 2-.

c if the B&'( score ranges from 24 to *0, 5-3 of those caregivers have an above!average etent of physical symptoms 6<= ? 2-.

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