Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues…...

33
Bioethics: Traditional Principles and Modern Day Dilemmas Pediatric Grand Rounds Emily Klepper, MD Heidi Murphy, MD Wednesday, June 3, 2015

Transcript of Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues…...

Page 1: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Bioethics: Traditional

Principles and Modern

Day Dilemmas

Pediatric Grand RoundsEmily Klepper, MD

Heidi Murphy, MD

Wednesday, June 3, 2015

Page 2: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Objectives

• Engage in dialogue regarding bioethics of current-

day ethical dilemmas

• Participate in review of core principles of ethics

• Discuss how personal values and morals influence

professional ethical, decision-making

• Discuss approaches to medical ethical decision-

making

• Appreciate the beauty of Scilla (and all of…) Italy!

Page 3: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Sofia Vergara

Page 4: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

The Story…

• Sofia Vergara, 42-year-old actress, and then-fiancé,

Nick Loeb, conceived two female embryos in

November 2013 via in vitro fertilization.

• Hurtado J. Sofia Vergara reportedly sued by ex-finace over their frozen embryos.

CNN. www.cnn.com/2015/04/17/entertainment/sofia-Vergara-frozen-embryos-

lawsuit/. Accessed June 1, 2015.

• Google images

Page 5: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

The Story Continues…

• Prior to conceiving these embryos, the couple had

failed to conceive a child via two surrogates.

• Though Vergara has a son, Manolo, Loeb has no

children.

• Hurtado J. Sofia Vergara reportedly sued by ex-finace over their frozen embryos.

CNN. www.cnn.com/2015/04/17/entertainment/sofia-Vergara-frozen-embryos-

lawsuit/. Accessed June 1, 2015.

• Google images

Page 6: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

The Story Continues…

• Unfortunately, the couple split up in May 2014.

• Loeb is now suing Vergara to prevent her from

destroying their embryos.

• He would like to have them implanted in a surrogate

and bring them to term.

Hurtado J. Sofia Vergara reportedly sued by ex-finace over their frozen embryos. CNN. www.cnn.com/2015/04/17/entertainment/sofia-Vergara-frozen-embryos-lawsuit/.

Accessed June 1, 2015.

Page 7: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

The Question

Does Sofia Vergara have the right to

destroy embryos conceived with then-

fiancé Nick Loeb?

A.Yes

B. No

C. Hmm... I’m not sure…

Page 8: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

The Question

Does Nick Loeb have the right to implant embryos conceived with then-fiancé Sofia Vergara?

A.Yes

B. No

C. Hmm... I’m not sure…

Page 9: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

The Question

Loeb believes “life begins at fertilization”.

Do these embryos constitute life?

A.Yes

B. No

C. Hmm... I’m not sure…

Page 10: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Review of Our Experience

• Day 1: Ethics, bioethics, professional ethics, and research-ethics

• Day 2: Good and reliable communication in medicine

• Day 3: The bioethical conflict in the elderly

• Day 4: The fragile individual at the beginning and the end of life

• Day 5: Healthcare priorities (allocation of resources)

Page 11: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

What is Ethics?

• Ethics- study of morality

• Morality- the “value dimension” of human decision-making and behavior

• Knowing and doing

• Bioethics (and its branch, medical ethics) raises questions about physician behavior and decision-making, not just scientific or technical questions

• Values, rights, responsibilities, virtues

• “Good vs bad” and “right vs wrong”

• World Medical Association. The Medical Ethics Manual, 2nd edition. 2009.

• Forester-Miller H. Davis T. A Practirioner’s Guide to Ethical Decision Making. American Counseling Association. 1996.

www.counseling.org/docs/ethics/practitioners_guide.pdf?sfvrsn=2. Accessed June 1, 2015.

Page 12: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Why Study Ethics?

• Ethics is integral to medicine

• Hippocrates (5th cent. BC): concept of medicine as a profession

• A physician makes a public promise that patients’ interests will

be placed above the physician’s own interests

• Ethics prepares you to recognize difficult situations and

to handle them in a rational and principled manner

• World Medical Association. The Medical Ethics Manual, 2nd edition. 2009.

• Forester-Miller H. Davis T. A Practirioner’s Guide to Ethical Decision Making. American Counseling Association. 1996.

www.counseling.org/docs/ethics/practitioners_guide.pdf?sfvrsn=2. Accessed June 1, 2015.

Page 13: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Why Study Ethics?

• Medical ethics itself has been influenced by advances in human rights

• International human rights agreements provide a basis for ethics that is acceptable across diverse national and cultural boundaries

• Ethics is closely associated with the law

• Not identical

• Ethics provides higher standards of behavior

• Laws may differ from one country to another

• World Medical Association. The Medical Ethics Manual, 2nd edition. 2009.

• Forester-Miller H. Davis T. A Practirioner’s Guide to Ethical Decision Making. American Counseling Association. 1996.

www.counseling.org/docs/ethics/practitioners_guide.pdf?sfvrsn=2. Accessed June 1, 2015.

Page 14: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Who Decides What is Ethical?

• Ethics is pluralistic

• Decisions vary from one society to another

• And may vary within a society

• Most agree on basic fundamental principles

• World Medical Association (1947)

• 1948- Declaration of Geneva

• National medical organizations

• World Medical Association. The Medical Ethics Manual, 2nd edition. 2009.

