Biological Models to Better Understanding of Diseases
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Transcript of Biological Models to Better Understanding of Diseases
ICT for a global
infrastructure for health
research
Dr Octavian Purcarea
Global Industry Manager
Challenges for eHealth implementation
• Usability
• Trust
• Sustainability (economic model)
• Implication of different actors (empowerment)
• Bringing closer the clinical practice and clinical research
Challenges for clinical research
• Only 7% of eligible patients enrol in a clinical trial.
• Only 3% of eligible cancer patients enrol.
• 86% of all trials fail to enrol on time.
• 85%-95% study days beyond original study timetable
are due to not recruiting subjects on time.
• Women, minorities, children and special populations are
underrepresented.
• Only 3% board-certified physicians participate in clinical
trials.
• The number of clinical investigators dropped 11%
between 2001 and 2003.
Michael G. Kahn MD, PhD University of Colorado The Children’s Hospital, Denver
USE OF DATA FROM THE PRIMARY CARE EPR - RESISTANCES AND SOLUTIONS Prof Dr Marc VANMEERBEEK DUMG 2004
Analysis of the database records of the EPR in 8 Medical Homes, 3 years, 133.0000 contacts
Belgian Study
EPR usability
EPR Usability in the daily practice of the GPs
« 6, 7% of the contacts were recorded in the database »
« exasperation of the user »
« It seems illusory to continue an IT program
without a rapid response to the numerous improvement demands »
QUALITY IMPROVEMENT IN THE PRIMARY CARE BASED ON DATA COLLECTION OF DIABETES AND HYPERTENSION RELATED CONSULTATIONS Vandenberghe H., Bastiaens H., Jonckheer P., Orban T., Declercq E.,Lafontaine M.-F.,Van Casteren V.Service d’Epidémiologie Institut Scientifique de la Santé Publique, 2003, Bruxelles
Exploration of the feasibility of data collection for quality improvement interventions .Two groups: paper based data collection and EPR based data collection
Conclusion
“40% of the physicians from the EPR based group finally didn’t send the data”
« The quality indicators are strongly divergent for the 2 methods”
EPR Usability in public health and quality management
Belgian Study
EPR usability
Conclusions
- only 20% of care networks have electronically data exchange
- only 9% have enough structured data
- only 3% can document the care processes electronically
German Study
PRAXISNETZ STUDIE 2006 MANAGEMENT -PROZESSE –INFORMATIONSTECHNOLOGIEGünter Schicker und Oliver Kohlbauer , Wirtschaftsinformatik II Universität Erlangen-Nürnberg
Analysis of the practice mangement and IT situation of GP Associations in Germany and Switzerland ; ( 72 deutsche Praxisnetze und 18 Schweizer)
EPR Usability for GPs
EPR usability
Clinical Software for USABILITY
1. Software behavior should reflect the work process of the user (workflow )
2. Software objects should reflect the mental model (concepts) of the user (terminology )
Usability threshold
Terminology+ ---------------------------------------------------->
Clinical Process Models
Trends : the Expansion of Networks:
Numbers of Connected Devices
• ‘60s
• ‘70s
• ‘80s
• ‘90s
• ‘00s
• ‘10s
• ‘20s
10s
100s
1,000s
1,000,000s
1,000,000,000s
1,000,000,000,000s
1,000,000,000,000,000s
Personal
Cloud
Platforms, not technologies,
Create Economic Value
• Consistent APIs
• Standards for
interoperability
• Available at scale
• Compelling business
model LAN
Web
Why Cloud changes the rules
• Instant global scale service creation: Creates
major opportunity for startups
• Adds value to all existing platforms: Software +
Services
• Interoperability based on open standards:
Broadest device, client and data accessibility
Single Touch
EnhancedGUI
Handwriting
Voice
NUI
Data Input
Innovative interfaces
10 Year View:
An Algorithmic* Transformation
• Automation of the routine
• Network Embedding of specialized knowledge and processes
• Massive expansion of networkedservice value chains
• Value creation moves from specialized to generalized skills
Moore’sLaw
Cloud
NUI
UbiquitousNetworking
+
+
+
*Prof. John Zysman, BRIE – UC. Berkeley
Implications:
Healthcare Providers
• Will need to add semantic interoperability to
automated processes and knowledge networks
• The role of the GP will change dramatically as
patients become increasingly educated, networked
• Real-time monitoring and sensor based
diagnostics will transform working practices
• Massively increased competition in health services
provision
Implications:
Patients
• Move towards ‘end to end’ health and wellness
management strategies
• Increased choice as providers compete with
monitoring and diagnostic services
• Much higher expectations from service providers
• Increased concern about privacy as health
services and data go online
Implications:
Research
Integrating Electronic Health Records (EHR) with
Electronic Data Capture (EDC) systems used in
clinical trials:
• avoid duplicated data entry
• assist in automatic identification of patients for
clinical trials
• enable early detection of potential patient safety
issues.
