Books at the bedside
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Transcript of Books at the bedside
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Krista Caballero, CCLS II, CIMI
Texas Children’s Hospital
Books at the Bedside: Literature Coming Alive to
Enhance Interventions
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Reading to children is central to their development.
“Books provide a safe medium for children to explore different concepts, feelings, and attitudes while allowing them to better understand their environment, community, and societal expectations. Reading to children increases self-esteem, gives comfort, and may aid children in coping with difficult situations.”
Why Bibliotherapy?
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Bibliotherapy is: The use of written materials to gain understanding and
engage in problem solving relevant to the person’s therapeutic needs
What is Bibliotherapy?Central to DevelopmentSafe Outlet to Explore Concepts and Emotions
Why Bibliotherapy?Communication
Stimulates Discussions and ConversationsAddresses innermost feelings
Provides InsightNormalizes the Hospital EnvironmentStrengthen relationships
Healthcare WorkersFamily
Determining a Need for Bibliotherapy
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History The term ‘‘bibliotherapy’’ was first used by S. M.Crothers in 1916 to
describe the use of books to help patients understand their health problems and symptoms.
Origin The word is derived from the Greek words biblion (book) and
oepatteid (healing).
Bibliotherapy’s Roots
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Can address/express compassion, criticism, tension, relief, sadness, happiness, fear, courage, rage, pain, anguish, and death
Children express their worries and fears differently than adults
Lack of verbal skills can inhibit the ability to express feelings and emotions
Lack of family discussions concerning feelings
Parents’ stress reactions
Why Bibliotherapy and Child Life?
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Stages of Development and LiteratureWhen Using Reading as a Resource to Minimize the
Stress of Hospitalization, it is Necessary to Consider Aspects of DevelopmentPre-Schoolers (3-6 years) Experience a rapid development
of their vocabulary and language skills, and understand their experience by using symbols, including language
School-Aged Children (6-8 years) Are improving their reading and like to know about concepts and skills
Pre-Adolescents (8-11 years) Enjoy realistic fiction and books that describe real life events, since they are learning to make choices and developing personal values
Adolescents (12-18 years) Enjoy novels and fiction, fantasy, or even individual non-assisted readings
Books and Development
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Selection of a BookCriteria:
Must not give a false sense of hopeMust provide correct information about a
presenting problemAge appropriate
Assess the Child’s Development, Coping Response, and the Attitude of the Child’s Parents
Books and Development
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Transformation of Children’s BeliefsThemes
SeparationEscape from a Difficult SituationRecoverySmall Individuals who are ImportantControl Rescue by a Powerful Stranger
Conventions and Themes
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Determining a Theme Stage of Cognitive DevelopmentStage of Personality DevelopmentThe Impact of the Medical Condition on the
Child’s LifeThe Psychological Defense Mechanism the
Child UsesThe Child’s Dominant Affectual StateThe Attitudes of the Family Members toward
the Child and the Illness
Conventions and Themes
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DidacticInstructional and educational, similar to textbooks.
A didactic text can be found for nearly any topic a clinician may wish to address with the patient-reader, including personality conflicts, and coping with stress (eg, self-help books). The purpose is to facilitate a direct change within the individual through a cognitive understanding of self.
ImaginativeRefers to the dramatic presentation of human
behavior through fiction, poetry, drama, biography, and autobiography.
Types of Text
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Stages of Therapeutic Involvement1. Involvement
At this point, patients begin listening to the story and demonstrate interest in what is happening. They get “caught up” in the narrative
2. IdentificationPatients best identify with characters of the same age
and who are experiencing similar circumstances
3. CatharsisPatients are pulled further into the process of
recognizing and vicariously experiencing the character’s feelings. As the character successfully resolves problems, patients release emotional tension associated with their own problems
Facilitating a Read Aloud
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4. InsightPatients think about what happened in the story
and apply it to their own lives. Patients begin resolving the struggles they may be personally experiencing
5. UniversalismPatients move beyond the egocentric trap of only
seeing their own problems and the perception that no one else understands or shares their pain. They gain a broader perspective of their own challenges and are able to understand that others may have similar problems.
Facilitating a Read Aloud
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Stages of BibliotherapyIdentificationSelectionPresentationFollow up
Facilitating a Read Aloud
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Conditions to be MetRapport, Trust, and Confidence to Have Been
EstablishedThe Patient and Child Life Specialist have
Begun to Address Goals/InterventionsSome Preliminary Exploration of the Problem
has Occurred
Facilitating a Read Aloud
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Reading GoalsCreating your Own Goals
Examples of goalProvide a sense of pleasure and enjoyment
through humorous read-aloudsProvide normalization by facilitation of
imaginative separation from the hospital environment through pre-occupation with read-alouds
Program Design Aligns with Child Life Goals
Facilitating a Read Aloud
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Entrancement During the ReadingStrong Emotional Responses
Show evidence of their experience in relation to their disease and care, their acceptance and understanding. This information is relevant to plan comprehensive and humanized care.
Preoccupation with the Story’s ThemeCascades of QuestionsTestimonials
Examples: The child’s comments and questions, such as “that mouse is hurt just like me” and “is he scared too?” seemed to indicate strong identification with story characters in children read aloud to in a research study.
In the same study, several stories which had characters who survived a catastrophe, generated in some children hope and smiles and questions about their own convalescence and recovery.
Reactions to Literature
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Use of TimingQuestioning Strategies
Questioning strategies during and after reading should not be judgmental; rather, the focus is on the feelings of the main characters
Facilitators must allow the stories themselves to shape the questions For example, “In the book, Onion John, how do you
think Onion John felt when Andy was able to understand what he said?” or “In Sam, Bangs, and Moonshine, how do you think Sam felt when her friend and her pet were in danger?”
Components that Determine Success
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PreviewQuestionPredictInferConnectSummarizeEvaluate
Questioning Strategies
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Maintain the Emotional Distance Necessary
Never Let a Story Become a Sermon
Cardinal Rules of Bibliotherapy
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ReflectionConnectionUnderstandingInterpretation
Types of Questions
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What is the main idea of this story?Why do you think the story has the title “ ”?What would be another good title for the story? Why does a character (take a particular action)?What caused______to______?What effect did _______ have on _______?What character can you connect with most in the
book?What issue in the book the most interesting?
Upsetting? Familiar? Ridiculous? Confusing?What are the problems the main character faces and
how are they solved?
Examples of Questions
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What events and people cause the main character to change?
What have you learned in the book that will be helpful to you in the future?
What do you think the author wants you to know or learn?
What impact has the story made on you?What caused….?Why do you think…?
Examples of Questions
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To Assist in Determining the Appropriateness of a Post-Reading Activity, Ask These Questions:Will the activity help students connect with the
story?Will the activity help students connect with the
story?Will the activity help students in making
conclusions aligned with the story? Will the activity promote emotional growth and
healing?
Follow Up Activities
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Use of Ipad, Ipod/Iphone, or Kindle (can use kindle Application for the Apple Technology
Use of YouTube: http://www.youtube.com/watch?v=zwwGBVa1j9A
The Next Place http://www.youtube.com/watch?v=Scj3A1cLVzY
You are Special http://www.youtube.com/watch?v=RnYW6YH_8w4
Alexander and the Horrible, No Good, Very Bad Day
Incorporating Technology
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Let’s practice!
Activity
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www.compassionbooks.comhttp://
www.ed.gov.nl.ca/edu/k12/curriculum/documents/english/biblio46/criteria_for_selecting_childrens_literature.pdf
http://www.apa.org/pubs/magination/index.aspx
www.brainpop.com
Resources