• Forester-Miller H. Davis T. A Practirioner’s Guide to Ethical Decision Making. American Counseling Association. 1996.

www.counseling.org/docs/ethics/practitioners_guide.pdf?sfvrsn=2. Accessed June 1, 2015.

Page 15: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Principles of Ethics

Page 16: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

The 4 Principles of Biomedical Ethics

Autonomy

Beneficence

Non-maleficence

Justice

• World Medical Association. The Medical Ethics Manual, 2nd edition. 2009.

• Forester-Miller H. Davis T. A Practirioner’s Guide to Ethical Decision Making. American Counseling Association. 1996.

www.counseling.org/docs/ethics/practitioners_guide.pdf?sfvrsn=2. Accessed June 1, 2015.

Page 17: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Where do we start?

Page 18: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Approaching an Ethical Situation

1. Identify the problem

• Be specific and objective

• Ask yourself if it is an ethical, legal, professional, or clinical problem

• Identify your own, personal moral obligations and duties

2. Determine the nature and dimensions of the dilemma

• Decide which moral principles (autonomy, nonmaleficience, beneficence, justice) apply

• Which principle takes priority?

• World Medical Association. The Medical Ethics Manual, 2nd edition. 2009.

• Forester-Miller H. Davis T. A Practirioner’s Guide to Ethical Decision Making. American Counseling Association. 1996.

www.counseling.org/docs/ethics/practitioners_guide.pdf?sfvrsn=2. Accessed June 1, 2015.

Page 19: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Approaching an Ethical Situation

3. Generate potential courses of actions

4. Consider the consequences

• For all those involved

• Discard those options which do not give desired results OR cause more problematic consequences

• Regard balance between reason and emotion

5. Consult with professional colleagues, review boards, code of ethics

• They may identify other issues and aspects you miss or are not interpreting objectively

• World Medical Association. The Medical Ethics Manual, 2nd edition. 2009.

• Forester-Miller H. Davis T. A Practirioner’s Guide to Ethical Decision Making. American Counseling Association. 1996.

www.counseling.org/docs/ethics/practitioners_guide.pdf?sfvrsn=2. Accessed June 1, 2015.

Page 20: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Let’s consider one more case…

Page 21: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Our Next Story…A Country Divided

• A 10-year-old female in Paraguay was brought to the

hospital on April 21 with a stomach ache

• After examination and evaluation, it was determined

that the girl was pregnant

• The pregnancy is a result of rape by her stepfather

• Amnesty International. Paraguay: Life of a Pregnant 10-year-old girl at risk. https://www.amnesty.org/en/documents/amr45/1554/2015/en/. Accessed June 1, 2015.

• Hanna J., Romo R. Paraguay Man Arrested in Rape of Girl, 10, who became pregnant. http://www.cnn.com/2015/05/10/Americas/Paraguay-girl-rape-

pregnancy/index.html. Accessed June 1, 2015.

Page 22: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

A Country Divided

• Amnesty International (and the mother) are asking

for an abortion for the patient

• …which has been denied by the government

• Amnesty International. Paraguay: Life of a Pregnant 10-year-old girl at risk. https://www.amnesty.org/en/documents/amr45/1554/2015/en/. Accessed June 1, 2015.

• Hanna J., Romo R. Paraguay Man Arrested in Rape of Girl, 10, who became pregnant. http://www.cnn.com/2015/05/10/Americas/Paraguay-girl-rape-

pregnancy/index.html. Accessed June 1, 2015.

Page 23: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Abortion Laws Worldwide

United Nations World Abortion Laws 2013. Annual Review of Population Law. en.Wikipedia.org/wiki/Abortion_law. Accessed June 1, 2015.

Page 24: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

The Question

Is the pregnancy a danger to this girl’s

health?

A. Yes, definitely

B. No

C. I’m not sure

• Amnesty International. Paraguay: Life of a Pregnant 10-year-old girl at risk. https://www.amnesty.org/en/documents/amr45/1554/2015/en/. Accessed June 1, 2015.

• Hanna J., Romo R. Paraguay Man Arrested in Rape of Girl, 10, who became pregnant. http://www.cnn.com/2015/05/10/Americas/Paraguay-girl-rape-

pregnancy/index.html. Accessed June 1, 2015.

Page 25: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

The Question

Who should make the decision as to

whether an abortion is appropriate or not?

A. The government

B. The patient’s mother (fetus’s grandmother)

C. The patient

D. I’m not sure

Page 26: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

The Question

Does the unborn fetus have rights?

A. Yes

B. No

C. I’m not sure

Page 27: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

The Question

Should this patient be allowed to have an abortion?

A. Yes

B. No

C. I’m not sure

Does knowing the patient was 21 weeks pregnant

when the pregnancy was noted change your mind?

Page 28: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Lessons Learned…

• Often, there is no right or wrong answer

• These decisions often are best made in groups

• Varied opinions matter!

• Use your ethics board!

• Although our cultures and understanding of

bioethics may differ, we all share the common goal

of caring for the patient’s best interest

Page 29: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her
Page 30: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her
Page 31: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her
Page 32: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

And there was gelato!

Page 33: Bioethics: Traditional Principles and Modern Day Dilemmas · The Story Continues… •Unfortunately, the couple split up in May 2014. •Loeb is now suing Vergara to prevent her

Any questions?

Thank you!

International Course in Bioethics, May 2016

Scilla, Italy