• Take into account multiple parameters
(environmental, physical, genetical)
A Fundamental Change is Underway
- World Health
Organization
HealthVault = Health Application
Platform
Physicians
Laboratories
Hospitals
Pharmacies& PBMs
Application Providers
Health & Fitness Device
Manufacturers
Health Plans
Employers
Schools
Healthcare Associations
Patients can:
•store health information
from many sources
•access a range of health
and fitness apps
•upload data from health
and fitness devices
•share health information
with those they trust.
Personal Health & Wellness
Environmental
Data
Phenomic data
Integrated Health Records
Biosensors
Genomic data
Biochips
Future plansTowards full picture of individual’s health status
Infr
astr
uctu
re &
Pla
tform
Offerings
Connected Health Platform
Connected Health Platform
Application Platform for Health
Business Productivity Infrastructure for Health
Core Infrastructure for Health
Connected Health Framework – Architecture and Design Blueprint
www.microsoft.com/healthICTResources available at:
Microsoft Connected Health Framework
Knowledge Driven Health Create a Technology
Foundation
Seamless Integration of External
Services: EPR side
Exchange of key patient
data
Seamless integration at
user interface
Integration of the HIS side: Microsoft Amalga Unified
Intelligence System
Specialty Care Case Manager
Care Manager
Social WorkerPrimary Care Provider
ED Physician
Healthcare Providers
Inte
gra
tion
Sys
tem
Data
Contributors
PH
R A
pp
lica
tion
s
Citizens
Personal Health
Record System
Interoperability Tools
Aggregation &
Insight System
Health Domain
Specialty Care Case Manager
Care Manager
Social WorkerPrimary Care Provider
ED Physician
Healthcare Providers
Connected Health Platform &
Partner Interoperability Tools
Hea
lthV
au
ltA
pp
lica
tion
s -
Pa
rtne
rs
Citizens
Connected Health
Biz
Ta
lk S
erv
er
Data
Contributors
What We Need to Make It Happen?
• Support (fund) semantic interoperability including human resources.
• Involve, empower the individuals in management of their own Health,
involve from the beginning in your projects the Health Professionals;
• designing an organisational architecture that bolsters the interest of
health professional, promoting the early assessment of new
therapies for their inclusion among the reimbursable treatments,
fostering the validation of clinical trials protocols based on Evidence
Based Medicine and additionally, on Evidence Based Management.
• validating new reimbursement schemas, assessing the need for
incentives for health professionals and patients involved in clinical
trials, and devising new adherence strategies with patients and
health professionals.
• Think in terms of pay per performance, quality related indicators,
incentives, trust and usability.
For More Information about Microsoft Health
• Health Web site: www.microsoft.com/healthcare
• Health Blog: www.blogs/msdn.com/healthblog
• EMEA Health Blog: http://blogs.msdn.com/ms_emea_health_blog/default.aspx
• Information on Amalga and Health Vault can be found at: http://www.microsoft.com/hsg/
• You can find information on the Common User Interface and the design guides at: www.mscui.com
• Here is the link to the CHF (Connected Health Framework) material: http://msdn2.microsoft.com/en-us/architecture/bb525069.aspx
• For MedStory (now called Live Search – Health) go to https://ssl.search.live.com/health/default.aspx or www.medstory.com.
E-mail: [email protected]
© 2010 Microsoft Corporation. All rights reserved. Microsoft, Windows, Windows Vista and other product names are or may be registered trademarks and/or
trademarks in the U.S. and/or other countries.The information herein is for informational purposes only and represents the current view of Microsoft Corporation as
of the date of this presentation. Because Microsoft must respond to changing market conditions, it should not be interpreted to be a commitment on the part of
Microsoft, and Microsoft cannot guarantee the accuracy of any information provided after the date of this presentation.
MICROSOFT MAKES NO WARRANTIES, EXPRESS, IMPLIED OR STATUTORY, AS TO THE INFORMATION IN THIS PRESENTATION.